Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 Guess that by path report you mean different measurements during the years. In 86 when arrival at the hospital K was 2,8, I then got Kaleroid tablets and K increased to 3,9 and during analysis fell to 3.2. For 2 weeks I did not take Tenormin and Peripress and BT increased to 170/120-130. By Caprotil-test aldo 08.00 was 1902,10.00 was 1955 and 20.00 489 and PRA was less than 0,2. By renin stimulation there wa no increase in renin and aldo varied from 2440 to 630. In 2008 is aldo 1675 K 4,4. My endo has not been that much interested in my PA and he has not checked Na or renin. Guess he should. It is ok adding me to your files. There is no others in my family that have PA or low K. Most have lived to old age. My father died 78 and my mother 72 of a smokerelated illness. Re: My story Classic story as u can see from our files. If u approve we will add yours If you can expand details U need to get path report on gland Read in files Grim Evol of PA And take 2 all drs Get DASH book U almost certainly have recurrent Conn's or of others in family have similar prob GRA CE ms Sent from my iPhone On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote: > Welcome to the group. You don't mention if anyone ever told you to > eat very > little salt. I stay under 800 mg a day. If I eat more than that, I > am sick > and cannot sleep. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism] On Behalf Of ulffreddy1 > > Happy to be among equals. I am a male born 1950. There is a history > of autoimmune deseases in our family. My sister has pernicious > anemia, hypothereose and arthrisis. Her daughter has pernicious > anemia, hypothyreose, and living with lupus since she was borne. > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed > the right gland and the surgeon said the tumor was as big as the the > gland. > I think i had the symptoms from very early on, maybe already as a > child. During college I used to skip to days a week. Looking back I > see that I was feeling tired. I used to train during wintertime, but > had trouble to run playing soccer in summer. Enlisted in the military > 19 years old and had diffuculties competing with the others when it > was hot. One warm day I even fainted standing along the others. Other > symptoms were anxiety, my handwas shaking when drinking coffee and I > had to use both hands. Turning 20 and the headaches started on. In 81 > I was diagnosed with hypertension and low pottassium. At 30 I begun > to frequent the bathroom during nighttime. I used to fall asleep 4 to > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > headaches disapeared and I started to sleep well again.. The left > gland was producing to much aldo, 1400, and I was put on 50-100 > spiro. Still BP remained high, about 105, and the endo I was seeing > every 3 months said it was ok. Because of the sideeffects we tried > another medicament. In the beginning it worked ok, but then BP was > 140.. We then had to use spiro again, but at that time I started to > get irregular heartbeats. Determined to lower BP I visited a > cardiovascular center and I got 100 mg Selozok in addition. Since > then BP has been ok and for a while the extra systoles stopped. One > night in 90 I started to frequent the the bathroom again and the > irregular heartbeats got worse and I had it 24 hours a day. Going to > bed was terrible because then it got even worse and I had problems > laying on my left side and the stomach. My endo thought this was not > related to PA and in 96 I had surgery burning the nerves in the > bladder, but to no help. During this years I had almost no sleep. I > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours > sleep. In 2 weeks time I would almost certain have 3 days with no > sleep. In 2000 I met another endo who is quit controversial. He did a > lot of tests, and I was set on low dose levaxin. My aching muscles > got better and the sleep started to be better, I even fall into deep > sleep. Then he adviced me to eat every 2 hours, mostly vegetables, no > fruit,no potatoes, no sweet,no dairy products. After 1 week the > irregular heartbeats disappeared and I am in much better conditons > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit > d and k suplements, calsium, omega 3 and DHEA. The sleep is still not > perfect. I dont know if could be better with low salt diet. The > kidney areas is hurting and I some time have problems to swallow. If > you have some advice? This was not meant to complain, I am feeling > quit well and is in fulltime job. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2008 Report Share Posted September 24, 2008 Freddy, I track everything I eat with FitDay. You can buy the program for about $30 or use it online free. That's the only way I can keep track of my sodium. I'm finding that sodium is very much related to how I sleep. Last weekend, I ate 1,800 mg in one day. I barely slept all night and not much the next night. It also contributes to my nerves and tremor. If I eat 1,500 mg Na for two days in a row, I am sick for a week. The less salt you eat, the less blood pressure medicine you need. I have found staying under 800 mg/d is not terribly difficult. The only problem is trying to ever eat in a restaurant. Have you tried to use Inspra. According to the literature, only spiro and Inspra can control and reverse any heart damage. I had irregular heart beats until I'd been on spiro for two months. I went on a beta blocker for about a month and one day, realized the irregular beats had stopped so I weaned off that. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Freddy Johansen Cant remember that any of the 4 endos I have been seeing have mentioned that. But I for certain been reading about it in articles about aldo and I have no craving for salt. Guess my saltintake is very low, but not sure how low. ----- Original Message ---- From: Valarie <val@... <mailto:val%40wyosip.com> > Welcome to the group. You don't mention if anyone ever told you to eat very little salt. I stay under 800 mg a day. If I eat more than that, I am sick and cannot sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Thanks Freddy. If you can merge all of this into a detailed story we will put it in our files as Freddy's Story. You have gone thru all stages of PA evolution as you and your Drs will realize when you read my article. I am not clear if HTN or low K has returned since surgery. Can you give more details? CE Grim MD By Patho report I mean the written report of the pathological findings under the microscope of the adrenal they took out. This will help us and future Drs know better how to deal with On Sep 24, 2008, at 8:51 AM, Freddy Johansen wrote: > Guess that by path report you mean different measurements during > the years. In 86 when arrival at the hospital K was 2,8, I then got > Kaleroid tablets and K increased to 3,9 and during analysis fell to > 3.2. For 2 weeks I did not take Tenormin and Peripress and BT > increased to 170/120-130. By Caprotil-test aldo 08.00 was > 1902,10.00 was 1955 and 20.00 489 and PRA was less than 0,2. By > renin stimulation there wa no increase in renin and aldo varied > from 2440 to 630. > In 2008 is aldo 1675 K 4,4. My endo has not been that much > interested in my PA and he has not checked Na or renin. Guess he > should. > It is ok adding me to your files. There is no others in my family > that have PA or low K. Most have lived to old age. My father died > 78 and my mother 72 of a smokerelated illness. > > Re: My story > > Classic story as u can see from our files. If u approve we will add > yours > If you can expand details > U need to get path report on > gland > Read in files Grim Evol of PA > And take 2 all drs > Get DASH book > U almost certainly have recurrent Conn's or of others in family have > similar prob GRA > > CE ms > > Sent from my iPhone > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote: > > > Welcome to the group. You don't mention if anyone ever told you to > > eat very > > little salt. I stay under 800 mg a day. If I eat more than that, I > > am sick > > and cannot sleep. > > > > Val > > > > From: hyperaldosteronism > > [mailto:hyperaldosteronism] On Behalf Of > ulffreddy1 > > > > Happy to be among equals. I am a male born 1950. There is a history > > of autoimmune deseases in our family. My sister has pernicious > > anemia, hypothereose and arthrisis. Her daughter has pernicious > > anemia, hypothyreose, and living with lupus since she was borne. > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed > > the right gland and the surgeon said the tumor was as big as the the > > gland. > > I think i had the symptoms from very early on, maybe already as a > > child. During college I used to skip to days a week. Looking back I > > see that I was feeling tired. I used to train during wintertime, but > > had trouble to run playing soccer in summer. Enlisted in the > military > > 19 years old and had diffuculties competing with the others when it > > was hot. One warm day I even fainted standing along the others. > Other > > symptoms were anxiety, my handwas shaking when drinking coffee and I > > had to use both hands. Turning 20 and the headaches started on. > In 81 > > I was diagnosed with hypertension and low pottassium. At 30 I begun > > to frequent the bathroom during nighttime. I used to fall asleep > 4 to > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > > headaches disapeared and I started to sleep well again.. The left > > gland was producing to much aldo, 1400, and I was put on 50-100 > > spiro. Still BP remained high, about 105, and the endo I was seeing > > every 3 months said it was ok. Because of the sideeffects we tried > > another medicament. In the beginning it worked ok, but then BP was > > 140.. We then had to use spiro again, but at that time I started to > > get irregular heartbeats. Determined to lower BP I visited a > > cardiovascular center and I got 100 mg Selozok in addition. Since > > then BP has been ok and for a while the extra systoles stopped. One > > night in 90 I started to frequent the the bathroom again and the > > irregular heartbeats got worse and I had it 24 hours a day. Going to > > bed was terrible because then it got even worse and I had problems > > laying on my left side and the stomach. My endo thought this was not > > related to PA and in 96 I had surgery burning the nerves in the > > bladder, but to no help. During this years I had almost no sleep. I > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours > > sleep. In 2 weeks time I would almost certain have 3 days with no > > sleep. In 2000 I met another endo who is quit controversial. He > did a > > lot of tests, and I was set on low dose levaxin. My aching muscles > > got better and the sleep started to be better, I even fall into deep > > sleep. Then he adviced me to eat every 2 hours, mostly > vegetables, no > > fruit,no potatoes, no sweet,no dairy products. After 1 week the > > irregular heartbeats disappeared and I am in much better conditons > > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit > > d and k suplements, calsium, omega 3 and DHEA. The sleep is still > not > > perfect. I dont know if could be better with low salt diet. The > > kidney areas is hurting and I some time have problems to swallow. If > > you have some advice? This was not meant to complain, I am feeling > > quit well and is in fulltime job. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 The journal remain at the hospital and I suppose they will be reluctant to give it to me. I may try to ask the doc i see regulary to ask for it and then he can give it to me. I will call the hospital and ask. Anyway I think it will take some time. This is Norway. The reason i think its not gra is what i have mentioned, but as I have read in your paper that some cause can be psykosocial stress. Today I have some distance to it, but from early childhood there was an immense stress on our family as my father was paranoid and schizofrenic and was when enraged quit violent. I was nor hurt, but my mother was, and we were very scared. All in all he was a good guy, trying to do his best. I have some extra palpituations during the day and when i am resting my pulse is relative fast, about 90. During sleep I can wake because my  pulse is so fast and the heart can be " wobbling " . Lately this has been increasing. I take 100 mg Spiro and 100 mg Selozok at dinner every day and 50 mg Liothyroid and 50 mg levaxin during the day. Is it an idea to change Spiro and Selozok with Inspra ? For about 10 years ago I was at a cariovascular center, all was fine but the thickness of the heartmuscle was at the upper normal limit. Since then BT has been ok. After surgery high BT remained and aldo was high so i was first set on 50 mg Spiro. It has not been necessary to have extra Kaleroid tablets. Re: [hyperaldosteronism ] My story > > Classic story as u can see from our files. If u approve we will add > yours > If you can expand details > U need to get path report on > gland > Read in files Grim Evol of PA > And take 2 all drs > Get DASH book > U almost certainly have recurrent Conn's or of others in family have > similar prob GRA > > CE ms > > Sent from my iPhone > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote: > > > Welcome to the group. You don't mention if anyone ever told you to > > eat very > > little salt. I stay under 800 mg a day. If I eat more than that, I > > am sick > > and cannot sleep. > > > > Val > > > > From: hyperaldosteronism > > [mailto:hyperaldost eronism] On Behalf Of > ulffreddy1 > > > > Happy to be among equals. I am a male born 1950. There is a history > > of autoimmune deseases in our family. My sister has pernicious > > anemia, hypothereose and arthrisis. Her daughter has pernicious > > anemia, hypothyreose, and living with lupus since she was borne. > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed > > the right gland and the surgeon said the tumor was as big as the the > > gland. > > I think i had the symptoms from very early on, maybe already as a > > child. During college I used to skip to days a week. Looking back I > > see that I was feeling tired. I used to train during wintertime, but > > had trouble to run playing soccer in summer. Enlisted in the > military > > 19 years old and had diffuculties competing with the others when it > > was hot. One warm day I even fainted standing along the others. > Other > > symptoms were anxiety, my handwas shaking when drinking coffee and I > > had to use both hands. Turning 20 and the headaches started on. > In 81 > > I was diagnosed with hypertension and low pottassium. At 30 I begun > > to frequent the bathroom during nighttime. I used to fall asleep > 4 to > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > > headaches disapeared and I started to sleep well again.. The left > > gland was producing to much aldo, 1400, and I was put on 50-100 > > spiro. Still BP remained high, about 105, and the endo I was seeing > > every 3 months said it was ok. Because of the sideeffects we tried > > another medicament. In the beginning it worked ok, but then BP was > > 140.. We then had to use spiro again, but at that time I started to > > get irregular heartbeats. Determined to lower BP I visited a > > cardiovascular center and I got 100 mg Selozok in addition. Since > > then BP has been ok and for a while the extra systoles stopped.. One > > night in 90 I started to frequent the the bathroom again and the > > irregular heartbeats got worse and I had it 24 hours a day. Going to > > bed was terrible because then it got even worse and I had problems > > laying on my left side and the stomach. My endo thought this was not > > related to PA and in 96 I had surgery burning the nerves in the > > bladder, but to no help. During this years I had almost no sleep. I > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours > > sleep. In 2 weeks time I would almost certain have 3 days with no > > sleep. In 2000 I met another endo who is quit controversial. He > did a > > lot of tests, and I was set on low dose levaxin. My aching muscles > > got better and the sleep started to be better, I even fall into deep > > sleep. Then he adviced me to eat every 2 hours, mostly > vegetables, no > > fruit,no potatoes, no sweet,no dairy products. After 1 week the > > irregular heartbeats disappeared and I am in much better conditons > > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit > > d and k suplements, calsium, omega 3 and DHEA. The sleep is still > not > > perfect. I dont know if could be better with low salt diet. The > > kidney areas is hurting and I some time have problems to swallow. If > > you have some advice? This was not meant to complain, I am feeling > > quit well and is in fulltime job. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 If you are having palpataions now your K is likely low. Have they checked it recently? You are also on thryoid and it it is too much that can cause heart palpataions. You should mention both of these to your Dr. Waht is the other name for Selozok? For BP or heart or what? CE Grim MD On Sep 25, 2008, at 1:01 PM, Freddy Johansen wrote: > The journal remain at the hospital and I suppose they will be > reluctant to give it to me. I may try to ask the doc i see regulary > to ask for it and then he can give it to me. I will call the > hospital and ask. Anyway I think it will take some time. This is > Norway. The reason i think its not gra is what i have mentioned, > but as I have read in your paper that some cause can be psykosocial > stress. Today I have some distance to it, but from early childhood > there was an immense stress on our family as my father was paranoid > and schizofrenic and was when enraged quit violent. I was nor > hurt, but my mother was, and we were very scared. All in all he was > a good guy, trying to do his best. > I have some extra palpituations during the day and when i am > resting my pulse is relative fast, about 90. During sleep I can > wake because my pulse is so fast and the heart can be " wobbling " . > Lately this has been increasing. I take 100 mg Spiro and 100 mg > Selozok at dinner every day and 50 mg Liothyroid and 50 mg levaxin > during the day. Is it an idea to change Spiro and Selozok with > Inspra ? For about 10 years ago I was at a cariovascular center, > all was fine but the thickness of the heartmuscle was at the upper > normal limit. Since then BT has been ok. > After surgery high BT remained and aldo was high so i was first set > on 50 mg Spiro. It has not been necessary to have extra Kaleroid > tablets. > > Re: [hyperaldosteronism ] My story > > > > Classic story as u can see from our files. If u approve we will add > > yours > > If you can expand details > > U need to get path report on > > gland > > Read in files Grim Evol of PA > > And take 2 all drs > > Get DASH book > > U almost certainly have recurrent Conn's or of others in family have > > similar prob GRA > > > > CE ms > > > > Sent from my iPhone > > > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote: > > > > > Welcome to the group. You don't mention if anyone ever told you to > > > eat very > > > little salt. I stay under 800 mg a day. If I eat more than that, I > > > am sick > > > and cannot sleep. > > > > > > Val > > > > > > From: hyperaldosteronism > > > [mailto:hyperaldost eronism] On Behalf Of > > ulffreddy1 > > > > > > Happy to be among equals. I am a male born 1950. There is a > history > > > of autoimmune deseases in our family. My sister has pernicious > > > anemia, hypothereose and arthrisis. Her daughter has pernicious > > > anemia, hypothyreose, and living with lupus since she was borne. > > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed > > > the right gland and the surgeon said the tumor was as big as > the the > > > gland. > > > I think i had the symptoms from very early on, maybe already as a > > > child. During college I used to skip to days a week. Looking > back I > > > see that I was feeling tired. I used to train during > wintertime, but > > > had trouble to run playing soccer in summer. Enlisted in the > > military > > > 19 years old and had diffuculties competing with the others > when it > > > was hot. One warm day I even fainted standing along the others. > > Other > > > symptoms were anxiety, my handwas shaking when drinking coffee > and I > > > had to use both hands. Turning 20 and the headaches started on. > > In 81 > > > I was diagnosed with hypertension and low pottassium. At 30 I > begun > > > to frequent the bathroom during nighttime. I used to fall asleep > > 4 to > > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > > > headaches disapeared and I started to sleep well again.. The left > > > gland was producing to much aldo, 1400, and I was put on 50-100 > > > spiro. Still BP remained high, about 105, and the endo I was > seeing > > > every 3 months said it was ok. Because of the sideeffects we tried > > > another medicament. In the beginning it worked ok, but then BP was > > > 140.. We then had to use spiro again, but at that time I > started to > > > get irregular heartbeats. Determined to lower BP I visited a > > > cardiovascular center and I got 100 mg Selozok in addition. Since > > > then BP has been ok and for a while the extra systoles > stopped.. One > > > night in 90 I started to frequent the the bathroom again and the > > > irregular heartbeats got worse and I had it 24 hours a day. > Going to > > > bed was terrible because then it got even worse and I had problems > > > laying on my left side and the stomach. My endo thought this > was not > > > related to PA and in 96 I had surgery burning the nerves in the > > > bladder, but to no help. During this years I had almost no > sleep. I > > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 > hours > > > sleep. In 2 weeks time I would almost certain have 3 days with no > > > sleep. In 2000 I met another endo who is quit controversial. He > > did a > > > lot of tests, and I was set on low dose levaxin. My aching muscles > > > got better and the sleep started to be better, I even fall into > deep > > > sleep. Then he adviced me to eat every 2 hours, mostly > > vegetables, no > > > fruit,no potatoes, no sweet,no dairy products. After 1 week the > > > irregular heartbeats disappeared and I am in much better conditons > > > now. I guess he saved my life. Today my aldo is 1650, nat 145. > I vit > > > d and k suplements, calsium, omega 3 and DHEA. The sleep is still > > not > > > perfect. I dont know if could be better with low salt diet. The > > > kidney areas is hurting and I some time have problems to > swallow. If > > > you have some advice? This was not meant to complain, I am feeling > > > quit well and is in fulltime job. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 It is metoprolol http://drugs-about.com/drugs/selozok.html Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Waht is the other name for Selozok? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2008 Report Share Posted September 25, 2008 Thanks as noted in my article BB do not work well in PA. I would recommend increasing spiro but talk with your Dr. CE Grim MD On Sep 25, 2008, at 8:15 PM, Valarie wrote: > It is metoprolol > > http://drugs-about.com/drugs/selozok.html > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim > > Waht is the other name for Selozok? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 It is for BP Re: [hyperaldosteronism ] My story > > > > Classic story as u can see from our files. If u approve we will add > > yours > > If you can expand details > > U need to get path report on > > gland > > Read in files Grim Evol of PA > > And take 2 all drs > > Get DASH book > > U almost certainly have recurrent Conn's or of others in family have > > similar prob GRA > > > > CE ms > > > > Sent from my iPhone > > > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote: > > > > > Welcome to the group. You don't mention if anyone ever told you to > > > eat very > > > little salt. I stay under 800 mg a day. If I eat more than that, I > > > am sick > > > and cannot sleep. > > > > > > Val > > > > > > From: hyperaldosteronism > > > [mailto:hyperaldost eronism] On Behalf Of > > ulffreddy1 > > > > > > Happy to be among equals. I am a male born 1950. There is a > history > > > of autoimmune deseases in our family. My sister has pernicious > > > anemia, hypothereose and arthrisis. Her daughter has pernicious > > > anemia, hypothyreose, and living with lupus since she was borne. > > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed > > > the right gland and the surgeon said the tumor was as big as > the the > > > gland. > > > I think i had the symptoms from very early on, maybe already as a > > > child. During college I used to skip to days a week. Looking > back I > > > see that I was feeling tired. I used to train during > wintertime, but > > > had trouble to run playing soccer in summer. Enlisted in the > > military > > > 19 years old and had diffuculties competing with the others > when it > > > was hot. One warm day I even fainted standing along the others. > > Other > > > symptoms were anxiety, my handwas shaking when drinking coffee > and I > > > had to use both hands. Turning 20 and the headaches started on. > > In 81 > > > I was diagnosed with hypertension and low pottassium. At 30 I > begun > > > to frequent the bathroom during nighttime. I used to fall asleep > > 4 to > > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > > > headaches disapeared and I started to sleep well again.. The left > > > gland was producing to much aldo, 1400, and I was put on 50-100 > > > spiro. Still BP remained high, about 105, and the endo I was > seeing > > > every 3 months said it was ok. Because of the sideeffects we tried > > > another medicament. In the beginning it worked ok, but then BP was > > > 140.. We then had to use spiro again, but at that time I > started to > > > get irregular heartbeats. Determined to lower BP I visited a > > > cardiovascular center and I got 100 mg Selozok in addition. Since > > > then BP has been ok and for a while the extra systoles > stopped.. One > > > night in 90 I started to frequent the the bathroom again and the > > > irregular heartbeats got worse and I had it 24 hours a day. > Going to > > > bed was terrible because then it got even worse and I had problems > > > laying on my left side and the stomach. My endo thought this > was not > > > related to PA and in 96 I had surgery burning the nerves in the > > > bladder, but to no help. During this years I had almost no > sleep. I > > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 > hours > > > sleep. In 2 weeks time I would almost certain have 3 days with no > > > sleep. In 2000 I met another endo who is quit controversial. He > > did a > > > lot of tests, and I was set on low dose levaxin. My aching muscles > > > got better and the sleep started to be better, I even fall into > deep > > > sleep. Then he adviced me to eat every 2 hours, mostly > > vegetables, no > > > fruit,no potatoes, no sweet,no dairy products. After 1 week the > > > irregular heartbeats disappeared and I am in much better conditons > > > now.. I guess he saved my life. Today my aldo is 1650, nat 145. > I vit > > > d and k suplements, calsium, omega 3 and DHEA. The sleep is still > > not > > > perfect. I dont know if could be better with low salt diet. The > > > kidney areas is hurting and I some time have problems to > swallow. If > > > you have some advice? This was not meant to complain, I am feeling > > > quit well and is in fulltime job. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Val looked it up and its is metoprolol which may not work well in PA as noted in my article. CE Grim MD On Sep 26, 2008, at 2:06 AM, Freddy Johansen wrote: > It is for BP > > Re: [hyperaldosteronism ] My story > > > > > > Classic story as u can see from our files. If u approve we will > add > > > yours > > > If you can expand details > > > U need to get path report on > > > gland > > > Read in files Grim Evol of PA > > > And take 2 all drs > > > Get DASH book > > > U almost certainly have recurrent Conn's or of others in family > have > > > similar prob GRA > > > > > > CE ms > > > > > > Sent from my iPhone > > > > > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> > wrote: > > > > > > > Welcome to the group. You don't mention if anyone ever told > you to > > > > eat very > > > > little salt. I stay under 800 mg a day. If I eat more than > that, I > > > > am sick > > > > and cannot sleep. > > > > > > > > Val > > > > > > > > From: hyperaldosteronism > > > > [mailto:hyperaldost eronism] On Behalf Of > > > ulffreddy1 > > > > > > > > Happy to be among equals. I am a male born 1950. There is a > > history > > > > of autoimmune deseases in our family. My sister has pernicious > > > > anemia, hypothereose and arthrisis. Her daughter has pernicious > > > > anemia, hypothyreose, and living with lupus since she was borne. > > > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery > removed > > > > the right gland and the surgeon said the tumor was as big as > > the the > > > > gland. > > > > I think i had the symptoms from very early on, maybe already > as a > > > > child. During college I used to skip to days a week. Looking > > back I > > > > see that I was feeling tired. I used to train during > > wintertime, but > > > > had trouble to run playing soccer in summer. Enlisted in the > > > military > > > > 19 years old and had diffuculties competing with the others > > when it > > > > was hot. One warm day I even fainted standing along the others. > > > Other > > > > symptoms were anxiety, my handwas shaking when drinking coffee > > and I > > > > had to use both hands. Turning 20 and the headaches started on. > > > In 81 > > > > I was diagnosed with hypertension and low pottassium. At 30 I > > begun > > > > to frequent the bathroom during nighttime. I used to fall asleep > > > 4 to > > > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > > > > headaches disapeared and I started to sleep well again.. The > left > > > > gland was producing to much aldo, 1400, and I was put on 50-100 > > > > spiro. Still BP remained high, about 105, and the endo I was > > seeing > > > > every 3 months said it was ok. Because of the sideeffects we > tried > > > > another medicament. In the beginning it worked ok, but then > BP was > > > > 140.. We then had to use spiro again, but at that time I > > started to > > > > get irregular heartbeats. Determined to lower BP I visited a > > > > cardiovascular center and I got 100 mg Selozok in addition. > Since > > > > then BP has been ok and for a while the extra systoles > > stopped.. One > > > > night in 90 I started to frequent the the bathroom again and the > > > > irregular heartbeats got worse and I had it 24 hours a day. > > Going to > > > > bed was terrible because then it got even worse and I had > problems > > > > laying on my left side and the stomach. My endo thought this > > was not > > > > related to PA and in 96 I had surgery burning the nerves in the > > > > bladder, but to no help. During this years I had almost no > > sleep. I > > > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 > > hours > > > > sleep. In 2 weeks time I would almost certain have 3 days > with no > > > > sleep. In 2000 I met another endo who is quit controversial. He > > > did a > > > > lot of tests, and I was set on low dose levaxin. My aching > muscles > > > > got better and the sleep started to be better, I even fall into > > deep > > > > sleep. Then he adviced me to eat every 2 hours, mostly > > > vegetables, no > > > > fruit,no potatoes, no sweet,no dairy products. After 1 week the > > > > irregular heartbeats disappeared and I am in much better > conditons > > > > now.. I guess he saved my life. Today my aldo is 1650, nat 145. > > I vit > > > > d and k suplements, calsium, omega 3 and DHEA. The sleep is > still > > > not > > > > perfect. I dont know if could be better with low salt diet. The > > > > kidney areas is hurting and I some time have problems to > > swallow. If > > > > you have some advice? This was not meant to complain, I am > feeling > > > > quit well and is in fulltime job. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 I used it for a while and it seemed to even out my heartbeats. After a while the irregularities stopped when I'd been on spiro long enough. I then weaned off the metroprolol. I imagine when I got on enough spiro for long enough time, my increased K stopped the irregular heart beats. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Val looked it up and its is metoprolol which may not work well in PA as noted in my article. CE Grim MD On Sep 26, 2008, at 2:06 AM, Freddy Johansen wrote: > It is for BP > > Re: [hyperaldosteronism ] My story > > > > > > Classic story as u can see from our files. If u approve we will > add > > > yours > > > If you can expand details > > > U need to get path report on > > > gland > > > Read in files Grim Evol of PA > > > And take 2 all drs > > > Get DASH book > > > U almost certainly have recurrent Conn's or of others in family > have > > > similar prob GRA > > > > > > CE ms > > > > > > Sent from my iPhone > > > > > > On Sep 22, 2008, at 8:31 AM, Valarie <val@... <mailto:val%40wyosip.com> > > wrote: > > > > > > > Welcome to the group. You don't mention if anyone ever told > you to > > > > eat very > > > > little salt. I stay under 800 mg a day. If I eat more than > that, I > > > > am sick > > > > and cannot sleep. > > > > > > > > Val > > > > > > > > From: hyperaldosteronism > > > > [mailto:hyperaldost eronism] On Behalf Of > > > ulffreddy1 > > > > > > > > Happy to be among equals. I am a male born 1950. There is a > > history > > > > of autoimmune deseases in our family. My sister has pernicious > > > > anemia, hypothereose and arthrisis. Her daughter has pernicious > > > > anemia, hypothyreose, and living with lupus since she was borne. > > > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery > removed > > > > the right gland and the surgeon said the tumor was as big as > > the the > > > > gland. > > > > I think i had the symptoms from very early on, maybe already > as a > > > > child. During college I used to skip to days a week. Looking > > back I > > > > see that I was feeling tired. I used to train during > > wintertime, but > > > > had trouble to run playing soccer in summer. Enlisted in the > > > military > > > > 19 years old and had diffuculties competing with the others > > when it > > > > was hot. One warm day I even fainted standing along the others. > > > Other > > > > symptoms were anxiety, my handwas shaking when drinking coffee > > and I > > > > had to use both hands. Turning 20 and the headaches started on. > > > In 81 > > > > I was diagnosed with hypertension and low pottassium. At 30 I > > begun > > > > to frequent the bathroom during nighttime. I used to fall asleep > > > 4 to > > > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > > > > headaches disapeared and I started to sleep well again.. The > left > > > > gland was producing to much aldo, 1400, and I was put on 50-100 > > > > spiro. Still BP remained high, about 105, and the endo I was > > seeing > > > > every 3 months said it was ok. Because of the sideeffects we > tried > > > > another medicament. In the beginning it worked ok, but then > BP was > > > > 140.. We then had to use spiro again, but at that time I > > started to > > > > get irregular heartbeats. Determined to lower BP I visited a > > > > cardiovascular center and I got 100 mg Selozok in addition. > Since > > > > then BP has been ok and for a while the extra systoles > > stopped.. One > > > > night in 90 I started to frequent the the bathroom again and the > > > > irregular heartbeats got worse and I had it 24 hours a day. > > Going to > > > > bed was terrible because then it got even worse and I had > problems > > > > laying on my left side and the stomach. My endo thought this > > was not > > > > related to PA and in 96 I had surgery burning the nerves in the > > > > bladder, but to no help. During this years I had almost no > > sleep. I > > > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 > > hours > > > > sleep. In 2 weeks time I would almost certain have 3 days > with no > > > > sleep. In 2000 I met another endo who is quit controversial. He > > > did a > > > > lot of tests, and I was set on low dose levaxin. My aching > muscles > > > > got better and the sleep started to be better, I even fall into > > deep > > > > sleep. Then he adviced me to eat every 2 hours, mostly > > > vegetables, no > > > > fruit,no potatoes, no sweet,no dairy products. After 1 week the > > > > irregular heartbeats disappeared and I am in much better > conditons > > > > now.. I guess he saved my life. Today my aldo is 1650, nat 145. > > I vit > > > > d and k suplements, calsium, omega 3 and DHEA. The sleep is > still > > > not > > > > perfect. I dont know if could be better with low salt diet. The > > > > kidney areas is hurting and I some time have problems to > > swallow. If > > > > you have some advice? This was not meant to complain, I am > feeling > > > > quit well and is in fulltime job. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2008 Report Share Posted October 10, 2008 Val looked it up and its is metoprolol which may not work well in PA as noted in my article. CE Grim MD On Sep 26, 2008, at 2:06 AM, Freddy Johansen wrote: > It is for BP > > Re: [hyperaldosteronism ] My story > > > > > > Classic story as u can see from our files. If u approve we will > add > > > yours > > > If you can expand details > > > U need to get path report on > > > gland > > > Read in files Grim Evol of PA > > > And take 2 all drs > > > Get DASH book > > > U almost certainly have recurrent Conn's or of others in family > have > > > similar prob GRA > > > > > > CE ms > > > > > > Sent from my iPhone > > > > > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> > wrote: > > > > > > > Welcome to the group. You don't mention if anyone ever told > you to > > > > eat very > > > > little salt. I stay under 800 mg a day. If I eat more than > that, I > > > > am sick > > > > and cannot sleep. > > > > > > > > Val > > > > > > > > From: hyperaldosteronism > > > > [mailto:hyperaldost eronism] On Behalf Of > > > ulffreddy1 > > > > > > > > Happy to be among equals. I am a male born 1950. There is a > > history > > > > of autoimmune deseases in our family. My sister has pernicious > > > > anemia, hypothereose and arthrisis. Her daughter has pernicious > > > > anemia, hypothyreose, and living with lupus since she was borne. > > > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery > removed > > > > the right gland and the surgeon said the tumor was as big as > > the the > > > > gland. > > > > I think i had the symptoms from very early on, maybe already > as a > > > > child. During college I used to skip to days a week. Looking > > back I > > > > see that I was feeling tired. I used to train during > > wintertime, but > > > > had trouble to run playing soccer in summer. Enlisted in the > > > military > > > > 19 years old and had diffuculties competing with the others > > when it > > > > was hot. One warm day I even fainted standing along the others. > > > Other > > > > symptoms were anxiety, my handwas shaking when drinking coffee > > and I > > > > had to use both hands. Turning 20 and the headaches started on. > > > In 81 > > > > I was diagnosed with hypertension and low pottassium. At 30 I > > begun > > > > to frequent the bathroom during nighttime. I used to fall asleep > > > 4 to > > > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > > > > headaches disapeared and I started to sleep well again.. The > left > > > > gland was producing to much aldo, 1400, and I was put on 50-100 > > > > spiro. Still BP remained high, about 105, and the endo I was > > seeing > > > > every 3 months said it was ok. Because of the sideeffects we > tried > > > > another medicament. In the beginning it worked ok, but then BP > was > > > > 140.. We then had to use spiro again, but at that time I > > started to > > > > get irregular heartbeats. Determined to lower BP I visited a > > > > cardiovascular center and I got 100 mg Selozok in addition. > Since > > > > then BP has been ok and for a while the extra systoles > > stopped.. One > > > > night in 90 I started to frequent the the bathroom again and the > > > > irregular heartbeats got worse and I had it 24 hours a day. > > Going to > > > > bed was terrible because then it got even worse and I had > problems > > > > laying on my left side and the stomach. My endo thought this > > was not > > > > related to PA and in 96 I had surgery burning the nerves in the > > > > bladder, but to no help. During this years I had almost no > > sleep. I > > > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 > > hours > > > > sleep. In 2 weeks time I would almost certain have 3 days with > no > > > > sleep. In 2000 I met another endo who is quit controversial. He > > > did a > > > > lot of tests, and I was set on low dose levaxin. My aching > muscles > > > > got better and the sleep started to be better, I even fall into > > deep > > > > sleep. Then he adviced me to eat every 2 hours, mostly > > > vegetables, no > > > > fruit,no potatoes, no sweet,no dairy products. After 1 week the > > > > irregular heartbeats disappeared and I am in much better > conditons > > > > now.. I guess he saved my life. Today my aldo is 1650, nat 145. > > I vit > > > > d and k suplements, calsium, omega 3 and DHEA. The sleep is > still > > > not > > > > perfect. I dont know if could be better with low salt diet. The > > > > kidney areas is hurting and I some time have problems to > > swallow. If > > > > you have some advice? This was not meant to complain, I am > feeling > > > > quit well and is in fulltime job. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hi there and welcome wallinglindac, First, always get copies of every single test you have. Had you done that years ago, you would have known you had an adrenal tumor. Before you went on Aldactone, did you have aldosterone and renin tests? If so, what were the results? Have you ever had a salt-loading test? Why are you taking metoprolol? Why the other drugs? Where is your blood pressure? Do you DASH? In terms of surgery risks, do you have any other special health problem that would make any surgery risky? Before having adrenal surgery, you must have adrenal vein sampling. Even though your CT shows an adenoma, you could be over-producing aldosterone from either or both adrenals. In terms of your attacks - shakes, hot, cold, poor sleep, etc., many of us here have that. You can look in the files where I have compiled lists of various symptoms the members have written. They are in a file called Member <hyperaldosteronism/files/Member%20Comm ents/> Comments I just finished seeing another doc at National Jewish. My cardio wanted a consult from him on the possibility of carcinoid. I mentioned to him that I had heard that any adrenal problem makes people have difficulty controlling body temperature. He said that was correct. He took my sweats seriously. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of wallinglindac Hi all! I first started having problems in 2001 when I started having " spells " , which included getting really cold (my body would be cold but my face would be hot) this progressed into shortness of breath, sometimes chest pain and shaking that would start out mild and then develop to the point that I was shaking uncontrollably all over. I would end up at ER and they would tell me there was nothing wrong with me. I was eventually diagnosed with panic attacks. I kept telling them I didn't think it was panic attacks, as yes I would get scared (because I didn't know what was happening to me) but felt that each " spell " was beginning with some kind of internal physical change in my body. Noone would listen. In all fairness, I was in a very stressful living situation at that time. This continued until I ended up being admitted in 2006. It was then that I was finally told that I had an adrenal gland tumor. It had actually been discovered several years prior but I had not been told about it. I was started on 50 mg of Aldactone daily and remain on that dosage today, along with Atacand 32 mg, Nexium 40 mg, Aspirin 81 mg, and now Metropolol 25 mg twice daily. The only time I have seen a specialist was as a followup after being discharged from the hospital in 2006. At that time, I was told about the surgery but was told that it was too risky for me and that I would just have to take a pill for the rest of my life and everything would be ok. I didn't want to go on the Metropolol because I have not had good experiences in the past with beta blockers, and as I expected I am not sleeping well - usually wake up somewhere between 4-5 a.m. so I'm getting a limited amount of sleep and my energy level goes up and down. Sometimes it takes me several days of " resting " to feel halfway normal. Other times, I may suddenly feel like someone just gave me an injection of speed - eyes feel like saucers and no way to sleep. The " spells " I was having are less frequent and not as severe but the only thing I can do when it happens is take a pill and go to bed. At this point, I guess my questions would be, is it true that the surgery would be too risky for some people (or maybe they just didn't want to recommend it because I didn't have insurance at the time) and what tests should I still be having and how often. I just went through a lot of testing last month but it was the first tests that had been done for quite some time. I think most tests turned out ok. There were a couple elevated levels that the doc said he wasn't concerned about. Can't remember what they were right now. Sorry this is so lengthy but wanted to get it all said. Maybe it will help someone else. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Good you did not give us any data on potassium. There are a number of kinds of adrenal tumors that cause HTN. Which type do they think you have? On Nov 9, 2008, at 5:45 AM, wallinglindac wrote: > Hi all! I first started having problems in 2001 when I started > having " spells " , which included getting really cold (my body would > be cold but my face would be hot) this progressed into shortness of > breath, sometimes chest pain and shaking that would start out mild > and then develop to the point that I was shaking uncontrollably all > over. I would end up at ER and they would tell me there was nothing > wrong with me. I was eventually diagnosed with panic attacks. I > kept telling them I didn't think it was panic attacks, as yes I > would get scared (because I didn't know what was happening to me) > but felt that each " spell " was beginning with some kind of internal > physical change in my body. Noone would listen. In all fairness, I > was in a very stressful living situation at that time. This > continued until I ended up being admitted in 2006. It was then that > I was finally told that I had an adrenal gland tumor. It had > actually been discovered several years prior but I had not been told > about it. I was started on 50 mg of Aldactone daily and remain on > that dosage today, along with Atacand 32 mg, Nexium 40 mg, Aspirin > 81 mg, and now Metropolol 25 mg twice daily. The only time I have > seen a specialist was as a followup after being discharged from the > hospital in 2006. At that time, I was told about the surgery but > was told that it was too risky for me and that I would just have to > take a pill for the rest of my life and everything would be ok. I > didn't want to go on the Metropolol because I have not had good > experiences in the past with beta blockers, and as I expected I am > not sleeping well - usually wake up somewhere between 4-5 a.m. so > I'm getting a limited amount of sleep and my energy level goes up > and down. Sometimes it takes me several days of " resting " to feel > halfway normal. Other times, I may suddenly feel like someone just > gave me an injection of speed - eyes feel like saucers and no way to > sleep. The " spells " I was having are less frequent and not as > severe but the only thing I can do when it happens is take a pill > and go to bed. At this point, I guess my questions would be, is it > true that the surgery would be too risky for some people (or maybe > they just didn't want to recommend it because I didn't have > insurance at the time) and what tests should I still be having and > how often. I just went through a lot of testing last month but it > was the first tests that had been done for quite some time. I think > most tests turned out ok. There were a couple elevated levels that > the doc said he wasn't concerned about. Can't remember what they > were right now. Sorry this is so lengthy but wanted to get it all > said. Maybe it will help someone else. > > > May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Not to mention that BB do not work well in PA. One of their mechanisms of action is to suppress renin. If it is already low due to PA it cannot be lowered anymore. CE Grim MD On Nov 9, 2008, at 12:08 PM, Valarie wrote: > Hi there and welcome wallinglindac, > May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 My potassium level has only been checked a couple times in the last year. I had previously had problems with it dropping very low but the last couple tests have been ok. I don't know what type of tumors I have. Didn't know there were different kinds. G. http://mslindascorner.blogspot.com/ > Hi all! I first started having problems in 2001 when I started > having " spells " , which included getting really cold (my body would > be cold but my face would be hot) this progressed into shortness of > breath, sometimes chest pain and shaking that would start out mild > and then develop to the point that I was shaking uncontrollably all > over. I would end up at ER and they would tell me there was nothing > wrong with me. I was eventually diagnosed with panic attacks. I > kept telling them I didn't think it was panic attacks, as yes I > would get scared (because I didn't know what was happening to me) > but felt that each " spell " was beginning with some kind of internal > physical change in my body. Noone would listen. In all fairness, I > was in a very stressful living situation at that time. This > continued until I ended up being admitted in 2006. It was then that > I was finally told that I had an adrenal gland tumor. It had > actually been discovered several years prior but I had not been told > about it. I was started on 50 mg of Aldactone daily and remain on > that dosage today, along with Atacand 32 mg, Nexium 40 mg, Aspirin > 81 mg, and now Metropolol 25 mg twice daily. The only time I have > seen a specialist was as a followup after being discharged from the > hospital in 2006. At that time, I was told about the surgery but > was told that it was too risky for me and that I would just have to > take a pill for the rest of my life and everything would be ok. I > didn't want to go on the Metropolol because I have not had good > experiences in the past with beta blockers, and as I expected I am > not sleeping well - usually wake up somewhere between 4-5 a.m. so > I'm getting a limited amount of sleep and my energy level goes up > and down. Sometimes it takes me several days of " resting " to feel > halfway normal. Other times, I may suddenly feel like someone just > gave me an injection of speed - eyes feel like saucers and no way to > sleep. The " spells " I was having are less frequent and not as > severe but the only thing I can do when it happens is take a pill > and go to bed. At this point, I guess my questions would be, is it > true that the surgery would be too risky for some people (or maybe > they just didn't want to recommend it because I didn't have > insurance at the time) and what tests should I still be having and > how often. I just went through a lot of testing last month but it > was the first tests that had been done for quite some time. I think > most tests turned out ok. There were a couple elevated levels that > the doc said he wasn't concerned about. Can't remember what they > were right now. Sorry this is so lengthy but wanted to get it all > said. Maybe it will help someone else. > > > May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc. com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Do you know side or size of the bump on the xray or CT. These are almost never cancer. Most on your site are doing well on DASHing and using mineralocorticoid blockers. (MC). Such as spiro or inspra. CE Grim MD On Nov 9, 2008, at 7:23 PM, wrote: > My potassium level has only been checked a couple times in the last > year. I had previously had problems with it dropping very low but > the last couple tests have been ok. I don't know what type of > tumors I have. Didn't know there were different kinds. > > G. > http://mslindascorner.blogspot.com/ > > > > > Hi all! I first started having problems in 2001 when I started > > having " spells " , which included getting really cold (my body would > > be cold but my face would be hot) this progressed into shortness of > > breath, sometimes chest pain and shaking that would start out mild > > and then develop to the point that I was shaking uncontrollably all > > over. I would end up at ER and they would tell me there was nothing > > wrong with me. I was eventually diagnosed with panic attacks. I > > kept telling them I didn't think it was panic attacks, as yes I > > would get scared (because I didn't know what was happening to me) > > but felt that each " spell " was beginning with some kind of internal > > physical change in my body. Noone would listen. In all fairness, I > > was in a very stressful living situation at that time. This > > continued until I ended up being admitted in 2006. It was then that > > I was finally told that I had an adrenal gland tumor. It had > > actually been discovered several years prior but I had not been told > > about it. I was started on 50 mg of Aldactone daily and remain on > > that dosage today, along with Atacand 32 mg, Nexium 40 mg, Aspirin > > 81 mg, and now Metropolol 25 mg twice daily. The only time I have > > seen a specialist was as a followup after being discharged from the > > hospital in 2006. At that time, I was told about the surgery but > > was told that it was too risky for me and that I would just have to > > take a pill for the rest of my life and everything would be ok. I > > didn't want to go on the Metropolol because I have not had good > > experiences in the past with beta blockers, and as I expected I am > > not sleeping well - usually wake up somewhere between 4-5 a.m. so > > I'm getting a limited amount of sleep and my energy level goes up > > and down. Sometimes it takes me several days of " resting " to feel > > halfway normal. Other times, I may suddenly feel like someone just > > gave me an injection of speed - eyes feel like saucers and no way to > > sleep. The " spells " I was having are less frequent and not as > > severe but the only thing I can do when it happens is take a pill > > and go to bed. At this point, I guess my questions would be, is it > > true that the surgery would be too risky for some people (or maybe > > they just didn't want to recommend it because I didn't have > > insurance at the time) and what tests should I still be having and > > how often. I just went through a lot of testing last month but it > > was the first tests that had been done for quite some time. I think > > most tests turned out ok. There were a couple elevated levels that > > the doc said he wasn't concerned about. Can't remember what they > > were right now. Sorry this is so lengthy but wanted to get it all > > said. Maybe it will help someone else. > > > > > > > > May your pressure be low! > >  > > CE Grim BS, MS, MD > > High Blood Pressure Consulting > > Senior Consultant to Shared Care Research and Education Consulting > Inc.(sharedcareinc. com) > > Clinical Professor of Internal Medicine Medical and Cardiology > Medical College of Wisconsin > > Board certified in Internal Med, Geriatrics and Hypertension. > > Interests: > 1. Difficult to control high blood pressure. > 2. The effect of recent evolutionary forces on high blood pressure > in human populations. > 3. Improving blood pressure measurement in the office and out. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Good you did not give us any data on potassium. There are a number of kinds of adrenal tumors that cause HTN. Which type do they think you have? On Nov 9, 2008, at 5:45 AM, wallinglindac wrote: > Hi all! I first started having problems in 2001 when I started > having " spells " , which included getting really cold (my body would > be cold but my face would be hot) this progressed into shortness of > breath, sometimes chest pain and shaking that would start out mild > and then develop to the point that I was shaking uncontrollably all > over. I would end up at ER and they would tell me there was nothing > wrong with me. I was eventually diagnosed with panic attacks. I > kept telling them I didn't think it was panic attacks, as yes I > would get scared (because I didn't know what was happening to me) > but felt that each " spell " was beginning with some kind of internal > physical change in my body. Noone would listen. In all fairness, I > was in a very stressful living situation at that time. This > continued until I ended up being admitted in 2006. It was then that > I was finally told that I had an adrenal gland tumor. It had > actually been discovered several years prior but I had not been told > about it. I was started on 50 mg of Aldactone daily and remain on > that dosage today, along with Atacand 32 mg, Nexium 40 mg, Aspirin > 81 mg, and now Metropolol 25 mg twice daily. The only time I have > seen a specialist was as a followup after being discharged from the > hospital in 2006. At that time, I was told about the surgery but > was told that it was too risky for me and that I would just have to > take a pill for the rest of my life and everything would be ok. I > didn't want to go on the Metropolol because I have not had good > experiences in the past with beta blockers, and as I expected I am > not sleeping well - usually wake up somewhere between 4-5 a.m. so > I'm getting a limited amount of sleep and my energy level goes up > and down. Sometimes it takes me several days of " resting " to feel > halfway normal. Other times, I may suddenly feel like someone just > gave me an injection of speed - eyes feel like saucers and no way to > sleep. The " spells " I was having are less frequent and not as > severe but the only thing I can do when it happens is take a pill > and go to bed. At this point, I guess my questions would be, is it > true that the surgery would be too risky for some people (or maybe > they just didn't want to recommend it because I didn't have > insurance at the time) and what tests should I still be having and > how often. I just went through a lot of testing last month but it > was the first tests that had been done for quite some time. I think > most tests turned out ok. There were a couple elevated levels that > the doc said he wasn't concerned about. Can't remember what they > were right now. Sorry this is so lengthy but wanted to get it all > said. Maybe it will help someone else. > > > May your pressure be low! CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Hello again. Thinking little more about it I see that my sister maybe has PA, she has most of the symptoms and feeling worse than I ever have. But she has a lot of other illnesses. She was tested several years ( 20) ago for Pa, but negative. It is a silly question for you, but what should she be tested for? S-aldo, s-renin, Kalium I suppose. If it is GRA what then? ________________________________ From: Lowerbp2 <lowerbp2@...> " hyperaldosteronism " <hyperaldosteronism > Sent: Monday, September 22, 2008 5:58:25 PM Subject: Re: My story Classic story as u can see from our files. If u approve we will add yours If you can expand details U need to get path report on gland Read in files Grim Evol of PA And take 2 all drs Get DASH book U almost certainly have recurrent Conn's or of others in family have similar prob GRA CE ms Sent from my iPhone On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote: > Welcome to the group. You don't mention if anyone ever told you to > eat very > little salt. I stay under 800 mg a day. If I eat more than that, I > am sick > and cannot sleep. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism] On Behalf Of ulffreddy1 > > Happy to be among equals. I am a male born 1950. There is a history > of autoimmune deseases in our family. My sister has pernicious > anemia, hypothereose and arthrisis. Her daughter has pernicious > anemia, hypothyreose, and living with lupus since she was borne. > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed > the right gland and the surgeon said the tumor was as big as the the > gland. > I think i had the symptoms from very early on, maybe already as a > child. During college I used to skip to days a week. Looking back I > see that I was feeling tired. I used to train during wintertime, but > had trouble to run playing soccer in summer. Enlisted in the military > 19 years old and had diffuculties competing with the others when it > was hot. One warm day I even fainted standing along the others. Other > symptoms were anxiety, my handwas shaking when drinking coffee and I > had to use both hands. Turning 20 and the headaches started on. In 81 > I was diagnosed with hypertension and low pottassium. At 30 I begun > to frequent the bathroom during nighttime. I used to fall asleep 4 to > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > headaches disapeared and I started to sleep well again. The left > gland was producing to much aldo, 1400, and I was put on 50-100 > spiro. Still BP remained high, about 105, and the endo I was seeing > every 3 months said it was ok. Because of the sideeffects we tried > another medicament. In the beginning it worked ok, but then BP was > 140. We then had to use spiro again, but at that time I started to > get irregular heartbeats. Determined to lower BP I visited a > cardiovascular center and I got 100 mg Selozok in addition. Since > then BP has been ok and for a while the extra systoles stopped. One > night in 90 I started to frequent the the bathroom again and the > irregular heartbeats got worse and I had it 24 hours a day. Going to > bed was terrible because then it got even worse and I had problems > laying on my left side and the stomach. My endo thought this was not > related to PA and in 96 I had surgery burning the nerves in the > bladder, but to no help. During this years I had almost no sleep. I > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours > sleep. In 2 weeks time I would almost certain have 3 days with no > sleep. In 2000 I met another endo who is quit controversial. He did a > lot of tests, and I was set on low dose levaxin. My aching muscles > got better and the sleep started to be better, I even fall into deep > sleep. Then he adviced me to eat every 2 hours, mostly vegetables, no > fruit,no potatoes, no sweet,no dairy products. After 1 week the > irregular heartbeats disappeared and I am in much better conditons > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit > d and k suplements, calsium, omega 3 and DHEA. The sleep is still not > perfect. I dont know if could be better with low salt diet. The > kidney areas is hurting and I some time have problems to swallow. If > you have some advice? This was not meant to complain, I am feeling > quit well and is in fulltime job. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 treatment is the same but if GRA 1/2 of all her 1st degree relatives will have same p;roblem. On Nov 26, 2008, at 9:56 AM, Freddy Johansen wrote: > Hello again. Thinking little more about it I see that my sister > maybe has PA, she has most of the symptoms and feeling worse than I > ever have. But she has a lot of other illnesses. She was tested > several years ( 20) ago for Pa, but negative. It is a silly > question for you, but what should she be tested for? > S-aldo, s-renin, Kalium I suppose. If it is GRA what then? > > ________________________________ > From: Lowerbp2 <lowerbp2@...> > " hyperaldosteronism " > <hyperaldosteronism > > Sent: Monday, September 22, 2008 5:58:25 PM > Subject: Re: My story > > Classic story as u can see from our files. If u approve we will add > yours > If you can expand details > U need to get path report on > gland > Read in files Grim Evol of PA > And take 2 all drs > Get DASH book > U almost certainly have recurrent Conn's or of others in family have > similar prob GRA > > CE ms > > Sent from my iPhone > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote: > > > Welcome to the group. You don't mention if anyone ever told you to > > eat very > > little salt. I stay under 800 mg a day. If I eat more than that, I > > am sick > > and cannot sleep. > > > > Val > > > > From: hyperaldosteronism > > [mailto:hyperaldosteronism] On Behalf Of > ulffreddy1 > > > > Happy to be among equals. I am a male born 1950. There is a history > > of autoimmune deseases in our family. My sister has pernicious > > anemia, hypothereose and arthrisis. Her daughter has pernicious > > anemia, hypothyreose, and living with lupus since she was borne. > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed > > the right gland and the surgeon said the tumor was as big as the the > > gland. > > I think i had the symptoms from very early on, maybe already as a > > child. During college I used to skip to days a week. Looking back I > > see that I was feeling tired. I used to train during wintertime, but > > had trouble to run playing soccer in summer. Enlisted in the > military > > 19 years old and had diffuculties competing with the others when it > > was hot. One warm day I even fainted standing along the others. > Other > > symptoms were anxiety, my handwas shaking when drinking coffee and I > > had to use both hands. Turning 20 and the headaches started on. > In 81 > > I was diagnosed with hypertension and low pottassium. At 30 I begun > > to frequent the bathroom during nighttime. I used to fall asleep > 4 to > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > > headaches disapeared and I started to sleep well again. The left > > gland was producing to much aldo, 1400, and I was put on 50-100 > > spiro. Still BP remained high, about 105, and the endo I was seeing > > every 3 months said it was ok. Because of the sideeffects we tried > > another medicament. In the beginning it worked ok, but then BP was > > 140. We then had to use spiro again, but at that time I started to > > get irregular heartbeats. Determined to lower BP I visited a > > cardiovascular center and I got 100 mg Selozok in addition. Since > > then BP has been ok and for a while the extra systoles stopped. One > > night in 90 I started to frequent the the bathroom again and the > > irregular heartbeats got worse and I had it 24 hours a day. Going to > > bed was terrible because then it got even worse and I had problems > > laying on my left side and the stomach. My endo thought this was not > > related to PA and in 96 I had surgery burning the nerves in the > > bladder, but to no help. During this years I had almost no sleep. I > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours > > sleep. In 2 weeks time I would almost certain have 3 days with no > > sleep. In 2000 I met another endo who is quit controversial. He > did a > > lot of tests, and I was set on low dose levaxin. My aching muscles > > got better and the sleep started to be better, I even fall into deep > > sleep. Then he adviced me to eat every 2 hours, mostly > vegetables, no > > fruit,no potatoes, no sweet,no dairy products. After 1 week the > > irregular heartbeats disappeared and I am in much better conditons > > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit > > d and k suplements, calsium, omega 3 and DHEA. The sleep is still > not > > perfect. I dont know if could be better with low salt diet. The > > kidney areas is hurting and I some time have problems to swallow. If > > you have some advice? This was not meant to complain, I am feeling > > quit well and is in fulltime job. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 See if she can get the exact results and let us look At them and need their normal values Sent from my iPhone May your pressure be low! CE Grim MS MD Specializing in Difficult Hypertension Senior Consultant to Shared Care Research and Education Consulting Inc Sharedcareinc@... On Nov 26, 2008, at 9:56 AM, Freddy Johansen <ulffreddy1@...> wrote: > Hello again. Thinking little more about it I see that my sister > maybe has PA, she has most of the symptoms and feeling worse than I > ever have. But she has a lot of other illnesses. She was tested > several years ( 20) ago for Pa, but negative. It is a silly question > for you, but what should she be tested for? > S-aldo, s-renin, Kalium I suppose. If it is GRA what then? > > ________________________________ > From: Lowerbp2 <lowerbp2@...> > " hyperaldosteronism " <hyperaldosteronism > > > Sent: Monday, September 22, 2008 5:58:25 PM > Subject: Re: My story > > Classic story as u can see from our files. If u approve we will add > yours > If you can expand details > U need to get path report on > gland > Read in files Grim Evol of PA > And take 2 all drs > Get DASH book > U almost certainly have recurrent Conn's or of others in family have > similar prob GRA > > CE ms > > Sent from my iPhone > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote: > > > Welcome to the group. You don't mention if anyone ever told you to > > eat very > > little salt. I stay under 800 mg a day. If I eat more than that, I > > am sick > > and cannot sleep. > > > > Val > > > > From: hyperaldosteronism > > [mailto:hyperaldosteronism] On Behalf Of > ulffreddy1 > > > > Happy to be among equals. I am a male born 1950. There is a history > > of autoimmune deseases in our family. My sister has pernicious > > anemia, hypothereose and arthrisis. Her daughter has pernicious > > anemia, hypothyreose, and living with lupus since she was borne. > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed > > the right gland and the surgeon said the tumor was as big as the the > > gland. > > I think i had the symptoms from very early on, maybe already as a > > child. During college I used to skip to days a week. Looking back I > > see that I was feeling tired. I used to train during wintertime, but > > had trouble to run playing soccer in summer. Enlisted in the > military > > 19 years old and had diffuculties competing with the others when it > > was hot. One warm day I even fainted standing along the others. > Other > > symptoms were anxiety, my handwas shaking when drinking coffee and I > > had to use both hands. Turning 20 and the headaches started on. In > 81 > > I was diagnosed with hypertension and low pottassium. At 30 I begun > > to frequent the bathroom during nighttime. I used to fall asleep 4 > to > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > > headaches disapeared and I started to sleep well again. The left > > gland was producing to much aldo, 1400, and I was put on 50-100 > > spiro. Still BP remained high, about 105, and the endo I was seeing > > every 3 months said it was ok. Because of the sideeffects we tried > > another medicament. In the beginning it worked ok, but then BP was > > 140. We then had to use spiro again, but at that time I started to > > get irregular heartbeats. Determined to lower BP I visited a > > cardiovascular center and I got 100 mg Selozok in addition. Since > > then BP has been ok and for a while the extra systoles stopped. One > > night in 90 I started to frequent the the bathroom again and the > > irregular heartbeats got worse and I had it 24 hours a day. Going to > > bed was terrible because then it got even worse and I had problems > > laying on my left side and the stomach. My endo thought this was not > > related to PA and in 96 I had surgery burning the nerves in the > > bladder, but to no help. During this years I had almost no sleep. I > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours > > sleep. In 2 weeks time I would almost certain have 3 days with no > > sleep. In 2000 I met another endo who is quit controversial. He > did a > > lot of tests, and I was set on low dose levaxin. My aching muscles > > got better and the sleep started to be better, I even fall into deep > > sleep. Then he adviced me to eat every 2 hours, mostly vegetables, > no > > fruit,no potatoes, no sweet,no dairy products. After 1 week the > > irregular heartbeats disappeared and I am in much better conditons > > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit > > d and k suplements, calsium, omega 3 and DHEA. The sleep is still > not > > perfect. I dont know if could be better with low salt diet. The > > kidney areas is hurting and I some time have problems to swallow. If > > you have some advice? This was not meant to complain, I am feeling > > quit well and is in fulltime job. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2008 Report Share Posted November 26, 2008 Will keep you update. Thank you. ________________________________ From: Lowerbp2 <lowerbp2@...> " hyperaldosteronism " <hyperaldosteronism > Sent: Thursday, November 27, 2008 1:52:47 AM Subject: Re: My story See if she can get the exact results and let us look At them and need their normal values Sent from my iPhone May your pressure be low! CE Grim MS MD Specializing in Difficult Hypertension Senior Consultant to Shared Care Research and Education Consulting Inc Sharedcareinc@ mac.com On Nov 26, 2008, at 9:56 AM, Freddy Johansen <ulffreddy1 (DOT) com> wrote: > Hello again. Thinking little more about it I see that my sister > maybe has PA, she has most of the symptoms and feeling worse than I > ever have. But she has a lot of other illnesses. She was tested > several years ( 20) ago for Pa, but negative. It is a silly question > for you, but what should she be tested for? > S-aldo, s-renin, Kalium I suppose. If it is GRA what then? > > ____________ _________ _________ __ > From: Lowerbp2 <lowerbp2mac (DOT) com> > " hyperaldosteronism " <hyperaldosteronism@ groups. com > > > Sent: Monday, September 22, 2008 5:58:25 PM > Subject: Re: [hyperaldosteronism ] My story > > Classic story as u can see from our files. If u approve we will add > yours > If you can expand details > U need to get path report on > gland > Read in files Grim Evol of PA > And take 2 all drs > Get DASH book > U almost certainly have recurrent Conn's or of others in family have > similar prob GRA > > CE ms > > Sent from my iPhone > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote: > > > Welcome to the group. You don't mention if anyone ever told you to > > eat very > > little salt. I stay under 800 mg a day. If I eat more than that, I > > am sick > > and cannot sleep. > > > > Val > > > > From: hyperaldosteronism > > [mailto:hyperaldost eronism] On Behalf Of > ulffreddy1 > > > > Happy to be among equals. I am a male born 1950. There is a history > > of autoimmune deseases in our family. My sister has pernicious > > anemia, hypothereose and arthrisis. Her daughter has pernicious > > anemia, hypothyreose, and living with lupus since she was borne. > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed > > the right gland and the surgeon said the tumor was as big as the the > > gland. > > I think i had the symptoms from very early on, maybe already as a > > child. During college I used to skip to days a week. Looking back I > > see that I was feeling tired. I used to train during wintertime, but > > had trouble to run playing soccer in summer. Enlisted in the > military > > 19 years old and had diffuculties competing with the others when it > > was hot. One warm day I even fainted standing along the others. > Other > > symptoms were anxiety, my handwas shaking when drinking coffee and I > > had to use both hands. Turning 20 and the headaches started on. In > 81 > > I was diagnosed with hypertension and low pottassium. At 30 I begun > > to frequent the bathroom during nighttime. I used to fall asleep 4 > to > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the > > headaches disapeared and I started to sleep well again. The left > > gland was producing to much aldo, 1400, and I was put on 50-100 > > spiro. Still BP remained high, about 105, and the endo I was seeing > > every 3 months said it was ok. Because of the sideeffects we tried > > another medicament. In the beginning it worked ok, but then BP was > > 140. We then had to use spiro again, but at that time I started to > > get irregular heartbeats. Determined to lower BP I visited a > > cardiovascular center and I got 100 mg Selozok in addition. Since > > then BP has been ok and for a while the extra systoles stopped. One > > night in 90 I started to frequent the the bathroom again and the > > irregular heartbeats got worse and I had it 24 hours a day. Going to > > bed was terrible because then it got even worse and I had problems > > laying on my left side and the stomach. My endo thought this was not > > related to PA and in 96 I had surgery burning the nerves in the > > bladder, but to no help. During this years I had almost no sleep. I > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours > > sleep. In 2 weeks time I would almost certain have 3 days with no > > sleep. In 2000 I met another endo who is quit controversial. He > did a > > lot of tests, and I was set on low dose levaxin. My aching muscles > > got better and the sleep started to be better, I even fall into deep > > sleep. Then he adviced me to eat every 2 hours, mostly vegetables, > no > > fruit,no potatoes, no sweet,no dairy products. After 1 week the > > irregular heartbeats disappeared and I am in much better conditons > > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit > > d and k suplements, calsium, omega 3 and DHEA. The sleep is still > not > > perfect. I dont know if could be better with low salt diet. The > > kidney areas is hurting and I some time have problems to swallow. If > > you have some advice? This was not meant to complain, I am feeling > > quit well and is in fulltime job. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 w4jdc, Your story could be my story. In fact, I was denied a particular security clearance because I was (and still am) being treated for depression. I explained to the security people the nature of this condition and they basically ignored me. Luckily my employer is extremely understanding. Several years ago I was told that if I lost weight my pressure would come down. I lost 60 lbs over about a year and my pressure didn't budge! I dealt with poorly controlled blood pressure for about 20 years, along with all of the other symptoms. It wasn't until I lost the weight that they sent me to a hypertension specialist. My father also had adrenal issues. His condition was referred to as " 's " even though he took cortisone and spiro and had similar symptoms to mine. He died of heart failure 25 years ago. They didn't nail down his condition until he had 2 massive heart attacks before age 50. For 20 years I was telling the Doctors that my Dad had " Adrenal issues " and their response was " It's so rare there's no way you have it " . Finally 2 years ago the tested me for hyperaldosteronism and put me on spiro. Glad to hear that you have no symptoms, Mike > > I was first diagnosed with hypertension about 1997. I got the lectures > about being so young and how important it was to take my medication > because my blood pressure was not under control. At one point I was > put on a beta blocker and going to the doctor (GP) about every month. > I was told my potassium was low and that I should eat bananas and > oranges. I was told to exercise and I wouldn't even need BP > medication. > > I started having some life changing symptoms. I always felt like crap. > My legs cramped, I had difficulty concentrating, couldn't sleep, I had > chest pains and went to the hospital a few times thinking I was having > a heart attack. I ended up drinking some concoction to get my > potassium level up in the ER and being told to follow up with my > doctor. My doctor had put me on anti-depressants (which didn't work) > and was treating me for depression. > > I finally changed my doctor in late 2001. My father had just been > diagnosed with hyperaldosteronism and I told the new doctor. She > referred me to a Cardiologist who was researching hyperaldosteronism > and spiro. I was diagnosed and began taking spiro in early 2002. It > wasn't long before I was telling my doctor how great I felt. She sent > me to a psychiatrist for evaluation of the depression. The > psychiatrist got me off of anti-depressants and I have not taken any > since I was diagnosed with hyperaldosteronism. > > I have always been employed in a position of trust and the treatment > for depression is always questioned. When I tell even doctors about > the hyperaldosteronism they always ask me how to spell it and ask me > to describe the tests I was given to diagnose it. There is a lot of > ignorance about this condition and being treated for a mental health > condition. I always tell the truth about what I have been through and > hope they have the intelligence to do a little research, but I will > not be surprised when the day comes that I will be disqualified from > something, or a job, or a clearance because of my disorder. > > I have responded very well to treatment and have no symptoms. I take: > > Spironolactone 50mg once a day > Benicar HCT 40-25mg once a day > Norvasc 10mg once a day > > I went from 25 to 50mg spiro about two years ago when my BP was a > little high and I was having some chest pains again. > > My BP runs 108-120/75-85. Prior to spiro it was so bad that they've > held me at my doctor's office until they could get it down while I was > going through the process of being diagnosed. > > My father is in his early 60s and he takes 50mg a day. He is symptom > free as well. > > w4jdc > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 Thanks for your family story of PA. If you can get renin and aldo numbers on you and your father and they both confirm Dx you likely have a very rare form of PA. Be certain you get tested for a rare form of PA called Glucocorticoid Remedial Aldosteronism. So if you are sure your Dad and you both have PA then it is likely GRA. Get as detailed a family tree as you can of all who have died and age of death and what they died from. The reason to get tested is that if you have this very rare form (I have only seem two families in my career) then 50% of your first degree relatives may have the same problem and can be easily Dxed with a genetic test before HTN etc develops. This will prevent all the problems you and possibly your father had to suffer thru before the Dx became clear. I trust someone has asked you and your father about licorice ingestion which can mimic symptoms of PA but instead of a high aldo the aldo will be very low. This is discussed briefly in my review article in our files which you should read and take to your current Dr. as well as all Drs. who have missed your DX in the past. The first clue was early onset HTN and low K. This should always trigger testing for PA. All guidelines recommend this. If you have not been advised to DASH then you should start (after talking to your Dr) and it is likely that you will be able to taper down the Benicar (which does not work in PA) and the HCT which can cause low K. You may also be able to taper and stop the Norvasc. IMHO your BP is lower than it needs to be, but again your Dr. knows you better than we do here. as they are tested before they have HTN etc. inherited forms of May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 4, 2009, at 8:02 AM, w4jdc wrote: > I was first diagnosed with hypertension about 1997. I got the lectures > about being so young and how important it was to take my medication > because my blood pressure was not under control. At one point I was > put on a beta blocker and going to the doctor (GP) about every month. > I was told my potassium was low and that I should eat bananas and > oranges. I was told to exercise and I wouldn't even need BP > medication. > > I started having some life changing symptoms. I always felt like crap. > My legs cramped, I had difficulty concentrating, couldn't sleep, I had > chest pains and went to the hospital a few times thinking I was having > a heart attack. I ended up drinking some concoction to get my > potassium level up in the ER and being told to follow up with my > doctor. My doctor had put me on anti-depressants (which didn't work) > and was treating me for depression. > > I finally changed my doctor in late 2001. My father had just been > diagnosed with hyperaldosteronism and I told the new doctor. She > referred me to a Cardiologist who was researching hyperaldosteronism > and spiro. I was diagnosed and began taking spiro in early 2002. It > wasn't long before I was telling my doctor how great I felt. She sent > me to a psychiatrist for evaluation of the depression. The > psychiatrist got me off of anti-depressants and I have not taken any > since I was diagnosed with hyperaldosteronism. > > I have always been employed in a position of trust and the treatment > for depression is always questioned. When I tell even doctors about > the hyperaldosteronism they always ask me how to spell it and ask me > to describe the tests I was given to diagnose it. There is a lot of > ignorance about this condition and being treated for a mental health > condition. I always tell the truth about what I have been through and > hope they have the intelligence to do a little research, but I will > not be surprised when the day comes that I will be disqualified from > something, or a job, or a clearance because of my disorder. > > I have responded very well to treatment and have no symptoms. I take: > > Spironolactone 50mg once a day > Benicar HCT 40-25mg once a day > Norvasc 10mg once a day > > I went from 25 to 50mg spiro about two years ago when my BP was a > little high and I was having some chest pains again. > > My BP runs 108-120/75-85. Prior to spiro it was so bad that they've > held me at my doctor's office until they could get it down while I was > going through the process of being diagnosed. > > My father is in his early 60s and he takes 50mg a day. He is symptom > free as well. > > w4jdc > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2009 Report Share Posted January 4, 2009 If you can get us renin and aldo numbers, CT or MRI results and AVS, if done, we will add your story to our files. It will be called w4jdc's story. If you look at these stories you will see many similarites to others. Keep us posted on how you are doing and pick our brains and experiences as much as you need. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 4, 2009, at 8:02 AM, w4jdc wrote: > I was first diagnosed with hypertension about 1997. I got the lectures > about being so young and how important it was to take my medication > because my blood pressure was not under control. At one point I was > put on a beta blocker and going to the doctor (GP) about every month. > I was told my potassium was low and that I should eat bananas and > oranges. I was told to exercise and I wouldn't even need BP > medication. > > I started having some life changing symptoms. I always felt like crap. > My legs cramped, I had difficulty concentrating, couldn't sleep, I had > chest pains and went to the hospital a few times thinking I was having > a heart attack. I ended up drinking some concoction to get my > potassium level up in the ER and being told to follow up with my > doctor. My doctor had put me on anti-depressants (which didn't work) > and was treating me for depression. > > I finally changed my doctor in late 2001. My father had just been > diagnosed with hyperaldosteronism and I told the new doctor. She > referred me to a Cardiologist who was researching hyperaldosteronism > and spiro. I was diagnosed and began taking spiro in early 2002. It > wasn't long before I was telling my doctor how great I felt. She sent > me to a psychiatrist for evaluation of the depression. The > psychiatrist got me off of anti-depressants and I have not taken any > since I was diagnosed with hyperaldosteronism. > > I have always been employed in a position of trust and the treatment > for depression is always questioned. When I tell even doctors about > the hyperaldosteronism they always ask me how to spell it and ask me > to describe the tests I was given to diagnose it. There is a lot of > ignorance about this condition and being treated for a mental health > condition. I always tell the truth about what I have been through and > hope they have the intelligence to do a little research, but I will > not be surprised when the day comes that I will be disqualified from > something, or a job, or a clearance because of my disorder. > > I have responded very well to treatment and have no symptoms. I take: > > Spironolactone 50mg once a day > Benicar HCT 40-25mg once a day > Norvasc 10mg once a day > > I went from 25 to 50mg spiro about two years ago when my BP was a > little high and I was having some chest pains again. > > My BP runs 108-120/75-85. Prior to spiro it was so bad that they've > held me at my doctor's office until they could get it down while I was > going through the process of being diagnosed. > > My father is in his early 60s and he takes 50mg a day. He is symptom > free as well. > > w4jdc > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2009 Report Share Posted January 5, 2009 My story is not unlike w4jdc's. I was diagnosed with high BP 4 years ago. I own a business and was in a very stressful relationship, so I passed it off as emotional overload, I would get over in time. But my BP didn't lower and in March of this year, after thinking I was having a heart attack (palpitations, migraines, fatigue and this weird hot flash I'd get right before going to sleep) I decided to go to a cardiologist. After a random CT scan, an adrenal adenoma was discovered and my journey began. I have been to 3 endo's, had an MRI, taken the AVS, done tons of urine tests, had a saline suppression, had so many blood tests that a vampire would shiver, and now my last stop is the ever dreaded urine jug collection. I have been taken off spiro for the tests and never put back on. I take potassium supplements 3x daily which has literally saved my life. I still take nipedifine but no diurectic, so I bloat with the sodium foods. Do I still feel fatigued and like zombie has invaded my body? Yes. I read so many of you that are happy taking spiro and this makes me happy. Maybe I should go on it again, my endo still hasn't pushed it yet. However, I must be honest (this is my first entry with this group), I am not an advocate of a lot of meds because I feel like a slave to them as it is. I have asthma and already take advair, singulair, homepathic nasal spray (because the flonase is like nose-heroine). I also take some girl stuff and now welbutron (sp?) cause my hormones are completely off. Adding another drug such as spiro scares me. Why? Because I read too much. Prednisone, a drug I've taken more times than I can remember, mimics the function of the natural hormones produced by the adrenal glands. When you're on it for long periods of time, the production of natural adrenal hormones decreases because of prednisones effect on the pituitary, the master gland that controls the adrenals. So there you have it. I am afraid to put something else in my body for long periods of time because of the long term consequences such as what I'm dealing with now-this thing called Conns. Is it just going to create another chain of major organ (d)effects? And please, Dr. Grim or anybody.. could you please tell me the long term effects of spironolactone? Also, how long has it been on the market? Thank you in advance for any responses. Good luck to all of you with this insideous disease. w4jdc- I send you good energy that no one ever discredits you based on your difficult journey. F.S. > > I was first diagnosed with hypertension about 1997. I got the lectures > about being so young and how important it was to take my medication > because my blood pressure was not under control. At one point I was > put on a beta blocker and going to the doctor (GP) about every month. > I was told my potassium was low and that I should eat bananas and > oranges. I was told to exercise and I wouldn't even need BP > medication. > > I started having some life changing symptoms. I always felt like crap. > My legs cramped, I had difficulty concentrating, couldn't sleep, I had > chest pains and went to the hospital a few times thinking I was having > a heart attack. I ended up drinking some concoction to get my > potassium level up in the ER and being told to follow up with my > doctor. My doctor had put me on anti-depressants (which didn't work) > and was treating me for depression. > > I finally changed my doctor in late 2001. My father had just been > diagnosed with hyperaldosteronism and I told the new doctor. She > referred me to a Cardiologist who was researching hyperaldosteronism > and spiro. I was diagnosed and began taking spiro in early 2002. It > wasn't long before I was telling my doctor how great I felt. She sent > me to a psychiatrist for evaluation of the depression. The > psychiatrist got me off of anti-depressants and I have not taken any > since I was diagnosed with hyperaldosteronism. > > I have always been employed in a position of trust and the treatment > for depression is always questioned. When I tell even doctors about > the hyperaldosteronism they always ask me how to spell it and ask me > to describe the tests I was given to diagnose it. There is a lot of > ignorance about this condition and being treated for a mental health > condition. I always tell the truth about what I have been through and > hope they have the intelligence to do a little research, but I will > not be surprised when the day comes that I will be disqualified from > something, or a job, or a clearance because of my disorder. > > I have responded very well to treatment and have no symptoms. I take: > > Spironolactone 50mg once a day > Benicar HCT 40-25mg once a day > Norvasc 10mg once a day > > I went from 25 to 50mg spiro about two years ago when my BP was a > little high and I was having some chest pains again. > > My BP runs 108-120/75-85. Prior to spiro it was so bad that they've > held me at my doctor's office until they could get it down while I was > going through the process of being diagnosed. > > My father is in his early 60s and he takes 50mg a day. He is symptom > free as well. > > w4jdc > Quote Link to comment Share on other sites More sharing options...
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