Guest guest Posted August 31, 2005 Report Share Posted August 31, 2005 Leigh Ann~ No, a child's SMR would be lower. Try to find his peak Alpha. If you hook the child up with 3 electrodes, C4 A2 P4, and at first use P4 A2 and have him close his eyes, (you can use a 1 C 2 inhibit 1 reward design) look to see where the alpha peaks in the Power spectrum Binns display for a couple of minutes, ( have him stay still or you may be seeing his theta/artifact bounce around). Might be around 7.5-8 for a 7 year old. Once you figure that out, switch the elctrodes in your device, make P4 the ground and go with the C4 training setting the SMR the next band up, may be something like 9.5-12. Even after you find the right band you may have to raise or lower the band 1/2 a Htz here or there every 3-5 minutes till you find he is relaxed, facial and body muscles loose, slightly heavy lidded. (use the tool menu at the top of the screen and filters to make your adjustments with the arrow keys). Hope this helps, ~ -------------- Original message -------------- > - > > Would sleep spindles be 14 htz for a 7-year old also? > If not, what might it be and what would you inhibite > in the protocol? > > Leigh ann > > --- karenduncan@... wrote: > > > ~ > > Folks with low SMR levels often have sleep onset > > insomnia. Sleep spindles are at 14 Htz, so > > training SMR up at C4 A2 inhibitng 2-5 and 22-35 can > > do wonders for sleep. Training alpha up the > > parietals can help sleep too. Hope this helps, > > ~ > > > > -------------- Original message -------------- > > > > I have a 42 y.o. male client with long term > > insomnia. He has tried everything. Now, EEG. > > Assessment indicates strong Beta amd HBeta at T3 and > > stronger at T4 and Cz also Alpha front-back > > reversal. His LBeta is low overall with scoop > > shape. He does not present as an ADD - no > > hyperactivity. Wide-band squash at T3T4 haven't > > helped much nor has single channel reduction at T4 > > of 23-30 Hz. > > Suggestions, please? > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2006 Report Share Posted October 22, 2006 Dear Sleepless Before I was diagnosed and was treated I was urinating 5-6 times a night. I worried about prostate and other urinary problems, but those always checked out OK. After I was properly diagnosed and treated the frequent urination stopped. I attribute this to sodium intake. If I fudge on my diet and have too much sodium I go 2 or more times in the night and that is usually accompanied with not being able to sleep well or get back to sleep. If I stay on the no or low sodium diet well, I get up once in the night and can get back to sleep and sleep well. I have never been able to get away without going once. I blame the sodium and not fluid intake for this pattern. It hasn't seemed to matter if I restrict fluids to effect this. So my questions are...., Are you DASHing? and Could your thirst be because of excess sodium in your diet? DASHing may solve the overwhelming thirst, but make sure it's not diabetes. Do you have sleep apnea?, I do and I think many with PA do. Kim, just some thoughts and ideas. Bless you in your journey. <><May we all be DASHing!!!><> Randy-- "kimsstay" <cornerstone@...> wrote: Hello all! if have read excerpts on many posts referring to sleep, andwas thinking maybe it would worthwhile to have a thread on this topic.I personally (after years of being the best possible sleeper ever!)cannot seem to get a solid nights sleep since diagnosed with PA. Ikeep waking up once or twice a night to urinate (no matter that ilimit myself to not drinking fluids late in evening -- which is hardcuz of the overwhelming thirst!!). then it got so if couldn't go backto sleep, waking up early in am, like 2, 4 or 5 o'clock -- which maybe just a symptom of my age (turning 50 on the 28th)...wondering howmany of you are experiencing the same?Sleepless in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2006 Report Share Posted October 22, 2006 Randy, thanks for your response and sharing your situation. it is sooo helpful to me to hear what other people have/are going thru. Yes, i do watch my sodium, i have been dashing since 3/06. I have been tested for diabetes and do not have it. I have also been tested for sleep apnea, and don't have that either. I went to the Mayo in Rochester, and they are very thourough, believe me!! They tested everything but my kitchen sink...Anyway, i am still getting up at least once a night and have a hard time getting back to sleep...plus often wake up way too early. I bet it would be way worse if i wasn't dashing!! Kim (sleepless) in MN -- > > >.....So my questions are...., Are you DASHing? and Could your thirst be because of excess sodium in your diet? DASHing may solve the overwhelming thirst, but make sure it's not diabetes. Do you have sleep apnea?, I do and I think many with PA do. > Kim, just some thoughts and ideas. Bless you in your journey. > <><May we all be DASHing!!!><> > Randy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Noctuia is a classic Sx of PA ususally due to low K and ADH resistance at the kidney tubules. I have had pts who got up 14 x a night. Bud did not tell me till it stopped with spriro and then went away after surgeryl. In a message dated 10/22/06 4:50:40 AM, sheltonlayne@... writes: Dear Sleepless Before I was diagnosed and was treated I was urinating 5-6 times a night. I worried about prostate and other urinary problems, but those always checked out OK. After I was properly diagnosed and treated the frequent urination stopped. I attribute this to sodium intake. If I fudge on my diet and have too much sodium I go 2 or more times in the night and that is usually accompanied with not being able to sleep well or get back to sleep. If I stay on the no or low sodium diet well, I get up once in the night and can get back to sleep and sleep well. I have never been able to get away without going once. I blame the sodium and not fluid intake for this pattern. It hasn't seemed to matter if I restrict fluids to effect this. So my questions are...., Are you DASHing? and Could your thirst be because of excess sodium in your diet? DASHing may solve the overwhelming thirst, but make sure it's not diabetes.  Do you have sleep apnea?, I do and I think many with PA do. Kim, just some thoughts and ideas. Bless you in your journey. <><May we all be DASHing!!!><> Randy -- "kimsstay" <cornerstone@cornersto> wrote: Hello all! if have read excerpts on many posts referring to sleep, and was thinking maybe it would worthwhile to have a thread on this topic. I personally (after years of being the best possible sleeper ever!) cannot seem to get a solid nights sleep since diagnosed with PA. I keep waking up once or twice a night to urinate (no matter that i limit myself to not drinking fluids late in evening -- which is hard cuz of the overwhelming thirst!!). then it got so if couldn't go back to sleep, waking up early in am, like 2, 4 or 5 o'clock -- which may be just a symptom of my age (turning 50 on the 28th)...wondering how many of you are experiencing the same? Sleepless in MN May your pressure be low! C.E. Grim, B.S., M.S., M.D. Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2006 Report Share Posted November 22, 2006 It is not the fact that you, or anyone gets to sleep. It is how much stage 4 sleep that you get per night. Without stage 4 there will be no repairing of the body and therefore constant fatigue. Good luck Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 In a message dated 12/4/06 7:23:46 PM, frand2@... writes: Kim, Sorry to be so late in replying but I am way behind in reading messages AGIAN! I haven't had a solid night's sleep for over 6 1/2 years since all of my problems started. Have you had a sleep study? May your pressure be low! Clarence E. Grim, B.S., M.S., M.D. Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2006 Report Share Posted December 4, 2006 Kim, Sorry to be so late in replying but I am way behind in reading messages AGIAN! I haven't had a solid night's sleep for over 6 1/2 years since all of my problems started. I have been on spiro for 4 yrs and am sleeping better. I wake up several times during the night with abnormal " hot flashes " which sometimes take an hour or more to go away. I take an OTC anithistimine (chlor-trimaton or sometimes benedril) and lorazapam (RX) and that helps a lot. Sometimes I wake up early in the AM around 4 or 5 with one of those hot flashes and can't go back to sleep for a couple of hours. Fortunately I am retired and don't have to get up to go to work because after I do go to sleep, I sleep like I am dead and sometimes have to force myself out of bed at 9 or later. My feet are also very sore and sometimes swollen on the bottom and I notice that they get worse early in the AM even though I am not on them. I sometimes get up to take thyroid hormone when I wake up early then go back to bed. I have noticed that my feet don't hurt much when I get up early but when I go back to bed and get up several hours later, they are hurting much worse. Sometimes when I lay there trying to go back to sleep, I can feel them start to hurt more. I understand there are several hormones that peak around 8 in the AM and wonder if that could be what is causing the pain in my feet. I am going to try another new dr since I have been to several endos and got no help. This dr is a family practitioner but the woman who recommended her says she is a medical detective. That is what we all need -- a doctor that gives a damn! Fran > > Hello all! if have read excerpts on many posts referring to sleep, and > was thinking maybe it would worthwhile to have a thread on this topic. > I personally (after years of being the best possible sleeper ever!) > cannot seem to get a solid nights sleep since diagnosed with PA. I > keep waking up once or twice a night to urinate (no matter that i > limit myself to not drinking fluids late in evening -- which is hard > cuz of the overwhelming thirst!!). then it got so if couldn't go back > to sleep, waking up early in am, like 2, 4 or 5 o'clock -- which may > be just a symptom of my age (turning 50 on the 28th)...wondering how > many of you are experiencing the same? > > Sleepless in MN > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2007 Report Share Posted January 6, 2007 Sara (insomnia queen) If only we lived near each other, I was up till 2 staring at the ceiling... >>>>I was working on conference publicity till 4.35am until AOL pulled the plug and cut me off coz they thought I was spamming - insomnia - it must be an epidemic Totally Manic Mandi - 30 days till C-Day arghhhhhhhhhhhhhhhhhhhhhhhhhhhhh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 We could have done shifts. I think I was awake all the bits you two were asleep! I got up at 2.30 am, how bonkers am I? I wonder what we’ve all got to worry about! On top of the usual worries we’ve got our tribunal coming up on the 25th. Keep your fingers crossed for me please. Sara x Re: Insomnia In a message dated 07/01/2007 11:29:32 GMT Standard Time, rexel45aol writes: Sara (insomnia queen) If only we lived near each other, I was up till 2 staring at the ceiling... >>>>I was working on conference publicity till 4.35am until AOL pulled the plug and cut me off coz they thought I was spamming - insomnia - it must be an epidemic Totally Manic Mandi - 30 days till C-Day arghhhhhhhhhhhhhhhhhhhhhhhhhhhhh -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.410 / Virus Database: 268.16.7/618 - Release Date: 06/01/2007 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.1.410 / Virus Database: 268.16.7/618 - Release Date: 06/01/2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 I have taken Lunesta and it helps me sleep without feeling groggy the next day. I also have no trouble falling asleep the next night after I take it (with Ambien I have a terrible night the next night without it). ~a <lpanz516@...> wrote: I have been unable to fall asleep for a week now. I have tried over the counter PM meds and nothing seems to work. The only thing that has worked is Ativan. But I am reluctant to take it each night. I work full time and really need to go to sleep at a reasonable hour, but my body just won't let me. I have SMA III and am reluctant to take too many different kinds of pills. My Dr. has prescribed me Ambien, but I am not willing to try it as I have heard many negative things about it. I stay up til about 1am watching tv and them give in and take some kind of med of which Ativan is the only one that seems to work. Nothing traumatic or major has gone on with me lately, I excersize as much as I always have throughout the day. I just can't understand why my body can't go into sleep mode. Has this ever happened to you?? Any suggestions in helping me fall asleep and stay asleep throughtout the night? I know that with SMA they say to get a good nights rest to recharge the body, but I haven't been able to do that in a week and I am afraid it is going to make me weaker. What do you think? --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 I have trouble going to sleep because my mind won't shut down from thinking of all I need to do the upcoming day. My doctor put me on Trazodone 100mg, if I'm really got alot going on I take a whole one, if not I cut it in half, or even a fourth and sometimes I take none. I haven't experienced any droggish the next day. Landry's Mom " a B. " <kristina45231@...> wrote: I have taken Lunesta and it helps me sleep without feeling groggy the next day. I also have no trouble falling asleep the next night after I take it (with Ambien I have a terrible night the next night without it). ~a <lpanz516@...> wrote: I have been unable to fall asleep for a week now. I have tried over the counter PM meds and nothing seems to work. The only thing that has worked is Ativan. But I am reluctant to take it each night. I work full time and really need to go to sleep at a reasonable hour, but my body just won't let me. I have SMA III and am reluctant to take too many different kinds of pills. My Dr. has prescribed me Ambien, but I am not willing to try it as I have heard many negative things about it. I stay up til about 1am watching tv and them give in and take some kind of med of which Ativan is the only one that seems to work. Nothing traumatic or major has gone on with me lately, I excersize as much as I always have throughout the day. I just can't understand why my body can't go into sleep mode. Has this ever happened to you?? Any suggestions in helping me fall asleep and stay asleep throughtout the night? I know that with SMA they say to get a good nights rest to recharge the body, but I haven't been able to do that in a week and I am afraid it is going to make me weaker. What do you think? --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 The TV really overstimulates me, but sometimes my own thoughts are also too much. I have set time to turn the TV off. Then reading, meditation, or listening to an audiobook on my MP3 player helps me unwind. Also, I avoid caffeine after 3 pm. I still have restless nights, but only about 3 per month. If the problem persists, I recommend exploring whether there's a physiological cause by doing a sleep study, and/or see if there's an emotional cause; stress, anxiety, depression. I've gotten a fair amount of help when talking with my therapist. Alana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 You might try changing the amount of salt you take in. I find that if I eat too much salt (any kind) I have a hard time going to sleep or can't sleep at all. Salt is a stimulant. Sea salt with its complex of minerals is very important in our diet, but our individual need for it varies. If that doesn't do it for you and the cause is stress, there are wonderful sedative herbs like passionflower, hops, valerian, etc. that relax the body and really help. HerbPharm brand (available in health food stores and coops) has a blend called " Valerian Passionflower Compound " that is good. Also, occasionally I use a product called " Melatonin Sustain " from Jarrow Formulas that helps reduce cortisol levels (caused by stress) and promotes deeper sleep. Melatonin is a hormone secreted by the pineal gland that aids biorhythm regulation. Our body's biorhythm is disturbed by stress, crossing time zones, and changing work shifts. Melatonin also protects us from getting cancer. Production of melatonic declines with age. Hope this helps, R. -------------------------------------------------------------------------------- Insomnia Looking for info on how you handle your insomnia. Drugs, no drugs, foods, supplements, teas, etc? Richyne . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 I have it horribly and do not have sleep apnea. I use Ambien to sleep and still wake up about 3 every morning, sometimes very anxious, with sweats. I take 1 mg Ativan and that helps me get through the night. I'm not convinced that PA is my whole problem. I'm seeing a specialist in Lyme disease later this month. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of carolch58 Hello all, Just wondering if others here suffer from insomnia. I'm finding that it has gotten worse recently. I do have sleep apnoea and use a CPAP machine. I find it very difficult to get to sleep, and then continue to wake up during the night as if I have to be on the alert. It's exhausting - only a couple of hours sleep each night. Anyone aware of any links with PA? Anyone dealt with it successfully? Dr Grim, I finally have an appointment with Dr Stowasser in Brisbane next week. Carol (near Brisbane, Australia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 Yes. Always have. It has gotten much worse since gastric bypass in 2005. I take 1/3rd Ambien at bedtime and another 1/3rd at about 2AM. I still only get about 6 hours per night. ~Dave K (near Seattle, WA) > > Hello all, Just wondering if others here suffer from insomnia. I'm > finding that it has gotten worse recently. I do have sleep apnoea and > use a CPAP machine. I find it very difficult to get to sleep, and then > continue to wake up during the night as if I have to be on the alert. > It's exhausting - only a couple of hours sleep each night. > Anyone aware of any links with PA? > Anyone dealt with it successfully? > Dr Grim, I finally have an appointment with Dr Stowasser in Brisbane > next week. > Carol (near Brisbane, Australia) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2008 Report Share Posted December 4, 2008 A major cause of this is having to get up to pee. How many times do you do this? DASHing will likely help this as will spiro. What drugs are you on? Tell Dr. Stowasser I said hello-have missed him at several meetings in last year. BTW I am in Glasgow today to train 6 UK sites in proper BP measurement. Will inquire about interest in PA in these offices. Leave at noon on Saturday. Staying at the Menzies Hotel in Glasgow. Then will be in France for the week doing other Dr trainings on proper BP. In France only the Drs take the BP it appears. On Dec 4, 2008, at 10:40 PM, carolch58 wrote: > Hello all, Just wondering if others here suffer from insomnia. I'm > finding that it has gotten worse recently. I do have sleep apnoea and > use a CPAP machine. I find it very difficult to get to sleep, and then > continue to wake up during the night as if I have to be on the alert. > It's exhausting - only a couple of hours sleep each night. > Anyone aware of any links with PA? > Anyone dealt with it successfully? > Dr Grim, I finally have an appointment with Dr Stowasser in Brisbane > next week. > Carol (near Brisbane, Australia) > > > May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Good Morning, I joined this group some time ago and this is my first post (life just gets in the way!!!). I have horrible insomnia also, the Dr. at Mayo said my aldosterone was at normal levels. At any rate, my real reason for writing was to ask those of you on Ambien to be very careful. I had 3 seizures in June of this year that left me with a broken leg and broken foot (and possibly a stroke). I have had seizures every time I have gone off Ambien, but never like this. 3 very violent and long seizures (I have epilepsy and have had 2 or 3 grand mal seizures in the last 35 years and these were totally different). A friend has also had a slightly different type of seizure (she's been on it about 2 years now). Dr.s and pharmacists pooh-pooh if you ask them about it, yet their own literature state it can cause seizures ( have had no problems since June - but no Ambien either). I was unaware that it can cause seizures and maybe everyone else already knows. If I can save one person from having to go through this I would like to. Donna G in SD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Good Morning, I joined this group some time ago and this is my first post (life just gets in the way!!!). I have horrible insomnia also, the Dr. at Mayo said my aldosterone was at normal levels. At any rate, my real reason for writing was to ask those of you on Ambien to be very careful. I had 3 seizures in June of this year that left me with a broken leg and broken foot (and possibly a stroke). I have had seizures every time I have gone off Ambien, but never like this. 3 very violent and long seizures (I have epilepsy and have had 2 or 3 grand mal seizures in the last 35 years and these were totally different). A friend has also had a slightly different type of seizure (she's been on it about 2 years now). Dr.s and pharmacists pooh-pooh if you ask them about it, yet their own literature state it can cause seizures ( have had no problems since June - but no Ambien either). I was unaware that it can cause seizures and maybe everyone else already knows. If I can save one person from having to go through this I would like to. Donna G in SD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Lyme disease may be way over diagnosed in many patients so be sure you have looked at all the Dx criteria to match up what you have. What I would recommend you ask is how many folks in your are are + for Lyme but have never had any symptoms? That way you can get an idea of the reliability of a + blood test if it should turn up. I will try to review as well as have not done that in a while. Perhaps there is a Lyme disease site that is reliable? CE Grim MD On Dec 5, 2008, at 1:04 AM, Valarie wrote: > I have it horribly and do not have sleep apnea. I use Ambien to > sleep and > still wake up about 3 every morning, sometimes very anxious, with > sweats. I > take 1 mg Ativan and that helps me get through the night. > > I'm not convinced that PA is my whole problem. I'm seeing a > specialist in > Lyme disease later this month. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of carolch58 > > Hello all, Just wondering if others here suffer from insomnia. I'm > finding that it has gotten worse recently. I do have sleep apnoea and > use a CPAP machine. I find it very difficult to get to sleep, and then > continue to wake up during the night as if I have to be on the alert. > It's exhausting - only a couple of hours sleep each night. > Anyone aware of any links with PA? > Anyone dealt with it successfully? > Dr Grim, I finally have an appointment with Dr Stowasser in Brisbane > next week. > Carol (near Brisbane, Australia) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Thanks much for the info! I was thinking of asking for Ambien again; used it once for about a week several years ago and it really did help with the sleeping problems, but I don't want to take this risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Thanks much for the info! I was thinking of asking for Ambien again; used it once for about a week several years ago and it really did help with the sleeping problems, but I don't want to take this risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Could you explain " this risk " ? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of wallinglindac Thanks much for the info! I was thinking of asking for Ambien again; used it once for about a week several years ago and it really did help with the sleeping problems, but I don't want to take this risk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 I have been talking to my 24 yo niece who has finally been diagnosed after having been sick since she was about 5 yo. She has encouraged me to rule out Lyme. I have an appointment with her doctor's colleague in CA on December 16. This is where I'm going http://www.pacificfrontiermedical.com/ I have been sick since 1985. At that time, I presented with swollen knees, pain all over, severe head aches, and tremendous fatigue. Doc tapped my knee several times. II now has bone-on-bone damage. I was diagnosed with ankylosing spondylitis and took NSAIDS for the next 14 years. I would have killed to get them. In 1989, a doc in Minnesota said she thought I didn't have AS but rather, Lyme. The test, however, came back negative. I've now learned that that doesn't mean a lot. The only test that has ever come back abnormal is aldosterone/renin, but my ARR has never been terribly high. From 1972 on, we spent quite a bit of time in eastern Oklahoma. We often tromped through the woods. My father-in-law used to dip our dog in something before we set off to return home. Big bloody blobs (engorged ticks) fell off the dog all the way home. We also did a lot of camping in Wyoming during the 70's and early 80's. From 1985 on, it was all I could do to raise my children. I couldn't hold a job and certainly, did not have the energy to go camping anymore. Anyway, I'm going to have extensive testing for Lyme and try to rule that out. I'll let you know what develops. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Lyme disease may be way over diagnosed in many patients so be sure you have looked at all the Dx criteria to match up what you have. What I would recommend you ask is how many folks in your are are + for Lyme but have never had any symptoms? That way you can get an idea of the reliability of a + blood test if it should turn up. I will try to review as well as have not done that in a while. Perhaps there is a Lyme disease site that is reliable? CE Grim MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 I have been talking to my 24 yo niece who has finally been diagnosed after having been sick since she was about 5 yo. She has encouraged me to rule out Lyme. I have an appointment with her doctor's colleague in CA on December 16. This is where I'm going http://www.pacificfrontiermedical.com/ I have been sick since 1985. At that time, I presented with swollen knees, pain all over, severe head aches, and tremendous fatigue. Doc tapped my knee several times. II now has bone-on-bone damage. I was diagnosed with ankylosing spondylitis and took NSAIDS for the next 14 years. I would have killed to get them. In 1989, a doc in Minnesota said she thought I didn't have AS but rather, Lyme. The test, however, came back negative. I've now learned that that doesn't mean a lot. The only test that has ever come back abnormal is aldosterone/renin, but my ARR has never been terribly high. From 1972 on, we spent quite a bit of time in eastern Oklahoma. We often tromped through the woods. My father-in-law used to dip our dog in something before we set off to return home. Big bloody blobs (engorged ticks) fell off the dog all the way home. We also did a lot of camping in Wyoming during the 70's and early 80's. From 1985 on, it was all I could do to raise my children. I couldn't hold a job and certainly, did not have the energy to go camping anymore. Anyway, I'm going to have extensive testing for Lyme and try to rule that out. I'll let you know what develops. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Lyme disease may be way over diagnosed in many patients so be sure you have looked at all the Dx criteria to match up what you have. What I would recommend you ask is how many folks in your are are + for Lyme but have never had any symptoms? That way you can get an idea of the reliability of a + blood test if it should turn up. I will try to review as well as have not done that in a while. Perhaps there is a Lyme disease site that is reliable? CE Grim MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 I notice I sleep better when I take an extra 12.5 mgs/spiro daily. You can give it a try. When I take 50 mgs of spiro daily(in two 25mgs doses), my bp remains around 120/80 but I tend to get up to go to the bathroom at least once or twice at night. Once I go to the bathroom then I can't sleep and have to stay up all night. Increasing the spiro by 1/2 pills twice a day really helps in not going to the bathroom at night and also I tend to actually sleep through the night. Pehaps its the aldosterone that causes it and by taking the extra 1/2 spiro, it is blocking the effects of spiro. Dr. Grim, does this make any sense? Farah On Fri, Dec 5, 2008 at 9:06 PM, Valarie <val@...> wrote: > Could you explain " this risk " ? > > > Val > > From: hyperaldosteronism <hyperaldosteronism%40> > [mailto:hyperaldosteronism <hyperaldosteronism%40>\ ] > On Behalf Of wallinglindac > > Thanks much for the info! I was thinking of asking for Ambien again; > used it once for about a week several years ago and it really did help > with the sleeping problems, but I don't want to take this risk. > > Quote Link to comment Share on other sites More sharing options...
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