Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 kotacj wrote: > am wondering about precentage of achalasian with iodine allergies, high blood pressure and or kidney problems. any data out there? > There does not seem be much discussion in articles and studies of achalasics having these problems. Blood pressure has been studied in connection to possible vagus dysfunctions outside the esophagus. Some studies find no vagal dysfunction outside the esophagus while other find small dysfunctions. So, if there is a connection it must be small enough that it can be missed by people looking for it. Chronic dehydration could lead to kidney problems. Other than that the only connection I can find is in mice experiments with sprouty protein related genes (don't ask), but the sprouty protein of interest in achalasia does not seem to be the one mainly of interest related to the kidneys. For iodine allergy I have nothing. Have you seen something of interest? notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 notan- just observation mostly. 4 month prior to my sons first a symptoms I was checking my husbands blood pressure. I laughed at the time and said let's see how much better your 15 year old sons bp is. when I checked his I was shocked. his (our sons) bp was 140/88. concerned I made an appt with his peditrician. the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. we have always used iodized salt. I also began to notice that our son rarely when to the bathroom to pass water. after reducing the salt he began complaining of head aches and bone pain, at the time I said they were growing pains. I figured the salt was causing him to retain water, but was aware that cutting out the salt didn't really change his bladder habits. while on spring break in ny with his japanese class I was told after he returned home he had " fainted " while visiting a japanese monastary. it was then I noticed cold intolerance, insomnia, lethergy, the bone pain worsened and he c/o itching. soon after his lost his ability to eat or dirink. I am wondering.. is there a thyroid connection. does the use of radiopaque dye, ie barium swallows, have cumulative affect. I have seen many renal patients develop ivp dye allergies, but their renal function is already compromised, usually related to hypertension. there is also the question of his first diagnosis of eosinophilic esophagitis. was this somehow realted to iodine and or it's uptake. now that he has has a myotomy and seem to be doing ok my mind is drifting back. at times he still complains of bone pain, cold intolerance, and itching. I'm tring to see if there is something I may have missed...angela Re: iodine allergies kotacj wrote: > am wondering about precentage of achalasian with iodine allergies, high blood pressure and or kidney problems. any data out there? > There does not seem be much discussion in articles and studies of achalasics having these problems. Blood pressure has been studied in connection to possible vagus dysfunctions outside the esophagus. Some studies find no vagal dysfunction outside the esophagus while other find small dysfunctions. So, if there is a connection it must be small enough that it can be missed by people looking for it. Chronic dehydration could lead to kidney problems. Other than that the only connection I can find is in mice experiments with sprouty protein related genes (don't ask), but the sprouty protein of interest in achalasia does not seem to be the one mainly of interest related to the kidneys. For iodine allergy I have nothing. Have you seen something of interest? notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 , I don't know if any of that can be related to Dakota developing Achalasia, but it's interesting that he does have some things in common with my husband who has DES. Although his blood pressure has been pretty normal, my husband does have the cold intolerance and itching/hives. I've never found anyone who has the same symptoms as my husband, with some (not all) of his bad spasm days occurring when he has " hives " (some of them large) that develop on his neck and sometimes his scalp. Probably just an interesting co-incidence that Dakota has something almost similar. in Michigan > > notan- just observation mostly. 4 month prior to my sons first a symptoms I was checking my husbands blood pressure. I laughed at the time and said let's see how much better your 15 year old sons bp is. when I checked his I was shocked. his (our sons) bp was 140/88. concerned I made an appt with his peditrician. the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. we have always used iodized salt. I also began to notice that our son rarely when to the bathroom to pass water. after reducing the salt he began complaining of head aches and bone pain, at the time I said they were growing pains. I figured the salt was causing him to retain water, but was aware that cutting out the salt didn't really change his bladder habits. while on spring break in ny with his japanese class I was told after he returned home he had " fainted " while visiting a japanese monastary. it was then I noticed cold intolerance, insomnia, lethergy, the bone pain worsened and he c/o itching. soon after his lost his ability to eat or dirink. I am wondering.. is there a thyroid connection. does the use of radiopaque dye, ie barium swallows, have cumulative affect. I have seen many renal patients develop ivp dye allergies, but their renal function is already compromised, usually related to hypertension. there is also the question of his first diagnosis of eosinophilic esophagitis. was this somehow realted to iodine and or it's uptake. now that he has has a myotomy and seem to be doing ok my mind is drifting back. at times he still complains of bone pain, cold intolerance, and itching. I'm tring to see if there is something I may have missed...angela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 brenda- it's funny, now dakota's bp is within normal range, but he still has the cold intolerance, c/o itching, fatigue after eating. I was looking at hypothyroidism and noticed like symptoms. I can't help but think the two are related somehow. the only thing I can come up with is the iodine angle. after dakota had his surgery I had to step away for awhile. it was like I had to recover from all the fear and stress. now that some time has passed and he's doing ok I can look at things from a different perspective. but something is just nagging, adrenal and thyroid, I guess I'm just looking for the why now. this is a better place than what but it doesn't seem like much research is going into the why...angela Re: iodine allergies , I don't know if any of that can be related to Dakota developing Achalasia, but it's interesting that he does have some things in common with my husband who has DES. Although his blood pressure has been pretty normal, my husband does have the cold intolerance and itching/hives. I've never found anyone who has the same symptoms as my husband, with some (not all) of his bad spasm days occurring when he has " hives " (some of them large) that develop on his neck and sometimes his scalp. Probably just an interesting co-incidence that Dakota has something almost similar. in Michigan > > notan- just observation mostly. 4 month prior to my sons first a symptoms I was checking my husbands blood pressure. I laughed at the time and said let's see how much better your 15 year old sons bp is. when I checked his I was shocked. his (our sons) bp was 140/88. concerned I made an appt with his peditrician. the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. we have always used iodized salt. I also began to notice that our son rarely when to the bathroom to pass water. after reducing the salt he began complaining of head aches and bone pain, at the time I said they were growing pains. I figured the salt was causing him to retain water, but was aware that cutting out the salt didn't really change his bladder habits. while on spring break in ny with his japanese class I was told after he returned home he had " fainted " while visiting a japanese monastary. it was then I noticed cold intolerance, insomnia, lethergy, the bone pain worsened and he c/o itching. soon after his lost his ability to eat or dirink. I am wondering.. is there a thyroid connection. does the use of radiopaque dye, ie barium swallows, have cumulative affect. I have seen many renal patients develop ivp dye allergies, but their renal function is already compromised, usually related to hypertension. there is also the question of his first diagnosis of eosinophilic esophagitis. was this somehow realted to iodine and or it's uptake. now that he has has a myotomy and seem to be doing ok my mind is drifting back. at times he still complains of bone pain, cold intolerance, and itching. I'm tring to see if there is something I may have missed...angela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 ANGELA wrote: > ...the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. Any chance he was using energy drinks, even too much cola? Also, too much cola can cause muscle problems but you have to drink a lot of it or be doing/taking other things that cause potassium loss. > ... I was told after he returned home he had " fainted " ... As I have said before, most studies of achalasia don't find much vagal dysfunction outside the esophagus. There can be cases where there is some though. Fainting could be a vagal dysfunction. The vagus nerve plays a part in blood pressure and if it does not do its job BP can fall and you can faint. Like they do in achalasia, stress and lack of sleep, likely increase the risk of vagal reflex dysfunction. Low potassium can also cause fainting. Could be caused by a starvation diet, like with achalasia, especially if one has been sweating a lot or using a diuretic (caffeine). > ... is there a thyroid connection. ... Maybe for some. There is a study from China that says it can be, but there is not much to back it up. > does the use of radiopaque dye, ie barium swallows, have cumulative affect. I doubt there is any barium that is absorbed so my guess would be that it is not likely. I don't see a connection between barium and iodine, other than they are both used in X-ray. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 Itching could be allergies to laundry detergent, sensitive skin. I'm guessing more Good luck trying to get him to use any kind of body lotion w/ aloe vera in it. I had trouble w/ the sheets in hotels and dorms in my college years. Just read an interesting article in Newsweek about Oprah and some people she has had on talking about Thyroid and Iodine etc. might be online if you look. They kind of ripped into her. Try some gentle body soaps. Skinny people have cold issue it seems like. Could be growing boy too. Has he had a good CBC lately, can't remember. Skin issues are kind of constant, maybe see a dermatologist... S > > > > notan- just observation mostly. 4 month prior to my sons first a symptoms I was checking my husbands blood pressure. I laughed at the time and said let's see how much better your 15 year old sons bp is. when I checked his I was shocked. his (our sons) bp was 140/88. concerned I made an appt with his peditrician. the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. we have always used iodized salt. I also began to notice that our son rarely when to the bathroom to pass water. after reducing the salt he began complaining of head aches and bone pain, at the time I said they were growing pains. I figured the salt was causing him to retain water, but was aware that cutting out the salt didn't really change his bladder habits. while on spring break in ny with his japanese class I was told after he returned home he had " fainted " while visiting a japanese monastary. it was then I noticed cold intolerance, insomnia, lethergy, the bone pain worsened and he c/o itching. soon after his lost his ability to eat or dirink. I am wondering.. is there a thyroid connection. does the use of radiopaque dye, ie barium swallows, have cumulative affect. I have seen many renal patients develop ivp dye allergies, but their renal function is already compromised, usually related to hypertension. there is also the question of his first diagnosis of eosinophilic esophagitis. was this somehow realted to iodine and or it's uptake. now that he has has a myotomy and seem to be doing ok my mind is drifting back. at times he still complains of bone pain, cold intolerance, and itching. I'm tring to see if there is something I may have missed...angela > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 , I'm so glad Dakota IS doing better and that you and your family have had a chance to recover from all the fear and major stress! Hopefully, one day we'll find out all the answers about A and DES. Who knows, maybe all these things ARE related! In the meantime, maybe I can get to see my dermatologist to get her opinion on his " hives " . One day, someone will figure out if there's a connection or not... Take care and I'm hoping for continued good swallowing for Dakota. The poor kid went through enough last year!! in Michigan > > brenda- it's funny, now dakota's bp is within normal range, but he still has the cold intolerance, c/o itching, fatigue after eating. I was looking at hypothyroidism and noticed like symptoms. I can't help but think the two are related somehow. the only thing I can come up with is the iodine angle. after dakota had his surgery I had to step away for awhile. it was like I had to recover from all the fear and stress. now that some time has passed and he's doing ok I can look at things from a different perspective. but something is just nagging, adrenal and thyroid, I guess I'm just looking for the why now. this is a better place than what but it doesn't seem like much research is going into the why...angela > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 sandy- he is using a deodorant body wash. maybe it's just to harsh. I haven't changed laundry detergent so I don't think that is it. I just wish there was someone out there researching some of the symptoms as it relates to achalasia. I guess the conference in germany isabella attended has the most updated studies. I am also concerned about my uncle who complained of being unable to swallow last summer,he has been diagnosised with cancer of the stomach and esophagus and has just finished his third round chemo. I would just really like to be able to hang my hat on some kind of cause. the whys drive me nuts...angela Re: iodine allergies Itching could be allergies to laundry detergent, sensitive skin. I'm guessing more Good luck trying to get him to use any kind of body lotion w/ aloe vera in it. I had trouble w/ the sheets in hotels and dorms in my college years. Just read an interesting article in Newsweek about Oprah and some people she has had on talking about Thyroid and Iodine etc. might be online if you look. They kind of ripped into her. Try some gentle body soaps. Skinny people have cold issue it seems like. Could be growing boy too. Has he had a good CBC lately, can't remember. Skin issues are kind of constant, maybe see a dermatologist... S > > > > notan- just observation mostly. 4 month prior to my sons first a symptoms I was checking my husbands blood pressure. I laughed at the time and said let's see how much better your 15 year old sons bp is. when I checked his I was shocked. his (our sons) bp was 140/88. concerned I made an appt with his peditrician. the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. we have always used iodized salt. I also began to notice that our son rarely when to the bathroom to pass water. after reducing the salt he began complaining of head aches and bone pain, at the time I said they were growing pains. I figured the salt was causing him to retain water, but was aware that cutting out the salt didn't really change his bladder habits. while on spring break in ny with his japanese class I was told after he returned home he had " fainted " while visiting a japanese monastary. it was then I noticed cold intolerance, insomnia, lethergy, the bone pain worsened and he c/o itching. soon after his lost his ability to eat or dirink. I am wondering.. is there a thyroid connection. does the use of radiopaque dye, ie barium swallows, have cumulative affect. I have seen many renal patients develop ivp dye allergies, but their renal function is already compromised, usually related to hypertension. there is also the question of his first diagnosis of eosinophilic esophagitis. was this somehow realted to iodine and or it's uptake. now that he has has a myotomy and seem to be doing ok my mind is drifting back. at times he still complains of bone pain, cold intolerance, and itching. I'm tring to see if there is something I may have missed...angela > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 brenda- if you can get him to go be sure to mail me back and tell me what she said. I mean when the itching starts it really drives him over the edge. I have used a cortisone over the counter cream on him, but I hate the idea of steroids. and I still say you need to come on and move south, that way if they get to cold we could just park them in the yard...lol...angela Re: iodine allergies , I'm so glad Dakota IS doing better and that you and your family have had a chance to recover from all the fear and major stress! Hopefully, one day we'll find out all the answers about A and DES. Who knows, maybe all these things ARE related! In the meantime, maybe I can get to see my dermatologist to get her opinion on his " hives " . One day, someone will figure out if there's a connection or not... Take care and I'm hoping for continued good swallowing for Dakota. The poor kid went through enough last year!! in Michigan > > brenda- it's funny, now dakota's bp is within normal range, but he still has the cold intolerance, c/o itching, fatigue after eating. I was looking at hypothyroidism and noticed like symptoms. I can't help but think the two are related somehow. the only thing I can come up with is the iodine angle. after dakota had his surgery I had to step away for awhile. it was like I had to recover from all the fear and stress. now that some time has passed and he's doing ok I can look at things from a different perspective. but something is just nagging, adrenal and thyroid, I guess I'm just looking for the why now. this is a better place than what but it doesn't seem like much research is going into the why...angela > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 Don't use regular laundry detergent and no fabric softener. Some people are allergic to those. I use only Miracle Soap and the lotions which are totally pure. Fabric softener contains chemicals that are really detrimental. I use special blue balls instead of softener. There are more skins products on the market with no petroleum products and no parafin. Our skins absorbs all these chemical in various products. Hope this helps. Eva > > > > > > notan- just observation mostly. 4 month prior to my sons first a symptoms I was checking my husbands blood pressure. I laughed at the time and said let's see how much better your 15 year old sons bp is. when I checked his I was shocked. his (our sons) bp was 140/88. concerned I made an appt with his peditrician. the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. we have always used iodized salt. I also began to notice that our son rarely when to the bathroom to pass water. after reducing the salt he began complaining of head aches and bone pain, at the time I said they were growing pains. I figured the salt was causing him to retain water, but was aware that cutting out the salt didn't really change his bladder habits. while on spring break in ny with his japanese class I was told after he returned home he had " fainted " while visiting a japanese monastary. it was then I noticed cold intolerance, insomnia, lethergy, the bone pain worsened and he c/o itching. soon after his lost his ability to eat or dirink. I am wondering.. is there a thyroid connection. does the use of radiopaque dye, ie barium swallows, have cumulative affect. I have seen many renal patients develop ivp dye allergies, but their renal function is already compromised, usually related to hypertension. there is also the question of his first diagnosis of eosinophilic esophagitis. was this somehow realted to iodine and or it's uptake. now that he has has a myotomy and seem to be doing ok my mind is drifting back. at times he still complains of bone pain, cold intolerance, and itching. I'm tring to see if there is something I may have missed...angela > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 eva- if the detergent hasn't changed can a person develop allergies over time?...angela Re: iodine allergies Don't use regular laundry detergent and no fabric softener. Some people are allergic to those. I use only Miracle Soap and the lotions which are totally pure. Fabric softener contains chemicals that are really detrimental. I use special blue balls instead of softener. There are more skins products on the market with no petroleum products and no parafin. Our skins absorbs all these chemical in various products. Hope this helps. Eva > > > > > > notan- just observation mostly. 4 month prior to my sons first a symptoms I was checking my husbands blood pressure. I laughed at the time and said let's see how much better your 15 year old sons bp is. when I checked his I was shocked. his (our sons) bp was 140/88. concerned I made an appt with his peditrician. the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. we have always used iodized salt. I also began to notice that our son rarely when to the bathroom to pass water. after reducing the salt he began complaining of head aches and bone pain, at the time I said they were growing pains. I figured the salt was causing him to retain water, but was aware that cutting out the salt didn't really change his bladder habits. while on spring break in ny with his japanese class I was told after he returned home he had " fainted " while visiting a japanese monastary. it was then I noticed cold intolerance, insomnia, lethergy, the bone pain worsened and he c/o itching. soon after his lost his ability to eat or dirink. I am wondering.. is there a thyroid connection. does the use of radiopaque dye, ie barium swallows, have cumulative affect. I have seen many renal patients develop ivp dye allergies, but their renal function is already compromised, usually related to hypertension. there is also the question of his first diagnosis of eosinophilic esophagitis. was this somehow realted to iodine and or it's uptake. now that he has has a myotomy and seem to be doing ok my mind is drifting back. at times he still complains of bone pain, cold intolerance, and itching. I'm tring to see if there is something I may have missed...angela > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 ANGELA wrote: > eva- if the detergent hasn't changed can a person develop allergies over time?...angela > Yes notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Dear , I notice people almost obsessively search for the cause early in their diagnosis. As a mother you are probably even more " guilt ridden " that you did something than if it was you with the disease. You know there is nothing you did. Most of us old timers gave up the cause a long time ago, seems almost like it is a grief process we all go through. Not saying we should give up, but after a while it just becomes a part of us, like a scar, and really isn't an issue since nothing can be done about it that is proven. Achalasia is so rare, I wouldn't hold your breath waiting for a lot of research, if something is to be found I bet it will be through research on something else, maybe GERD. Although it is hard, given limited resources, I'd still rather research went to things like cancer and heart disease, and more common diseases where more people benefit. More people, like your uncle might benefit from well supported cancer research than achalasia research. Achalasia research is probably an after thought or tag along to something else. The skin... If he is getting good nutrition and maybe taking a vitamin, my guess is that it isn't related. Of course you have no proof. You might try aloe vera. If it is really bad, use Benadryl or something like it, just for a few days, just to see. It will make him sleepy, do it on a weekend to see if it helps. There is calamine lotion. Seems like I've heard Dove or Ivory is the most gentle and with the least additives. Try a good soothing lotion, I forget their names, but no fragrances. Where I grew up in Montana, with Irish background, all of us had to use lotion and had itchy skin issues, especially in the winter. See a good dermatologist. Also he should put on the lotion while the bathroom is steamy so the lotion seals in the moisture. If you put the lotion on when the skin is dry, then you are blocking the water from getting into the skin. (I've been to several doctors w/ skin issues in my youth.) Don't use bath oils unless he puts it in after he is in the tub, or it seals in the dryness as he lowers into the tub. Make sure he is drinking enough water. Look in the diabetic skin care part of the drug store, they have some special things or ask the pharmacist. The brand names aren't coming to me now. The laundry companies change the formulation without you knowing. You might try double rinsing.. is it worse where the clothes rub? > > > > > > notan- just observation mostly. 4 month prior to my sons first a symptoms I was checking my husbands blood pressure. I laughed at the time and said let's see how much better your 15 year old sons bp is. when I checked his I was shocked. his (our sons) bp was 140/88. concerned I made an appt with his peditrician. the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. we have always used iodized salt. I also began to notice that our son rarely when to the bathroom to pass water. after reducing the salt he began complaining of head aches and bone pain, at the time I said they were growing pains. I figured the salt was causing him to retain water, but was aware that cutting out the salt didn't really change his bladder habits. while on spring break in ny with his japanese class I was told after he returned home he had " fainted " while visiting a japanese monastary. it was then I noticed cold intolerance, insomnia, lethergy, the bone pain worsened and he c/o itching. soon after his lost his ability to eat or dirink. I am wondering.. is there a thyroid connection. does the use of radiopaque dye, ie barium swallows, have cumulative affect. I have seen many renal patients develop ivp dye allergies, but their renal function is already compromised, usually related to hypertension. there is also the question of his first diagnosis of eosinophilic esophagitis. was this somehow realted to iodine and or it's uptake. now that he has has a myotomy and seem to be doing ok my mind is drifting back. at times he still complains of bone pain, cold intolerance, and itching. I'm tring to see if there is something I may have missed...angela > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 sandy- I guess I mentioned my uncle wondering the risk of achalasia developing into cancer. now it seems it's " in the family " . I know, wait to worry. and I do feel I should have seen something. mother guilt. thanks for the suggestions on soaps. changing will make me feel as if I'm doing something to ease his discomfort. I guess that is what tonia is doing. we just feel we should be doing something. it's hard not being the one with the achalasia. we watch the ones we love the most suffering and it rips our hearts out. I wish it were me and not my son. I'd trade with him in a second if it would keep him from this. I guess we search for answers as a way of carrying some of the pain. despiration takes over as you watch, powerless. something so simple as eating, as a mom you've been feeding your kid since the day they were born. from breast to table. we nourish. not being allowed to do that overwhelms the senses. is contrary to everything we moms stand for. beyound grief. now I sit and think about cancer, foolish waste of time, or deep seated fear of the unknown future. the hopes and dreams we have for our kids. lost. or simply altered. we cry, why...angela Re: iodine allergies Dear , I notice people almost obsessively search for the cause early in their diagnosis. As a mother you are probably even more " guilt ridden " that you did something than if it was you with the disease. You know there is nothing you did. Most of us old timers gave up the cause a long time ago, seems almost like it is a grief process we all go through. Not saying we should give up, but after a while it just becomes a part of us, like a scar, and really isn't an issue since nothing can be done about it that is proven. Achalasia is so rare, I wouldn't hold your breath waiting for a lot of research, if something is to be found I bet it will be through research on something else, maybe GERD. Although it is hard, given limited resources, I'd still rather research went to things like cancer and heart disease, and more common diseases where more people benefit. More people, like your uncle might benefit from well supported cancer research than achalasia research. Achalasia research is probably an after thought or tag along to something else. The skin... If he is getting good nutrition and maybe taking a vitamin, my guess is that it isn't related. Of course you have no proof. You might try aloe vera. If it is really bad, use Benadryl or something like it, just for a few days, just to see. It will make him sleepy, do it on a weekend to see if it helps. There is calamine lotion. Seems like I've heard Dove or Ivory is the most gentle and with the least additives. Try a good soothing lotion, I forget their names, but no fragrances. Where I grew up in Montana, with Irish background, all of us had to use lotion and had itchy skin issues, especially in the winter. See a good dermatologist. Also he should put on the lotion while the bathroom is steamy so the lotion seals in the moisture. If you put the lotion on when the skin is dry, then you are blocking the water from getting into the skin. (I've been to several doctors w/ skin issues in my youth.) Don't use bath oils unless he puts it in after he is in the tub, or it seals in the dryness as he lowers into the tub. Make sure he is drinking enough water. Look in the diabetic skin care part of the drug store, they have some special things or ask the pharmacist. The brand names aren't coming to me now. The laundry companies change the formulation without you knowing. You might try double rinsing.. is it worse where the clothes rub? > > > > > > notan- just observation mostly. 4 month prior to my sons first a symptoms I was checking my husbands blood pressure. I laughed at the time and said let's see how much better your 15 year old sons bp is. when I checked his I was shocked. his (our sons) bp was 140/88. concerned I made an appt with his peditrician. the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. we have always used iodized salt. I also began to notice that our son rarely when to the bathroom to pass water. after reducing the salt he began complaining of head aches and bone pain, at the time I said they were growing pains. I figured the salt was causing him to retain water, but was aware that cutting out the salt didn't really change his bladder habits. while on spring break in ny with his japanese class I was told after he returned home he had " fainted " while visiting a japanese monastary. it was then I noticed cold intolerance, insomnia, lethergy, the bone pain worsened and he c/o itching. soon after his lost his ability to eat or dirink. I am wondering.. is there a thyroid connection. does the use of radiopaque dye, ie barium swallows, have cumulative affect. I have seen many renal patients develop ivp dye allergies, but their renal function is already compromised, usually related to hypertension. there is also the question of his first diagnosis of eosinophilic esophagitis. was this somehow realted to iodine and or it's uptake. now that he has has a myotomy and seem to be doing ok my mind is drifting back. at times he still complains of bone pain, cold intolerance, and itching. I'm tring to see if there is something I may have missed...angela > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Just one last thought... (how I adore the MOMs here).. do you see patches of dry skin or redness? Any visual signs? I'm wondering if he is internalizing the previous problems and the itching is a nervous reaction of pent up anxiety. He certainly would have every right to have some pent up feelings. I see my son's face with worry if he is trying to anticipate my reaction to something, and that is minor. He could be worried about himself, but also getting vibes about your normal worry. A friend has sons that have been through some severe mental trauma, their father's suicide and other problems. One boy pulls out his eyelashes for instance. They are suffering in school, they are high school now, problems all their life. Not that your son has those issues, but maybe seeing a psychologist might help him? I know several parents that have taken their kids and for the most part it has been enlightening. But I live in CA where there is a psychologist on every corner. They are living secret quiet lives we don't know about, in their minds. I TOTALLY understand your and Tonia's concern, as mothers we would all substitute for their problems. But as kids, if you look back, you wouldn't want your mother to take over your problems. Achalasia is devastating to watch, but living with it just becomes normal, in a way, like red hair, or tall, short. Regurging doesn't hurt, the biggest thing is you just get hungry and thirsty. Saying that, I know your huge concern about what the future holds, most of us are well over 40 years old. Achalasia will have to be monitored on your kids kind of like a diabetic young child. There is nothing more important to a boy that age than their mother, they are worried sick about your worry, even though justified worry. All the years here I haven't heard of one of us developing cancer from achalasia, they say it is a possibility, but I haven't seen even one. Have heard of Barrett's and ulcers, and removals, but not cancer. Perhaps your uncle's started in the stomach and moved to his esophagus. I have seen people w/ esophageal cancer but they didn't have achalasia, but they smoked. It is an interesting coincidence. But with all the problems we've heard here, no esophageal cancer. Sandy > > > > > > > > notan- just observation mostly. 4 month prior to my sons first a symptoms I was checking my husbands blood pressure. I laughed at the time and said let's see how much better your 15 year old sons bp is. when I checked his I was shocked. his (our sons) bp was 140/88. concerned I made an appt with his peditrician. the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. we have always used iodized salt. I also began to notice that our son rarely when to the bathroom to pass water. after reducing the salt he began complaining of head aches and bone pain, at the time I said they were growing pains. I figured the salt was causing him to retain water, but was aware that cutting out the salt didn't really change his bladder habits. while on spring break in ny with his japanese class I was told after he returned home he had " fainted " while visiting a japanese monastary. it was then I noticed cold intolerance, insomnia, lethergy, the bone pain worsened and he c/o itching. soon after his lost his ability to eat or dirink. I am wondering.. is there a thyroid connection. does the use of radiopaque dye, ie barium swallows, have cumulative affect. I have seen many renal patients develop ivp dye allergies, but their renal function is already compromised, usually related to hypertension. there is also the question of his first diagnosis of eosinophilic esophagitis. was this somehow realted to iodine and or it's uptake. now that he has has a myotomy and seem to be doing ok my mind is drifting back. at times he still complains of bone pain, cold intolerance, and itching. I'm tring to see if there is something I may have missed...angela > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2009 Report Share Posted June 21, 2009 sorry for the late reply, your post got maked as read and I didn't catch it. my husband is also a fan of yours. so I have to be quick, thanks for the info. I have seen so many renal patients develop iodine allergies and the tyroid utilization of iodine...I guess I was wondering if anyone had ever done any kind of study. notan, what has been your experience with canker sores. dakota seems to be having them frequently. I read an article today which says they are caused by a lack of b12. I have read were there are some on this site which encourage the use of b vitamin supplements. thoughts...angela Re: iodine allergies ANGELA wrote: > ...the doc told us to monitor his pressure and record it for a month. always a salt lover I changed what I could in his home diet and stopped buying the gatorade he loved. Any chance he was using energy drinks, even too much cola? Also, too much cola can cause muscle problems but you have to drink a lot of it or be doing/taking other things that cause potassium loss. > ... I was told after he returned home he had " fainted " ... As I have said before, most studies of achalasia don't find much vagal dysfunction outside the esophagus. There can be cases where there is some though. Fainting could be a vagal dysfunction. The vagus nerve plays a part in blood pressure and if it does not do its job BP can fall and you can faint. Like they do in achalasia, stress and lack of sleep, likely increase the risk of vagal reflex dysfunction. Low potassium can also cause fainting. Could be caused by a starvation diet, like with achalasia, especially if one has been sweating a lot or using a diuretic (caffeine). > ... is there a thyroid connection. ... Maybe for some. There is a study from China that says it can be, but there is not much to back it up. > does the use of radiopaque dye, ie barium swallows, have cumulative affect. I doubt there is any barium that is absorbed so my guess would be that it is not likely. I don't see a connection between barium and iodine, other than they are both used in X-ray. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2009 Report Share Posted June 22, 2009 ANGELA wrote: > ... I have seen so many renal patients develop iodine allergies and the tyroid utilization of iodine... I am not sure how you are using the term " iodine allergies. " I assume you mean a sensitivity to iodine containing substances and not a true allergy to iodine, but I understand there is a lot of confusion about this, even among doctors and people working in radiology. Let me explain what I understand the situation to be and then we can go from there and maybe rephrase the question. The ion of the iodine atom (iodide or I-), and the elemental molecule (iodine or I2), are too small for an antibody to react to so a reaction to iodine/iodide can't be a true allergy. It would be a sensitivity to iodine or iodide but not a true allergy, and is actually very rarely a problem at non-toxic levels. The body has to have some form of iodine for the thyroid to function. What the thyroid actually absorbs is iodide. What is in the dyes used in X-ray is not iodine or iodide but some chemical compound of iodine. (Radioactive iodine is used to treat thyroid cancer, but that is not what we are discussing so I will skip that.) In the old dye the iodine was not strongly bound to the molecule of the dye. That made the dye more reactive and some people were sensitive to the dye which is not the same as saying someone is sensitive to iodine. The assumption has been that it was the same. It seem though now, that people reacted to the dye not simply the iodine from the dye. They can also react to newer dyes that have the iodine held stronger to the molecule but reactions seem to less common. Iodine, like chlorine, is toxic in the elemental form. If you breath chlorine gas it can kill you, yet you need it combined with sodium which we call salt. Your body can not survive without the chlorine sodium combination. The point is that how the body responds to the elemental form of a chemical is different from the way the body responds to chemical compounds of an element. Being sensitive to a compound does not mean one is sensitive to other chemicals of the element. So, reacting to a dye does not indicate how the body, or any organ, would react to iodine or iodide. To add to the confusion there has been a supposed connection of allergies to the dyes, iodine and sea food. Again, even though many in the radiology business will specifically ask if a person has an allergy to sea food there is no good evidence that there is a reason to ask the question. In fact, there is an effort to educate radiologists to stop having the question asked so patients are not needlessly frightened because they have a sea food allergy. The right question to ask is if they have any allergies or asthma because these increase the risk of having other allergies or sensitivities, and they may have one to a dye but unlikely to iodine. Many people who believe they have an allergy to iodine because they have an allergy to sea food are reacting to something else in the sea food and not the iodine. Clearly they are eating iodine (iodides) in other foods or they would have bigger problems. Likewise, those that think they are allergic to iodine because they reacted to some topical iodine compound are sensitive to that compound and it does not indicate that they would be sensitive to iodine or the dyes. The big problem for some is that they have kidney problems. The kidneys are part of how the body gets rid of too much iodine. People with kidney problems sometimes have too much iodine and that effects the thyroid. To make matters worse the dyes can cause kidney damage especially if there is already some kidney problems. What you may be seeing. is that especially in older patients and those with certain other problems, like diabetes, there may already be some kidney dysfunction and a sub clinical thyroid dysfunction so when the dyes worsen the problems for some you may then notice the thyroid dysfunction. See: Iodinated Contrast http://www.sdirad.com/PatientInfo/pt_iodinated%20contrast.htm Safe administration of contrast media: what do physicians know? http://www.ncbi.nlm.nih.gov/pubmed/15328677 Iodine allergy: an oyster without a pearl? http://www.ajronline.org/cgi/reprint/169/4/951 > notan, what has been your experience with canker sores. ... I read an article today which says they are caused by a lack of b12. I have read were there are some on this site which encourage the use of b vitamin supplements. My understanding of canker sores is that they, like achalasia, are not well understood. It is thought that irritation, infection, malnutrition and stress could be factors for them. Achalasia could provide a source for all those problems. There have been others here in this group that have also reported them being a problem, but there are probably some in every large group of people so it may not mean much. Also, cold sores which are different are caused by a virus that some think is in the nerves that are being destroyed by achalasia. B12 may be worth a try. It is pretty safe. I would avoid B6 though. I think it is more toxic than most people think. Especially if they are getting it in other sources, often without even knowing it, like in energy drinks and other fortified foods. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 from: http://www.ncbi. nlm.nih.gov/ pubmed/20045605 J Emerg Med. 2010 Nov;39(5):701- 7. Epub 2010 Jan 4. The relationship of radiocontrast, iodine, and seafood allergies: a medical myth exposed. Schabelman E, Witting M. Source Department of Emergency Medicine, University of land School of Medicine, Baltimore, land 21201, USA. Abstract BACKGROUND: Radiocontrast agents are some of the most commonly used medications in the emergency department. However, both physicians and patients misunderstand the role that allergies play in reactions to radiocontrast media, especially with regards to shellfish and iodine. OBJECTIVES: We sought to review the literature describing rates of contrast reactions and risk of contrast administration to patients with iodine allergy, shellfish or seafood allergies, or prior reactions to intravenous iodinated contrast. METHOD: Both authors independently performed literature reviews, including position statements of stakeholder organizations, to gain perspective on important issues. They subsequently performed a systematic search for articles that estimated the risk of administration of iodinated contrast to those with a prior history of contrast reaction, " iodine allergy, " or reaction to seafood or shellfish. RESULTS: The risk of reactions to contrast ranges from 0.2-17%, depending on the type of contrast used, the severity of reaction considered, and the prior history of any allergy. The risk of reaction in patients with a seafood allergy is similar to that in patients with other food allergies or asthma. A history of prior reaction to contrast increases the risk of mild reactions to as high as 7-17%, but has not been shown to increase the rate of severe reactions. Severe reactions occur in 0.02-0.5% and deaths in 0.0006-0.006% ; neither have been related to " iodine allergy, " seafood allergy, or prior contrast reaction. Low-osmolality contrast media became available in 1988, and many of the higher risk estimates were from the era before it was widely available. CONCLUSIONS: Iodine is not an allergen. Atopy, in general, confers an increased risk of reaction to contrast administration, but the risk of contrast administration is low, even in patients with a history of " iodine allergy, " seafood allergy, or prior contrast reaction. Allergies to shellfish, in particular, do not increase the risk of reaction to intravenous contrast any more that of other allergies. Copyright € ¦Â© 2010 Elsevier Inc. All rights reserved. PMID: 20045605 [PubMed - indexed for MEDLINE] Here is another article from: http://www.ncbi. nlm.nih.gov/ pubmed/20412131 Clin Exp Allergy. 2010 Jun;40(6):850- 8. Epub 2010 Apr 19. Shellfish allergy. Lopata AL, O'Hehir RE, Lehrer SB. Source RMIT University, Allergy Research Group, Bundoora West Campus, Melbourne, Vic., Australia. andreas.lopata@ rmit.edu. au Abstract Seafood plays an important role in human nutrition and health. The growing international trade in seafood species and products has added to the popularity and frequency of consumption of a variety of seafood products across many countries. This increased production and consumption of seafood has been accompanied by more frequent reports of adverse health problems among consumers as well as processors of seafood. Adverse reactions to seafood are often generated by contaminants but can also be mediated by the immune system and cause allergies. These reactions can result from exposure to the seafood itself or various non-seafood components in the product. Non-immunological reactions to seafood can be triggered by contaminants such as parasites, bacteria, viruses, marine toxins and biogenic amines. Ingredients added during processing and canning of seafood can also cause adverse reactions. Importantly all these substances are able to trigger symptoms which are similar to true allergic reactions, which are mediated by antibodies produced by the immune system against specific allergens. Allergic reactions to 'shellfish', which comprises the groups of crustaceans and molluscs, can generate clinical symptoms ranging from mild urticaria and oral allergy syndrome to life-threatening anaphylactic reactions. The prevalence of crustacean allergy seems to vary largely between geographical locations, most probably as a result of the availability of seafood. The major shellfish allergen is tropomyosin, although other allergens may play an important part in allergenicity such as arginine kinase and myosin light chain. Current observations regard tropomyosin to be the major allergen responsible for molecular and clinical cross-reactivity between crustaceans and molluscs, but also to other inhaled invertebrates such as house dust mites and insects. Future research on the molecular structure of tropomyosins with a focus on the immunological and particularly clinical cross-reactivity will improve diagnosis and management of this potentially life-threatening allergy and is essential for future immunotherapy. PMID: 20412131 [PubMed - indexed for MEDLINE] Memmesheimer www.preventcanswers .org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 I have a friend who is deathly allergic to iodized salt and to shell fish. If iodine is not an allergen as the Conclusion below says, what is it that she is allergic to?Thanks. in AlaskaOn Wed, Mar 28, 2012 at 7:01 AM, jlegm <jlegm@...> wrote: Â from: http://www.ncbi. nlm.nih.gov/ pubmed/20045605 J Emerg Med. 2010 Nov;39(5):701- 7. Epub 2010 Jan 4. The relationship of radiocontrast, iodine, and seafood allergies: a medical myth exposed. Schabelman E, Witting M. Source Department of Emergency Medicine, University of land School of Medicine, Baltimore, land 21201, USA. Abstract CONCLUSIONS: Iodine is not an allergen. Atopy, in general, confers an increased risk of reaction to contrast administration, but the risk of contrast administration is low, even in patients with a history of " iodine allergy, " seafood allergy, or prior contrast reaction. Allergies to shellfish, in particular, do not increase the risk of reaction to intravenous contrast any more that of other allergies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 The shellfish allergy is due to the proteins in the shellfish. Salt is iodized with iodide not iodine but there are other items in salt she could be reacting to like anti caking agents. Linn Moderator > > > ** > > > > > > from: > > http://www.ncbi. nlm.nih.gov/ pubmed/20045605 > > > > J Emerg Med. 2010 Nov;39(5):701- 7. Epub 2010 Jan 4. > > The relationship of radiocontrast, iodine, and seafood allergies: a > > medical myth exposed. > > Schabelman E, Witting M. > > Source > > > > Department of Emergency Medicine, University of land School of > > Medicine, Baltimore, land 21201, USA. > > Abstract > > > > CONCLUSIONS: > > > > Iodine is not an allergen. Atopy, in general, confers an increased risk of > > reaction to contrast administration, but the risk of contrast > > administration is low, even in patients with a history of " iodine allergy, " > > seafood allergy, or prior contrast reaction. Allergies to shellfish, in > > particular, do not increase the risk of reaction to intravenous contrast > > any more that of other allergies. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2012 Report Share Posted March 28, 2012 So would that mean she just has two different allergies or is there iodide in shellfish as well? I'm not sure about it being an allergy to another salt ingredient. She can use the non-iodized just fine but has to use an epi-pen with the iodized. It just seems strange that she is deathly allergic to both if it isn't a common ingredient. No other allergens are an issue. in AlaskaOn Wed, Mar 28, 2012 at 6:18 PM, Linn <mwm1glm@...> wrote: Â The shellfish allergy is due to the proteins in the shellfish. Salt is iodized with iodide not iodine but there are other items in salt she could be reacting to like anti caking agents. Linn Moderator > > > ** > > > > > > from: > > http://www.ncbi. nlm.nih.gov/ pubmed/20045605 > > > > J Emerg Med. 2010 Nov;39(5):701- 7. Epub 2010 Jan 4. > > The relationship of radiocontrast, iodine, and seafood allergies: a > > medical myth exposed. > > Schabelman E, Witting M. > > Source > > > > Department of Emergency Medicine, University of land School of > > Medicine, Baltimore, land 21201, USA. > > Abstract > > > > CONCLUSIONS: > > > > Iodine is not an allergen. Atopy, in general, confers an increased risk of > > reaction to contrast administration, but the risk of contrast > > administration is low, even in patients with a history of " iodine allergy, " > > seafood allergy, or prior contrast reaction. Allergies to shellfish, in > > particular, do not increase the risk of reaction to intravenous contrast > > any more that of other allergies. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012 Could be bromide detox? That was my problem. I thought I was allergic to iodine as I couldn't eat shellfish, idoized salt, or even a multi vitamin w/iodine in it. After reading Dr. Brownstein's book, I decided to bit the bullet and give iodine a try. I started with 12 1/2mg iododral cut in half and it took me almost a year to work up to 50mg which is what I am taking now with no problem. As an added experience I stopped breathing and had a terrible reaction to iodine contrast during a CAT scan and was told never to be given that again. Iodine contrast and iodoral are completely different compounds. V > > > > > ** > > > > > > > > > from: > > > http://www.ncbi. nlm.nih.gov/ pubmed/20045605 > > > > > > J Emerg Med. 2010 Nov;39(5):701- 7. Epub 2010 Jan 4. > > > The relationship of radiocontrast, iodine, and seafood allergies: a > > > medical myth exposed. > > > Schabelman E, Witting M. > > > Source > > > > > > Department of Emergency Medicine, University of land School of > > > Medicine, Baltimore, land 21201, USA. > > > Abstract > > > > > > CONCLUSIONS: > > > > > > Iodine is not an allergen. Atopy, in general, confers an increased risk of > > > reaction to contrast administration, but the risk of contrast > > > administration is low, even in patients with a history of " iodine allergy, " > > > seafood allergy, or prior contrast reaction. Allergies to shellfish, in > > > particular, do not increase the risk of reaction to intravenous contrast > > > any more that of other allergies. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2012 Report Share Posted March 29, 2012 According to the American Academy of Allergy, Asthma and Immunology (AAAAI) , there is a common misconception that those who have a shellfish allergy should not take iodine due to risk of allergic reaction. " There is no direct link between shellfish allergy and allergy to iodide. Shellfish allergy Is caused by proteins in the food, not iodide, " explains Sicherer, MD, FAAAAI, the author of the practice paper. " There is iodide in table salt, for example, and there is no concern of allergy to such salts. " I'm not sure what your friend is reacting to. We've had many people on the list who have had past issues with seafood who take iodine with no problem. Doctors will sometimes give out epi pens once someone has had an allergic reaction, even if they're not sure what it is from. My hubby has the same type of issue. He has had several episodes of allergic reactions that required medical treatment which he can directly relate to peanut exposure, yet he didn't test as being allergic to peanuts. The doctor prescribed an epi pen just in case. Personally I think it's very much related to gut issues. Dr. Tim O'Shea has some interesting info on allergies at his website, www.thedoctorwithin.com, see the chapter titled Allergies: the Threshold of Reactivity. Linn Moderator > > > > > > > ** > > > > > > > > > > > > > > from: > > > > http://www.ncbi. nlm.nih.gov/ pubmed/20045605 > > > > > > > > J Emerg Med. 2010 Nov;39(5):701- 7. Epub 2010 Jan 4. > > > > The relationship of radiocontrast, iodine, and seafood allergies: a > > > > medical myth exposed. > > > > Schabelman E, Witting M. > > > > Source > > > > > > > > Department of Emergency Medicine, University of land School of > > > > Medicine, Baltimore, land 21201, USA. > > > > Abstract > > > > > > > > CONCLUSIONS: > > > > > > > > Iodine is not an allergen. Atopy, in general, confers an increased > > risk of > > > > reaction to contrast administration, but the risk of contrast > > > > administration is low, even in patients with a history of " iodine > > allergy, " > > > > seafood allergy, or prior contrast reaction. Allergies to shellfish, in > > > > particular, do not increase the risk of reaction to intravenous > > contrast > > > > any more that of other allergies. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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