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Guess that by path report you mean different measurements during the years. In

86 when arrival at the hospital K was 2,8, I then got Kaleroid tablets and K

increased to 3,9 and during analysis fell to 3.2. For 2 weeks I did not take

Tenormin and Peripress and BT increased to 170/120-130. By Caprotil-test aldo

08.00 was 1902,10.00 was 1955 and 20.00 489 and PRA was less than 0,2.  By renin

stimulation there wa no increase in renin and aldo varied from 2440 to 630.

In 2008 is aldo 1675 K 4,4. My endo has not been that much interested in my PA

and he has not checked Na or renin. Guess he should.

It is ok adding me to your files. There is no others in my family that have PA

or low K. Most have lived to old age. My father died 78 and my mother 72 of a

smokerelated illness.

Re: My story

Classic story as u can see from our files. If u approve we will add

yours

If you can expand details

U need to get path report on

gland

Read in files Grim Evol of PA

And take 2 all drs

Get DASH book

U almost certainly have recurrent Conn's or of others in family have

similar prob GRA

CE ms

Sent from my iPhone

On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote:

> Welcome to the group. You don't mention if anyone ever told you to

> eat very

> little salt. I stay under 800 mg a day. If I eat more than that, I

> am sick

> and cannot sleep.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism] On Behalf Of ulffreddy1

>

> Happy to be among equals. I am a male born 1950. There is a history

> of autoimmune deseases in our family. My sister has pernicious

> anemia, hypothereose and arthrisis. Her daughter has pernicious

> anemia, hypothyreose, and living with lupus since she was borne.

> I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed

> the right gland and the surgeon said the tumor was as big as the the

> gland.

> I think i had the symptoms from very early on, maybe already as a

> child. During college I used to skip to days a week. Looking back I

> see that I was feeling tired. I used to train during wintertime, but

> had trouble to run playing soccer in summer. Enlisted in the military

> 19 years old and had diffuculties competing with the others when it

> was hot. One warm day I even fainted standing along the others. Other

> symptoms were anxiety, my handwas shaking when drinking coffee and I

> had to use both hands. Turning 20 and the headaches started on. In 81

> I was diagnosed with hypertension and low pottassium. At 30 I begun

> to frequent the bathroom during nighttime. I used to fall asleep 4 to

> 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> headaches disapeared and I started to sleep well again.. The left

> gland was producing to much aldo, 1400, and I was put on 50-100

> spiro. Still BP remained high, about 105, and the endo I was seeing

> every 3 months said it was ok. Because of the sideeffects we tried

> another medicament. In the beginning it worked ok, but then BP was

> 140.. We then had to use spiro again, but at that time I started to

> get irregular heartbeats. Determined to lower BP I visited a

> cardiovascular center and I got 100 mg Selozok in addition. Since

> then BP has been ok and for a while the extra systoles stopped. One

> night in 90 I started to frequent the the bathroom again and the

> irregular heartbeats got worse and I had it 24 hours a day. Going to

> bed was terrible because then it got even worse and I had problems

> laying on my left side and the stomach. My endo thought this was not

> related to PA and in 96 I had surgery burning the nerves in the

> bladder, but to no help. During this years I had almost no sleep. I

> would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours

> sleep. In 2 weeks time I would almost certain have 3 days with no

> sleep. In 2000 I met another endo who is quit controversial. He did a

> lot of tests, and I was set on low dose levaxin. My aching muscles

> got better and the sleep started to be better, I even fall into deep

> sleep. Then he adviced me to eat every 2 hours, mostly vegetables, no

> fruit,no potatoes, no sweet,no dairy products. After 1 week the

> irregular heartbeats disappeared and I am in much better conditons

> now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit

> d and k suplements, calsium, omega 3 and DHEA. The sleep is still not

> perfect. I dont know if could be better with low salt diet. The

> kidney areas is hurting and I some time have problems to swallow. If

> you have some advice? This was not meant to complain, I am feeling

> quit well and is in fulltime job.

>

>

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Freddy, I track everything I eat with FitDay. You can buy the program for

about $30 or use it online free. That's the only way I can keep track of my

sodium. I'm finding that sodium is very much related to how I sleep. Last

weekend, I ate 1,800 mg in one day. I barely slept all night and not much

the next night. It also contributes to my nerves and tremor. If I eat

1,500 mg Na for two days in a row, I am sick for a week. The less salt you

eat, the less blood pressure medicine you need. I have found staying under

800 mg/d is not terribly difficult. The only problem is trying to ever eat

in a restaurant.

Have you tried to use Inspra. According to the literature, only spiro and

Inspra can control and reverse any heart damage. I had irregular heart

beats until I'd been on spiro for two months. I went on a beta blocker for

about a month and one day, realized the irregular beats had stopped so I

weaned off that.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Freddy Johansen

Cant remember that any of the 4 endos I have been seeing have mentioned

that. But I for certain been reading about it in articles about aldo and I

have no craving for salt. Guess my saltintake is very low, but not sure how

low.

----- Original Message ----

From: Valarie <val@... <mailto:val%40wyosip.com> >

Welcome to the group. You don't mention if anyone ever told you to eat very

little salt. I stay under 800 mg a day. If I eat more than that, I am sick

and cannot sleep.

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Share on other sites

Thanks Freddy. If you can merge all of this into a detailed story we

will put it in our files as Freddy's Story. You have gone thru all

stages of PA evolution as you and your Drs will realize when you read

my article.

I am not clear if HTN or low K has returned since surgery. Can you

give more details?

CE Grim MD

By Patho report I mean the written report of the pathological

findings under the microscope of the adrenal they took out. This will

help us and future Drs know better how to deal with

On Sep 24, 2008, at 8:51 AM, Freddy Johansen wrote:

> Guess that by path report you mean different measurements during

> the years. In 86 when arrival at the hospital K was 2,8, I then got

> Kaleroid tablets and K increased to 3,9 and during analysis fell to

> 3.2. For 2 weeks I did not take Tenormin and Peripress and BT

> increased to 170/120-130. By Caprotil-test aldo 08.00 was

> 1902,10.00 was 1955 and 20.00 489 and PRA was less than 0,2. By

> renin stimulation there wa no increase in renin and aldo varied

> from 2440 to 630.

> In 2008 is aldo 1675 K 4,4. My endo has not been that much

> interested in my PA and he has not checked Na or renin. Guess he

> should.

> It is ok adding me to your files. There is no others in my family

> that have PA or low K. Most have lived to old age. My father died

> 78 and my mother 72 of a smokerelated illness.

>

> Re: My story

>

> Classic story as u can see from our files. If u approve we will add

> yours

> If you can expand details

> U need to get path report on

> gland

> Read in files Grim Evol of PA

> And take 2 all drs

> Get DASH book

> U almost certainly have recurrent Conn's or of others in family have

> similar prob GRA

>

> CE ms

>

> Sent from my iPhone

>

> On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote:

>

> > Welcome to the group. You don't mention if anyone ever told you to

> > eat very

> > little salt. I stay under 800 mg a day. If I eat more than that, I

> > am sick

> > and cannot sleep.

> >

> > Val

> >

> > From: hyperaldosteronism

> > [mailto:hyperaldosteronism] On Behalf Of

> ulffreddy1

> >

> > Happy to be among equals. I am a male born 1950. There is a history

> > of autoimmune deseases in our family. My sister has pernicious

> > anemia, hypothereose and arthrisis. Her daughter has pernicious

> > anemia, hypothyreose, and living with lupus since she was borne.

> > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed

> > the right gland and the surgeon said the tumor was as big as the the

> > gland.

> > I think i had the symptoms from very early on, maybe already as a

> > child. During college I used to skip to days a week. Looking back I

> > see that I was feeling tired. I used to train during wintertime, but

> > had trouble to run playing soccer in summer. Enlisted in the

> military

> > 19 years old and had diffuculties competing with the others when it

> > was hot. One warm day I even fainted standing along the others.

> Other

> > symptoms were anxiety, my handwas shaking when drinking coffee and I

> > had to use both hands. Turning 20 and the headaches started on.

> In 81

> > I was diagnosed with hypertension and low pottassium. At 30 I begun

> > to frequent the bathroom during nighttime. I used to fall asleep

> 4 to

> > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> > headaches disapeared and I started to sleep well again.. The left

> > gland was producing to much aldo, 1400, and I was put on 50-100

> > spiro. Still BP remained high, about 105, and the endo I was seeing

> > every 3 months said it was ok. Because of the sideeffects we tried

> > another medicament. In the beginning it worked ok, but then BP was

> > 140.. We then had to use spiro again, but at that time I started to

> > get irregular heartbeats. Determined to lower BP I visited a

> > cardiovascular center and I got 100 mg Selozok in addition. Since

> > then BP has been ok and for a while the extra systoles stopped. One

> > night in 90 I started to frequent the the bathroom again and the

> > irregular heartbeats got worse and I had it 24 hours a day. Going to

> > bed was terrible because then it got even worse and I had problems

> > laying on my left side and the stomach. My endo thought this was not

> > related to PA and in 96 I had surgery burning the nerves in the

> > bladder, but to no help. During this years I had almost no sleep. I

> > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours

> > sleep. In 2 weeks time I would almost certain have 3 days with no

> > sleep. In 2000 I met another endo who is quit controversial. He

> did a

> > lot of tests, and I was set on low dose levaxin. My aching muscles

> > got better and the sleep started to be better, I even fall into deep

> > sleep. Then he adviced me to eat every 2 hours, mostly

> vegetables, no

> > fruit,no potatoes, no sweet,no dairy products. After 1 week the

> > irregular heartbeats disappeared and I am in much better conditons

> > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit

> > d and k suplements, calsium, omega 3 and DHEA. The sleep is still

> not

> > perfect. I dont know if could be better with low salt diet. The

> > kidney areas is hurting and I some time have problems to swallow. If

> > you have some advice? This was not meant to complain, I am feeling

> > quit well and is in fulltime job.

> >

> >

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The journal remain at the hospital and I suppose they will be reluctant to give

it to me. I may try to ask the doc i see regulary to ask for it and then he can

give it to me. I will call the hospital and ask. Anyway I think it will take

some time. This is Norway. The reason i think its not gra is what i have

mentioned, but as I have read in your paper that some cause can be psykosocial

stress. Today I have some distance to it, but from early childhood there was an

immense stress on our family as my father was paranoid and schizofrenic and was

when enraged quit violent.  I was nor hurt, but my mother was, and we were very

scared. All in all he was a good guy, trying to do his best.

I have some extra palpituations during the day and when i am resting my pulse is

relative fast, about 90. During sleep I can wake because my  pulse is so fast

and  the heart can be " wobbling " . Lately this has been increasing.  I take

100 mg Spiro and 100 mg Selozok at dinner every day and 50 mg Liothyroid and 50

mg levaxin during the day. Is it an idea to change Spiro and Selozok with Inspra

? For about 10 years ago I was at a cariovascular center, all was fine but the

thickness of the heartmuscle was at the upper normal limit. Since then BT has

been ok.

After surgery high BT remained and aldo was high so i was first set on 50 mg

Spiro. It has not been necessary to have extra Kaleroid tablets.

Re: [hyperaldosteronism ] My story

>

> Classic story as u can see from our files. If u approve we will add

> yours

> If you can expand details

> U need to get path report on

> gland

> Read in files Grim Evol of PA

> And take 2 all drs

> Get DASH book

> U almost certainly have recurrent Conn's or of others in family have

> similar prob GRA

>

> CE ms

>

> Sent from my iPhone

>

> On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote:

>

> > Welcome to the group. You don't mention if anyone ever told you to

> > eat very

> > little salt. I stay under 800 mg a day. If I eat more than that, I

> > am sick

> > and cannot sleep.

> >

> > Val

> >

> > From: hyperaldosteronism

> > [mailto:hyperaldost eronism] On Behalf Of

> ulffreddy1

> >

> > Happy to be among equals. I am a male born 1950. There is a history

> > of autoimmune deseases in our family. My sister has pernicious

> > anemia, hypothereose and arthrisis. Her daughter has pernicious

> > anemia, hypothyreose, and living with lupus since she was borne.

> > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed

> > the right gland and the surgeon said the tumor was as big as the the

> > gland.

> > I think i had the symptoms from very early on, maybe already as a

> > child. During college I used to skip to days a week. Looking back I

> > see that I was feeling tired. I used to train during wintertime, but

> > had trouble to run playing soccer in summer. Enlisted in the

> military

> > 19 years old and had diffuculties competing with the others when it

> > was hot. One warm day I even fainted standing along the others.

> Other

> > symptoms were anxiety, my handwas shaking when drinking coffee and I

> > had to use both hands. Turning 20 and the headaches started on.

> In 81

> > I was diagnosed with hypertension and low pottassium. At 30 I begun

> > to frequent the bathroom during nighttime. I used to fall asleep

> 4 to

> > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> > headaches disapeared and I started to sleep well again.. The left

> > gland was producing to much aldo, 1400, and I was put on 50-100

> > spiro. Still BP remained high, about 105, and the endo I was seeing

> > every 3 months said it was ok. Because of the sideeffects we tried

> > another medicament. In the beginning it worked ok, but then BP was

> > 140.. We then had to use spiro again, but at that time I started to

> > get irregular heartbeats. Determined to lower BP I visited a

> > cardiovascular center and I got 100 mg Selozok in addition. Since

> > then BP has been ok and for a while the extra systoles stopped.. One

> > night in 90 I started to frequent the the bathroom again and the

> > irregular heartbeats got worse and I had it 24 hours a day. Going to

> > bed was terrible because then it got even worse and I had problems

> > laying on my left side and the stomach. My endo thought this was not

> > related to PA and in 96 I had surgery burning the nerves in the

> > bladder, but to no help. During this years I had almost no sleep. I

> > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours

> > sleep. In 2 weeks time I would almost certain have 3 days with no

> > sleep. In 2000 I met another endo who is quit controversial. He

> did a

> > lot of tests, and I was set on low dose levaxin. My aching muscles

> > got better and the sleep started to be better, I even fall into deep

> > sleep. Then he adviced me to eat every 2 hours, mostly

> vegetables, no

> > fruit,no potatoes, no sweet,no dairy products. After 1 week the

> > irregular heartbeats disappeared and I am in much better conditons

> > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit

> > d and k suplements, calsium, omega 3 and DHEA. The sleep is still

> not

> > perfect. I dont know if could be better with low salt diet. The

> > kidney areas is hurting and I some time have problems to swallow. If

> > you have some advice? This was not meant to complain, I am feeling

> > quit well and is in fulltime job.

> >

> >

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If you are having palpataions now your K is likely low. Have they

checked it recently?

You are also on thryoid and it it is too much that can cause heart

palpataions. You should mention both of these to your Dr.

Waht is the other name for Selozok?

For BP or heart or what?

CE Grim MD

On Sep 25, 2008, at 1:01 PM, Freddy Johansen wrote:

> The journal remain at the hospital and I suppose they will be

> reluctant to give it to me. I may try to ask the doc i see regulary

> to ask for it and then he can give it to me. I will call the

> hospital and ask. Anyway I think it will take some time. This is

> Norway. The reason i think its not gra is what i have mentioned,

> but as I have read in your paper that some cause can be psykosocial

> stress. Today I have some distance to it, but from early childhood

> there was an immense stress on our family as my father was paranoid

> and schizofrenic and was when enraged quit violent. I was nor

> hurt, but my mother was, and we were very scared. All in all he was

> a good guy, trying to do his best.

> I have some extra palpituations during the day and when i am

> resting my pulse is relative fast, about 90. During sleep I can

> wake because my pulse is so fast and the heart can be " wobbling " .

> Lately this has been increasing. I take 100 mg Spiro and 100 mg

> Selozok at dinner every day and 50 mg Liothyroid and 50 mg levaxin

> during the day. Is it an idea to change Spiro and Selozok with

> Inspra ? For about 10 years ago I was at a cariovascular center,

> all was fine but the thickness of the heartmuscle was at the upper

> normal limit. Since then BT has been ok.

> After surgery high BT remained and aldo was high so i was first set

> on 50 mg Spiro. It has not been necessary to have extra Kaleroid

> tablets.

>

> Re: [hyperaldosteronism ] My story

> >

> > Classic story as u can see from our files. If u approve we will add

> > yours

> > If you can expand details

> > U need to get path report on

> > gland

> > Read in files Grim Evol of PA

> > And take 2 all drs

> > Get DASH book

> > U almost certainly have recurrent Conn's or of others in family have

> > similar prob GRA

> >

> > CE ms

> >

> > Sent from my iPhone

> >

> > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote:

> >

> > > Welcome to the group. You don't mention if anyone ever told you to

> > > eat very

> > > little salt. I stay under 800 mg a day. If I eat more than that, I

> > > am sick

> > > and cannot sleep.

> > >

> > > Val

> > >

> > > From: hyperaldosteronism

> > > [mailto:hyperaldost eronism] On Behalf Of

> > ulffreddy1

> > >

> > > Happy to be among equals. I am a male born 1950. There is a

> history

> > > of autoimmune deseases in our family. My sister has pernicious

> > > anemia, hypothereose and arthrisis. Her daughter has pernicious

> > > anemia, hypothyreose, and living with lupus since she was borne.

> > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed

> > > the right gland and the surgeon said the tumor was as big as

> the the

> > > gland.

> > > I think i had the symptoms from very early on, maybe already as a

> > > child. During college I used to skip to days a week. Looking

> back I

> > > see that I was feeling tired. I used to train during

> wintertime, but

> > > had trouble to run playing soccer in summer. Enlisted in the

> > military

> > > 19 years old and had diffuculties competing with the others

> when it

> > > was hot. One warm day I even fainted standing along the others.

> > Other

> > > symptoms were anxiety, my handwas shaking when drinking coffee

> and I

> > > had to use both hands. Turning 20 and the headaches started on.

> > In 81

> > > I was diagnosed with hypertension and low pottassium. At 30 I

> begun

> > > to frequent the bathroom during nighttime. I used to fall asleep

> > 4 to

> > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> > > headaches disapeared and I started to sleep well again.. The left

> > > gland was producing to much aldo, 1400, and I was put on 50-100

> > > spiro. Still BP remained high, about 105, and the endo I was

> seeing

> > > every 3 months said it was ok. Because of the sideeffects we tried

> > > another medicament. In the beginning it worked ok, but then BP was

> > > 140.. We then had to use spiro again, but at that time I

> started to

> > > get irregular heartbeats. Determined to lower BP I visited a

> > > cardiovascular center and I got 100 mg Selozok in addition. Since

> > > then BP has been ok and for a while the extra systoles

> stopped.. One

> > > night in 90 I started to frequent the the bathroom again and the

> > > irregular heartbeats got worse and I had it 24 hours a day.

> Going to

> > > bed was terrible because then it got even worse and I had problems

> > > laying on my left side and the stomach. My endo thought this

> was not

> > > related to PA and in 96 I had surgery burning the nerves in the

> > > bladder, but to no help. During this years I had almost no

> sleep. I

> > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3

> hours

> > > sleep. In 2 weeks time I would almost certain have 3 days with no

> > > sleep. In 2000 I met another endo who is quit controversial. He

> > did a

> > > lot of tests, and I was set on low dose levaxin. My aching muscles

> > > got better and the sleep started to be better, I even fall into

> deep

> > > sleep. Then he adviced me to eat every 2 hours, mostly

> > vegetables, no

> > > fruit,no potatoes, no sweet,no dairy products. After 1 week the

> > > irregular heartbeats disappeared and I am in much better conditons

> > > now. I guess he saved my life. Today my aldo is 1650, nat 145.

> I vit

> > > d and k suplements, calsium, omega 3 and DHEA. The sleep is still

> > not

> > > perfect. I dont know if could be better with low salt diet. The

> > > kidney areas is hurting and I some time have problems to

> swallow. If

> > > you have some advice? This was not meant to complain, I am feeling

> > > quit well and is in fulltime job.

> > >

> > >

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Thanks as noted in my article BB do not work well in PA. I would

recommend increasing spiro but talk with your Dr.

CE Grim MD

On Sep 25, 2008, at 8:15 PM, Valarie wrote:

> It is metoprolol

>

> http://drugs-about.com/drugs/selozok.html

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

>

> Waht is the other name for Selozok?

>

>

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Share on other sites

It is for BP

Re: [hyperaldosteronism ] My story

> >

> > Classic story as u can see from our files. If u approve we will add

> > yours

> > If you can expand details

> > U need to get path report on

> > gland

> > Read in files Grim Evol of PA

> > And take 2 all drs

> > Get DASH book

> > U almost certainly have recurrent Conn's or of others in family have

> > similar prob GRA

> >

> > CE ms

> >

> > Sent from my iPhone

> >

> > On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote:

> >

> > > Welcome to the group. You don't mention if anyone ever told you to

> > > eat very

> > > little salt. I stay under 800 mg a day. If I eat more than that, I

> > > am sick

> > > and cannot sleep.

> > >

> > > Val

> > >

> > > From: hyperaldosteronism

> > > [mailto:hyperaldost eronism] On Behalf Of

> > ulffreddy1

> > >

> > > Happy to be among equals. I am a male born 1950. There is a

> history

> > > of autoimmune deseases in our family. My sister has pernicious

> > > anemia, hypothereose and arthrisis. Her daughter has pernicious

> > > anemia, hypothyreose, and living with lupus since she was borne.

> > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed

> > > the right gland and the surgeon said the tumor was as big as

> the the

> > > gland.

> > > I think i had the symptoms from very early on, maybe already as a

> > > child. During college I used to skip to days a week. Looking

> back I

> > > see that I was feeling tired. I used to train during

> wintertime, but

> > > had trouble to run playing soccer in summer. Enlisted in the

> > military

> > > 19 years old and had diffuculties competing with the others

> when it

> > > was hot. One warm day I even fainted standing along the others.

> > Other

> > > symptoms were anxiety, my handwas shaking when drinking coffee

> and I

> > > had to use both hands. Turning 20 and the headaches started on.

> > In 81

> > > I was diagnosed with hypertension and low pottassium. At 30 I

> begun

> > > to frequent the bathroom during nighttime. I used to fall asleep

> > 4 to

> > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> > > headaches disapeared and I started to sleep well again.. The left

> > > gland was producing to much aldo, 1400, and I was put on 50-100

> > > spiro. Still BP remained high, about 105, and the endo I was

> seeing

> > > every 3 months said it was ok. Because of the sideeffects we tried

> > > another medicament. In the beginning it worked ok, but then BP was

> > > 140.. We then had to use spiro again, but at that time I

> started to

> > > get irregular heartbeats. Determined to lower BP I visited a

> > > cardiovascular center and I got 100 mg Selozok in addition. Since

> > > then BP has been ok and for a while the extra systoles

> stopped.. One

> > > night in 90 I started to frequent the the bathroom again and the

> > > irregular heartbeats got worse and I had it 24 hours a day.

> Going to

> > > bed was terrible because then it got even worse and I had problems

> > > laying on my left side and the stomach. My endo thought this

> was not

> > > related to PA and in 96 I had surgery burning the nerves in the

> > > bladder, but to no help. During this years I had almost no

> sleep. I

> > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3

> hours

> > > sleep. In 2 weeks time I would almost certain have 3 days with no

> > > sleep. In 2000 I met another endo who is quit controversial. He

> > did a

> > > lot of tests, and I was set on low dose levaxin. My aching muscles

> > > got better and the sleep started to be better, I even fall into

> deep

> > > sleep. Then he adviced me to eat every 2 hours, mostly

> > vegetables, no

> > > fruit,no potatoes, no sweet,no dairy products. After 1 week the

> > > irregular heartbeats disappeared and I am in much better conditons

> > > now.. I guess he saved my life. Today my aldo is 1650, nat 145.

> I vit

> > > d and k suplements, calsium, omega 3 and DHEA. The sleep is still

> > not

> > > perfect. I dont know if could be better with low salt diet. The

> > > kidney areas is hurting and I some time have problems to

> swallow. If

> > > you have some advice? This was not meant to complain, I am feeling

> > > quit well and is in fulltime job.

> > >

> > >

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Share on other sites

Val looked it up and its is metoprolol which may not work well in PA

as noted in my article.

CE Grim MD

On Sep 26, 2008, at 2:06 AM, Freddy Johansen wrote:

> It is for BP

>

> Re: [hyperaldosteronism ] My story

> > >

> > > Classic story as u can see from our files. If u approve we will

> add

> > > yours

> > > If you can expand details

> > > U need to get path report on

> > > gland

> > > Read in files Grim Evol of PA

> > > And take 2 all drs

> > > Get DASH book

> > > U almost certainly have recurrent Conn's or of others in family

> have

> > > similar prob GRA

> > >

> > > CE ms

> > >

> > > Sent from my iPhone

> > >

> > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...>

> wrote:

> > >

> > > > Welcome to the group. You don't mention if anyone ever told

> you to

> > > > eat very

> > > > little salt. I stay under 800 mg a day. If I eat more than

> that, I

> > > > am sick

> > > > and cannot sleep.

> > > >

> > > > Val

> > > >

> > > > From: hyperaldosteronism

> > > > [mailto:hyperaldost eronism] On Behalf Of

> > > ulffreddy1

> > > >

> > > > Happy to be among equals. I am a male born 1950. There is a

> > history

> > > > of autoimmune deseases in our family. My sister has pernicious

> > > > anemia, hypothereose and arthrisis. Her daughter has pernicious

> > > > anemia, hypothyreose, and living with lupus since she was borne.

> > > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery

> removed

> > > > the right gland and the surgeon said the tumor was as big as

> > the the

> > > > gland.

> > > > I think i had the symptoms from very early on, maybe already

> as a

> > > > child. During college I used to skip to days a week. Looking

> > back I

> > > > see that I was feeling tired. I used to train during

> > wintertime, but

> > > > had trouble to run playing soccer in summer. Enlisted in the

> > > military

> > > > 19 years old and had diffuculties competing with the others

> > when it

> > > > was hot. One warm day I even fainted standing along the others.

> > > Other

> > > > symptoms were anxiety, my handwas shaking when drinking coffee

> > and I

> > > > had to use both hands. Turning 20 and the headaches started on.

> > > In 81

> > > > I was diagnosed with hypertension and low pottassium. At 30 I

> > begun

> > > > to frequent the bathroom during nighttime. I used to fall asleep

> > > 4 to

> > > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> > > > headaches disapeared and I started to sleep well again.. The

> left

> > > > gland was producing to much aldo, 1400, and I was put on 50-100

> > > > spiro. Still BP remained high, about 105, and the endo I was

> > seeing

> > > > every 3 months said it was ok. Because of the sideeffects we

> tried

> > > > another medicament. In the beginning it worked ok, but then

> BP was

> > > > 140.. We then had to use spiro again, but at that time I

> > started to

> > > > get irregular heartbeats. Determined to lower BP I visited a

> > > > cardiovascular center and I got 100 mg Selozok in addition.

> Since

> > > > then BP has been ok and for a while the extra systoles

> > stopped.. One

> > > > night in 90 I started to frequent the the bathroom again and the

> > > > irregular heartbeats got worse and I had it 24 hours a day.

> > Going to

> > > > bed was terrible because then it got even worse and I had

> problems

> > > > laying on my left side and the stomach. My endo thought this

> > was not

> > > > related to PA and in 96 I had surgery burning the nerves in the

> > > > bladder, but to no help. During this years I had almost no

> > sleep. I

> > > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3

> > hours

> > > > sleep. In 2 weeks time I would almost certain have 3 days

> with no

> > > > sleep. In 2000 I met another endo who is quit controversial. He

> > > did a

> > > > lot of tests, and I was set on low dose levaxin. My aching

> muscles

> > > > got better and the sleep started to be better, I even fall into

> > deep

> > > > sleep. Then he adviced me to eat every 2 hours, mostly

> > > vegetables, no

> > > > fruit,no potatoes, no sweet,no dairy products. After 1 week the

> > > > irregular heartbeats disappeared and I am in much better

> conditons

> > > > now.. I guess he saved my life. Today my aldo is 1650, nat 145.

> > I vit

> > > > d and k suplements, calsium, omega 3 and DHEA. The sleep is

> still

> > > not

> > > > perfect. I dont know if could be better with low salt diet. The

> > > > kidney areas is hurting and I some time have problems to

> > swallow. If

> > > > you have some advice? This was not meant to complain, I am

> feeling

> > > > quit well and is in fulltime job.

> > > >

> > > >

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Share on other sites

I used it for a while and it seemed to even out my heartbeats. After a while

the irregularities stopped when I'd been on spiro long enough. I then weaned

off the metroprolol. I imagine when I got on enough spiro for long enough time,

my increased K stopped the irregular heart beats.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Val looked it up and its is metoprolol which may not work well in PA

as noted in my article.

CE Grim MD

On Sep 26, 2008, at 2:06 AM, Freddy Johansen wrote:

> It is for BP

>

> Re: [hyperaldosteronism ] My story

> > >

> > > Classic story as u can see from our files. If u approve we will

> add

> > > yours

> > > If you can expand details

> > > U need to get path report on

> > > gland

> > > Read in files Grim Evol of PA

> > > And take 2 all drs

> > > Get DASH book

> > > U almost certainly have recurrent Conn's or of others in family

> have

> > > similar prob GRA

> > >

> > > CE ms

> > >

> > > Sent from my iPhone

> > >

> > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...

<mailto:val%40wyosip.com> >

> wrote:

> > >

> > > > Welcome to the group. You don't mention if anyone ever told

> you to

> > > > eat very

> > > > little salt. I stay under 800 mg a day. If I eat more than

> that, I

> > > > am sick

> > > > and cannot sleep.

> > > >

> > > > Val

> > > >

> > > > From: hyperaldosteronism

> > > > [mailto:hyperaldost eronism] On Behalf Of

> > > ulffreddy1

> > > >

> > > > Happy to be among equals. I am a male born 1950. There is a

> > history

> > > > of autoimmune deseases in our family. My sister has pernicious

> > > > anemia, hypothereose and arthrisis. Her daughter has pernicious

> > > > anemia, hypothyreose, and living with lupus since she was borne.

> > > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery

> removed

> > > > the right gland and the surgeon said the tumor was as big as

> > the the

> > > > gland.

> > > > I think i had the symptoms from very early on, maybe already

> as a

> > > > child. During college I used to skip to days a week. Looking

> > back I

> > > > see that I was feeling tired. I used to train during

> > wintertime, but

> > > > had trouble to run playing soccer in summer. Enlisted in the

> > > military

> > > > 19 years old and had diffuculties competing with the others

> > when it

> > > > was hot. One warm day I even fainted standing along the others.

> > > Other

> > > > symptoms were anxiety, my handwas shaking when drinking coffee

> > and I

> > > > had to use both hands. Turning 20 and the headaches started on.

> > > In 81

> > > > I was diagnosed with hypertension and low pottassium. At 30 I

> > begun

> > > > to frequent the bathroom during nighttime. I used to fall asleep

> > > 4 to

> > > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> > > > headaches disapeared and I started to sleep well again.. The

> left

> > > > gland was producing to much aldo, 1400, and I was put on 50-100

> > > > spiro. Still BP remained high, about 105, and the endo I was

> > seeing

> > > > every 3 months said it was ok. Because of the sideeffects we

> tried

> > > > another medicament. In the beginning it worked ok, but then

> BP was

> > > > 140.. We then had to use spiro again, but at that time I

> > started to

> > > > get irregular heartbeats. Determined to lower BP I visited a

> > > > cardiovascular center and I got 100 mg Selozok in addition.

> Since

> > > > then BP has been ok and for a while the extra systoles

> > stopped.. One

> > > > night in 90 I started to frequent the the bathroom again and the

> > > > irregular heartbeats got worse and I had it 24 hours a day.

> > Going to

> > > > bed was terrible because then it got even worse and I had

> problems

> > > > laying on my left side and the stomach. My endo thought this

> > was not

> > > > related to PA and in 96 I had surgery burning the nerves in the

> > > > bladder, but to no help. During this years I had almost no

> > sleep. I

> > > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3

> > hours

> > > > sleep. In 2 weeks time I would almost certain have 3 days

> with no

> > > > sleep. In 2000 I met another endo who is quit controversial. He

> > > did a

> > > > lot of tests, and I was set on low dose levaxin. My aching

> muscles

> > > > got better and the sleep started to be better, I even fall into

> > deep

> > > > sleep. Then he adviced me to eat every 2 hours, mostly

> > > vegetables, no

> > > > fruit,no potatoes, no sweet,no dairy products. After 1 week the

> > > > irregular heartbeats disappeared and I am in much better

> conditons

> > > > now.. I guess he saved my life. Today my aldo is 1650, nat 145.

> > I vit

> > > > d and k suplements, calsium, omega 3 and DHEA. The sleep is

> still

> > > not

> > > > perfect. I dont know if could be better with low salt diet. The

> > > > kidney areas is hurting and I some time have problems to

> > swallow. If

> > > > you have some advice? This was not meant to complain, I am

> feeling

> > > > quit well and is in fulltime job.

> > > >

> > > >

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Share on other sites

  • 2 weeks later...

Val looked it up and its is metoprolol which may not work well in PA

as noted in my article.

CE Grim MD

On Sep 26, 2008, at 2:06 AM, Freddy Johansen wrote:

> It is for BP

>

> Re: [hyperaldosteronism ] My story

> > >

> > > Classic story as u can see from our files. If u approve we will

> add

> > > yours

> > > If you can expand details

> > > U need to get path report on

> > > gland

> > > Read in files Grim Evol of PA

> > > And take 2 all drs

> > > Get DASH book

> > > U almost certainly have recurrent Conn's or of others in family

> have

> > > similar prob GRA

> > >

> > > CE ms

> > >

> > > Sent from my iPhone

> > >

> > > On Sep 22, 2008, at 8:31 AM, Valarie <val@...>

> wrote:

> > >

> > > > Welcome to the group. You don't mention if anyone ever told

> you to

> > > > eat very

> > > > little salt. I stay under 800 mg a day. If I eat more than

> that, I

> > > > am sick

> > > > and cannot sleep.

> > > >

> > > > Val

> > > >

> > > > From: hyperaldosteronism

> > > > [mailto:hyperaldost eronism] On Behalf Of

> > > ulffreddy1

> > > >

> > > > Happy to be among equals. I am a male born 1950. There is a

> > history

> > > > of autoimmune deseases in our family. My sister has pernicious

> > > > anemia, hypothereose and arthrisis. Her daughter has pernicious

> > > > anemia, hypothyreose, and living with lupus since she was borne.

> > > > I was diagnosed with PA in 86. Aldo was then 2320. Surgery

> removed

> > > > the right gland and the surgeon said the tumor was as big as

> > the the

> > > > gland.

> > > > I think i had the symptoms from very early on, maybe already

> as a

> > > > child. During college I used to skip to days a week. Looking

> > back I

> > > > see that I was feeling tired. I used to train during

> > wintertime, but

> > > > had trouble to run playing soccer in summer. Enlisted in the

> > > military

> > > > 19 years old and had diffuculties competing with the others

> > when it

> > > > was hot. One warm day I even fainted standing along the others.

> > > Other

> > > > symptoms were anxiety, my handwas shaking when drinking coffee

> > and I

> > > > had to use both hands. Turning 20 and the headaches started on.

> > > In 81

> > > > I was diagnosed with hypertension and low pottassium. At 30 I

> > begun

> > > > to frequent the bathroom during nighttime. I used to fall asleep

> > > 4 to

> > > > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> > > > headaches disapeared and I started to sleep well again.. The

> left

> > > > gland was producing to much aldo, 1400, and I was put on 50-100

> > > > spiro. Still BP remained high, about 105, and the endo I was

> > seeing

> > > > every 3 months said it was ok. Because of the sideeffects we

> tried

> > > > another medicament. In the beginning it worked ok, but then BP

> was

> > > > 140.. We then had to use spiro again, but at that time I

> > started to

> > > > get irregular heartbeats. Determined to lower BP I visited a

> > > > cardiovascular center and I got 100 mg Selozok in addition.

> Since

> > > > then BP has been ok and for a while the extra systoles

> > stopped.. One

> > > > night in 90 I started to frequent the the bathroom again and the

> > > > irregular heartbeats got worse and I had it 24 hours a day.

> > Going to

> > > > bed was terrible because then it got even worse and I had

> problems

> > > > laying on my left side and the stomach. My endo thought this

> > was not

> > > > related to PA and in 96 I had surgery burning the nerves in the

> > > > bladder, but to no help. During this years I had almost no

> > sleep. I

> > > > would lay awake to 5 or 6 in the morning and maybe get 1 to 3

> > hours

> > > > sleep. In 2 weeks time I would almost certain have 3 days with

> no

> > > > sleep. In 2000 I met another endo who is quit controversial. He

> > > did a

> > > > lot of tests, and I was set on low dose levaxin. My aching

> muscles

> > > > got better and the sleep started to be better, I even fall into

> > deep

> > > > sleep. Then he adviced me to eat every 2 hours, mostly

> > > vegetables, no

> > > > fruit,no potatoes, no sweet,no dairy products. After 1 week the

> > > > irregular heartbeats disappeared and I am in much better

> conditons

> > > > now.. I guess he saved my life. Today my aldo is 1650, nat 145.

> > I vit

> > > > d and k suplements, calsium, omega 3 and DHEA. The sleep is

> still

> > > not

> > > > perfect. I dont know if could be better with low salt diet. The

> > > > kidney areas is hurting and I some time have problems to

> > swallow. If

> > > > you have some advice? This was not meant to complain, I am

> feeling

> > > > quit well and is in fulltime job.

> > > >

> > > >

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Share on other sites

  • 5 weeks later...

Hi there and welcome wallinglindac,

First, always get copies of every single test you have. Had you done that

years ago, you would have known you had an adrenal tumor.

Before you went on Aldactone, did you have aldosterone and renin tests? If

so, what were the results? Have you ever had a salt-loading test?

Why are you taking metoprolol? Why the other drugs? Where is your blood

pressure? Do you DASH?

In terms of surgery risks, do you have any other special health problem that

would make any surgery risky? Before having adrenal surgery, you must have

adrenal vein sampling. Even though your CT shows an adenoma, you could be

over-producing aldosterone from either or both adrenals.

In terms of your attacks - shakes, hot, cold, poor sleep, etc., many of us

here have that. You can look in the files where I have compiled lists of

various symptoms the members have written. They are in a file called Member

<hyperaldosteronism/files/Member%20Comm

ents/> Comments

I just finished seeing another doc at National Jewish. My cardio wanted a

consult from him on the possibility of carcinoid. I mentioned to him that I

had heard that any adrenal problem makes people have difficulty controlling

body temperature. He said that was correct. He took my sweats seriously.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of wallinglindac

Hi all! I first started having problems in 2001 when I started

having " spells " , which included getting really cold (my body would

be cold but my face would be hot) this progressed into shortness of

breath, sometimes chest pain and shaking that would start out mild

and then develop to the point that I was shaking uncontrollably all

over. I would end up at ER and they would tell me there was nothing

wrong with me. I was eventually diagnosed with panic attacks. I

kept telling them I didn't think it was panic attacks, as yes I

would get scared (because I didn't know what was happening to me)

but felt that each " spell " was beginning with some kind of internal

physical change in my body. Noone would listen. In all fairness, I

was in a very stressful living situation at that time. This

continued until I ended up being admitted in 2006. It was then that

I was finally told that I had an adrenal gland tumor. It had

actually been discovered several years prior but I had not been told

about it. I was started on 50 mg of Aldactone daily and remain on

that dosage today, along with Atacand 32 mg, Nexium 40 mg, Aspirin

81 mg, and now Metropolol 25 mg twice daily. The only time I have

seen a specialist was as a followup after being discharged from the

hospital in 2006. At that time, I was told about the surgery but

was told that it was too risky for me and that I would just have to

take a pill for the rest of my life and everything would be ok. I

didn't want to go on the Metropolol because I have not had good

experiences in the past with beta blockers, and as I expected I am

not sleeping well - usually wake up somewhere between 4-5 a.m. so

I'm getting a limited amount of sleep and my energy level goes up

and down. Sometimes it takes me several days of " resting " to feel

halfway normal. Other times, I may suddenly feel like someone just

gave me an injection of speed - eyes feel like saucers and no way to

sleep. The " spells " I was having are less frequent and not as

severe but the only thing I can do when it happens is take a pill

and go to bed. At this point, I guess my questions would be, is it

true that the surgery would be too risky for some people (or maybe

they just didn't want to recommend it because I didn't have

insurance at the time) and what tests should I still be having and

how often. I just went through a lot of testing last month but it

was the first tests that had been done for quite some time. I think

most tests turned out ok. There were a couple elevated levels that

the doc said he wasn't concerned about. Can't remember what they

were right now. Sorry this is so lengthy but wanted to get it all

said. Maybe it will help someone else.

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Good you did not give us any data on potassium.

There are a number of kinds of adrenal tumors that cause HTN. Which

type do they think you have?

On Nov 9, 2008, at 5:45 AM, wallinglindac wrote:

> Hi all! I first started having problems in 2001 when I started

> having " spells " , which included getting really cold (my body would

> be cold but my face would be hot) this progressed into shortness of

> breath, sometimes chest pain and shaking that would start out mild

> and then develop to the point that I was shaking uncontrollably all

> over. I would end up at ER and they would tell me there was nothing

> wrong with me. I was eventually diagnosed with panic attacks. I

> kept telling them I didn't think it was panic attacks, as yes I

> would get scared (because I didn't know what was happening to me)

> but felt that each " spell " was beginning with some kind of internal

> physical change in my body. Noone would listen. In all fairness, I

> was in a very stressful living situation at that time. This

> continued until I ended up being admitted in 2006. It was then that

> I was finally told that I had an adrenal gland tumor. It had

> actually been discovered several years prior but I had not been told

> about it. I was started on 50 mg of Aldactone daily and remain on

> that dosage today, along with Atacand 32 mg, Nexium 40 mg, Aspirin

> 81 mg, and now Metropolol 25 mg twice daily. The only time I have

> seen a specialist was as a followup after being discharged from the

> hospital in 2006. At that time, I was told about the surgery but

> was told that it was too risky for me and that I would just have to

> take a pill for the rest of my life and everything would be ok. I

> didn't want to go on the Metropolol because I have not had good

> experiences in the past with beta blockers, and as I expected I am

> not sleeping well - usually wake up somewhere between 4-5 a.m. so

> I'm getting a limited amount of sleep and my energy level goes up

> and down. Sometimes it takes me several days of " resting " to feel

> halfway normal. Other times, I may suddenly feel like someone just

> gave me an injection of speed - eyes feel like saucers and no way to

> sleep. The " spells " I was having are less frequent and not as

> severe but the only thing I can do when it happens is take a pill

> and go to bed. At this point, I guess my questions would be, is it

> true that the surgery would be too risky for some people (or maybe

> they just didn't want to recommend it because I didn't have

> insurance at the time) and what tests should I still be having and

> how often. I just went through a lot of testing last month but it

> was the first tests that had been done for quite some time. I think

> most tests turned out ok. There were a couple elevated levels that

> the doc said he wasn't concerned about. Can't remember what they

> were right now. Sorry this is so lengthy but wanted to get it all

> said. Maybe it will help someone else.

>

>

>

May your pressure be low!



CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

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Share on other sites

Not to mention that BB do not work well in PA.

One of their mechanisms of action is to suppress renin. If it is

already low due to PA it cannot be lowered anymore.

CE Grim MD

On Nov 9, 2008, at 12:08 PM, Valarie wrote:

> Hi there and welcome wallinglindac,

>

May your pressure be low!



CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

Link to comment
Share on other sites

My potassium level has only been checked a couple times in the last year.  I

had previously had problems with it dropping very low but the last couple tests

have been ok.  I don't know what type of tumors I have.  Didn't know there

were different kinds.

G.

http://mslindascorner.blogspot.com/ 

> Hi all! I first started having problems in 2001 when I started

> having " spells " , which included getting really cold (my body would

> be cold but my face would be hot) this progressed into shortness of

> breath, sometimes chest pain and shaking that would start out mild

> and then develop to the point that I was shaking uncontrollably all

> over. I would end up at ER and they would tell me there was nothing

> wrong with me. I was eventually diagnosed with panic attacks. I

> kept telling them I didn't think it was panic attacks, as yes I

> would get scared (because I didn't know what was happening to me)

> but felt that each " spell " was beginning with some kind of internal

> physical change in my body. Noone would listen. In all fairness, I

> was in a very stressful living situation at that time. This

> continued until I ended up being admitted in 2006. It was then that

> I was finally told that I had an adrenal gland tumor. It had

> actually been discovered several years prior but I had not been told

> about it. I was started on 50 mg of Aldactone daily and remain on

> that dosage today, along with Atacand 32 mg, Nexium 40 mg, Aspirin

> 81 mg, and now Metropolol 25 mg twice daily. The only time I have

> seen a specialist was as a followup after being discharged from the

> hospital in 2006. At that time, I was told about the surgery but

> was told that it was too risky for me and that I would just have to

> take a pill for the rest of my life and everything would be ok. I

> didn't want to go on the Metropolol because I have not had good

> experiences in the past with beta blockers, and as I expected I am

> not sleeping well - usually wake up somewhere between 4-5 a.m. so

> I'm getting a limited amount of sleep and my energy level goes up

> and down. Sometimes it takes me several days of " resting " to feel

> halfway normal. Other times, I may suddenly feel like someone just

> gave me an injection of speed - eyes feel like saucers and no way to

> sleep. The " spells " I was having are less frequent and not as

> severe but the only thing I can do when it happens is take a pill

> and go to bed. At this point, I guess my questions would be, is it

> true that the surgery would be too risky for some people (or maybe

> they just didn't want to recommend it because I didn't have

> insurance at the time) and what tests should I still be having and

> how often. I just went through a lot of testing last month but it

> was the first tests that had been done for quite some time. I think

> most tests turned out ok. There were a couple elevated levels that

> the doc said he wasn't concerned about. Can't remember what they

> were right now. Sorry this is so lengthy but wanted to get it all

> said. Maybe it will help someone else.

>

>

>

May your pressure be low!



CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc. com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

Link to comment
Share on other sites

Do you know side or size of the bump on the xray or CT. These are

almost never cancer.

Most on your site are doing well on DASHing and using

mineralocorticoid blockers. (MC).

Such as spiro or inspra.

CE Grim MD

On Nov 9, 2008, at 7:23 PM, wrote:

> My potassium level has only been checked a couple times in the last

> year. I had previously had problems with it dropping very low but

> the last couple tests have been ok. I don't know what type of

> tumors I have. Didn't know there were different kinds.

>

> G.

> http://mslindascorner.blogspot.com/

>

>

>

> > Hi all! I first started having problems in 2001 when I started

> > having " spells " , which included getting really cold (my body would

> > be cold but my face would be hot) this progressed into shortness of

> > breath, sometimes chest pain and shaking that would start out mild

> > and then develop to the point that I was shaking uncontrollably all

> > over. I would end up at ER and they would tell me there was nothing

> > wrong with me. I was eventually diagnosed with panic attacks. I

> > kept telling them I didn't think it was panic attacks, as yes I

> > would get scared (because I didn't know what was happening to me)

> > but felt that each " spell " was beginning with some kind of internal

> > physical change in my body. Noone would listen. In all fairness, I

> > was in a very stressful living situation at that time. This

> > continued until I ended up being admitted in 2006. It was then that

> > I was finally told that I had an adrenal gland tumor. It had

> > actually been discovered several years prior but I had not been told

> > about it. I was started on 50 mg of Aldactone daily and remain on

> > that dosage today, along with Atacand 32 mg, Nexium 40 mg, Aspirin

> > 81 mg, and now Metropolol 25 mg twice daily. The only time I have

> > seen a specialist was as a followup after being discharged from the

> > hospital in 2006. At that time, I was told about the surgery but

> > was told that it was too risky for me and that I would just have to

> > take a pill for the rest of my life and everything would be ok. I

> > didn't want to go on the Metropolol because I have not had good

> > experiences in the past with beta blockers, and as I expected I am

> > not sleeping well - usually wake up somewhere between 4-5 a.m. so

> > I'm getting a limited amount of sleep and my energy level goes up

> > and down. Sometimes it takes me several days of " resting " to feel

> > halfway normal. Other times, I may suddenly feel like someone just

> > gave me an injection of speed - eyes feel like saucers and no way to

> > sleep. The " spells " I was having are less frequent and not as

> > severe but the only thing I can do when it happens is take a pill

> > and go to bed. At this point, I guess my questions would be, is it

> > true that the surgery would be too risky for some people (or maybe

> > they just didn't want to recommend it because I didn't have

> > insurance at the time) and what tests should I still be having and

> > how often. I just went through a lot of testing last month but it

> > was the first tests that had been done for quite some time. I think

> > most tests turned out ok. There were a couple elevated levels that

> > the doc said he wasn't concerned about. Can't remember what they

> > were right now. Sorry this is so lengthy but wanted to get it all

> > said. Maybe it will help someone else.

> >

> >

> >

>

> May your pressure be low!

>

> 

>

> CE Grim BS, MS, MD

>

> High Blood Pressure Consulting

>

> Senior Consultant to Shared Care Research and Education Consulting

> Inc.(sharedcareinc. com)

>

> Clinical Professor of Internal Medicine Medical and Cardiology

> Medical College of Wisconsin

>

> Board certified in Internal Med, Geriatrics and Hypertension.

>

> Interests:

> 1. Difficult to control high blood pressure.

> 2. The effect of recent evolutionary forces on high blood pressure

> in human populations.

> 3. Improving blood pressure measurement in the office and out.

>

>

Link to comment
Share on other sites

  • 2 weeks later...

Good you did not give us any data on potassium.

There are a number of kinds of adrenal tumors that cause HTN. Which

type do they think you have?

On Nov 9, 2008, at 5:45 AM, wallinglindac wrote:

> Hi all! I first started having problems in 2001 when I started

> having " spells " , which included getting really cold (my body would

> be cold but my face would be hot) this progressed into shortness of

> breath, sometimes chest pain and shaking that would start out mild

> and then develop to the point that I was shaking uncontrollably all

> over. I would end up at ER and they would tell me there was nothing

> wrong with me. I was eventually diagnosed with panic attacks. I

> kept telling them I didn't think it was panic attacks, as yes I

> would get scared (because I didn't know what was happening to me)

> but felt that each " spell " was beginning with some kind of internal

> physical change in my body. Noone would listen. In all fairness, I

> was in a very stressful living situation at that time. This

> continued until I ended up being admitted in 2006. It was then that

> I was finally told that I had an adrenal gland tumor. It had

> actually been discovered several years prior but I had not been told

> about it. I was started on 50 mg of Aldactone daily and remain on

> that dosage today, along with Atacand 32 mg, Nexium 40 mg, Aspirin

> 81 mg, and now Metropolol 25 mg twice daily. The only time I have

> seen a specialist was as a followup after being discharged from the

> hospital in 2006. At that time, I was told about the surgery but

> was told that it was too risky for me and that I would just have to

> take a pill for the rest of my life and everything would be ok. I

> didn't want to go on the Metropolol because I have not had good

> experiences in the past with beta blockers, and as I expected I am

> not sleeping well - usually wake up somewhere between 4-5 a.m. so

> I'm getting a limited amount of sleep and my energy level goes up

> and down. Sometimes it takes me several days of " resting " to feel

> halfway normal. Other times, I may suddenly feel like someone just

> gave me an injection of speed - eyes feel like saucers and no way to

> sleep. The " spells " I was having are less frequent and not as

> severe but the only thing I can do when it happens is take a pill

> and go to bed. At this point, I guess my questions would be, is it

> true that the surgery would be too risky for some people (or maybe

> they just didn't want to recommend it because I didn't have

> insurance at the time) and what tests should I still be having and

> how often. I just went through a lot of testing last month but it

> was the first tests that had been done for quite some time. I think

> most tests turned out ok. There were a couple elevated levels that

> the doc said he wasn't concerned about. Can't remember what they

> were right now. Sorry this is so lengthy but wanted to get it all

> said. Maybe it will help someone else.

>

>

>

May your pressure be low!

CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting Inc.

(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure in

human populations.

3. Improving blood pressure measurement in the office and out.

Link to comment
Share on other sites

Hello again. Thinking little more about it I see that my sister maybe has PA,

she has most of the symptoms and feeling worse than I ever have. But she has a

lot of other illnesses. She was tested several years ( 20) ago for Pa, but

negative. It is a silly question for you, but what should she be tested for?

S-aldo, s-renin, Kalium I suppose. If it is GRA what then?

________________________________

From: Lowerbp2 <lowerbp2@...>

" hyperaldosteronism " <hyperaldosteronism >

Sent: Monday, September 22, 2008 5:58:25 PM

Subject: Re: My story

Classic story as u can see from our files. If u approve we will add

yours

If you can expand details

U need to get path report on

gland

Read in files Grim Evol of PA

And take 2 all drs

Get DASH book

U almost certainly have recurrent Conn's or of others in family have

similar prob GRA

CE ms

Sent from my iPhone

On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote:

> Welcome to the group. You don't mention if anyone ever told you to

> eat very

> little salt. I stay under 800 mg a day. If I eat more than that, I

> am sick

> and cannot sleep.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism] On Behalf Of ulffreddy1

>

> Happy to be among equals. I am a male born 1950. There is a history

> of autoimmune deseases in our family. My sister has pernicious

> anemia, hypothereose and arthrisis. Her daughter has pernicious

> anemia, hypothyreose, and living with lupus since she was borne.

> I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed

> the right gland and the surgeon said the tumor was as big as the the

> gland.

> I think i had the symptoms from very early on, maybe already as a

> child. During college I used to skip to days a week. Looking back I

> see that I was feeling tired. I used to train during wintertime, but

> had trouble to run playing soccer in summer. Enlisted in the military

> 19 years old and had diffuculties competing with the others when it

> was hot. One warm day I even fainted standing along the others. Other

> symptoms were anxiety, my handwas shaking when drinking coffee and I

> had to use both hands. Turning 20 and the headaches started on. In 81

> I was diagnosed with hypertension and low pottassium. At 30 I begun

> to frequent the bathroom during nighttime. I used to fall asleep 4 to

> 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> headaches disapeared and I started to sleep well again. The left

> gland was producing to much aldo, 1400, and I was put on 50-100

> spiro. Still BP remained high, about 105, and the endo I was seeing

> every 3 months said it was ok. Because of the sideeffects we tried

> another medicament. In the beginning it worked ok, but then BP was

> 140. We then had to use spiro again, but at that time I started to

> get irregular heartbeats. Determined to lower BP I visited a

> cardiovascular center and I got 100 mg Selozok in addition. Since

> then BP has been ok and for a while the extra systoles stopped. One

> night in 90 I started to frequent the the bathroom again and the

> irregular heartbeats got worse and I had it 24 hours a day. Going to

> bed was terrible because then it got even worse and I had problems

> laying on my left side and the stomach. My endo thought this was not

> related to PA and in 96 I had surgery burning the nerves in the

> bladder, but to no help. During this years I had almost no sleep. I

> would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours

> sleep. In 2 weeks time I would almost certain have 3 days with no

> sleep. In 2000 I met another endo who is quit controversial. He did a

> lot of tests, and I was set on low dose levaxin. My aching muscles

> got better and the sleep started to be better, I even fall into deep

> sleep. Then he adviced me to eat every 2 hours, mostly vegetables, no

> fruit,no potatoes, no sweet,no dairy products. After 1 week the

> irregular heartbeats disappeared and I am in much better conditons

> now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit

> d and k suplements, calsium, omega 3 and DHEA. The sleep is still not

> perfect. I dont know if could be better with low salt diet. The

> kidney areas is hurting and I some time have problems to swallow. If

> you have some advice? This was not meant to complain, I am feeling

> quit well and is in fulltime job.

>

>

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Share on other sites

treatment is the same but if GRA 1/2 of all her 1st degree relatives

will have same p;roblem.

On Nov 26, 2008, at 9:56 AM, Freddy Johansen wrote:

> Hello again. Thinking little more about it I see that my sister

> maybe has PA, she has most of the symptoms and feeling worse than I

> ever have. But she has a lot of other illnesses. She was tested

> several years ( 20) ago for Pa, but negative. It is a silly

> question for you, but what should she be tested for?

> S-aldo, s-renin, Kalium I suppose. If it is GRA what then?

>

> ________________________________

> From: Lowerbp2 <lowerbp2@...>

> " hyperaldosteronism "

> <hyperaldosteronism >

> Sent: Monday, September 22, 2008 5:58:25 PM

> Subject: Re: My story

>

> Classic story as u can see from our files. If u approve we will add

> yours

> If you can expand details

> U need to get path report on

> gland

> Read in files Grim Evol of PA

> And take 2 all drs

> Get DASH book

> U almost certainly have recurrent Conn's or of others in family have

> similar prob GRA

>

> CE ms

>

> Sent from my iPhone

>

> On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote:

>

> > Welcome to the group. You don't mention if anyone ever told you to

> > eat very

> > little salt. I stay under 800 mg a day. If I eat more than that, I

> > am sick

> > and cannot sleep.

> >

> > Val

> >

> > From: hyperaldosteronism

> > [mailto:hyperaldosteronism] On Behalf Of

> ulffreddy1

> >

> > Happy to be among equals. I am a male born 1950. There is a history

> > of autoimmune deseases in our family. My sister has pernicious

> > anemia, hypothereose and arthrisis. Her daughter has pernicious

> > anemia, hypothyreose, and living with lupus since she was borne.

> > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed

> > the right gland and the surgeon said the tumor was as big as the the

> > gland.

> > I think i had the symptoms from very early on, maybe already as a

> > child. During college I used to skip to days a week. Looking back I

> > see that I was feeling tired. I used to train during wintertime, but

> > had trouble to run playing soccer in summer. Enlisted in the

> military

> > 19 years old and had diffuculties competing with the others when it

> > was hot. One warm day I even fainted standing along the others.

> Other

> > symptoms were anxiety, my handwas shaking when drinking coffee and I

> > had to use both hands. Turning 20 and the headaches started on.

> In 81

> > I was diagnosed with hypertension and low pottassium. At 30 I begun

> > to frequent the bathroom during nighttime. I used to fall asleep

> 4 to

> > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> > headaches disapeared and I started to sleep well again. The left

> > gland was producing to much aldo, 1400, and I was put on 50-100

> > spiro. Still BP remained high, about 105, and the endo I was seeing

> > every 3 months said it was ok. Because of the sideeffects we tried

> > another medicament. In the beginning it worked ok, but then BP was

> > 140. We then had to use spiro again, but at that time I started to

> > get irregular heartbeats. Determined to lower BP I visited a

> > cardiovascular center and I got 100 mg Selozok in addition. Since

> > then BP has been ok and for a while the extra systoles stopped. One

> > night in 90 I started to frequent the the bathroom again and the

> > irregular heartbeats got worse and I had it 24 hours a day. Going to

> > bed was terrible because then it got even worse and I had problems

> > laying on my left side and the stomach. My endo thought this was not

> > related to PA and in 96 I had surgery burning the nerves in the

> > bladder, but to no help. During this years I had almost no sleep. I

> > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours

> > sleep. In 2 weeks time I would almost certain have 3 days with no

> > sleep. In 2000 I met another endo who is quit controversial. He

> did a

> > lot of tests, and I was set on low dose levaxin. My aching muscles

> > got better and the sleep started to be better, I even fall into deep

> > sleep. Then he adviced me to eat every 2 hours, mostly

> vegetables, no

> > fruit,no potatoes, no sweet,no dairy products. After 1 week the

> > irregular heartbeats disappeared and I am in much better conditons

> > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit

> > d and k suplements, calsium, omega 3 and DHEA. The sleep is still

> not

> > perfect. I dont know if could be better with low salt diet. The

> > kidney areas is hurting and I some time have problems to swallow. If

> > you have some advice? This was not meant to complain, I am feeling

> > quit well and is in fulltime job.

> >

> >

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Share on other sites

See if she can get the exact results and let us look

At them and need their normal values

Sent from my iPhone

May your pressure be low!

CE Grim MS MD

Specializing in Difficult Hypertension

Senior Consultant to Shared Care Research and Education Consulting Inc

Sharedcareinc@...

On Nov 26, 2008, at 9:56 AM, Freddy Johansen <ulffreddy1@...>

wrote:

> Hello again. Thinking little more about it I see that my sister

> maybe has PA, she has most of the symptoms and feeling worse than I

> ever have. But she has a lot of other illnesses. She was tested

> several years ( 20) ago for Pa, but negative. It is a silly question

> for you, but what should she be tested for?

> S-aldo, s-renin, Kalium I suppose. If it is GRA what then?

>

> ________________________________

> From: Lowerbp2 <lowerbp2@...>

> " hyperaldosteronism " <hyperaldosteronism

> >

> Sent: Monday, September 22, 2008 5:58:25 PM

> Subject: Re: My story

>

> Classic story as u can see from our files. If u approve we will add

> yours

> If you can expand details

> U need to get path report on

> gland

> Read in files Grim Evol of PA

> And take 2 all drs

> Get DASH book

> U almost certainly have recurrent Conn's or of others in family have

> similar prob GRA

>

> CE ms

>

> Sent from my iPhone

>

> On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote:

>

> > Welcome to the group. You don't mention if anyone ever told you to

> > eat very

> > little salt. I stay under 800 mg a day. If I eat more than that, I

> > am sick

> > and cannot sleep.

> >

> > Val

> >

> > From: hyperaldosteronism

> > [mailto:hyperaldosteronism] On Behalf Of

> ulffreddy1

> >

> > Happy to be among equals. I am a male born 1950. There is a history

> > of autoimmune deseases in our family. My sister has pernicious

> > anemia, hypothereose and arthrisis. Her daughter has pernicious

> > anemia, hypothyreose, and living with lupus since she was borne.

> > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed

> > the right gland and the surgeon said the tumor was as big as the the

> > gland.

> > I think i had the symptoms from very early on, maybe already as a

> > child. During college I used to skip to days a week. Looking back I

> > see that I was feeling tired. I used to train during wintertime, but

> > had trouble to run playing soccer in summer. Enlisted in the

> military

> > 19 years old and had diffuculties competing with the others when it

> > was hot. One warm day I even fainted standing along the others.

> Other

> > symptoms were anxiety, my handwas shaking when drinking coffee and I

> > had to use both hands. Turning 20 and the headaches started on. In

> 81

> > I was diagnosed with hypertension and low pottassium. At 30 I begun

> > to frequent the bathroom during nighttime. I used to fall asleep 4

> to

> > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> > headaches disapeared and I started to sleep well again. The left

> > gland was producing to much aldo, 1400, and I was put on 50-100

> > spiro. Still BP remained high, about 105, and the endo I was seeing

> > every 3 months said it was ok. Because of the sideeffects we tried

> > another medicament. In the beginning it worked ok, but then BP was

> > 140. We then had to use spiro again, but at that time I started to

> > get irregular heartbeats. Determined to lower BP I visited a

> > cardiovascular center and I got 100 mg Selozok in addition. Since

> > then BP has been ok and for a while the extra systoles stopped. One

> > night in 90 I started to frequent the the bathroom again and the

> > irregular heartbeats got worse and I had it 24 hours a day. Going to

> > bed was terrible because then it got even worse and I had problems

> > laying on my left side and the stomach. My endo thought this was not

> > related to PA and in 96 I had surgery burning the nerves in the

> > bladder, but to no help. During this years I had almost no sleep. I

> > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours

> > sleep. In 2 weeks time I would almost certain have 3 days with no

> > sleep. In 2000 I met another endo who is quit controversial. He

> did a

> > lot of tests, and I was set on low dose levaxin. My aching muscles

> > got better and the sleep started to be better, I even fall into deep

> > sleep. Then he adviced me to eat every 2 hours, mostly vegetables,

> no

> > fruit,no potatoes, no sweet,no dairy products. After 1 week the

> > irregular heartbeats disappeared and I am in much better conditons

> > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit

> > d and k suplements, calsium, omega 3 and DHEA. The sleep is still

> not

> > perfect. I dont know if could be better with low salt diet. The

> > kidney areas is hurting and I some time have problems to swallow. If

> > you have some advice? This was not meant to complain, I am feeling

> > quit well and is in fulltime job.

> >

> >

Link to comment
Share on other sites

Will keep you update. Thank you.

________________________________

From: Lowerbp2 <lowerbp2@...>

" hyperaldosteronism " <hyperaldosteronism >

Sent: Thursday, November 27, 2008 1:52:47 AM

Subject: Re: My story

See if she can get the exact results and let us look

At them and need their normal values

Sent from my iPhone

May your pressure be low!

CE Grim MS MD

Specializing in Difficult Hypertension

Senior Consultant to Shared Care Research and Education Consulting Inc

Sharedcareinc@ mac.com

On Nov 26, 2008, at 9:56 AM, Freddy Johansen <ulffreddy1 (DOT) com>

wrote:

> Hello again. Thinking little more about it I see that my sister

> maybe has PA, she has most of the symptoms and feeling worse than I

> ever have. But she has a lot of other illnesses. She was tested

> several years ( 20) ago for Pa, but negative. It is a silly question

> for you, but what should she be tested for?

> S-aldo, s-renin, Kalium I suppose. If it is GRA what then?

>

> ____________ _________ _________ __

> From: Lowerbp2 <lowerbp2mac (DOT) com>

> " hyperaldosteronism " <hyperaldosteronism@ groups.

com

> >

> Sent: Monday, September 22, 2008 5:58:25 PM

> Subject: Re: [hyperaldosteronism ] My story

>

> Classic story as u can see from our files. If u approve we will add

> yours

> If you can expand details

> U need to get path report on

> gland

> Read in files Grim Evol of PA

> And take 2 all drs

> Get DASH book

> U almost certainly have recurrent Conn's or of others in family have

> similar prob GRA

>

> CE ms

>

> Sent from my iPhone

>

> On Sep 22, 2008, at 8:31 AM, Valarie <val@...> wrote:

>

> > Welcome to the group. You don't mention if anyone ever told you to

> > eat very

> > little salt. I stay under 800 mg a day. If I eat more than that, I

> > am sick

> > and cannot sleep.

> >

> > Val

> >

> > From: hyperaldosteronism

> > [mailto:hyperaldost eronism] On Behalf Of

> ulffreddy1

> >

> > Happy to be among equals. I am a male born 1950. There is a history

> > of autoimmune deseases in our family. My sister has pernicious

> > anemia, hypothereose and arthrisis. Her daughter has pernicious

> > anemia, hypothyreose, and living with lupus since she was borne.

> > I was diagnosed with PA in 86. Aldo was then 2320. Surgery removed

> > the right gland and the surgeon said the tumor was as big as the the

> > gland.

> > I think i had the symptoms from very early on, maybe already as a

> > child. During college I used to skip to days a week. Looking back I

> > see that I was feeling tired. I used to train during wintertime, but

> > had trouble to run playing soccer in summer. Enlisted in the

> military

> > 19 years old and had diffuculties competing with the others when it

> > was hot. One warm day I even fainted standing along the others.

> Other

> > symptoms were anxiety, my handwas shaking when drinking coffee and I

> > had to use both hands. Turning 20 and the headaches started on. In

> 81

> > I was diagnosed with hypertension and low pottassium. At 30 I begun

> > to frequent the bathroom during nighttime. I used to fall asleep 4

> to

> > 6 oclock`in the morning, sleeping to 11 to 14. After surgery the

> > headaches disapeared and I started to sleep well again. The left

> > gland was producing to much aldo, 1400, and I was put on 50-100

> > spiro. Still BP remained high, about 105, and the endo I was seeing

> > every 3 months said it was ok. Because of the sideeffects we tried

> > another medicament. In the beginning it worked ok, but then BP was

> > 140. We then had to use spiro again, but at that time I started to

> > get irregular heartbeats. Determined to lower BP I visited a

> > cardiovascular center and I got 100 mg Selozok in addition. Since

> > then BP has been ok and for a while the extra systoles stopped. One

> > night in 90 I started to frequent the the bathroom again and the

> > irregular heartbeats got worse and I had it 24 hours a day. Going to

> > bed was terrible because then it got even worse and I had problems

> > laying on my left side and the stomach. My endo thought this was not

> > related to PA and in 96 I had surgery burning the nerves in the

> > bladder, but to no help. During this years I had almost no sleep. I

> > would lay awake to 5 or 6 in the morning and maybe get 1 to 3 hours

> > sleep. In 2 weeks time I would almost certain have 3 days with no

> > sleep. In 2000 I met another endo who is quit controversial. He

> did a

> > lot of tests, and I was set on low dose levaxin. My aching muscles

> > got better and the sleep started to be better, I even fall into deep

> > sleep. Then he adviced me to eat every 2 hours, mostly vegetables,

> no

> > fruit,no potatoes, no sweet,no dairy products. After 1 week the

> > irregular heartbeats disappeared and I am in much better conditons

> > now. I guess he saved my life. Today my aldo is 1650, nat 145. I vit

> > d and k suplements, calsium, omega 3 and DHEA. The sleep is still

> not

> > perfect. I dont know if could be better with low salt diet. The

> > kidney areas is hurting and I some time have problems to swallow. If

> > you have some advice? This was not meant to complain, I am feeling

> > quit well and is in fulltime job.

> >

> >

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  • 1 month later...

w4jdc,

Your story could be my story. In fact, I was denied a particular security

clearance because

I was (and still am) being treated for depression. I explained to the security

people the

nature of this condition and they basically ignored me. Luckily my employer is

extremely

understanding. Several years ago I was told that if I lost weight my pressure

would come

down. I lost 60 lbs over about a year and my pressure didn't budge! I dealt

with poorly

controlled blood pressure for about 20 years, along with all of the other

symptoms. It

wasn't until I lost the weight that they sent me to a hypertension specialist.

My father also had adrenal issues. His condition was referred to as " 's "

even

though he took cortisone and spiro and had similar symptoms to mine. He died of

heart

failure 25 years ago. They didn't nail down his condition until he had 2

massive heart

attacks before age 50. For 20 years I was telling the Doctors that my Dad had

" Adrenal

issues " and their response was " It's so rare there's no way you have it " .

Finally 2 years ago

the tested me for hyperaldosteronism and put me on spiro.

Glad to hear that you have no symptoms,

Mike

>

> I was first diagnosed with hypertension about 1997. I got the lectures

> about being so young and how important it was to take my medication

> because my blood pressure was not under control. At one point I was

> put on a beta blocker and going to the doctor (GP) about every month.

> I was told my potassium was low and that I should eat bananas and

> oranges. I was told to exercise and I wouldn't even need BP

> medication.

>

> I started having some life changing symptoms. I always felt like crap.

> My legs cramped, I had difficulty concentrating, couldn't sleep, I had

> chest pains and went to the hospital a few times thinking I was having

> a heart attack. I ended up drinking some concoction to get my

> potassium level up in the ER and being told to follow up with my

> doctor. My doctor had put me on anti-depressants (which didn't work)

> and was treating me for depression.

>

> I finally changed my doctor in late 2001. My father had just been

> diagnosed with hyperaldosteronism and I told the new doctor. She

> referred me to a Cardiologist who was researching hyperaldosteronism

> and spiro. I was diagnosed and began taking spiro in early 2002. It

> wasn't long before I was telling my doctor how great I felt. She sent

> me to a psychiatrist for evaluation of the depression. The

> psychiatrist got me off of anti-depressants and I have not taken any

> since I was diagnosed with hyperaldosteronism.

>

> I have always been employed in a position of trust and the treatment

> for depression is always questioned. When I tell even doctors about

> the hyperaldosteronism they always ask me how to spell it and ask me

> to describe the tests I was given to diagnose it. There is a lot of

> ignorance about this condition and being treated for a mental health

> condition. I always tell the truth about what I have been through and

> hope they have the intelligence to do a little research, but I will

> not be surprised when the day comes that I will be disqualified from

> something, or a job, or a clearance because of my disorder.

>

> I have responded very well to treatment and have no symptoms. I take:

>

> Spironolactone 50mg once a day

> Benicar HCT 40-25mg once a day

> Norvasc 10mg once a day

>

> I went from 25 to 50mg spiro about two years ago when my BP was a

> little high and I was having some chest pains again.

>

> My BP runs 108-120/75-85. Prior to spiro it was so bad that they've

> held me at my doctor's office until they could get it down while I was

> going through the process of being diagnosed.

>

> My father is in his early 60s and he takes 50mg a day. He is symptom

> free as well.

>

> w4jdc

>

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Thanks for your family story of PA. If you can get renin and aldo

numbers on you and your father and they both confirm Dx you likely

have a very rare form of PA.

Be certain you get tested for a rare form of PA called Glucocorticoid

Remedial Aldosteronism. So if you are sure your Dad and you both

have PA then it is likely GRA.

Get as detailed a family tree as you can of all who have died and age

of death and what they died from. The reason to get tested is that

if you have this very rare form (I have only seem two families in my

career) then 50% of your first degree relatives may have the same

problem and can be easily Dxed with a genetic test before HTN etc

develops. This will prevent all the problems you and possibly your

father had to suffer thru before the Dx became clear.

I trust someone has asked you and your father about licorice

ingestion which can mimic symptoms of PA but instead of a high aldo

the aldo will be very low.

This is discussed briefly in my review article in our files which you

should read and take to your current Dr. as well as all Drs. who have

missed your DX in the past.

The first clue was early onset HTN and low K. This should always

trigger testing for PA. All guidelines recommend this.

If you have not been advised to DASH then you should start (after

talking to your Dr) and it is likely that you will be able to taper

down the Benicar (which does not work in PA) and the HCT which can

cause low K. You may also be able to taper and stop the Norvasc.

IMHO your BP is lower than it needs to be, but again your Dr. knows

you better than we do here.

as they are tested before they have HTN etc. inherited forms of

May your pressure be low!



CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 4, 2009, at 8:02 AM, w4jdc wrote:

> I was first diagnosed with hypertension about 1997. I got the lectures

> about being so young and how important it was to take my medication

> because my blood pressure was not under control. At one point I was

> put on a beta blocker and going to the doctor (GP) about every month.

> I was told my potassium was low and that I should eat bananas and

> oranges. I was told to exercise and I wouldn't even need BP

> medication.

>

> I started having some life changing symptoms. I always felt like crap.

> My legs cramped, I had difficulty concentrating, couldn't sleep, I had

> chest pains and went to the hospital a few times thinking I was having

> a heart attack. I ended up drinking some concoction to get my

> potassium level up in the ER and being told to follow up with my

> doctor. My doctor had put me on anti-depressants (which didn't work)

> and was treating me for depression.

>

> I finally changed my doctor in late 2001. My father had just been

> diagnosed with hyperaldosteronism and I told the new doctor. She

> referred me to a Cardiologist who was researching hyperaldosteronism

> and spiro. I was diagnosed and began taking spiro in early 2002. It

> wasn't long before I was telling my doctor how great I felt. She sent

> me to a psychiatrist for evaluation of the depression. The

> psychiatrist got me off of anti-depressants and I have not taken any

> since I was diagnosed with hyperaldosteronism.

>

> I have always been employed in a position of trust and the treatment

> for depression is always questioned. When I tell even doctors about

> the hyperaldosteronism they always ask me how to spell it and ask me

> to describe the tests I was given to diagnose it. There is a lot of

> ignorance about this condition and being treated for a mental health

> condition. I always tell the truth about what I have been through and

> hope they have the intelligence to do a little research, but I will

> not be surprised when the day comes that I will be disqualified from

> something, or a job, or a clearance because of my disorder.

>

> I have responded very well to treatment and have no symptoms. I take:

>

> Spironolactone 50mg once a day

> Benicar HCT 40-25mg once a day

> Norvasc 10mg once a day

>

> I went from 25 to 50mg spiro about two years ago when my BP was a

> little high and I was having some chest pains again.

>

> My BP runs 108-120/75-85. Prior to spiro it was so bad that they've

> held me at my doctor's office until they could get it down while I was

> going through the process of being diagnosed.

>

> My father is in his early 60s and he takes 50mg a day. He is symptom

> free as well.

>

> w4jdc

>

>

>

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If you can get us renin and aldo numbers, CT or MRI results and AVS,

if done, we will add your story to our files. It will be called

w4jdc's story. If you look at these stories you will see many

similarites to others.

Keep us posted on how you are doing and pick our brains and

experiences as much as you need.

May your pressure be low!



CE Grim BS, MS, MD

High Blood Pressure Consulting

Senior Consultant to Shared Care Research and Education Consulting

Inc.(sharedcareinc.com)

Clinical Professor of Internal Medicine Medical and Cardiology

Medical College of Wisconsin

Board certified in Internal Med, Geriatrics and Hypertension.

Interests:

1. Difficult to control high blood pressure.

2. The effect of recent evolutionary forces on high blood pressure

in human populations.

3. Improving blood pressure measurement in the office and out.

On Jan 4, 2009, at 8:02 AM, w4jdc wrote:

> I was first diagnosed with hypertension about 1997. I got the lectures

> about being so young and how important it was to take my medication

> because my blood pressure was not under control. At one point I was

> put on a beta blocker and going to the doctor (GP) about every month.

> I was told my potassium was low and that I should eat bananas and

> oranges. I was told to exercise and I wouldn't even need BP

> medication.

>

> I started having some life changing symptoms. I always felt like crap.

> My legs cramped, I had difficulty concentrating, couldn't sleep, I had

> chest pains and went to the hospital a few times thinking I was having

> a heart attack. I ended up drinking some concoction to get my

> potassium level up in the ER and being told to follow up with my

> doctor. My doctor had put me on anti-depressants (which didn't work)

> and was treating me for depression.

>

> I finally changed my doctor in late 2001. My father had just been

> diagnosed with hyperaldosteronism and I told the new doctor. She

> referred me to a Cardiologist who was researching hyperaldosteronism

> and spiro. I was diagnosed and began taking spiro in early 2002. It

> wasn't long before I was telling my doctor how great I felt. She sent

> me to a psychiatrist for evaluation of the depression. The

> psychiatrist got me off of anti-depressants and I have not taken any

> since I was diagnosed with hyperaldosteronism.

>

> I have always been employed in a position of trust and the treatment

> for depression is always questioned. When I tell even doctors about

> the hyperaldosteronism they always ask me how to spell it and ask me

> to describe the tests I was given to diagnose it. There is a lot of

> ignorance about this condition and being treated for a mental health

> condition. I always tell the truth about what I have been through and

> hope they have the intelligence to do a little research, but I will

> not be surprised when the day comes that I will be disqualified from

> something, or a job, or a clearance because of my disorder.

>

> I have responded very well to treatment and have no symptoms. I take:

>

> Spironolactone 50mg once a day

> Benicar HCT 40-25mg once a day

> Norvasc 10mg once a day

>

> I went from 25 to 50mg spiro about two years ago when my BP was a

> little high and I was having some chest pains again.

>

> My BP runs 108-120/75-85. Prior to spiro it was so bad that they've

> held me at my doctor's office until they could get it down while I was

> going through the process of being diagnosed.

>

> My father is in his early 60s and he takes 50mg a day. He is symptom

> free as well.

>

> w4jdc

>

>

>

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My story is not unlike w4jdc's. I was diagnosed with high BP 4 years

ago. I own a business and was in a very stressful relationship, so I

passed it off as emotional overload, I would get over in time. But my

BP didn't lower and in March of this year, after thinking I was having

a heart attack (palpitations, migraines, fatigue and this weird hot

flash I'd get right before going to sleep) I decided to go to a

cardiologist. After a random CT scan, an adrenal adenoma was

discovered and my journey began. I have been to 3 endo's, had an MRI,

taken the AVS, done tons of urine tests, had a saline suppression, had

so many blood tests that a vampire would shiver, and now my last stop

is the ever dreaded urine jug collection. I have been taken off spiro

for the tests and never put back on. I take potassium supplements 3x

daily which has literally saved my life. I still take nipedifine but

no diurectic, so I bloat with the sodium foods. Do I still feel

fatigued and like zombie has invaded my body? Yes.

I read so many of you that are happy taking spiro and this makes me

happy. Maybe I should go on it again, my endo still hasn't pushed it

yet. However, I must be honest (this is my first entry with this

group), I am not an advocate of a lot of meds because I feel like a

slave to them as it is. I have asthma and already take advair,

singulair, homepathic nasal spray (because the flonase is like

nose-heroine). I also take some girl stuff and now welbutron (sp?)

cause my hormones are completely off. Adding another drug such as

spiro scares me. Why? Because I read too much. Prednisone, a drug I've

taken more times than I can remember, mimics the function of the

natural hormones produced by the adrenal glands. When you're on it for

long periods of time, the production of natural adrenal hormones

decreases because of prednisones effect on the pituitary, the master

gland that controls the adrenals. So there you have it. I am afraid to

put something else in my body for long periods of time because of the

long term consequences such as what I'm dealing with now-this thing

called Conns. Is it just going to create another chain of major organ

(d)effects? And please, Dr. Grim or anybody.. could you please tell me

the long term effects of spironolactone? Also, how long has it been on

the market?

Thank you in advance for any responses. Good luck to all of you with

this insideous disease.

w4jdc- I send you good energy that no one ever discredits you based on

your difficult journey.

F.S.

>

> I was first diagnosed with hypertension about 1997. I got the lectures

> about being so young and how important it was to take my medication

> because my blood pressure was not under control. At one point I was

> put on a beta blocker and going to the doctor (GP) about every month.

> I was told my potassium was low and that I should eat bananas and

> oranges. I was told to exercise and I wouldn't even need BP

> medication.

>

> I started having some life changing symptoms. I always felt like crap.

> My legs cramped, I had difficulty concentrating, couldn't sleep, I had

> chest pains and went to the hospital a few times thinking I was having

> a heart attack. I ended up drinking some concoction to get my

> potassium level up in the ER and being told to follow up with my

> doctor. My doctor had put me on anti-depressants (which didn't work)

> and was treating me for depression.

>

> I finally changed my doctor in late 2001. My father had just been

> diagnosed with hyperaldosteronism and I told the new doctor. She

> referred me to a Cardiologist who was researching hyperaldosteronism

> and spiro. I was diagnosed and began taking spiro in early 2002. It

> wasn't long before I was telling my doctor how great I felt. She sent

> me to a psychiatrist for evaluation of the depression. The

> psychiatrist got me off of anti-depressants and I have not taken any

> since I was diagnosed with hyperaldosteronism.

>

> I have always been employed in a position of trust and the treatment

> for depression is always questioned. When I tell even doctors about

> the hyperaldosteronism they always ask me how to spell it and ask me

> to describe the tests I was given to diagnose it. There is a lot of

> ignorance about this condition and being treated for a mental health

> condition. I always tell the truth about what I have been through and

> hope they have the intelligence to do a little research, but I will

> not be surprised when the day comes that I will be disqualified from

> something, or a job, or a clearance because of my disorder.

>

> I have responded very well to treatment and have no symptoms. I take:

>

> Spironolactone 50mg once a day

> Benicar HCT 40-25mg once a day

> Norvasc 10mg once a day

>

> I went from 25 to 50mg spiro about two years ago when my BP was a

> little high and I was having some chest pains again.

>

> My BP runs 108-120/75-85. Prior to spiro it was so bad that they've

> held me at my doctor's office until they could get it down while I was

> going through the process of being diagnosed.

>

> My father is in his early 60s and he takes 50mg a day. He is symptom

> free as well.

>

> w4jdc

>

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