Guest guest Posted January 8, 2012 Report Share Posted January 8, 2012 ----- Forwarded Message ----- From: Connelly <sarahannc1@...> "thyroid treatment " <thyroid treatment > Sent: Sunday, 8 January 2012, 17:55 Subject: re tests Hi Sheila and All,Not on any of the drugs you mentioned, nor am i suffering from any psychiatric disorders. But if you spoke to the endoprat at the S G Hospital he would tell you i was mad, yes he did tell me that on one occasion when i asked him why my hair was falling out, why i had gained stones in wright, ans why i coul'nt stay awake in the afternoon. I pointed out i was only 33 and he said it was nothing to do with my Thyroid as he had taken care of that and indeed he had it would never work again. He said when i was leaving from my last appointment that he would see me again when i asked him when he said 3 to 5 years as i would now go underactive. as i shuffled out of his room i thought i hope it's soon because i can't survive like this, 25 years on still not well, must have missed my appointment eh. Sorry for the rant, i will try to read the links you sent me. hope my blood results turn up tomorrow, the reason they are late is that when i came back from the hospital i put them in the freezer by mistake, can't think straight or spell. Luv Connelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2012 Report Share Posted January 9, 2012 Don't ever go back to that endoprat again , you don't have to and you should choose somebody within the NHS to see from my recommended doctors list. I will send that to you privately. Luv - Sheila Hi Sheila and All, Not on any of the drugs you mentioned, nor am i suffering from any psychiatric disorders. But if you spoke to the endoprat at the S G Hospital he would tell you i was mad, yes he did tell me that on one occasion when i asked him why my hair was falling out, why i had gained stones in wright, ans why i coul'nt stay awake in the afternoon. I pointed out i was only 33 and he said it was nothing to do with my Thyroid as he had taken care of that and indeed he had it would never work again. He said when i was leaving from my last appointment that he would see me again when i asked him when he said 3 to 5 years as i would now go underactive. as i shuffled out of his room i thought i hope it's soon because i can't survive like this, 25 years on still not well, must have missed my appointment eh. Sorry for the rant, i will try to read the links you sent me. hope my blood results turn up tomorrow, the reason they are late is that when i came back from the hospital i put them in the freezer by mistake, can't think straight or spell. Luv Connelly No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1901 / Virus Database: 2109/4730 - Release Date: 01/08/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 Hi it's a bit hard to follow your history here as the messages on the forum aren't on the same thread for some reason. do you mean about needing such a high dose , and having 'hyper' blood tests, but feeling ok? has anyone seen this before? Nick Foot posted about needing 12 grains of Armour thyroid, at one point: thyroid treatment/message/72388 perhaps you have some kind of thyroid resistance? I believe Nick takes T3 now and is on the Rt3 group. have you looked into t3/rt3? I hope this helps and i have not misunderstood the situation chris > > Hi Sheila, > Thank's for your help, just can't see a way out of this, But hope maybe Dr p or S can come up with something it's so strange even to me that the tests can Hyperthyroid, when i start to feel a bit better have you came across anyone like me.? Dr Skinner did say he had only seen one other like me. If he had not treated me i know for sure i would be dead not trying to be dramatic just was in such a bad way. Sheila i will try and stay on the 7grain if i can, but am i correct that i can still buy NDT over the internet? if so i think i will have to raise my dose i don't think i was far away. But who knows.I have not seen Dr Skinner for about a Year i hope he will give me a prescription again if i need it. Thank's Again > Luv Connelly. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 Nick also posted this about his experiences: thyroid treatment/message/41813 > > Hi > > it's a bit hard to follow your history here as the messages on the forum aren't on the same thread for some reason. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 Hi I do think something else is going on but what it is i have no idea. I was saying when i was in my thirties i was diagnosed Graves disease and months into my treatment i was telling the endoprat i now feel ok, but he would not listen he kept saying i was still overactive,by this time i was very ill but sat there like a dumpling swallowing Carbisamole. I told him i felt worse since i came to see him and he nearly had a fit. So to sum up when tests are normal i feel lousy with every symptom, when they are very high i start to feel a bit better, I see i am posting and it is on the discussion forum so as you can see don't have the hang of this yet. Sheila is dealing with this and  by the way i have been a patient of Dr Skinner for about 12 Year's i welcome you're advise and if you can come up with anything else i would be glad to listen. And no i have not looked into Rt3 how would i know i have this? Don't know if this makes any more sense to you thanks for the reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 maybe it's some kind of thyroid resistance ? this site may help: http://thyroid-rt3.com/ > And no i have not looked into Rt3 how would i know i have this? Don't know if this makes any more sense to > you thanks for the reply. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 Hi I have high Cortisol, low b12, Shed any light.Luv Connelly From: <chrisjtaylor46@...> thyroid treatment Sent: Tuesday, 10 January 2012, 22:41 Subject: Re: Re tests maybe it's some kind of thyroid resistance ? this site may help: http://thyroid-rt3.com/ > And no i have not looked into Rt3 how would i know i have this? Don't know if this makes any more sense to > you thanks for the reply. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 High cortisol may increase T4 > rT3 conversion. if you can afford it, maybe it's worth getting an Rt3 test with genova diagnostics? > > Hi > I have high Cortisol, low b12, Shed any light. > Luv   Connelly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2012 Report Share Posted January 10, 2012 hi sarah i agree with chris that as a process of elimination it would be worth getting a reverse t3 test done however logic would suggest that rt3 is probably not the problem. usually when people have too high rt3 they don't do well by continuing to take ndt due to the t4 content. (but i may be wrong).(rt3 is made from t4). i have read on numerous occasions that once people have been hyperthyroid with graves they can become de-sensitised to t3 and HAVE TO HAVE high doses of t3 in order to feel normal. there is/was someone called tess on this forum who experienced the same situation. oddly enough a couple of days ago i was wondering how she was doing because she'd been to hell and back. (i am sorry to say i've got no references to post relating to this de-sensitising). best wishes. trish ps i hope you are supplementing sublingual b12? > > Hi > I have high Cortisol, low b12, Shed any light. > Luv   Connelly  > > maybe it's some kind of thyroid resistance ? > > this site may help: > > http://thyroid-rt3.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2012 Report Share Posted January 11, 2012 Hi Trish I was thinking of rt3 because the only other person i know of who used to need/take high dose NDT was Nick Foot, and he seemed to do better on T3 only. If i remember rightly (and it's 2 or 3 years ago now), Nick's symptoms sounded somewhat similar in some respects.... i would also look into any problems with inflammation with regards to the high cortisol? chris > > usually when people have too high rt3 they don't do well by continuing to take ndt due to the t4 content. (but i may be wrong).(rt3 is made from t4). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2012 Report Share Posted January 11, 2012 Hi , going by your extremely high thyroid function results and the fact that you are taking 7 grains of Armour, Dr Peatfield telephoned me this morning. He says that from the messages he has read from you, your results are far too high - and that taking such a massive dose of natural thyroid extract will just shut down your system - he thinks you are needing to take so much NDT because your adrenals are not up to scratch and that you need to cut down the Armour and raise whatever adrenal supplementation you are taking. If your adrenals are not up to speed, no amount of thyroid hormone is going to work. See the attached document to show the other associated conditions that go along with being hypothyroid that actually stop the thyroid hormone being utilised properly. If you are not taking any adrenal supplements you should get the 24 hour salivary adrenal test from Genova to see what level of cortisol and DHEA you are putting out at four specific times during the day but if you are taking NAE, you should stop this for two weeks before you have the test. Is there any chance you could get an appointment with either Dr Peatfield or Dr Skinner. Dr P has a clinic at my cottage 22nd to 24th February (Nr. Skipton in Yorkshire) if there is any chance you could get up here, but you would have to let me know as a matter of urgency because I only have two places left, and they are likely to go within the next 24 hours. Now telling me that you took 3 grains of Armour before your blood test explains a lot. You must contact Genova Diagnostics immediately via the Email they sent to you and tell them that you had taken 3 grains of Armour before your afternoon test and you know that T3 peaks in the blood a couple of hours or so after taking it, so this would have made the results flawed. Ask them if there is a possibility they could send you another kit and do the test again. Let us know what they say and of course, the outcome. Luv - Sheila Hi Sheila, Forgot to say i took my second dose ERFA on the afternoon before the test 3 & half grains at about 3pm . Luv Connelly. No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1901 / Virus Database: 2109/4734 - Release Date: 01/10/12 1 of 1 File(s) WHY THYROID HORMONE REPLACEMENT MAY NOT BE WORKING FOR YOU.doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2012 Report Share Posted January 11, 2012 HI It is my recollection that with significant peripheral cellular hormone reception that one needs high doses of T3 to improve the statistics / chance of the cells getting the T3 via their mutated receptors. Have a great day, > > > > > usually when people have too high rt3 they don't do well by continuing to take ndt due to the t4 content. (but i may be wrong).(rt3 is made from t4). > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 Hi Sheila,Forgot to ask if he said anything about the antibodies, and might this be infection.of some kind. also have you known anyone to have this many.Luv Connelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Hi Sheila,Thought you asked me to send them again to save you looking back.Luv Connelly ----- Forwarded Message ----- From: Sheila <sheila@...> thyroid treatment Sent: Tuesday, 17 January 2012, 12:44 Subject: RE: Re tests To save me having to go back to find your antibodies results, can you give me them again - and was the antibody test done at the same time you had your thyroid function test done by Genova and the Salivary adrenal profile - or were these done at a different time? Luv - Sheila Hi Sheila, Forgot to ask if he said anything about the antibodies, and might this be infection.of some kind. also have you known anyone to have this many. Luv Connelly No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1901 / Virus Database: 2109/4746 - Release Date: 01/16/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2012 Report Share Posted January 18, 2012 Oh of course. It was just that I couldn't remember seeing the results of the antibodies and needed to see just how high these were. I have written to you privately about these. Luv - Sheila Hi Sheila, Thought you asked me to send them again to save you looking back. Luv Connelly To save me having to go back to find your antibodies results, can you give me them again - and was the antibody test done at the same time you had your thyroid function test done by Genova and the Salivary adrenal profile - or were these done at a different time? Luv - Sheila Quote Link to comment Share on other sites More sharing options...
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