Thyroid Blood Tests and T3 Replacement

[Guest guest]

Hi Everyone,I'm doing a series of seven or eight posts about thyroid blood tests and patients on T3 only or predominantly T3 replacement.I've posted the first two over the past couple of weeks.If anyone is interested you can find them by either going to my Facebook page and looking for 'Thyroid Blood Tests Part 1' and 'Thyroid Blood Tests Part 2' :http://www.facebook.com/recoveringwitht3Alternatively, you can find them on my website on the 'Blog' section (see website in signature below).I'll add another post here in a few weeks when I've published the next couple.Best wishes,

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Author of: Recovering with T3 My Journey from Hypothyroidism

to Good Health Using the T3 Thyroid HormoneMy website: recoveringwitht3

My facebook page: http://www.facebook.com/recoveringwitht3

[Guest guest]

HI PAUL

I have almost got through your book and have just looked up further information

on your site.

I am on T3 only (Mexican is better than NHS T3), but recently my GP tested for

T4 AND TSH, and from this result he wanted me on 50mcg of T4 as well. I was not

able to oblige him with taking 50mcg as I need another prescription that BOOTS

are trying to obtain, so tried taking 25mcg of T4, which I am sure is causing BP

to go up, but will continue to test this one out.

I had a FREE T3 test done privately and left off the morning pill of 25mcg. I

did not feel very good which caused palpitations and shakiness. I recovered once

I took my T3 med. Has this happened to you, as from what I gather too much T3

can cause the same thing to happen.

From what I have gathered these tests are not really very good to rely on, so is

the best policy to go by how you feel.

I gave my GP one of your books for Xmas, so I hope he finds time to read and

learn.

The one thing I have wondered about thyroid meds is, could the sodium/salt that

is used be the cause of high BP and not getting well, as high BP can cause

problems with ones kidneys. Could it be also due to the type of sodium/salt used

and how they prepare it.

From what I have learnt is that the NHS T3 has sodium chloride and methylated

spirits in, which the Mexican T3 does not have.

Kathleen

>

> Hi Everyone,

> I'm doing a series of seven or eight posts about thyroid blood tests and

> patients on T3 only or predominantly T3 replacement.

> I've posted the first two over the past couple of weeks.

[Guest guest]

Hi Kathleen,

I have found that both too little and too much T3 can both raise heart rate.

Typically, with too little T3 the heart rate can be rapid (palpitations) and

quite weak, whereas with too much T3 the heart rate is fast but more forceful.

There are many other possible reasons for a rapid heart rate that I discuss in

my book. However, if the heart rate settles to normal after a dose of T3 then

you probably have your answer that it was indeed caused by insufficient T3 to

the heart muscle.

I would never suggest that anyone just 'goes on how they feel' because I don't

believe that any of us are sensitive enough to pull this off. In the book I

outline a number of methods for tracking of symptoms and signs that provide much

more reliable information. Certainly, for those that after much work feel the

need to go on predominantly T3 then trying to manage medication levels to attain

a certain TSH or FT4 level is a very stupid thing to do. FT3 can, for some

people, provide a guideline, especially once they have found a T3 dosage that

works for them and they can see what type of FT3 level this might equate to.

However, even FT3 is subject to large fluctuations in the day depending on when

the last T3 dose was taken. So, I personally don't pay any attention to any of

these results apart from an occasional test to see if the results look roughly

as I would expect them to.

My own experience is that T4 pushes my BP up and I've seen other people on

combos of T3 and T4 with high BP that has reduced when the T4 dosage has been

reduced. I doubt this is due to the sodium content of the tablets though.

Best wishes,

>

[Guest guest]

HI PAUL

I have been into BOOTS to see if they have managed to obtain my T4 which they

have not.

I enquired with them about T4 causing high BP, and in turn I noted a rise in

weight, and they agreed with what you have said, so I informed them that I was

in no hurry for that prescription.

In your book you say that different areas in the body have to convert T4 TO T3,

and the kidneys are one area. If ones kidneys cannot convert T4 into T3, could

the reason for high BP lie with ones kidneys. It is also said that high BP is

due to ones kidneys, and the reason why GP's tend to put patients with high BP

on BP pills. High BP in turn is damaging to ones kidneys.

I keep thinking of the damaging effect Pimozide had, as the continuing increase

in T4 in turn caused my BP to go up and up which incurred Amlodipine and

Lisinopril.

I am also under a lot of stress at the moment having located the reason for the

decline of my health. The reason is that a GP did not pass some of my health

records down to the next GP,so further GP's are not aware of the lung problem in

childhood and still is. One of the records removed also shows that damage was

done during sterilization which I reported at the time and the specialist walked

out. There are two surgeries involved a hospital and a mental health trust.

I have been busy composing a letter to show the damaging effect that removing my

records has had, in fact this GP was the one that struck me off his list. This

letter has now been sent to the four Trusts involved (a copy for each). I will

await their response.

I will not however be content with an apology, and am prepared to take a case

through court myself. This GP has completely ruined my life, and I could walk

past my Grandchildren and not even recognise them. It is not a fault with my

brain, but being deprived of seeing them since 2001.

I need to prepare myself and find links to aid me to take my case through a

court.

From what I can see they can place some nasty unproven remarks into your health

records which cannot be removed, but in turn they are removing ones health

records causing one to be placed on drugs that in turn cause harm.

Kathleen

>

> Hi Kathleen,

>

> I have found that both too little and too much T3 can both raise heart rate.

Typically, with too little T3 the heart rate can be rapid (palpitations) and

quite weak, whereas with too much T3 the heart rate is fast but more forceful.

>

> There are many other possible reasons for a rapid heart rate that I discuss in

my book. However, if the heart rate settles to normal after a dose of T3 then

you probably have your answer that it was indeed caused by insufficient T3 to

the heart muscle.

>

..

>

> Best wishes,

>

>

[Guest guest]

I would like to lend my support regarding what you are thinking of doing. You will have your work cut out and will need to be doing a lot of legal researching unless you are a Solicitor or have one in mind. My partner is not a solicitor but is quite knowledgeable in the ways of the law and the legal system. He is always shouting replies when I read out stuff from this forum about what people ought to be doing! He has helped me and a friend and has done/is doing his own representation with his own work related injury Tribunal stuff. If you get stuck he would be only too happy to help.

Re: Thyroid Blood Tests and T3 Replacement

HI PAUL I have been into BOOTS to see if they have managed to obtain my T4 which they have not.I enquired with them about T4 causing high BP, and in turn I noted a rise in weight, and they agreed with what you have said, so I informed them that I was in no hurry for that prescription.In your book you say that different areas in the body have to convert T4 TO T3, and the kidneys are one area. If ones kidneys cannot convert T4 into T3, could the reason for high BP lie with ones kidneys. It is also said that high BP is due to ones kidneys, and the reason why GP's tend to put patients with high BP on BP pills. High BP in turn is damaging to ones kidneys.I keep thinking of the damaging effect Pimozide had, as the continuing increase in T4 in turn caused my BP to go up and up which incurred Amlodipine and Lisinopril.I am also under a lot of stress at the moment having located the reason for the decline of my health. The reason is that a GP did not pass some of my health records down to the next GP,so further GP's are not aware of the lung problem in childhood and still is. One of the records removed also shows that damage was done during sterilization which I reported at the time and the specialist walked out. There are two surgeries involved a hospital and a mental health trust.I have been busy composing a letter to show the damaging effect that removing my records has had, in fact this GP was the one that struck me off his list. This letter has now been sent to the four Trusts involved (a copy for each). I will await their response. I will not however be content with an apology, and am prepared to take a case through court myself. This GP has completely ruined my life, and I could walk past my Grandchildren and not even recognise them. It is not a fault with my brain, but being deprived of seeing them since 2001.I need to prepare myself and find links to aid me to take my case through a court.From what I can see they can place some nasty unproven remarks into your health records which cannot be removed, but in turn they are removing ones health records causing one to be placed on drugs that in turn cause harm.Kathleen>> Hi Kathleen,> > I have found that both too little and too much T3 can both raise heart rate. Typically, with too little T3 the heart rate can be rapid (palpitations) and quite weak, whereas with too much T3 the heart rate is fast but more forceful.> > There are many other possible reasons for a rapid heart rate that I discuss in my book. However, if the heart rate settles to normal after a dose of T3 then you probably have your answer that it was indeed caused by insufficient T3 to the heart muscle.> .> > Best wishes,> >

[Guest guest]

HI JENNY

I also belong to another group called messed up mesh, and this group are dealing

with these mesh tapes which are put in to hold up prolapses. This mesh can in

turn disintegrate and cause inflammation and pain. This mesh is difficult to

remove, and trying to remove it can cause further damage. They placed one of

these tapes in me in 2003 to hold up the bladder. The rectocele was repaired,

but this is causing problems in turn pushing down on the bladder and this tape

is pulling up the bladder, so in turn causing a lot of pain.

This damage was done during sterilization and the specialist walked out telling

me he was no bowel specialist, so two years after this. I was already on the

waiting list to go back in for gynae investigation when I changed GP's due to a

remark from him.

The report that came back to that GP states that there is a small

cystorectocele. I was not informed so went on to ask for another opinion on my

kidney. On my return from the specialist this GP told me to find another Doctor

and take my family with me.

The fact that I was not informed correctly was the reason I ask for a second

opinion. This is one of the records that was not forwarded to the next GP.

Pimozide caused a lot of weight to pile on making this prolapse worse.I also

wonder if in turn this is causing problems to the thyroid gland.

The group I mentioned have got a solicitor, and I have been speaking to him

tonight.

The legal services policy I have is with Aviva, but the problem is they use

there own firms and work on a no win no fee. The solicitor is a London firm

(rosenblatt-law).

He informed me that Legal Aid for clinical negligence was going to be withdrawn,

and the reason is quite clear to all.

It also sounds like from what you say that a solicitor can perhaps give partial

help. Will keep you informed on how things progress, but first I have to await

the responses.

I would value your help.

Kathleen

>

> I would like to lend my support regarding what you are thinking of doing. You

will have your work cut out and will need to be doing a lot of legal researching

unless you are a Solicitor or have one in mind. My partner is not a solicitor

but is quite knowledgeable in the ways of the law and the legal system. He is

always shouting replies when I read out stuff from this forum about what people

ought to be doing! He has helped me and a friend and has done/is doing his own

representation with his own work related injury Tribunal stuff. If you get stuck

he would be only too happy to help.