Advice re endocrinologist please

[Guest guest]

Hi, I did post quite a while ago when I first received info re raised thyroid

antibodies (314). I have a list of endocrinologists from that time, has this

been updated? I had to delay whilst being investigated for another metabolic

condition, this has now been confirmed. I recently received new blood result of

over 601 for antibodies (9 months after the first result). My GP is not

interested as my TSH is normal at only 1.89mu/L (ref 0.35-5.5).

I have many symptoms of hypothyroid, however some symptoms could be caused by

the genetic metabolic disease that I have.

The reason for this post is mainly for direction regarding a good

endocrinologist who will treat my thyroid correctly if need be and also monitor

other endocrine glands, I know my kidneys are not good. Originally I planned to

see Dr Skinner but on receiving his info it states that he is not an

endocrinologist, I have no doubt however about his expertise regarding thyroid

problems.

I live in Essex but happy to travel. I notice there is a Dr D J in Kent

who is an endocrinologist and wonder if anyone has personal experience with him,

if so please could you contact me directly, I would be very grateful.

many thanks,

[Guest guest]

Hi there I would see Dr skinner ASAP. your health is more important. when you get your normal self back then find an endo.this is what i would do. Dr S will write to your GP about treatment and you can get a copy of this from him and if your doctor will not budge,then you have the means to make a complaint . with a high auto-antibody levels you will get a lot of problems which will only do your more harmthan good. i see you may have problems already. !!! so take your health into your hands as this endo/doctor will keep you sick. this is what i did in 1990when my doctor refused me help.! it was the best thing i ever done. Angel.

[Guest guest]

I have sent you an updated list of doctors recommended by our

members. Please do not be put off by Dr Ski8nner not being a qualified

endocrinologist. He knows more about thyroid disease than the majority of NHS

endocrinologists put together, who are the sole reason why support forums such

as TPA have getting on for 3000 members who are mainly all total NHS failures

and who are having to seek guidance from elsewhere. He is an excellent doctor

and has given back health to hundreds of NHS failures where their

endocrinologist is a diabetes specialist and knows little to nothing about

thyroid disease.

Luv - Sheila

The reason for this post is mainly for direction regarding a good

endocrinologist who will treat my thyroid correctly if need be and also monitor

other endocrine glands, I know my kidneys are not good. Originally I planned to

see Dr Skinner but on receiving his info it states that he is not an

endocrinologist, I have no doubt however about his expertise regarding thyroid

problems.

[Guest guest]

Dear Angel & Sheila,

Thanks Angel for encouragement and advice, it is good to hear Dr Skinner has

good success. Thanks also Sheila for list of Doctors. It would be wonderful to

have relief from many of the symptoms. I really cannot tell whether they are

from the other metabolic disease but I guess sorting out the thyroid would be

the starting point.

x

[Guest guest]

, I would first recommend that you check out your adrenal

status, it is no good sorting out the thyroid if that needs to be treated. You

can get a 24 hour salivary adrenal profile done to check your levels of

cortisol and DHEA at 4 specific times during the day. Go to our FILES section

of this forum which you can access from the Home Page of this forum thyroid treatment

- click on FILES in the Menu, and on the page that opens, scroll down to the

FOLDER entitled 'Discounts on Tests and Supplements' and open the 'Genova

Diagnostics' document. Follow the instructions there for getting this 24 hour

adrenal profile but remember you must write that 'Thyroid Patient Advocacy' is

your practitioner. That way, you will get a good discount. When you receive the

results, post them on the forum here together with the reference range for each

of the four tests done and we will help with their interpretation.

Luv - Sheila

Dear Angel & Sheila,

Thanks Angel for encouragement and advice, it is good to hear Dr Skinner has

good success. Thanks also Sheila for list of Doctors. It would be wonderful to

have relief from many of the symptoms. I really cannot tell whether they are

from the other metabolic disease but I guess sorting out the thyroid would be

the starting point.

x

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[Guest guest]

Hi Sheila,

I did check my adrenals June 2010 with Genova Diagnostics (ordered by my

dietician privately). My adrenals were affected and probably still are. I

could recheck this if you think it advisable.

I had an appointment re a metabolic disease yesterday as I have

(hypophosphatasia). I took my abnormal results of raised thyroid antibodies.

She felt all my symptoms could not all be attributed to hypophosphatasia and

commented that I should see an endocrinologist. I guess she will suggest this

to my GP.

If I saw Dr Skinner do you think he would manage my adrenals etc, as you advised

sorting my adrenals out first. Or should I allow my GP to refer me to an

endocrinologist first? That is my dilemma. Or am I too complicated for Dr

Skinner at the moment? My fear is that I will have an endo that will not treat

me properly.

As an aside, do you know if restless legs/arms can be part of hypothyroid, or

muscle probs in that often its so uncomfortable lying on my limbs as unpleasant

sensation. Its worse if I have been inactive during the day. Not that I am

ever very active!

I have been depressed for about 4 years & would love to feel better!

>

> , I would first recommend that you check out your adrenal status, it is

> no good sorting out the thyroid if that needs to be treated.

[Guest guest]

Hi

I would order the 24 hour salivary adrenal profile from Genova

again - a lot can happen 7/8 months. When you get the results, post them here

on the forum together with the reference range so we know exactly what is going

on and can help with their interpretation.

Hypophosphatasia

is inherited and hypothyroidism can also come down the family line. When you

had your thyroid tested, did they test to see whether you had thyroid

antibodies? The two tests for these are TPO and TgAb.

Dr

Skinner is an excellent doctor but as far as I am aware, he doesn't treat low adrenal

reserve. As stated previously, many of our members have to take their adrenal

health into their own hands. If you were found to be suffering with 's

disease (adrenal insufficiency) or borderline 's, then he would refer

you to an endocrinologist. Dr Skinner is not an endocrinologist - but he knows

more about thyroid disease than the majority of endo's. I would definitely

consider getting a referral to him .

Restless

Leg Syndrome can be both thyroid and adrenal related. Those who have been given

a diagnosis of fibromyalgia often suffer with restless leg syndrome, and this

can be treated with the thyroid hormone T3. Do you suffer with pains in

specific parts of your body? Read also http://doctorjoelrosen.com/2011/05/adrenal-fatigue/

However,

is it possible this problem could be caused because of the hypophosphatasia?

This is something you should discuss with Dr Skinner or whoever you decide to

see.

Luv

- Sheila

If I saw Dr Skinner do you think he would manage my adrenals etc, as you

advised sorting my adrenals out first. Or should I allow my GP to refer me to

an endocrinologist first? That is my dilemma. Or am I too complicated for Dr

Skinner at the moment? My fear is that I will have an endo that will not treat

me properly.

As an aside, do you know if restless legs/arms can be part of hypothyroid, or

muscle probs in that often its so uncomfortable lying on my limbs as unpleasant

sensation. Its worse if I have been inactive during the day. Not that I am ever

very active!

[Guest guest]

Hi Sheila,

Thank you for your considered reply. Yes I do have thyroid antibodies (601) and

I have vitiligo (auto immune). I also had low adrenal function over year ago so

will retest as you advised. At a hospital appt this week, re hypophosphatasia,

It was advised I see an endocrinologist. You mentioned that Dr Skinner would

refer me to one if he found I had s, so have decided to get to GP before

the hospital letter does to ask for referral to Dr Skinner. My dilemma was

whether to see him or an endo. As he comes with recommendations I suspect It

would be wise.

The T4 was done at recent appt but they couldn't do the T3. They also did a

cortisol blood test. No results as yet.

You asked about pain in specific areas. Tend to get pain & inflammation in

various places. Lower back, elbows , hips, neck etc.

>

> Hi

>

> I would order the 24 hour salivary adrenal profile from Genova again - a lot

> can happen 7/8 months. When you get the results, post them here on the forum

> together with the reference range so we know exactly what is going on and

> can help with their interpretation.

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[Guest guest]

Hello

I think you will benefit from and enjoy a consultation with Dr

Skinner. Whoever told you that you couldn't get your free T3 tested is wrong,

if a doctor insists the laboratory tests fT3 they have to do so. All your

doctor needs to do is to telephone the head of the laboratory and explain that

he specifically wants this test done. Also, a one off cortisol blood test will

not tell them whether you are suffering with adrenal fatigue, so yes, it would

be wise to get the 24 hour salivary adrenal profile. People with fibromyalgia

and the pains you describe often do well when they start taking some form of

T3.

Keep

us advised of what goes on and good luck.

Luv

- Sheila

Thank you for your considered reply. Yes I do have thyroid antibodies (601) and

I have vitiligo (auto immune). I also had low adrenal function over year ago so

will retest as you advised. At a hospital appt this week, re hypophosphatasia,

It was advised I see an endocrinologist. You mentioned that Dr Skinner would

refer me to one if he found I had s, so have decided to get to GP before

the hospital letter does to ask for referral to Dr Skinner. My dilemma was

whether to see him or an endo. As he comes with recommendations I suspect It

would be wise.

The T4 was done at recent appt but they couldn't do the T3. They also did a

cortisol blood test. No results as yet.

You asked about pain in specific areas. Tend to get pain & inflammation in

various places. Lower back, elbows , hips, neck etc.