Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Hello Debs, Sorry to hear you're feeling so down.I wanted to reply to your query but this probably isn't what you want to hear... I too have extremely low DHEA.Saw Dr Hertoghe (Hormone Specialist/Belgium) in 2008 who prescribed DHEA sulphate 15mg for me which is a fairly low dose and unfortunately it did not agree with me at all.In fact,I actually felt like I was dying on it.The only positive effect I felt was a heightened sex drive which was completely unwelcome considering it made me feel so bad in other ways. I experienced extreme weakness and fatigue and abrubt heart palpitations and had to stop it after a few weeks.Dr Hertoghe thought it might have been because I suffer from low cortisol and taking DHEA actually lowers cortisol.That is why you are supposed to take the two together to balance things out, but even that did not work for me. There are other options such as Keto-7-DHEA but I have read that this does not raise the blood levels of DHEA and therefore seems pretty pointless to me.Another possibility is trying Pregnenolone dubbed the "mother" hormone which is a precursor to the sex and adrenal hormones and could possibly help raise your production of DHEA.It's a case of trial and error as usual. However we are all different and you may find that you are able to tolerate DHEA.I do hope so Debs.Hopefully a few others will share their experiences with it too. Regards Peary>> Hi all> > Sat here feeling very sorry for myself and wanting to be positive. I know I need to take things very slowly but, like most people, I just want to be better. > > I have had very low DHEA for years and no-one has ever looked into this, doctors just ignore it and I'm wondering if I should consider taking a DHEA supplement.> > I wonder if anyone has tried it and if so how it worked for you?> > Debs> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Go to our FILES SECTION and do the Adrenal Questionnaire and let us know how you scored thyroid treatment/files/ADRENALS/ and then click 'Adrenal Stress Questionnaire. Also, how were you diagnosed with low DHEA many years ago. Was this done privately and what treatment did you try at that time? It would be good if you could get the Genova Diagnostics 24 hour salivary adrenal profile to test both your levels of cortisol and DHEA at four specific times during the day - here is the link thyroid treatment/files/DISCOUNTS%20ON%20SUPPLEMENTS%20and%20TESTS/ - and then open the 'Genova Diagnostics' document. DHEA coverts into many hormones. most actions of DHEA are achieved after conversion into more potent hormones such as male and female sex hormones, including androstenedione. Through these other hormones, DHEA expresses typical male and female hormone activity, as well as enhances the immune system. One of the ways it reinforces immunity is by converting into the very immune-enhancing androstenediol and androstenetriol. Second, DHEA appears to have actions of its own probably through DHEA receptors in target cells, in particular endothelium cells of blood vessels and immune cells as suggested in several studies. It is believed that DHEA boosts the immune system and protects blood vessels against atherosclerosis partially by binding to these receptors. Here is some further information about DHEA http://www.lef.org/magazine/mag2001/aug2001_briefs.html For some people, it can take up to three months for them to start feeling any positive effect from taking DHEA so you need to continue to take this daily and not stop it because you think it isn't doing you any good. The recommended daily dose is 25mgs and there are many Internet Pharmacies who sell it - but use only reputable pharmacies. Luv - Sheila I have had very low DHEA for years and no-one has ever looked into this, doctors just ignore it and I'm wondering if I should consider taking a DHEA supplement. I wonder if anyone has tried it and if so how it worked for you? Debs No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1901 / Virus Database: 2109/4748 - Release Date: 01/17/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Hi there Peary Thank you so much for getting back to me even though you are right - not what I had hoped to hear at all!! I've been reading about it and getting mixed messages but the good seems to outweigh the bad. Having said that I don't want to do anything that might make the situation worse, I'm so sorry to hear it didn't work for you. I'm really sensitive to medication so have a horrible feeling I may get similar results. I had hoped that bad results would be more likely in those who take it as a supplement for all those 'fountain of youth' promises as opposed to those who can prove that they are deficient but your story would seem to suggest not. You reply has really helped me and I will look into it a lot more now - thank you. How are you doing in general? Debs > > > Hello Debs, > > Sorry to hear you're feeling so down.I wanted to reply to your query but > this probably isn't what you want to hear... > > Moderated to remove older messages. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 I took 25mg of DHEA and absolutly LOVE it. It mademe feel SO good, happy, cheerful and everything else good! I even upped it to 50mg because I couldn't find 25mg. I have to go back to the dr that prescribed it now so I am not taking it right now but really really miss it. > > > > Hi all > > > > Sat here feeling very sorry for myself and wanting to be positive. I > know I need to take things very slowly but, like most people, I just > want to be better. > > > > I have had very low DHEA for years and no-one has ever looked into > this, doctors just ignore it and I'm wondering if I should consider > taking a DHEA supplement. > > > > I wonder if anyone has tried it and if so how it worked for you? > > > > Debs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Hi Debs, I am taking DHEA - 15mg at present having started on 5. I have Hashis and am also on Armour thryoid now, 5 grains. I was having a real problem with hypoglycemia (I'm not diabetic) and assuming it was reactive (it fitted) and did everything to help: I've always had a good diet, low GI, lots of veg, no refined starches etc (no gluten either as I discovered I was intolerant) and eating every few hours and during the night but I just couldn't seem to overcome it and was virtually permanently 'jittery': the higher the thyroid dose, the worse it became. So, I did a private saliva test and found very low DHEA. I'm taking the Labs sublingual pills, as recommended to me by someone on the NTH adrenals forum, and I'm finding them brilliant! I eat fairly normally now and am NOWHERE NEAR as jittery; I'm so hoping it lasts and doesn't 'wear off'! (I've been taking them since 30th Nov) I would go up to 25mg but no further, especially as I'd not get another test unless I do it privately - when I showed my adrenal stress test results to my Dr, she dropped the paper on the floor and said: " I know nothing about it and I don't need to know " ...!!! So, fingers crossed for you if you try it. Good luck, Carolyn PS if you use the same pills as me I buy them via Amazon.co.uk but they come from USA so take a little time. > > Hi all > > Sat here feeling very sorry for myself and wanting to be positive. I know I need to take things very slowly but, like most people, I just want to be better. > > I have had very low DHEA for years and no-one has ever looked into this, doctors just ignore it and I'm wondering if I should consider taking a DHEA supplement. > > I wonder if anyone has tried it and if so how it worked for you? > > Debs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Hiya That gives me some hope! were you low before you started? what did you use and where did you get it? Are you on thyroid meds too? My test results have been exceptionally low for many years - did you have hair problems as well? has it cured any symptoms? (sorry - I'm full of questions!!) Debs [Ed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Hi Carolyn Oh God - why do these doctors keep insisting they don't need to know when so many of us are suffering so much? I'm really ken to try this but will wait until I get the up to date test results (although why it would change after at least 16 years I don't know!) There are a number of types available on-line but I don't know the best one to get, I am keen on a very low dose to start with though. Has it cleared up any of your symptoms other than the jittery feeling? Do you have hair problems? I also have severe hard skin on my elbows and knees - convinced this is something to do with adrenals but may be wrong. I so hope this continues to work for you - thank you so much for giving me a little bit of hope, I'm reading a lot of positive things about DHEA - a few cautions but overwhelmingly positive, it's just that bit of hope that this might be the final bit of the jigsaw. Thank you so much Debs x > > > > > Hi Debs, > > I am taking DHEA - 15mg at present having started on 5. > > I have Hashis and am also on Armour thryoid now, 5 grains. > > > > I would go up to 25mg but no further, especially as I'd not get another test unless I do it privately - when I showed my adrenal stress test results to my Dr, she dropped the paper on the floor and said: " I know nothing about it and I don't need to know " ...!!! [Ed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 I am sorry but I don't have my test results to give exact numbers but I know I have adrenal fatigue low cortisol. No my hair was not falling out but I have always had extremely thick hair, I eat a lot of nuts and avocados I think that helps with my hair. Before I always felt lousy, fatigued, unable to function because of being so tired always. I also take 10,000 mg Vitamin D and Ferrous Sulfate (it's actually 325 mg 2x a day I posted it wrong in my own post) but my results were strictly from the DHEA because when I stopped taking it I went back even though I continued the other two. I have extremely low iron and obvisiously vitamin D but the DHEA really made a huge difference. I was able to get up and actually do the house work AND enjoy it because I wasn't so tired. My sex drive improved greatly too and I REALLY liked that so did my Husband after years of being in park all the time, LOL. > > [Ed] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Carolyn- interesting what you said about hypoglycemia, I never experienced this until recently and I wonder now if I start the DHEA up again if this will go away as well. I know I too am not diabetic and I live a gluten free vegan diet that is mostly sugar free except maybe 1-2 days a month. when I have a gluten free vegan cookie or two. Oh and I do not take thyroid meds haven't but think I need to since I can only lose weight eating 500 cal a day and my basal body temp is between 96.1-96.4 and many other symptoms. But I am not sure where to figure out what to take. My Test results are always normal > > > > > Hi Debs, > > I am taking DHEA - 15mg at present having started on 5. > > I have Hashis and am also on Armour thryoid now, 5 grains. > >Moderated to remove older mess ages Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 DHEA will not raise cortisol. Infact it may lower it. It can have an inverse effect. DHEA is on a different pathway and is a precursor to Androstenedione, Testosterone, Estrone, Estriol, Estradiol and DHT. It can be very complicated but if you are having blood sugar issues it is a good sign your cortisol output is low or disfunctional. Have you had a diurnal (4 times through out the day) saliva test done? This is a good start to see if your cortisol output is normal through out the day. Hypoglycemics often need to consume more protien. > > > > > > > > > > Hi Debs, > > > > I am taking DHEA - 15mg at present having started on 5. > > > > I have Hashis and am also on Armour thryoid now, 5 grains. > > > >Moderated to remove older mess ages > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Hi yes, I had a 4 times test done which showed: CORTISOL: Sample 1: 27.3 [12-22] H Sample 2: 12.7 [5-9] H Sample 3: 4.2 [3-7] N Sample 4: 2.3 [1-3] N Total Daily Cortisol : 46.5 [21-41] H DHEA: Mean: 0.14 [0.2-0.7] L DHEA:Cortisol Ratio 0.3 [0.6-3.0] L " Resistance Stage 2 - Maladaptation: This is a relatively rare scenario.....The morning cortisol is above the normal range......This may be a reflection of low night time blood sugar levels....The noon cortisol level is above normal range. This may be indicative of low blood sugar levels before lunch, instructing the adrenals to make cortisol... " Interesting about the protein; I upped my protein intake a lot - and it did help - BUT I had a urea etc test done a short while ago and it shows .. too much protein..! However, now my levels are far more stable I have been able to reduce the protein intake to more normal levels. > > DHEA will not raise cortisol. Infact it may lower it. It can have an inverse effect. > > DHEA is on a different pathway and is a precursor to Androstenedione, Testosterone, Estrone, Estriol, Estradiol and DHT. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Debs, please remove most of previous messages and leave just a small portion before clicking 'SEND'. Luv - Sheila ___________________________________ Hi Debs, I haven't really had too many hair problems - except for dandruff and spots but they go when I'm properly medicated with thyroid meds. Your skin problems could be thyroid related(?) - my skin has improved since having decent levels of thyroid meds but I do still have dry and itchy skin. However, I do know - categorically - that it's the carbs that make my arms, in particular, itch/sting/burn (they drive me bonkers) and so if I avoided carbs (of any type) it would stop. However, of course, I need carbs so I'm hopeful the DHEA will help as, as the DHEA seems to be tackling the hypoG, by definition it should assist with this..?! > > Hi Carolyn > > Oh God - why do these doctors keep insisting they don't need to know when so many of us are suffering so much? > > I'm really ken to try this but will wait until I get the up to date test results (although why it would change after at least 16 years I don't know!) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Hi , From what you say here, you certainly sound as if you could be hypothyroid, especially the calorie intake (NB if you are hypoT reducing your calories so low will INCREASE the chance of increasing your weight...!!) You say your results are normal..? is that your doctor's 'normal' ..?! do make sure you get your actual results and the tests' reference ranges (you are entitled to all your notes). I wouldn't recommend anyone taking DHEA if they haven't had saliva tests done as some symptoms can be the same if low/high cortisol, low/high DHEA so you need to know; I'm taking it because my Dhea is very low. Good luck and your first job I reckon, is to get your actual proper results and none of this 'normal' rubbish they palm you off with..! > > Carolyn- interesting what you said about hypoglycemia, I never experienced this until recently and I wonder now if I start the DHEA up again if this will go away as well. I know I too am not diabetic and I live a gluten free vegan diet that is mostly sugar free except maybe 1-2 days a month. when I have a gluten free vegan cookie or two. Oh and I do not take thyroid meds haven't but think I need to since I can only lose weight eating 500 cal a day and my basal body temp is between 96.1-96.4 and many other symptoms. But I am not sure where to figure out what to take. My Test results are always normal > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 That's interesting - does DHEA help at all? > > > Hi yes, I had a 4 times test done which showed: > > CORTISOL: > Sample 1: 27.3 [12-22] H > Sample 2: 12.7 [5-9] H > Sample 3: 4.2 [3-7] N > Sample 4: 2.3 [1-3] N > Total Daily Cortisol : 46.5 [21-41] H > > DHEA: > Mean: 0.14 [0.2-0.7] L > DHEA:Cortisol Ratio 0.3 [0.6-3.0] L > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Hi I am hopeful about DHEA although not holding my breath! Sorry Sheila - I thought I had done on all I replied to, been really strict on doing that, will keep plugging away. Debs x > > Debs, please remove most of previous messages and leave just a small portion before clicking 'SEND'. Luv - Sheila > ___________________________________ > > I need carbs so I'm hopeful the DHEA will help as, as the DHEA seems to be tackling the hypoG, by definition it should assist with this..?! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 I thought I'd just mention that some women have unpleasant side-effects from DHEA - skin outbreaks, hair growth in the wrong places! - and men who have had or are at risk of androgen-related cancers (i.e. prostate) shouldn't take it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Yes, that's true - women with breast cancer/risk too shouldn't use it either. The skin and hair problems are meant to activate only with high doses though - when they do research the amounts they use can be high or even stratospheric but it certainly seems that 25mg for women and 50mg for men are 'safe' doses. There has been a lot of research which shows its help with improving insulin action and decreasing insulin resistance and, if my experience is anything to go by so far, I'd agree with those findings. > > I thought I'd just mention that some women have unpleasant side-effects from DHEA - skin outbreaks, hair growth in the wrong places! - and men who have had or are at risk of androgen-related cancers (i.e. prostate) shouldn't take it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 I did post my results on a different post > > > > Carolyn- interesting what you said about hypoglycemia, I never experienced this until recently and I wonder now if I start the DHEA up again if this will go away as well. I know I too am not diabetic and I live a gluten free vegan diet that is mostly sugar free except maybe 1-2 days a month. when I have a gluten free vegan cookie or two. Oh and I do not take thyroid meds haven't but think I need to since I can only lose weight eating 500 cal a day and my basal body temp is between 96.1-96.4 and many other symptoms. But I am not sure where to figure out what to take. My Test results are always normal > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 Hi , there are thousands of messages on this forum so impossible to check through them to find your original message. Can you tell us what the subject heading was of the message where you posted your results here. You need to stick to the same subject heading whenever you write about a certain problem otherwise, you will not get the responses you need. If you go to the messages page of this forum thyroid treatment and type in your email address in the little search box at that top, that will bring up all the messages you have posted. When you find it, post the message number on the forum so we can check out your results again. It is impossible to remember the results of nearly 3000 members. Luv - Sheila I did post my results on a different post > > Hi , > > From what you say here, you certainly sound as if you could be hypothyroid, especially the calorie intake (NB if you are hypoT reducing your calories so low will INCREASE the chance of increasing your weight...!!) > > You say your results are normal..? is that your doctor's 'normal' ..?! do make sure you get your actual results and the tests' reference ranges (you are entitled to all your notes). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2012 Report Share Posted January 20, 2012 EDITED TO REMOVE PREVIOUS MESSAGES. PLEASE DO THIS BEFORE SENDING YOUR MESSAGE OTHERWISE THERE MAY BE A DELAY IN APPROVING YOUR MESSAGE IF THE MODERATORS DO NOT HAVE TIME TO DO IT FOR YOU, OR ALTERNATIVELY YOU MESSAGE WILL BE REJECTED AND YOU BE ASKED TO DO IT BEFORE SENDING THE MESSAGE BACK. THIS APPLIES TO ALL MEMBERS. MODERATOR I took the questionnaire and I would like to post my results. Predisposiing factors 12 Key signs and symptoms 53 Energy patterns 36 frequently observed events 21 food patterns 21 aggravating factors 11 relieving factors 10 total points 152 # answered 59 severity index 1.7 asterisk total 8 your imput would be appreciated. Thank you > > Go to our FILES SECTION and do the Adrenal Questionnaire and let us know how > you scored > h Quote Link to comment Share on other sites More sharing options...
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