RE: ONLINE THYROID CLINIC NOW TAKING QUESTIONS (NHS Choices)

[Guest guest]

Sheila..... what date? 25 to 31 February 2012

From: SheilaT

Sent: Friday, January 20, 2012 9:54 AM

thyroid treatment

Subject: ONLINE THYROID CLINIC NOW TAKING QUESTIONS (NHS Choices)

Dear Member

If you would like to take part in a serious Question and Answer Session about thyroid (or thyroid related) problems, 'NHS Choices' has arranged an open Question and Answer session, hosted by the 'Talkhealth' forum on 25 to 31 February 2012. You will first have to register (a very simple process) ) http://www.talkhealthpartnership.com/forum/viewforum.php?f=123.

The forum is open to all. It opened yesterday so that you can prepare your question, but it will not be answered by the experts until 25 to 31 February. Here is a link to the Panel of Experts http://www.talkhealthpartnership.com/forum/viewtopic.php?f=123 & t=2081.

Please note that the Panel require QUESTIONS ONLY. They do not need case histories at this time.

Enjoy!

Sheila and Lilian

www.tpa-uk.org.uk

[Guest guest]

Dear Sheila and Lilian,Thank you for your email, and I am very interested in joining in with this. Though only a minor thing but cuts dates down there is only 29 days in Feb this year.....not 31 as listed. So only giving 5 days not 7 !!ThanksBridgette thyroid treatment From: sheila@...Date: Fri, 20 Jan 2012 09:54:55 +0000Subject: ONLINE THYROID CLINIC NOW TAKING QUESTIONS (NHS Choices)

Dear Member

If you would like to take part in a serious Question and Answer Session about thyroid (or thyroid related) problems, 'NHS Choices' has arranged an open Question and Answer session, hosted by the 'Talkhealth' forum on 25 to 31 February 2012. You will first have to register (a very simple process) ) http://www.talkhealthpartnership.com/forum/viewforum.php?f=123.

The forum is open to all. It opened yesterday so that you can prepare your question, but it will not be answered by the experts until 25 to 31 February. Here is a link to the Panel of Experts http://www.talkhealthpartnership.com/forum/viewtopic.php?f=123 & t=2081.

Please note that the Panel require QUESTIONS ONLY. They do not need case histories at this time.

Enjoy!

Sheila and Lilian

www.tpa-uk.org.uk

[Guest guest]

Ooops - I need a holiday - where on earth did that come from?

Many thanks Bridgette. The actual dates of the Online Thyroid Clinic forum are

25th to 31st January and NOT February.

I will send a note to all members.

Luv - Sheila

Dear Sheila and Lilian,

Thank you for your email, and I am very interested in

joining in with this.

Though only a minor thing but cuts dates down there is only

29 days in Feb this year.....not 31 as listed. So only giving 5 days not 7 !!

Thanks

Bridgette

thyroid treatment

From: sheila@...

Date: Fri, 20 Jan 2012 09:54:55 +0000

Subject: ONLINE THYROID CLINIC NOW TAKING QUESTIONS

(NHS Choices)

Dear

Member

If you

would like to take part in a serious Question and Answer Session about thyroid

(or thyroid related) problems, 'NHS Choices' has arranged an open Question and

Answer session, hosted by the 'Talkhealth' forum on 25 to 31 February 2012. You

will first have to register (a very simple process) ) http://www.talkhealthpartnership.com/forum/viewforum.php?f=123.

The

forum is open to all. It opened yesterday so that you can prepare your

question, but it will not be answered by the experts until 25 to 31 February.

Here is a link to the Panel of Experts http://www.talkhealthpartnership.com/forum/viewtopic.php?f=123 & t=2081.

Please

note that the Panel require QUESTIONS ONLY. They do not need case histories at

this time.

Enjoy!

Sheila

and Lilian

www.tpa-uk.org.uk

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virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4754 - Release Date: 01/19/12

[Guest guest]

Anyone else had problems registering?

I tried 2x with 2 different email addresses and screen names (as it won't let me

do it again with the first one and I didn't receive the email or could log in

with the details I registered).

I waited, checked junk folder, but nothing.

Emailed them and awaiting answer. I saw some of your emails there (recognised

the screen names) so I know it can be done :-)

Anita x

>

>

> Dear Member

>

>

> If you would like to take part in a serious Question and Answer Session

> about thyroid (or thyroid related) problems, 'NHS Choices' has arranged

> an open Question and Answer session, hosted by the 'Talkhealth' forum on

> 25 to 31 February 2012. You will first have to register (a very simple

> process) )

> http://www.talkhealthpartnership.com/forum/viewforum.php?f=123

> <http://www.talkhealthpartnership.com/forum/viewforum.php?f=123> .

[Guest guest]

I did and still couldn't get on, but then I found the

email confirmation from the forum had been delivered into my Junk Mail. I then

just clicked on the confirmation link they sent and I was straight through.

Felt a bit of an idiot really.

Check your junk mail and see if it is there.

Luv - Sheila

Anyone else had problems registering?

I tried 2x with 2 different email addresses and screen names (as it won't let

me do it again with the first one and I didn't receive the email or could log

in with the details I registered).

I waited, checked junk folder, but nothing.

Emailed them and awaiting answer. I saw some of your emails there (recognised

the screen names) so I know it can be done :-)

Anita x

[Guest guest]

Hi Sheila, It is January, not February. X Agatethyroid treatment From: sheila@...Date: Fri, 20 Jan 2012 09:54:55 +0000Subject: ONLINE THYROID CLINIC NOW TAKING QUESTIONS (NHS Choices)

Dear Member

If you would like to take part in a serious Question and Answer Session about thyroid (or thyroid related) problems, 'NHS Choices' has arranged an open Question and Answer session, hosted by the 'Talkhealth' forum on 25 to 31 February 2012. You will first have to register (a very simple process) ) http://www.talkhealthpartnership.com/forum/viewforum.php?f=123.

The forum is open to all. It opened yesterday so that you can prepare your question, but it will not be answered by the experts until 25 to 31 February. Here is a link to the Panel of Experts http://www.talkhealthpartnership.com/forum/viewtopic.php?f=123 & t=2081.

Please note that the Panel require QUESTIONS ONLY. They do not need case histories at this time.

Enjoy!

Sheila and Lilian

www.tpa-uk.org.uk

[Guest guest]

> I have joined nhs choices and they are not allowing any more questions or

comments, or at least I cannot access it if they are. There is a padlock and it

says it is locked, has anyone else had this?

love janet

>

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>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Dear Member

>

> If you would like to take part in a serious Question and Answer Session about

thyroid (or thyroid related) problems, 'NHS Choices' has arranged an open

Question and Answer session, hosted by the 'Talkhealth' forum on 25 to 31

February 2012. You will first have to register (a very simple process) )

http://www.talkhealthpartnership.com/forum/viewforum.php?f=123.

>

> The forum is open to all. It opened yesterday so that you can prepare your

question, but it will not be answered by the experts until 25 to 31 February.

Here is a link to the Panel of Experts

http://www.talkhealthpartnership.com/forum/viewtopic.php?f=123 & t=2081.

>

> Please note that the Panel require QUESTIONS ONLY. They do not need case

histories at this time.

>

> Enjoy!

>

> Sheila and Lilian

> www.tpa-uk.org.uk

>

[Guest guest]

http://www.talkhealthpartnership.com/forum/index.php

they have closed the questions page!!!!

[Guest guest]

I smell a rat! All the posts are locked and you can't comment on posts or create

new posts.

I wonder if they didn't get the reaction or type of questions they wanted!

This is what the administrator has put up:

Thank you for all your pre-clinic questions about thyroid disorders.

Due to the very high volume of questions posted ahead of the opening of the

clinic, we have taken the decision to lock the forum until Wednesday 25 January

when the experts will be available to answer the questions already posted, and

any new questions you may have.

All questions originally posted in this 'Pre-Clinic Questions' topic have been

moved into individual topics of their own.

Thank you all for your participation so far and we look forward to seeing you

all in the forum again next week.

Remember your questions will not be answered by the experts until Wednesday 25

January.

Interesting as there are only 31 posts - how is that too many?? It's a worry if

they can't cope with more than 31 questions!!!

>

> they have closed the questions page!!!!

>

[Guest guest]

I just went on to post my question and found it locked! Obviously they're not

getting the " right type " of questions.

Typical NHS!!!!

Babs

[Guest guest]

Sheila we forgive you, after all Doctors make more errors than you do.

Kathleen

>

>

> Ooops - I need a holiday. It has just been pointed out to me that I put

> 'February' instead of 'January' in my previous message.

>

>

>

> Sheila

>

> www.tpa-uk.org.uk <http://www.tpa-uk.org.uk/>

>

[Guest guest]

HI ALL

I wonder what questions they will pick out to answer, and will they answer

Sheila's. Do you have to register to view the answers.

Will they also use our registrations for other purposes.

Kathleen

>

>

> I smell a rat! All the posts are locked and you can't comment on posts or

create new posts.

>

> I wonder if they didn't get the reaction or type of questions they wanted!

[Guest guest]

I know, smacked hand and apologies all round.

Luv - Sheila

Hi Sheila, It is January, not

February. X Agate

If you

would like to take part in a serious Question and Answer Session about thyroid

(or thyroid related) problems, 'NHS Choices' has arranged an open Question and

Answer session, hosted by the 'Talkhealth' forum on 25 to 31 February 2012. You

will first have to register (a very simple process) ) http://www.talkhealthpartnership.com/forum/viewforum.php?f=123.

[Guest guest]

Well Janet, didn't we just know it - they have obviously been

inundated with questions. Perhaps that alone will be sufficient for the

organisers to realise there is a great big problem out there, otherwise, if

everybody was doing well under the recommendations laid down by the RCP, BTA et

al. and our doctors/endocrinologists were treating us well and giving us back

our optimal health, there would be no need for so many questions, or indeed, no

need for local and Internet thyroid support groups that people are joining out

of desperation to get the support and help they need.

Well done everybody who has participated - or tried to

participate.

Luv - Sheila

http://www.talkhealthpartnership.com/forum/index.php

they have closed the questions page!!!!

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virus found in this message.

Checked by AVG - www.avg.com

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[Guest guest]

Problem is, are all the questions going to be answered by way of

the present BTA diagnosing and treatment protocol - because if they are, this

is going to be a complete waste of time and energy on behalf of everybody.

Doctors are too scared to say what they want, even those who are on the

executive committee of the BTA because it is well known that their statements,

as far as doctors are concerned, are mandatory, and if they do not comply with

their recommended protocols, they will be marked men/women!

Me being cynical would bet that each member of the team has been

asked not to step outside of the BTA protocol and questions on e.g. TSH will be

referred to the BTA Guideline on Thyroid Function Tests or to the RCP recent

Statement on the Diagnosis and Management of Primary Hypothyroidism or other

guidelines/guidance/statements. They cannot afford to lose face, so I am expecting

little to nothing but lots of more of the usual rubbish not backed up with scientific

evidence. However, we need to gather all their answers so we can study these at

a later date otherwise, when the topic has closed, they may all be lost.

Luv - Sheila

I smell a rat! All the posts are locked and you can't comment on posts or

create new posts.

I wonder if they didn't get the reaction or type of questions they wanted!

This is what the administrator has put up:

Thank you for all your pre-clinic questions about thyroid disorders.

Due to the very high volume of questions posted ahead of the opening of the

clinic, we have taken the decision to lock the forum until Wednesday 25 January

when the experts will be available to answer the questions already posted, and

any new questions you may have.

[Guest guest]

I have posted my question in the section asking for suggestions for other

subjects, since I will be unable to access a computer during the given time.

That is if they bother to open up the forum again anyway!! Can't really see

what they can discuss anyway with the present regime in control, its just test

the TSH and dole out the T4 if the numbers say so. Well a monkey could do that

so why or how they become professors with that level of education would be

interesting to know about. In fact the whole medical profession has sunk to a

level of drug pushing without any input from the grey cells, perhaps they are

over fluoridated too - LOL !!!!!

[Guest guest]

Perhaps that is the question you should ask them Janet.

Luv - Sheila

Can't really see what they can discuss anyway

with the present regime in control, its just test the TSH and dole out the T4

if the numbers say so. Well a monkey could do that so why or how they become

professors with that level of education would be interesting to know about. In

fact the whole medical profession has sunk to a level of drug pushing without

any input from the grey cells, perhaps they are over fluoridated too - LOL

!!!!!

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[Guest guest]

I think we should wait and see exactly what they will answer and

check their answers against the BTA recommended diagnosing and management

protocol and the BTA guidelines on TFT's. If it is shown to be a complete waste

of time and space, perhaps we should advertise this on our web site. However,

you never know, they may do a complete about turn, bring the TSH down to 0.3 to

3.0, start treating using T4, T3 and natural thyroid extract and start testing

all those specific minerals and vitamins that they don't appear to know about that

stop thyroid hormone from working if any of these are low. Boy! it could be a

glorious week.

Luv - Sheila

I just went on to post my question and found it

locked! Obviously they're not getting the " right type " of questions.

Typical NHS!!!!

Babs

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virus found in this message.

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[Guest guest]

Hi Sheila

Have just joined this Talk-health on-line thyroid clinic. It appears to be

linked to NHS CHOICES which I already belonged to, so I presume one might have

to join both.

However like you all they are not accepting any more questions, so I visited THE

EXPERTS, so SHEILA, do you know any of them, and are they in fact experts.

Kathleen

>

> I think we should wait and see exactly what they will answer and check their

> answers against the BTA recommended diagnosing and management protocol and

> the BTA guidelines on TFT's. If it is shown to be a complete waste of time

> and space, perhaps we should advertise this on our web site.

> Luv - Sheila

>

>

[Guest guest]

Well Kathleen, it appears that even 'Meeting the Experts' is now

locked because I can't get there either. However, from what I remember, there

was Professor Lazarus who seems to have a mind of his own. I always imagined

him to be six foot, broad, lots of thick black hair and a beard and wearing

heavy glasses. I think this image remains in my mind because I telephoned him

one morning about something he had said, and this really gruff voice answered

back. He said " Do you know what hour this is - you woke me up " . I was

almost shaking in my shoes, I thought it was 9.15a.m. and thought that was

reasonable, but guess what, it turned out it was the day that the clocks had

been turned back an hour, so I was phoning him at 8.15. I apologised, and

cannot remember now whether I asked him the question or not. Anyway, seeing his

picture shocked me, not a bit like that - but I don't think I liked him.

Dr Colin Dayan I have spoken to on the telephone and went down

to Bristol to meet him at the University. Bob and I went to see him to show him

the full results of our Hypothyroid Patient Survey where it shows 78.4% people

said they had not got back their optimal health since starting

levothyroxine-only treatment, amongst other results. He is a lovely, lovely man

and I feel he is very strongly on our side, but he has to work with the RCP and

BTA. Can't really comment about how he will respond, but whenever I write to

him asking him questions, he always gives me very honest answers. He is also

aware of our Register of Counterexamples of those who remain with symptoms on

T4-only, but whose symptoms were mitigated or went away when starting T3. Could

be interested.

Can't remember the other names off hand, and brain getting

tired, so signing off for the evening to get some R and R. If anybody else

remembers who the others are, let me know.

Luv - Sheila

Have just joined this Talk-health on-line thyroid clinic. It appears to be

linked to NHS CHOICES which I already belonged to, so I presume one might have

to join both.

However like you all they are not accepting any more questions, so I visited

THE EXPERTS, so SHEILA, do you know any of them, and are they in fact experts.

Kathleen

---

[Guest guest]

It wasn't locked, wasn't checking the right one.

Don't know Edzard Ernst

Do know Colin Dayan

Don't know Berny on (he is a thyroid surgeon)

Do know Petros Perris -

very big follower of BTA protocol.

Don't know Dianne

Don't know Kerbel

Do know Graham Beastall -

he was one of the authors with the BTA/BTF of Guidelines on Thyroid Function

Testing.

Don't know Tim Cheetham.

Hi Sheila

Have just joined this Talk-health on-line thyroid clinic. It appears to be

linked to NHS CHOICES which I already belonged to, so I presume one might have

to join both.

However like you all they are not accepting any more questions, so I visited

THE EXPERTS, so SHEILA, do you know any of them, and are they in fact experts.

Kathleen

>

> I think we should wait and see exactly what they will answer and check

their

> answers against the BTA recommended diagnosing and management protocol and

> the BTA guidelines on TFT's. If it is shown to be a complete waste of time

> and space, perhaps we should advertise this on our web site.

> Luv - Sheila

>

>

No

virus found in this message.

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