If you REALLY want to help to get the justice we all deserve....

[Guest guest]

Dear Member

If you genuinely want to help yourself and all those being left to suffer because they are being denied a correct diagnosis or are refused any other form of thyroid hormone replacement other than levothyroxine only, then please read on....and let's start 2012 as we mean to go on.

WE CANNOT DO THIS WITHOUT YOUR HELP.Perhaps if everybody subscribed to Dr Skinner's World Thyroid Register, we might make start to make some headway into our long awaited need to get justice for all those left suffering - see http://www.worldthyroidregister.com/ . The proceeds of this register would be used "…..to help to address the parlous situation of patients who are hypothyroid and have yet not been diagnosed and indeed patients who are being managed with an unacceptably low level of thyroid replacement. The situation has significantly worsened in the last one year pursuant to pronouncements in the UK from the Royal College of Physicians and the Royal College of General Practitioners who inter alia have suggested that patients should not be diagnosed with hypothyroidism if the TSH is <10.0, and moreover that Armour Thyroid is a 'bad' preparation because the proportions of T4/T3 ,may not reflect the human proportions while contemporaneously suggesting prescription of T4 alone; this makes no sense at all.

Everything has to date failed including petitions with large number of signatures from hypothyroid patients and other concerned parties including solicitations to the various Members of Parliament in the UK and a plethora of letters to the General Medical Council who do not seem to wish to embrace this matter.

It seems to us that the only way forward is to form a World Thyroid Register with at least around 50,000 signatories who at a future date may be asked £20 or perhaps $30 which will be used to mount an effective campaign to redress this problem; for example, appropriate complaint from a given patient on their own health problems to (perhaps) the General Medical Council which will ensure through constitutional requirement that the matter would be considered seriously. It may also be necessary if there is no final movement on this issue to consider legal redress but we sincerely hope that this will not be necessary; however, at the end of the day, we cannot allow thousands of patients to be abandoned to poor quality existence because of inexplicable obduracy among the medical profession and the medical establishment.

We have therefore started a World Thyroid Register which will consist of a list of completely confidential names. I cannot emphasise strongly enough that this register will not do anything else, other than be a register until there is the requirement for definitive action. I am particularly concerned that the leaders of groups, for example, presently established thyroid help groups will be concerned or think that we are trying to 'take over' their names. In fact, we would not wish the names of the members of any given help group, but merely an assurance which is not binding, that when, if required, the chairperson will make appropriate contact with his/her group members. We will th7us have two kinds of members, namely, those who have signed up to the World Thyroid Register and members via affiliated groups from established organisations.

We have to do something now.

Yours for aye

Dr. Gordon RB Skinner MD DSc FRCOG FRCPath