Hello

April 7, 2001

In a message dated 4/7/2001 11:17:23 AM Central Daylight Time,

hicks.m@... writes:

> So I just thought I would drop a line to say G'day from Aussieland.

> And hope all is well with everyone.

>

> Madeleine

>

Hi Madeleine,

I was just thinking about you the other day, was kinda wondering if you were

still with us. :-) Nice to hear from you. Hope all is well for you.

Joy

April 7, 2001

Hi friend, we miss seeing you around. How is life these days? Are you

still busy with Social Work?

Hello

> Hi.

>

> Been a long time since I've posted. Lots of new names I am glad to

> see. Have been searching the archives and re-reading all the support I

> got from this group when Susie died, and just reminiscing a bit.

>

> So I just thought I would drop a line to say G'day from Aussieland.

> And hope all is well with everyone.

>

> Madeleine

>

> mailto:hicks.m@...

> ICQ No. 6929533

>

> Please edit posts when replying!

>

April 7, 2001

Hi Guys. Thanks for all the messages. I haven't worked out quite how

to reply to the list rather than individually. I'm doing it this way

cause I got so many replies.

" Fill me in on your story " had DS. She also had an AV Canal

Heart Defect. She died getting on for three years ago (11 July 1998).

And the support I got from the list at that time was incredible. In

fact, I was on the net talking to you guys when she died. They had to

send the police to tell me cause they couldn't get thro on the phone.

Yes, , I am still doing social work. I am working for a women's

centre doing 1:1 counselling, running groups stuff liked that. I have

also, in the last couple of months been getting some private work, so

finally there are enuf $$ in the coffers to do more than just pay the

bills. After so many years dependent on the government, it is great to

tell them to ....... <G>

Social life has been the hardest to pick up on. Still single. Still no

man in my life. Am living in a house my son Mark and his partner,

bought, partly for investment purposes and partly to give his

old mother some security in her old age <G>. He is 27 now. Living with

(they have been together for over 5 years now), in Sydney

which is a bummer cause he is so far away. No sign of grandkids yet,

in spite of me telling him I am ready to become a grandmother. I turn

55 this year in July and am old enuf now for some of the seniors

goodies.

Thanks for your replies, Guys. Really good to hear from you too.

May 5, 2001

In a message dated 5/5/01 2:31:10 PM Pacific Daylight Time,

alhensley@... writes:

> I am new to the group. I have a one year old with Down Syndrome plus

> four other children.

Welcome Angie. I'm also new to the group. I have 3 children, 13 y/o Noelle,

10 y/o , and 6 week old and he has Down Syndrome. I know there

are some chats and I have tried to make some of them.

May 6, 2001

hi Angie and .

welcome to this group :-)

I am mom to two girls. is 13 and has ds.

We are from up here in Ontario.

Many of us will be going to West Virginia as you probably can tell and

its a yrly event that gives us all a chance to meet.

I may just be repeating what you all ready know.

If you need more info....just ask....many would probably love to tell

you all about it .

Arlene

FROG70x7@... wrote:

> In a message dated 5/5/01 2:31:10 PM Pacific Daylight Time,

> alhensley@... writes:

>

> > I am new to the group. I have a one year old with Down Syndrome

> plus

> > four other children.

>

> Welcome Angie. I'm also new to the group. I have 3 children, 13 y/o

> Noelle,

> 10 y/o , and 6 week old and he has Down Syndrome. I know

> there

> are some chats and I have tried to make some of them.

>

June 3, 2001

Hi,

I am not moonbeam, but this may help.

Cliff

Dear Cliff:

Hi Cliff. I'm so sad to hear of your ordeal with prostate CA. I think what

you're doing is teriffic. Thank God for your progress.

We originally opened our clinic in TJ in 1992 to treat specifically prostate

CA

with Hyperthermia (without chemo or radiation). We still treat a large

number

of prostate patients since that was one of Dr. Freeman's specialities.

Yes, glucans + flaxseed oil is excellent. Add some Enzymes when needed and

you've got a great combination.

I have put the link to my website up for you to peruse. Simply go to the

Products site and choose what you want to order. Go to the order page,

printit

off and fill it out and fax it over with a credit card and we'll ship out.

I

have Betacan 500 in stock (encapsulated pure glucan powder) or just the

raw

powder itself. Most people prefer the encapsulated stuff.

Dr. Bormann

http://www.arrowheadhealthworks.com

Mailing address

Arrowhead Health Works

Carolyn Boreman, N. D., C. P.

PO Box 950

Twin Peaks CA 92391

phone 909 338 3533

Fax 909 338 7343

OK...to answer your questions...yes, glucan is a " must have " for cancer

patients.

Here's some copy off my website:

WHAT DOES IT DO AND WHAT IS IT USED FOR?

Basically, what glucans seem to do is to stimulate / irritate your white

blood cells called Macrophages into action. There is actually beta glucan

receptors displayed by immune cells that the lectin fits right into like a

lock and key and switches on or activates the macrophage to do it's

job...clean up. Increased macrophage activity triggers a whole cascade of

immune events, which basically boost immune response, which improves Natural

Host Resistance. However, RESPONSE IS RECEPTOR MEDIATED (in other words, if

the macrophage in the gut peritoneal lining lymphatics is not displaying a

receptor site for glucan or they're blocked by other lectins, then the

glucan simply passes by and is excreted). There is no danger we know of for

causing excessive macrophage activity and damage the immune response, or

creating an autoimmune condition.

Primarily glucan is used to add immunological punch to products to address

the ever increasing incidence of chronic infections, inflammations

(arthritis), and other immune stressing things like allergies, poor diet,

bad work habits, etc. It is used extensively in the veterinarian industry,

fishing industry, and skin care. Recently it is crossing over into human

nutrition.

It is proven beneficial for conditions related to immunity. available:

This product is important to keep Host Resistance at optimal levels. It is

an excellent antioxidant / free radical scavenger and especially beneficial

for those undergoing treatment for immune-related conditions such as cancer,

AIDS, CFIDS, or other infections. It is also a good preventative and booster

for the average person wanting to strengthen their resistance.

In terms of dosage for beta glucan, it's usually figured at a min. of

10mg./kilo of bodyweight per dose...caps are taken at bedtime and upon

rising on an empty stomach. I usually have our cancer patients taking 2

caps twice daily and then we do a darkfield microscopy to see how their

macrophages seem to be doing. Some patients who are early on

in their cancer have intact immune system function and only need 1 cap twice

daily...some only need 1 cap at bedtime 4 times a week...it depends on the

case.

I'd love to private label it for you if you want for your site...very low

minimums since I control the entire process from manufacture right through

to packaging. Tell me the best way I can help you reach your goal...you

can feel free to

take anything in terms of copy from my website materials also. I've had

alot of experience in this arena so I'll be glad to be of service...

Carolyn Bormann, N.D.,C.P.

Hello

>I am sort of new to this group . I've been lurking for a little while

>and may have posted once. I have a question for Moonbeam.

>Where do I purchase yeast derived beta glucan?

>My Dad is very sick with liver cancer that has metastized from his

>colon.It all started in 1994 and he has never had chemo or anything else

>except alternative things. However , now 7 years later he is is grave

>trouble. I'd like to try him on this beta glucan. How much is a working

>dose, and where can i get it.Thanks Debra

>

>Get HUGE info at http://www.cures for cancer.ws, and post your own links there.

Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by

visiting http://www.bobhurt.com/subunsub.mv

>

June 5, 2001

PLS DELETE FROM E-MAIL

June 5, 2001

PLS DELETE FROM E-MAIL

June 7, 2001

You have a great family! is adorable!!

----Original Message Follows----

From: alhensley@...

Subject: Hello

Date: Thu, 07 Jun 2001 17:26:44 -0000

Hello everyone,

I have not been on much lately due to computer crashing and I am

still fairly new to the group. I have 3 step children and 2 of my

own. My son is 14 months old and has Down Syndrome. I

posted a couple of pictures today of our family. Would love to talk

with other parents.

Take Care,

Gay

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June 18, 2001

In a message dated 6/18/01 9:33:26 PM Central Daylight Time,

gwenv@... writes:

> Sorry about neglecting you all. Hubby's been at home, so hogs the 'puter all

> day. I've found a support group for families of people with bipolar

disorder

> and I just love it. I'm learning that many of the behaviors Ralph has that

> drive me nuts are relatively common in people with bp.

>

> Gwen, mom to Ellie 5 ds

So good to hear from you, I was wondering what you've been up to

Kathy mom to Sara 9

July 23, 2001

Hi! Welcome, Welcome!

My name is , my husband & I have a 15 month old son and we're

expecting our 2nd baby in mid- October which will be a homebirth. I

am hoping to get some chiro. care very soon, I feel like my body

needs an adjustment, especially to prepare for the birth. I also want

to take my son to get him adjusted.

We vaccinated our first until he was 9 mos old, we will not vaccinate

our 2nd at all. Fortunately for us, Max did not suffer any drastic

reactions to his shots. I do wish we had researched the subject

before he was born, though.

~

San , TX (CT native, though)

> Hello. My name is and I am a Doctor of Chiropractic

as well as

> Director of New Jersey Alliance for Informed Choice in Vaccinations

> (NJ-AICV). I saw your e-mail addresses on another post and was

wondering who

> was who and where. Knowing anyone else who is of the same mindset

is good!

> Thanks!

>

> Dr.

> Director NJ-AICV

>

September 11, 2001

Welcome to the group - you're not alone!

September 11, 2001

Hi --

Welcome to the group! You have lots of virtual company on this

listserv, as you probably can tell.

I'm jumping in with some unasked-for advice, because I can see from

your message that you may be going down the same path I did by taking

antacids instead of something like Prevacid.

I made things much worse for myself by relying too long on

over-the-counter medications and not paying enough attention to the

prescriptions for Prevacid that the doctors were trying to get me to

take.

After I had a very bad setback last year, I decided to do more

reading about these various medications, and I now realize that

antacids don't compare to Prevacid and medications in that category.

I know I sound like I work for a drug company (I don't! ), but I

really think those of us with achalasia have to be very serious about

avoiding GERD.

Now if we could just get those drug prices down, eh?

Vicki

>hello my name is patricia and i have achalasia i have had it for years and

>the doctors did not know what was wrong they kept saying i had a hiatal

>hernia well it was not getting any better it was interfering with my work i

>would hurt so bad i could not sleep or lay down if i could throw up i would

>fell better in about four to five hours well it got to where i could not

>swallow my own salava i decided to go to the doctor i did not want to go but

>had no choice they did two dilations that did not work my esophagus was

>closed up they did not know what was wrong with me so i needed some relief

>fast so i went out of town found a doc that actd like he wanted to help me

>he sent me to a gi in nashville and he found it thank god he did tne hellers

>myotomy and it helped alittle aleast i could swallow water but went back

>with in the year and had another dialation it gave me some relief i use to

>get very depressed but i dont like i use to i am taking doxepin and it helps

>my spasms i also have ibs which is related to my spasms i cant digest some

>foods and i have to watch what i eat , soft drinks causes me to hurt now

>since i am taking doxepin i dont hurt as bad and it helps my ibs i take

>maylox for my reflux i try to save money that prevacid cost 110.00 a month

>so i would rather save and buy malox and what ever after a year and two

>months i started gaining some weight i drink lots and lot of ensure and i

>have alot of my strength back that scared me i had to take off work for

>months cause i had lost all my strength i thought i had this alone i am glad

>i found other people that have it also. thanks for hearing me out

>

September 21, 2001

Welcome !!! My husband tends to read over my shoulder too. He says to

tell everyone that he is a lurker. His name is also and doesn't like

to be called Dave but everyone does. We have two children, who is

18 and in college, and who is 15 and has DS. My is in the

Army band. He has a year and a half until retirement. There are a few Dads

on this group. They are pretty vocal guys;)) I am a quiet, unassuming,

meek, mild woman with very few opinions. (if you believe that there is

plenty of swamp land around here for sale)

Elaine

Hello

> Hello,

>

> After trying to get on for two weeks, I am glad to finally be a part of

the group. My wife has been a subscriber for some time and she is always

calling me in to read something inspirational or moving. Since I am on a

separate line (she has Web Tv and I have computer), I decided to subscribe.

I hope it is ok for the e-mail to go to two e-mail addresses in the same

home. As father to three kids with Down syndrome and one with Cri du Chat

syndrome (another type of genetic disorder), I am very interested in the

latest news about Down syndrome and hearing from and about other parents and

kids with Down syndrome.

>

> Thanks. Once again I am glad to be a part of the group and hope more

fathers join in on this too.

>

> Dad to , Kristi, (Ds) and (CdCs)

>

September 21, 2001