Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Harry, My experience on staph in general is that yes, I am more likely to get it (i am on kineret, arava, plaquenil). I've had 3 surgeries in the last year and contacted staph twice. (original message left intact below for reference) > , > People with Stills and on steroids and/or the biologic meds like embrel , remicade, humira,orencia would get sicker faster if they developed an infection due to MRSA. Whether they are more likely to contract if exposed to it is a good question and I am not sure of the answer. > Harry S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 , I take hydroxychloroquine - which is plaquenil. I also take arava and kineret. No prednisone as it makes me crazy and worse! Anger and frustration is a normal response that your son is having. I went 5 years not being diagnosed but sent from doctor to doctor. I understand that frustration part, big time. Not having a firm diagnosis is normal. If your son doesn't believe it's AOSD, he needs to ask the doctor why he thinks it's that over Lupus and sit and talk until in his head it is straight. Only then will he be able to being accepting his condition. Acceptance can take a very long time. I don't think I accepted it for 2 or 3 years. Once he is done being angry and is ready to reach out, please direct him to us. We have both men and women on here and we can relate to all those medical problems he is having along with the mental issues that come with it. If you think it would help, I am sure one of our male members would email him personally to talk. houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 , I take hydroxychloroquine - which is plaquenil. I also take arava and kineret. No prednisone as it makes me crazy and worse! Anger and frustration is a normal response that your son is having. I went 5 years not being diagnosed but sent from doctor to doctor. I understand that frustration part, big time. Not having a firm diagnosis is normal. If your son doesn't believe it's AOSD, he needs to ask the doctor why he thinks it's that over Lupus and sit and talk until in his head it is straight. Only then will he be able to being accepting his condition. Acceptance can take a very long time. I don't think I accepted it for 2 or 3 years. Once he is done being angry and is ready to reach out, please direct him to us. We have both men and women on here and we can relate to all those medical problems he is having along with the mental issues that come with it. If you think it would help, I am sure one of our male members would email him personally to talk. houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 , I take hydroxychloroquine - which is plaquenil. I also take arava and kineret. No prednisone as it makes me crazy and worse! Anger and frustration is a normal response that your son is having. I went 5 years not being diagnosed but sent from doctor to doctor. I understand that frustration part, big time. Not having a firm diagnosis is normal. If your son doesn't believe it's AOSD, he needs to ask the doctor why he thinks it's that over Lupus and sit and talk until in his head it is straight. Only then will he be able to being accepting his condition. Acceptance can take a very long time. I don't think I accepted it for 2 or 3 years. Once he is done being angry and is ready to reach out, please direct him to us. We have both men and women on here and we can relate to all those medical problems he is having along with the mental issues that come with it. If you think it would help, I am sure one of our male members would email him personally to talk. houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 That is a good question, Harry. I had to hit the ER on Sat for Cellulitis in my left foot and ankle this Sat. IV anceph and home on keflex. Have had similar cases many times over the last 4 years. Once it sets in it does progress pretty quickly. However, it also seems to hit from small, often unseen entry points in/on my foot. I do have some venous insufficiency in my legs so I am sure that adds to the situation. My PCP tells me to use lotion on my feet and wear my support socks. I do it religiously, but....Will post a picture this afternoon. So, the original question remains. I know that when I get cellulitis or pulmonary infections, things go south quickly, but am I more prone to getting them? Personally, I think so, but no real evidence. Tom ps Cat thinks that I am prone to suggestion and just 's mention of his staph infection caused mine to occur (LOL!) She also thinks that I am vying for the Award for the most visits to the resort in a single year. (even bigger LOL) > > > , > People with Stills and on steroids and/or the biologic meds like embrel , remicade, humira,orencia > would get sicker faster if they developed an infection due to MRSA. Whether they are more likely > to contract if exposed to it is a good question and I am not sure of the answer. > Harry S. > > > > > > To: Stillsdisease > From: lrhorner@... > Date: Fri, 24 Oct 2008 11:32:27 -0700 > Subject: Re: Results > > > > > > > > > > > > > > > > > > > > > thank you for the clear explanation. Do persons with AOSD get MRSA more > > often than persons who are not afflicted with AOSD? What are the sypmtoms? > > Thank you. > > ResultsHello everyone,As it > > turns out. I do have MRSA. Still not overly concern as I was onMonday. The > > area seems to be getting better. Since monday I have beentaking 500mgs of > > Keflex 4 times daily. I guess it's a wait and seegame now. Talk to you all > > later > > __________________________________________________________Get more out of > > the Web. Learn 10 hidden secrets of Windows > > Live.http://windowslive.com/connect/post/jamiethomson.spaces.live.com- Blog-cns!550F681DAD532637!5295.entry?ocid=TXT_TAGLM_WL_domore_092008 [Non-text > > portions of this message have been removed][Non-text portions of this > > message have been removed] > > > > __________________________________________________________ > > See how Windows Mobile brings your life together-at home, work, or on the > > go. > > http://clk.atdmt.com/MRT/go/msnnkwxp1020093182mrt/direct/01/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 That is a good question, Harry. I had to hit the ER on Sat for Cellulitis in my left foot and ankle this Sat. IV anceph and home on keflex. Have had similar cases many times over the last 4 years. Once it sets in it does progress pretty quickly. However, it also seems to hit from small, often unseen entry points in/on my foot. I do have some venous insufficiency in my legs so I am sure that adds to the situation. My PCP tells me to use lotion on my feet and wear my support socks. I do it religiously, but....Will post a picture this afternoon. So, the original question remains. I know that when I get cellulitis or pulmonary infections, things go south quickly, but am I more prone to getting them? Personally, I think so, but no real evidence. Tom ps Cat thinks that I am prone to suggestion and just 's mention of his staph infection caused mine to occur (LOL!) She also thinks that I am vying for the Award for the most visits to the resort in a single year. (even bigger LOL) > > > , > People with Stills and on steroids and/or the biologic meds like embrel , remicade, humira,orencia > would get sicker faster if they developed an infection due to MRSA. Whether they are more likely > to contract if exposed to it is a good question and I am not sure of the answer. > Harry S. > > > > > > To: Stillsdisease > From: lrhorner@... > Date: Fri, 24 Oct 2008 11:32:27 -0700 > Subject: Re: Results > > > > > > > > > > > > > > > > > > > > > thank you for the clear explanation. Do persons with AOSD get MRSA more > > often than persons who are not afflicted with AOSD? What are the sypmtoms? > > Thank you. > > ResultsHello everyone,As it > > turns out. I do have MRSA. Still not overly concern as I was onMonday. The > > area seems to be getting better. Since monday I have beentaking 500mgs of > > Keflex 4 times daily. I guess it's a wait and seegame now. Talk to you all > > later > > __________________________________________________________Get more out of > > the Web. Learn 10 hidden secrets of Windows > > Live.http://windowslive.com/connect/post/jamiethomson.spaces.live.com- Blog-cns!550F681DAD532637!5295.entry?ocid=TXT_TAGLM_WL_domore_092008 [Non-text > > portions of this message have been removed][Non-text portions of this > > message have been removed] > > > > __________________________________________________________ > > See how Windows Mobile brings your life together-at home, work, or on the > > go. > > http://clk.atdmt.com/MRT/go/msnnkwxp1020093182mrt/direct/01/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 That is a good question, Harry. I had to hit the ER on Sat for Cellulitis in my left foot and ankle this Sat. IV anceph and home on keflex. Have had similar cases many times over the last 4 years. Once it sets in it does progress pretty quickly. However, it also seems to hit from small, often unseen entry points in/on my foot. I do have some venous insufficiency in my legs so I am sure that adds to the situation. My PCP tells me to use lotion on my feet and wear my support socks. I do it religiously, but....Will post a picture this afternoon. So, the original question remains. I know that when I get cellulitis or pulmonary infections, things go south quickly, but am I more prone to getting them? Personally, I think so, but no real evidence. Tom ps Cat thinks that I am prone to suggestion and just 's mention of his staph infection caused mine to occur (LOL!) She also thinks that I am vying for the Award for the most visits to the resort in a single year. (even bigger LOL) > > > , > People with Stills and on steroids and/or the biologic meds like embrel , remicade, humira,orencia > would get sicker faster if they developed an infection due to MRSA. Whether they are more likely > to contract if exposed to it is a good question and I am not sure of the answer. > Harry S. > > > > > > To: Stillsdisease > From: lrhorner@... > Date: Fri, 24 Oct 2008 11:32:27 -0700 > Subject: Re: Results > > > > > > > > > > > > > > > > > > > > > thank you for the clear explanation. Do persons with AOSD get MRSA more > > often than persons who are not afflicted with AOSD? What are the sypmtoms? > > Thank you. > > ResultsHello everyone,As it > > turns out. I do have MRSA. Still not overly concern as I was onMonday. The > > area seems to be getting better. Since monday I have beentaking 500mgs of > > Keflex 4 times daily. I guess it's a wait and seegame now. Talk to you all > > later > > __________________________________________________________Get more out of > > the Web. Learn 10 hidden secrets of Windows > > Live.http://windowslive.com/connect/post/jamiethomson.spaces.live.com- Blog-cns!550F681DAD532637!5295.entry?ocid=TXT_TAGLM_WL_domore_092008 [Non-text > > portions of this message have been removed][Non-text portions of this > > message have been removed] > > > > __________________________________________________________ > > See how Windows Mobile brings your life together-at home, work, or on the > > go. > > http://clk.atdmt.com/MRT/go/msnnkwxp1020093182mrt/direct/01/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 What is the " resort " everyone mentions?? ResultsHello everyone,As it > > turns out. I do have MRSA. Still not overly concern as I was onMonday. The > > area seems to be getting better. Since monday I have beentaking 500mgs of > > Keflex 4 times daily. I guess it's a wait and seegame now. Talk to you all > > later > > __________________________________________________________Get more out of > > the Web. Learn 10 hidden secrets of Windows > > Live.http://windowslive.com/connect/post/jamiethomson.spaces.live.com- Blog-cns!550F681DAD532637!5295.entry?ocid=TXT_TAGLM_WL_domore_092008 [Non-text > > portions of this message have been removed][Non-text portions of this > > message have been removed] > > > > __________________________________________________________ > > See how Windows Mobile brings your life together-at home, work, or on the > > go. > > http://clk.atdmt.com/MRT/go/msnnkwxp1020093182mrt/direct/01/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 What is the " resort " everyone mentions?? ResultsHello everyone,As it > > turns out. I do have MRSA. Still not overly concern as I was onMonday. The > > area seems to be getting better. Since monday I have beentaking 500mgs of > > Keflex 4 times daily. I guess it's a wait and seegame now. Talk to you all > > later > > __________________________________________________________Get more out of > > the Web. Learn 10 hidden secrets of Windows > > Live.http://windowslive.com/connect/post/jamiethomson.spaces.live.com- Blog-cns!550F681DAD532637!5295.entry?ocid=TXT_TAGLM_WL_domore_092008 [Non-text > > portions of this message have been removed][Non-text portions of this > > message have been removed] > > > > __________________________________________________________ > > See how Windows Mobile brings your life together-at home, work, or on the > > go. > > http://clk.atdmt.com/MRT/go/msnnkwxp1020093182mrt/direct/01/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Thank you so very much, . You're kindness is very helpful to me. I'm going to ask something embarrassing here (not sure if my other emails get through to the men??)...but can you ask just the men with AOSD this question: Have any men experienced impotency during flares or in their " original " flare? Mike has had this for about 4 or 5 months now and it is causing him a lot of stress. He did have his pituatary gland checked out as well as a hundred other things and the Dr finally said it's just Mike's body telling him he's not well right now. Thank you so much. Re: Results , I take hydroxychloroquine - which is plaquenil. I also take arava and kineret. No prednisone as it makes me crazy and worse! Anger and frustration is a normal response that your son is having. I went 5 years not being diagnosed but sent from doctor to doctor. I understand that frustration part, big time. Not having a firm diagnosis is normal. If your son doesn't believe it's AOSD, he needs to ask the doctor why he thinks it's that over Lupus and sit and talk until in his head it is straight. Only then will he be able to being accepting his condition. Acceptance can take a very long time. I don't think I accepted it for 2 or 3 years. Once he is done being angry and is ready to reach out, please direct him to us. We have both men and women on here and we can relate to all those medical problems he is having along with the mental issues that come with it. If you think it would help, I am sure one of our male members would email him personally to talk. houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Thank you so very much, . You're kindness is very helpful to me. I'm going to ask something embarrassing here (not sure if my other emails get through to the men??)...but can you ask just the men with AOSD this question: Have any men experienced impotency during flares or in their " original " flare? Mike has had this for about 4 or 5 months now and it is causing him a lot of stress. He did have his pituatary gland checked out as well as a hundred other things and the Dr finally said it's just Mike's body telling him he's not well right now. Thank you so much. Re: Results , I take hydroxychloroquine - which is plaquenil. I also take arava and kineret. No prednisone as it makes me crazy and worse! Anger and frustration is a normal response that your son is having. I went 5 years not being diagnosed but sent from doctor to doctor. I understand that frustration part, big time. Not having a firm diagnosis is normal. If your son doesn't believe it's AOSD, he needs to ask the doctor why he thinks it's that over Lupus and sit and talk until in his head it is straight. Only then will he be able to being accepting his condition. Acceptance can take a very long time. I don't think I accepted it for 2 or 3 years. Once he is done being angry and is ready to reach out, please direct him to us. We have both men and women on here and we can relate to all those medical problems he is having along with the mental issues that come with it. If you think it would help, I am sure one of our male members would email him personally to talk. houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Thank you so very much, . You're kindness is very helpful to me. I'm going to ask something embarrassing here (not sure if my other emails get through to the men??)...but can you ask just the men with AOSD this question: Have any men experienced impotency during flares or in their " original " flare? Mike has had this for about 4 or 5 months now and it is causing him a lot of stress. He did have his pituatary gland checked out as well as a hundred other things and the Dr finally said it's just Mike's body telling him he's not well right now. Thank you so much. Re: Results , I take hydroxychloroquine - which is plaquenil. I also take arava and kineret. No prednisone as it makes me crazy and worse! Anger and frustration is a normal response that your son is having. I went 5 years not being diagnosed but sent from doctor to doctor. I understand that frustration part, big time. Not having a firm diagnosis is normal. If your son doesn't believe it's AOSD, he needs to ask the doctor why he thinks it's that over Lupus and sit and talk until in his head it is straight. Only then will he be able to being accepting his condition. Acceptance can take a very long time. I don't think I accepted it for 2 or 3 years. Once he is done being angry and is ready to reach out, please direct him to us. We have both men and women on here and we can relate to all those medical problems he is having along with the mental issues that come with it. If you think it would help, I am sure one of our male members would email him personally to talk. houston, TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 , The " resort " we talk about is the hospital. Not quite the place to spend a holiday, if you can help it. By the way, I also belong to a Support Group for Pulmonary Fibrosis, and they call it " The Big House " . Tom > > What is the " resort " everyone mentions?? > Re: Results > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 , The " resort " we talk about is the hospital. Not quite the place to spend a holiday, if you can help it. By the way, I also belong to a Support Group for Pulmonary Fibrosis, and they call it " The Big House " . Tom > > What is the " resort " everyone mentions?? > Re: Results > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 My goodness...I have a lot to learn. LOL. And here I thought there was some sort of cool place folks with Stills can go go that gives you some type of magical mixture of medicines. Oh my goodness.. again...LOL Re: Results > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 My goodness...I have a lot to learn. LOL. And here I thought there was some sort of cool place folks with Stills can go go that gives you some type of magical mixture of medicines. Oh my goodness.. again...LOL Re: Results > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 My goodness...I have a lot to learn. LOL. And here I thought there was some sort of cool place folks with Stills can go go that gives you some type of magical mixture of medicines. Oh my goodness.. again...LOL Re: Results > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2008 Report Share Posted October 30, 2008 Even though there is no way to prove it.....I do believe I'm the one who > termed it " RESORT " after spending 27/32 days in two different places with 4 > separate admissions! My wife asked me if I thought I was going to a reort I > went o often when I initially got sick. > If memory serves me correct, in the first 4 months I was admitted 8 times........13 in the 1st full year, 24 after the 2nd....and my total stands at either 31-33...I lost count! But I've managed to stay out for the last 14 months through sheer determination as I really have developed a hatred of the place(s)! Kirk (I swear if I don't get a good days' sleep soon I am going to tip over..never to stand again!!!!) See my signature...it about sums it all up! > -- Everything in life sucks except things that should! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2011 Report Share Posted October 5, 2011 Hi All, Can someone interpret these results for me? I will type as written by the specialist: " This lady's blood results show that her thyroid function tests are normal with a TSH of 4.2, though this is towards the upper end of normal, the range being between 0.27 to 4.20. Her free T4 is 12.9 and is towards the lower end of normal which ranges between 12 and 22. Nontheless they are within the normal range and at this time I will just keep an eye on her thyroid function tests. Her other blood results have shown a reduced GFR of 65 with a creatinine of 86. Her calcium is normal. Her alkaline phosphatase is raised at 108. Her PTH is normal at 25. I await the results of her vitamin D. Her Haemoglobin was normal. Her white cell count showed a reduced lymphocyte count of 1.4, the normal range being between 1.5 and 4.0. Her platelets are normal. " I have subsequently been diagnosed with severe Vitamin D deficiency. Can anyone explain if I should be concerned by any of these results as there is a history of cancer/autoimmune/thyroid in my family and I have M.E. and have multiple classic hypo symptoms? Regards, Sheree Quote Link to comment Share on other sites More sharing options...
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