Blood Test Results

[Guest guest]

Bump. Please could somebody help. I know there are a lot of results here but I

really need help. Many thanks

Hi,

>

> I just today received the last result!!! For the Reverse T3, I've tried to

convert from the unit, ug/L to what's on the STTP site, pmol/L. I think it's

399.4 pmol/L. Putting the values in the FT3:RT3 calculator on STTP, it gave a

ratio of 9.3, so it does appear that I have a thyroid problem, since this ratio

is < 20, right? Other than that, I've no idea.

>

> If my doctor wants to put me on meds, can you suggest what I should be put on.

Also he said he thinks I'm low on Estrogen and I think he's going to suggest

prescribing that and not sure of that.

>

> I've been on LDN for over 3 months now. I have M.E., Lyme Disease,

Fibromyalgia, Celiac, Systemic Migraine, etc :-)

>

> So any suggestions you can make would be much appreciated. I append my

results below, tons of them!!!

>

> Many thanks in advance & Regards,

> Noreen

>

> Sorry, it didn't post in tabular form, so here they are again, hopefully

> somebody can interpret them please??

>

> I really need help, as I said in original mail, I'm not 100% sure I have

> converted the Reverse T3 correctly but if I did, the ratio FT3/RT3 is 9.3

> which is well below 20, as per STTM.

>

> I'd appreciate any advice/guidance anybody can give me.

>

> Many thanks x

>

> .............................Range .......Result ........U.S.A.

>

> Reverse T3 ug/L.....(0.09 - 0.35) 0.26 ......399.4 pmol/L (399.4 I think?)

> Free T3 pmol/L .....(3.50 - 6.50) 3.70

> FT4 pmol/L ...........(8.50 - 23.0) 14.90

> TSH mIU/L ............(0.35 - 5.50) 1.74

> Ferritin ...................(10 - 322) 68.50

TPO Abs IU/mL ..... (0.0 - 50.0) 18

>

> Folate ....................(2.00 - 20.00) 24.00* [i had been on 5mg Folic

> Acid per day for 16 months]

> B12 .......................(240 - 911) 470.00

> Cortisol ..................(193 - 690) 444.00<193%20-%20690%20%20%20444.00>

> DHEAS umol/L .......(0.89 - 5.75) 1.60

> Vitamin D

> ESR ,,,,,,,,,,,,,,,,,,,,,,,(0.00 - 20.00) 23*

>

> Urea ..........................(2.6 - 7.3) 6.75

> Sodium .....................(136 - 145)

> <136%20-%20145%20%20145.00>145.00<136%20-%20145%20%20145.00>

> Potassium ..................(3.7 - 4.8) 4.40

> Chloride ......................(98 - 107) 109*

> Creatinine ....................(44 - 84) 72.00

>

> Magnesium ..................(0.66 - 1.07) 0.84

>

>

> WBC .............................(4.0 - 11.0) 7.48

> RBC .............................(3.8 - 4.8) 4.70

> Hgb ..............................(12.0 - 16.0) 14.00

> MCV .............................(79 - 99) 96.20

> HCT ..............................(0.36 - 0.46) 0.45

> RDW .............................(11.6 - 14.5) 13.50

> MCH ..............................(27 - 32) 29.80 [was 30.7 previously]

> MCHC ............................(31.5 - 34.5) 31.00 [was 33.2 previously]

> PLT ...............................(140 - 450) 224.00 [was 206 previously]

>

> Neut Abs ........................(2.0 - 7.0) 4.43 [was 6.25]

> Lymph Abs .....................(0.1 - 4.0) 2.20 [was 1.75]

> Mono Abs .......................(0.10 - 1.0) 0.44 [was 0.5]

> BAS Abs .........................(0.02 - 0.10) 0.06 [was 0.05]

> EOS ...............................(0.02 - 0.5) 0.12 [was 0.10]

>

> Lrge Unstained Cells .........(0.00 - 0.40) 0.23 [was 0.14]

> Random Glucose ..............(3.50 - 7.80) 5.02 [was 4.38]

>

> Cholesterol ......................(0.1 - 5.2) 7.23* [was 9.30] 281.97 [was

> 362.7]

> Triglycerides.................... (0.1-1.71) 1.21 107.69

> HDL................................ (1.68 - 4.0) 1.33* 51.87

> LDL ..................................(0.0 - 3.37) 5.4* 210.60

> Vitamin D

> Total/HDL 5.44

> Trig/HDL 2.08

> LDL/HDL 4.06

>

> Lymphocyte Subsets (B,NK cells):

> B Cells CD19 ....................(5.0 - 21.0) 13%

> B Cells (CD19) ..................(30 - 470) 287 x 10^6/L

> NK Cells ...........................(10.0 - 19.0) 10%

> NK Cells ...........................(200 - 400) 220 x 10^6/L

>

> Lymphocyte Subsets:

> T Cells (CD3) .....................(57 - 79) 74%

> Helper-T (CD3+CD4+) .........(34 - 51) 47%

> Cytotoxic T (CD3+8+) .........(17 - 37) 26%

> T Cells CD3 .......................(600 - 2200) 1407 x 10^6/L

> Helper T (CD3+4+) ..............(380 - 1500) 902 x 10^6/L

> Cytotoxic-T CD3+CD8+ .......(190 - 800) 491 x 10^6/L

> Lymphs....................... No Range given 1906 x 10^6/L

>

>

> --

> Democracy is a device that ensures we shall be governed no better than we

> deserve.

> Bernard Shaw

>

[Guest guest]

I noticed this only this morning and reposted your message with

some answers.

Luv - Sheila

Thank you so

much for your reply & advice. I really appreciate it :-) I'm

putting my replies below (in red). This seems to have gotten lost so I'm

resending it. I hope that's ok:

On 27

November 2011 11:42, Sheila <sheila@...> wrote:

If your doctor wants to start

prescribing thyroid hormone replacement, he is likely to start you on 25 or

50mcgs levothyroxine. Thyroxine works for the majority of folk, at least for a

few years, and then sometimes you need to add some form of T3, but for now, you

should go along with any prescription for thyroxine and see how that works.

Ok,

thanks. I thought my T3 was low & I hear people on the LDN site

saying not to take T4 only thyroid meds.

Did the LDN work for you. ME

and fibromyalgia Both can be treated successfully with the thyroid

hormone T3. Both are caused through a lack of the active thyroid hormone T3.

It only took me 25 years

to hear this :-)

[Guest guest]

Hi Everyone

I have a diagnosed underactive thyroid and currently take 125 of Thyroxine daily

but still feel awful. Sheila suggested that I have some blood tests done and

here are the results. I would really appreciate any comments and suggestions.

Free T3 - 4.2 pmol/L (2.6 - 5.7)

TSH - 0.45 mu/L (0.3 - 5)

Free T4 - 13 pmol/L (8.8 - 18.8)

Ferritin - 62 ug/L (15 - 200)

Thyroid peroxidase antibod level 29.4 (0 - 5.61)***********

B12 - 546 ng/L (179 - 1162)

Folate - 5.8 ug/L (2.8 - 12.4)

Magnesium - 0.92 mmol/L (0.68 - 1.05)

Amylase - 68 IU/L (25 - 125)

" Liver function test "

Albumin - 40 g/L (35 - 50)

Alkaline Phosphatase - 73 IU/L (36 - 126)

Total Bilirubin level - 8 umol/L (2 - 22)

ALT/SGPT serum level - 23 IU/L (10 - 35)

Serum total protein - 78 g/L (64 - 83)

Serum 25-HO vit D3 - 55 nmol/L (23 - 118)

" Full blood count "

Haemoglobin estimation - 15.1 g/dL (11.5 - 16.5)

White cell count - 6.2 10*9/L (4 - 11)

Platelet count - 337 10*9/L (150 - 400)

Red blood cell count - 4.67 10*12/L (3.8 - 5.8)

Mean corpuscular volume - 92.7 fL (76 - 98)

Mean corpusc haemoglobin - 32.3 pg (26 - 32) High ********

Mean corpusc. Hb. conc (MCHC) - 34.9 g/dL (31 - 36)

Haematocrit - 43.3 % (37 - 47)

Red blood cell distribution width - 12.2 % (11 - 14)

Neutrophil count - 2.7 10*9/L (2.5 - 7.5)

Lymphocyte count - 2.4 10*9/L (1.4 - 4)

Monocyte count - 0.5 10*9/L (0 - 0.8)

Eosinophil count - 0.5 10*9/L (0 - 0.4) High ********

Basophil count - 0.1 10*9/L (0 - 0.2)

The Thyroid antibodies seems very high. Do you know what this indicates? I do

have a diagnosed underactive thyroid and take 125 of Thyroxine daily.

Thanks very much for your help with this.

With warm wishes

Bryony

[Guest guest]

I have a diagnosed underactive thyroid and currently take 125 of Thyroxine

daily but still feel awful. Sheila suggested that I have some blood tests done

and here are the results. I would really appreciate any comments and

suggestions.

Free T3 - 4.2 pmol/L (2.6 - 5.7)

TSH - 0.45 mu/L (0.3 - 5)

Free T4 - 13 pmol/L (8.8 - 18.8)

These seem fine but no doctor should base a diagnosis of

hypothyroidism on thyroid function tests alone.

Ferritin - 62 ug/L (15 - 200) - this should be somewhere in the region of 90 to 130,

so you need to eat a diet high in iron and take supplements such as 200mgs

Ferrous Fumerate daily until your level has been lifted.

Thyroid peroxidase antibod level 29.4 (0 - 5.61)*********** This shows antibodies attacking your thyroid tissue. You

should be given a trial of thyroid hormone replacement if you are suffering

symptoms of hypothyroidism.

B12 - 546 ng/L (179 - 1162) B12 is too low, this is

one result that should be right at the top of the reference range, no matter

what youro GP tries to tell you. If this was me I would start taking B12

sublingual caplets (1000mcgs) twice daily to build up your level.

Folate - 5.8 ug/L (2.8 - 12.4) Also too low - it

would help to take 5mgs Folic Acid for a while to build up this level.

Mean corpusc haemoglobin - 32.3 pg (26 - 32) High ********This could be because your B12 and folate are low. Read http://en.wikipedia.org/wiki/Mean_corpuscular_volume

Eosinophil count - 0.5 10*9/L (0 - 0.4) High ********This

can be high for many reasons, see http://www.mayoclinic.com/health/eosinophilia/MY00399/DSECTION=causes

- but I wonder at the state of your adrenals. Have you done the 24 hour

salivary adrenal profile through Genova to see what your levels of cortisol and

DHEA are throughout the day?

The Thyroid antibodies seems very high. Do you know what this indicates? I do have a diagnosed underactive thyroid and take 125

of Thyroxine daily.

Your dose may need increasing, or you may need a thyroid hormone

product containing the active thyroid hormone T3.

Luv - Sheila

[Guest guest]

>

>

> I have a diagnosed underactive thyroid and currently take 125 of Thyroxine

Hi Sheila,

Thanks very much for your advice. I started Ferrous Sulphate and B-Right after I

had the blood test done but will add B12 sublingual caplets and Folic Acid now

as well.

I have had my adrenals tested and they are pretty low. I've been taking Dr

s 'Adrenal Rebuilder' for over a year now (6 tabs a day) and they are

definitely helping quite a bit. I'm also trying NutriThyroid (4 tabs daily) but

it's not really helping and is upsetting my stomach.

I am under Dr P and will be sending my diary to him in a weeks time. My

temperature is still pretty low (36.2 this morning), so I expect we will be

going down the T3 route. My instinct is telling me to go for Armour Thyroid but

this is probably more complicated, as I will presumably have to off the

Thyroxine and the change over will be quite disruptive. What do you think?

Thanks again Sheila.

With warm wishes

Bryony

[Guest guest]

I think Sheila didn't see this, think it got lost :-)On 5 December 2011 17:52, Noreen <noreenmur@...> wrote:

Hi Sheila,I had my appointment with the professor today.  I had sent all my test results to him.  He said I had a thyroid problem and an adrenal problem.  

He said:

1)  I needed T3 - woohoo.  I didn't even need to ask!!  Said T3 needed to be brought up & my Reverse T3        needed to be taken care of, i.e. brought down and gotten rid of (I think that's what he said)

2)  I needed DHEA for my adrenals.  3)  I needed CoQ10.He changed some of my other medication, increased the Baclofen (for muscle spasm) and prescribed Difene for pain, as he didn't want me on the 3,000mg of Paracetamol I've been on for years for M.E. plus arthritis & Fibromyalgia.  He said Paracetamol causes sinus trouble, which I've been plagued with!!!  He reduced my Nexium from 40mg twice daily to once daily.  Told me he doesn't treat anybody who has tummy issues if they drink caffeine.  So no tea, coffee, cocoa or hot chocolate!!!!!  He's extremely anti-caffeine and tea.

I asked about B12 and he asked if I had ever had the intrinsic factor antibody test.  I hadn't.  He also thought I should have a nasal swab done in the hospital for my sinuses.  I mentioned about my oestrogen, can't remember exactly what he said, something like we'll see how you get on with all of above.

UNFORTUNATELY, he insisted I stop the LDN.  I'm very disappointed in this as, for the past 3 weeks, that dreadful, debilitating weakness that keeps me bed-ridden has disappeared & I was so excited about that.  But he said he couldn't have me on the thyroid meds & LDN at the same time.  I understood but am disappointed :-(

So he prescribed:  Liothyronine (20  mcg, 1 per day)DHEA         (25 mg, 1 per day)CoQ10,       I don't know how much, left prescription into chemist & will collect tomorrow.

Sheila, I want to thank you so much for all of your advice, help, information and time.  You have no idea how much I appreciate it.**Is there a specific time in the day that I should take the T3 and DHEA?

Again, THANK YOU so very much & Best Wishes.Love,Noreen xoxoP.S.: I phoned the professor & he said to take the T3 in the morning.  I took it before breakfast today.

Is it normal to feel strange when you start taking T3? 

On 2 December 2011 11:56, Sheila <sheila@...> wrote:

 

Have you yet

managed to get your oestrogen results. If this was tested, your GP will have

them in your medical notes, together with the reference range, so give him a

ring and ask for the results.

No, I didn't find out yet,

I'm not sure they have been tested recently.  I think it could have been

May when they were last tested, as my G.P. told me then I had about 6 months

left of menopause.  Is the correct test called Estradiol?

YES - you also need your progesterone and testosterone testing

too.

I have

highlighted only those results that need looking into

> Reverse T3 ug/L.....(0.09 - 0.35) 0.26 ......399.4 pmol/L (399.4 I think?) , can you help

here?

Do I need to

write to her personally? 

If has not seen your message, I will

pass it on to her privately and she will let you know

That'd be

great as I've not heard from yet, thanks Sheila.

I have sent her a copy of your message.

> Free T3 pmol/L .....(3.50 - 6.50) 3.70 FAR too low. Your fT3 should be in the upper third of

the reference range.

So, do you mean

when I my doctor prescribes, he should prescribe one that includes T3?

Yes, if your thyroxine is not converting to the active T3, you

need T3 in some form, either in combination with T4 or natural thyroid extract.

It would be

preferable, but it is very doubtful a NHS doctor would start you straight off

on T3, believing that everybody can convert the mainly inactive thyroid hormone

T4 into T3. However, it could be that T4 might well work very well for you, so

give it a try.

I live in Ireland Sheila and

don't have a Medical Card (which I think is like your NHS?) so I pay my G.P.

 I'd say it's quite unusual for a private G.P. here to prescribe it too

but the professor may - hopefully!

Hopefully indeed. Let us know the outcome of this.

> Ferritin ...................(10 - 322) 68.50 -

ferritin levels should be oround 90 to 130, so

you would benefit from supplementing with some form of elemental iron, such as

Ferrous Fumerate, Ferrous Glutamate, 2 to 3 Sachets of Spatone.

My ferritin was

'almost completely depleted' about 24 years ago & my then doctor panicked

big time.  I had the equivalent of 12 iron injections to bring it up!!

 Also I'm not good at absorbing things as I have a lot of trouble with my

tummy :-(

That could be

a problem for anybody taking iron, and also vitamin C. What is the " tummy

trouble " you are experiencing?

I've had gastritis & ulcers

and, even if I don't have ulcers, I have lots of bacteria and gastritis.

 I'm trying to get rid of Candida at the moment and am also taking

probiotics.  I think I'll include prebiotics.  It doesn't take much

for me to be sick, then I get dehydrated very quickly & end up in hospital

:-(

Perhaps you should look into taking Betaine HCL - see http://www.highernature.co.uk/ShowProductFamily.aspx?ProductFamilyID=63

 

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

[Guest guest]

This is amazing and I am so delighted. Did you send me the name

of this Professor and the hospital where he works from. You probably did, but

right now, there is so much to remember I cannot retain it. If you did send it

to me, I will have added him to my list, but a reminder please Noreen.

He

changed some of my other medication, increased the Baclofen (for muscle spasm)

and prescribed Difene for pain, as he didn't want me on the 3,000mg of

Paracetamol I've been on for years for M.E. plus arthritis & Fibromyalgia.

He said Paracetamol causes sinus trouble, which I've been plagued with!!!

He reduced my Nexium from 40mg twice daily to once daily. Told me

he doesn't treat anybody who has tummy issues if they drink caffeine. So

no tea, coffee, cocoa or hot chocolate!!!!! He's extremely anti-caffeine

and tea.

Probably the severe muscle spasm pain is caused because your

body is lacking in T3. Once you get on the correct dose, you might suddenly find

it has completely disappeared - so we will watch this space with anticipation

and great hope! Do you know whether you have Hashimoto's disease, i.e. have

antibodies to your thyroid. If you have, you may need to consider going on a

gluten free diet.

I

asked about B12 and he asked if I had ever had the intrinsic factor antibody

test. I hadn't. He also thought I should have a nasal swab done in

the hospital for my sinuses. I mentioned about my oestrogen, can't

remember exactly what he said, something like we'll see how you get on with all

of above.

Did he arrange to do the specific vitamins and minerals you need

testing, i.e. iron, transferrin saturation%, ferritin, vitamin B12, vitamin D3,

magnesium, folate, copper and zinc? You should get a copy of the letter that he

will be sending to your GP to see what he said about your oestrogen. Many

sufferers of hypothyroidism have high oestrogen levels, and need to take

natural progesterone (cream rubbed into the soft part of your body daily) to

balance these sex hormones.

UNFORTUNATELY,

he insisted I stop the LDN. I'm very disappointed in this as, for the

past 3 weeks, that dreadful, debilitating weakness that keeps me bed-ridden has

disappeared & I was so excited about that. But he said he couldn't

have me on the thyroid meds & LDN at the same time. I understood but am

disappointed :-(

I would have liked to have been given some research to show that

LDN and thyroid hormone replacement cannot be taken together. Did he give you a

reason for this?

So

he prescribed:

Liothyronine

(20 mcg, 1 per day) - take 10mcgs when you

wake, and the other 10 mcgs around 2.00/3.00p.m. to 'keep the engine topped up'.

Did he tell you that this should be increased(if no adverse reaction) in

another 2 to 3 weeks by another 10mcgs?

DHEA

(25 mg, 1 per day) -

good. Remember though that a lot of folk do not feel any particular benefit for

quite some time, and think it is not doing them any good and get disheartened. In

fact, for some people they do not start to feel the benefit for up to 3 months,

so keep on persevering. This will make a difference.

CoQ10,

I don't know how much, left prescription into chemist

& will collect tomorrow. It will be interesting

to see how much he has recommended. The usual Daily Recommended Dose is too

little to be of any great benefit, especially if this is really low. You should

start on about 100mgs and see how you get on with that, but if really

depleted (this happens as we get older) you need about 3 00mgs (or more)

daily.

Sheila,

I want to thank you so much for all of your advice, help, information and time.

You have no idea how much I appreciate it.

**Is there a specific time in the day that I should take the T3

and DHEA?

T3 mentioned above - we recommend twice daily to start with

because T3 has a very short half life, and after 6 to 8 hours of taking a dose,

the 'good' effect starts to wear off and you might find yourself needing an

afternoon nap if you take it all in a morning, so take your second dose at that

time, and you should be fine.

DHEA dosage - check the link here http://antiagingguide.com/dhea-dosage.htm

Luv - Sheila

_,_._,___

[Guest guest]

Bump. Think this got lost :-)On 7 December 2011 12:33, Noreen <noreenmur@...> wrote:

On 7 December 2011 11:34, Sheila <sheila@...> wrote:

 

This is amazing and I am so delighted. Did you send me the name

of this Professor and the hospital where he works from. You probably did, but

right now, there is so much to remember I cannot retain it. If you did send it

to me, I will have added him to my list, but a reminder please Noreen.I didn't send you his name, Sheila.  I have to phone him next Monday and I'll ask if it's okay to do that.  I wouldn't like to give his name on a public forum without his permission.  I hope you understand.  Although one lady here did ask for it, I asked him & he said it was fine, that he's here to help.  So I'm sure there won't be a problem.  He's semi-retired (supposed to be retired lol), is 84 years old, still doing research etc.  Amazing!! 

He

changed some of my other medication, increased the Baclofen (for muscle spasm)

and prescribed Difene for pain, as he didn't want me on the 3,000mg of

Paracetamol I've been on for years for M.E. plus arthritis & Fibromyalgia.

 He said Paracetamol causes sinus trouble, which I've been plagued with!!!

 He reduced my Nexium from 40mg twice daily to once daily.  Told me

he doesn't treat anybody who has tummy issues if they drink caffeine.  So

no tea, coffee, cocoa or hot chocolate!!!!!  He's extremely anti-caffeine

and tea.

Probably the severe muscle spasm pain is caused because your

body is lacking in T3. Once you get on the correct dose, you might suddenly find

it has completely disappeared - so we will watch this space with anticipation

and great hope! Do you know whether you have Hashimoto's disease, i.e. have

antibodies to your thyroid. If you have, you may need to consider going on a

gluten free diet.I don't know, he said I had hypothyroidism (even before he got my Free T3 result).  I've been on a gluten-free diet for the past 7 years.  My TPO was 18 with a negative range of < 50, Equivocal range (50 - 75) and Positive > 75.  I did tell him that my brother had an under-active thyroid and asked if we could take it that it is in the family.  He said yes. 

I

asked about B12 and he asked if I had ever had the intrinsic factor antibody

test.  I hadn't.  He also thought I should have a nasal swab done in

the hospital for my sinuses.  I mentioned about my oestrogen, can't

remember exactly what he said, something like we'll see how you get on with all

of above.

Did he arrange to do the specific vitamins and minerals you need

testing, i.e. iron, transferrin saturation%, ferritin, vitamin B12, vitamin D3,

magnesium, folate, copper and zinc? You should get a copy of the letter that he

will be sending to your GP to see what he said about your oestrogen. Many

sufferers of hypothyroidism have high oestrogen levels, and need to take

natural progesterone (cream rubbed into the soft part of your body daily) to

balance these sex hormones.I've had quite a lot of those tests done (per my original post here), except for Vitamin D & Oestrogen.  He said my oestrogen is low.  

ALSO he said he does not want patients taking supplements when they're ill (or maybe when they have infection, I'm not sure exactly what he said), except for Vitamin C, as they make matters worse rather than better.  You know, when he explained it, it made sense but I can't recall exactly what he said.  i.e. I was taking probiotics for my tummy and he said well, you have a lot of bacteria in your tummy & taking probiotics is increasing the bad bacteria too - it was something like that.  He told me to stop the probiotics.  

I did ask about taking Betaine HCL, as maybe taking Nexium is exactly the wrong thing to be doing, he said it would depend on the cause of my tummy problems.  He also said any PPI not only works on the tummy but on other organs like the brain.  I think at the moment he's focusing on SOME of the problems I have for now, especially the thyroid :-)

UNFORTUNATELY,

he insisted I stop the LDN.  I'm very disappointed in this as, for the

past 3 weeks, that dreadful, debilitating weakness that keeps me bed-ridden has

disappeared & I was so excited about that.  But he said he couldn't

have me on the thyroid meds & LDN at the same time.  I understood but am

disappointed :-(

I would have liked to have been given some research to show that

LDN and thyroid hormone replacement cannot be taken together. Did he give you a

reason for this?Well, he looked up the side effects of Nalorex and said no way, it can cause heart problems, palpitations etc.  I tried & tried to explain that each Nalorex tablet is 50mg and I only take 4.5 ml.  He said it didn't matter.  He couldn't have me take it with thyroid meds.  

He has a massive background in pharmacology as well as endocrinology and other disciplines.

So

he prescribed:  

Liothyronine

(20  mcg, 1 per day) - take 10mcgs when you

wake, and the other 10 mcgs around 2.00/3.00p.m. to 'keep the engine topped up'.

Did he tell you that this should be increased(if no adverse reaction) in

another 2 to 3 weeks by another 10mcgs?As he hadn't told me when to take it, I phoned him yesterday.  He said to take it in the morning, thyroid meds are daytime meds.  He said he'd see how I go before increasing to twice daily.  I've now taken 2, one yesterday & 1 today.  I really feel strange.  

I know I'm not the best at taking meds but I definitely need T3, so don't understand why I would feel anything but good taking it :-(  

Is it common to feel strange when starting T3???

DHEA

        (25 mg, 1 per day) -

good. Remember though that a lot of folk do not feel any particular benefit for

quite some time, and think it is not doing them any good and get disheartened. In

fact, for some people they do not start to feel the benefit for up to 3 months,

so keep on persevering. This will make a difference.That's okay :-)  After 25 years I've stopped looking for instant cures LOL 

CoQ10,

      I don't know how much, left prescription into chemist

& will collect tomorrow. It will be interesting

to see how much he has recommended. The usual Daily Recommended Dose is too

little to be of any great benefit, especially if this is really low. You should

start on about 100mgs and see how  you get on with that, but if really

depleted (this happens as we get older) you need about  3 00mgs (or more)

daily.It was 100 mg he prescribed.  They're not on prescription here.  60 tablets cost over €51 WOW  I'll check elsewhere before I buy the next lot.

Sheila,

I want to thank you so much for all of your advice, help, information and time.

 You have no idea how much I appreciate it.

**Is there a specific time in the day that I should take the T3

and DHEA?

T3 mentioned above - we recommend twice daily to start with

because T3 has a very short half life, and after 6 to 8 hours of taking a dose,

the 'good' effect starts to wear off and you might find yourself needing an

afternoon nap if you take it all in a morning, so take your second dose at that

time, and you should be fine.I'm waiting for that 'good effect'??  I feel I'll have to wait until I phone him on Monday to mention the twice daily 'half-dose " .  Each tablet are 20 mcg, so do I halve them?

DHEA dosage - check the link here http://antiagingguide.com/dhea-dosage.htm

Thank you, chemist is ordering it in for me. 

Luv - SheilaAgain many thanks!!  Was I blessed with this forum and the professor or what??  My hubby had said it's about time I had a bit of luck as regards my health and my goodness, it appears that good luck all came together ... with you Sheila & the professor (so thank you too to Elaine who told me about him).

Love,Noreen xo

_,_._,___

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

[Guest guest]

On 8 December 2011 18:33, Noreen <noreenmur@...> wrote:

Bump. Think this got lost :-)On 7 December 2011 12:33, Noreen <noreenmur@...> wrote:

On 7 December 2011 11:34, Sheila <sheila@...> wrote:

 

This is amazing and I am so delighted. Did you send me the name

of this Professor and the hospital where he works from. You probably did, but

right now, there is so much to remember I cannot retain it. If you did send it

to me, I will have added him to my list, but a reminder please Noreen.I didn't send you his name, Sheila.  I have to phone him next Monday and I'll ask if it's okay to do that.  I wouldn't like to give his name on a public forum without his permission.  I hope you understand.  Although one lady here did ask for it, I asked him & he said it was fine, that he's here to help.  So I'm sure there won't be a problem.  He's semi-retired (supposed to be retired lol), is 84 years old, still doing research etc.  Amazing!! 

He

changed some of my other medication, increased the Baclofen (for muscle spasm)

and prescribed Difene for pain, as he didn't want me on the 3,000mg of

Paracetamol I've been on for years for M.E. plus arthritis & Fibromyalgia.

 He said Paracetamol causes sinus trouble, which I've been plagued with!!!

 He reduced my Nexium from 40mg twice daily to once daily.  Told me

he doesn't treat anybody who has tummy issues if they drink caffeine.  So

no tea, coffee, cocoa or hot chocolate!!!!!  He's extremely anti-caffeine

and tea.

Probably the severe muscle spasm pain is caused because your

body is lacking in T3. Once you get on the correct dose, you might suddenly find

it has completely disappeared - so we will watch this space with anticipation

and great hope! Do you know whether you have Hashimoto's disease, i.e. have

antibodies to your thyroid. If you have, you may need to consider going on a

gluten free diet.I don't know, he said I had hypothyroidism (even before he got my Free T3 result).  I've been on a gluten-free diet for the past 7 years.  My TPO was 18 with a negative range of < 50, Equivocal range (50 - 75) and Positive > 75.  I did tell him that my brother had an under-active thyroid and asked if we could take it that it is in the family.  He said yes. 

I

asked about B12 and he asked if I had ever had the intrinsic factor antibody

test.  I hadn't.  He also thought I should have a nasal swab done in

the hospital for my sinuses.  I mentioned about my oestrogen, can't

remember exactly what he said, something like we'll see how you get on with all

of above.

Did he arrange to do the specific vitamins and minerals you need

testing, i.e. iron, transferrin saturation%, ferritin, vitamin B12, vitamin D3,

magnesium, folate, copper and zinc? You should get a copy of the letter that he

will be sending to your GP to see what he said about your oestrogen. Many

sufferers of hypothyroidism have high oestrogen levels, and need to take

natural progesterone (cream rubbed into the soft part of your body daily) to

balance these sex hormones.I've had quite a lot of those tests done (per my original post here), except for Vitamin D & Oestrogen.  He said my oestrogen is low.  

ALSO he said he does not want patients taking supplements when they're ill (or maybe when they have infection, I'm not sure exactly what he said), except for Vitamin C, as they make matters worse rather than better.  You know, when he explained it, it made sense but I can't recall exactly what he said.  i.e. I was taking probiotics for my tummy and he said well, you have a lot of bacteria in your tummy & taking probiotics is increasing the bad bacteria too - it was something like that.  He told me to stop the probiotics.  

I did ask about taking Betaine HCL, as maybe taking Nexium is exactly the wrong thing to be doing, he said it would depend on the cause of my tummy problems.  He also said any PPI not only works on the tummy but on other organs like the brain.  I think at the moment he's focusing on SOME of the problems I have for now, especially the thyroid :-)

UNFORTUNATELY,

he insisted I stop the LDN.  I'm very disappointed in this as, for the

past 3 weeks, that dreadful, debilitating weakness that keeps me bed-ridden has

disappeared & I was so excited about that.  But he said he couldn't

have me on the thyroid meds & LDN at the same time.  I understood but am

disappointed :-(

I would have liked to have been given some research to show that

LDN and thyroid hormone replacement cannot be taken together. Did he give you a

reason for this?Well, he looked up the side effects of Nalorex and said no way, it can cause heart problems, palpitations etc.  I tried & tried to explain that each Nalorex tablet is 50mg and I only take 4.5 ml.  He said it didn't matter.  He couldn't have me take it with thyroid meds.  

He has a massive background in pharmacology as well as endocrinology and other disciplines.

So

he prescribed:  

Liothyronine

(20  mcg, 1 per day) - take 10mcgs when you

wake, and the other 10 mcgs around 2.00/3.00p.m. to 'keep the engine topped up'.

Did he tell you that this should be increased(if no adverse reaction) in

another 2 to 3 weeks by another 10mcgs?As he hadn't told me when to take it, I phoned him yesterday.  He said to take it in the morning, thyroid meds are daytime meds.  He said he'd see how I go before increasing to twice daily.  I've now taken 2, one yesterday & 1 today.  I really feel strange.  

I know I'm not the best at taking meds but I definitely need T3, so don't understand why I would feel anything but good taking it :-(  

Is it common to feel strange when starting T3???

DHEA

        (25 mg, 1 per day) -

good. Remember though that a lot of folk do not feel any particular benefit for

quite some time, and think it is not doing them any good and get disheartened. In

fact, for some people they do not start to feel the benefit for up to 3 months,

so keep on persevering. This will make a difference.That's okay :-)  After 25 years I've stopped looking for instant cures LOL 

CoQ10,

      I don't know how much, left prescription into chemist

& will collect tomorrow. It will be interesting

to see how much he has recommended. The usual Daily Recommended Dose is too

little to be of any great benefit, especially if this is really low. You should

start on about 100mgs and see how  you get on with that, but if really

depleted (this happens as we get older) you need about  3 00mgs (or more)

daily.It was 100 mg he prescribed.  They're not on prescription here.  60 tablets cost over €51 WOW  I'll check elsewhere before I buy the next lot.

Sheila,

I want to thank you so much for all of your advice, help, information and time.

 You have no idea how much I appreciate it.

**Is there a specific time in the day that I should take the T3

and DHEA?

T3 mentioned above - we recommend twice daily to start with

because T3 has a very short half life, and after 6 to 8 hours of taking a dose,

the 'good' effect starts to wear off and you might find yourself needing an

afternoon nap if you take it all in a morning, so take your second dose at that

time, and you should be fine.I'm waiting for that 'good effect'??  I feel I'll have to wait until I phone him on Monday to mention the twice daily 'half-dose " .  Each tablet are 20 mcg, so do I halve them?

DHEA dosage - check the link here http://antiagingguide.com/dhea-dosage.htm

Thank you, chemist is ordering it in for me. 

Luv - SheilaAgain many thanks!!  Was I blessed with this forum and the professor or what??  My hubby had said it's about time I had a bit of luck as regards my health and my goodness, it appears that good luck all came together ... with you Sheila & the professor (so thank you too to Elaine who told me about him).

Love,Noreen xo

_,_._,___

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

[Guest guest]

I didn't send you his name,

Sheila. I have to phone him next Monday and I'll ask if it's okay to do

that. I wouldn't like to give his name on a public forum without his

permission. I hope you understand. Although one lady here did ask

for it, I asked him & he said it was fine, that he's here to help. So

I'm sure there won't be a problem. He's semi-retired (supposed to be

retired lol), is 84 years old, still doing research etc. Amazing!!

Are you living in the UK Noreen?

I don't know, he said I had

hypothyroidism (even before he got my Free T3 result). I've been on a

gluten-free diet for the past 7 years. My TPO was 18 with a negative

range of < 50, Equivocal range (50 - 75) and Positive > 75. I did

tell him that my brother had an under-active thyroid and asked if we could

take it that it is in the family. He said yes.

Good doctors can tell whether a patient is suffering with

hypothyroidism just be looking at them, in fact, I think I can pretty well see

this in people too. It often comes down the family line, usually on the female

side. Most of the members of my family have a thyroid or autoimmune problem.

I've had quite a lot of those

tests done (per my original post here), except for Vitamin D & Oestrogen.

He said my oestrogen is low.

ALSO he said he does not want

patients taking supplements when they're ill (or maybe when they have

infection, I'm not sure exactly what he said), except for Vitamin C, as they

make matters worse rather than better. You know, when he explained it, it

made sense but I can't recall exactly what he said. i.e. I was taking

probiotics for my tummy and he said well, you have a lot of bacteria in your

tummy & taking probiotics is increasing the bad bacteria too - it was

something like that. He told me to stop the probiotics.

I think that a lot of supplements that people take there is no

need and yes, some can do harm if not required, so it is always best, where

possible, to get tested to see whether you are first suffering from

deficiencies in specific nutrients.

I did ask about taking

Betaine HCL, as maybe taking Nexium is exactly the wrong thing to be doing, he

said it would depend on the cause of my tummy problems. He also said any

PPI not only works on the tummy but on other organs like the brain. I

think at the moment he's focusing on SOME of the problems I have for now,

especially the thyroid :-)

That's good.

Well, he looked up the side

effects of Nalorex and said no way, it can cause heart problems, palpitations

etc. I tried & tried to explain that each Nalorex tablet is 50mg and I

only take 4.5 ml. He said it didn't matter. He couldn't have me

take it with thyroid meds.

He has a massive background

in pharmacology as well as endocrinology and other disciplines.

Then you need to be guided by him Noreen.

As he hadn't told me when to

take it, I phoned him yesterday. He said to take it in the morning,

thyroid meds are daytime meds. He said he'd see how I go before

increasing to twice daily. I've now taken 2, one yesterday & 1 today.

I really feel strange.

I know I'm not the best at

taking meds but I definitely need T3, so don't understand why I would feel

anything but good taking it :-( Is it common to feel strange when starting

T3???

For some of us, yes! How much T3 are you taking? For the

majority of us, we find it better to take any form of T3 in split doses. This is

because it peaks in the blood a couple or so hours after taking it, and it is

this peaking that causes us to feel 'strange'. You can feel 'spaced out',

dizzy, sweaty, palpitations if taking too much at one dose. Also, T3 has a very

short half life, and the 'good' effect starts to leave your system after 6 to 8

hours, so it is always best to keep the engine topped up. If you split your

dose, I am sure you will feel very much better.

It was 100 mg he prescribed.

They're not on prescription here. 60 tablets cost over €51 WOW

I'll check elsewhere before I buy the next lot.

**Is there a

specific time in the day that I should take the T3 and DHEA?

See above. As DHEA is naturally made in the morning

hours in your body,  it appears that the morning is the best time to take it.

I'm waiting for that 'good

effect'?? I feel I'll have to wait until I phone him on Monday to mention

the twice daily 'half-dose " . Each tablet are 20 mcg, so do I halve

them?

Yes, see above.

Again many thanks!! Was

I blessed with this forum and the professor or what?? My hubby had said

it's about time I had a bit of luck as regards my health and my goodness, it

appears that good luck all came together ... with you Sheila & the

professor (so thank you too to Elaine who told me about him).

Sorry you have had to wait for a response Noreen, but we do try

to get there in the end. You do right to keep 'bumping' your message until

somebody gets around to responding, but it does get difficult when members

write to 'Dear Sheila' because other 'experienced' members feel no need for

them to respond, and the pile of messages waiting for me to respond grows even

higher.

Luv - Sheila

--

[Guest guest]

I didn't send you his name, Sheila. 

Are you living in the UK Noreen?

I live in Ireland, Sheila  I asked the professor & he said he wouldn't like to have his name on a public forum and also he wouldn't want too many patients. 

However, he did say that if anybody contacted me personally that I could give that person his name.  So, if you come across somebody in Ireland looking for a doctor, please just ask them to contact me or, if you prefer, you can add my name/email address as a reference.

Is it common to feel strange when starting T3???

For some of us, yes! How much T3 are you taking? For the majority of us, we find it better to take any form of T3 in split doses. This is because it peaks in the blood a couple or so hours after taking it, and it is this peaking that causes us to feel 'strange'. You can feel 'spaced out', dizzy, sweaty, palpitations if taking too much at one dose. Also, T3 has a very short half life, and the 'good' effect starts to leave your system after 6 to 8 hours, so it is always best to keep the engine topped up. If you split your dose, I am sure you will feel very much better.

I told him that I had improved, felt stronger & felt my brain has kick into gear :-)  He was delighted.  I also told him about my head feeling strange.  He said that's okay, I am now getting T3 which I wouldn't have had in a long time.  He asked if I were having palpitations, which I'm not (just a little uncomfortable sometimes but nothing much) so he advised me to take a 2nd dose of 20mcg at 2pm.  

I suppose the quicker I get up to an optimum dose the better??  Will I know when that happens?

Sorry you have had to wait for a response Noreen, but we do try to get there in the end. You do right to keep 'bumping' your message until somebody gets around to responding, but it does get difficult when members write to 'Dear Sheila' because other 'experienced' members feel no need for them to respond, and the pile of messages waiting for me to respond grows even higher.

That was absolutely no problem at all.  I don't know how you keep going with all the questions.   I so appreciate all the advice given, many thanks.

Love,

Noreen

 -- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

[Guest guest]

Hi Noreen - you should tell your professor that we are very

strict and never allow any doctors names to be mentioned on our forum. I

collect the names of 'good' doctors privately and these are not made public. They

are for me to pass on to members who are looking for a doctor in their

particular area who has been recommended.

Please don't try to rush your dose of T3 to get to your optimal

dose. This must be done in small increments of half a tablet (10mcgs) daily

every 2 to 3 weeks, but only if you have not experienced any adverse reactions,

such as hyPERthyroid symptoms. You will know when you have reached your optimum

dose by increasing this way, and after one such increase, you will likely get

symptoms of hyperthyroidism, palpitations, sweating, dizziness, feeling spaced

out - when that happens, you take no more T3 that day, and the following day,

you go back to the dose you were on before that increase - and that is the way to

find the dose of T3 your body needs.

I live in

Ireland, Sheila I asked the professor & he said he wouldn't like to

have his name on a public forum and also he wouldn't want too many

patients.

I told him

that I had improved, felt stronger & felt my brain has kick into gear :-)

He was delighted. I also told him about my head feeling strange.

He said that's okay, I am now getting T3 which I wouldn't have had in a

long time. He asked if I were having palpitations, which I'm not (just a

little uncomfortable sometimes but nothing much) so he advised me to take a 2nd

dose of 20mcg at 2pm.

I suppose the

quicker I get up to an optimum dose the better?? Will I know when that

happens?

[Guest guest]

>> Hi Noreen - you should tell your professor that we are very strict and never> allow any doctors names to be mentioned on our forum. I collect the names of> 'good' doctors privately and these are not made public. They are for me to> pass on to members who are looking for a doctor in their particular area who> has been recommended. > Sorry, I misunderstood about the doctors' list. I'll tell him, Sheila. I intend to phone him on Monday so will let you know then.Love,Noreen> > >

[Ed]

[Guest guest]

Hi Sheila,

How do I send you a private message. I want to give you the professor's

details.

Thanks.

Noreen x

-

> >

> > Hi Noreen - you should tell your professor that we are very strict and

> never

> > allow any doctors names to be mentioned on our forum. I collect the

> names of

> > 'good' doctors privately and these are not made public. They are for

> me to

> > pass on to members who are looking for a doctor in their particular

> area who

> > has been recommended.

[Guest guest]

Hi Noreen

Just send to [sheila@...].

Luv - Sheila

Hi Sheila,

How do I send you a private message. I want to give you the professor's

details.

Thanks.

Noreen x

-

> >

_,_._,___

[Guest guest]

Hi Sheila & all,Just want to thank you, Sheila, for all of the help, advice, information and time you gave me. I so appreciate it. I would have been lost without you.Also want to say I hope you and all here had a very Happy Christmas and wish everybody a happy & healthy 2012.Kindest Regards,Noreen xoxo>> Hi Sheila,> > How do I send you a private message. I want to give you the professor's details.> > Thanks.> Noreen x

[Guest guest]

Hi,These are my latest blood results. I wonder if somebody could advise me please. I was on 20mcg T3 for one week & then 20mcg twice daily for one week when I got the bloods taken.Free T3 pmol/L .....(3.50 - 6.50) 3.3L was 3.70 FT4 pmol/L ...........(8.50 - 23.0) 8.9 was 14.90 TSH mIU/L ............(0.35 - 5.50) <0.08L was 1.74 Ferritin ...................(10 - 322) 71.4 was 68.5 B12 .......................(240 - 911) 441.0 was 470.0Serum Iron ...........(6.6 - 26) 22.6 Transferrin Sat. .....(16.0 - 45.0) 42.0%Transferring ...........(2.0 - 3.6) 2.2Just after bloods were taken, I got an iron injection and a B12 injection.I take:T3 20mcg twice dailyDHEA ...... 25 mg once dailyCoQ10 100mg once dailyBaclofen ..... 5mg 3 times dailyFolic Acid 0.4mg once dailyNexium ........ 40 - 80 mg per dayLyrica 50mg once dailyMany thanks for your advice.Kindest Regards.Love,Noreen xo

[Guest guest]

Hi,I wonder if somebody could give me your opinion of my blood results, I'd really appreciate it. My G.P., though fabulous and kind to me, doesn't seem to know anything about it (I'm not sure he believes any of this!), so thankfully the professor is looking after me.I forgot to include my eostrogen result in my last mail (which I think got lost):Oestradiol 45.70 (71.6 - 520.2) Follicular (204.8 - 786.1) Luteal (234.5 - 1309.0) MidCycle < 118.2 Post MenopausalI'm 52 years old.The professor phoned me. He's happy that the TSH & T4 are down. Said he wants them to 'flatten out' so that I stop making Reverse T3 and hopefully keep it that way for about 3 months. He had told me to NOT take T3 before the blood test was taken. I had taken the last T3 around 2/3 pm and had the blood taken at 11:30 am the following day. He said to get another T3 test taken around 90 minutes after taking T3, which I did yesterday. Should have result next week.BTW I think my hair isn't falling out as much as it was so I'm assuming that's down to taking T3??He increased CoQ10 from 100mg to 300mg per dayHe increased DHEA from one x 25mg to two x 25 mg per day.Many, many thanks for any comments.Love,Noreen

> Hi,> These are my latest blood results. I wonder if somebody could advise me> please.> I was on 20mcg T3 for one week & then 20mcg twice daily for one week> when I got the bloods taken.> Free T3 pmol/L .....(3.50 - 6.50) 3.3L was 3.70> FT4 pmol/L ...........(8.50 - 23.0) 8.9 was 14.90> TSH mIU/L ............(0.35 - 5.50) <0.08L was 1.74> Ferritin ...................(10 - 322) 71.4 was > 68.5 B12 .......................(240 - 911) 441.0 > was 470.0Serum Iron ...........(6.6 - 26) 22.6 > Transferrin Sat. .....(16.0 - 45.0) 42.0%Transferrin ...........(2.0 - 3.6) 2.2> Just after bloods were taken, I got an iron injection and a B12> injection.> I take:T3 20mcg twice dailyDHEA ...... 25 mg once dailyCoQ10 100mg once dailyBaclofen ..... 5mg 3 times dailyFolic Acid 0.4mg once dailyNexium ........ 40 - 80 mg per dayLyrica 50mg once daily> Many thanks for your advice.> Kindest Regards.Love,Noreen xo>

[Guest guest]

Just now got the latest T3 Result:

Free T3 .... 7.1 H (3.5 - 6.5)This blood was taken 80 minutes after I

took a 20mcg T3 tablet, as per instructions.So, with all of these

results, could somebody be kind enough to give me their opinion. I feel

I'm on the right road :-)

The professor also said he thinks I'll need to be put on oestrogen. Is

there a natural/topical one?

Many thanks againLove,Noreen

> Hi,

> I wonder if somebody could give me your opinion of my blood results,

I'd

> really appreciate it. My G.P., though fabulous and kind to me,

doesn't

[Guest guest]

Hi Noreen

Sorry that nobody appears to have been along to help but that's

Christmas - which, incidentally, I hope you had a very, very happy one and that

your New Year will start off with all the promise of good health - as seems

quite possible under the circumstances.

T3 seems to be on the low side even though you had not taken any

on the morning of your blood draw, but it will be interesting to see what the result

is taking your T3 90 minutes after the blood draw. Just hope it doesn't scare

the Professor so much he recommends that you lower your dose. Don't allow that

to happen if you are feeling good on the dose you are taking.

B12 should be right at the top of the range, so I would

supplement this by taking 1000mgs sublingual B12 daily until you have built

this level up.

Did the iron injection that was given to you straight after the

blood test help in making you feel better?

Apologies, as I cannot work out your oestradiol results -

hopefully there is somebody here more able than me.

Great that he has increased your CoEnzyme Q10 and DHEA - but

please remember that for some people, they can feel no benefit from DHEA for up

to 3 months, so be patient, and don't think that nothing is happening and stop

taking it, as some people have been known to.

Glad you appear to have found somebody who knows what they are

talking about - this makes such a change.

Luv - Sheila

I forgot to include my eostrogen result in my last mail

(which I think got lost):

Oestradiol 45.70 (71.6 - 520.2) Follicular

(204.8 -

786.1) Luteal

(234.5 -

1309.0) MidCycle

<

118.2 Post Menopausal

BTW I think my hair isn't falling out as much as it was so

I'm assuming that's down to taking T3??

He increased CoQ10 from 100mg to 300mg per day

He increased DHEA from one x 25mg to two x 25 mg per day.

[Guest guest]

The free T3 result of 7.1 is to be expected, so now your

professor will realise that for other patients who failed to stop their thyroid

hormone before having their blood drawn - having a high result is 'normal' and

there is no need to lower the dose. Hopefully, he will now tell all his

patients that he has on some form of T3 not to take any on the morning of the

blood draw and pass this information onto other doctors.

Luv - Sheila

Just now got the latest T3 Result:

Free T3 .... 7.1 H (3.5 - 6.5)This blood was taken 80 minutes after I

took a 20mcg T3 tablet, as per instructions.So, with all of these

results, could somebody be kind enough to give me their opinion. I feel

I'm on the right road :-)

The professor also said he thinks I'll need to be put on oestrogen. Is

there a natural/topical one?

Many thanks againLove,Noreen

_,_._,___

[Guest guest]

T3 seems to be on the low side even though you had not taken any on the morning of your blood draw I thought that too as it was lower than my previous T3, which was taken before I had ever been prescribed T3. I thought that was strange??B12 should be right at the top of the range, so I would supplement this by taking 1000mgs sublingual B12 daily until you have built this level up. Thanks, Sheila.Did the iron injection that was given to you straight after the blood test help in making you feel better? I'm not sure, to be honest. I think I felt stronger. Prof. said not to get any more though yet as he wouldn't want a patient getting more than one injection per month.Apologies, as I cannot work out your oestradiol results - hopefully there is somebody here more able than me. No problem. I'll start a new thread maybe?? That way too, it won't be just on you, I'm sure you could do with a break from my questions :-)Great that he has increased your CoEnzyme Q10 and DHEA - but please remember that for some people, they can feel no benefit from DHEA for up to 3 months, so be patient, and don't think that nothing is happening and stop taking it, as some people have been known to. I won't stop taking it, am so pleased to finally be getting treatment.Glad you appear to have found somebody who knows what they are talking about - this makes such a change. Me too, Sheila. What a stroke of luck! I forgot to include my eostrogen result in my last mail (which I think got lost):Oestradiol 45.70 (71.6 - 520.2) Follicular (204.8 - 786.1) Luteal (234.5 - 1309.0) MidCycle < 118.2 Post Menopausal BTW I think my hair isn't falling out as much as it was so I'm assuming that's down to taking T3??> The free T3 result of 7.1 is to be expected, so now your professor will> realise that for other patients who failed to stop their thyroid hormone> before having their blood drawn - having a high result is 'normal' and there> is no need to lower the dose. Hopefully, he will now tell all his patients> that he has on some form of T3 not to take any on the morning of the blood> draw and pass this information onto other doctors. I think he realises this. I think he wanted this test just to see how much T3 would be in my system after 90 minutes. I emailed the result to him & know his secretary printed it off & gave it to him so I'd say, if he were going to reduce the T3, he'd have phoned me. He didn't :-) I have a feeling he'll increase it soon.Unfortunately I don't think he lectures any more. To my knowledge he lectured in Trinity College, Dublin & UCD so he feels that all those doctors who attended his lectures should know about all of this. I think he finished lecturing in UCD in the 1950s/1960s. My G.P. wasn't even born then :-(Many thanks again Sheila for all of your advice & the time you took to reply. You and all here are nothing short of amazing!Wishing you & all here a very healthy & happy 2012.Love,Noreen xo> > Luv - Sheila> > Just now got the latest T3 Result:> Free T3 .... 7.1 H (3.5 - 6.5)This blood was taken 80 minutes after I> took a 20mcg T3 tablet, as per instructions.> >

[Guest guest]

Nobody is allowed to withhold information that goes into your

medical records Chrissie - see http://www.nhs.uk/chq/pages/1309.aspx?categoryid=68 & subcategoryid=160

.. If the laboratory are not passing on your full results to your GP they could

be in very serious trouble. However, it could be that as you believe, the

laboratory has not done the tests requested by your GP and it is up to your GP

to telephone the Head of that Department to find out why and to demand that the

tests he requested to be done ARE done. As you say, laboratory staff know

nothing whatsoever about your health history or even what other medications you

are taking, but why doctors allow such staff to get away with this, I have no

idea.

20mcgs of T3 is a very small dose and this should be increased

on a 2 to 3 weekly basis by 10mcgs until you find the dose your body works best

with. Blood tests really do not matter when one is taking any form of T3

because in most cases, TSH will be suppressed, free T4 will be lowish, and free

T3 will be up near to the top of the range. T3 peaks in the blood around 2 to 3

hours after taking it, so you should never take any form of T3 on the morning

you have your blood tested. Always take it with you to take immediately after

your test has been done.

As far as your scalp scab is concerned, has this come about

through your head being particularly itchy and the scab caused through

scratching. Do you have Hashimoto's Disease? See

http://www.bettermedicine.com/article/itchy-scalp

http://health..net/caring/8-things-your-hair-says-about-your-health

http://www.livestrong.com/article/204571-what-are-the-treatments-for-damaged-scalp/

Luv - Sheila

I rang the lab and the local jobsworth told me

it was a TFT and I could not be given my results cos it was against their

protocols. Just to hide the fact that they hadn`t done it. I rang the surgery

and asked for my GP to be informed urgently.The tail is nodding the donkey and

I have told the doctor the last time it happened that the labs are not my

doctor It was my intention to post the results here and then see the GP. …..I have been to dermatology about a scalp

scab which seemed infected. I have thin hair and hair loss so it is

visible.They have done a couple of biopsies to find out what is going on,they

suspect either a deep infection or a minor skin cancer. They also intend to

investigate some iritated hair follicles. They swear there is nothing endocrine

involved but I am dubious.Has anyone else had this ? Is it thyroid related ? I

cannot find anything specific

Any comments welcome. Happy New Year to everyone.

Chrissie

No

virus found in this message.

Checked by AVG - www.avg.com

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[Guest guest]

Hi Chrissie, sadly, I can identify, and empathise, with you.

I was referred to hospital when I challenged, as advised by Sheila, my

GP over the Ferritin, at 55 ug/L (22 - 275), and Serum B12, at 348 ng/L

(189 - 883). I arrived at reception, to be told that the consultant had

cancelled the appointment.

My GP appointment yesterday confirmed that they were not notified, until

3rd Jan, of the cancellation, although the letter was dated 15th Dec. I

witnessed the audit trail on his PC.

It's also confirmed that the " consultant discretion " , to cancel, was

because the Ferritin and B12 were within " normal range " ? The consultant

has added that a transferrin test is recommended as to whether I have an

absorption problem.

The only immediate absorption problem I have is understanding the

nonsensical NHS protocols. My GP did admit to wanting to bang his head

against a brick wall and offered an analogy of a team of detectives

spending months to bring a criminal to court, at great expense to the

taxpayer, only to be given a trivial sentence for the most heinous

crime.

Because my TSH has virtually doubled from 2.2, in July '09, to 4.0, in

Dec '11, the path lab will still not do a full thyroid panel?

I have one law suit against the Trust, which my MP is involved in, so I

can only inform him of the obfuscation I'm currently experiencing.

How the hell is anyone supposed to follow a Doc's advise and avoid

stress?

Bill.

>

> Rang for my latest blood test results today. I am on T3 and-yes, again

the lab have failed to do anything more than TSH despite my GP scrawling

what he wanted on the form and putting astericks alongside saying I was

being treated with T3 .

[Ed]

[Guest guest]

Who allows Pathology laboratory staff to go against a doctors

recommendations for specific tests for his/her patients? Who holds the

authority here? I am really serious. How is it that some laboratories will do

every test our doctor recommends (mine does in Yorkshire) yet others refuse?

I do not choose the pathology laboratory, but I do choose my

endocrinologist because he is the best I have found up here and because he

knows his job, yet the path. lab. know nothing about me, my personal

circumstances, my family or medical history or even what disease I am suffering

or what medication I am taking.

How much responsibility for our care is being handed over to the

laboratories, who are refusing the do the tests that we need. Perhaps we

need to write to the President of the Royal College of Pathologists (who have

as their tag line ' Pathology: the science behind the cure' ) Hmmm!

I have found the following if anybody here is willing to read

through it and try to make sense of where we, the patients, stand regarding biochemical

testing by laboratories who are refusing to do the specific tests requested by

our doctor because they believe they are unnecessary - i.e. other tests apart

from TSH only, i.e. free T4, free T3 and tests to check for thyroid antibodies

- all of which they are refusing to test in most places. See http://www.nhsconfed.org/Publications/Documents/Pathology.pdf.

There are lots of references to other papers which perhaps should be checked

out too. This is something we have not touched on before, but it is a serious

part of our 'healthcare'.

Perhaps if we could get to the bottom of this and what they are

allowed to do and what doctors are allowed to request, then we would be in a

better position to write to the authorities concerned to get things changed and

ensure they are all working with correct policies.

Luv - Sheila

Hi Chrissie, sadly, I can identify, and empathise, with you.

I was referred to hospital when I challenged, as advised by Sheila, my

GP over the Ferritin, at 55 ug/L (22 - 275), and Serum B12, at 348 ng/L

(189 - 883). I arrived at reception, to be told that the consultant had

cancelled the appointment.

My GP appointment yesterday confirmed that they were not notified, until

3rd Jan, of the cancellation, although the letter was dated 15th Dec. I

witnessed the audit trail on his PC.

It's also confirmed that the " consultant discretion " , to cancel, was

because the Ferritin and B12 were within " normal range " ? The

consultant

has added that a transferrin test is recommended as to whether I have an

absorption problem.

The only immediate absorption problem I have is understanding the

nonsensical NHS protocols. My GP did admit to wanting to bang his head

against a brick wall and offered an analogy of a team of detectives

spending months to bring a criminal to court, at great expense to the

taxpayer, only to be given a trivial sentence for the most heinous

crime.

Because my TSH has virtually doubled from 2.2, in July '09, to 4.0, in

Dec '11, the path lab will still not do a full thyroid panel?

I have one law suit against the Trust, which my MP is involved in, so I

can only inform him of the obfuscation I'm currently experiencing.

How the hell is anyone supposed to follow a Doc's advise and avoid

stress?

Bill.