Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 > I've been told that with a TPO of 581.0 (ref <100.0) I definitely have Hashi's, I thought that high TPO was normal if you had previous thyrotoxicosis. > Could anyone help me with bit more info please? Hello Debs, are you aka "ignored" from the other forum by any chance? - if so, I am "auto_immune" . Welcome to our (not so) little group of Thyroidians. I hope others will assure you that positive TPO really are diagnostic for Hashi's. I will pitch in later or tomorrow. Today I am chasing my tail ..... Have a good browse in our file section too - there's a wealth of information. Best wishes, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 - it's you! yes - I am ignored! Thank you so much for your help, I can't tell you how much it means to me. I feel rotten at the moment your responses made me feel so less alone. You would think after a lifetime of this I wouldn't have been so daft as to listen to that endo wouldn't you? I am currently writing a very long (probably boring) tome for the other website when it opens (if) I want them to give me some answers. My thyroid has been so badly treated ever since I was a child and I'm trying to wrap my head around the whole Hashi's thing as if it's indisputable I will have a strong case to present to my doctor. Typically I'm a bit slow and foggy at the mo.. Thank you Debs x - > for Hashi's. I will pitch in later or tomorrow. Today I am chasing my tail ...... Have a good browse in our file section too - there's a wealth of information. > Best wishes, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Hi again, Debs, I just saw the below by our friend Beastall (what a phonetically fitting name <g> Goad, this man really winds me up...) - this is the "official" party line....that high AA's present a risk from progression of normal thyroid status to a thyroid disorder...... well – that's rhetoric of the worst order and IMHO playing with people's lives. Since positive TPO mark an autoimmune condition it means in plain English that you HAVE an autoimmune condition. This condition may be overt or it may be in remission, but once autoimmunity has been triggered, it will never, ever, go away. It is lurking in the background to pounce at any given moment..... It is the height of stupidity IMO not to treat..... - besides, if I remember correctly, your TSH had been 17 before they put you on a piddly little dose of Levo and a TSH of 17 means Hypothyroidism in anybody's book.... ..... back to preparing for the dinner party ..... Btw, everybody – the clinic is open again until 5.30 this afternoon..... Best wishes, Re: HIGH TPO ANTIBODIES by Dr Graham Beastall on Mon Jan 30, 2012 2:43 pm A high concentration of TPO antibodies is a marker of autoimmune disease within the thyroid gland. It provides a marker of risk of progression from normal thyroid status to having a thyroid disorder. In the case of primary hypothyroidism an increased level of TPO antibodies is a reason for closer monitoring of thyroid function - TSH is normally measured more frequently than if the TPO antibodies are low. On its own a high TPO antibody result is not a reason to give thyroxine treatment. However, if TSH starts to rise and symptoms begin to appear or grow then knowledge of a high TPO will often bring forward the point in time at which thyroxine therapy is introduced.There is no simple test of basal adrenal function. This is because there is a huge diurnal rhythmn of cortisol in all biological fluids with concentration ranging by a factor of ten or more between late evening (lowest) and early morning (highest). Valid investigation of adrenal function often requires the involvement of an endocrinologist. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Hello The clinic seems to be open at the moment - so I have posted my story yet again! What a horrid little man! Just no help at all - thank God for doctor internet is all I can say. These people don't seem to know what they are talking about. My TSH is 5.8 btw but it's risen from 0.04 since stopping my meds. Have a great dinner party (hope you are having something nice??) Debs > > Hi again, Debs, I just saw the below by our friend Beastall (what a > phonetically fitting name <g> Goad, this man really winds me > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Yes, you have Hashimoto's thyroiditis and sensible doctors would give their patients a trial of levothyroxine, but most are not, and leave their poor patient to suffer the symptoms of hypothyroidism making them wait until their TSH is above 10.0. I believe that has already posted her thoughts about this Debs. Luv - Sheila I've been told that with a TPO of 581.0 (ref <100.0) I definitely have Hashi's, I thought that high TPO was normal if you had previous thyrotoxicosis. Could anyone help me with bit more info please? Thank you Debs No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1901 / Virus Database: 2109/4775 - Release Date: 01/29/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Thanks Sheila I just wanted to be absolutely certain of my ground and to clarify that with my history and previous sub total thyroidectomy high TPO is not normal. I am sure I have been told that with my history that is to be expected - hmmm. I am working up to giving it some (with all barrels blazing) to my endocrinologist who I am blaming for my current awful situation. has been an absolute blessing. As an aside I am fuming about the on line forum, even if they do want to close it for future posts why can we not see the posts and responses already made? Debs > > Yes, you have Hashimoto's thyroiditis and sensible doctors would Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2012 Report Share Posted February 1, 2012 Antibodies see your thyroid gland as public enemy number one and will gradually completely destroy it, so there will be no thyroid gland to secrete any thyroid hormone. Unfortunately, whilst in the process of doing this, it can cause inflammation, goitres and lack of the secretion of the thyroid hormone required to make everything function. Once the thyroid has been destroyed, as the antibodies are specific to thyroid tissue, they eventually disappear. Luv - Sheila I just wanted to be absolutely certain of my ground and to clarify that with my history and previous sub total thyroidectomy high TPO is not normal. I am sure I have been told that with my history that is to be expected - hmmm. I am working up to giving it some (with all barrels blazing) to my endocrinologist who I am blaming for my current awful situation. has been an absolute blessing. Quote Link to comment Share on other sites More sharing options...
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