Re: Has anyone lobbied their MP on getting a FREE T3 TEST

[Guest guest]

On Wed, 25 Jan 2012 09:48:58 -0000, you wrote:

>

>I have just been speaking to my GP over T4 causing my BP to rise so not good

for ones hear or kidneys, and made enquiries about Thyroid Tests. Apparently the

government do not allow GP's to do the FREE T3 TEST, so I said that just doing

the TSH and FREE T4 is no good if a patient is taking T3

Labs will do FT3 if the Dr states that the patient is having T3

treatment or the FT4 results are strange.

Nick

[Guest guest]

HI NICK

What you say is odd, as my GP is aware and has even noted what T3 I am taking,

so why has he not put this on the Blood tests form.

He told me that the NHS won't test for FREE T3, but next time I will stand my

ground and refuse blood tests unless he does test for FREE T3.I do not take T4

as it causes BP to rise, and mine is already high enough, but T3 lowers it, so

T3 it is for me.

As it is I have to be ever watchful on what a GP prescribes, and all I can say

is that some of this untoward prescribing is with intent, so how can anyone

trust a Doctor to do surgery, and which bit would be wrongfully removed.

Kathleen

>

>

> Labs will do FT3 if the Dr states that the patient is having T3

> treatment or the FT4 results are strange.

>

> Nick

>

[Guest guest]

Hi Kathleen; I get my fT3 tested through my GP's surgery as well. He does it

twice a year and the lab has never refused to do it.

Regards

Jane

>

> HI NICK

> What you say is odd, as my GP is aware and has even noted what T3 I am

taking, so why has he not put this on the Blood tests form.

>

> He told me that the NHS won't test for FREE T3, but next time I will stand my

ground and refuse blood tests unless he does test for FREE T3.k

> >

>

[Guest guest]

Hi Kathleen

I had very high blood pressure for 16 years while taking levothyroxine. My GP

had no answer when I asked why my BP just kept getting higher. She just gave me

stronger and stronger doses of BP medicine and refused a trial of T3.

So I self medicated with T3 only and my blood pressure immediately started going

down. 7 months later I take no medication at all for BP. My GP does not request

T3 blood tests but I told the nurse who took the blood that, being on T3, TSH

was a waste of time and money so she added on the test for T3.

I have just been speaking to my GP over T4 causing my BP to rise so not good for

ones hear or kidneys, and made enquiries about Thyroid Tests. Apparently the

government do not allow GP's to do the FREE T3 TEST, so I said that just doing

the TSH and FREE T4 is no good if a patient is taking T3.

[Guest guest]

HI LILIAN

I will continue to monitor BP. I am also lowering Prednisolone and then a gap

before I increase T3, but I am only doing this by half a pill at a time.

At one time when on about 150mcg of T4 My BP was a lot higher and could not be

controlled with Lisinopril or Amlodipine.

It appears to be more responsive to T3.I am not sure that it is the hormonal

effect of T4 that causes my BP to rise, as it happens too quick. Could it be an

ingrediant. Will keep you informed on how what has been diagnosed as Polymyalgia

responds to what I am doing.

It could also be due to what you say about ther correct treatment which is T3

NOT T4, and in turn the make of T3 (being Mexican)

Kathleen

>

> *I have not found this Kathleen. I am not sure about the thyroxine

> raising it, but I haven't had thyroxine for years and have had Erfa and T3

> yet my blood pressure has not gone down.*

> *

> *

> *Could it be that the fact that when a person is hypothyroid their blood

> pressure goes down because of the hypothyroidism as one of the symptoms,

> when the hypothyroidism is treated it will go up naturally to hopefully

> what is normal. It might have been your hypothyroidism giving you a

> false lower reading and that you really do have higher blood pressure.

> The T3 does not lower my Blood Pressure.*

> *

> *

> *Lilian

[Guest guest]

What we need to know is WHO in the government has told GP's that

they are not allowed to do a Free T3 Test. You should ask your GP to produce

such a statement in writing and to let you have a copy. Tell him that you need

to know WHY the Government has made such a declaration and when this was dated.

I think you will find your GP is hiding behind this statement and will be

unable to produce it. He is probably referring to the RCP's statement on the

diagnosing and management of PRIMARY hypothyroidism where there is no need to

test for fT3 but the RCP has nothing whatsoever to do with the Government.

All laboratories do tests for free T3. Doctors are allowed to

request it and laboratories must do it if a doctor feels this is necessary.

You might do well to telephone the Head of your local Path. Lab

and ask in what circumstances do they test free T3, and ask if s/he agrees that

if a person taking any form of T3 (synthetic or natural) their serum T3 level should

be monitored.

Sheila

On Wed, 25 Jan 2012 09:48:58 -0000, you wrote:

>

>I have just been speaking to my GP over T4 causing my BP to rise so not

good for ones hear or kidneys, and made enquiries about Thyroid Tests.

Apparently the government do not allow GP's to do the FREE T3 TEST, so I said

that just doing the TSH and FREE T4 is no good if a patient is taking T3

No

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[Guest guest]

My Blood pressure has always been on the high side, and I was hospitalised for

both pregnancies for high BP, and made to stay in bed.The 14 years on Pimoxide,

and yes they concealed the pain in the bladder that they should have done

something about, but a previous GP had withheld my records to show what was

causing the pain, and also the problem with my lungs.

The first thing I developed while on Pimozide was what I thought was a nasty

bout of flu, then came migraines, Hypothyroidism, a gain of 7stone in 14 years,

high BP that incurred being on lisinopril and amlodipine. I was put on

Frusimide, but I found I was not wanting to drink, and neither did I keep

spending pennies, and in the end I almost passed out, ending up in bed with a

bad headache and being sick. Another GP at the surgery advised against taking

Fruisimide. Pimozide did not do my lungs anygood, and also constipated me, so

most of the time sachets mixed with water. I became more and more incontinent

and in the end breast cancer.I very often got sore throats which I no longer

get.

My former GP mentioned that something was the wrong way round in reference to a

cholesterol test.

Before they had the thyroid test, they used to use the cholesterol test to

diagnose Hypothyroidism, so is it possible that I have been wrongly diagnosed

with Hypothyroidism, and that T3 is helping with another condition.

I have received two responses back out of the four involved in my complaint.The

GP responsible is unavailable for comment until end of Feb, and the Hospital

concerned are not prepared to go any further with investigations, so maybe a

court case will force this.

Kathleen

>

> People with hypothyroidism often present with low blood pressure - this is

> one of the things that causes plaque to build up in the blood vessels

> causing high cholesterol levels. Once a patient gets on the correct level of

> thyroid/adrenal hormone replacement, their BP goes to normal and their

> cholesterol level comes down.

>

> Luv - Sheila

>

[Guest guest]

HI SHEILA

I have just spoken to the LAB, and you are correct, and they can test for FT3.

It is up to your GP to order it.

When I mentioned that I was taking T3 which my GP does know, and I also

mentioned that I had to have this test done privatley as my GP did not have it

done.

I pointed out that surely they should be watching these levels in case I end up

taking too much of the T3.

He was going to relay me to a chemist who had more knowledge, but needless to

say he was not in his office.

The way I have been treated it is of no surprise that this test is not being

requested by my GP.

Kathleen

>

> What we need to know is WHO in the government has told GP's that they are

> not allowed to do a Free T3 Test. You should ask your GP to produce such a

> statement in writing and to let you have a copy. Tell him that you need to

> know WHY the Government has made such a declaration and when this was dated.

> I think you will find your GP is hiding behind this statement and will be

> unable to produce it. He is probably referring to the RCP's statement on the

> diagnosing and management of PRIMARY hypothyroidism where there is no need

> to test for fT3 but the RCP has nothing whatsoever to do with the

> Government.

> Sheila

>

>

[Guest guest]

Will try again tomorrow, but no I do not know the chemists contact details. I

was relayed through and needless to say received a message on an answer phone to

say he was not available, and this is very often the case with PALS. Have also

been tied up after receiving a letter from solicitor.This depends on my

insurance if they agree.

Kathleen

>

> Did they give you the chemist's contact details Kathleen? If you do

> eventually get through to him, let us know his comments.

>

> Luv - Sheila

>

>

>

> HI SHEILA

> I have just spoken to the LAB, and you are correct, and they can test for

> FT3. It is up to your GP to order it.

> When I mentioned that I was taking T3 which my GP does know, and I also

> mentioned that I had to have this test done privatley as my GP did not have

> it done.

> I pointed out that surely they should be watching these levels in case I end

> up taking too much of the T3.

> He was going to relay me to a chemist who had more knowledge, but needless

> to say he was not in his office.

>