Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Hi . I so agree. Sheila asked this question but they merged it with many others and it got lost. They will be opening again this afternoon. Maybe this can be put to them again but it seems that they are answering questions now, whilst the public are kept out, so what are our chances? Love Jacquie > > Hello.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 I have posted a response to Professor Lazarus this afternoon and managed to repeat the information I had put in that message previously. When we they get it?????. They do not want to know and will not accept the facts because if they do, it will become known that they themselves are denying over 250,000 in the UK alone a correct diagnosis and the correct thyroid hormone they should be taking. When I wrote on the forum and web site " The NHS is Killing Us! " little did I know just how true this really is. Luv - Sheila Hi . I so agree. Sheila asked this question but they merged it with many others and it got lost. They will be opening again this afternoon. Maybe this can be put to them again but it seems that they are answering questions now, whilst the public are kept out, so what are our chances? Love Jacquie > > Hello.... No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1901 / Virus Database: 2109/4775 - Release Date: 01/29/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Sheila, Does TPA have any funding? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Yes, we do, but it depends how much you are thinking of. I think I might know what is going through your mind (I'm actually psychic!) - but I might be wrong. Can you write to me in more detail to [sheila@...] or telephone me on 01535 636 014. If I am right, I would not want to discuss this on the forum at the present time. Luv - Sheila Sheila, Does TPA have any funding? No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1901 / Virus Database: 2109/4776 - Release Date: 01/30/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 dear Jacquie, I would say about those of a wax cat has of catching an asbestos rat running through hell..... Consider the following: 1. I have written twenty or so complaints to US agencies, Federal and West Virginia with no luck. 2. I helped Sheila write complaints to UK agencies with no luck. 3. Sheila has written to the BTA several times with no luck. 4. Sheila and I wrote responses to the RCP, with no luck. 5. I wrote to Her Majesty with no luck. We need to find a different decision maker. About the only ones left are the courts, either as a civil matter or potentially as a criminal matter. The issues are these: 1. There is little effort to be clear, per RCP authorship guidelines, AACE authorship guidelines, Institute of Medicine authorship guidelines, or per centuries old linguistic theories. 2. Medical evidence ignores all post thyroid science. A meta-analysis ignored 98% of the available science simply because it was not derived from randomized clinical trials (RCTs). 3. Endocrinology ignores the differential diagnostic protocol. 4. Consequently, endocrinology offers bogus excuses for their failures. 5. The juxtaposition of the meta-analysis " context " with the " conclusion " says it all.... The context is that of patients with continuing symptoms. The conclusion is that T4 should remain the treatment to be used. In other words, the poor folks who are suffering should continue to suffer..... 6. And ethics? What ethics? Patients aren't first and foremost. Physicians do not keep up with medical science in this niche. And Physicians are not honest about matters in this niche. That is at least the those who refuse to diagnose and treat those who have continuing symptoms with normal thyroid tests with or without treatment. I believe that we, the victims of this systematic abuse, should ban together and do onto them, what they have done to us, albeit legally. > > Hi . I so agree. Sheila asked this question but they merged it with many others and it got lost. They will be opening again this afternoon. Maybe this can be put to them again but it seems that they are answering questions now, whilst the public are kept out, so what are our chances? > > Love > Jacquie > [Ed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Here here! It's not too late . Luv - Sheila From: thyroid treatment [mailto:thyroid treatment ] On Behalf Of Lllian Swallow Sent: 30 January 2012 20:42 thyroid treatment Subject: RE: Re: Online Clinic Confusion , why didn't you write to your president, he has more power than our Queen. Lilian 5. I wrote to Her Majesty with no luck. No virus found in this message. Checked by AVG - www.avg.com Version: 2012.0.1901 / Virus Database: 2109/4776 - Release Date: 01/30/12 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Dear (and any other legally minded member) I had a run of bad luck with my computer and then with my endo decreasing my T3, so am still poorly and trying to get my T3 to a functional level so that I can pursue trying to find a solicitor who will take on my case. Sheila has emailed Dr Thierry Hertoghe with all my labs etc and he believes I should be on NDT and not T3, as I seem to be resistant to both T4 and T3. My endocrinologist wants to wean me off my T3 until my TSH is within range as it is suppressed (this to me is malpractice, surely?). Even on 150mcg T3 my fT3 is low within the range. He has also suggested how to get my high cortisol metabolites down. On Talkhealth, Prof C Dayan responded that I probably have an absorption problem! (I can't believe he said 'probably') I still haven't contacted my endo with this yet as I haven't been well but I will have to ask him to change my T4 to Erfa. Now, I know he has never prescribed NDT before and am not sure if he will be willing to as it is unlicensed here. I am also in the throes of making a formal complaint against my first endocrinologist for misinterpreting my labs and leaving me on T4 when I am resistant almost killing me, and a psychiatrist diagnosing me as a Hypochondriasis, when he was colluding with my GPs and first endo. This is all evident in correspondence. I have a problem in that when I speak to these solicitors, they all say that I don't have 'Causation' and that the case is too complicated. I would only get Legal Aid if there was sufficient 'Causation'. Now, I always get unstuck when they ask what Causation do I have? If my endo doesn't prescribe NDT, where does the Causation lie, against him or the BTA/RCP? And what about my GPs who left me undiagnosed and bedridden for many years despite classic thyroid disease symptoms? If you, or anyone else, who is legally minded and would be interested and have the time to go through the messy and personal details of my whole case and life to find 'Causation', then I will send all correspondence labs and covert recordings as I honestly want to take this to Court. Causation seems to be the major thing holding me back. Another, is that my GPs tell me that they are biding by the RCP Guidelines in not prescribing thyroid medication until one's TSH is OVER 10! There are posts by the Experts on the Online Clinic who do not agree. Will those posts be helpful if I copied and pasted them for future reference? It is difficult dealing with solicitors and sometimes I don't get to speak to the solicitor or send any correspondence before my case is rejected, so any help would be appreciated as this could help us all if we can only get it to Court. Love Jacquie > > dear Jacquie, > > I would say about those of a wax cat has of catching an asbestos rat running through hell..... > > Consider the following: > > 1. I have written twenty or so complaints to US agencies, Federal and West Virginia with no luck. > 2. I helped Sheila write complaints to UK agencies with no luck. > 3. Sheila has written to the BTA several times with no luck. > 4. Sheila and I wrote responses to the RCP, with no luck. > 5. I wrote to Her Majesty with no luck. > > We need to find a different decision maker. About the only ones left are the courts, either as a civil matter or potentially as a criminal matter. > > The issues are these: > > 1. There is little effort to be clear, per RCP authorship guidelines, AACE authorship guidelines, Institute of Medicine authorship guidelines, or per centuries old linguistic theories. > 2. Medical evidence ignores all post thyroid science. A meta-analysis ignored 98% of the available science simply because it was not derived from randomized clinical trials (RCTs). > 3. Endocrinology ignores the differential diagnostic protocol. > 4. Consequently, endocrinology offers bogus excuses for their failures. > 5. The juxtaposition of the meta-analysis " context " with the " conclusion " says it all.... The context is that of patients with continuing symptoms. The conclusion is that T4 should remain the treatment to be used. In other words, the poor folks who are suffering should continue to suffer..... > 6. And ethics? What ethics? Patients aren't first and foremost. Physicians do not keep up with medical science in this niche. And Physicians are not honest about matters in this niche. That is at least the those who refuse to diagnose and treat those who have continuing symptoms with normal thyroid tests with or without treatment. > > I believe that we, the victims of this systematic abuse, should ban together and do onto them, what they have done to us, albeit legally. > [Would moderators mind me leaving 's post intact? Thank you!] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 I have been thinking having watched Branson on TV talking about drug addiction and how the government should be dealing with it, that what have we got to lose by getting a letter and petition together explaining what really is happening and if he knows anyone who would be willing to support/fund our class action suit if he himself didn't - or would organise a charity function to support our cause? loveJacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 Dear Jacquie, It is all that I can do to make a case in the US from the overall stand of the systematic abuse of 1.7 million Americans, mostly women. I have been at this issue now for about 8 years and have been trying to find legal representation for about four and still have not. One does have to ask for your motive. Do you wish to punish the physician or get well. For a lot less money you could visit with Dr. Skinner or Peatfield privately. When we look at this issue from the bottom up, there is the practicing physician, the medical associations, and any corrupting entity (which has not been identified in the UK). And more than in the US, there is the government providing healthcare. Instead of just suing your physician, I would sue the NHS, the BTA, and the RCP as well because otherwise it will be just them pointing to whomever is not in the case. The most important concept in such a case is the patient counterexample. TPA has a registry of such folks and a component of the application form is the willingness to testify. There are probably several hundred in the UK willing to testify. So in your neck of the woods, so to speak, there are probably enough willing folks. Why are patient counterexamples important? They demonstrate that the dictates and rationales of the various defendants are not reliable and are at least partially false. Sir Karl Popper, renown for his philosophy of science, claims that confirming studies are not as important as the lack of counterexamples. Counterexamples trump confirming studies. The defendants will point to the numerous confirming studies that " prove " that T3 is no good. This is disputed by patient counterexamples. Further, it can be shown that these studies are overwhelmingly of the special case of no post thyroid deficiencies, i.e., no deficiency in any physiology that exists functionally after the thyroid gland. Consider this: The moment that your TSH became normal, according to the BTA, RCP, and others, you effectively no longer had hypothyroidism, in the proper narrow sense and definition, which the RCP uses and the BTA effectively uses. At that point your continuing symptoms should be diagnosed again. The proper exercise of differential diagnostics DEMANDS that all physiology that might cause the symptoms be tested. This INCLUDES the post thyroid functions of peripheral metabolism and peripheral cellular hormone reception. Failing to address these issues is a failure to meet the standard of care for diagnosing an illness. The problem here is that there is no test for peripheral cellular hormone reception. To do so the test would have to determine the inner works of cells. However, there are a number of tests that can be done. As illustrated in some books and certainly on the TPA site, there are tests for the supporting chemistry needed by the post thyroid functions. And recently, I found the major causes of fatigue, all of which have rather standard tests. I also got a book on differential diagnostics from Amazon that organizes medicine by symptom instead of by disease, although it is not complete. I am hoping that I can find more tests to eliminate other causes. These tests should show that more likely than not, you need some form of T3. Still other tests are related to metabolism, such as temperature and metabolism rate. However, those are dismissed by endocrinology. However, before you can sue on these grounds, you have to be refused. In tort law, you need to show cause. The cause in this case is similar to the poor cancer victims who was never diagnosed properly. And remember, the moment that you had normal TSH, you effectively were euthyroid and there should be no suspicion of hypothyroidism then. So your continuing symptoms becomes a new diagnostic issue. That is your cause, which is further amplified by the above lack of examination of post thyroid functions. Also, from a general standpoint, the counterexamples do refute general statements that endocrinology makes. You may even do better if you can find a counterexample whose medical history parallels yours. The next problem is the presentation of proof. In spite of potential hearsay exceptions, you will probably need expert witnesses, who have to be paid. And now we are back to the original question. What is your motive? To get well or get justice for yourself, or get justice for all those similarly abused? If your motive is the first two, then the expert is going to have to run tests on you to testify. He may even simply treat you so that you too become a patient counterexample. And then you are nearly or really well and quite done. On the other hand, if you wish to be the test case, there is a lot of effort needed. I have been working on a US case for years. My case description now runs about 200 pages and will grow more with this testing concept for qualifying patient-plaintiffs. I have yet to find any firm willing to take on this case on a contingency basis. I have yet to find any firm willing to plan a course of action and estimate its cost so that funds can be raised. At this moment, however, I am considering US criminal law. Fundamentally, the BTA and the RCP with full knowledge that they can influence the GMC are extorting physicians to not prescribe T3 even though it is acceptable to do so according to the UK government. Presumably there are laws against extortion in the UK too. There are also laws against interference in contracts. While becoming a patient of a private doctor forms a contract, it is not clear that being an NHS patient forms a contract. On the other hand, NHS doctors create a vicarious responsibility for the NHS. However, I don't know what immunity the NHS has. I estimate that if this problem were truly resolved, the NHS would be liable for billions and billions. But since that would be spread among hundreds of thousands, I suspect a real effort to properly diagnose and treat post thyroid dysfunctions might be satisfactory. So this task is not small or trivial. It is hardly for the faint at heart. I asked my mother-in-law about her condition when she was suffering severely from euthyroid hypometabolism (a mimic of hypothyroidism which requires T3) how she felt. She had no hope. She preferred to die than to continue suffering. Fainting and breaking her leg fortunately put her before a physician who recognized her severe myxedema by sight. In less than two weeks she was on the road to recovery and being as active as the Energizer Bunny. The stresses of legal action were out of the question. I am quite positive that something should be done and can be done. But what we are talking about is the ruination of the careers of a lot of respected physicians and medical organizations, who have extortive power via the GMC. It is not going to be easy. But, then there are so many people, hundreds of thousands, suffering because endocrinology promotes this depravity with bastardized science and abused protocols. We need to hang together, with family help, otherwise we will suffer alone. Have a better day, > > Dear (and any other legally minded member) > > I had a run of bad luck with my computer and then with my endo decreasing my T3, so am still poorly and trying to get my T3 to a functional level so that I can pursue trying to find a solicitor who will take on my case. > > Quote Link to comment Share on other sites More sharing options...
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