Guest guest Posted January 12, 2012 Report Share Posted January 12, 2012 Hi everyone, I was recently told about your group from one of your members and encouraged to join. I was diagnosed hyperthyroid this past September and I am now hypothyroid. I'm not sure how that happened as it has not been explained to me by my former endocrinologist. I was told I had thyroiditis but that my hypo condition is most likely permanent. My insurance has changed and I am trying to establish with a new doctor. I was put on levothyroxine and was getting worse. Finally talked my doctor into trying Armour. He started me on one gram and I felt better but got worse again. I am currently on 1 1/2 grams of Armour and now I am unable to sleep but some of my other symptoms have subsided. Since I am between doctors now I am struggling with this on my own, waiting for an appointment. Has anyone experienced sleeplessness on Armour and what has worked. I have tried melatonin and 5htp but I just can't sleep. My corisol levels were not normal but have not been explained to me so I'm wandering around in the dark about this, trying to educate myself. I have read taking Isocort would help with the cortisol problem and possibly help me sleep. Any suggestions would be greatly appreciated. Thanks! Kerrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2012 Report Share Posted January 12, 2012 Hello Kerrie, and welcome to our forum where I hope you will get all the help and support that you need. When adding any form of the active thyroid hormone T3, either synthetic or natural, it is always best to start with a low dose. We usually recommend starting natural thyroid extract at 30mgs (half a grain) for 7 days, and then increasing by another 30mgs. After 3 weeks, if no adverse reaction, you increase by another half grain again and keep on increasing in this way until you find the dose that makes you well. However, what doctors are not aware of are the many associated conditions that go along with being hypothyroidism that must be recognised and treated. See the attached document and go through each of these by way of a process of elimination. The usual problem is that patients are suffering with low adrenal reserve, and you need to get the 24 hour salivary adrenal profile done through Genova Diagnostics. Check our FILES SECTION of this forum (accessible from the Home Page). On the page that opens, scroll down to 'Discounts on Tests and Supplements' and in that document, open the 'Genova Diagnostics' file. Follow the instructions for ordering, ensuring you write Thyroid Patient Advocacy' as your practitioner to get your discount. Genova will send the results to you, but post them on the forum so we can help with their interpretation and tell you what you need to do next. Also, whilst in the Genova file, you might want to get tested to see if you have Candida antibodies - another associated condition. Your sleeplessness could be caused because your adrenals are secreting too much cortisol when you go to bed - your cortisol output should be at its lowest at night to enable you to get to sleep. Do you start taking any adrenal supplements, or any other mineral/vitamin supplements until you get the tests you need done. You can cause harm to yourself if you take them and you don't need them. Ask your GP to check your levels of iron, transferrin saturation%, ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc and again, post them to us on the forum so we can help with their interpretation. If any of these are low in the range, thyroid hormone cannot be properly utilised at the cellular level and you will continue to suffer symptoms of hypothyroidism and more. In case your GP is not aware of the effect low levels of these specific nutrients has on your thyroid function, copy out the attached references to just some of the research/studies done to show that this is the case. I have also attached a document written by Dr Peatfield that should explain more about the thyroid/adrenal association. Hope this helps Luv - sheila Finally talked my doctor into trying Armour. He started me on one gram and I felt better but got worse again. I am currently on 1 1/2 grams of Armour and now I am unable to sleep but some of my other symptoms have subsided. Since I am between doctors now I am struggling with this on my own, waiting for an appointment. Has anyone experienced sleeplessness on Armour and what has worked. I have tried melatonin and 5htp but I just can't sleep. My cortisol levels were not normal but have not been explained to me so I'm wandering around in the dark about this, trying to educate myself. I have read taking Isocort would help with the cortisol problem and possibly help me sleep. Any suggestions would be greatly appreciated. Thanks! Kerrie No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1901 / Virus Database: 2109/4737 - Release Date: 01/11/12 3 of 3 File(s) WHY THYROID HORMONE REPLACEMENT MAY NOT BE WORKING FOR YOU.doc MINERALS AND VIT. TESTING.doc A17.THYROID AND ADRENAL DYSFUNCTION.doc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2012 Report Share Posted January 15, 2012 Thanks Sheila, I've just ordered the salive test and will post results as soon as I have them. I'm waiting for an appointment with my new doctor, they are suppose to call me to schedule this. I am having such difficulty getting to sleep and staying asleep it is wearing me down. I will stop adrenal supplements until I have my test results. I thank you for your help and support and will post again as soon as I have this. I will start my Armour at 30 and increase the dose as you have suggested. I will keep you posted. Thanks again! Kerrie xx > > Hello Kerrie, and welcome to our forum where I hope you will get all the > help and support that you need. > Moderated to remove old messages!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2012 Report Share Posted March 7, 2012 Hello Terry Welcome to the group! Please can you advise what medications you are on, what symptomws you have, any relevant blood tests and anything else you feel relevant best regards chris > > Hi I am a new member. I have had a thyroid problem for many years and have been taking medication which has made not a scrap of difference to my debilitating symptoms. I was recommended to this group because I want to take charge of my thyroid problem. I hope to learn through others experiences how to deal with it. I am hoping this group will offer support along the way, and help to answer any questions I may have on my journey, many thanks for accepting me, Terry > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2012 Report Share Posted March 8, 2012 Welcome Terry and I am sure that you will get all the help and support you need from TPA. First, check through the following to see whether you are suffering with any of these associated conditions that go along with suffering symptoms of hypothyroidism and that stop the thyroid hormone from working. If you have any recent blood test results, show them here together with the reference range for each test done and we will help with their interpretation. There are MANY reasons and many medical conditions associated with thyroid disease that stop thyroid hormone from getting into the cells, where it does its work. I mention these over and over and over again - ad nauseum - people must be bored with the same old stuff, but as each new member joins us, they need to know about these. The main condition responsible for stopping thyroid hormone from working is, quite simply, a patient’s thyroid hormone dose is too low because the doctor or consultant refuses to increase it, because the serum thyroid function test results appear OK. Sometimes, the thyroxine dose is too high, yet patients still don't feel well. They continue to suffer. Some reasons for this: 1. You may be suffering with low adrenal reserve. The production of T4, its conversion to T3, and the receptor uptake requires a normal amount of adrenal hormones, notably, of course, cortisone. (Excess cortisone can shut production down, however.) This is what happens if the adrenals are not responding properly, and provision of cortisone usually switches it on again. But sometimes it doesn’t. If the illness has been going on for a long time, the enzyme seems to fail. This conversion failure (inexplicably denied by many endocrinologists) means the thyroxine builds up, unconverted. So it doesn’t work, and T4 toxicosis results. This makes the patient feel quite unwell, toxic, often with palpitations and chest pain. If provision of adrenal support doesn’t remedy the situation, the final solution is the use of the active thyroid hormone, already converted, T3 - either synthetic or natural. You can check for such a possibility by going to the FILES SECTION of our forum http://health.grouops//thyroid treatment/files/ and scroll down to the folder entitled 'Medical Questionnaires' and complete the Adrenal one. Let us know how you score. You can also get the 24 hour salivary adrenal profile from Genova Diagnostics. See the File entitled 'Discounts on Tests and Supplements'. When ordering, write that Thyroid Patient Advocacy is your medical practitioner. They will send out a kit to you and the results will be sent direct to you. When you receive these, post the results on the forum with the reference ranges and we will help with their interpretation. 2. Then, we have systemic candidiasis. This is where candida albicans, yeast, which causes skin infections almost anywhere in the body, invades the lining of the lower part of the small intestine and the large intestine. Here, the candida sets up residence in the warmth and the dark, and demands to be fed. Loving sugars and starches, candida can make you suffer terrible sweet cravings. Candida can produce toxins which can cause very many symptoms of exhaustion, headache, general illness, and which interfere with the uptake of thyroid and adrenal treatment. Sometimes the levels - which we usually test for - can be very high, and make successful treatment difficult to achieve until adequately treated. As above, do the 'Candida Questionnaire' and let us know how you score, and again, you can be tested by Genova Diagnostics to give you diagnosis. 3. Then there is receptor resistance which could be a culprit. Being hypothyroid for some considerable time may mean the biochemical mechanisms which permit the binding of T3 to the receptors, is downgraded - so the T3 won’t go in. With slow build up of T3, with full adrenal support and adequate vitamins and minerals, the receptors do come on line again. But this can be quite a slow process, and care has to be taken to build the dose up gradually. 4. And then there are Food allergies. The most common food allergy is allergy to gluten, the protein fraction of wheat. The antibody generated by the body, by a process of molecular mimicry, cross reacts with the thyroperoxidase enzyme, (which makes thyroxine) and shuts it down. So allergy to bread can make you hypothyroid. There may be other food allergies with this kind of effect, but information on these is scanty. Certainly allergic response to certain foods can affect adrenal function and imperil thyroid production and uptake. 5. Then we have hormone imbalances. The whole of the endocrine system is linked; each part of it needs the other parts to be operating normally to work properly. An example of this we have seen already, with cortisone. But another example is the operation of sex hormones. The imbalance that occurs at the menopause with progesterone running down, and a relative dominance of oestrogen is a further case in point – oestrogen dominance downgrades production, transportation and uptake of thyroid hormones. This is why hypothyroidism may first appear at the menopause; the symptoms ascribed to this alone, which is then treated – often with extra oestrogen, making the whole thing worse. Deficiency in progesterone most especially needs to be dealt with, since it reverses oestrogen dominance, improves many menopausal symptoms like sweats and mood swings, and reverses osteoporosis. Happily natural progesterone cream is easily obtained: when used it has the added benefit of helping to stabilise adrenal function. 6. Then, there is the possibility of mercury poisoning, caused through amalgam fillings - these might need to be removed but you need to seek a Dentist who specialises in the removal of amalgam fillings. 7. One of the main reasons why thyroid hormone is not being utilised at the cellular level is because you might be suffering with low levels of iron, transferring saturation%, ferritin, vitamin B12, vitamin D3, magnesium, folate, copper and zinc - these have to be tested for, and treated. When you have been quite unwell for a long time, all these problems have to be dealt with, and since each may affect the other, it all has to be done very carefully. Ask your doctor to work with you to help you find the cause. The balancing of these variables is as much up to you as to your doctor – which is why a check of morning, day and evening temperatures and pulse rates, together with symptoms, good and bad, can be so helpful. To this end, check out Dr Rind's Metabolic Metabolic Temperature Graph http://www.drrind.com/therapies/metabolic-temperature-graph If your doctor tries to tell you that low levels of the above mentioned nutrients have nothing to do with your low thyroid state, copy out the following of just a few references to the research/studies that have been done to show that there is a very big connection. Doctors are not taught about this at medical school, so we have to help them where we can - so they, in turn, can help their other patients. Low iron/ferritin: Iron deficiency is shown to significantly reduce T4 to T3 conversion, increase reverse T3 levels, and block the thermogenic (metabolism boosting) properties of thyroid hormone (1-4). Thus, iron deficiency, as indicated by an iron saturation below 25 or a ferritin below 70, will result in diminished intracellular T3 levels. Additionally, T4 should not be considered adequate thyroid replacement if iron deficiency is present (1-4)). 1. Dillman E, Gale C, Green W, et al. Hypothermia in iron deficiency due to altered triiodithyroidine metabolism. Regulatory, Integrative and Comparative Physiology 1980;239(5):377-R381. 2. SM, PE, Lukaski HC. In vitro hepatic thyroid hormone deiodination in iron-deficient rats: effect of dietary fat. Life Sci 1993;53(8):603-9. 3. Zimmermann MB, Köhrle J. The Impact of Iron and Selenium Deficiencies on Iodine and Thyroid Metabolism: Biochemistry and Relevance to Public Health. Thyroid 2002;12(10): 867-78. 4. Beard J, tobin B, Green W. Evidence for Thyroid Hormone Deficiency in Iron-Deficient Anemic Rats. J. Nutr. 1989;119:772-778. Low vitamin B12: http://www.ncbi.nlm.nih.gov/pubmed/18655403 Low vitamin D3: http://www.eje-online.org/cgi/content/abstract/113/3/329 and http://www.goodhormonehealth.com/VitaminD.pdf Low magnesium: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC292768/pdf/jcinvest00264-0105.pdf Low folate: http://www.clinchem.org/cgi/content/full/47/9/1738 and http://www.liebertonline.com/doi/abs/10.1089/thy.1999.9.1163 Low copper http://www.ithyroid.com/copper.htm http://www.drlwilson.com/articles/copper_toxicity_syndrome.htm http://www.ithyroid.com/copper.htm http://www.rjpbcs.com/pdf/2011_2(2)/68.pdf http://ajplegacy.physiology.org/content/171/3/652.extract Low zinc:http://www.istanbul.edu.tr/ffdbiyo/current4/07%20Iham%20AM%C4%B0R.pdf and http://articles.webraydian.com/article1648-Role_of_Zinc_and_Copper_in_Effective_Thyroid_Function.html · NOTE: When your blood tests come back, ask your doctor for a copy and remember to always get the reference range and post them on the forum. This is because doctors will often tell you that there is not a problem because blood tests have come back within the reference range. You need to know where about in the reference range they are. We will again, help with their interpretation. It is a fact that many of us are being left with no option other than to go down the self treatment route, and it is essential that you learn how to look after yourself, which is why TPA is here. I personally consider it is quite irresponsible not to give members the facts and as much information in how to do this as possible, because it can be dangerous to self medicate without the knowledge. You will get everything you need from us, and we have three medical advisers to keep us on the right road. There is light at the end of the tunnel and we will help you find it. Luv - Sheila Hi I am a new member. I have had a thyroid problem for many years and have been taking medication which has made not a scrap of difference to my debilitating symptoms. I was recommended to this group because I want to take charge of my thyroid problem. I hope to learn through others experiences how to deal with it. I am hoping this group will offer support along the way, and help to answer any questions I may have on my journey, many thanks for accepting me, Terry No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1913 / Virus Database: 2114/4856 - Release Date: 03/07/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2012 Report Share Posted March 10, 2012 If you scroll towards the end of the Adrenal Questionnaire 'Interpreting the Questionnaire' it will tell you there what your results mean and you will be able to tell whether you have mild, medium or severe adrenal fatigue Terry. This is the same with the Candida Questionnaire. It does appear you have some degree of adrenal fatigue and if you can afford it, I would get the 24 hour salivary adrenal profile to check your levels of cortisol and DHEA at the four specific times during the day, i.e. 8.00a.m. - 12 noon, - 4.00p.m. and again at midnight. Go to our Files section thyroid treatment/files/ and scroll down to the folder 'Discounts on Tests and Supplements' and open the Genova Diagnostics file. Place your order according to the instructions there quoting Thyroid Patient Advocacy as your practitioner. The results will be sent to you and you should then post them on the forum together with the reference range and we will help with their interpretation. Because of your Candida result, I would also order the test to see whether you have candida antibodies. Both of these must be treated if your results show positive because no amount of thyroid hormone can be utilised by the cells until these are treated. Luv - Sheila I have made an appointment to see my gp next week to get blood tests done and have filled in the adrenal and candida questionaires. The Adrenal questionaire scores as follows: Questions answered 37 Points: Key signs and symptoms 25 Candida: Total 130 Many thanks Terry No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1913 / Virus Database: 2114/4859 - Release Date: 03/08/12 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.