Re: Re: If you REALLY want to help to get the justice we all deserve....

[Guest guest]

Thanks very much Gill.

Luv - Sheila

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of Gill

Sent: 05 January 2012 13:08

thyroid treatment

Subject: Re: If you REALLY want to help to get

the justice we all deserve....

Hi Sheila

I've added my details to the register and will happily donate £20 at a future

date if required.

Gill

> Dear Member

>

> If you genuinely want to help yourself and all those being left to

> suffer because they are being denied a correct diagnosis or are refused

> any other form of thyroid hormone replacement other than levothyroxine

> only, then please read on....and let's start 2012 as we mean to go on.

>

> WE CANNOT DO THIS WITHOUT YOUR HELP.

>

> Perhaps if everybody subscribed to Dr Skinner's World Thyroid Register,

> we might make start to make some headway into our long awaited need

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[Guest guest]

Yes, anybody and everybody is eligible. This is a way of

collecting funds to help those who are willing and able to take this matter

further, wherever that may be in order to get justice for all those left

suffering. You , as a carer, know more than anybody just how badly these

NHS endocrinologists/GP are treating those patients with symptoms of

hypothyroidism. They need to be brought to justice, and as quickly as possible

but we cannot do a thing without the necessary funding.

How is your wife coping at the moment? Is she getting any

better, and if not, what complaints is she suffering with. Tell us a little

more so we can hopefully help her - and you, of course.

Luv - Sheila

Having

looked at the Registration process; it is not clear to me, am I, as a non

sufferer, eligible?

I live

with a wife who has hypothyroidism and am disgusted by the treatment she has

received.

Why is it

accepted in the US that they need 12 tablet doses available, when we have 3?

I call

that rubbish science. That is only the tip of an iceberg which causes so many

folk so many problems.

Good

wishes to all.

PeteD

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[Guest guest]

Hello Louise, yes this is the same Register. These have to run

for a long long time until sufficient funding has been raised.

Luv - Sheila

I signed Dr. Skinner's register some time ago, is this the same register or do

I need to sign again? And you're welcome to £20 should the need arise.

Louise.

>

>

2.0.1901

/ Virus Database: 2109/4723 - Release Date: 01/04/12

[Guest guest]

I have gladly signed Dr Skinners register - and will willingly donate £20 to help TPA - just let me know when please.

Without this website I would still be feeling absolutely awful - thanks to Sheila and all who run this site I am slowly but surely getting back to having much more of a life. I gave up with my GPs and local Endo and am self-treating and doing extremely well on it. I cant fault my GP or Rheumatologist as they have been brilliant for me over the last 10 years but if only they were more educated over thyroid problems.

I cannot praise and thank everyone enough (especially Sheila) for their unfailing help here - heres hoping we can all have a much healthier 2012 - even if we do have to self-medicate!

Colleen x

I signed Dr. Skinner's register some time ago, is this the same register or do I need to sign again? And you're welcome to £20 should the need arise.Louise.>> > Dear Member> > If you genuinely want to help yourself and all those being left to> suffer because they are being denied a correct diagnosis or are refused> any other form of thyroid hormone replacement other than levothyroxine> only, then please read on....and let's start 2012 as we mean to go on.

[Guest guest]

The Register doesn't belong to me and I have no access to Dr

Skinner's web site. If you have already signed up, and you try again, you won't

be allowed to sign twice, as the register recognises your ISP number.

Luv - Sheila

I think I am already on this register, but would you confirm.

I do not mind contributing £20 when the time comes.

Kathleen

[Guest guest]

Is your wife unable to cope with the full 200mgs tablets of

Ferrous Fumerate Pete? She should take high doses of vitamin C to help

the iron get thoroughly absorbed, i.e. 3/4000 mgs and of course, eat foods high

in iron. If she is having problems with Ferrous Fumerate, there are other more

gentle iron supplements such as sachet's of Spatone.

Luv - Sheila

PLEASE DELETE PREVIOUS MESSAGES BEFORE REPLYING

Moderator

Thanks for that Sheila we will both be signing up.

She is " getting there " . How many times have we heard that?

Pernicious anaemia is being treated. She is taking quarter tablets of Ferrous

fumerate to try and raise Ferritin levels, despite neither the GP nor the Endo

suggesting treatment for this.

We know who to talk to if we need to!

Bless you all.

PeteD