Dry skin

[Guest guest]

Hi Jayne,

I am correcting myself here. I know your son is your child with DS. I implied

it was your daughter in the part about 'our kids turning orange'. My bad.

Sorry.

I just saw your photos on the photo section of the board. Your family is

beautiful. Is your husband in the Air Force? Very cool!!

Anyhoo...I just wanted to correct myself with your children.

Mom to n (4 1/2 years old) & Chase (13 months, Ds & IS)

Re: dry skin

Hi ,

Oh how the orange skin brought back memories. When my daughter was a baby - she

absolutely LOVED the orange veggies as well. Her skin took on an orange tone and

the doctor, in a panic, ordered liver tests. Just a lot of beta carotene was all

it was! If only she'd eat those veggies now! LOL!

As for the thyroid, check out Dr. Len's site:

http://www.ds- health.com/ thyroid.htm

On the flow sheet for health care guidelines, http://www.ds- health.com/

recordsheet1. htm

Dr. Len advises testing at 6mos of age, 1 year of age, and then yearly from then

on. Be sure to test for TSH and T4. FYI if at any time in your testing, down the

road, if your child still appears to be having symptoms but all their testing

seems to come back borderline and not red flaggish enough for the doc's, ask for

an Anti-Thyroid Antibody screen. This is what finally gave us an answer.

's levels were off the charts. If this test comes back abnormal, it's a

done deal - they have a thyroid problem! For years we had been testing and

testing and his levels were not enough to alert anyone - even though I kept

saying he had all the symptoms. Bottom line - trust your gut!

Thank you for explaining what IS is, how scary. I'm so glad to hear it's been a

while since his last seizure. Having gone through one seizure with my daughter -

that was so scary. I'm sure you've been through quite a bit with that. Chase

must be adorable, 13 months seems so long ago... will be 9 in 3 months!

It goes by so quick. Enjoy the little bugger!

Take care,

Jayne

mom to three including , 8 1/2 (Ds and Autism)

check out the view from my shoes

www.wickedbusymomto 3.wordpress. com

check out the view from my shoes at

www.wickedbusymomto 3.wordpress. com

------------ --------- --------- ---

Never miss a thing. Make your homepage.

[Guest guest]

,

Don't feel like you are the only one who feels this way. I have felt that before

reading people's post thinking, man I must be a real B because I don't always

just feel that way! It's OK. This is hard. I'm sure just about everyone will

agree. I always say that I have so much respect to those who adopt kids with DS.

Mine is BLOOD, and sometimes I have a hard time...lol God Bless you adopting

parents!

The good part is that we are all here for each other and any time you need to

vent this is the perfect group. We all know what you are feeling. It's our job

to bring each other back up when this happens...so here it is...

It's not always great and it is hard, why me? right? My daughter just turned 7

and I have those days, but then there's the others that make her so special and

great, like at school she's everyone's favorite. Her principal gives her insulin

shot to her. Everyone tells me how sweet she is, yeah right-she almost broke my

nose last week because she didn't want to put her seatbelt on. BUT when I was

pregnant she was the first to comfort me and get me a drink of water. and as I

posted earlier, when I stubbed my toe she ran for the cream! lol It's just a

different connection that my other kids. Once Chase gets a little older you'll

get to experience this as well. Right now you just have work!! 2 kids is a lot

of work and let alone have one of them have special needs. Give yourself a

break, and accept that you are struggling, but it will improve. That always

helps me-to recognize there is a problem even if I can't or don't want to fix it

at the time.

God Bless,

Spilios

mom to Myah 7 DS and Diabetes, and so on, Shianne 3 and Isabella 5 months

(Myah's clone without DS! lol)

Re: dry skin

Hi ,

Oh how the orange skin brought back memories. When my daughter was a baby -

she absolutely LOVED the orange veggies as well. Her skin took on an orange tone

and the doctor, in a panic, ordered liver tests. Just a lot of beta carotene was

all it was! If only she'd eat those veggies now! LOL!

As for the thyroid, check out Dr. Len's site:

http://www.ds- health.com/ thyroid.htm

On the flow sheet for health care guidelines, http://www.ds- health.com/

recordsheet1. htm

Dr. Len advises testing at 6mos of age, 1 year of age, and then yearly from

then on. Be sure to test for TSH and T4. FYI if at any time in your testing,

down the road, if your child still appears to be having symptoms but all their

testing seems to come back borderline and not red flaggish enough for the doc's,

ask for an Anti-Thyroid Antibody screen. This is what finally gave us an answer.

's levels were off the charts. If this test comes back abnormal, it's a

done deal - they have a thyroid problem! For years we had been testing and

testing and his levels were not enough to alert anyone - even though I kept

saying he had all the symptoms. Bottom line - trust your gut!

Thank you for explaining what IS is, how scary. I'm so glad to hear it's been

a while since his last seizure. Having gone through one seizure with my daughter

- that was so scary. I'm sure you've been through quite a bit with that. Chase

must be adorable, 13 months seems so long ago... will be 9 in 3 months!

It goes by so quick. Enjoy the little bugger!

Take care,

Jayne

mom to three including , 8 1/2 (Ds and Autism)

check out the view from my shoes

www.wickedbusymomto 3.wordpress. com

check out the view from my shoes at

www.wickedbusymomto 3.wordpress. com

------------ --------- --------- ---

Never miss a thing. Make your homepage.

[Guest guest]

Hi ,

I just found this in my spam box (I get hundreds a day, so it's easy to not

venture to that box and it's easy for legit emails to get lost), so I don't know

if I already responded to this. If it's a dup, oops.

Thank you for understanding and being honest about it. I know it's hard and I

know everyone has their days. I just am so tired of everyone making this out to

be such a " blessing " and that " these babies " are " God's angels " (the last one

really gets me because that says to me that my other son is NOT one of God's

angels). It's hard work and very emotionally exhausting, especially for someone

like me who has yet to bond as a mother with my own son. I feel like a B, too,

when I tell people how I feel. But I don't care how they might react to me.

Either they will understand and support since they are not where I am or they

will judge and turn away (which is what happened with my mother-in-law and two

of my so called best friends).

I, too, have such a respect for those who wait on lists to adopt a child like

Chase. I don't see the draw, but if they feel they can fill the need that the

birth parent was unable to, then more power to them!

I still feel very guarded about coming to this board for support. I have more

days when I am down than when I am feeling like a cheerleader for Chase. When I

first joined this board I know I ripped someone a new one for telling me the

proper way to speak about Down syndrome and the " how-to " on referring to people

with Ds. I still stand by my ripping that person a new one since I feel I am

the mother of a child with Ds and I can speak about that how I want to. I am

not attacking the Ds community and I am not being disrespectful in using any

language as a negative attack, but from that first experience on this board, I

saw that that person didn't see anything worth supporting. Rather that person

would rather " conform " me rather than support me. I guess I pegged the board as

being the same, though I had a similar experience on another board. I just feel

that I don't belong anywhere anymore. I thought I would have the Ds community,

but I feel like I

have to be a phony to have any relationships within that community and the same

within my normal (former) circle of friends. This is why I have so many

negative days. I just feel very alone and my " support " groups really don't seem

to accept my bad days as it conflicts with their own personal existance. This

group has seemed to grown to be a good fit for me. The only reason I don't

chime in too much is because you have " grown up " together and your children and

their needs are more grown up than what Chase's needs are right now. But I

enjoy reading everyone's posts and I don't feel so alienated now as I did 14

months ago. Anyway...

Thanks for sharing your feelings with me. I appreciate it and I hope to be

where you are soon (moving to Florida would help.)

OK. It's getting late for Chase and I need to get him ready for bed (he's

almost crashed out on the floor-the Superbowl wore him out, especially since our

Pats stunk it up. Waaaahhhhhhh!!!!!! :'-(

Thank you, again.

Sincerely,

Mom to n, 4 1/2 years old and Chase, 14 months (Ds & IS)

If you would like to support Chase in his first Buddy Walk 11/11/07, please

visit his team site at:

http://buddywalk.kintera.org/dsala/chasesoutlaws

Re: dry skin

Hi ,

Oh how the orange skin brought back memories. When my daughter was a baby - she

absolutely LOVED the orange veggies as well. Her skin took on an orange tone and

the doctor, in a panic, ordered liver tests. Just a lot of beta carotene was all

it was! If only she'd eat those veggies now! LOL!

As for the thyroid, check out Dr. Len's site:

http://www.ds- health.com/ thyroid.htm

On the flow sheet for health care guidelines, http://www.ds- health.com/

recordsheet1. htm

Dr. Len advises testing at 6mos of age, 1 year of age, and then yearly from then

on. Be sure to test for TSH and T4. FYI if at any time in your testing, down the

road, if your child still appears to be having symptoms but all their testing

seems to come back borderline and not red flaggish enough for the doc's, ask for

an Anti-Thyroid Antibody screen. This is what finally gave us an answer.

's levels were off the charts. If this test comes back abnormal, it's a

done deal - they have a thyroid problem! For years we had been testing and

testing and his levels were not enough to alert anyone - even though I kept

saying he had all the symptoms. Bottom line - trust your gut!

Thank you for explaining what IS is, how scary. I'm so glad to hear it's been a

while since his last seizure. Having gone through one seizure with my daughter -

that was so scary. I'm sure you've been through quite a bit with that. Chase

must be adorable, 13 months seems so long ago... will be 9 in 3 months!

It goes by so quick. Enjoy the little bugger!

Take care,

Jayne

mom to three including , 8 1/2 (Ds and Autism)

check out the view from my shoes

www.wickedbusymomto 3.wordpress. com

check out the view from my shoes at

www.wickedbusymomto 3.wordpress. com

------------ --------- --------- ---

Never miss a thing. Make your homepage.

[Guest guest]

,

If you do not do PC, are wired a bit differently, and can be a B sometimes, you

have my full support. I don't do PC either, and can out-B the best of 'em.

Hang in there, lady.

granny

Re: Re: dry skin

>

>Hi ,

>

>I just found this in my spam box (I get hundreds a day, so it's easy to not

venture to that box and it's easy for legit emails to get lost), so I don't know

if I already responded to this. If it's a dup, oops.

>

>Thank you for understanding and being honest about it. I know it's hard and I

know everyone has their days. I just am so tired of everyone making this out to

be such a " blessing " and that " these babies " are " God's angels " (the last one

really gets me because that says to me that my other son is NOT one of God's

angels). It's hard work and very emotionally exhausting, especially for someone

like me who has yet to bond as a mother with my own son. I feel like a B, too,

when I tell people how I feel. But I don't care how they might react to me.

Either they will understand and support since they are not where I am or they

will judge and turn away (which is what happened with my mother-in-law and two

of my so called best friends).

>

>I, too, have such a respect for those who wait on lists to adopt a child like

Chase. I don't see the draw, but if they feel they can fill the need that the

birth parent was unable to, then more power to them!

>

>I still feel very guarded about coming to this board for support. I have more

days when I am down than when I am feeling like a cheerleader for Chase. When I

first joined this board I know I ripped someone a new one for telling me the

proper way to speak about Down syndrome and the " how-to " on referring to people

with Ds. I still stand by my ripping that person a new one since I feel I am

the mother of a child with Ds and I can speak about that how I want to. I am

not attacking the Ds community and I am not being disrespectful in using any

language as a negative attack, but from that first experience on this board, I

saw that that person didn't see anything worth supporting. Rather that person

would rather " conform " me rather than support me. I guess I pegged the board as

being the same, though I had a similar experience on another board. I just feel

that I don't belong anywhere anymore. I thought I would have the Ds community,

but I feel like I

> have to be a phony to have any relationships within that community and the

same within my normal (former) circle of friends. This is why I have so many

negative days. I just feel very alone and my " support " groups really don't seem

to accept my bad days as it conflicts with their own personal existance. This

group has seemed to grown to be a good fit for me. The only reason I don't

chime in too much is because you have " grown up " together and your children and

their needs are more grown up than what Chase's needs are right now. But I

enjoy reading everyone's posts and I don't feel so alienated now as I did 14

months ago. Anyway...

>

>Thanks for sharing your feelings with me. I appreciate it and I hope to be

where you are soon (moving to Florida would help.)

>

>OK. It's getting late for Chase and I need to get him ready for bed (he's

almost crashed out on the floor-the Superbowl wore him out, especially since our

Pats stunk it up. Waaaahhhhhhh!!!!!! :'-(

>

>Thank you, again.

>

>Sincerely,

>

>

>Mom to n, 4 1/2 years old and Chase, 14 months (Ds & IS)

>

>If you would like to support Chase in his first Buddy Walk 11/11/07, please

visit his team site at:

>

>http://buddywalk.kintera.org/dsala/chasesoutlaws

>

>

>

>

>

> Re: dry skin

>

>Hi ,

>Oh how the orange skin brought back memories. When my daughter was a baby - she

absolutely LOVED the orange veggies as well. Her skin took on an orange tone and

the doctor, in a panic, ordered liver tests. Just a lot of beta carotene was all

it was! If only she'd eat those veggies now! LOL!

>

>As for the thyroid, check out Dr. Len's site:

>

>http://www.ds- health.com/ thyroid.htm

>

>On the flow sheet for health care guidelines, http://www.ds- health.com/

recordsheet1. htm

>Dr. Len advises testing at 6mos of age, 1 year of age, and then yearly from

then on. Be sure to test for TSH and T4. FYI if at any time in your testing,

down the road, if your child still appears to be having symptoms but all their

testing seems to come back borderline and not red flaggish enough for the doc's,

ask for an Anti-Thyroid Antibody screen. This is what finally gave us an answer.

's levels were off the charts. If this test comes back abnormal, it's a

done deal - they have a thyroid problem! For years we had been testing and

testing and his levels were not enough to alert anyone - even though I kept

saying he had all the symptoms. Bottom line - trust your gut!

>

>Thank you for explaining what IS is, how scary. I'm so glad to hear it's been a

while since his last seizure. Having gone through one seizure with my daughter -

that was so scary. I'm sure you've been through quite a bit with that. Chase

must be adorable, 13 months seems so long ago... will be 9 in 3 months!

It goes by so quick. Enjoy the little bugger!

>

>Take care,

>Jayne

>mom to three including , 8 1/2 (Ds and Autism)

>

>check out the view from my shoes

>www.wickedbusymomto 3.wordpress. com

>

>check out the view from my shoes at

>www.wickedbusymomto 3.wordpress. com

>

>------------ --------- --------- ---

>Never miss a thing. Make your homepage.

>

>

[Guest guest]

We love Aquaphor too - CVS has the generic version for $2 less and

works just as well! Our pediatrician also gave us a sample of

Verdeso. It's a foam and is gentle enough for Presley's dry face. It

clears it up in a matter of hours! Great for when the dry skin gets

really bad and breaks open!

Take care,

Teana

www.UpsideOfDown.org

[Guest guest]

This is my non-drying way of cleansing my face:

Daily:

Have a face cloth soaking in hot water while I apply sweet almond oil

or fractionated coconut oil (scented with lavender or other essential

oil) to my face. Apply the hot cloth & leave it on my face while I

enjoy the scent.) When it cools off, wipe away the make-up, grime &

oil. It leaves my face clean & moisturized. I don't have to moisturize

after cleaning. Fractionated coconut oil & sweet almond oil are

non-pore clogging oils.

Weekly:

An extremely gentle exfoliating scrub made with rice flower, ginseng

powder & adzuki bean powder. Follow that with a a mask made with pink

kaolin clay (the gentlest of clays - doesn't suck out the oils from

your skin.)

My face is never dry any more.

aka

katiemackaysbath.etsy.com

[Guest guest]

I have dry scalp issues and had started washing my hair with baking

soda/water. Since my face is similarly dry and sensitive, I tried

letting the baking soda/water wash down my face as well. I'm clean

and NOT stripped of my natural oils. Since I dont' wear makeup, its

easier to get my face clean. I generally use jojoba oil each night

around my eyes and on my lips.

just a thought.

-beveg

>

> This is my non-drying way of cleansing my face:

>

> Daily:

> Have a face cloth soaking in hot water while I apply sweet almond

oil

> or fractionated coconut oil (scented with lavender or other

essential

> oil) to my face. Apply the hot cloth & leave it on my face while I

> enjoy the scent.) When it cools off, wipe away the make-up, grime &

> oil. It leaves my face clean & moisturized. I don't have to

moisturize

> after cleaning. Fractionated coconut oil & sweet almond oil are

> non-pore clogging oils.

>

> Weekly:

> An extremely gentle exfoliating scrub made with rice flower, ginseng

> powder & adzuki bean powder. Follow that with a a mask made with

pink

> kaolin clay (the gentlest of clays - doesn't suck out the oils from

> your skin.)

>

> My face is never dry any more.

>

> aka

> katiemackaysbath.etsy.com

>

[Guest guest]

Sheila i read the post about the eyebrows as mine are a bit thin but had seen

what you had wrote about the dry skin, before i went onto erfa i was taking

nutriwest t-lyph, when i was first diagnosed that was the worst symptom of mine

as my face was so dry it was like weetabix, within 4 days of going onto t-lyph

my skin cleared up and i was so pleased. I have now come off it as i dont want

to take too many supplements as it can get costly for me and my skin has became

a bit dry again not as bad but if it doesn't get better once i am on the correct

dose i am going to take them again. I read in a book called Why Am I So Tired?:

Is your thyroid making you ill? [Paperback]

, N.D., D.O. Budd that you can take Nutriwest t-lyph with thyroxine to get

a fine tuning of the thyroid so maybe it can work good with NDT

Love Alison