Complaining about non-diagnosis

[Guest guest]

Hi all.

I'm considering complaining about the fact that my husband went six years

thinking that he had M.E./C.F.S, in very poor health, when it now appears that

he was hypothyroid all along. He developed thyroid nodules in 2008 (which must

have been growing for some time, they were externally visible by this stage) and

had half his thyroid removed, although no cancer was detected. He was repeatedly

told that his thyroid levels were 'normal' and that he didn't need treatment.

Finally, a few months ago, his doctor decided he was actually hypo and started

him on levothyroxine - it's still a work in progress, but at 100mg, he's really

feeling the improvement, and it's a transformation!

I don't know what his test results were, all this time, but I'd like to request

them. If his TSH has all along been above the 2.5/ 3 considered top of the range

in many other countries, then I think we should write to the British Thyroid

Association and voice our protest against their much higher recommended level.

We should also let his doctors and thyroid consultant know what they missed, so

as to educate them.

(The high TSH range also affects me, as mine is currently over 4, and with low

free T4, but getting no treatment, and trying to fix myself without my doctor's

help - currently working on my adrenal strength and iron levels, considering NDT

in the near future.)

Before I begin this tedious task, does anyone have any tips?

cheers,

x Helen