Online clinic - reopening today

January 26, 2012

I emailed the administrator and suggested she give people some idea of what's

happening. She's added the following comment to her original message about

temporary closure:

" The reason for temporary closure is to allow us to group questions into

sub-forums to make it easier for people to post in the correct topic area, and

for our experts to more easily answer the questions.

Please bear with us. We should have the forum open again today (Thursday 26

January 2012). "

TC

January 26, 2012

Its back open fire away!

Steve

>

January 26, 2012

Problem is, most people are posting in the Hypothyroidism

section and some of the other sub-groups are not attracting any questions

whatsoever. Why do they not realise that the majority of problem are being

caused to those suffering symptoms of hypothyroidism who are not being given a

diagnosis or not being given the correct thyroid hormone their individual

bodies need because of TOTAL reliance on the thyroid function test results.

Also, I think the thyroid experts are on a 'go-slow' there are

very, very few questions that have been answered - so where on earth are they.

The Panel should have split their duties into different times,

two responding say on a Monday morning and another two on Monday afternoon

etc etc. I think there are only about 15 answers, if that.

Anyway Tony, well done, but they are still removing very

important questions that should not have been removed.

Sheila

I emailed the administrator and suggested she

give people some idea of what's happening. She's added the following comment to

her original message about temporary closure:

" The reason for temporary closure is to allow us to group questions into

sub-forums to make it easier for people to post in the correct topic area, and

for our experts to more easily answer the questions.

Please bear with us. We should have the forum open again today (Thursday 26

January 2012). "

TC

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January 26, 2012

Yes, indeed, where are they? There are 9 of them, for goodness sake - only two

I've seen today are Dr Lazarus and Nurse . Most of the others haven't

posted yet at all. And they can't *really* claim to be overwhelmed, there are

150-odd queries posted in the hypothyroid section, which shouldn't be too much

for that many of them to handle. Not very professionally run.

> Also, I think the thyroid experts are on a 'go-slow' there are very, very

> few questions that have been answered - so where on earth are they.

January 26, 2012

I'm going through Dr Lazarus's posts.... He's brilliant

Apparantly if you have low iron, take t4 and the iron sorts itself out.

And if you have low B12 take T4 and the b12 sorts itself out...

Wow... obviously a wonder drug... and only 98p a pack

Ha Ha Ha Ha Ha Ha I'd be laughing if it wasn't so sad..

xx

>

> Yes, indeed, where are they? There are 9 of them, for goodness sake - only two

I've seen today are Dr Lazarus and Nurse .

January 26, 2012

>>> And they can't *really* claim to be overwhelmed, there are 150-odd queries posted in the hypothyroid section, which shouldn't be too much for that many of them to handle. Not very professionally run.<<<<

Just consider what Sheila alone gets through answering during the day, on her own, and with other things to do.Lilian

January 26, 2012

Yes, and she doesn't do superficial either! So far, all of the answers I've seen

on the online clinic have been extremely superficial.

TC

> Just consider what Sheila alone gets through answering during the day, on

> her own, and with other things to do.

>

> Lilian

January 27, 2012

And sadly, he's one of the better ones. He did at least talk about 'the art of

doctoring' as well as the science, and hinted that he thinks the TSH limit of 10

is too high. I'd rather see him than that idiot Dr Beastall any time! :-s

> >

> > Yes, indeed, where are they? There are 9 of them, for goodness sake - only

two I've seen today are Dr Lazarus and Nurse .

>

January 27, 2012

Should some of us ask questions, giving our TSH and symptoms, just to see what replies they give us??Thanks,NoreenPS It took me a while to even find that site!!!

On 27 January 2012 09:21, Helen <helen@...> wrote:

And sadly, he's one of the better ones. He did at least talk about 'the art of doctoring' as well as the science, and hinted that he thinks the TSH limit of 10 is too high. I'd rather see him than that idiot Dr Beastall any time! :-s

> >

> > Yes, indeed, where are they? There are 9 of them, for goodness sake - only two I've seen today are Dr Lazarus and Nurse .

>

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

January 27, 2012

Yes Noreen, a good idea. Sheila

Should some of us ask questions, giving our TSH and symptoms, just to see

what replies they give us??

Thanks,

Noreen

PS It took me a while to even

find that site!!!

January 27, 2012

Thanks Sheila.I registered and submitted a query. Will let you know ...xOn 27 January 2012 14:58, Sheila <sheila@...> wrote:

Yes Noreen, a good idea. Sheila

Should some of us ask questions, giving our TSH and symptoms, just to see

what replies they give us??

Thanks,

Noreen

PS It took me a while to even

find that site!!!

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

January 27, 2012

This was my query and the reply (which was very fast btw):I have M.E. for the last 25 years. I have Lyme Disease & Fibromyalgia as well as arthritis.

When I get my bloods done, my TSH is between 1.11 and 1.74 and the lab's range is 0.35 - 5.5.

My FT4 is 14.9 and the lab's range is 8.5 - 23.

I have hypothyroid symptoms (which are similar to M.E. & Fibromyalgia) and wonder if you could give me any advice please.

Many thanks.

by Professor Lazarus on Fri Jan 27, 2012 4:55 pm

Your thyroid function test is normal. If you have a family history of thyroid disease you should get your thyroid antibodies measuredOn 27 January 2012 15:47, Noreen <noreenmur@...> wrote:

Thanks Sheila.I registered and submitted a query. Will let you know ...x

On 27 January 2012 14:58, Sheila <sheila@...> wrote:

Yes Noreen, a good idea. Sheila

Should some of us ask questions, giving our TSH and symptoms, just to see

what replies they give us??

Thanks,

Noreen

PS It took me a while to even

find that site!!!

-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

January 27, 2012

I would be very tempted to respond by saying, " Yes, I know my

thyroid function tests are 'normal' i.e. within the reference range. What I need

to know where to go from here as I still suffer with numerous symptoms of

hypothyroidism and am showing many of the signs too, which are slowly getting

worse. What difference will proving that I have antibodies to my thyroid make

to me getting a diagnosis and starting thyroid hormone replacement? If I am NOT

suffering with an underactive thyroid, what other tests should I be asking for

and what other illnesses have so many of the symptoms that hypothyroidism has?

This was my query and the reply (which was very fast btw):

I have M.E. for the last 25 years. I have

Lyme Disease & Fibromyalgia as well as arthritis.

When I get my bloods done, my TSH is between

1.11 and 1.74 and the lab's range is 0.35 - 5.5.

My FT4 is 14.9 and the lab's range is 8.5 -

23.

I have hypothyroid symptoms (which are similar

to M.E. & Fibromyalgia) and wonder if you could give me any advice

please.

Many thanks.

by Professor Lazarus on

Fri Jan 27, 2012 4:55 pm

Your thyroid function

test is normal. If you have a family history of thyroid disease you should get

your thyroid antibodies measured

On 27 January 2012 15:47, Noreen <noreenmur@...> wrote:

Thanks Sheila.

I registered and submitted a query. Will let you know

....

x

On 27 January 2012 14:58, Sheila <sheila@...> wrote:

Yes Noreen, a good idea. Sheila

Should some of us ask questions, giving our TSH and symptoms, just to see

what replies they give us??

Thanks,

Noreen

PS

It took me a while to even find that site!!!

--

Democracy is a device that ensures we shall be governed no better than we

deserve.

Bernard Shaw

--

Democracy is a device that ensures we shall be governed no better than we

deserve.

Bernard Shaw

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January 27, 2012

I hope you can all add something to my question about why I have been informed

that I am a deluded hypochondriac, and do you think it will be answered.

You are correct Sheila on her own gets through answering more messages than this

panel does. Some of the questions have not even been answered so could it be

that cannot think of an answer or don't know the answer.

Kathleen

>

> Just consider what Sheila alone gets through answering during the day, on

> her own, and with other things to do.

>

> Lilian

>

> >

>

January 27, 2012

.....What difference will proving that I have antibodies to my> thyroid make to me getting a diagnosis and starting thyroid hormone> replacement?

I'm just guessing, Sheila, and perhaps I am giving him too much credit, but it is possible that this Prof. Lazarus is advising Noreen to have the AA's checked because positive AA's would confirm Hashimoto's – and positive AA's can be responsible for producing "normal" thyroid results. Dr. Kharrazian says in his book that "one reason hypothyroidism often goes misdiagnosed is because a person with Hashimoto's can present with normal TSH. ... As the autoimmune condition fluctuates, TSH levels vary wildly......."

Love,

xx

January 27, 2012

That's done, Sheila :-)I also added that I thought there was a connection between hypothyroidism and M.E. and/or Fibromyalgia.I noticed, after I had posted, that Prof. Lazarus is actually Emeritus Professor of Clinical Endocrinology!!! When I phoned the professor I'm attending and said I had M.E. and that I thought I may have hypothyroidism or adrenal problems, he immediately replied: " yes, they go hand in hand " .

, thanks for your comment to Sheila and I felt at least he didn't give a straight-out NO. I have actually had my antibodies tested and they're normal. It was on my FT3 and RT3 that I was diagnosed, even though both the professor and Sheila had told me prior to those tests.

Love,Noreen xx-- Democracy is a device that ensures we shall be governed no better than we deserve. Bernard Shaw

January 27, 2012

Could be , but why not come straight out and say it. I doubt

that he would give a diagnosis if the thyroid function tests are within the

ref. range Hashimoto's or not. He is just following the BTA, BTF, ACB thyroid

function test guidelines.

Luv - Sheila

......What difference will proving that I have

antibodies to my

> thyroid make to me getting a diagnosis and starting thyroid hormone

> replacement?

I'm just guessing,

Sheila, and perhaps I am giving him too much credit, but it is possible that

this Prof. Lazarus is advising Noreen to have the AA's checked because positive

AA's would confirm Hashimoto's – and positive AA's can be responsible for

producing " normal " thyroid results. Dr. Kharrazian says in his

book that " one reason hypothyroidism often goes misdiagnosed is because a

person with Hashimoto's can present with normal TSH. ... As the autoimmune

condition fluctuates, TSH levels vary wildly....... "

Love,

xx

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virus found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4770 - Release Date: 01/27/12

January 27, 2012

Lazarus....wasn't that someone who was raised from the dead???!!!

Re: Online clinic - reopening today

And sadly, he's one of the better ones. He did at least talk about 'the art of doctoring' as well as the science, and hinted that he thinks the TSH limit of 10 is too high. I'd rather see him than that idiot Dr Beastall any time! :-s> >> > Yes, indeed, where are they? There are 9 of them, for goodness sake - only two I've seen today are Dr Lazarus and Nurse .>

January 28, 2012

I despair - and this from somebody I greatly admired. I am

totally disappointed with his response.

Sheila

Re:

T3/T4 Combination Therapy

by Professor

Colin Dayan on Fri Jan 27, 2012 6:58 pm

There

have been clinical trials comparing T4 treatment with T4+T3 treatment and

overall they show no benefit. T3 is much more difficult to monitor as the

levels go up and down within a few hours whereas they are much more stable on

T4. Compared to treatment with T4, where there is experience from thousands of

patients in studies and millions of people worldwide over many years, there is

no long-term information on the use of T3 in large numbers of people. We do

know that even a mild degree of over treatment with T4 increases the risk of

osteoporosis, fractures and heart disease (atrial fibrillation) with a risk of

stroke. These risks are likely to be higher with T3, as this is the active

hormone and the body cannot control the activity of the hormone in the way it

can with T4.

It is for these reasons that doctors are reluctant to prescribe T3. Patients

who take it and are certain that they derive benefit need to be aware that they

may be exposing themselves to longer term health risks, especially with regard

to the heart and the bones. And they should take the lowest dose possible to

keep these risks as low as possible. Because the risks are likely to take many

years to develop, there is a tendency for patients to ignore them, with the

possibility that they may regret it later. This is particularly an issues in

patients who only had subclinical hypothyroidism to begin with and in whom (see

separate posting) there is not currently clinical trial data that treatment

reduced healthy risks in the long term. It is worth considering the comparison

with HRT for the menopause. Several years ago, this was considered a wonder

treatment for women, and only more recently has it become apparent that it

increases the risk of breast cancer and heart disease. General guidance to

doctors is " first do no harm " .

Professor

Colin Dayan

Lazarus....wasn't

that someone who was raised from the dead???!!!

And sadly, he's one of the better ones. He did at least

talk about 'the art of doctoring' as well as the science, and hinted that he

thinks the TSH limit of 10 is too high. I'd rather see him than that idiot Dr

Beastall any time! :-s

>

> I'm going through Dr Lazarus's posts.... He's brilliant

>

> Apparantly if you have low iron, take t4 and the iron sorts itself out.

>

> And if you have low B12 take T4 and the b12 sorts itself out...

>

> Wow... obviously a wonder drug... and only 98p a pack

>

> Ha Ha Ha Ha Ha Ha I'd be laughing if it wasn't so sad..

>

> xx

>

January 28, 2012

Unfortunately, although Prof. Lazarus has been back on, he hasn't responded to my last post :-(Will let you know if he does :-)On 28 January 2012 10:15, Sheila <sheila@...> wrote: