Re: online clinic on thyroid disorders

[Guest guest]

Why do i bother....

Look at my answer to my people expierence hypo symoptoms with normal TSH FT4 and

FT3

Dear Steve, I was interested to hear your story. It is difficult to comment on

what may be a complex problem, but I have to say if a person has unexplained

symptoms and the clinical examination is normal and a full thyroid profile (by

that I mean serum TSH and FT3/FT4 levels) is entirely normal, it is extremely

improbable that there is thyroid disease. This scenario would prompt

consideration of other explanations for the symptoms. You have brought up an

important issue, that the measurement of serum TSH alone is not always enough to

exclude hypothryoidism, in a tiny proportion of cases pituitary disease can be

missed.

Steve

[Guest guest]

Would you be kind enough to add this to my thread its called " Normal thyroid

labs but extreme hypo symotoms "

Or if you feel it would be better for me to do it, i will have to do it in about

3 hours when im back into the office.

I am getting so angry reading all of there replies to people

i even just wrote " what a load of boll*cks " on one reply but then deleted it as

i held my anger back.

I no longer want to be an endocrinologist, there is no way i want ANYTHING to do

with these sort of people. Nutritionist/Naturopath all the way as Dr peatfield

reccomended.

>

> I know Steve - totally pathetic and predicted.

[Guest guest]

Sheila - have they been removing your posts?! Your comment in this thread seems

to have disappeared:

http://talkhealthpartnership.com/forum/viewtopic.php?f=123 & t=2095

If so - shocking! It was a perfectly reasonable post!

[Guest guest]

They seem to have removed this one, too: ' Pse read then answer why NHS won't

check T3 ' - when you click on it, it says 'The requested topic does not

exist.'. They seem to be clearing away the stuff that doesn't relate to

'clinical' queries.

[Guest guest]

Im back in the office and have updated my thread with most of this information.

You can follow it here if i get a reply.

http://www.talkhealthpartnership.com/forum/viewtopic.php?f=123 & t=2127 & p=6113#p61\

13

Steve

[Guest guest]

They are a disgrace for deleting posts. It seems if you mention a doctors name

they are also deleting, even if its peatifled or lowe.

They are also merging some. I again got some reply but this time for the

talkhealth admin saying they will focus on indicidual cases first and not the

post i made which shiela asked me to lol.

Steve

>

> They seem to have removed this one, too: ' Pse read then answer why NHS won't

check T3 ' - when you click on it, it says 'The requested topic does not

exist.'. They seem to be clearing away the stuff that doesn't relate to

'clinical' queries.

>

[Guest guest]

That Dr Graham Beastall is an absolute arse, isn't he? It drives me nuts when

they don't answer the question but another one entirely. The point isn't that

the tests themselves are faulty, only that the currently applied use of them is

illogical. (He answered one query on tests with a long spiel about how their

clinical standards of excellence are the best in the world, etc etc. Not the

point!

And how vastly stupid is it, to say that it's 'bad medicine to treat patients

for a complaint they don't have'. No one suggested that, and why would they have

to, just because the TSH reached a particular number, if someone had no

symptoms? Give me strength! As you pointed out, Sheila, it's also bad medicine

NOT to treat a patient for a complaint they DO have. It really is staggering...

I love the phrase that someone used, 'GOBSAT' - 'Good Old Boys Sat Around A

Table' - i.e., standards and parameters arrived at, not by scientific evidence,

but by general agreement among influential doctors and consultants. That's the

way we do it here, old boy...

>

> They are a disgrace for deleting posts. It seems if you mention a doctors name

they are also deleting, even if its peatifled or lowe.

>

> They are also merging some. I again got some reply but this time for the

talkhealth admin saying they will focus on indicidual cases first and not the

post i made which shiela asked me to lol.

>

> Steve

[Guest guest]

Sheila I added a response to this one you posted, but cannot find it now.

I cannot see that they have added much in trhe way of their response or help.

I am now waiting to see if I get a response to the problem I have with T4

raising my BP and that it is harmful to ones heart and kidneys when T3 lowers

BP. I have ask them what they would choose.

I bet it has disappeared when I revisit.

Kathleen

>

> I think they have probably got rid of mine, apart from the one I posted

> about the two physiologically different definitions of hypothyroidism, which

> they have put into another thread about T4 something. That heading stood out

> and over 180 hits

[Ed]

[Guest guest]

...... Beastall seems to be at a loss of what to say, so he copies part of an original answer heposted and plops them as answers into other questions, that have no relevance whatsoever. What a plonker!

LOL - he sure is, Sheila. I decided to give him a piece of my mind. Wonder how long that will stay up there....

love,

xx

[Guest guest]

I started a thread titled 'diet' and asked why we are not tested for mineral and

vitamin deficiencies that prevent the conversion of T4 to T3. Also asked why

doctors do not advise a low carb diet as this is effective for a lot of people.

The subject has gone.

[Guest guest]

Forum now locked, not sure if its just still tomorrow or till they feel like.

Steve

[Guest guest]

Oh steve, please do not get discouraged - it is knowing that there is at least

'one' (you) that gives a tiny grain of hope for those suffering................

what happens if you throw in the gloves......... aaarrrggghhh fight from the

inside out and get these endoprats back by getting as many people well as you

can.........

F

> >

> > I know Steve - totally pathetic and predicted.

>

[Guest guest]

Dear Sheila and All,

Alternatively, the BTA is being paid to not know. Given that we are decades

past the important dates in after-the-thyroid-gland bodily function discoveries

and warnings that T4 only fails to mitigate the symptoms of hypothyroidism in

all patients, the BTA folks and all endocrinologists know or should know this

niche of medicine.

I believe this is further proof that medical fairness is not going to come from

medical powers. Previous proof is the approximate 40 complaint letters to

various offices of endocrinology and governments on both sides of the pond.

There is not a shred of evidence to back up their claims as those claims apply

to the after-the-thyroid-gland dysfunctions and deficiencies.

Have a great day,

>

> Oh No! This is really starting to worry me now, because it is showing that

> the BTA really have little to no knowledge about anything. We might have

> suspected this but it does appear their educating is sadly lacking and they

> have no idea about any association between low nutrients and low thyroid

> whatsoever. I think we need to gather some of this information together to

> report on our web site www.tpa-uk.org.uk and let the people out there know

> more of what is going on.

>

> Sheila

>

>

>

>

>

> I started a thread titled 'diet' and asked why we are not tested for mineral

> and vitamin deficiencies that prevent the conversion of T4 to T3. Also asked

> why doctors do not advise a low carb diet as this is effective for a lot of

> people. The subject has gone.

>

>

>

> _____

>

> No virus found in this message.

> Checked by AVG - www.avg.com

> Version: 2012.0.1901 / Virus Database: 2109/4765 - Release Date: 01/25/12

>

[Guest guest]

What about copying some of their answers which we know are wrong/rubbish, then

putting up the correct answer with links to references/studies showing the right

answer on TPA's website. Just a thought!

Steve

>

> Oh No! This is really starting to worry me now, because it is showing that

> the BTA really have little to no knowledge about anything. We might have

> suspected this but it does appear their educating is sadly lacking and they

> have no idea about any association between low nutrients and low thyroid

> whatsoever. I think we need to gather some of this information together to

> report on our web site www.tpa-uk.org.uk and let the people out there know

> more of what is going on.

>

> Sheila

>

>

>

[Guest guest]

I also messaged the admin earlier this morning asking when are they opening

again and said hopefully it would open there eyes to the extent of the problem.

By closing the forum they are doing the exact opposite of what the forum is

intended for, because there are too many questions they then answer no

questions.....

Steve

>

> Well, I have just answered my own question. Just been to the forum and here

> is the message Online

> <http://www.talkhealthpartnership.com/forum/viewforum.php?f=123 & start=0>

> clinic on thyroid disorders - TEMPORARILY CLOSED

>

> I have just written to the Administrator asking her to let me have reasons

> why there is a temporary closure and also asking whether this clinic will be

> opening again shortly. I will let everybody know when I get a response.

[Guest guest]

I dont have the time either im afraid

I wish i was able to work on thyroid related things all day instead of my job

about sewers and water.. its so boring zzzzzz lol - I need the money too badly

at the moment.

Keep up the good work Sheila!!

Steve

>

> That would be great if there is somebody who is happy to go through the

> questions they have answered and copy them all. sorry, I haven't the time to

> do this as I am already working about 12 hours a day on other thyroid stuff

> and not getting done what I should be.

>

> Have they opened the thyroid clinic today yet, not even been there?

>

> Luv - Sheila

>

[Guest guest]

I think they really dislike you Sheila lol, your message in my thread has been

deleted yet everybody else's stays.

They have updated the forum now and everything is under a topic (seems a good

idea) and hopefully it re-opens today.

Steve

[Guest guest]

" Unfortunately we are having to give you a warning. Our online clinic on thyroid

disorders is a place for patients to ask our experts questions about thyroid

issues. We cannot tolerate anyone calling into question the integrity or

professionalism of any of our experts. We have removed part of your recent post

directed at one of our experts. If you continue to behave in this way we will

have no option but to take further steps by banning you from our forums. "

followed by

" Despite my previous warning I am emailing again to ask you to post sensible

questions in the forum. Asking experts if they have thyroid disease is

irrelevant. This is your second warning and if you continue in this way you will

be banned.! "

Joke this.

Steve

[Guest guest]

> I think they really dislike you Sheila lol, your message in my thread has been deleted yet everybody else's stays.> They have updated the forum now and everything is under a topic (seems a good idea) and hopefully it re-opens today.

I've just checked - the thyroid forum is open again and - surprise, surprise - my 'contribution' has disappeared along with an appreciative comment of my posting by another poster. I admit, I indirectly (or perhaps not so indirectly) called into question the professionalism of Dr. Beastall and since calling into question the integrity or professionalism of their "experts" is against their rules, I did actually expect them to pull it. Never mind, at least they got the message and it bothered them enough to make it disappear.

I have read through most of the questions people have posted, but as yet I have not read one reply from any of "the experts" that is more than platitudes. ly, any agony aunt's reply in a magazine is of more value, at least as far as "expert" replies in their thyroid section is concerned. I'll have a nose around other section in a minute to see if they get more fruitful "advice"....

At least we know the score now....any poster who asks critical and inconvenient questions potentially brings the cogs temporarily to a standstill. The section in question gets closed, the offending mails get removed – end of! – so what's new ??

What was the thread you posted your comment in ? Luv - Sheila

It was in reply to one of Helen's posts about the TSH, Sheila. Below is what I had said. I am not proud of it and I am not surprised they pulled it. I had crossed the line - it sounded pompous, although that was deliberate as I was well and truly p*ssed by Beastall's waffling and felt like hitting out .... some people just bring out the worst in me

Dr. Beastall – with all due respect... you are totally missing the point of what patients are saying here. As you surely know, the TSH is the measurement of a pituitary hormone, not a thyroid hormone. To use the TSH as the golden standard for diagnosing hypothyroidism is - in a word - WRONG. There is no way on earth that anybody can rule out hypothyroidism on the strength of a low or "normal" TSH alone.

It is not my place to lecture you on how to properly diagnose Hypothyroidism, although I do have sufficient knowledge to do that. I am not a doctor; I am a patient with Hashimoto's disease. But just because my degree is not in medicine does not mean I that am too stupid to understand thyroid disease, a subject which I have intensely studied over the past 16 years. By now my understanding of thyroid disease likely surpasses the knowledge of most doctors on that subject. And I do not think I am alone. Reading the various letters on this forum tells me that plenty of people can think for themselves. Surely it is not asking too much of the board to give us some credit and not to feed us meaningless platitudes. To repeat myself, a low or normal TSH on its own, without looking at the thyroid antibodies, the T's and FT's and - most of all - THE PATIENT, is NOT sufficient to rule out Hypothyroidism, however much the BTA or RCP et al insist that it is.... Millions of patients all over the world know it and won't have the wool pulled over their heads anymore – so please – no more platitudes. We get enough of those from our politicians. The board has offered to answer patient's questions, so please listen to the questions - thank you.

[Guest guest]

PLEASE REMOVE OLD MESSAGES BEFORE SENDING YOURS.

MODERATOR

I'm sure they're all rueing the day they volunteered to do this forum! All

standard stuff being churned out and their ignorance on full show, would make

you laugh if it wasn't so important.

Carolyn

>

> What was the thread you posted your comment in ?

>

> Luv - Sheila