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In a message dated 3/4/2005 7:21:56 P.M. Eastern Standard Time,

rn4premies@... writes:

Although we have pulled her out of school and her tutor started today, it

went awesome. had her port place on Wed, it went well, it was a very

hard decision for us to make. Lots of heartache and tears went into our

decision, but she has such a hard time with the iv's and she was getting to be

a

tough stick, I couldn't put her through it anymore. Her first infusion with

the port is on Wed, I'll let you know if it was worth it than.

Glad to hear it went well. Hope it works out better for her!

Janet, Mom to Brittany, CVID, age 14

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Thanks Dale,

I took him in and we saw a PA and she agreed he wasn't going to get over it

on his own. Turned out he has two ear infections too. yuck. So ear drops

and Augmentin should help. On the way out we ran into our ped and he asked

what we were doing there, I told him and then told him about Nick's IVIG

yesterday and how they couldn't get an IV started. I said that we are

still fighting for the port, and as of last month, I thought he was on my

side too. Today tho he says, does Nick even really need IVIG? I am still

wondering if my mouth hit the floor. I said I think so and that his

infusion nurse is asking the immuno again for a port in . So the

ped would probably be getting a phone call next week about it. Since our

immuno is not in out town, the port would have to be placed by a local

surgeon and set up thru the peds office.

Amy,

mom to , 2 years old, CVID, asthma, GERD, on prophalatic abx

(rotating Septra and Amoxicillin) and IVIG (Carimune NF) every 4 weeks,

flovent, xopenex, albuterol and claritin. Allergic to milk, soy and latex..

among other things. Visit Nick's Caringbridge site at

http://www3.caringbridge.org/ne/nicholasb/

Re: Sinus infection

>

> from Dale, Mom to Katy, CVID, age 20

>

> Amy, I would certainly ask for an antibiotic. We don't avoid

> antibiotics with Katy. If she's got all the signs of an infection -- we

> start antibiotics agressively. IVIG doesn't replace the need for them

> -- just makes it possible for her to fight a lot of her own battles

> without ever needing them.

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from Dale, Mom to Katy, CVID< age 20

Amy, just a thought. Have you given your pediatrician the IDF stuff --

Patient and Family Handbook, Physician's guide, etc. Also, there's a

newsletter for physicians called Clinical Focus. I would make sure he's

getting those things because your pediatrician can be SO helpful if they

are working on your behalf AND understand what they are dealing with.

The IDF number is 1--800-296-4433.

In His service,

Dale

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Hi Amy,

I saw your post and wanted to reply while I had a moment, even with on

IVIG we still get abx for infections, especially sinus infections, they tend to

get nasty with her. She is also treated for 21 days for each one. She is not

getting as infected as before IVIG but still getting some. Although we have

pulled her out of school and her tutor started today, it went awesome.

had her port place on Wed, it went well, it was a very hard decision for us to

make. Lots of heartache and tears went into our decision, but she has such a

hard time with the iv's and she was getting to be a tough stick, I couldn't put

her through it anymore. Her first infusion with the port is on Wed, I'll let you

know if it was worth it than. I hope feels better soon.

, mom to - CVID, asthma, GERD

Re: Sinus infection

>

> from Dale, Mom to Katy, CVID, age 20

>

> Amy, I would certainly ask for an antibiotic. We don't avoid

> antibiotics with Katy. If she's got all the signs of an infection -- we

> start antibiotics agressively. IVIG doesn't replace the need for them

> -- just makes it possible for her to fight a lot of her own battles

> without ever needing them.

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe

-unsubscribe@groups<mailto:-unsubscribe@groups>.

To search group archives go to:

/messages<PedP\

ID/messages>

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Guest guest

,

Good luck on Wed, please keep us updated on how does with her port.

Hugs..

Amy,

mom to , 2 years old, CVID, asthma, GERD, on prophalatic abx

(rotating Septra and Amoxicillin) and IVIG (Carimune NF) every 4 weeks,

flovent, xopenex, albuterol and claritin. Allergic to milk, soy and latex..

among other things. Visit Nick's Caringbridge site at

http://www3.caringbridge.org/ne/nicholasb/

Re: Sinus infection

Her first infusion with the port is on Wed, I'll let you know if it was

worth it than. I hope feels better soon.

> , mom to - CVID, asthma, GERD

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  • 10 months later...

I'm a big fan of the Grossan Irrigator after years of sinus infections. I had

a CAT scan of the sinus area which was bad and was on the waiting list for

surgery. Bought this device and a CAT scan a month later showed all clear.

I do get an occasional problem but the Grossan clears them up quickly.

http://www.grossan.com/hp.html

(no relationship to the company etc).

With kindest regards,

Annette

---------------------------------

Messenger NEW - crystal clear PC to PC calling worldwide with voicemail

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Hi Annette - thanks for the endorsement. I have a Grossan Irrigator that was

generously

given to me by an online friend and have been too tired or lazy to go to the

trouble to use

it very much. Think I've used it maybe a dozen times in a year. I feel

terrible about that.

Thanks to your email, I'm going to give it a real go -- twice a day for two

weeks (to start)

and see what happens. I've had a real low grade infection for probably 20

years, CFIDS for

8...

Thanks,

Dan

>

> I'm a big fan of the Grossan Irrigator after years of sinus infections. I

had a CAT scan of

the sinus area which was bad and was on the waiting list for surgery. Bought

this device

and a CAT scan a month later showed all clear.

>

> I do get an occasional problem but the Grossan clears them up quickly.

>

> http://www.grossan.com/hp.html

>

> (no relationship to the company etc).

>

> With kindest regards,

> Annette

>

>

>

> ---------------------------------

> Messenger NEW - crystal clear PC to PC calling worldwide with

voicemail

>

>

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I know this may sound screwy. Make a strong infusion of Greek oregano.

Then, soak your feet in it. Oreganum vulgare is helpful with some kinds of

sinus infections. Tea Tree oil is helpful if there is a fungal issue involved.

Hope this helps

mjh

In a message dated 1/13/2006 11:01:54 PM Eastern Standard Time,

orchidwish@... writes:

Oh, yes, I've been dairy-free for about a year. And thanks, several

of you for referring to the Grossman irrigator - have used that with

sea salt also. Usually good but not this time.

>many people with chronic sinus infection find they get better on a

>completely dairy free diet. Have you tried that?

>Tove

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

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many people with chronic sinus infection find they get better on a

completely dairy free diet. Have you tried that?

Tove

for two weeks (to start)

> and see what happens. I've had a real low grade infection for

probably 20 years, CFIDS for

> 8...

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  • 3 months later...
Guest guest

In a message dated 4/25/2006 9:20:50 AM Pacific Daylight Time,

nanlloyd@... writes:

It looks like Omnicef and prednisone may have

taken care of it finally. If it hasn't, they may retest her immune

system. They are constantly watching her.

Hope he feels better soon.

Thanks, . I'm glad that Ashton has finally kicked that sinus infection!!

Sandi

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Guest guest

Lloyd wrote:

> I am tired.

It's hard to feel like you are doing this all over again. But, maybe

she's just run down. God will give you the strength you need for

whatever is ahead -- I promise. He promises to never give us more than

we can handle with His help!

In His service,

dale

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  • 7 months later...

I remember years ago when I could not get rid of a sinus infection, a nurse told

me to take beta carotene~she recommended taking three 25,000 IU capsules a

couple of times a day for the first few days, then gradually decreasing it to

one capsule per day for a bit more. I had been on three rounds of antibiotics

without success, and this finally did the trick. The other bit of advice I

received was to sit in the sun for 20-30 minutes each day. Of course this most

likely translates to getting more Vitamin D, which we are hearing about more and

more lately.

Are you using saline solution spray in your nose? This also helps me a lot now

and I regularly flush my sinuses before I shower, then flush them again

afterwards to get rid of as much stuffiness as possible.

in La Selva Beach CA

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,

Do you think you could maybe have an unaddressed fungal infection in your

sinuses? I've read they are more common than we think.

Schmidt <schmidtmba@...> wrote:

I remember years ago when I could not get rid of a sinus infection, a

nurse told me to take beta carotene~she recommended taking three 25,000 IU

capsules a couple of times a day for the first few days, then gradually

decreasing it to one capsule per day for a bit more. I had been on three rounds

of antibiotics without success, and this finally did the trick. The other bit of

advice I received was to sit in the sun for 20-30 minutes each day. Of course

this most likely translates to getting more Vitamin D, which we are hearing

about more and more lately.

Are you using saline solution spray in your nose? This also helps me a lot now

and I regularly flush my sinuses before I shower, then flush them again

afterwards to get rid of as much stuffiness as possible.

in La Selva Beach CA

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Edy: Who knows what is going on. What do you do to address fungal issues in

sinuses? I use Nasonex for allergies on a regular basis also. My house is dusty

and most likely has some mold since we live on the coast as you do. Are you

having some sunny days lately? The mornings have been cold but half my house is

sunny and warm~I sit in the dining room window and soak it up like an old dog or

cat (our cats love it, too). Even our son found he likes sitting in the sunny

window. I have no money to visit doctors anymore as we are helping our son with

rent and expenses. I tried an allergist earlier this year and he was a

joke~just reviewed what I was doing and said okay. My regular MD is better than

he is, and it cost my school $328 (we pay our doctor visits) for his lack of

suggestions. What a disappointment!! I learn more from everyone on this

website!

in La Selva Beach CA

Re: RE: Sinus Infection

,

Do you think you could maybe have an unaddressed fungal infection in your

sinuses? I've read they are more common than we think.

Schmidt <schmidtmba@...> wrote:

I remember years ago when I could not get rid of a sinus infection, a nurse

told me to take beta carotene~she recommended taking three 25,000 IU capsules a

couple of times a day for the first few days, then gradually decreasing it to

one capsule per day for a bit more. I had been on three rounds of antibiotics

without success, and this finally did the trick. The other bit of advice I

received was to sit in the sun for 20-30 minutes each day. Of course this most

likely translates to getting more Vitamin D, which we are hearing about more and

more lately.

Are you using saline solution spray in your nose? This also helps me a lot now

and I regularly flush my sinuses before I shower, then flush them again

afterwards to get rid of as much stuffiness as possible.

in La Selva Beach CA

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>What do you do to address fungal issues in sinuses?

I've had a few of these. Diflucan has worked like a charm for me, and in a day

or two. At

least then i knew it was a sinus infection.

Unfortunately, when i stopped the Diflucan, the infection came right back. Once

I was on

Diflucan for a whole six months before I could stop the drug.

The best long-term strategy for me has been to keep yeast levels in the gut

really low. If

they get too high, they move into the sinuses (and even the inner ear).

This has been one of my worst acute CFS problems. it has made me extremely

sleepy and

exhausted. once it triggered a horrible form of vertigo called bppv. I hope I

don't get that

one again, and so am motivated to stay on the anti-yeast plan.

unfortunately, some kinds of yeast are Diflucan resistant, of course.

The other treatment I've found useful for any sort of sinus infection is

colloidal silver nasal

spray.

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For fungal/yeast sinus infections, I find sniffing Tea Tree Oil helpful

along with taking oregano and drinking long brewed Pau D'Arco tea plus eating

lots of homemade PLAIN yoghurt.. And, yes, minimizing carbs in the diet which

encourages growth..

mjh

" The Basil Book "

_http://foxhillfarm.us/FireBasil/_ (http://foxhillfarm.us/FireBasil/)

Posted by: " jennyishjoanne " _jennyishjoanne@... _

(mailto:jennyishjoanne@...?Subject= Re:%20Sinus%20Infection)

_jennyishjoanne _

(jennyishjoanne)

Tue Dec 5, 2006 11:14 pm (PST)

>What do you do to address fungal issues in sinuses?

I've had a few of these. Diflucan has worked like a charm for me, and in a

day or two. At

least then i knew it was a sinus infection.

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  • 1 year later...

My DS used MSM, a form of sulphur - bonus: he no longer snores! It is safe for

children as the LD50 is the same as water! I bought a kg for $60 and distributed

it among the family.

It is great if you are suffering the lactic acid effects of excessive exercise.

there are many other good effects too.

" The minimum effective dosage of supplemental oral MSM is 750 - 1,500 mg per

day:

 The optimal dosage of supplemental MSM is presently regarded as 2,000 - 5,000

mg per day.

 The usual therapeutic dosage of supplemental MSM for the alleviation of Pain is

2,250 mg per day.

Toxic Dosage

Doses of up to 30,000 mg (30 grams) of MSM have been used on a daily basis

without adverse effects occurring.

“Waiting Period”

Most people who use supplemental MSM do not notice any therapeutic effects until

they have used MSM on a daily basis for several days.  Some people do not

experience therapeutic effects until MSM has been used daily for several weeks. "

 

Maracuja

 

From: Jill Ralph <jralph91@...>

Subject: sinus infection

Vaccinations

Date: Wednesday, November 19, 2008, 7:28 PM

Hello

 

My 4 yr old son has had a sinus infection for quiet sometime and we are having a

terrible time getting rid of it.  He was on antibiotics but they seemed to make

things worse and gave him a stomach ache.  I am running a vaporizor while he is

sleeping. 

 

If anyone has any suggestions I would love some help.

Thanks

Jill

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Hi, Jill The antibiotics can make it worse, not just from the side effects like

the stomach ache. If the reason behind the sinus infection is not a bacteria,

the antibiotics will have no effect, except the symptoms might temporarily

subside then come back. Then you are stuck in the antibiotic cycle.

You need to find the cause. I would look first to diet. Does your son drink

milk? Are there any mucus producing foods he eats (oranges/citrus, peanut

butter, wheat, bananas, fried foods)?

It could be carpeting in the house that might not be a problem when he's outside

more, but during the winter it is. Where do you live?

Winnie

sinus infection

Vaccinations

> Hello

>

> My 4 yr old son has had a sinus infection for quiet sometime and

> we are having a terrible time getting rid of it. He was on

> antibiotics but they seemed to make things worse and gave him a

> stomach ache. I am running a vaporizor while he is sleeping.

>

> If anyone has any suggestions I would love some help.

> Thanks

> Jill

>

>

>

>

>

>

>

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Jill,

When my son was about 4, he had such a severe sinus infection and

blockage that they were talking sinus surgery to clean him out. I

became very nervous about that and started looking for other answers,

I highly reccommend and book called " Sinus Survival " by Ivker. Lots

of good info. Basically the oral antibiotics will never get into the

sinus cavity because there is no blood flow there. If your son is

taking any antihistamines, you need to stop - they make things worse

by thickening the mucous. The mucous then cannot drain and becomes a

breeding ground for bacteria and fungi. He needs decongestants and

guaifinesen (sp? - an expectorant and mucous thinner like in cough

syrups). See your doctor and discuss this option with him. Also, our

doctor will prescribe a compounded spray that contains and

antifungal, antibiotic, and steroid. Works great!!! I have been

dealing with a recurring sinus infection myself recently and this

cleared it up in three days! The label says CLIN/BETA/CLO nasal

spray. Email me directly and I will get the exact composition. Also,

most sinus infections are fungal related they are finding out. Be

careful with the humidifier and make sure it is thoroughly cleaned

daily to prevent fungal growth there.

Hope this helps!

C.

- In Vaccinations , wharrison@... wrote:

>

> Hi, Jill The antibiotics can make it worse, not just from the side

effects like the stomach ache. If the reason behind the sinus

infection is not a bacteria, the antibiotics will have no effect,

except the symptoms might temporarily subside then come back. Then

you are stuck in the antibiotic cycle.

>

> You need to find the cause. I would look first to diet. Does your

son drink milk? Are there any mucus producing foods he eats

(oranges/citrus, peanut butter, wheat, bananas, fried foods)?

>

> It could be carpeting in the house that might not be a problem when

he's outside more, but during the winter it is. Where do you live?

>

> Winnie

>

> sinus infection

> Vaccinations

>

> > Hello

> >

> > My 4 yr old son has had a sinus infection for quiet sometime and

> > we are having a terrible time getting rid of it. He was on

> > antibiotics but they seemed to make things worse and gave him a

> > stomach ache. I am running a vaporizor while he is sleeping.

> >

> > If anyone has any suggestions I would love some help.

> > Thanks

> > Jill

> >

> >

> >

> >

> >

> >

> >

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I have a friend whom I have known for 20 years who has been on and off steroids,

antifungals and antibiotics and has had " sinus surgery " 4 times in that time. It

was bi-lateral antral lavage, a septoplasty and the turbinates were trimmed the

first time. Now she can have no further surgery. She can't spray anything in her

nose because the skin is so thin it breaks. Sneezing also breaks the skin. Her

own dr is heading for the same result - she has had 4 " surgeries " too and lives

on medications to suppress the symptoms. Every time they finish the steroids,

they are left vulnerable to infection.

 

I would not reccommend steroids, antifungals and antibiotics for anyone, and

especially not for  children, as it is setting them up for chronicity.

I had one surgery nearly 30 years ago, then polled among friends and family as

to who had been cured by the allopathic regimen. Out of eleven others, not one

had been cured. Certainly a good long-term money spinner for the medical

profession though. 

Maracuja

 

>

> Hi, Jill The antibiotics can make it worse, not just from the side

effects like the stomach ache. If the reason behind the sinus

infection is not a bacteria, the antibiotics will have no effect,

except the symptoms might temporarily subside then come back. Then

you are stuck in the antibiotic cycle.

>

> You need to find the cause. I would look first to diet. Does your

son drink milk? Are there any mucus producing foods he eats

(oranges/citrus, peanut butter, wheat, bananas, fried foods)?

>

> It could be carpeting in the house that might not be a problem when

he's outside more, but during the winter it is. Where do you live?

>

> Winnie

>

> sinus infection

> Vaccinations

>

> > Hello

> >

> > My 4 yr old son has had a sinus infection for quiet sometime and

> > we are having a terrible time getting rid of it. He was on

> > antibiotics but they seemed to make things worse and gave him a

> > stomach ache. I am running a vaporizor while he is sleeping.

> >

> > If anyone has any suggestions I would love some help.

> > Thanks

> > Jill

> >

> >

> >

> >

> >

> >

> >

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Cut all dairy out of his diet and get him to a chiropractor. :)

http://www.icpa4kids.org/research/chiropractic/sinus.htm

On Wed, Nov 19, 2008 at 8:28 PM, Jill Ralph <jralph91@...> wrote:

> Hello

>

> My 4 yr old son has had a sinus infection for quiet sometime and we are

> having a terrible time getting rid of it. He was on antibiotics but they

> seemed to make things worse and gave him a stomach ache. I am running a

> vaporizor while he is sleeping.

>

> If anyone has any suggestions I would love some help.

> Thanks

> Jill

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Winnie

Pretty muych all the foods you mentioned are his favorite, except the fried.. 

We live in Illinois and just got through with harvest season and the thought

that harvesting beans and corn, dust may be in the air has crossed my mind.  He

also had sinus infection this time last year so it would make sense. 

 

Now we just need to get rid of it.  

Thanks for the info!

Jill

From: wharrison@... <wharrison@...>

Subject: Re: sinus infection

Vaccinations

Date: Thursday, November 20, 2008, 5:13 PM

Hi, Jill The antibiotics can make it worse, not just from the side effects like

the stomach ache. If the reason behind the sinus infection is not a bacteria,

the antibiotics will have no effect, except the symptoms might temporarily

subside then come back. Then you are stuck in the antibiotic cycle.

You need to find the cause. I would look first to diet. Does your son drink

milk? Are there any mucus producing foods he eats (oranges/citrus, peanut

butter, wheat, bananas, fried foods)?

It could be carpeting in the house that might not be a problem when he's outside

more, but during the winter it is. Where do you live?

Winnie

sinus infection

Vaccinations

> Hello

>

> My 4 yr old son has had a sinus infection for quiet sometime and

> we are having a terrible time getting rid of it. He was on

> antibiotics but they seemed to make things worse and gave him a

> stomach ache. I am running a vaporizor while he is sleeping.

>

> If anyone has any suggestions I would love some help.

> Thanks

> Jill

>

>

>

>

>

>

>

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Hello Natasha,

Sorry I didn't explain. MSM is methylsulphonylmethane which is an endogenous

form of sulphur. (Produced in the body.) Highly bioavailable, Vitamin C helps

conversion from MSM to sulphur.

It's similar to DMSO (dimethyl sulphide) & is the active therapeutic part of

DMSO (often used for alt cancer therapy.)

The body's content declines with aging.

Here are a few other things it's good for.

Inhibits cross linking of proteins (like collagen)

Improves circulation

Alleviates hangovers (so take it before well child visits - just kidding! LOL!)

Constipation, heartburn, roundworms - prevents them adhering to intestinal wall.

Eyedrops reduce pressure in glaucoma patients.

Food allergies, cancer prevention, breast, colon, common cold, detrimental fungi

on skin when topically applied, inhibits protozoa Entamoeba hystolica esp when

used with cats claw. Also Giardia lamblia & Trichomonas. May help prevent flu,

prevents & treats SLE form of lupus, reduces toxic lactic acid after exercise,

Alleviates bursitis, carpal tunnel syndrome, enhances cartilage health, Lots

more. I'll make up a doc to send you if you want.

It contributes its sulphur component to methionine and some (less) to cysteine,

also to chondroiton sulphate and IgG.

Best of all it is found in raw fruits & veg (esp cruciferous) seafoods meat &

milk. Most people don't get enough as it degrades & is highly susceptible to

loss during processing and few people eat primarily raw food.

Doses up to 30.000mg have been used on a daily basis without adverse effects.

Therapeutic effects aren't usually noticed for a few days.

It can be bought in capsule tablet or loose powder form. Also lotion & eyedrops.

You can make your own nasal spray or use it orally.

From: Jill Ralph <jralph91@...>

Subject: sinus infection

Vaccinations

Date: Wednesday, November 19, 2008, 7:28 PM

Hello

 

My 4 yr old son has had a sinus infection for quiet sometime and we are having

a terrible time getting rid of it.  He was on antibiotics but they seemed to

make things worse and gave him a stomach ache.  I am running a vaporizor while

he is sleeping. 

 

If anyone has any suggestions I would love some help.

Thanks

Jill

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That does make sense about the harvest season.

Some say to look at the favorite foods, or those they crave, for an allergy to

them. Doris Rapp has a great book out regarding environmental allergies called

Is This Your Child? Here's a link to her webpage:

http://www.drrapp.com/yourchild.htm

I actually went to an environmental med doc listed in the back of her book, one

of just a few back in 1993. I learned a lot--didn't like the solution (food

drops before each meal), but I highly recommend it for the info. There are other

ways to get back in balance.

One thing I took from it was that milk is especially dangerous to some children.

If you take them off of it, then put them back on to test to see if they have a

reaction, there can be a violent one. Even knowing this, I took my child off,

then put him back on and FORGOT because he became so out of control I couldn't

focus. He ended up with a severe ear infection/wheezing attack--drove me nuts

for three days, no sleep, spinning in circles. So, be cautious. You should

eliminate dairy products entirely, and if you can't eliminate the others, at

least don't give them every day.

Good luck!

Winnie

sinus infection

> Vaccinations

>

> > Hello

> >

> > My 4 yr old son has had a sinus infection for quiet sometime

> and

> > we are having a terrible time getting rid of it. He was on

> > antibiotics but they seemed to make things worse and gave him

> a

> > stomach ache. I am running a vaporizor while he is sleeping.

> >

> > If anyone has any suggestions I would love some help.

> > Thanks

> > Jill

> >

> >

> >

> >

> >

> >

> >

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