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Hi Curious, This should get you started:

DH = Dear husband, darling husband

FYI = For Your information

BTW = By the Way

IMHO = In my Humble/Honest Opinion

LOL = laughing out loud

ROFLMAO = Rolling on the floor laughing my a** off

.

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Oh and I should add these as you'll see them here often:

LBWO = Lower Body Workout

UBWO = Upper Body Workout

BMI = Body mass Index

BMR = Basal metabolic Rate

HIIT = High Intensity Interval training

Udo's = a type of oil (added since someone thought it meant you do's)

.

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dmderosa2k@... writes: I was beginning to think it meant dumb husband

This is an optional usage!! Yes this is a fabulous group of people. Best support group around. Enjoy it! .

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My first encounter with the abbreviation, I thought they were referring to their significant other as a "dead horse". LOL (that = laugh out load)

Cheryl C.

---------------------------------------------------------

>Hhehe my thought was "Damn Husband" I was like wow why is everyone talking about their 'Damn Husbands" I'm a newlywed and i hope I don't ever feel that way :)>

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My first encounter with the abbreviation, I thought they were referring to their significant other as a "dead horse". LOL (that = laugh out load)

Cheryl C.

---------------------------------------------------------

>Hhehe my thought was "Damn Husband" I was like wow why is everyone talking about their 'Damn Husbands" I'm a newlywed and i hope I don't ever feel that way :)>

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-At first I thought DH meant " Dumb Husband " .... of course I still

mean it that way sometimes! LOL!

Handy

-- In bodyforlife@y..., " Cheryl Cundick " <cdautah1@h...> wrote:

> My first encounter with the abbreviation, I thought they were

referring to their significant other as a " dead horse " . LOL (that =

laugh out load)

>

> Cheryl C.

> ---------------------------------------------------------

> >Hhehe my thought was " Damn Husband " I was like wow why is

everyone

> talking about their 'Damn Husbands " I'm a newlywed and i hope I

> don't ever feel that way :)>

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So not only are you a great success model, you are real funny too. Made me laugh out loud. Er...almost afraid to ask, why did you think Dead Horse?!!!!!

.

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So not only are you a great success model, you are real funny too. Made me laugh out loud. Er...almost afraid to ask, why did you think Dead Horse?!!!!!

.

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I was beginning to think it meant dumb husband

...

sometimes it can depending on the moment.....LOL

sorry guys

C

__________________________________________________

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I was beginning to think it meant dumb husband

...

sometimes it can depending on the moment.....LOL

sorry guys

C

__________________________________________________

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  • 1 year later...

bless8:

I used to live in Ardmore!! What hospital do you guys go to?

We use Medical City in Dallas. Supposed to be the best around, it was even

in the " D " magazine as one of the best hospitals in Texas. All the kids docs

even showed up on their list of best docs too.

Lynne

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Hi, Lynne,

We live in Stillwater, OK. About 4 hrs North of

Dallas. My brother's family lives in Midlothian,

actually near to Waxahachie(sp?).

--- Bejenski@... wrote:

> This is Lynne, just curious to know if anyone lives

> in the Dallas, TX area?

> Thanks,

> Lynne

>

=====

Fisher

mom of Calvin, 18 mos., XLA

__________________________________________________

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Hi Lynne,

Well, if we go to the ER, then we head to " Stillwater

Medical Center " :-). We had previously done our

hematology with St. Francis in Tulsa(their PICU is

super-duper and the head doctor there Barton was

super sharp AND personable), but are now doing our

hematology at Oklahoma Children's Hospital in OKC.

The hems in Tulsa were more " oncology " whereas in OKC

they deal with blood diseases. That is where OU's Med.

School is located. Our doctor there is Dr. Joan

Parkhurst---she is really great and is the one that

helped us get down to the bottom of the problem.

Our immuno is Dr. Wesley Burks at Arkansas Children's

Hospital in Little Rock. We have been there only

once(our diagnosis is new) and are to go back for our

second infusion at the end of Sept.

Dallas was definitely on the list of choices for us.

Given broader considerations, Little Rock seemed the

best place to start.

OK, now what is the " D " magazine??:-)

--- Bejenski@... wrote:

> bless8:

> I used to live in Ardmore!! What hospital do you

> guys go to?

> We use Medical City in Dallas. Supposed to be the

> best around, it was even

> in the " D " magazine as one of the best hospitals in

> Texas. All the kids docs

> even showed up on their list of best docs too.

> Lynne

>

__________________________________________________

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Dear Lynne,

I live in Houston TX. About 10 min. from Spring TX. I wish I lived closer to

ya. It would

be nice to have someone in the group live close by huh. I hope all is well

with yall.

Take Care, Christy Carson's Mom

Carson: Selective IgA Deficiency,Asthma, ADHD,Heart Murmur,

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:-)

So... that's " D " as in " duh " :-)

--- Bejenski@... wrote:

> :

> " D " magazine is Dallas' magazine.

>

> lynne

>

=====

Fisher

mom of Calvin, 18 mos., XLA

__________________________________________________

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  • 1 year later...
Guest guest

Welcome to the group . It is so neat that you are a sibling and joining

the discussion. Just for the record, as a child my son (age 9, ds) used

to fall asleep in the car all the time. Now he almost never does, unless it is

late at night or a really long car ride.

Glad to have you as part of the group!

R.

curious

Hi,

My name is and I have a 22 year old brother with Down

Syndrome. I joined this list a while ago, but have never posted and

often don't get a chance to read the messages. I am in college

which keeps me pretty busy.

I was curious about people with DS and falling asleep in the

car. My brother does a lot, like 2 minutes into the trip. I was

reading A Special Kind of Hero about Burke and it said that he

falls asleep in the car really fast too. I was reading another book

too...maybe Expecting Adam, but I'm not sure...and it said their son

with DS fell asleep in the car too. I guess I always just thought

it was a quirk of ' but was wondering if maybe it is a wider

trend? for no other reason than I thought it was interesting...

:)

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

------------------------------------------------------------------------------

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How I wish Lyndara would fall asleep in the car. She rarely falls asleep in

the car. The only time she sleeps in the car is if we are traveling at night

and I have given her benadryl to help start the process. Patty

curious

Hi,

My name is and I have a 22 year old brother with Down

Syndrome. I joined this list a while ago, but have never posted and

often don't get a chance to read the messages. I am in college

which keeps me pretty busy.

I was curious about people with DS and falling asleep in the

car. My brother does a lot, like 2 minutes into the trip. I was

reading A Special Kind of Hero about Burke and it said that he

falls asleep in the car really fast too. I was reading another book

too...maybe Expecting Adam, but I'm not sure...and it said their son

with DS fell asleep in the car too. I guess I always just thought

it was a quirk of ' but was wondering if maybe it is a wider

trend? for no other reason than I thought it was interesting...

:)

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

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  • 1 year later...
  • 4 months later...
Guest guest

I guess I would trust the instinct of your OB/GYN. What would it

hurt to ask for another workup? If you'd feel better about it, have

your OB/GYN write a letter of request to your Pulmo/Immuno for it.

Then it would be from one concerned professional to another and you

wouldn't get stuck in the middle feeling like a nut case.

From what you've said, there is obviously something not right. I

hope you can get to the bottom of it -- and quickly!

-Rogena (Mom to 4 boys, including Cole -Partial Selective IgA Def,

GERD, possible Celiac)

>

> so, again with the beating an idea to death with a stick.

> ok, so 3 of my 4 kids have CVID. Since the onset of asthma last

yr, I

> have been sick sick sick. Although I have never been overly

healthy,

> this last year has been really bad, and a lot of what is going on

with

> me is not explainable(translation:I am beginning to feel crazy).

> So anyway, since my pulmo also does immuno, once he got the kids

> history, he thought for sure I had some kind of immune def. He ran

a

> fairly intense panel for Ig's, complements, etc. Looking at that, I

> seem ok by the numbers. We have not done any study to see about

> vaccination titers, I dont even know if they do that with adults

(shows

> what I know).

> So, the kids inf dis drs have asked for family histories when we

first

> started seeing them, and they thought maybe I had some immune

problem,

> I told them I had been worked up, they thought it warranted further

> investigation. Pulmo says.........I have worked you up down and

> sideways, I dont know what else I can test. So I dropped it.

> Interestingly, I had to go for my yearly GYN appt today, and my GYN

> has NO idea about the kids health issues at all. We were talking

about

> some other stuff, and I asked him something about yeast infections

(as

> in, I get one every month before I start, every time I use an

> antibiotic, even for just a few days, every time I use steroids,

etc)

> and that recently I also had a horrendous case of thrush in the

mouth,

> all over, even the roof of my mouth, and down my throat.....7 days

of

> 200 mgs diflucan, and I am already in the midst of another yeast

> infection. The over the counter creams do nothing for me, unless I

use

> like 3 in a row.

> He stares at my charts a minute, and says....... " HEY, is there

anybody

> in your immediate family with an immune problem of any kind? like

an

> immune deficiency? "

> So, what should I make of that? Should I leave this issue dropped,

or

> keep pushing it? I dont WANT any immune disorder, but it seems

like it

> keeps coming back up, from even other drs.

> My GYN, after telling him the kids have CVID, said to get myself

to an

> immuno, pronto and get checked out......I told him I have been

worked

> up, and he says..........eh, something is missing there. You arent

> right with this.......

> So I just dont know what to think. this GYN is a good dr, he is the

> one who found my bladder disease......incidentally, he also

figured

> out today that the left side pain I thought might be another cyst,

is

> my colon and about fell off his chair when I told him its been

going

> on for a year............I KNOW I know.........so he seems

pretty " in

> the know " about lots of other things besides his usual

specialty.If I

> walk back into my next pulmo appt and say, now my GYN thinks there

is

> an immune problem, he is going to think I am nutty. What else

could we

> test? Any ideas?

> Valarie

> mom to

> Olivia, asthma, allergies

> Savannah, asthma, allergies, CVID

> Donovan, asthma, allergies, CVID, TBM

> Brennan, asthma, allergies, CVID, TBLM

>

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Valarie,

Definitely test the post-vaccine antibodies. You probably already know this,

but a person can have completely normal numbers of immunoglobulins, but if they

aren't making or holding antibodies then it doesn't really matter. Also, did

they check B, T and NK cells, including function? I'm not sure what else to

suggest, but your immune function does sound questionable!

Take care,

Mom to Conner (12, possible combined immune deficiency, mild CP, partial

seizures, asthma, GERD,

Hashimoto's disease and resolved adrenal insufficiency),

Hayden (12, unknown PID, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (12, unknown PID, asthma and mild hearing loss/unaided),

and Kelsey - (10, unknown PID, asthma)

Please visit us at www.caringbridge.org/in/connersmith

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Valarie:

Did they check t-cells? Response to vaccines? You should not be getting yeast

infections that often and certainly should NOT be getting thrush. That's NOT

normal. In fact, on the yeast infection med package, it even says if you have

yeast infections more than X amount of times you need to get your immune

system checked out. The other guy has missed something.

DO IT!! You have to check it further. If only for the yeast infections...

aaaagggghhhh those are unbearable!!!!!!!!!!!!

(mom to , age 7, dairy intolerant-related GERD -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other

defs... and also to Kate, age 3!, more dairy intolerant but very healthy!)

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In a message dated 5/24/2006 8:54:31 PM Central Standard Time,

osdbmom@... writes:

> and the creams for the " other " variety

Valarie:

My only comments would be that the " one day " yeast infection treatments are

worthless -- they concentrate all the med in one night. So it's like a nuclear

bomb going off down there, like taking a blowtorch to you but then it's not

long-lasting enough to fully cure it. Seems like if you use not-the-right-thing

right there at the start, you end up having to go with the full-on

prescription stuff, the OTC can't handle the partially-treated problem.

You probably already know that (with your wealth of experience, you poor

woman!), but I thought I'd throw it in just in case you didn't... my theory is

that ANYTHING that helps us girls suffer less with those infections -- I'm all

for it!

I previously read up on all sorts of home remedies: sitz baths with

acidophilus, with yogurt, with tea tree oil (zowie! that's an eye opener ---

what, they

didn't have pure isopropyl alcohol????), but always ended up back with the

real meds.

Glad the kids' doc is so observant!

(mom to , age 7, dairy intolerant-related GERD -- currently has

polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other

defs... and also to Kate, age 3!, more dairy intolerant but very healthy!)

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Too funny about the .. :-) I hope you can get rid of the thrush.

Have you been taking probiotic supplements? It really helped ph to get

over his yeast and fungal issues..

~Pattie~

" What matters is not great deeds, but great love. " ~ St. Therese of Lisieux

Family website: www.shwachman.50megs.com

_____

From: [mailto: ] On Behalf Of

osdbmom

Sent: Wednesday, May 24, 2006 9:28 PM

Subject: curious

I have a dr appt for myself in the morning after Brennans speech therapy.

I have oral thrush again.

_____

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