Guest guest Posted March 26, 2000 Report Share Posted March 26, 2000 Hi , It has been said that many have been helped with their sleep apnea from losing weight and also from improving their body functions. Life Lift can be helpful with both.I have read a great deal about sleep apnea and it seems to always say that eliminating excess weight can be very beneficial. I also understand that stress reduction can often be helpful as well. I have not had any messages regarding the direct results of sleep apnea, however the other health benefits are so great that it certainly seems probable that your problems would be helped also. I wish you luck on this. Take care, Rashelle Be sure to check out all of the great specials available on my web sites Save $30 on the Large Body Wrap package until Aril 30th.You are welcome to visit us at http://www.angelmagic.com or http://www.lifelift.com These are Rashelle's personal web sites, any others belong to distributors.join our discussion group at LifeLift-subscribeonelist Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 Bless your heart, I have seen people suffer this way and it can be really difficult. I certainly hope that you will find some relief. I have had some sleep therapists send patients to me and we found that if you do about 5 or 10 breaths at bedtime, no positions, just the breaths, in bed, that they not only sleep better, but also have more energy in the morning. I would love to hear that this helps. So give it a try. Just do some deep breaths and focus in your mind on awakening feeling refreshed and happy. Let me know if this helps you. Take care, Rashelle Be sure to check out all of the great specials available on my web sites Save $30 on the Large Body Wrap package until Aril 30th.You are welcome to visit us at http://www.angelmagic.com or http://www.lifelift.com These are Rashelle's personal web sites, any others belong to distributors.join our discussion group at LifeLift-subscribeonelist Rashelle,Thanks for your encouragement....now all I need to do is get the energy to put the tapes in the VCR!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 There are two kinds of sleep apnea. The most common in the population is obstructive sleep apnea, where your throat closes off due to loose tension in the area, the construction of your throat, excess weight, etc. Some people have central sleep apnea, which from what I understand is that your body forgets to breathe because something isn't firing right somewhere. I have always wondered if perhaps PWCs might have this at a higher rate than the general population and if it might constitute a subset of CFIDS. If you are being awakened by apnea, it's about a sure bet that you are also being *almost* awakened many more times a night by the problem, which messes up your sleep and you don't realize it. I did a sleep study and was diagnosed with central sleep apnea (I stopped breathing twice during the study but did not fully awaken), and with restrictive airway disorder, which means no obstructions are fully blocking my airway but I'm not getting enough air in. One of the things the sleep doctor wrote in his report was that sedatives are counterproductive for restricted airway disorder, and I would assume obstructive apnea, because they cause muscle relaxation that exacerbates the problem in the throat. However, he never addressed the central apnea problem, so I don't know if Klonopin would be considered helpful or harmful. What we did in my case was to leave me on clonazepam since I have such trouble getting to sleep at an appropriate hour (I work), and put me on a continuous positive airway pressure machine to ensure I get enough air while asleep. Definitely see if you can get a doc to order a full-blown overnight sleep study. Failing that, at least an overnight oxygenation profile may be of use. If he or she balks because you don't fit the " obstructive sleep apnea profile " because of age, sex, or weight, point out the possibility of central apnea and the fact that you know of people with CFIDS who have it. I suggested a sleep study years ago, but the doctor thought it was fairly unlikely so he didn't push the insurance company to pay for even the cheap study. If we had done it then, I would have been treated for the problem a long time ago. If you have obstructive apnea, getting treatment can make a huge difference--I know several people (not PWCs) whose lives were vastly changed for the better by not being almost awakened dozens to hundreds of times a night by breathing problems. In my case, it's not so dramatic a subjective benefit, but the sleep study showed poor blood oxygenation, which as we've discussed is a very bad thing, so I feel the treatment is important. I'm also able to sleep in longer chunks without being awakened to go to the bathroom, five or even six hours a night. I assume this helps me get to a deeper level of sleep (during the first sleep study, I was in " stage 4 sleep " for all of 2 minutes). Curiously, this benefit has carried over even when I don't use the machine. It's like my body is being retrained to sleep and not get up every hour or two to either urinate or drink water because I'm so thirsty. Double-edged sword, though: I sleep better, but because I'm not awake, I can't drink water, so I am more dehydrated in the morning, contributing to my difficulties in getting my blood pressure up to alert levels. I think whatever mechanism is forcing too much fluid out of my system has calmed down a little bit with the deeper sleep, but it's still dysfunctional and causing problems. Hope this helps, >From: StarDantzer@... >Reply-egroups >egroups >Subject: Sleep Apnea >Date: Thu, 31 Aug 2000 15:00:31 -0000 > >Has anyone else experienced sleep apnea? What happens is that you >stop breathing during sleep. Usually you wake up with a loud snort, >gasping for air. It is really very terrifying. It has been happening >to me alot lately and I wonder if it would go under the heading >of " sleep disorders " that I have read are common for CFS. Anyone >think that Klonopin may help with it? a >^..^< _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 For what it's worth, I suspect that the central sleep apnea in CFIDS results from the respiratory center in the brain decreasing the minute volume (product of rate of breathing and depth of breathing) in response to the decreased carbon dioxide content of the blood. In a normal, healthy person, this is a normal regulatory function that works by decreasing the exhalation rate of carbon dioxide, so as to raise its concentration in the blood back to a normal level. This is important for controlling the blood pH, which affects the transport of oxygen into the cells. The problem in PWCs is that the carbon dioxide production rate drops too low, because of partial blockades in the intermediary metabolism. The lowered metabolic rate means that the food is being oxidized at a lower rate than normal, and the rate of production of carbon dioxide is therefore lower than normal. (This also accounts for feeling cold all the time, even though the thyroid hormones may be normal.) The result is that the respiratory center tries to raise the carbon dioxide concentration in the blood back to normal, but can't fully do so. In attempting to do so, it lowers the rate of breathing to the point that the person stops breathing when they are asleep and can't consciously remind themselves to breathe. Also, since it is unable to fully correct the pH of the blood, the supply of oxygen to the cells is now limited for two reasons: first because the pH is too alkaline, and second because the rate and depth of breathing have been lowered too much. This accounts for the feeling of not getting enough oxygen. If this is all true, the best solution is to remove the partial blockades in the intermediary metabolism, although the breathing machines will solve the immediate problem of not being able to sleep. The problem in removing the partial blockades is to determine what's causing them in a particular PWC. It doesn't seem to be the same for everyone. Rather, there seem to be subsets, with different root causes for the partial blockades. The largest subset appears to be those with glutathione depletion. The solution for them seems to involve building the glutathione inventory back up, and nondenatured whey protein products such as ImmunePro seem to do that. The reason this doesn't work for every PWC is that they are not all in the main subset. Rich > There are two kinds of sleep apnea. The most common in the population is > obstructive sleep apnea, where your throat closes off due to loose tension > in the area, the construction of your throat, excess weight, etc. Some > people have central sleep apnea, which from what I understand is that your > body forgets to breathe because something isn't firing right somewhere. I > have always wondered if perhaps PWCs might have this at a higher rate than > the general population and if it might constitute a subset of CFIDS. > > If you are being awakened by apnea, it's about a sure bet that you are also > being *almost* awakened many more times a night by the problem, which messes > up your sleep and you don't realize it. > > I did a sleep study and was diagnosed with central sleep apnea (I stopped > breathing twice during the study but did not fully awaken), and with > restrictive airway disorder, which means no obstructions are fully blocking > my airway but I'm not getting enough air in. > > One of the things the sleep doctor wrote in his report was that sedatives > are counterproductive for restricted airway disorder, and I would assume > obstructive apnea, because they cause muscle relaxation that exacerbates the > problem in the throat. However, he never addressed the central apnea > problem, so I don't know if Klonopin would be considered helpful or harmful. > > What we did in my case was to leave me on clonazepam since I have such > trouble getting to sleep at an appropriate hour (I work), and put me on a > continuous positive airway pressure machine to ensure I get enough air while > asleep. > > Definitely see if you can get a doc to order a full-blown overnight sleep > study. Failing that, at least an overnight oxygenation profile may be of > use. If he or she balks because you don't fit the " obstructive sleep apnea > profile " because of age, sex, or weight, point out the possibility of > central apnea and the fact that you know of people with CFIDS who have it. I > suggested a sleep study years ago, but the doctor thought it was fairly > unlikely so he didn't push the insurance company to pay for even the cheap > study. If we had done it then, I would have been treated for the problem a > long time ago. > > If you have obstructive apnea, getting treatment can make a huge > difference--I know several people (not PWCs) whose lives were vastly changed > for the better by not being almost awakened dozens to hundreds of times a > night by breathing problems. In my case, it's not so dramatic a subjective > benefit, but the sleep study showed poor blood oxygenation, which as we've > discussed is a very bad thing, so I feel the treatment is important. > > I'm also able to sleep in longer chunks without being awakened to go to the > bathroom, five or even six hours a night. I assume this helps me get to a > deeper level of sleep (during the first sleep study, I was in " stage 4 > sleep " for all of 2 minutes). Curiously, this benefit has carried over even > when I don't use the machine. It's like my body is being retrained to sleep > and not get up every hour or two to either urinate or drink water because > I'm so thirsty. > > Double-edged sword, though: I sleep better, but because I'm not awake, I > can't drink water, so I am more dehydrated in the morning, contributing to > my difficulties in getting my blood pressure up to alert levels. I think > whatever mechanism is forcing too much fluid out of my system has calmed > down a little bit with the deeper sleep, but it's still dysfunctional and > causing problems. > > Hope this helps, > > > > >From: StarDantzer@a... > >Reply-egroups > >egroups > >Subject: Sleep Apnea > >Date: Thu, 31 Aug 2000 15:00:31 -0000 > > > >Has anyone else experienced sleep apnea? What happens is that you > >stop breathing during sleep. Usually you wake up with a loud snort, > >gasping for air. It is really very terrifying. It has been happening > >to me alot lately and I wonder if it would go under the heading > >of " sleep disorders " that I have read are common for CFS. Anyone > >think that Klonopin may help with it? a >^..^< > > ______________________________________________________________________ ___ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 I had an overnight sleep study done at a sleep lab, and was diagnosed with " mild obstructive sleep apnea " . It was borderline whether insurance would pay for the CPAP machine based on # of apnea events per hour by itself, but the doctor wrote a convincing letter explaining that I had CFS, fibromyalgia, and migraines, all of which were greatly exacerbated by the apneas. Insurance paid the monthly rental fee until the total reached the " medicare price " (inflated) of the machine; now it's mine. I've been on the CPAP machine for about 2.5 years now, and it has made a wonderful difference for me. I sleep through the night without waking, AND I WAKE FEELING RESTED almost every morning. No more waking up with a raging headache, either. Decreased headaches during the day, greatly decreased daytime sleepiness, less " brain-fog " . The muscle pain and stiffness of fibromyalgia is greatly reduced (I can actually get out of bed more or less gracefully, instead of having to fall out of bed, haul myself up, and lurch off to the bathroom like I used to ;@). Also, I've discovered that I fall asleep faster when I am using the CPAP machine - it's like my body now trusts that it's OK to let go, I'm not going to die or anything. I no longer take 1-2 naps per day; it's more like 1 nap per week. And I spend much less time vegged out in a horizontal position staring out the windows - overall alertness and energy is improved. As you can tell, I'm quite enthusiastic about my CPAP machine! I use it every time I lie down, even for a short nap. My chocolate lab has learned that we can cuddle in bed, but when the machine comes on, she lies down at my feet and goes to sleep until the machine is turned off. It does take a little getting used to, and if it doesn't work for you at first, you need to hang in there and pester the company providing it for you to try different types of masks and headgear. I started with the standard face mask, and kept pulling it off all night. I don't know ANYBODY who likes the standard face mask! After two weeks, I called and told them to take the damn thing away, I couldn't use it. They then switched me to the " circuit " (nasal pillows), and I find it very comfortable. My sister swears by the Mirage headpiece. There is even a setup where you use a custom-molded biteplate to keep the nasal pillows in place, no straps around the head but a velcro strap on a T-shirt to hold the hose in place! For more info, check out the newsgroup alt.support.sleep-disorders. If you end up needing to buy the equipment for yourself because of no insurance, check out www.cpapman.com for good prices (and lots of pictures and explanations). BTW, the sleep specialist who did my sleep study looked at the list of meds I was taking for sleep, and said that none of them would make my apnea worse. Included on this list was Klonopin, Trazedone, and occasionally Ambien. No medication will cure obstructive sleep apnea; only surgery (ugh!) and CPAP or BiPAP machines are of use. ly, I think most people with CFS and/or Fibromyalgia ought to have an overnight sleep study done. Sleep apnea produces many of the same symptoms, and some people who thought they had these illnesses found they disappeared when using their CPAP machine consistently. For most of us, though, the CPAP just " peels off a layer " of symptoms - but every bit helps. -- el - andrea@... (IFF " FNORD " appears - remove it from my email address to reply) " ...wake now! Discover that you are the song that the morning brings... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 From: el [mailto:andrea@...] I've been on the CPAP machine for about 2.5 years now, and it has made a wonderful difference for me. - Thanks for the detailed info on apnea. I was diagnosed (stop breathing every few minutes) but was never able to adjust to CPAP machine. You gave some very good ideas which I'll look into (and show my doc) ... instead of having to fall out of bed, haul myself up, and lurch off to the bathroom like I used to ;@). Such a good/accurate word picture! I started with the standard face mask, and kept pulling it off all night. This is what I do, so I gave up. I kept pulling it off and I had no conscious memory of doing so, just the mask and tubing lying on the floor in the morning. Will try to get the items you mentioned. No medication will cure obstructive sleep apnea; only surgery (ugh!) and CPAP or BiPAP machines are of use. According to my doc even surgery won't help my apnea because of what they think is going on when I stop breathing. l As near as they can figure out, the muscles in my trachea relax and it collapses when I sleep. I don't think surgery can help this. ly, I think most people with CFS and/or Fibromyalgia ought to have an overnight sleep study done. I agree. I know I've had apnea for at least 25 years. I told my all my doctors about it all these years, but they said it was impossible because I didn't fit the " profile " (I was young, female, skinny, and don't snore - yet I know without a doubt that I had pretty bad apnea even back then, but docs refused to even consider it because of my profile). Who knows what 25 years of moderately severe UNTREATED apnea can do to your health!!! Patti -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2000 Report Share Posted August 31, 2000 on 8/31/00 11:00 AM, StarDantzer@... at StarDantzer@... wrote: > Has anyone else experienced sleep apnea? What happens is that you > stop breathing during sleep. Usually you wake up with a loud snort, > gasping for air. It is really very terrifying. It has been happening > to me alot lately and I wonder if it would go under the heading > of " sleep disorders " that I have read are common for CFS. Anyone > think that Klonopin may help with it? a, Pardon my lack of grace but ... ARE YOU KIDDING???!!! Benzodiazepines (including clonazepam) are contra-indicated for those with sleep apnea because they actually make the problem worse. What happens is that the benzos are respiratory depressants, so they make it more likely that you will have apneic episodes. Benzos are some of the worst meds for people with apnea. Apnea is a very serious problem which should be assessed by a sleep lab. Untreated apnea often leads to damage to the heart and brain (lack of oxygen) and certainly makes recovery from chronic fatigue impossible. Apnea is very treatable and can restore people to full functionality. BTW, sleep apnea is a condition that occurrs to PWC more frequently than the standard population. In fact, studies have shown that around 40% if men with Fibromyalgia also have sleep apnea! Get that looked after! Hud Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2000 Report Share Posted September 3, 2000 Hud, I agree with your recommendation to get the apnea looked at pronto via a sleep study, but my doctor says benzodiazepines are not necessarily contraindicated for people with sleep apnea. It depends on the dosage being used, and also on whether the apnea is central or obstructive. I have mild obstructive sleep apnea, use a CPAP machine, and use a low dose (.5 mg) of Klonopin - and this has been OK, with no signs of respiratory depression. People vary, and the real answer is to get a sleep study done and work closely with the sleep doctor re the bedtime medicines. Many people who previously used a variety of meds to get to sleep find they can do without all or most of them once they've adjusted to using CPAP, or had the surgery done. I find that the low dose of Klonopin relaxes the tense muscles that prevent falling asleep. -- el - andrea@... (IFF " FNORD " appears - remove it from my email address to reply) " ...wake now! Discover that you are the song that the morning brings... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2000 Report Share Posted September 4, 2000 on 9/03/00 7:11 PM, el at andrea@... wrote: > Hud, I agree with your recommendation to get the apnea looked at pronto > via a sleep study, but my doctor says benzodiazepines are not > necessarily contraindicated for people with sleep apnea. It depends on > the dosage being used, and also on whether the apnea is central or > obstructive. , I'll agree to that! Hud Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 , Sorry, that is one problem we have not had yet. Jeannie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 , Wow! Wonder why they never notified you? All I can offer are prayers and (((((hugs))))) sorry. Wish I had words of wisdom to offer. Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2000 Report Share Posted October 3, 2000 Hi all, Does anyone have a problem with Sleep Apnea (Kids, I mean) Yesterday, I had to pick Matt up from school, take him to the doctor to prove he did not have pink eye (He went swimming on Sunday) and in that visit, the doc said he had an ear infection and the eardrum was retracted. tube is out. So today, we went to the ENT. A couple of months ago, he had a sleep study and they didnt' call me concerned, so I figured it was like all other " negative " tests, and if there was a concern, they would call. So this morning when we went to the ENT, it was positive for apnea. I guess he has 15 episodes per hour! Seems like an awful lot to me! They said if he was an adult, he would have heart and lung problems from it, but they dont 'have statistics on kids. Great. So, they will be calling me to set up an appt with the sleep clinic to put him on CPAP! I dont know how I am going to keep him on it, but if he continues to get worse, I think the only other option is a tracheostomy. I don't want that! He had a Tand A when he was about 16 months old. He has a submucous cleft, and I think he said it is contributing to the sleep apnea. He has had 2 other sleep studies, the first one was negative, the 2nd was " suspicious " but not conclusive for apnea. So, my observation of the symptoms getting worse as he grows is correct. I dont' see it " fixing " itself. I am just beside myself today with this. Any voices of experience out there????? S ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 , I just came home from a sleep study done at Children's hospital last night. 's sleep study was done to see if the surgery he recently had (Lazered part of his Epiglotis, flopping over his airway when he slept) did the trick. He isn't sleeping in class very much anymore although occassionally he falls asleep. We should have results within the next two weeks. A tracheotomy is not the answer. We've been through that too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 , That sounds really scary, I don't have any real advice here. Brook did have his tonsils and adenoids out when he was 4 years old and we believe that helps his breathing. What were Matts' symptoms that were getting worse? Brook goes to his pediatric ENT next week to check on his ear tubes since he gets so many ear infections and his ped can't really see them to well. Good luck. Marisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 They rarely tell me of nathan's tests either, he just had another sleep study done last month, and i figured they would callme if anything was off, but no one has, and we have another appontment in a couple of weeks, he sees psyc, oto, and ds clinic all day, they will let me know, here i get to ask all the questions i want and they go out of their way to answer them or help find the answers. AI really hate when docs have blood drawn or other culture and sensitivity reports and say they will call you in a couple days then a week goes by and you just give in and call them and oh my gosh he needs to be on this antibiotic etc. talk about not faoolowing through, uuhh. shawna. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 i do hope things turn out ok, i know what you mean about having them wear the cp, nathan wont even wear his ear plugs special made for him. lots of prayers and luck. shawna. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 , Thanks for answering. they still havent' called me back about scheduling the CPAP thing. Have you ever done that? S ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 I didn't have the CPAP done because I knew wouldn't let them strap a mask on his face which gives out oxegyn. It covers the whole face and he would freak. We even thought about an oxegyn tent at night until we had him scoped and saw what was actually causing the problem, so we corrected it. Hope it worked. We'll know soon. We are seeing an improvement as far as sleeping in school. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 On Fri, 6 Oct 2000 11:00:10 EDT MBrayley@... writes: > I didn't have the CPAP done because I knew wouldn't let them > strap a > mask on his face which gives out oxegyn. It covers the whole face > and he > would freak. We even thought about an oxegyn tent at night until we > had him > scoped and saw what was actually causing the problem, so we > corrected it. > Hope it worked. We'll know soon. We are seeing an improvement as > far as > sleeping in school. > > The ENT is putting a tube in Matt's bad ear next Thursday and is supposed to be looking at adenoids to see if they need to be reduced as a possible cause. It is all obstructive, (as opposed to central where the brain " forgets " to breath). Matt is not freaky about the surgery mask, so I am hoping that if I tell him enough that the " Daddy doctor " says he needs to put it on at night, he will. All we can do is try. DH suggested just oxygen. THat wont' work, as the problem is the obstruction in the first place. They havent' called me back yet to schedule this. I am getting pretty preterbed! On one hand the doc is insisting how " dangerous " this is, but then I can't get anyone to call me back to schedule. S ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 , Good luck with the CPap, I hope it works well. has also had his tonsils and adenoids out when he was younger and I didn't think there was anymore that they could take out/ When we looked through the scope and saw his Epiglotis, it was obvious what was causing the problem. Our ENT is real good and has rebuilt 's entire airway with his rib cartledge. I hope this is the last of his problems . Has your ENT suggested scoping to see if there is any obstruction that could be causing the sleep apnea? It's a real simple procedure, done in the doctors office and takes only a nose spray to numb the nose and a few minutes to look down there. I was pretty amazed. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2000 Report Share Posted October 7, 2000 i doesnt cover the whole face, it has a nose peice thats sort of shoots O2 in, when level drop below what is set, remends me of a scuba thing maybe, but i agree any of our kids wouldnt tolerate it well, im still tring just to get nathan to actually sleep at night. shawna. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2000 Report Share Posted October 8, 2000 > i agree any of our kids wouldn't tolerate it well My son had to wear a whole face mask since he is a mouth breather. We tried several nasal masks but not worked. In fact, the whole c-pap didn't work. We tried the regular c-pap for several months, then the bi-pap and have been housing the smart c-pap (the best) for over a year now. He rarely wears it. He seems more tired in the morning after he does as am I since the alarm keeps going off when there is a break in the seal of the mask when he rolls over. He is going for another sleep study (has been 2 years since the last) to determine if there is any deoxygenation when he is sitting up (his regular position - since his problem is base tongue he has automatically sat up whenever he had an apneic period. With his nose on the base of the bed, between his open legs, his airway remains open.) The new psychologist who is on my son's case now recommends doing nothing at this point if there is no deoxygenation if he is able to correct the apnea himself. By the way, my son just turned 15 yesterday. Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2000 Report Share Posted December 15, 2000 You know, Beatrice, there is a sleep apnea egroup that I discovered by accident. Just search for " sleep apnea. " The main thing to do is lose weight if overweight, or use a CPAP. jp Sleep apnea I'd appreciate it if you could explain how to deal with sleep apnea. Many thanks. Beatrice OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. THERE IS NO MEDICAL ADVICE HERE! This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility for your own actions. By joining the list you agree to hold yourself FULLY responsible FOR yourself. Do not use any ideas found here without consulting a medical professional, unless you are a researcher or health care provider. You can unsubscribe via e-mail by sending A NEW e-mail to the following address - NOT TO THE OXYPLUS LIST! - DO NOT USE REPLY BUTTON & DO NOT PUT THIS IN THE SUBJECT LINE or BODY of the message! : oxyplus-unsubscribeegroups oxyplus-normalonelist - switch your subscription to normal mode. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 Janet .. > > me. I quit breathing for 30 second at a time during the night and > then gasp > for breath, I snore, toss and turn Yep, that's it, all right. Husband also has it. Weird.... his loud snoring doesn't bother me a bit. What wakes me up is the apnea. He exhales, then silence for about 30 seconds like you said, then a gasp and a snort and resumes breathing/snoring again. Sometimes i poke or rub him to get him to breathe again. Scary. Pls. let us know what your sleep studies say, and what treatment if any is available, okay? Good luck to you. Sue -- " She was not quite what you would call refined. She was not quite what you would call unrefined. She was the kind of person that keeps a parrot. " -- Mark Twain Rich and Sue Owens http://www.geocities.com/Yosemite/Meadows/7457/index3.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2001 Report Share Posted June 9, 2001 try going to this link to find out more about sleep apnea... www.thedailyapple.com/target/cs/article/tda/100843.html#ITEM%204 sure hope link works JES in NJ, USA God creted your face... You create the expression > Pls. let us know what your sleep studies say, and what treatment if > any is available, okay? > Good luck to you. > Sue > > -- > " She was not quite what you would call refined. > She was not quite what you would call unrefined. > She was the kind of person that keeps a parrot. " > -- Mark Twain > > Rich and Sue Owens > http://www.geocities.com/Yosemite/Meadows/7457/index3.html Quote Link to comment Share on other sites More sharing options...
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