RE: On line Thyroid Clinic - now taking questions.

[Guest guest]

Will be very interesting to see how they reply to that extremely well put

question, that is if it ever appears on the site!...Val

>

> The online clinic on thyroid problems, run by the British Thyroid Association

is now taking questions.

>

> the link is here:

http://www.talkhealthpartnership.com/nhs_choices/Online_clinic_thyroid_disorders\

..php

>

> and I have posted my question. Here it is:

> _____________________________________

>

> TSH Levels and Iodine Depletion

>

> Postby galathea on Wed Jan 18, 2012 11:37 pm

> In the UK the reference range for TSH is usually given as 0.3 – 5.5 although

people with no thyroid antibodies often receive no meds until the TSH reaches

10.

>

> Professor Weetman (President of the British Thyroid Association 2005 -

2008 ) spoke at the GMC Fitness to Practice trial of Dr Gordon Skinner, in 2007.

He said that the reason the UK TSH threshold was higher than other European

countries was because those European countries had iodine depleted soil.

>

> The Society For Endocrinology released a released a press statement in April

2011, proclaiming that research undertaken on behalf of the British Thyroid

Association has shown that the UK is now iodine deficient.

>

> The logical conclusion is that the UK TSH threshold should now be brought into

line with other European countries who are iodine deficient. The commonly

accepted range in these countries is 0.3 – 2.5.

>

> This would mean that many people who are currently struggling with poor

thyroid function would receive much needed medication.

>

> When will this new range be implemented?

>

> ____________________________

>

>

> Unfortunately I note that the clinic is sponsored by the firm who make the

self testing kits..... and the kits only tell you something is amiss when the

tsh is over 5!!

>

> Ho hum....

>

> x

>

[Guest guest]

Where did you click to get your message posted . Probably

it is right under my nose, but I can't find anywhere. I thought we had to wait

for the online clinic to open.

Excellent question by the way and well put.

Luv - Sheila

The online clinic on thyroid problems, run by

the British Thyroid Association is now taking questions.

the link is here: http://www.talkhealthpartnership.com/nhs_choices/Online_clinic_thyroid_disorders.php

and I have posted my question. Here it is:

_____________________________________

TSH Levels and Iodine Depletion

Postby galathea on Wed Jan 18, 2012 11:37 pm

In the UK the reference range for TSH is usually given as 0.3 – 5.5

although people with no thyroid antibodies often receive no meds until the TSH

reaches 10.

Professor Weetman (President of the British Thyroid Association 2005 -

2008 ) spoke at the GMC Fitness to Practice trial of Dr Gordon Skinner, in

2007. He said that the reason the UK TSH threshold was higher than other

European countries was because those European countries had iodine depleted

soil.

The Society For Endocrinology released a released a press statement in April

2011, proclaiming that research undertaken on behalf of the British Thyroid

Association has shown that the UK is now iodine deficient.

The logical conclusion is that the UK TSH threshold should now be brought into

line with other European countries who are iodine deficient. The commonly

accepted range in these countries is 0.3 – 2.5.

This would mean that many people who are currently struggling with poor thyroid

function would receive much needed medication.

When will this new range be implemented?

____________________________

Unfortunately I note that the clinic is sponsored by the firm who make the self

testing kits..... and the kits only tell you something is amiss when the tsh is

over 5!!

Ho hum....

x

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[Guest guest]

Ha, this is interesting, on the same page:

'We recently launched the Ask for Evidence campaign which encourages everyone,

whatever their experience, to ask organisations to provide the evidence for the

scientific claims they make. Our website has tools and resources to help people

make sense of evidence.'

Perhaps the BTA would like to explain their evidence, for allowing a TSH of 10

to be the starting point for treatment of hypothyroidism? I shall be asking

something along those lines...

I couldn't see anywhere to post queries in advance?

>

> The online clinic on thyroid problems, run by the British Thyroid Association

is now taking questions.

>

> the link is here:

http://www.talkhealthpartnership.com/nhs_choices/Online_clinic_thyroid_disorders\

..php

>

[Guest guest]

You just go to the forum and on new message, which is half was down the page

on the left hand side, under the box which has all the messages listed.....

I have some more questions but need time to make them readable....

One is about why T3 is regarded as a placebo when there is a register with 2000

speople wo are willing to say it helped them....

x

>

> Where did you click to get your message posted . Probably it is right

> under my nose, but I can't find anywhere. I thought we had to wait for the

> online clinic to open.

>

> Excellent question by the way and well put.

>

> Luv - Sheila

>

>

>

>

>

[Guest guest]

Ah, found it:

http://talkhealthpartnership.com/forum/viewforum.php?f=123 & start=0

>

> You just go to the forum and on new message, which is half was down the page

on the left hand side, under the box which has all the messages listed.....

[Guest guest]

I have a question, and I registered earlier in the day with my

username, password, email address etc. Problem is, I have not received a

confirmation, and when I clicked on 'New Topic' I had to sign in, but then a

message told me that I had specified an incorrect username and password. OK, I

thought, I will register again, perhaps it hasn't gone through. I used the same

username, password and email address, and this time, I was told I couldn't use

that username because it was already being used - yes, by me!!!! So I did the

rounds again, popped in my username and password, and again got the message that

both were incorrect. Going around in circles.

Luv - Sheila

You just go to the forum and on new message,

which is half was down the page on the left hand side, under the box which has

all the messages listed.....

I have some more questions but need time to make them readable....

One is about why T3 is regarded as a placebo when there is a register with 2000

speople wo are willing to say it helped them....

x

>

> Where did you click to get your message posted . Probably it is

right

> under my nose, but I can't find anywhere. I thought we had to wait for the

> online clinic to open.

>

> Excellent question by the way and well put.

>

> Luv - Sheila

>

>

>

>

>

No

virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4752 - Release Date: 01/18/12

[Guest guest]

I found the confirmation email in my spam box so that I could

click on the link and confirm it, but by then, would you believe, I had changed

my email address, so when I clicked on the link, it said user information

incorrect and wouldn't let me go further - because that link was showing my

other email address. Not my day. Not sure what to do now.

Luv - Sheila

You just go to the forum and on new message,

which is half was down the page on the left hand side, under the box which has

all the messages listed.....

I have some more questions but need time to make them readable....

One is about why T3 is regarded as a placebo when there is a register with 2000

speople wo are willing to say it helped them....

x

>

> Where did you click to get your message posted . Probably it is

right

> under my nose, but I can't find anywhere. I thought we had to wait for the

> online clinic to open.

>

> Excellent question by the way and well put.

>

> Luv - Sheila

>

>

>

>

>

No

virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4752 - Release Date: 01/18/12

[Guest guest]

I have been asking the British Thyroid Association and the Royal

College of Physicians for evidence for years, the BTA don't even have the

courtesy to acknowledge receipt, never mind producing any evidence to research

and studies to back up their misleading and often incorrect statements - why,

because there isn't any. The RCP do acknowledge receipt and thank me, but

that's the end of that. I never hear anything more from them.

Luv - Sheila

Ha, this is interesting, on the same page:

'We recently launched the Ask for Evidence campaign which encourages everyone,

whatever their experience, to ask organisations to provide the evidence for the

scientific claims they make. Our website has tools and resources to help people

make sense of evidence.'

Perhaps the BTA would like to explain their evidence, for allowing a TSH of 10

to be the starting point for treatment of hypothyroidism? I shall be asking

something along those lines...

I couldn't see anywhere to post queries in advance?

>

> The online clinic on thyroid problems, run by the British Thyroid

Association is now taking questions.

>

> the link is here: http://www.talkhealthpartnership.com/nhs_choices/Online_clinic_thyroid_disorders.php

>

No

virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4752 - Release Date: 01/18/12

[Guest guest]

I got through at last. Here is my question: (I have a couple of

other questions to ask). Somehow, I get the feeling nobody will respond to me,

but we will wait and see.

Luv - Sheila

First,

thank you for organising this Thyroid 'talkhealth forum' and giving us the

opportunity to ask the expert panel questions. I really look forward to reading

all the questions and answers.

I would draw the attention of the panel to a very serious problem that exists,

but is not being recognised. My question is, why are those suffering with

peripheral metabolism and peripheral hormone reception being denied a correct

diagnosis and prescribed the active thyroid hormone T3? Doctors failing to

recognise this problem are causing harm to patients.

The problem is that there are two completely physiologically different

definitions of 'hypothyroidism', which is a cause for great concern.

• The Royal College of Physicians define ‘hypothyroidism as

" the clinical consequences of insufficient secretion by the thyroid

gland " - meaning 'hypothyroidism' is ONLY associated with the THYROID GLAND.

This definition is the correct and narrow definition. If this

first definition is correctly called " hypothyroidism " , this can,

hopefully, be treated with levothyroxine sodium-only.

• The British Thyroid Association however, define hypothyroidism as

" the clinical consequences of insufficient levels of thyroid hormones

in the body " . This ‘broad’ definition is associated with

peripheral metabolism and peripheral cellular hormone reception, which produces

insufficient thyroid hormone in the body. This should NOT, therefore be called

‘hypothyroidism’. It should be given a diagnosis of 'Clinical

Euthyroidism’, ‘Type 2 Hypothyroidism’, ‘Euthyroid

Hypometabolism’ or perhaps even the more wordy ‘Impaired Cellular

Response to Thyroid Hormone' - and peripheral thyroid hormone deficiencies

would be treated with the active thyroid hormone replacement T3 and NOT T4.

It does appear, that to avoid suggesting that T3 is needed, the diagnostics

recommended for the symptoms of hypothyroidism focus only on the thyroid gland.

When these symptoms continue, because they come from elsewhere, i.e. peripheral

thyroid hormone deficiencies at cellular level, they are not treated by

medicine. Instead, if a patient continues to complain of the symptoms of

hypothyroidism, and has normal thyroid function test results, and given

T4-only, s/he is given the bogus excuse of “you are suffering from a

functional somatoform disorder” – “your symptoms are

non-specific” or “its old age”. The result of these

continuing symptoms is a reduction in the patient's ability to function, or to

resist the dangerous consequences of low thyroid, which can be many, and they

continue to be a drain on the NHS.

The diagnostic and treatment protocol for those suffering the symptoms of

hypothyroidism must be thoroughly investigated without delay. Such confusion in

the definition is one of the main causes for over a quarter of a million

patients being improperly diagnosed and improperly treated. If this issue were

fixed, then the NHS would save millions of pounds and the quarter of a million

suffering the symptoms of hypothyroidism would no longer be ignored.

Sheila

Thyroid Patient Advocate http://www.tpa-uk.org.uk

shetur

Posts: 1

Joined: Thu Jan 19, 2012

6:47 pm

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of Helen

Sent: 19 January 2012 16:53

thyroid treatment

Subject: Re: On line Thyroid Clinic - now

taking questions.

Ah, found it:

http://talkhealthpartnership.com/forum/viewforum.php?f=123 & start=0

>

> You just go to the forum and on new message, which is half was down the

page on the left hand side, under the box which has all the messages

listed.....

No

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Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4752 - Release Date: 01/18/12

[Guest guest]

Hi shiela i have just posted this on the new forum;

Hi Sheila, thanks for this post you have worded much it better than i could.I

have a normal TSH reading but still suffer symptoms of underactive thyroid.I

feel i have been let down by the NHS.I have seen Doctors and an endocrinologist

had lots of tests been Refered to a specialist for CFC(cronic fatigue

syndrome),i have had balance and hearing problems so i've been to the ENT (ear

nose and throat department) had medication for fluid retention in the ear,i was

told by the ENT Doctor that these symptoms would improve when my thyroid prolems

had been resolved .I've had massive Migraines and balance problems that have

kept me in bed for anything from 2/5 days,for this i've had brain Scan and seen

a neurologists to be told yes i have migrains.I have told every Doctor i have

see that it is an unresolved Thyroid problem and i would like to try a

combination of T4/T3 but up to yet not one NHS doctor has given me a trial.So

yes you can say i'm one to waste NHS Money but what option is there for us.If

any one from the NHS Reads this PLEASE PLEASE LISTED TO US,we don't want to

waste Doctors Time and the NHS money,we just want the right treatment.Helen

HELEN12

Posts: 1

Joined: Thu Jan 19, 2012 12:51 pm

[Guest guest]

Well done Helen - this is what they need to know. I sincerely

hope somebody from this panel of 'experts' will give you a sensible response -

hopefully, that they are going to look into this very, very serious problem.

We have to tell it like it is and show them the real harm that

is being done to those left suffering.

Luv - Sheila

Hi shiela i have just posted this on the new

forum;

Hi Sheila, thanks for this post you have worded much it better than i could.I

have a normal TSH reading but still suffer symptoms of underactive thyroid.I

feel i have been let down by the NHS.I have seen Doctors and an endocrinologist

had lots of tests been Refered to a specialist for CFC(cronic fatigue

syndrome),i have had balance and hearing problems so i've been to the ENT (ear

nose and throat department) had medication for fluid retention in the ear,i was

told by the ENT Doctor that these symptoms would improve when my thyroid

prolems had been resolved .I've had massive Migraines and balance problems that

have kept me in bed for anything from 2/5 days,for this i've had brain Scan and

seen a neurologists to be told yes i have migrains.I have told every Doctor i

have see that it is an unresolved Thyroid problem and i would like to try a

combination of T4/T3 but up to yet not one NHS doctor has given me a trial.So

yes you can say i'm one to waste NHS Money but what option is there for us.If

any one from the NHS Reads this PLEASE PLEASE LISTED TO US,we don't want to

waste Doctors Time and the NHS money,we just want the right treatment.Helen

HELEN12

Posts: 1

Joined: Thu Jan 19, 2012 12:51 pm

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Version: 2012.0.1901 / Virus Database: 2109/4753 - Release Date: 01/19/12

[Guest guest]

I've posted a query on there too, asking why TSH upper limits are set so high in

this country... I have a feeling they won't be getting quite what they expected

on that Q & A!

Helen12, your story is shocking, they really need to address situations like

this. I feel these days that CFS is not only a non-diagnosis, but criminal

negligence. Unless they have explored *every* single possibility, how dare they

take such a lazy option? It's not even a diagnosis, it's a description.

x H