Question for Sheila

[Guest guest]

Hi Sheila

Many thanks for the links you gave me before Christmas so I could get some more

dessicated thyroid. I opted for Nature-Thyroid again because it seems to suit

me and doesn't contain any sugar whereas the ERFA certainly did when I had some

in 2009. Sorry I didn't get back to you earlier but I was very busy at the

time. I was lucky that because it came over Christmas period I didn't get stung

for VAT etc.

Some of the people in the Fibro group that I run (over 100 members) are on

thyroxine but it doesn't do the job for many of them. Is it an option for

people on thyroxine but not doing well to add Nutri thyroid to their regime

building up slowly? Presumably they would be getting some T3 this way.

I don't know if anybody has done this before but just had a thought about it and

wondered what you think? As mentioned previously most of them wouldn't be able

to afford to see anybody privately who knows about the benefits of T3.

Happy New Year

Pam

[Guest guest]

> Nutri Thyroid doesn't actually contain T3, it contains nutrients which are

said to help the thyroid. If the reason for hypothyroidism is because of

Hashimotos then the thyroid will be dying off, and no amount of nutri thyroid

will be able to ressurect it.....

>

> Dr Lowe (www.drlowe.com) advocates that one of the causes of fibromyagia is

that the there is insufficient T3 which could be due to the T4 not

converting.... So, once people are sure that they have good levels of free t4,

then they should be looking at the free t3 levels to see how much of the t4 is

converting. Selenuim is crucial to conversion so supplimenting can be a

good idea.

>

> I did read somewhere, that unless the free t4 is high enough, the conversion

doesn't happen......

>

> Have all of your members had their free t4 and free t3 levels measured?

>

> .

Hi Amanada

No most of their GPs won't test for free T3 if their TSH is considered fine and

as the range in this area is up to 5.5 most of them will fall into this range.

I think all the Endos in my region think all you need is T4, its so obviously

not right because most of them have big weight/fatigue issues as well as Fibro.

I write about Dr Lowe and T3 regularly in the newsletter but only one or two

members have commented on it. I don't think they believe it but believe what

they are told Fibro is a definite condition and nothing to do with the thyroid.

Of course I don't believe it having experienced great pain until I got treated.

Unfortunately many of the the members would also have severe adrenal issues

again nothing is done about this so it wouild be a problem for them to take T3

anyway because their adrenals are too weak.

I am seriously tempted to ask Lyn Mynott to come and speak to the group but

unfortunately her travelling expenses are rather high and not sure that the

Committee would agree it would be worthwhile.

Thanks Pam

[Guest guest]

So what does Lyn Mynott know and can speak about that Sheila doesn't?But there again Sheila's travelling expenses might also be rather high, but it depends where in the Country it is being held.   

Lilian

I am seriously tempted to ask Lyn Mynott to come and speak to the group but unfortunately her travelling expenses are rather high and not sure that the Committee would agree it would be worthwhile.

T

[Guest guest]

Hi Pam

If your members TSH

is greater than 1.0 and rising and their free T4 level is quite high in the

range and they are still suffering with symptoms - then this might be because

they are not converting the mainly inactive thyroid hormone thyroxine (T4) into

the active thyroid hormone triiodothyronine (T3). It is T3 that every cell in

their body needs to make the body and brain function - not T4. If GP's refuse

to ask their hospital laboratory to test for Free T3, then the patient should

ask the GP for a referral to an endocrinologist, preferably one who does not

have his/her speciality in diabetes, and who has a good reputation for treating

thyroid disease properly. We have a good list of such recommended doctors.

We would never

recommend that anybody starts treating with T3 until they have the blood

results back showing their levels of iron, transferrin saturation%, ferritin,

vitamin B12, vitamin D3, magnesium, folate, copper and zinc are well within the

reference range for each of the tests done and their adrenal function checked.

A large majority of

our members have been in the same situation as your fibromyalgia members and

who were told there was little by way of help for them,. I can assure you

that many of them have managed to check their adrenal and full thyroid status

and supplement with whatever is required, whether adrenal glandulars, HC, T4/T3

combination, T3 alone or natural thyroid extract. We have questionnaires

members can complete and recommended home testing - which costs nothing to see

whether they have an adrenal, systemic candidiasis or low magnesium issues. We

also have just about all the information they would need (especially in our

FILES section) which again, is given freely. TPA never charges members for information,

because we know that most have had to leave paid employment and many are living

on State Benefits. However, whatever forum a person belongs to, if they need

private testing and supplements, they will have to pay for them, as these are

not available within the NHS. TPA members do, however, get 33% discount on thyroid/candida/adrenal

etc. supplements, and good discounts for the tests they need.

If you want to ask

somebody who is qualified to speak about this to your members and who are not

tied up with the need to follow the NHS diagnosing and treatment protocol, I

would highly recommend asking either Dr Peatfield or Dr Skinner to speak with

your members, both of whom are extremely experienced in this field and who are qualified

to speak, and both understanding the need to work outside of the NHS protocol

in this case. However, if you feel your members might benefit from the

information that is freely available on our TPA forum (without cost to you or your

members) - ask them to also join our group. We have a very high rate of

success.

Sadly, people

suffering with adrenal fatigue and low thyroid function often have no option

other than to go down the self-diagnosing and self-treatment road. What they

first need to learn is the basics and the self confidence to know what they are

doing. TPA has three medical advisers and some very experienced members who

will do whatever they can to help. You should read on our web site the

statement that Dr Peatfield made about self treatment and the dire need for it.

http://www.tpa-uk.org.uk/self_medication.php

.. What other option is there???

Luv - Sheila

Unfortunately many of the members would also have severe adrenal issues again

nothing is done about this so it wouild be a problem for them to take T3 anyway

because their adrenals are too weak.

I am seriously tempted to ask Lyn Mynott to come and speak to the group but

unfortunately her travelling expenses are rather high and not sure that the

Committee would agree it would be worthwhile.

[Guest guest]

>

> So what does Lyn Mynott know and can speak about that Sheila doesn't?

> But there again Sheila's travelling expenses might also be rather high, but

> it depends where in the Country it is being held.

>

> Lilian

>

Hi Lilian

I didn't realise Sheila gave talks, also I live in south east Kent which is

miles away unfortunately.

Pam

[Guest guest]

> We would never recommend that anybody starts treating with T3 until they

> have the blood results back showing their levels of iron, transferrin

> saturation%, ferritin, vitamin B12, vitamin D3, magnesium, folate, copper

> and zinc are well within the reference range for each of the tests done and

> their adrenal function checked.

>

Hi Sheila

I agree with everything you say but unfortunately these people have been

suffering for so long I think they have sort of given up and actually don't

believe what I say regarding this issue, hence the idea of somebody

knowledgeable coming to talk to the group.

Certainly I could contact Dr Peatfield or Dr Skinner but I rather guess the

question of expenses will come up and its whether I can persuade the Committee

it would be money well spent! On the other hand perhaps I could pay for it

privately as a sort of donation.

Also with regard to the tests you mention I don't think the GPs will be willing

to do all of these and there again most of the members couldn't afford to have

it done privately.

I certainly will pass on this Forum information in the next newsletter and I

agree that its a scandal but the NHS is killing us unless one has some money for

private testing etc.

BW

Pam

[Guest guest]

I don't know that Sheila does give talks, but she has the knowledge and if you don't ask you don't know.     However, that is a distance so I should imagine the travelling expenses would probably come to more than Lyn's.

LilianHi Lilian

I didn't realise Sheila gave talks, also I live in south east Kent which is miles away unfortunately.

Pam

[Guest guest]

Pam, you will never

know about expense unless you ask - that's the first place to start. I somehow

manage to get speakers for all our conferences absolutely free of charge - they

are only too willing to do what they can to help our cause. Never start off

with a negative attitude because you will find it will get you nowhere.

Sounds like your

members need to be given something that will MAKE them believe. If they are

content to continue to suffer without trying to find a different possible

cause, then so be it. You can take a horse to water and all that…..

We have found that

most GP's will do the tests if they are approached in the right way. For those

GP's who don't know of the connection between low levels of those specific

nutrients mentioned and low thyroid, you need to cite references to the

research and studies that have been done to show this. We have lists. For those

members who have a doctor who refuses to do these tests and cannot afford to

get them done privately there are other pointers that they can check for, but

again, they need to believe - and they need the determination to get well -

without it, they will remain as they are. We must be positive, but unless we

are prepared to help ourselves, it is a fact that nobody else is going to do it

for us.

Luv - Sheila

Hi Sheila

I agree with everything you say but unfortunately these people have been

suffering for so long I think they have sort of given up and actually don't

believe what I say regarding this issue, hence the idea of somebody

knowledgeable coming to talk to the group.

Certainly I could contact Dr Peatfield or Dr Skinner but I rather guess the

question of expenses will come up and its whether I can persuade the Committee

it would be money well spent! On the other hand perhaps I could pay for it

privately as a sort of donation.

Also with regard to the tests you mention I don't think the GPs will be willing

to do all of these and there again most of the members couldn't afford to have

it done privately.

I certainly will pass on this Forum information in the next newsletter and I

agree that its a scandal but the NHS is killing us unless one has some money

for private testing etc.

BW

Pam

No

virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4730 - Release Date: 01/08/12