Nuala's post - overlooked and not displayed properly

[Guest guest]

Thanks for the reposting of this message - you are correct

in that it wasn't displaying properly and it's difficult to know what actually

went wrong.

Yesterday today, after noticicng her goitre enlarged and concerned about a

funny sounding voice we went back to the doctor. She is being referred again

and will once more be offered thyroxine.

I persuaded Tara to get back to her regime and she upped the lugols dose

from 3 to more tuan 6 drops and restarted LDN.

Her throat seems much more painful and especially in the evening. Im worried

and don't know what to give her to help. She is in pain even when not

Hello Nuala,

Has your daughter been tested to see whether she has antibodies

to her thyroid? She needs TPO and TgAb to be tested as soon as possible. Do

thyroid or autoimmune diseases run in your family?

I had understood, from the Peatfield article recently posted

I think, that

its possible the goitre will enlarge when it receives the dose it needs ,

for 24 hoiurs but then settle down.

You might want to join the 's Iodine Group and

discuss your daughters problems on there as they have a tremendous amount of

knowledge regarding iodine therapy IodineOT/

Can anyone advise me please what to do. Im worried Im

harming Tara and wont

know what to do if the throat gets even worse.

Inside there is swelling on the right side but no sign of inflammation.

Your daughter needs to see her doctor to get a referral to an

endocrinologist but meanwhile, read about Hashimoto's Thyroiditis here http://www.medicinenet.com/hashimotos_thyroiditis/article.htm

Luv - Sheila

[Guest guest]

Nuala

Obviously your concern for your daughter is paramount. Whether her TFT's are normal or abnormal, I would still be inclined to push your GP for an "Immediate Same Day Referral" to see an Endocrinologist who has a weekly joint "Thyroid Nodule Clinic" This is a medical / surgical service for patients with thyroid nodules / goitres.

Below is an example of referrals by GP's in one of NHS trust areas... I'm sure your local hospital will have similar services.

Good Luck.

Jaki

"Who to Refer" All "Euthyroid" patients with a thyroid nodule, or goitre can now be referred by the GP. Previously they would have been referred to a "general endocrine clinic." Thyroid function tests are requested by the GP and appended to the referral letter. Initiation of other investigations (such as ultrasound scanning or auto-antibodies) are unnecessary. Basically it saves time and most Endo's prefer their own labs for results anyway. Thyroid nodules, particularly when solitary and clinically obvious should be investigated.

"Immediate (same day) referral." Patients with stridor, pain swallowing problems and hoarseness associated with a thyroid swelling.

"Urgent referrals" The presence of the following symptoms or signs in association with a thyroid swelling: •Unexplained hoarseness or voice change•Thyroid Nodule/goitre in a child*Thyroid nodule/goitre in patients under the age of 25•A rapidly enlarging painless thyroid mass over a period of weeks*A palpable lump in the neck, which moves on swallowing.

Patients with a history of sudden onset of pain in a thyroid lump (likely to have bled into a benign thyroid cyst) or a thyroid lump that has newly presented or has been "increasing in size" over several months should be referred to the "Thyroid Nodule Clinic"

Patients with "multinodular goitre" should generally be seen in a "general endocrine clinic," but if there is a "dominant nodule" then referral to the "Thyroid Nodule Clinic" is appropriate.

"Who not to refer"Patients with nodules who have "Hyper– or hypothyroidism" eg: "abnormal thyroid functions tests" associated with a nodular goitre are referred to a "general endocrine clinic."