New to the group.

[Guest guest]

Hi Welcome to our group! First off, yes, it does look like you do have hep c. But its NOT the end of your world or life. Its really scary when you first get diagnosed but just know that this disease moves in decades, not months and most of us will die of old age WITH this disease, NOT FROM it! Learn all you can about this and we are here to help you. Let me just tell you a little about me. I found out that I was infused with bad blood when I had my first child who is now 28! I had it unknowingly for 23 years and was pretty far advanced. I treated, cleared and last march was my 3 rd year anniversary of finishing tx and Im still undetected and that means I have only a very slim chance of relapse now. I was not supposed to even respond to tx according to my doc and had no chance of reaching undetectible status. So it can be done. What you need to do now is to find out what genotype you are, you will

hear us talk about that here. There are many types of hep c genotype 1-4 with subgroups a/b/c geno 1and 4 is the toughest to treat and 1 is the most common here in the united states. Geno 1's and 4's have to treat for a full 48 weeks where geno 2 or 3 treat for only 24 weeks. Its important to know what type you are so that you can consider the treatment. You also need to have a liver biopsy to know how much damage you do or do not have. There is NO OTHER test that is as accurate as the biopsy. Believe me, IF there were anything less invasive to do, I WOULD KNOW cuz I argued and fought over NOT having one because I was scared to death.It was a piece of cake, make sure they give you 'conscious sedation'.... There is a blood test called fibrosure that is supposed to be able to predict how much damage you do or do not have. The problem is that while its somewhat accurate at the ends of the spectrum stage 0-1 and stage 4

its NOT accurate inbetween, like stage above stage1- and up to stage 4,, so it can give you false info. I had the fibrosure at my 2 year post tx blood test and it comes back as stage 0-1 with No activity which was wonderful!!! But a year later I had to have my gallbladder removed and while they were in there, they did another liver biopsy and guess what? still no activity, but my stage of damage was really more a stage 2, and thats a far cry from 0-1!!!! what a disappointment! But Im still clear.. So what you need to do is to have another blood test to see what genotype you have, get all the other liver function tests plus have that biopsy.. Then gather all that info and sit down and then see IF you want to do treatment. You gotta look at where your life is too, what would happen if you became so anemic that you couldnt work, do you have short and long term disability? IF you are in the USA, your employer does have to give you FMLA if you

need it and if you only had to do 24 weeks of tx, that could fill in the gap if you got really sick on tx. Do you have good support? How is your family? Are they supportive? There is a lot of info you need to gather and consider before you decide for tx or not. BUT LET ME SAY THIS,, THERE is NO ALTERNATIVE tx at this time that can cure your hep c.. There are lots of ways you can use alternative care to help maintain your liver health if you wish to hold off on tx at this time but nothing there will cure you... Im in holistic school and what I know is that the standard treatment as bad as it is, AT THIS TIME is the only thing that might put your virus unto remission. At this point in time, there is no cure either, please be careful out there as there are many snake oil salesman who would sell you lots of stuff that could even make you sicker.. so be careful and ask us about those things,,, The ONLY thing that I totally believe in is Milk Thistle,,, I do not know

anyone who failed tx while on milk thistle including myself,, but I DO know several who DID FAIL tx who were not on it.or quit before starting tx, . so I highly advise THAT... ok, sorry I have written a book, but wanted to welcome you and give you some help and a place to start.. 'START a file at home and get copies of EVERYTHING you have done, every lab, every biopsy, everything. Then when you have questions and cant get the answers from your doc's office or can't get in, bring them here and we will try to help you. We are not docs here but we have years of medical experience and we have nurses here and at least two paramedic ( myself and Liz who also is our researcher).. Good luck hon,, try NOT to be too worried.. and most of all, NO ALCOHOL!,, and make sure you watch any meds that you are taking,, and OTC stuff that has tylenol too, only a max of 2000 mg of tylenol daily!!! We are here for ya,, ask questions

if you have them,,, and WELCOME! jax moderatorhwalker1224 <hwalker12@...> wrote: Hi,I am new to the group, and I am really glad there is some support out here. I am 53 but was diagnosed with non a non b hepatitis about 20 years ago. Didnt reall know what that was at the time. Had some blood tests done recently and my ALT came back 648. I guess that is pretty hight. Had a Hep C test twice and they both came back positive. Really dont know what the next step is. Or how bad my liver

is at this point. Just wanted to say hello. Jackie

[Guest guest]

Thank you Jackie for taking the time to respond. I really appreciate your help. Now that I have more information, I feel much better already. Its good to know that there are people out there that are willing to take the time to share their experience and knowledge. I will take your advise and start a log in regards to any tests "etc" I have Kaiser insurance, and there are times, that I wonder if they really are on top of it. Anyway, I will continue to read emails on this site, learn from them, and ask questions as I go along. Thanks again, Jackie on <redjaxjm@...> wrote: Hi Welcome to our group! First off, yes, it does look like you do have hep c. But its NOT the end of your world or life. Its really scary when you first get diagnosed but just know that this disease moves in decades, not months and most of us will die of old age WITH this disease, NOT FROM it! Learn all you can about this and we are here to help you. Let me just tell you a little about me. I found out that I was infused with bad blood when I had my first child who is now 28! I had it unknowingly for 23 years and was pretty far advanced. I treated, cleared and last march was my 3 rd year anniversary of finishing tx and Im still undetected and that means I have only a very slim chance of relapse now. I was not supposed to even respond to tx according to my doc and had no chance of reaching

undetectible status. So it can be done. What you need to do now is to find out what genotype you are, you will hear us talk about that here. There are many types of hep c genotype 1-4 with subgroups a/b/c geno 1and 4 is the toughest to treat and 1 is the most common here in the united states. Geno 1's and 4's have to treat for a full 48 weeks where geno 2 or 3 treat for only 24 weeks. Its important to know what type you are so that you can consider the treatment. You also need to have a liver biopsy to know how much damage you do or do not have. There is NO OTHER test that is as accurate as the biopsy. Believe me, IF there were anything less invasive to do, I WOULD KNOW cuz I argued and fought over NOT having one because I was scared to death.It was a piece of cake, make sure they give you 'conscious sedation'.... There is a blood test called fibrosure that is supposed to be able to predict how much damage you

do or do not have. The problem is that while its somewhat accurate at the ends of the spectrum stage 0-1 and stage 4 its NOT accurate inbetween, like stage above stage1- and up to stage 4,, so it can give you false info. I had the fibrosure at my 2 year post tx blood test and it comes back as stage 0-1 with No activity which was wonderful!!! But a year later I had to have my gallbladder removed and while they were in there, they did another liver biopsy and guess what? still no activity, but my stage of damage was really more a stage 2, and thats a far cry from 0-1!!!! what a disappointment! But Im still clear.. So what you need to do is to have another blood test to see what genotype you have, get all the other liver function tests plus have that biopsy.. Then gather all that info and sit down and then see IF you want to do treatment. You gotta look at where your life is too, what would happen if you became so anemic that you couldnt

work, do you have short and long term disability? IF you are in the USA, your employer does have to give you FMLA if you need it and if you only had to do 24 weeks of tx, that could fill in the gap if you got really sick on tx. Do you have good support? How is your family? Are they supportive? There is a lot of info you need to gather and consider before you decide for tx or not. BUT LET ME SAY THIS,, THERE is NO ALTERNATIVE tx at this time that can cure your hep c.. There are lots of ways you can use alternative care to help maintain your liver health if you wish to hold off on tx at this time but nothing there will cure you... Im in holistic school and what I know is that the standard treatment as bad as it is, AT THIS TIME is the only thing that might put your virus unto remission. At this point in time, there is no cure either, please be careful out there as there are many snake oil salesman who would sell you lots of stuff that could even make you sicker..

so be careful and ask us about those things,,, The ONLY thing that I totally believe in is Milk Thistle,,, I do not know anyone who failed tx while on milk thistle including myself,, but I DO know several who DID FAIL tx who were not on it.or quit before starting tx, . so I highly advise THAT... ok, sorry I have written a book, but wanted to welcome you and give you some help and a place to start.. 'START a file at home and get copies of EVERYTHING you have done, every lab, every biopsy, everything. Then when you have questions and cant get the answers from your doc's office or can't get in, bring them here and we will try to help you. We are not docs here but we have years of medical experience and we have nurses here and at least two paramedic ( myself and Liz who also is our researcher).. Good luck hon,, try NOT to be too worried.. and most of all, NO ALCOHOL!,, and make sure you watch any meds that you are taking,, and

OTC stuff that has tylenol too, only a max of 2000 mg of tylenol daily!!! We are here for ya,, ask questions if you have them,,, and WELCOME! jax moderatorhwalker1224 <hwalker12@...> wrote: Hi,I am new to the group, and I am really glad there is some support out here. I am 53 but was diagnosed with non a non b hepatitis about 20 years ago. Didnt reall know what that was at the time. Had some blood tests done recently and my ALT came back 648. I guess that is pretty hight. Had a Hep C test twice and they both came back positive. Really dont know what the next step is. Or how bad my liver is at this point. Just wanted to say hello. Jackie howdoggy

[Guest guest]

> Hi,

>

> I am new to the group, and I am really glad there is some support

out

> here. I am 53 but was diagnosed with non a non b hepatitis about

20

> years ago. Didnt reall know what that was at the time. Had some

blood

> tests done recently and my ALT came back 648. I guess that is

pretty

> hight. Had a Hep C test twice and they both came back positive.

Really

> dont know what the next step is. Or how bad my liver is at this

point.

> Just wanted to say hello.

>

>

>

>

>

>

>

>

> Jackie

>

HEY JACKIE,

WHAT IF YOU HAD A CONTRASTING DYE MRI FOR SOFT TISSUES,WHEN I HAD MY

LUNG CANCER, I ALSO A A SPOT ON MY LIVER THAT THEY PICKED UP WITH A

MRI/DONE IN SECTIONS. THE CHEMO GOT RID OF THAT SPOT. HOWEVER DO YOU

KNOW IF DAMAGE TO THE LIVER, INFLAMATION ECT... CAN BE DETECTED WITH

A MRI. HAVE YOU HEARD ANYTHING ABOUT THIS AREA?

[Guest guest]

Hi Jackie, I had one more question. Does treatment work for a person who is a diabetic also? Thanks, Jackie on <redjaxjm@...> wrote: Hi Welcome to our group! First off, yes, it does look like you do have hep c. But its NOT the end of your world or life. Its really scary when you first get diagnosed but just know that this disease moves in decades, not months and most of us will die of old

age WITH this disease, NOT FROM it! Learn all you can about this and we are here to help you. Let me just tell you a little about me. I found out that I was infused with bad blood when I had my first child who is now 28! I had it unknowingly for 23 years and was pretty far advanced. I treated, cleared and last march was my 3 rd year anniversary of finishing tx and Im still undetected and that means I have only a very slim chance of relapse now. I was not supposed to even respond to tx according to my doc and had no chance of reaching undetectible status. So it can be done. What you need to do now is to find out what genotype you are, you will hear us talk about that here. There are many types of hep c genotype 1-4 with subgroups a/b/c geno 1and 4 is the toughest to treat and 1 is the most common here in the united states. Geno 1's and 4's have to treat for a full 48 weeks where geno 2 or 3

treat for only 24 weeks. Its important to know what type you are so that you can consider the treatment. You also need to have a liver biopsy to know how much damage you do or do not have. There is NO OTHER test that is as accurate as the biopsy. Believe me, IF there were anything less invasive to do, I WOULD KNOW cuz I argued and fought over NOT having one because I was scared to death.It was a piece of cake, make sure they give you 'conscious sedation'.... There is a blood test called fibrosure that is supposed to be able to predict how much damage you do or do not have. The problem is that while its somewhat accurate at the ends of the spectrum stage 0-1 and stage 4 its NOT accurate inbetween, like stage above stage1- and up to stage 4,, so it can give you false info. I had the fibrosure at my 2 year post tx blood test and it comes back as stage 0-1 with No activity which was wonderful!!! But a year later I had to have my gallbladder removed

and while they were in there, they did another liver biopsy and guess what? still no activity, but my stage of damage was really more a stage 2, and thats a far cry from 0-1!!!! what a disappointment! But Im still clear.. So what you need to do is to have another blood test to see what genotype you have, get all the other liver function tests plus have that biopsy.. Then gather all that info and sit down and then see IF you want to do treatment. You gotta look at where your life is too, what would happen if you became so anemic that you couldnt work, do you have short and long term disability? IF you are in the USA, your employer does have to give you FMLA if you need it and if you only had to do 24 weeks of tx, that could fill in the gap if you got really sick on tx. Do you have good support? How is your family? Are they supportive? There is a lot of info you need to gather and consider before you decide for tx or not. BUT LET ME SAY

THIS,, THERE is NO ALTERNATIVE tx at this time that can cure your hep c.. There are lots of ways you can use alternative care to help maintain your liver health if you wish to hold off on tx at this time but nothing there will cure you... Im in holistic school and what I know is that the standard treatment as bad as it is, AT THIS TIME is the only thing that might put your virus unto remission. At this point in time, there is no cure either, please be careful out there as there are many snake oil salesman who would sell you lots of stuff that could even make you sicker.. so be careful and ask us about those things,,, The ONLY thing that I totally believe in is Milk Thistle,,, I do not know anyone who failed tx while on milk thistle including myself,, but I DO know several who DID FAIL tx who were not on it.or quit before starting tx, . so I highly advise THAT... ok, sorry I have written a book, but wanted to welcome you and give you some help and a place to

start.. 'START a file at home and get copies of EVERYTHING you have done, every lab, every biopsy, everything. Then when you have questions and cant get the answers from your doc's office or can't get in, bring them here and we will try to help you. We are not docs here but we have years of medical experience and we have nurses here and at least two paramedic ( myself and Liz who also is our researcher).. Good luck hon,, try NOT to be too worried.. and most of all, NO ALCOHOL!,, and make sure you watch any meds that you are taking,, and OTC stuff that has tylenol too, only a max of 2000 mg of tylenol daily!!! We are here for ya,, ask questions if you have them,,, and WELCOME! jax moderatorhwalker1224 <hwalker12@...> wrote: Hi,I am new to

the group, and I am really glad there is some support out here. I am 53 but was diagnosed with non a non b hepatitis about 20 years ago. Didnt reall know what that was at the time. Had some blood tests done recently and my ALT came back 648. I guess that is pretty hight. Had a Hep C test twice and they both came back positive. Really dont know what the next step is. Or how bad my liver is at this point. Just wanted to say hello. Jackie howdoggy

[Guest guest]

Yes , it does but it can be trickier,, YOU MUST keep your blood sugars stable and YOU MUST eat enough protein,, lay off all the white sugary stuff,, but yes, ppl with diabetes can and do clear altho its a bit harder to do so,, jaxhowi <hwalker12@...> wrote: Hi Jackie, I had one more question. Does treatment work for a person who is a diabetic also? Thanks, Jackie on

<redjaxjm@...> wrote: Hi Welcome to our group! First off, yes, it does look like you do have hep c. But its NOT the end of your world or life. Its really scary when you first get diagnosed but just know that this disease moves in decades, not months and most of us will die of old age WITH this disease, NOT FROM it! Learn all you can about this and we are here to help you. Let me just tell you a little about me. I found out that I was infused with bad blood when I had my first child who is now 28! I had it unknowingly for 23 years and was pretty far advanced. I treated, cleared and last march was my 3 rd year anniversary of finishing tx and Im still undetected and that means I have only a very slim chance of relapse now. I was not supposed to even respond to tx

according to my doc and had no chance of reaching undetectible status. So it can be done. What you need to do now is to find out what genotype you are, you will hear us talk about that here. There are many types of hep c genotype 1-4 with subgroups a/b/c geno 1and 4 is the toughest to treat and 1 is the most common here in the united states. Geno 1's and 4's have to treat for a full 48 weeks where geno 2 or 3 treat for only 24 weeks. Its important to know what type you are so that you can consider the treatment. You also need to have a liver biopsy to know how much damage you do or do not have. There is NO OTHER test that is as accurate as the biopsy. Believe me, IF there were anything less invasive to do, I WOULD KNOW cuz I argued and fought over NOT having one because I was scared to death.It was a piece of cake, make sure they give you 'conscious sedation'.... There is a blood test called fibrosure that is

supposed to be able to predict how much damage you do or do not have. The problem is that while its somewhat accurate at the ends of the spectrum stage 0-1 and stage 4 its NOT accurate inbetween, like stage above stage1- and up to stage 4,, so it can give you false info. I had the fibrosure at my 2 year post tx blood test and it comes back as stage 0-1 with No activity which was wonderful!!! But a year later I had to have my gallbladder removed and while they were in there, they did another liver biopsy and guess what? still no activity, but my stage of damage was really more a stage 2, and thats a far cry from 0-1!!!! what a disappointment! But Im still clear.. So what you need to do is to have another blood test to see what genotype you have, get all the other liver function tests plus have that biopsy.. Then gather all that info and sit down and then see IF you want to do treatment. You gotta look at where your life is too, what

would happen if you became so anemic that you couldnt work, do you have short and long term disability? IF you are in the USA, your employer does have to give you FMLA if you need it and if you only had to do 24 weeks of tx, that could fill in the gap if you got really sick on tx. Do you have good support? How is your family? Are they supportive? There is a lot of info you need to gather and consider before you decide for tx or not. BUT LET ME SAY THIS,, THERE is NO ALTERNATIVE tx at this time that can cure your hep c.. There are lots of ways you can use alternative care to help maintain your liver health if you wish to hold off on tx at this time but nothing there will cure you... Im in holistic school and what I know is that the standard treatment as bad as it is, AT THIS TIME is the only thing that might put your virus unto remission. At this point in time, there is no cure either, please be careful out there as there are many snake oil salesman who would

sell you lots of stuff that could even make you sicker.. so be careful and ask us about those things,,, The ONLY thing that I totally believe in is Milk Thistle,,, I do not know anyone who failed tx while on milk thistle including myself,, but I DO know several who DID FAIL tx who were not on it.or quit before starting tx, . so I highly advise THAT... ok, sorry I have written a book, but wanted to welcome you and give you some help and a place to start.. 'START a file at home and get copies of EVERYTHING you have done, every lab, every biopsy, everything. Then when you have questions and cant get the answers from your doc's office or can't get in, bring them here and we will try to help you. We are not docs here but we have years of medical experience and we have nurses here and at least two paramedic ( myself and Liz who also is our researcher).. Good luck hon,, try NOT to be too worried.. and most of all, NO ALCOHOL!,, and

make sure you watch any meds that you are taking,, and OTC stuff that has tylenol too, only a max of 2000 mg of tylenol daily!!! We are here for ya,, ask questions if you have them,,, and WELCOME! jax moderatorhwalker1224 <hwalker12@...> wrote: Hi,I am new to the group, and I am really glad there is some support out here. I am 53 but was diagnosed with non a non b hepatitis about 20 years ago. Didnt reall know what that was at the time. Had some blood tests done recently and my ALT came back 648. I guess that is pretty hight. Had a Hep C test twice and they both came back positive. Really dont know what the next step is. Or how bad my liver is at this point. Just wanted to say hello. Jackie howdoggy Jackie

[Guest guest]

You are very welcome ,, thats what we are all here for! so ask away if you come up with any questions,, jaxhowi <hwalker12@...> wrote: Thank you Jackie for taking the time to respond. I really appreciate your help. Now that I have more information, I feel much better already. Its good to know that there are people out there that are willing to take the time to share their experience and knowledge. I will take your advise and start a log in regards to any tests "etc" I have Kaiser insurance, and there

are times, that I wonder if they really are on top of it. Anyway, I will continue to read emails on this site, learn from them, and ask questions as I go along. Thanks again, Jackie on <redjaxjm@...> wrote: Hi Welcome to our group! First off, yes, it does look like you do have hep c. But its NOT the end of your world or life. Its really scary when you first get diagnosed but just know that this disease moves in decades, not months and most of us will die of old age WITH this disease, NOT FROM it! Learn all you can about this and we are here to help you. Let me just tell you a little about me. I found out that I was infused with bad blood when I had my first child who is now 28! I

had it unknowingly for 23 years and was pretty far advanced. I treated, cleared and last march was my 3 rd year anniversary of finishing tx and Im still undetected and that means I have only a very slim chance of relapse now. I was not supposed to even respond to tx according to my doc and had no chance of reaching undetectible status. So it can be done. What you need to do now is to find out what genotype you are, you will hear us talk about that here. There are many types of hep c genotype 1-4 with subgroups a/b/c geno 1and 4 is the toughest to treat and 1 is the most common here in the united states. Geno 1's and 4's have to treat for a full 48 weeks where geno 2 or 3 treat for only 24 weeks. Its important to know what type you are so that you can consider the treatment. You also need to have a liver biopsy to know how much damage you do or do not have. There is NO OTHER test that is as accurate as the biopsy.

Believe me, IF there were anything less invasive to do, I WOULD KNOW cuz I argued and fought over NOT having one because I was scared to death.It was a piece of cake, make sure they give you 'conscious sedation'.... There is a blood test called fibrosure that is supposed to be able to predict how much damage you do or do not have. The problem is that while its somewhat accurate at the ends of the spectrum stage 0-1 and stage 4 its NOT accurate inbetween, like stage above stage1- and up to stage 4,, so it can give you false info. I had the fibrosure at my 2 year post tx blood test and it comes back as stage 0-1 with No activity which was wonderful!!! But a year later I had to have my gallbladder removed and while they were in there, they did another liver biopsy and guess what? still no activity, but my stage of damage was really more a stage 2, and thats a far cry from 0-1!!!! what a disappointment! But Im still clear.. So what you need

to do is to have another blood test to see what genotype you have, get all the other liver function tests plus have that biopsy.. Then gather all that info and sit down and then see IF you want to do treatment. You gotta look at where your life is too, what would happen if you became so anemic that you couldnt work, do you have short and long term disability? IF you are in the USA, your employer does have to give you FMLA if you need it and if you only had to do 24 weeks of tx, that could fill in the gap if you got really sick on tx. Do you have good support? How is your family? Are they supportive? There is a lot of info you need to gather and consider before you decide for tx or not. BUT LET ME SAY THIS,, THERE is NO ALTERNATIVE tx at this time that can cure your hep c.. There are lots of ways you can use alternative care to help maintain your liver health if you wish to hold off on tx at this time but nothing there will cure you... Im in holistic

school and what I know is that the standard treatment as bad as it is, AT THIS TIME is the only thing that might put your virus unto remission. At this point in time, there is no cure either, please be careful out there as there are many snake oil salesman who would sell you lots of stuff that could even make you sicker.. so be careful and ask us about those things,,, The ONLY thing that I totally believe in is Milk Thistle,,, I do not know anyone who failed tx while on milk thistle including myself,, but I DO know several who DID FAIL tx who were not on it.or quit before starting tx, . so I highly advise THAT... ok, sorry I have written a book, but wanted to welcome you and give you some help and a place to start.. 'START a file at home and get copies of EVERYTHING you have done, every lab, every biopsy, everything. Then when you have questions and cant get the answers from your doc's office or can't get in, bring them here and we will try

to help you. We are not docs here but we have years of medical experience and we have nurses here and at least two paramedic ( myself and Liz who also is our researcher).. Good luck hon,, try NOT to be too worried.. and most of all, NO ALCOHOL!,, and make sure you watch any meds that you are taking,, and OTC stuff that has tylenol too, only a max of 2000 mg of tylenol daily!!! We are here for ya,, ask questions if you have them,,, and WELCOME! jax moderatorhwalker1224 <hwalker12@...> wrote: Hi,I am new to the group, and I am really glad there is some support out here. I am 53 but was diagnosed with non a non b hepatitis about 20 years ago. Didnt reall know what that was at the time. Had some blood tests done recently and my ALT came back 648.

I guess that is pretty hight. Had a Hep C test twice and they both came back positive. Really dont know what the next step is. Or how bad my liver is at this point. Just wanted to say hello. Jackie howdoggy Jackie

[Guest guest]

Thank you Abby, I just remember how scared I was when I first was diagnosed,, See I was working as a paramedic and also I taught the EMS classes at the college and taught about Hep C and other blood borne pathogens... so I was terrified. But finding a group like this is really a God send, and it makes one not feel so alone! Im glad you felt this helped, thats why I wrote it,, We really ARE a good group here,, we do on occasions have family disagreements like any other family but WE really DO CARE about each other and want to help! Let me know if there is anything else we can help you with, if I can't find it, well Liz or Janet can.. Hang in there and it sounds like you are doing very well on tx,, so kick dragon butt honey! jaxabbycsu <abbycsu@...> wrote: To our moderator - this post is one of the most comprehensive and intelligent thing I've read since being dx w/hep c (geno 3). Thank you for your insight, sensitivity, intelligence and caring. I personally have spent so much time in sheer panic over this thing instead of just getting the treatment and getting done with it that I caused further liver damage. If I had read this post I think I would have reacted differently and saved myself from - well - saved myself - I could have saved myself earlier had I read this. Thanks again. So - I've been in treatment a whole month with weekly interferon injections

and 4 caps of ribavirin daily with very few side effects and I should be done by beginning of December. I am blessed. Peace & Love - Abby> Hi,> > I am new to the group, and I am really glad there is some support out > here. I am 53 but was diagnosed with non a non b hepatitis about 20 > years ago. Didnt reall know what that was at the time. Had some blood > tests done recently and my ALT came back 648. I guess that is pretty > hight. Had a Hep C test twice and they both came back positive. Really > dont know what the next step is. Or how bad my liver is at this point. > Just wanted to say hello. > > > > > > > > > Jackie>Jackie

[Guest guest]

I didn't see your name, or where your from.

Sue

For a REALLY HOT time check out http://www.peternoone.com and

http://www.mikesmith1964.com

New to the group.

Merry Christmas to you allThank you for letting me join yout group. I'm 44 and I have spina bifida I also had water in my brain. I was told that I wouldn't be anything or do anything, but me at the age I am now, I can say I did to something. Being with Spina Bifida it's hard for to make friends, and for people to see who your inside. I have been alone but I don't know if that is a good thing. I have so much to try to let good inside, but I do hope a can. So until then enjoy your Christmas and a Bless New Year.

[Guest guest]

I'm sorry about that, My name is Gavin and I'm from Long Island, NY __________________________________________________

[Guest guest]

Hi Gavin, I'm Tracey; an almost-31-year-old with Spina Bifida, Hydrocephalus and all the other stuff that can come with SB. You can learn more about my medical stuff by reading my signature. Welcome to the group!

TraceyOn 12/26/06, Gavin Bullen <strongblkman420@...> wrote:

I'm sorry about that, My name is Gavin and I'm from Long Island, NY __________________________________________________

[Guest guest]

Hi Maureen -I have been there. Unfortunately for those of us who are creative types - used to walking in the path to the beat of our own drummer, autistic kids need structure structure structure. I am constantly challenging the limits of Hope's need for sameness and am actually getting there - it just takes a lot of discipline to shape their behaviors being that they are so centered on what/how/when things "should" be. A lot depends upon how severely they are affected. Hope is HFA and Molly has AS, so I feel comfortable pushing a bit. With kids who are more severely impacted, I don't know that this would be advisable.Have you been able to obtain ABA at all? Between a GF diet, ABA, speech and Medications, our lives have been changed completely. We are so fortunate to have been able to obtain all of these services - I know that you and your child will be able to find your own brand of dignity through this emotionally

fraught landscape that all of us live with and through.I look forward to hearing your setbacks and triumphs!Jenangelofdarkness <dianarose042000@...> wrote: Hello, I am maureen I am new to the group, I look forward to talking to all of you,. I am a mom of a 5 year old that is austic, bordline hyperactive. He has been down a long road, since he was two years old. he been in ot, speech. He recently had a seziure and is now banging his head again. He is also becoming really agressive.

and i am not sure what to do. I read some post in here. as My son is some what potty trained, but not fully, I still have to help him, in alot of areas, hygene. it also seems like every time My son gets off his schedule he regress and then My life becomes a living night mare because he then turns in to the enggizer bunny from hell. and he dosnt calm down and runs around touching every thing. in sight. I am doing The best i can with my son, but at the same time i truly feel at times like i am failing. I was wondering if any one had any advice. Thank you maureen ______________________________________________________________ If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or faraway. Henry Thoreau

The fish are biting.

Get more visitors on your site using Search Marketing.

[Guest guest]

I was wondering what a HFA is and a Aba is as i never heard these terms... he is going to OT. but still seem to get really over anxious and over stiumlated. i just wish i knew how to help him better. hugs thanks for your post. maureenJen <diegowench@...> wrote: Hi Maureen -I have been there. Unfortunately for those of us who are creative types - used to walking in the path to the beat of our own drummer, autistic kids need structure structure

structure. I am constantly challenging the limits of Hope's need for sameness and am actually getting there - it just takes a lot of discipline to shape their behaviors being that they are so centered on what/how/when things "should" be. A lot depends upon how severely they are affected. Hope is HFA and Molly has AS, so I feel comfortable pushing a bit. With kids who are more severely impacted, I don't know that this would be advisable.Have you been able to obtain ABA at all? Between a GF diet, ABA, speech and Medications, our lives have been changed completely. We are so fortunate to have been able to obtain all of these services - I know that you and your child will be able to find your own brand of dignity through this emotionally fraught landscape that all of us live with and through.I look forward to hearing your setbacks and triumphs!Jenangelofdarkness

<dianarose042000 > wrote: Hello, I am maureen I am new to the group, I look forward to talking to all of you,. I am a mom of a 5 year old that is austic, bordline hyperactive.He has been down a long road, since he was two years old. he been in ot, speech. He recently had a seziure and is now banging his head again. He is also becoming really agressive. and i am not sure what to do.I read some post in here. as My son is some what potty trained, but not fully, I still have to help him, in alot of areas, hygene. it also seems like every time My son gets off his schedule he regressand then My life becomes a living night mare because he then turns in to the enggizer bunny from hell.and he dosnt calm down and runs around touching every thing. in sight.I am doing The best i

can with my son, but at the same time i truly feel at times like i am failing. I was wondering if any one had any advice. Thank youmaureen ______________________________________________________________ If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or faraway. Henry Thoreau

The fish are biting.Get more visitors on your site using Search Marketing.

Love Maureen

Happy Holidays

Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut.

[Guest guest]

Hi Maureen HFA is High Functioning Autism and ABA I can't remember exactly but I think it's a type of therapy.

Stacie

-- Re: New to the group.

I was wondering what a HFA is and a Aba is as i never heard these terms...

he is going to OT. but still seem to get really over anxious and over stiumlated.

i just wish i knew how to help him better.

hugs thanks for your post.

maureenJen <diegowench@...> wrote:

Hi Maureen -I have been there. Unfortunately for those of us who are creative types - used to walking in the path to the beat of our own drummer, autistic kids need structure structure structure. I am constantly challenging the limits of Hope's need for sameness and am actually getting there - it just takes a lot of discipline to shape their behaviors being that they are so centered on what/how/when things "should" be. A lot depends upon how severely they are affected. Hope is HFA and Molly has AS, so I feel comfortable pushing a bit. With kids who are more severely impacted, I don't know that this would be advisable.Have you been able to obtain ABA at all? Between a GF diet, ABA, speech and Medications, our lives have been changed completely. We are so fortunate to have been able to obtain all of these services - I know that you and your child will be able to find your own brand of dignity through this emotionally fraught landscape that all of us live with and through.I look forward to hearing your setbacks and triumphs!Jenangelofdarkness <dianarose042000 > wrote:

Hello, I am maureen I am new to the group, I look forward to talking to all of you,. I am a mom of a 5 year old that is austic, bordline hyperactive.He has been down a long road, since he was two years old. he been in ot, speech. He recently had a seziure and is now banging his head again. He is also becoming really agressive. and i am not sure what to do.I read some post in here. as My son is some what potty trained, but not fully, I still have to help him, in alot of areas, hygene. it also seems like every time My son gets off his schedule he regressand then My life becomes a living night mare because he then turns in to the enggizer bunny from hell.and he dosnt calm down and runs around touching every thing. in sight.I am doing The best i can with my son, but at the same time i truly feel at times like i am failing. I was wondering if any one had any advice. Thank youmaureen

______________________________________________________________

If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or faraway.

Henry Thoreau

The fish are biting.Get more visitors on your site using Search Marketing.

Love Maureen

Happy Holidays

Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut.

[Guest guest]

HFA HIGH FUNCTIONING AUTISM THAT I KNOW I CANT REMEMBER WHAT THE ABA IS

Re: New to the group.

I was wondering what a HFA is and a Aba is as i never heard these terms...

he is going to OT. but still seem to get really over anxious and over stiumlated.

i just wish i knew how to help him better.

hugs thanks for your post.

maureenJen <diegowench (DOT) com> wrote:

Hi Maureen -I have been there. Unfortunately for those of us who are creative types - used to walking in the path to the beat of our own drummer, autistic kids need structure structure structure. I am constantly challenging the limits of Hope's need for sameness and am actually getting there - it just takes a lot of discipline to shape their behaviors being that they are so centered on what/how/when things "should" be. A lot depends upon how severely they are affected. Hope is HFA and Molly has AS, so I feel comfortable pushing a bit. With kids who are more severely impacted, I don't know that this would be advisable.Have you been able to obtain ABA at all? Between a GF diet, ABA, speech and Medications, our lives have been changed completely. We are so fortunate to have been able to obtain all of these services - I know that you and your child will be able to find your own brand of dignity through this

emotionally fraught landscape that all of us live with and through.I look forward to hearing your setbacks and triumphs!Jenangelofdarkness <dianarose042000> wrote:

Hello, I am maureen I am new to the group, I look forward to talking to all of you,. I am a mom of a 5 year old that is austic, bordline hyperactive.He has been down a long road, since he was two years old. he been in ot, speech. He recently had a seziure and is now banging his head again. He is also becoming really agressive. and i am not sure what to do.I read some post in here. as My son is some what potty trained, but not fully, I still have to help him, in alot of areas, hygene. it also seems like every time My son gets off his schedule he regressand then My life becomes a living night mare because he then turns in to the enggizer bunny from hell.and he dosnt calm down and runs around touching every thing. in sight.I am doing The best i can with my son, but at the same time i truly feel at times like i am failing. I was wondering if any one had any advice. Thank

youmaureen

____________ _________ _________ _________ _________ _________ _____

If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or faraway.

Henry Thoreau

The fish are biting.Get more visitors on your site using Search Marketing.

Love Maureen

Happy Holidays

Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut.

Everyone is raving about the all-new beta.

[Guest guest]

ABA (applied behavior analysis) is an umbrella term for a type of therapy that includes pivotal response training and several others. It is highly effective. vickie <blackfoot124@...> wrote: HFA HIGH FUNCTIONING AUTISM THAT I KNOW I CANT REMEMBER WHAT THE ABA IS Re: New to the group. I was wondering what a HFA is and a Aba is as i never heard these terms... he is going to OT. but still seem to get really over anxious and over stiumlated. i just wish i knew how to help him better. hugs thanks for your post. maureenJen <diegowench (DOT) com> wrote: Hi

Maureen -I have been there. Unfortunately for those of us who are creative types - used to walking in the path to the beat of our own drummer, autistic kids need structure structure structure. I am constantly challenging the limits of Hope's need for sameness and am actually getting there - it just takes a lot of discipline to shape their behaviors being that they are so centered on what/how/when things "should" be. A lot depends upon how severely they are affected. Hope is HFA and Molly has AS, so I feel comfortable pushing a bit. With kids who are more severely impacted, I don't know that this would be advisable.Have you been able to obtain ABA at all? Between a GF diet, ABA, speech and Medications, our lives have been changed completely. We are so fortunate to have been able to obtain all of these services - I know that you and your child will be able to find your own brand of dignity through this emotionally

fraught landscape that all of us live with and through.I look forward to hearing your setbacks and triumphs!Jenangelofdarkness <dianarose042000> wrote: Hello, I am maureen I am new to the group, I look forward to talking to all of you,. I am a mom of a 5 year old that is austic, bordline hyperactive.He has been down a long road, since he was two years old. he been in ot, speech. He recently had a seziure and is now banging his head again. He is also becoming really agressive. and i am not sure what to do.I read some post in here. as My son is some what potty trained, but not fully, I still have to help him, in alot of areas, hygene. it also seems like every time My son gets off his schedule he regressand then My life becomes a living night mare because he then turns in to

the enggizer bunny from hell.and he dosnt calm down and runs around touching every thing. in sight.I am doing The best i can with my son, but at the same time i truly feel at times like i am failing. I was wondering if any one had any advice. Thank youmaureen ____________ _________ _________ _________ _________ _________ _____ If a man does not keep pace with his companions, perhaps it is because he hears a different drummer. Let him step to the music which he hears, however measured or faraway. Henry Thoreau The fish are biting.Get more visitors on your site using Search Marketing. Love Maureen Happy Holidays Don't get soaked. Take a quick peak at the forecast with the Search weather shortcut. Everyone is raving about the all-new beta. ______________________________________________________________ If a man does not keep pace with his companions, perhaps it is because he hears a different

drummer. Let him step to the music which he hears, however measured or faraway. Henry Thoreau

Never miss an email again! Toolbar alerts you the instant new Mail arrives. Check it out.

[Guest guest]

Hello and welcome to our family. We are here to help and support you as best we

can. Please feel free to ask any questions and I will try and answer as best I

can.

Mueller IV

Pres. of The Mueller IV Achalasia Awareness Foundation Inc.

Sent from my iPhone

On Jan 6, 2012, at 17:38, " Jenn Gerrits " <adoptivemommy@...> wrote:

> Hi. I am Jenn in NB, Canada. I was diagnosed a few months ago, but had my

initial treatment started a few years ago for reflux. I now get food stuck,

regurge food at night, and vomit all too frequently. I am a bit on the fluffy

side and haven't had weight loss yet, but I am finally to the point where eating

is a pita.

>

> I am seeing a cardio-thoracic surgeon in Halifax, NS at the end of the month.

I am unsure of wait times for surgery there.

>

> Hello to all, and hoping to catch up on some older messages for more info on

living with this.

>

>

>

> Jenn

> Sent from my CrackBerry® powered by Virgin Mobile.

>

> ------------------------------------

>

> As a member of this group, you are invited to join the HealthShare Groups

community center located at http://healthsharegroups.org. The community center

brings together members from over 1200 disease specific support groups for

sharing of information and support.

[Guest guest]

Welcome, Jenn! Glad you found us! A ton of really helpful information here,

and lots of veterans. All of us are pretty good listeners, too.

Glad you got your diagnosis before the worst of it: it's much better to be able

to gather all the info you need *before* it becomes a crisis. And it doesn't

take long to turn from a PITA to a real life threatening crisis, if it has a

mind to.

I'm just 10 days post-Heller, and can't begin to tell you the difference. I lost

70 pounds the last four months before ending up in ER, and finally a diagnosis.

Ironically, *that* was not enough to light a fire under the diagnosers' butts,

either. If having 1/2 your hair fall out isn't alarming, I don't know what

would be. Thing is, YOU have to make them understand, because they don't/won't

on their own.

Good luck! And, again, welcome. It's very nice not to be alone in this.

xox

, in WV

>

> Hi. I am Jenn in NB, Canada. I was diagnosed a few months ago, but had my

initial treatment started a few years ago for reflux. I now get food stuck,

regurge food at night, and vomit all too frequently. I am a bit on the fluffy

side and haven't had weight loss yet, but I am finally to the point where eating

is a pita.

>

> I am seeing a cardio-thoracic surgeon in Halifax, NS at the end of the month.

I am unsure of wait times for surgery there.

>

> Hello to all, and hoping to catch up on some older messages for more info on

living with this.

>

>

>

> Jenn

> Sent from my CrackBerry® powered by Virgin Mobile.

>

[Guest guest]

How has the surgical recovery been? How long of a hospital stay? I am guessing

that since I am having this done in another province I might have to stay a bit

longer..

-J

Sent from my CrackBerry® powered by Virgin Mobile.

Re: New to the group.

Welcome, Jenn! Glad you found us! A ton of really helpful information here,

and lots of veterans. All of us are pretty good listeners, too.

Glad you got your diagnosis before the worst of it: it's much better to be able

to gather all the info you need *before* it becomes a crisis. And it doesn't

take long to turn from a PITA to a real life threatening crisis, if it has a

mind to.

I'm just 10 days post-Heller, and can't begin to tell you the difference. I lost

70 pounds the last four months before ending up in ER, and finally a diagnosis.

Ironically, *that* was not enough to light a fire under the diagnosers' butts,

either. If having 1/2 your hair fall out isn't alarming, I don't know what

would be. Thing is, YOU have to make them understand, because they don't/won't

on their own.

Good luck! And, again, welcome. It's very nice not to be alone in this.

xox

, in WV

>

> Hi. I am Jenn in NB, Canada. I was diagnosed a few months ago, but had my

initial treatment started a few years ago for reflux. I now get food stuck,

regurge food at night, and vomit all too frequently. I am a bit on the fluffy

side and haven't had weight loss yet, but I am finally to the point where eating

is a pita.

>

> I am seeing a cardio-thoracic surgeon in Halifax, NS at the end of the month.

I am unsure of wait times for surgery there.

>

> Hello to all, and hoping to catch up on some older messages for more info on

living with this.

>

>

>

> Jenn

> Sent from my CrackBerry® powered by Virgin Mobile.

>

[Guest guest]

I was released from the hospital at about 48 hours after surgery. My son drove

me home (two and a half hour drive), and stayed for a few more hours before he

headed out. Our biggest concern was a giant (100 pound) puppy. . . . who has,

in fact, been behaving wonderfully well. He seems to get it, lol! You can't

drive yourself until your completely off pain meds (well, the narcotic kind), so

I haven't driven yet. Don't think I'd have wanted to take a plane anywhere, but

I could have stood a longer road trip. One thing to think about/plan for is the

possibility (though unlikely) that a lap will have to be converted to open

surgery while you're under, which would lengthen the time of the hospital stay.

We had planned for a good friend to drive in from Chicago to help, but she

picked up the flu during the season, and didn't make it. I haven't really

needed anyone, either, but company is nice. We made sure the frig was already

stocked with plenty of soft food (pretty much the same stuff I'd been eating

since the first hospitalization), and lotsa 's soup. Kraft dinner would

work well, too, lol! Also have a wonderful up-road neighbor who's in touch and

very willing to run errands, etc.

All I can say is: it is *wonderful* to be able to eat and not spit it up! Or

drool it all over the pillowcases and sheets at night! I was finally able to

get rid of the wastebasket next to the bed lined with a plastic bag for the

night-time regurging. Heaven!

Much luck! (WV)(The other s will be along in a bit, lol!)

> >

> > Hi. I am Jenn in NB, Canada. I was diagnosed a few months ago, but had my

initial treatment started a few years ago for reflux. I now get food stuck,

regurge food at night, and vomit all too frequently. I am a bit on the fluffy

side and haven't had weight loss yet, but I am finally to the point where eating

is a pita.

> >

> > I am seeing a cardio-thoracic surgeon in Halifax, NS at the end of the

month. I am unsure of wait times for surgery there.

> >

> > Hello to all, and hoping to catch up on some older messages for more info on

living with this.

> >

> >

> >

> > Jenn

> > Sent from my CrackBerry® powered by Virgin Mobile.

> >

>

>

>

>

>

>

[Guest guest]

Hi ,

Nice to hear that your HM went well!!!.

Today was the first day when I ate bread, exactly two weeks after my surgery. I

need to drink water few times to push it down. Not sure if this will remain the

problem forever or it is only temporary because my esophagus and/or LES may not

have healed completely. Rice and other softer food items are not problem at all

and I am eating them since week and a half ago. The only thing is that I have to

chew it properly before I swallow.

I have follow-up with surgeon today. Everything seems to be normal. About a week

ago, I started long walks (i.e. walk about 45 minutes or so) and started

driving. I had very sever heartburns for the first week but now their frequency

and severity is reduced.

Hi Jenn,

You came to the right place to get all the necessary information and emotional

help/advice. I found this forum just couple of days before my surgery and got a

lot of emotional help from many folks here.

I live in BC, Canada and my surgery was done by Dr. Finley in Vancouver

General Hospital. He is an excellent surgeon and one of the top HM surgeon in

Canada, in case you consider to get the surgery performed out of Alberta for

whatever reasons.

Do you get acid reflux or spasms? I used to get both (at least that's what I

think because it was hard for me to differentiate between them) and as soon as I

eat apple, the pain used to go away almost instantly. Also when I was having

swallowing problem, I used to drink Sprite or 7 Up while having food and that

was a BIG help and assist me with the swallowing.

Please post your questions and we are here to help you out.

> > >

> > > Hi. I am Jenn in NB, Canada. I was diagnosed a few months ago, but had my

initial treatment started a few years ago for reflux. I now get food stuck,

regurge food at night, and vomit all too frequently. I am a bit on the fluffy

side and haven't had weight loss yet, but I am finally to the point where eating

is a pita.

> > >

> > > I am seeing a cardio-thoracic surgeon in Halifax, NS at the end of the

month. I am unsure of wait times for surgery there.

> > >

> > > Hello to all, and hoping to catch up on some older messages for more info

on living with this.

> > >

> > >

> > >

> > > Jenn

> > > Sent from my CrackBerry® powered by Virgin Mobile.

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

Welcome to our group Jenn!

Sent from my iPhone

On Jan 6, 2012, at 6:52 PM, Mueller IV <mt4mar@...> wrote:

> Hello and welcome to our family. We are here to help and support you as best

we can. Please feel free to ask any questions and I will try and answer as best

I can.

>

> Mueller IV

> Pres. of The Mueller IV Achalasia Awareness Foundation Inc.

>

> Sent from my iPhone

>

> On Jan 6, 2012, at 17:38, " Jenn Gerrits " <adoptivemommy@...> wrote:

>

> > Hi. I am Jenn in NB, Canada. I was diagnosed a few months ago, but had my

initial treatment started a few years ago for reflux. I now get food stuck,

regurge food at night, and vomit all too frequently. I am a bit on the fluffy

side and haven't had weight loss yet, but I am finally to the point where eating

is a pita.

> >

> > I am seeing a cardio-thoracic surgeon in Halifax, NS at the end of the

month. I am unsure of wait times for surgery there.

> >

> > Hello to all, and hoping to catch up on some older messages for more info on

living with this.

> >

> >

> >

> > Jenn

> > Sent from my CrackBerry® powered by Virgin Mobile.

> >

> > ------------------------------------

> >

> > As a member of this group, you are invited to join the HealthShare Groups

community center located at http://healthsharegroups.org. The community center

brings together members from over 1200 disease specific support groups for

sharing of information and support.

[Guest guest]

Hi Jenn,

glad you found us, I would have gone crazy without this site.

Good luck with your A journey.

(Australia)

>

> Hi. I am Jenn in NB, Canada. I was diagnosed a few months ago, but had my

initial treatment started a few years ago for reflux. I now get food stuck,

regurge food at night, and vomit all too frequently. I am a bit on the fluffy

side and haven't had weight loss yet, but I am finally to the point where eating

is a pita.

>

> I am seeing a cardio-thoracic surgeon in Halifax, NS at the end of the month.

I am unsure of wait times for surgery there.

>

> Hello to all, and hoping to catch up on some older messages for more info on

living with this.

>

>

>

> Jenn

> Sent from my CrackBerry® powered by Virgin Mobile.

>

[Guest guest]

Hi ,

I am surprised you tried bread only 2 weeks after your HM!

I was on smooth/pureed for 4 weeks then soft for 2 to 4...I am now at 7 1/2

weeks and am just starting on my solid foods.

I did manage to eat 1 1/2 pieces of pizza a couple of days ago and it was

heaven! Buy yesterday I tried toast and that didn't go down very well even with

lots of water. I will try bread again in a few weeks when I am allowed to drink

soft drink/soda which is 3 months from HM.

(Australia)

> > > >

> > > > Hi. I am Jenn in NB, Canada. I was diagnosed a few months ago, but had

my initial treatment started a few years ago for reflux. I now get food stuck,

regurge food at night, and vomit all too frequently. I am a bit on the fluffy

side and haven't had weight loss yet, but I am finally to the point where eating

is a pita.

> > > >

> > > > I am seeing a cardio-thoracic surgeon in Halifax, NS at the end of the

month. I am unsure of wait times for surgery there.

> > > >

> > > > Hello to all, and hoping to catch up on some older messages for more

info on living with this.

> > > >

> > > >

> > > >

> > > > Jenn

> > > > Sent from my CrackBerry® powered by Virgin Mobile.

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Wow Jenn, welcome... I'm also in NB!  Hopefully if you're seeing Dr Bethune,

he's able to keep his appointment with you.  I have one scheduled Feb 2, but

I've been told by his receptionist that it might be delayed as he's had some

issues with cancelling clinics :/  Would love to chat, send me a private

message!

kim in canada

________________________________

From: Jenn Gerrits <adoptivemommy@...>

achalasia

Sent: Friday, January 6, 2012 6:38 PM

Subject: New to the group.

Hi. I am Jenn in NB, Canada. I was diagnosed a few months ago, but had my

initial treatment started a few years ago for reflux. I now get food stuck,

regurge food at night, and vomit all too frequently. I am a bit on the fluffy

side and haven't had weight loss yet, but I am finally to the point where eating

is a pita.

I am seeing a cardio-thoracic surgeon in Halifax, NS at the end of the month. I

am unsure of wait times for surgery there.

Hello to all, and hoping to catch up on some older messages for more info on

living with this.

Jenn

Sent from my CrackBerry® powered by Virgin Mobile.

------------------------------------

As a member of this group, you are invited to join the HealthShare Groups

community center located at http://healthsharegroups.org.  The community center

brings together members from over 1200 disease specific support groups for

sharing of information and support.

[Guest guest]

Hi Jenn,

 

Welcome to the group. I am fairly new to the group as well but there is a wealth

of knowledge here and this is a great place to ask questions. Many of us at some

point or another started out where you were at now. I had a " few " extra pounds

to loose as well but it turns out Achalasia helped me take care of my weight

problem.

 

Have you gone in for an Esophagram or manometry yet? It sounds like if you are

seeing a thoracic surgeon you have gotten that far.

 

Good luck!

 

Kim A

________________________________

From: Jenn Gerrits <adoptivemommy@...>

achalasia

Sent: Friday, January 6, 2012 4:38 PM

Subject: New to the group.

Hi. I am Jenn in NB, Canada. I was diagnosed a few months ago, but had my

initial treatment started a few years ago for reflux. I now get food stuck,

regurge food at night, and vomit all too frequently. I am a bit on the fluffy

side and haven't had weight loss yet, but I am finally to the point where eating

is a pita.

I am seeing a cardio-thoracic surgeon in Halifax, NS at the end of the month. I

am unsure of wait times for surgery there.

Hello to all, and hoping to catch up on some older messages for more info on

living with this.

Jenn

Sent from my CrackBerry® powered by Virgin Mobile.

------------------------------------

As a member of this group, you are invited to join the HealthShare Groups

community center located at http://healthsharegroups.org.  The community center

brings together members from over 1200 disease specific support groups for

sharing of information and support.