new member intro

[Guest guest]

Hi Sheri,

I have worked with Magda long distance now for about a year.

Thank you for all of the RhoGam info. I will provide copies to my midwife, since

it doesn't seem she had been reading about how serious this issue really is, and

she should really be up to date on the current studies. I think it is an insult

for a person to work in the medical field, and not know the latest info on a

subject. After all, I am paying her for her services, and she is doind me no

favor by being ignorant. I guess she is just used to her patients being the

ignorant ones. NOT THIS ONE!!!

Thanks to everybody who responded so warmly. I think I will like it here:)

Brieanne

Brieanne

Sheri Nakken <vaccineinfo@...> wrote:

At 05:39 PM 4/28/2005 -0000, you wrote:

>

>Hello list,

>

>My name is Brieanne and I am a new member. Here is what brought me

>here:

>

>I am 24 and I live in CA with my husband and my cattle dog, Belle.

>Belle is the one who really showed me the light when it comes to our

>goverment and the big coorporations who have all of the power. One

>day when I tried to apply some flea medication to her skin, she ran

>and hid, and was mad at me for a couple of days. I googled the

>ingredients of the topical, and I was horrified to find out that dogs

>were becoming sick and dying from a product that was supposed to be

>safe for our pets, and she knew it was bad stuff!!!

Smart dog!

Now, I don't

>vaccinate her anymore, nor do I use any sort of poisons, cleaning

>chemicals, or beauty products in our house. We are all being treated

>by a Classical Homeopath, and I am just fascinated with the results I

>have seen so far!!!

Who do you see in California? So glad!

>

>When I realized that I was lied to about the safety of something

>like " Advantage, " I wondered what other lies I was being fed. When I

>researched the ingredients in vaccines and learned they contribute to

>many, if not most chronic dieases, I made a vow to make my family as

>healthy as I can, and only support those businesses who truely do

>care about our health, and to quit poisoning my family with food full

>of hydrogenated fats and horomes/antibiotics. Money talks!!!

>

>I am 27 weeks pregnant, and we have made a decision to not vaccinate

>this baby. When I found out I was RH-, of course the doctor wanted to

>make me take the RhoGam injection during pregnancy, to prevent

>something that has a 1% chance of happening. The chances that I will

>receive heavy doses of poison from the injection are 100%. The

>chances that my baby will be affected by these poisons-100% Needless

>to say, refusing RhoGam was not a hard choice for me to make.

EXACTLY. I will send you some RhoGam info I have put together. Smart

choice. The US is the ONLY country that I know of that also gives during

pregnancy. A move to double their money.

>

>I know we have a long journey ahead of us if we want to continue to

>fight for what we believe in, but I also know that being a member of

>a list, like this one, can make it a little easier. I will really

>need help once my children are old enough to attend school:(

Yes, it will help tons

And all states have exemptions of some sort for school.

And California you just say no. Sign the back of the form and refuse.

Period. Very easy

>

>Thank you for approving my membership:)

>Brieanne and Belle

>

Welcome>

--------------------------------------------------------

Sheri Nakken, R.N., MA, Classical Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

vaccineinfo@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL

OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE.

******

" Just look at us. Everything is backwards; everything is upside down.

Doctors destroy health, lawyers destroy justice, universities destroy

knowledge, governments destroy freedom, the major media destroy information

and religions destroy spirituality " .... Ellner

---------------------------------

[Guest guest]

Hello,

My name is Jane, my son turns 5 today! We are in the similar boat. We are awaiting a diagnoses. We go back to the developmental psych around July but I am still waiting for other tests to come back. My son was diagnosed global developmental delay, possible pdd-nos.

He has melt downs---so do most of the boys in my family..hmmmm

His melt downs are occurring less often these days.

he has sensory integrations issues as well.

That thumb sucking thing that you described with rubbing the eyebrows---wow, I never heard of anyone else doing that> I did it! Until like 4th grade. My mother would put tobasco sauce, and other things to get me to stop. I would still do it in my sleep. I don't have any label-graduated with a BSW (social work) from a really good school. After looking into my son's issues, I must say that I think I may have some sensory issues (mild compared to him) myself.

Welcome to the group, I hope you find it helpful.

Jane

wife to Tony

mother to (17), Caleb (5 TODAY!) and Hannah (2- past Sunday, yeah!)wyndgardium <wyndgardium@...> wrote:

Hello! I stumbled upon this group tonight, and thought it might be what I was looking for...I'm in the process of getting a diagnosis for my son, Aiden, who's four. (Will be five in August). My husband and I have long since known something was "different" about him, but just couldn't place it. We had him evaluated right as he turned 4, and he was diagnosed with a speech delay, but no other developmental delays. Long story short, he didn't get into speech therapy until about January/February of this year. He's got great expressive vocabulary, just has some pronunceation (sp) problems and problems speaking too fast.It was about that time (4-5 months ago) that I spoke to his pediatrician about the problems I'd noticed with his behavior. She recommended a specialist in the state (that is apparently "THE" one to go to

and handles all cases here.) I called and they said they didn't think Aiden was severe enough to be seen. I disagreed, and felt like I'd hit a brick wall. So I went back to my pediatrician whom agreed with me, and suggested I go with a child psych for an evaluation in the meantime. The pediatrician made two calls to the specialist, and finally we're supposed to get a call this week to set up more evals. Meanwhile, we have a meeting on Thursday with the child psych to discuss her evaluation.We highly suspect ADD at this point, possibly ODD, possibly Aspergers. Not knowing is the worst part I think. I'm not looking for a "label" but I want to know what it is we're dealing with, so I know how best to treat/cope with it.Aiden has always talked repetitively. He will say the same sentances OVER and OVER and OVER again, even though you've answered the question or responded to his comment. He also talks LOUDLY. The

concept of "indoor" vs. "outdoor" voice is just foreign to him. He interrupts CONSTANTLY. Even when prompted with "please wait a moment, so and so is talking right now, you'll have your turn to talk next" doesn't change the interuptions. If he knows he doesn't have your attention, he'll just keep on talking.He cannot sit still. I homeschooled his older brother (now 6 and in public kindergarten) during pre-k years, and had no problem doing lesson plans and worksheets and the like with him. Aiden has never been able to do that, hates to do any kind of worksheet, rarely draws or colors. He will qualify for kindergarten this year (age wise) but I'm afraid to send him.He has trouble making eye contact, or getting social cues. When he's angry, he's quick to hit whomever or whatever has made him angry. He does NOT like other kids, quite often at a park, if he sees kids playing, he gets angry. If kids approach him, he'll run

away, tell me he wants to hit them, hide behind me, or cry.Discipling him is a nightmare. We've tried time outs, reward charts, taking away favorite items, and "holding/hugging" time outs. Any kind of discipline will be met with screaming, crying, trying to kick/hit. He does have sensory things - he sucks his thumb and strokes his eyebrow while he does it, and has favorite stuffed animals. (Made out of a certain type of fabric). He has what we call meltdowns.Physically, he's always had excellent fine motor skills and good gross motor skills. He was walking at 10 months. He's never been hospitilized, never had any major injuries or tramas. He never even had an ear infection until this year. (Thanks to the introduction of kindergarten! )I hate talking about him like this, because it paints this horribly negative picture of him. That's not the case. He can be very loving, very gentle, and a great listener at times. I'm

just not sure how to handle these melt downs. He's so different from my older son, and I feel like everything I try is met with negativity and failure.Our home is a stable one. Hubby and I have been together for 10 years, married for going on 8. We don't drink, smoke, abuse, neglect. Hubby works full time, and I'm a stay at home mom. Somehow though, I feel like Aidens problems are my fault, some flaw I did or didn't do. He didn't get the one on one attention as an infant that my first born did, simply because they were 18 months apart, and he was the second child. Maybe that somehow affected his brain development. I don't know, but my mind certainly things of "What if I had done this or this differently..." I didn't drive for the first 3.5 years of his life, so we've never been in day care or any kind of social playgroup situation. Was that my mistake? (See what I mean?!)I'm sorry for this horrible rambling that probably isn't

too cohesive a list, but it's all very personal for me, and something I'm really struggling to deal with.I'm just looking for someone that has been through this - some kind of proof that I'm not this horrible parent, and that there is some kind of help or hope or light at the end of this.

[Guest guest]

Hello , welcome to the group! Please be sure to read articles in links

and archives regarding the genetic periodic fevers. Many kids here started with

a diagnosis of Pfapa only to go through the testing and find that they had one

of the 3 main genetic disorders. My son (PJ) is now 12 but started with the

periodic fevers at age 6 months on a very irregular and infrequent basis but as

soon as he turned 5 years, they really started every month like clockwork. This

turned out to be pretty typical of FMF (Familial Mediterranean Fever) which he

was not diagnosed with until after age 8, by NIH. He also does not have the eye

problems or mouth sores that other parents mention but those are not typical of

FMF.

Anyway, read, read, read! Fran has tons of good articles that will help you to

become more educated on these periodic fevers and help guide you in the right

direction towards finding the proper diagnosis for your child. I am a big

advocate of the genetic testing if only because of what we have gone through

with my son. The diagnosis of a genetic disorder is hard to receive but better

than not knowing. Plus, if it is one of the genetic disorders, some, as FMF,

cannot go untreated. They can lead to very damaging if not fatal, problems.

Good luck as you travel down this path. Feel free to post any questions or just

share any frustrations. There are alot of us here in the same boat!

Pat Bombardier, mom to PJ, 12yo, FMF, Virginia

p.s. to those who may remember us, PJ is doing really well just now. He has been

fever free for almost 6 months straight, thanks to Colchicine. He still has very

mild symptoms every month, nausea, stomache pain, achey joints, but not severe

enough to slow him down. At our last NIH visit, we discussed the " Line " . On

'this' side of the line is what you can experience and live with, on the 'other'

side is what you cannot live with. Pj's symptoms are currently on 'this' side of

the line. If and when his symptoms cross to the other side of the line, his next

treatment option will have to involve IV therapy which is something none of us

look forward to, so we hope, we pray, and we enjoy every day we have on 'this'

side of that line! God bless.

---------------------------------

Stay connected, organized, and protected. Take the tour

[Guest guest]

What part of Louisiana??

-- New member Intro

Howdy from Louisiana. Just joined your group. I'm new to Kt as well.

Just finished my 2nd batch. Trying to learn the fermentation times and

techniques neede to make the delicious KT I've read so much about

elsewhere. Look forward to learning and sharing with the group. Peace:

[Guest guest]

Hi ,

My son Charlie had 3 fever episodes (Nov. 04, Feb. 05, & April 05) after the 3rd

episode my pediatrician sent of to his wife a ped. rheumatologist & ID. She

immediately started him on the cimetidine and he has not had any episodes since.

His fevers would be 105 for 4 to 5 days with no other symptoms that we could

see. Charlie is 2 and doesn't speak yet so he can't tell us what hurts. Charlie

had always been a very cranky child since birth and within a week of taking the

cimetidine he demeanor has changed dramatically, I can actually say he is now a

truly happy little boy. No side effects.

He has been diagnosed with he goes back to the Dr. in Aug. and I am going

to request genetic testing to find out what exactly is wrong with him. I

understand how you feel about your child having a rare disorder. I still can't

believe that the perfect little baby boy I brought home from the hospital could

be this sick and possible sicker as time goes on. My heart and prayers go out to

everyone going thru this.

<jenmil@...> wrote:

my son, noah, who is 4 years old, has been clinically diagnosed with . our

journey began last summer when he had a prolonged high fever (105 for 9 days)

and a terrible sore throat. we saw our regular pediatrician, and an infectious

disease speaialist. many viruses and illnesses were ruled out, and he got better

and resumed normal function. when it happened again about a month later, my

radar immediately went up and realized something was out of the ordinary. we had

our first consultation with out rheumatologist who mentioned conditions such as

. i walked out of there thinking that she was way off base- the repeated

illnesses were coincidental or due to germs on his pacifier. surely he could not

have a rare condition like this- none of my other kids had it, (noah is the

youngest of four), and we don't do " rare conditions " .

since the tonsils and glands were infected and swollen, we began talking about

seeing an ent specialist. the next two illnesses were slightly different in

nature- at the same intervals but symptomatically different- one sinusitis and

one bronchitis, so we decided to hold off on taking out the tonsils. we then had

a two month break, when we thought we were home free. unfortunately, the fevers

and tonsilitis came back. during one illness my regular pediatrician was out of

town and the covering doctor was so alarmed when she saw my baby's throat that

she sent us straight to the ent to see if he had an abcess or needed immediate

surgery. he could not lie down flat, because he was gagging on his tonsils. he

did get better foem that one, and we're doing it all over again now. i have been

back to the infectious disease guy and the rheumatologist, and after repeated

tests and cultures, they are calling this . they have prescribed

cimetidine, which i intend to begin right after he feels

better from this round.

i would like to know what people's experiences have been with this drug, and

what people's experience has been after a tonsilectomy. what about families with

multiple children. does this run in the family? are these illnesses contagious?

any info/ help is appreciated.

thanks.

jennifer miller

jenmil@...

[Guest guest]

Hi,

There is a lot of info. on the web. but I just wanted to answer some of

your questions from our expereince.

My daughter has been diagnosed with and we are still waiting on

the genetic testing (been waiting 3 months now). can only be

diagnosed after the genetic testing has been ruled out since they are

soooooo similar and there is NO test to test for .

My daughter had fever episodes every 28 days for about a year before we

could get anyone to believe us that is was more than just a virus she

was catching. She would get a few mouth sores, sore throat, joint pain,

headache, etc.... and of course the very high fever. They would last

about 3-4 days and we started to plan our lives around them. We

scheduled parties, vacations,etc. around when we thought the fevers

would come.

We did not try the cimetidine because our doctor felt since she had a

very sore throat during episodes anyway, we might as well get them

taken out and try that to stop the fevers. Also he felt it was better

to do this one time procedure than put her on this long time medicine.

We agreed since Maddie was 5 by this time and the tonsillectomy had

seemed to be more effected in kids over 5. Although is does not work

for everyone it did work for Maddie. She had her Tonsils out last

August and has had only ONE fever since then. (8 months fever free).

She does however continue to get knee pain and I can tell it's about

the same time of the month that she's whiney and her eye look puffy,

stuff like that. But we teach her how to deal with it and we do also.

If the fevers are really or one of the genetic ones, The fevers

are in no way contagious. There are no documented cases of

running in a family although I think there are couple people in this

group who have multiple people in the family who have it. However the

genetic one do run in the family as they are genetic. I know it seems

so hard now, but you will learn to cope and realize when you take your

child the er or doctor just how lucky we all are that this is all they

have. I know it seems strange to say since these kids go through so

much. But there are so much more horrible things out there to deal

with. You will learn to deal with it.

Hope that helps alittle to answer your questions.

Tracey

Mom to Maddie, age 6

Brent, age 10

League City, Texas

On Sunday, June 12, 2005, at 07:59 AM, Uchetel wrote:

> Hi ,

> My son Charlie had 3 fever episodes (Nov. 04, Feb. 05, & April 05)

> after the 3rd episode my pediatrician sent of to his wife a ped.

> rheumatologist & ID. She immediately started him on the cimetidine and

> he has not had any episodes since. His fevers would be 105 for 4 to 5

> days with no other symptoms that we could see. Charlie is 2 and

> doesn't speak yet so he can't tell us what hurts. Charlie had always

> been a very cranky child since birth and within a week of taking the

> cimetidine he demeanor has changed dramatically, I can actually say he

> is now a truly happy little boy. No side effects.

> He has been diagnosed with he goes back to the Dr. in Aug. and I

> am going to request genetic testing to find out what exactly is wrong

> with him. I understand how you feel about your child having a rare

> disorder. I still can't believe that the perfect little baby boy I

> brought home from the hospital could be this sick and possible sicker

> as time goes on. My heart and prayers go out to everyone going thru

> this.

>

> <jenmil@...> wrote:

> my son, noah, who is 4 years old, has been clinically diagnosed with

> . our journey began last summer when he had a prolonged high

> fever (105 for 9 days) and a terrible sore throat. we saw our regular

> pediatrician, and an infectious disease speaialist. many viruses and

> illnesses were ruled out, and he got better and resumed normal

> function. when it happened again about a month later, my radar

> immediately went up and realized something was out of the ordinary. we

> had our first consultation with out rheumatologist who mentioned

> conditions such as . i walked out of there thinking that she was

> way off base- the repeated illnesses were coincidental or due to germs

> on his pacifier. surely he could not have a rare condition like this-

> none of my other kids had it, (noah is the youngest of four), and we

> don't do " rare conditions " .

> since the tonsils and glands were infected and swollen, we began

> talking about seeing an ent specialist. the next two illnesses were

> slightly different in nature- at the same intervals but

> symptomatically different- one sinusitis and one bronchitis, so we

> decided to hold off on taking out the tonsils. we then had a two month

> break, when we thought we were home free. unfortunately, the fevers

> and tonsilitis came back. during one illness my regular pediatrician

> was out of town and the covering doctor was so alarmed when she saw my

> baby's throat that she sent us straight to the ent to see if he had an

> abcess or needed immediate surgery. he could not lie down flat,

> because he was gagging on his tonsils. he did get better foem that

> one, and we're doing it all over again now. i have been back to the

> infectious disease guy and the rheumatologist, and after repeated

> tests and cultures, they are calling this . they have prescribed

> cimetidine, which i intend to begin right after he feels

> better from this round.

> i would like to know what people's experiences have been with this

> drug, and what people's experience has been after a tonsilectomy. what

> about families with multiple children. does this run in the family?

> are these illnesses contagious? any info/ help is appreciated.

> thanks.

> jennifer miller

> jenmil@...

>

>

[Guest guest]

thanks so much for your respnse. i will keep the group updated on the cimetidine

progress. noah woke up this morning fever free, which as you know is like a

cloud lifting..........til the next time.

Re: new member intro

Hi ,

My son Charlie had 3 fever episodes (Nov. 04, Feb. 05, & April 05) after the

3rd episode my pediatrician sent of to his wife a ped. rheumatologist & ID. She

immediately started him on the cimetidine and he has not had any episodes since.

His fevers would be 105 for 4 to 5 days with no other symptoms that we could

see. Charlie is 2 and doesn't speak yet so he can't tell us what hurts. Charlie

had always been a very cranky child since birth and within a week of taking the

cimetidine he demeanor has changed dramatically, I can actually say he is now a

truly happy little boy. No side effects.

He has been diagnosed with he goes back to the Dr. in Aug. and I am

going to request genetic testing to find out what exactly is wrong with him. I

understand how you feel about your child having a rare disorder. I still can't

believe that the perfect little baby boy I brought home from the hospital could

be this sick and possible sicker as time goes on. My heart and prayers go out to

everyone going thru this.

<jenmil@...> wrote:

my son, noah, who is 4 years old, has been clinically diagnosed with .

our journey began last summer when he had a prolonged high fever (105 for 9

days) and a terrible sore throat. we saw our regular pediatrician, and an

infectious disease speaialist. many viruses and illnesses were ruled out, and he

got better and resumed normal function. when it happened again about a month

later, my radar immediately went up and realized something was out of the

ordinary. we had our first consultation with out rheumatologist who mentioned

conditions such as . i walked out of there thinking that she was way off

base- the repeated illnesses were coincidental or due to germs on his pacifier.

surely he could not have a rare condition like this- none of my other kids had

it, (noah is the youngest of four), and we don't do " rare conditions " .

since the tonsils and glands were infected and swollen, we began talking about

seeing an ent specialist. the next two illnesses were slightly different in

nature- at the same intervals but symptomatically different- one sinusitis and

one bronchitis, so we decided to hold off on taking out the tonsils. we then had

a two month break, when we thought we were home free. unfortunately, the fevers

and tonsilitis came back. during one illness my regular pediatrician was out of

town and the covering doctor was so alarmed when she saw my baby's throat that

she sent us straight to the ent to see if he had an abcess or needed immediate

surgery. he could not lie down flat, because he was gagging on his tonsils. he

did get better foem that one, and we're doing it all over again now. i have been

back to the infectious disease guy and the rheumatologist, and after repeated

tests and cultures, they are calling this . they have prescribed

cimetidine, which i intend to begin right after he feels better from this round.

i would like to know what people's experiences have been with this drug, and

what people's experience has been after a tonsilectomy. what about families with

multiple children. does this run in the family? are these illnesses contagious?

any info/ help is appreciated.

thanks.

jennifer miller

jenmil@...

[Guest guest]

thanks for your encouraging words. how did maddie do during the recovery from

tonsil surgery? i'm told that because of noah's marked swelling and possible

sleep apnea, surgery and recovery can be more complicated. my gut is that his

tonsils should come out, but i am concerned about putting him through the

procedure.

Re: new member intro

Hi,

There is a lot of info. on the web. but I just wanted to answer some of

your questions from our expereince.

My daughter has been diagnosed with and we are still waiting on

the genetic testing (been waiting 3 months now). can only be

diagnosed after the genetic testing has been ruled out since they are

soooooo similar and there is NO test to test for .

My daughter had fever episodes every 28 days for about a year before we

could get anyone to believe us that is was more than just a virus she

was catching. She would get a few mouth sores, sore throat, joint pain,

headache, etc.... and of course the very high fever. They would last

about 3-4 days and we started to plan our lives around them. We

scheduled parties, vacations,etc. around when we thought the fevers

would come.

We did not try the cimetidine because our doctor felt since she had a

very sore throat during episodes anyway, we might as well get them

taken out and try that to stop the fevers. Also he felt it was better

to do this one time procedure than put her on this long time medicine.

We agreed since Maddie was 5 by this time and the tonsillectomy had

seemed to be more effected in kids over 5. Although is does not work

for everyone it did work for Maddie. She had her Tonsils out last

August and has had only ONE fever since then. (8 months fever free).

She does however continue to get knee pain and I can tell it's about

the same time of the month that she's whiney and her eye look puffy,

stuff like that. But we teach her how to deal with it and we do also.

If the fevers are really or one of the genetic ones, The fevers

are in no way contagious. There are no documented cases of

running in a family although I think there are couple people in this

group who have multiple people in the family who have it. However the

genetic one do run in the family as they are genetic. I know it seems

so hard now, but you will learn to cope and realize when you take your

child the er or doctor just how lucky we all are that this is all they

have. I know it seems strange to say since these kids go through so

much. But there are so much more horrible things out there to deal

with. You will learn to deal with it.

Hope that helps alittle to answer your questions.

Tracey

Mom to Maddie, age 6

Brent, age 10

League City, Texas

On Sunday, June 12, 2005, at 07:59 AM, Uchetel wrote:

> Hi ,

> My son Charlie had 3 fever episodes (Nov. 04, Feb. 05, & April 05)

> after the 3rd episode my pediatrician sent of to his wife a ped.

> rheumatologist & ID. She immediately started him on the cimetidine and

> he has not had any episodes since. His fevers would be 105 for 4 to 5

> days with no other symptoms that we could see. Charlie is 2 and

> doesn't speak yet so he can't tell us what hurts. Charlie had always

> been a very cranky child since birth and within a week of taking the

> cimetidine he demeanor has changed dramatically, I can actually say he

> is now a truly happy little boy. No side effects.

> He has been diagnosed with he goes back to the Dr. in Aug. and I

> am going to request genetic testing to find out what exactly is wrong

> with him. I understand how you feel about your child having a rare

> disorder. I still can't believe that the perfect little baby boy I

> brought home from the hospital could be this sick and possible sicker

> as time goes on. My heart and prayers go out to everyone going thru

> this.

>

> <jenmil@...> wrote:

> my son, noah, who is 4 years old, has been clinically diagnosed with

> . our journey began last summer when he had a prolonged high

> fever (105 for 9 days) and a terrible sore throat. we saw our regular

> pediatrician, and an infectious disease speaialist. many viruses and

> illnesses were ruled out, and he got better and resumed normal

> function. when it happened again about a month later, my radar

> immediately went up and realized something was out of the ordinary. we

> had our first consultation with out rheumatologist who mentioned

> conditions such as . i walked out of there thinking that she was

> way off base- the repeated illnesses were coincidental or due to germs

> on his pacifier. surely he could not have a rare condition like this-

> none of my other kids had it, (noah is the youngest of four), and we

> don't do " rare conditions " .

> since the tonsils and glands were infected and swollen, we began

> talking about seeing an ent specialist. the next two illnesses were

> slightly different in nature- at the same intervals but

> symptomatically different- one sinusitis and one bronchitis, so we

> decided to hold off on taking out the tonsils. we then had a two month

> break, when we thought we were home free. unfortunately, the fevers

> and tonsilitis came back. during one illness my regular pediatrician

> was out of town and the covering doctor was so alarmed when she saw my

> baby's throat that she sent us straight to the ent to see if he had an

> abcess or needed immediate surgery. he could not lie down flat,

> because he was gagging on his tonsils. he did get better foem that

> one, and we're doing it all over again now. i have been back to the

> infectious disease guy and the rheumatologist, and after repeated

> tests and cultures, they are calling this . they have prescribed

> cimetidine, which i intend to begin right after he feels

> better from this round.

> i would like to know what people's experiences have been with this

> drug, and what people's experience has been after a tonsilectomy. what

> about families with multiple children. does this run in the family?

> are these illnesses contagious? any info/ help is appreciated.

> thanks.

> jennifer miller

> jenmil@...

>

>

[Guest guest]

She did great. She came home and ate a meal that day. A few days later

she had pain. But we used lots of Motrin, milkshakes and watermelon.

She lived on Watermelon and pudding for a few days.

Tracey

On Sunday, June 12, 2005, at 11:57 AM, wrote:

> thanks for your encouraging words. how did maddie do during the

> recovery from tonsil surgery? i'm told that because of noah's marked

> swelling and possible sleep apnea, surgery and recovery can be more

> complicated. my gut is that his tonsils should come out, but i am

> concerned about putting him through the procedure.

> Re: new member intro

>

>

> Hi,

> There is a lot of info. on the web. but I just wanted to answer some

> of

> your questions from our expereince.

> My daughter has been diagnosed with and we are still waiting on

> the genetic testing (been waiting 3 months now). can only be

> diagnosed after the genetic testing has been ruled out since they are

> soooooo similar and there is NO test to test for .

> My daughter had fever episodes every 28 days for about a year before

> we

> could get anyone to believe us that is was more than just a virus she

> was catching. She would get a few mouth sores, sore throat, joint

> pain,

> headache, etc.... and of course the very high fever. They would last

> about 3-4 days and we started to plan our lives around them. We

> scheduled parties, vacations,etc. around when we thought the fevers

> would come.

> We did not try the cimetidine because our doctor felt since she had a

> very sore throat during episodes anyway, we might as well get them

> taken out and try that to stop the fevers. Also he felt it was better

> to do this one time procedure than put her on this long time

> medicine.

> We agreed since Maddie was 5 by this time and the tonsillectomy had

> seemed to be more effected in kids over 5. Although is does not work

> for everyone it did work for Maddie. She had her Tonsils out last

> August and has had only ONE fever since then. (8 months fever free).

> She does however continue to get knee pain and I can tell it's about

> the same time of the month that she's whiney and her eye look puffy,

> stuff like that. But we teach her how to deal with it and we do also.

> If the fevers are really or one of the genetic ones, The fevers

> are in no way contagious. There are no documented cases of

> running in a family although I think there are couple people in this

> group who have multiple people in the family who have it. However the

> genetic one do run in the family as they are genetic. I know it seems

> so hard now, but you will learn to cope and realize when you take

> your

> child the er or doctor just how lucky we all are that this is all

> they

> have. I know it seems strange to say since these kids go through so

> much. But there are so much more horrible things out there to deal

> with. You will learn to deal with it.

> Hope that helps alittle to answer your questions.

> Tracey

> Mom to Maddie, age 6

> Brent, age 10

> League City, Texas

>

> On Sunday, June 12, 2005, at 07:59 AM, Uchetel wrote:

>

>> Hi ,

>> My son Charlie had 3 fever episodes (Nov. 04, Feb. 05, & April 05)

>> after the 3rd episode my pediatrician sent of to his wife a ped.

>> rheumatologist & ID. She immediately started him on the cimetidine and

>> he has not had any episodes since. His fevers would be 105 for 4 to 5

>> days with no other symptoms that we could see. Charlie is 2 and

>> doesn't speak yet so he can't tell us what hurts. Charlie had always

>> been a very cranky child since birth and within a week of taking the

>> cimetidine he demeanor has changed dramatically, I can actually say he

>> is now a truly happy little boy. No side effects.

>> He has been diagnosed with he goes back to the Dr. in Aug. and I

>> am going to request genetic testing to find out what exactly is wrong

>> with him. I understand how you feel about your child having a rare

>> disorder. I still can't believe that the perfect little baby boy I

>> brought home from the hospital could be this sick and possible sicker

>> as time goes on. My heart and prayers go out to everyone going thru

>> this.

>>

>> <jenmil@...> wrote:

>> my son, noah, who is 4 years old, has been clinically diagnosed with

>> . our journey began last summer when he had a prolonged high

>> fever (105 for 9 days) and a terrible sore throat. we saw our regular

>> pediatrician, and an infectious disease speaialist. many viruses and

>> illnesses were ruled out, and he got better and resumed normal

>> function. when it happened again about a month later, my radar

>> immediately went up and realized something was out of the ordinary. we

>> had our first consultation with out rheumatologist who mentioned

>> conditions such as . i walked out of there thinking that she was

>> way off base- the repeated illnesses were coincidental or due to germs

>> on his pacifier. surely he could not have a rare condition like this-

>> none of my other kids had it, (noah is the youngest of four), and we

>> don't do " rare conditions " .

>> since the tonsils and glands were infected and swollen, we began

>> talking about seeing an ent specialist. the next two illnesses were

>> slightly different in nature- at the same intervals but

>> symptomatically different- one sinusitis and one bronchitis, so we

>> decided to hold off on taking out the tonsils. we then had a two month

>> break, when we thought we were home free. unfortunately, the fevers

>> and tonsilitis came back. during one illness my regular pediatrician

>> was out of town and the covering doctor was so alarmed when she saw my

>> baby's throat that she sent us straight to the ent to see if he had an

>> abcess or needed immediate surgery. he could not lie down flat,

>> because he was gagging on his tonsils. he did get better foem that

>> one, and we're doing it all over again now. i have been back to the

>> infectious disease guy and the rheumatologist, and after repeated

>> tests and cultures, they are calling this . they have prescribed

>> cimetidine, which i intend to begin right after he feels

>> better from this round.

>> i would like to know what people's experiences have been with this

>> drug, and what people's experience has been after a tonsilectomy. what

>> about families with multiple children. does this run in the family?

>> are these illnesses contagious? any info/ help is appreciated.

>> thanks.

>> jennifer miller

>> jenmil@...

>>

>>

[Guest guest]

Hi ,

My son Drew is 3 1/2 now. He's had since about 3 months, I

think. He had fairly cyclic fevers from 3-9 months, but was

diagnosed with ear infections so hard to say if it was initially,

but I think so. He kept getting fevers and mysterious " viruses "

that no one else got, and was finally diagnosed at 18 months. I

found this website just before he turned 2 and it has been a life

saver. Drew also had severe tonsil involvement, I used prednisone

with the fevers after he was diagnosed, but they brough the fevers

closer. His tonsils sometimes would decrease his ability to

breathe, and although I would try not to give him the prednisone,

there were several times I had to because he could not breathe,

especially at night. There were two times I woke him because his

hands, feet and lips would have a bluish tinge. He had his tonsils

out a few months before he turned 3. It was a VERY difficult

recovery, took over a month where he kept fevering, the swelling was

bad, he bled after, was in the hospital 3 days, etc.... That being

said, he sleeps much better now. After that first month, his fevers

decreased in intensity and he didn't have breathing problems anymore

with the fevers. He still continued to get mild fevers and mouth

sores, so we tried cimetidine starting in early April. He has not

had fevers since, or if he has, they have been mild. HE still

cycles with swollen lymph nodes, and sores in his mouth. The sores

have persisted throughout. They got a little better after the

tonsillectomy, came back, got a little better after starting the

cimetidine, now they're back again. Initially I doubted the

tonsilectomy, especially when he was so sick after. I do wish we

had tried the cimetidine first, which I preferred, but were told no

by 4 doctors, who all suggested tonsillectomy first. Maybe we could

have avoided it, although I think with his breathing problems we

would have had one eventually with or without the .

Good luck,

[Guest guest]

hi there Nazare, im fairly new myself 20 months in to the ,

virtually all the reports i have read, heres one i copied for

you, they state******* PERIODIC FEVER, APHTHOUS STOMATITIS,

PHARYNGITIS AND CERVICAL ADENITIS- A CASE REPORT,P. Correia, J.G.

Marques, P. Valente

Infectious Disease Unit, Department of Paediatrics, Santa

Hospital, Lisbon, Portugal.A syndrome characterised by periodic

fever associated with aphthous stomatitis, pharyngitis and cervical

adenitis ( Syndrome) was described in 1987. Episodes recur

every 3 to 8 weeks and resolve spontaneously in 3 to 6 days*******my

daughters 99% of the time are 21-28 days apart but she has had a few

where we had a breaks of around 5 & 10 weeks. thought i would point

this out as you seem so sure its not , thing is who really

knows unless genetic tests prove otherwise with this rare illness.

hope this helps

kind regards

anne-marie + trinity

> Hello, all. First of all let me start out by saying, my name is

> Nazare', I am from San Diego, CA and I am Bradys mom (27 months).

I

> also have a one year old named Jarrett. Brady has been diagnosed

by

> one Dr. with and the other thinks this is the way his body

is

> going to react to anything, virus', he gets. My pediatician who I

> do love, agrees it is NOT (because by definition it is

> supposed to come every 4 weeks). Obvisously, they don't know

about

> this site of knowledge... Your sons and daughters could be mine.

> Brady started getting these " fevers " when he was 18 months old,

two

> days after we moved into our new home. The are the same anywhere

> from 105-106.6 for 5 days, VERY swollen lynph node, tummy aches

and

> minor blisters (so minor, I never noticed them)We went through the

> ringer of testing, which I am sure you all did, Cat Scratch,

> Kwasakis Disese and so one. The Poor baby gave more blood then I

> thought he had. Nothing made the fevers come down, and he was

> otherwise normal (well as normal as you can be) His fevers come

> every 4-6 weeks and last a week. They almost seem to be getting

> stronger and lasting longer each time.

>

> He is the best kid and strives with everything else! and each

fever

> knocks him down more and more not to mention our entire family

life

> style.

>

> I have so many mixed emotions as I read all the messages posted.

I

> cry becuase, oh my God, you understand, and this is Brady to a

tee.

> I laugh because there might just be an answer. I cry again,

> beecuase the f3ever will come back and then I get mad. i get mad

> becuase there is not too much known about this. The one doc. who

is

> a ID specialist and thinks this is not , should come to my

> house during these fevers and tell me this is normal. Because

> obviously this is not normal.

>

> Each time I go to Childrens Hospital, I cry and thank God for

Bradys

> health, because there is so much worse out there, but at the same

> time, I hate watching his amazing spirit dwindle during these

> episodes. I feel for the parents with numerous children and I

> understand those who feel like bad parents. I too feel that way

> sometimes. People look at your child like they are contagouis or

> sickly and it drives me crazy. Yeah, Brady does not sleep through

> the night and yes, sometimes he jumps in our bed, but like you all

> understand, how can I have my 2 year old son have a 106.6 fever

and

> be in the other room.. Yes, It does cause problems on the good

weeks

> and yes other parents look at me like my child can be out of

control

> sometimes, but where is the happy middle, I dont know.

>

> You all have given me a smile and a good old fashioned cry. And

> even though I have never met you, you are MY FRIENDS. I do have a

> million specif questions... but here are a few of my really

> important ones..

>

> 1) Is anyone else out there from San Diego, CA?

> 2) Is there a state by state roster?

> 3) How many children have this?

> 4) Should I fly to see another specialist? Who is the best? I

want

> to see the best and will go anywhere to get a few answers (I know

> you feel my pain)

> 5) What genetic testing should I demand from the Doctors?

> 6) Brady gets a rash on his legs and lower tummy righ before the

> fevers? Is that normal?

>

> Sorry to take up all this time... but thank you all sooo much..

> Nazare' Judd

> Brady's Mom (27 months with )

> nazarejudd@c...

[Guest guest]

Thanks Anne-Marie, I am sorry I gave you the Impression that I dont think it is

, but I 100% DO THINK it is . I am triing to convince hhis ID doctor

and pediatrician that it is. Another specialist, here in San Diego, says it is

Definatlely too. That is funny you picked that article, I am 100% of

Portuguese desent. Thanks for you response.

Nazare' son Brady 27 months WITH

Re: New Member Intro

hi there Nazare, im fairly new myself 20 months in to the ,

virtually all the reports i have read, heres one i copied for

you, they state******* PERIODIC FEVER, APHTHOUS STOMATITIS,

PHARYNGITIS AND CERVICAL ADENITIS- A CASE REPORT,P. Correia, J.G.

Marques, P. Valente

Infectious Disease Unit, Department of Paediatrics, Santa

Hospital, Lisbon, Portugal.A syndrome characterised by periodic

fever associated with aphthous stomatitis, pharyngitis and cervical

adenitis ( Syndrome) was described in 1987. Episodes recur

every 3 to 8 weeks and resolve spontaneously in 3 to 6 days*******my

daughters 99% of the time are 21-28 days apart but she has had a few

where we had a breaks of around 5 & 10 weeks. thought i would point

this out as you seem so sure its not , thing is who really

knows unless genetic tests prove otherwise with this rare illness.

hope this helps

kind regards

anne-marie + trinity

> Hello, all. First of all let me start out by saying, my name is

> Nazare', I am from San Diego, CA and I am Bradys mom (27 months).

I

> also have a one year old named Jarrett. Brady has been diagnosed

by

> one Dr. with and the other thinks this is the way his body

is

> going to react to anything, virus', he gets. My pediatician who I

> do love, agrees it is NOT (because by definition it is

> supposed to come every 4 weeks). Obvisously, they don't know

about

> this site of knowledge... Your sons and daughters could be mine.

> Brady started getting these " fevers " when he was 18 months old,

two

> days after we moved into our new home. The are the same anywhere

> from 105-106.6 for 5 days, VERY swollen lynph node, tummy aches

and

> minor blisters (so minor, I never noticed them)We went through the

> ringer of testing, which I am sure you all did, Cat Scratch,

> Kwasakis Disese and so one. The Poor baby gave more blood then I

> thought he had. Nothing made the fevers come down, and he was

> otherwise normal (well as normal as you can be) His fevers come

> every 4-6 weeks and last a week. They almost seem to be getting

> stronger and lasting longer each time.

>

> He is the best kid and strives with everything else! and each

fever

> knocks him down more and more not to mention our entire family

life

> style.

>

> I have so many mixed emotions as I read all the messages posted.

I

> cry becuase, oh my God, you understand, and this is Brady to a

tee.

> I laugh because there might just be an answer. I cry again,

> beecuase the f3ever will come back and then I get mad. i get mad

> becuase there is not too much known about this. The one doc. who

is

> a ID specialist and thinks this is not , should come to my

> house during these fevers and tell me this is normal. Because

> obviously this is not normal.

>

> Each time I go to Childrens Hospital, I cry and thank God for

Bradys

> health, because there is so much worse out there, but at the same

> time, I hate watching his amazing spirit dwindle during these

> episodes. I feel for the parents with numerous children and I

> understand those who feel like bad parents. I too feel that way

> sometimes. People look at your child like they are contagouis or

> sickly and it drives me crazy. Yeah, Brady does not sleep through

> the night and yes, sometimes he jumps in our bed, but like you all

> understand, how can I have my 2 year old son have a 106.6 fever

and

> be in the other room.. Yes, It does cause problems on the good

weeks

> and yes other parents look at me like my child can be out of

control

> sometimes, but where is the happy middle, I dont know.

>

> You all have given me a smile and a good old fashioned cry. And

> even though I have never met you, you are MY FRIENDS. I do have a

> million specif questions... but here are a few of my really

> important ones..

>

> 1) Is anyone else out there from San Diego, CA?

> 2) Is there a state by state roster?

> 3) How many children have this?

> 4) Should I fly to see another specialist? Who is the best? I

want

> to see the best and will go anywhere to get a few answers (I know

> you feel my pain)

> 5) What genetic testing should I demand from the Doctors?

> 6) Brady gets a rash on his legs and lower tummy righ before the

> fevers? Is that normal?

>

> Sorry to take up all this time... but thank you all sooo much..

> Nazare' Judd

> Brady's Mom (27 months with )

> nazarejudd@c...

[Guest guest]

HI AGAIN NAZARE, OH HOW SPOOKY, OUT OF ALL THE EXTRACTS I COULD OF

PICKED I CHOSE THAT ONE AT RANDOM, THATS FATE DONT YOU THINK.

KINDEST

ANNE-MARIE & TRINITY

> > Hello, all. First of all let me start out by saying, my name is

> > Nazare', I am from San Diego, CA and I am Bradys mom (27

months).

> I

> > also have a one year old named Jarrett. Brady has been

diagnosed

> by

> > one Dr. with and the other thinks this is the way his body

> is

> > going to react to anything, virus', he gets. My pediatician who

I

> > do love, agrees it is NOT (because by definition it is

> > supposed to come every 4 weeks). Obvisously, they don't know

> about

> > this site of knowledge... Your sons and daughters could be

mine.

> > Brady started getting these " fevers " when he was 18 months old,

> two

> > days after we moved into our new home. The are the same

anywhere

> > from 105-106.6 for 5 days, VERY swollen lynph node, tummy aches

> and

> > minor blisters (so minor, I never noticed them)We went through

the

> > ringer of testing, which I am sure you all did, Cat Scratch,

> > Kwasakis Disese and so one. The Poor baby gave more blood then

I

> > thought he had. Nothing made the fevers come down, and he was

> > otherwise normal (well as normal as you can be) His fevers come

> > every 4-6 weeks and last a week. They almost seem to be getting

> > stronger and lasting longer each time.

> >

> > He is the best kid and strives with everything else! and each

> fever

> > knocks him down more and more not to mention our entire family

> life

> > style.

> >

> > I have so many mixed emotions as I read all the messages

posted.

> I

> > cry becuase, oh my God, you understand, and this is Brady to a

> tee.

> > I laugh because there might just be an answer. I cry again,

> > beecuase the f3ever will come back and then I get mad. i get

mad

> > becuase there is not too much known about this. The one doc.

who

> is

> > a ID specialist and thinks this is not , should come to my

> > house during these fevers and tell me this is normal. Because

> > obviously this is not normal.

> >

> > Each time I go to Childrens Hospital, I cry and thank God for

> Bradys

> > health, because there is so much worse out there, but at the

same

> > time, I hate watching his amazing spirit dwindle during these

> > episodes. I feel for the parents with numerous children and I

> > understand those who feel like bad parents. I too feel that way

> > sometimes. People look at your child like they are contagouis

or

> > sickly and it drives me crazy. Yeah, Brady does not sleep

through

> > the night and yes, sometimes he jumps in our bed, but like you

all

> > understand, how can I have my 2 year old son have a 106.6 fever

> and

> > be in the other room.. Yes, It does cause problems on the good

> weeks

> > and yes other parents look at me like my child can be out of

> control

> > sometimes, but where is the happy middle, I dont know.

> >

> > You all have given me a smile and a good old fashioned cry. And

> > even though I have never met you, you are MY FRIENDS. I do have

a

> > million specif questions... but here are a few of my really

> > important ones..

> >

> > 1) Is anyone else out there from San Diego, CA?

> > 2) Is there a state by state roster?

> > 3) How many children have this?

> > 4) Should I fly to see another specialist? Who is the best? I

> want

> > to see the best and will go anywhere to get a few answers (I

know

> > you feel my pain)

> > 5) What genetic testing should I demand from the Doctors?

> > 6) Brady gets a rash on his legs and lower tummy righ before

the

> > fevers? Is that normal?

> >

> > Sorry to take up all this time... but thank you all sooo much..

> > Nazare' Judd

> > Brady's Mom (27 months with )

> > nazarejudd@c...

>

>

>

>

>

>

[Guest guest]

I'm just glad that I did my research before I even thought

about having a child, and my heart goes out to those who have found out too

late.

Hi ,

Welcome to the group. I enjoyed reading your post.

I am sincerely happy that your children are healthy and well cared for from the

very beginning, however, I too did my research and did not vaccinate my second

two at all and made sensible health and lifestyle choices but still gave birth

to an autistic son. I can't tell you how many people view my unvaxed autistic

son as proof that vaccines have nothing to do with autism. I was told by more

than one doctor and I know in my heart and soul through many hours of prayer and

meditation that if I had vaxed my sweet little Henry; he would be in the deeper

darker woulds of autism. I guess some things are beyond our control.

Anita

McGrath <vaccineinfo@...> wrote:

Hey, that’s me in the email below! About time I introduced myself and my

family!

We are from Australia and are/were long-term breastfed, certified

organically fed, classic-homoeopathically cared for (at times L ) . Our

daughter is totally UN-VACCINATED! And we are proud of it. We also see our

Chiropractor once a month to keep our spines in alignment - it's a huge

relief to have my back " put back into place " after so much stress etc that

accumulates over time. And yes, it is true (as Anita said) that everything

starts working normally again after an adjustment. You actually feel so

much lighter afterwards. Certainly beats going to the medical doctor who

will only prescribe *** knows what poisons, and the physio who only makes

things WORSE.

Chiropractic is also a profession which is gaining more and more

independent scientific evidence as to it's proven effectiveness. Something

that CANNOT be said about anything medical/pharmacuetical.

Needless to say we have had numerous comments etc from people who think we

are neglecting our daughter etc etc. BUT we have stood by in the knowledge

that we are doing the absolute best and have no intention doing things any

other way. I'm just glad that I did my research before I even thought

about having a child, and my heart goes out to those who have found out too

late.

Sound a bit defensive? …..Yes….! That's another story!

I am currently doing my Teachers Aide Certificate training (teacher’s

assistant) and am so a little busy and things are a little bit chaotic

around our house at the moment. Please forgive me if I do just sit in the

background and watch and read your emails as they come through. I have to

say that I am seeing so much more than I ever thought I would at school

what with the way things affect children - food, vaccination, teacher

influences etc.

Although it’s not compulsory to vaccinate in Australia, the pressure on

parents here is just so great to ensure that they are vaccinated. $$

incentives, bullying by media, councils, other parents, teachers and of

course the medical doctors. And family members. They are the worse - the

family members…..

Must go, and nice talking to and reading your emails. By the way, AVN

stands for Australian Vaccination Network (www.avn.org.au) which is where I

found out about this group - through their links page.

Will pipe in every now and then when I can!

Bye for now and take care,

[Guest guest]

Hi ,

I'm Sue, mum to Robyn (nearly 8) and completely unvaccinated. We've just

emigrated to Australia...arrived nearly two weeks ago. We're currently in

Sydney but are moving over to Western Australia for my husband's work in a

fortnight's time.

What area of Australia do you live in? I am one mum who will not be bowing

to the pressure here to vaccinate. I'm a student homoeopath, so will be

continuing to use homoeopathy to keep us all healthy.

You must tell me where you get your organic food though! I am not having a

lot of success finding it in Sydney. (

Love, light and peace,

Sue

> >

> >Hey, that’s me in the email below! About time I introduced myself and my

> >family!

> >

> >We are from Australia and are/were long-term breastfed, certified

> >organically fed, classic-homoeopathically cared for (at times L ) . Our

> >daughter is totally UN-VACCINATED! And we are proud of it. We

> >also see our

> >Chiropractor once a month to keep our spines in alignment - it's a huge

> >relief to have my back " put back into place " after so much

> >stress etc that

> >accumulates over time. And yes, it is true (as Anita said) that

> >everything

> >starts working normally again after an adjustment. You actually feel so

> >much lighter afterwards. Certainly beats going to the medical doctor who

> >will only prescribe *** knows what poisons, and the physio who only makes

> >things WORSE.

> >

> >Chiropractic is also a profession which is gaining more and more

> >independent scientific evidence as to it's proven effectiveness.

> > Something

> >that CANNOT be said about anything medical/pharmacuetical.

> >

> >Needless to say we have had numerous comments etc from people

> >who think we

> >are neglecting our daughter etc etc. BUT we have stood by in the

> >knowledge

> >that we are doing the absolute best and have no intention doing

> >things any

> >other way. I'm just glad that I did my research before I even thought

> >about having a child, and my heart goes out to those who have

> >found out too

> >late.

> >

> >Sound a bit defensive? …..Yes….! That's another story!

> >

> >I am currently doing my Teachers Aide Certificate training (teacher’s

> >assistant) and am so a little busy and things are a little bit chaotic

> >around our house at the moment. Please forgive me if I do just sit in the

> >background and watch and read your emails as they come through.

> >I have to

> >say that I am seeing so much more than I ever thought I would at school

> >what with the way things affect children - food, vaccination, teacher

> >influences etc.

> >

> >Although it’s not compulsory to vaccinate in Australia, the pressure on

> >parents here is just so great to ensure that they are vaccinated. $$

> >incentives, bullying by media, councils, other parents, teachers and of

> >course the medical doctors. And family members. They are the worse - the

> >family members…..

> >

> >Must go, and nice talking to and reading your emails. By the way, AVN

> >stands for Australian Vaccination Network (www.avn.org.au) which

> >is where I

> >found out about this group - through their links page.

> >

> >Will pipe in every now and then when I can!

> >

> >Bye for now and take care,

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Sue!

Welcome to Australia! We're in Sunny Queensland, in a small town called

Caboolture, about an hour's drive north of Brisbane.

No idea where to get organic foods in Sydney, but suggest you try the

www.yellowpages.com.au and search for organic foods there. Should also be some

in the Yellow Pages phone book (same company - Telstra runs it all - soon to be

sold too I might add).

As for other organic products, I am in the process of signing up for One Group -

MiEssence etc for Certified Organic Skin Care products - shampoos, make-up etc,

but no mascara . Oh well!

I hear so many times how beautiful so many different parts of Western Australia

are. Must be a huge change for you though - where have you moved here from?

Don't forget to check out the www.avn.org.au - Australian Vaccination Network -

a minefield of info etc, but I'm saddened to see that their Guestbook isn't used

much now....

Anyway, must go, Hubby's got dinner on the table - and it's nearly Father's Day

here!! (Sunday) Lazy me!!

Feel free to email me privately if you like Sue, I'd be happy to answer any

questions if I can - even if I'm going to be across the other side of the

country to you in a couple of weeks! What work is your hubby doing anyway? I'm

curious now.

I just noticed the time on your email - 11.41pm - are you having trouble

sleeping or missing home? As I said - huge change for you? Are settling in ok?

Bye for now and take care,

RE: New member intro

Hi ,

I'm Sue, mum to Robyn (nearly 8) and completely unvaccinated. We've just

emigrated to Australia...arrived nearly two weeks ago. We're currently in

Sydney but are moving over to Western Australia for my husband's work in a

fortnight's time.

What area of Australia do you live in? I am one mum who will not be bowing

to the pressure here to vaccinate. I'm a student homoeopath, so will be

continuing to use homoeopathy to keep us all healthy.

You must tell me where you get your organic food though! I am not having a

lot of success finding it in Sydney. (

Love, light and peace,

Sue

[Guest guest]

Welcome to the list ! My name is Debbie, I'm an aussie too but

currently living in France. Mother to three wonderful unvaxed

children (aged 10, 8 and 6), we homebirthed, co-slept, extended

breastfeeding, use homeopathy and generally try to live as naturally

as possible. The children's father is currently living in Indonesia

but he is normally based in Canberra. We are originally from

Cairns, North Queensland but a few years ago I moved to Coolum

(Fabulous place!!) on the Sunshine Coast and lived there for 2 years

before moving to France 18 mths ago with my new husband (who of

course is french!). Been having a tough time of it with the

immunisation laws here in France (compulsory!) but have managed to

avoid any confrontation by using my atrocious french and basically

stalling...its a tough one because they have school doctors here who

do the jabs at the school!! Anyway we are on the home stretch now -

kids just started back at school today and we are planning on

returning to Australia in March next year, probably to Sydney,

although thats not for certain yet! Anyway, welcome, I'm sure you

will enjoy this list!

Regards Deb

[Guest guest]

At 07:38 PM 9/22/2005, you wrote:

>Hi everyone,

>I've been learning about natural perfumery for the past two years and have

>been making my own blends. I actually became interested in perfumery years

>ago

>while attending college in Europe. On weekends I used to travel around Europe

> and was always fascinated by the little perfume shops they had there where

>you could buy nothing but perfumes/lotions and the like. Ever since that

>time,

>my dream has been to open my own little perfume shop one day.

Hi Darlene:

Welcome to the group, it's good to see you're on your way to becoming a

natural perfumer by making your own blends. That is the best way --

experiment and observe, coupled with study. Oh, the little perfume shops of

Europe, what a wonderful experience you had, and I hope you get to open

your own shop someday. One of our member, JoAnne, recently opened hers in

LaJolla, CA.

> I actually

>started my own company named D'Elle Perfumaria and I sale some of my

>personally

>developed blends and designer fragrances as well at discount prices. Selling

>the designer fragrances allows me to make extra money which I use to

>learn as

>much as I can about natural perfumery and purchase essential oils, etc. to

>practice with.

Sounds like you're a born retailer at heart. Good luck with your dreams.

>

>Has anyone on the list taken any formal perfumery classess? I have actually

>seen a few that are offered as distance training classes.

There are some listed in the Links section, I believe. There is an on-site

class this weekend in Washington state taught by Jeanne Rose. I think Mandy

Aftel has an advanced class going on this weekend in Berkeley. They both

have distance courses, also. Many of us are self-taught, Darlene, from

books, exchanges on this group, and our own experiments.

>One more question:

> I love the scent of tuberose...does anyone know how to replicate that

> scent

>without the expense of trying to find/buy tuberose absolute or concrete...if

>I'm not mistaken I have only seen tuberose sold as absolute or concrete and

>not as essential oil.........and it is very expensive.

Tuberose is not produced as an EO, you are correct. Maybe somebody has a

blend, an accord that dupes the scent, and they can share. I'd save and

spring for the real stuff, it is just so exquisite, and a little goes a

long way. Also, if you're making solid perfumes, tuberose floral wax is

available.

You must read my funny post today about Tubereuse Criminelle by Serge

Lutens. I'm totally into tuberose. Those heavy white indolic flowers reel

me in every time!

Anya

http://.com

The premier site on the Web to discover the beauty of Natural Perfume

" The Age of the Foodie is passé. It is now the Age of the Scentie. "

[Guest guest]

Hi Kim

Congrats on losing 52 pounds - that's great!

I was on Craig for a long time. Loved the food, had a good counselor

there and eventually switched to " normal " food. I lost 40 pounds, then put 10

back on and stayed there. When I added weight training to the cardio, I was

able to lose those 10 pounds again.

BFL turned out to be a great plan for me - I did my first 12 wk challenge

earlier this year, and dropped the body fat. No one ever thought this junk food

queen would give up soda and the drive thru - but I stuck it out and now eat

healthy most of the time.

With the treadmill, bike and weights, you should be able to cut your exercise

time down to an hour, and even take a day off. That combined with the clean

eating will hopefully break the plateau. Good luck!

dksa_lang <kimlang@...> wrote:

Hi! My name is Kim and I just bought the book and am starting

tomorrow. I have been on Weight Watchers since April 15,

2005 and I have lost 52 pounds by following the program and walking 9-

12 miles a day (outside). My husband has lost 25 pounds. I would

like to lose about 40 more pounds and realized that I need a better

exercise program than just walking for 3-4 hours a day (everyday!!).

We bought this book after seeing a lady named Pam on the show " I Lost

It " We realized that we were not living to our full potential. We

have an exercise room in our home with weights,

treadmill and stationary bike so we have everything we need here. My

question is this... Has anyone been in my shoes where you are coming

off of one good plan and then trying this for better tone and

exercise efficiency? I would have loved to stay on WW but it seems I

am stuck on a plateau and realize that I need to build more muscle to

help use up some of my stored fat. After walking 3-4 hours a day, I

am too tired to do much else. I hope to cut back on the walking and

follow this exercise and eating plan to a T!

Thanks for any advice you can give a newcomer!

Kim

[Guest guest]

congrats on losing the weight, kim! I dont' have advice from going

from one plan to another, but just encourage you to follow the

exercising regimen that BFL outlines. Less time involved than what

you're putting in now and you'll get some of that toning happening.

Kanala

> Hi! My name is Kim and I just bought the book and am starting

> tomorrow. I have been on Weight Watchers since April 15,

> 2005 and I have lost 52 pounds by following the program and walking

9-

> 12 miles a day (outside). My husband has lost 25 pounds. I would

> like to lose about 40 more pounds and realized that I need a better

> exercise program than just walking for 3-4 hours a day

(everyday!!).

> We bought this book after seeing a lady named Pam on the show " I

Lost

> It " We realized that we were not living to our full potential. We

> have an exercise room in our home with weights,

> treadmill and stationary bike so we have everything we need here.

My

> question is this... Has anyone been in my shoes where you are

coming

> off of one good plan and then trying this for better tone and

> exercise efficiency? I would have loved to stay on WW but it seems

I

> am stuck on a plateau and realize that I need to build more muscle

to

> help use up some of my stored fat. After walking 3-4 hours a day, I

> am too tired to do much else. I hope to cut back on the walking

and

> follow this exercise and eating plan to a T!

> Thanks for any advice you can give a newcomer!

> Kim

[Guest guest]

Thanks! This is exactly what I needed to hear!

I am hoping to cut the time but increase the intensity..

Thanks so much!

Kim<><

Re: New Member Intro

Hi Kim

Congrats on losing 52 pounds - that's great!

I was on Craig for a long time. Loved the food, had a good counselor

there and eventually switched to " normal " food. I lost 40 pounds, then put 10

back on and stayed there. When I added weight training to the cardio, I was

able to lose those 10 pounds again.

BFL turned out to be a great plan for me - I did my first 12 wk challenge

earlier this year, and dropped the body fat. No one ever thought this junk food

queen would give up soda and the drive thru - but I stuck it out and now eat

healthy most of the time.

With the treadmill, bike and weights, you should be able to cut your exercise

time down to an hour, and even take a day off. That combined with the clean

eating will hopefully break the plateau. Good luck!

[Guest guest]

Thanks so much! I just finished my morning Upper body workout. Learned a lot

and will adjust the weights more next time. I'm really looking forward to the

aerobic workout tomorrow!

Kim<><

Re: New Member Intro

congrats on losing the weight, kim! I dont' have advice from going

from one plan to another, but just encourage you to follow the

exercising regimen that BFL outlines. Less time involved than what

you're putting in now and you'll get some of that toning happening.

Kanala

[Guest guest]

id_idea wrote:

>snip-

>I've a question that has been nagging at me for a while, and I have

>searched the group archives but have found no clear or recent

>answers. Is there anywhere here in Australia where one might

>purchase perfumer's alcohol? And if not, what types of alcohol can

>be purchsed here that will work for making tinctures & perfumes? Any

>ideas?

>

>Regards-

>Seren

>

>

Hi Seren

Vodka is the closest you will find in a liquor store in Aust, but it's

less than 100 proof.

Pharmacies sell chemically denatured alcohol which you need to steer

away from.

All the best in your search

Dawn

>

>

>

>

>

>

>

[Guest guest]

Welcome Crystal to the group and good luck to you on your journey Tema vistadei <vistadei@...> wrote: Hi All,My name is Crystal, and I am looking for a positive upbeat support group to support my weight loss effort. I weigh 262 pounds, and it is holding me back from participating fully in sports I enjoy (showing dogs in agility and conformation), so I have gone back to Simmon's Food Mover program, which I had lost weight on before.I hope if I can be accountable infront of a group of like minded women I will stay on track towards my goals.I look forward to getting to know you.Crystal

[Guest guest]

> My name is Crystal, and I am looking for a positive upbeat support

> group to support my weight loss effort.

Looks like you found it! The list has been really active the past week.

> I weigh 262 pounds, and it is

> holding me back from participating fully in sports I enjoy (showing

> dogs in agility and conformation),

What you need is to exercise, whether the weight comes off or not, to regain

fitness. What exerises do you like to do - outdoor walking, sports, aerobic

videos? Our Links page can point you to sites for videos a lot of us use,

like and Sansone. And a few messages above I listed a

few books that might help, too.

Just remember to take baby steps. If you do too much in the beginning you

risk an injury or burnout and you'll be reluctant to try again.

Good luck!

Sue in NJ