RE: Online clinic run by the Society of Endocrinologists

[Guest guest]

Oh Boy - now THIS I really do like. Thanks so much for this

Lynne, there are a load of questions we need to ask the British Thyroid

Foundation, but they have some good doctor's on the Panel who will not give us

the usual rubbish and 'opinions' given by the usual BTA dictators. - I

think you would enjoy this. We have several questions on the Home Page of our

web site for starters www.tpa-uk.org.uk . We have written and

written and written to the BTA and the BTF asking them to produce the

scientific evidence to their misleading and often incorrect statements they

make, but they never even acknowledge receipt. OK everybody, ask to be sent a

reminder to this online clinic below and let's see if, for the first time, we

really can force their hands into giving us the information we need. I bet they

cannot.

Forewarned is forearmed - get your thinking caps on and don't

waste these precious seven days by asking the wrong questions.

One question I would like to ask the British Thyroid Foundation

is why their President refuses to pass on the very valuable TPA link to her

thousands of members asking those who remained ill on levothyroxine only

therapy, yet their symptoms were mitigated or disappeared once they started

taking some form of T3 to register their thyroid status on that Register. She

has been asked by me on no less than four occasions to put this link and

details into their BTF Newsletter, but she never does - and sadly, we know she

never will. We now have 1681 counterexamples to T4-only therapy -

against the 900 participants who took place in those flawed studies showing

that T4/T3 combination worked no better than T4-only. How are they going to

answer this question??

Luv - Sheila

http://www.talkhealthpartnership.com/nhs_choices/Online_clinic_thyroid_disorders.php

Online Clinic on Thyroid Disorders

From 25

- 31 January 2012 the British Thyroid Foundation has teamed up

with NHS Choices and talkhealth

to present an Online Clinic on Thyroid Disorders.

Clinical

experts will be available to answer questions about thyroid disorders, any

issues surrounding treatment and to provide you with valuable help and

guidance.

If

you would like to be sent a reminder when the clinic opens click here

British Thyroid

Foundation The British Thyroid Foundation (BTF) is a charitable

organisation, founded in 1991, dedicated to raising awareness and to helping

people with thyroid disorders to avoid isolation and gain information, support

and understanding. Working closely with medical and health professionals so

that we can provide reliable, evidence-based information, the BTF supports and

informs people with thyroid disorders, helps to set up local groups nationwide,

and raises funds to support crucial research.

www.btf-thyroid.org

Sense

about Science is a charity that equips people to make sense of scientific and

medical claims. We work with community groups, patient organisations, civic

bodies, information and health services and over 5,000 scientists to respond to

misleading claims and to share the tools of scientific thinking and scrutiny.

Much of our work is in helping people weigh up claims about cures and

treatments for long-term conditions. In 2009 we worked with neurological

disease charities on “I’ve got nothing to lose by trying it” which

explains how to tell the beneficial from the bogus in the face of the miracle

cure stories, new wonder-drugs and breakthrough therapies that are increasingly

promoted on the internet.

We recently launched the Ask for

Evidence campaign which encourages everyone, whatever their experience, to

ask organisations to provide the evidence for the scientific claims they make.

Our website has tools and resources to help people make sense of evidence.

www.senseaboutscience.org

Thanks Sheila

Great news about Dr Skinner. And I have signed the register.

I expect TPA have heard about this online clinic taking place during the last

week of January?

http://www.endocrinology.org/news/article.aspx?articleid=4252

Best wishes

Lynne

[Guest guest]

Hi Sheilai have signed up for this , think it will be interesting , have also signed the other register to make sure we can get some recognition too.love Sha xxxxxxthyroid treatment From: sheila@...Date: Thu, 5 Jan 2012 17:11:55 +0000Subject: RE: Online clinic run by the Society of Endocrinologists

Oh Boy - now THIS I really do like. Thanks so much for this

Lynne, there are a load of questions we need to ask the British Thyroid

Foundation, but they have some good doctor's on the Panel who will not give us

the usual rubbish and 'opinions' given by the usual BTA dictators. - I

think you would enjoy this. We have several questions on the Home Page of our

web site for starters www.tpa-uk.org.uk . We have written and

written and written to the BTA and the BTF asking them to produce the

scientific evidence to their misleading and often incorrect statements they

make, but they never even acknowledge receipt. OK everybody, ask to be sent a

reminder to this online clinic below and let's see if, for the first time, we

really can force their hands into giving us the information we need. I bet they

cannot.

Forewarned is forearmed - get your thinking caps on and don't

waste these precious seven days by asking the wrong questions.

One question I would like to ask the British Thyroid Foundation

is why their President refuses to pass on the very valuable TPA link to her

thousands of members asking those who remained ill on levothyroxine only

therapy, yet their symptoms were mitigated or disappeared once they started

taking some form of T3 to register their thyroid status on that Register. She

has been asked by me on no less than four occasions to put this link and

details into their BTF Newsletter, but she never does - and sadly, we know she

never will. We now have 1681 counterexamples to T4-only therapy -

against the 900 participants who took place in those flawed studies showing

that T4/T3 combination worked no better than T4-only. How are they going to

answer this question??

Luv - Sheila

http://www.talkhealthpartnership.com/nhs_choices/Online_clinic_thyroid_disorders.php

Online Clinic on Thyroid Disorders

From 25

- 31 January 2012 the British Thyroid Foundation has teamed up

with NHS Choices and talkhealth

to present an Online Clinic on Thyroid Disorders.

Clinical

experts will be available to answer questions about thyroid disorders, any

issues surrounding treatment and to provide you with valuable help and

guidance.

If

you would like to be sent a reminder when the clinic opens click here

British Thyroid

Foundation The British Thyroid Foundation (BTF) is a charitable

organisation, founded in 1991, dedicated to raising awareness and to helping

people with thyroid disorders to avoid isolation and gain information, support

and understanding. Working closely with medical and health professionals so

that we can provide reliable, evidence-based information, the BTF supports and

informs people with thyroid disorders, helps to set up local groups nationwide,

and raises funds to support crucial research.

www.btf-thyroid.org

Sense

about Science is a charity that equips people to make sense of scientific and

medical claims. We work with community groups, patient organisations, civic

bodies, information and health services and over 5,000 scientists to respond to

misleading claims and to share the tools of scientific thinking and scrutiny.

Much of our work is in helping people weigh up claims about cures and

treatments for long-term conditions. In 2009 we worked with neurological

disease charities on “I’ve got nothing to lose by trying it” which

explains how to tell the beneficial from the bogus in the face of the miracle

cure stories, new wonder-drugs and breakthrough therapies that are increasingly

promoted on the internet.

We recently launched the Ask for

Evidence campaign which encourages everyone, whatever their experience, to

ask organisations to provide the evidence for the scientific claims they make.

Our website has tools and resources to help people make sense of evidence.

www.senseaboutscience.org

Thanks Sheila

Great news about Dr Skinner. And I have signed the register.

I expect TPA have heard about this online clinic taking place during the last

week of January?

http://www.endocrinology.org/news/article.aspx?articleid=4252

Best wishes

Lynne