Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 Welcome Back Jeri.. Hope that everything is swell with ya... From your post, I am sure you have recovered from the op. Take care Geri > hey there, ladies... > After a month and a half of military duty that's kept me coming and > going, and having a cyst removed from my left shoulder/neck > (somewhere in the vicinity of both), I am starting (officially) > challenge two! YAAAAY! Looking forward to getting involved on this > board again--I've missed you! > > Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 Hi, Jeri, glad you're back. I figured you were off on a noble military mission and hoped you were ok. I look forward to hearing about your challenge 2 progress. Stay well. Stasia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 Hey Jeri - welcome back and good luck on Challenge 2!!! Rita here we go again! hey there, ladies... After a month and a half of military duty that's kept me coming and going, and having a cyst removed from my left shoulder/neck (somewhere in the vicinity of both), I am starting (officially) challenge two! YAAAAY! Looking forward to getting involved on this board again--I've missed you! Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 you have some great parents! sounds like you are doing real good at your planning so far~ Good luck on the new challenge! Joann http://www.mrsbishwitskitchen.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2002 Report Share Posted September 30, 2002 Good on you! I'm just starting week 3 and need to get a little tougher on myself food wise. Not being bad but just not as strict as the book says. Hope it all goes fab!!! : ) Angie > Tomorrow I'm going to renew my gym membership (thanks to my generous > parents) and start my personal challenge with a good, hard upper body > workout. I can hardly wait! > > Tonight I'll be planning tomorrow's workout and meals, printing up my > goals on pretty paper to stick on my fridge, sorting my clothes, > packing my gym gear into my backpack, making my meals for tomorrow (I > have a 6 hour job finding seminar to go to), and taking the > scary " before " pictures 'n' measurements. > > Oh, and I'll be having a shawarma for dinner tonight, since they're > off limits during the week and I adore them. > > Right now I'm panicking because I just realized I'm almost out of > cottage cheese and the grocery store is already closed. Oops. > > I guess I'll also be writing up a shopping list for tomorrow. > > -burntflowers, (Personal Challenge 1, Day -1) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Ugh! Ugh! Ugh! I have nothing else to say! Love you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Hi Sue, Have you tried other pharmacies? I haven't heard of any shortages but maybe some of us that are taking it could tell you if there are. How long of a back order did the pharmacist say? I know that pharmacies can switch Rx's so I'd try another drug store. xxoo Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 Hi Sue, Im sorry for all your troubles and pain these past few weeks..but to add this on top of it all is so unneccessary (spelling)..please call around other pharmacy's and check if thats true and if not change to one of them...I cant believe these things happen to people that need the med so badly..I will keep you in my prayers. take care, love Pat from Ma. .. I was supposed to start the 100 mg of Arava today > along with my other 6 scripts, and Walgreens calls me yet again, and tells > me that Arava is not available in my area and it's backordered! Another MTX > nightmare that I just went through only 30 days ago! > Sue #2 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 A. Matera wrote: > Well..here we go again. I was supposed to start the 100 mg of Arava today > along with my other 6 scripts, and Walgreens calls me yet again, and tells > me that Arava is not available in my area and it's backordered! Another Sue, This is just too much, is there another pharmacy you can use. it seems you have had too much hassle from them these last months. You take care, you are in our prayers, Louise. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2003 Report Share Posted February 19, 2003 A. Matera wrote: > Well..here we go again. I was supposed to start the 100 mg of Arava today > along with my other 6 scripts, and Walgreens calls me yet again, and tells > me that Arava is not available in my area and it's backordered! Another Sue, This is just too much, is there another pharmacy you can use. it seems you have had too much hassle from them these last months. You take care, you are in our prayers, Louise. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 Thank you to everyone who commented on my wonderful Walgreens Pharmacy experience, yet once again. You will be glad to know, that I did indeed get all my scripts today and I took my first " whopping " dose of Arava. I hope that I see something or feel something different, while I am waiting for Enbrel to come through. My rheumy called yesterday and told the Enbrel people about my case and they were sending him paperwork on people with Stills Disease, and how Enbrel is working for them, and he is forwarding this and his letter to my insurance company. Who knows...maybe some of you, are the people that the Enbrel company will be referring to my insurance company. My rheumy knows that Enbrel has worked very well with Stills patients. Hopefully it will come through soon. Thank you everyone. Love,.Sue #2 -- Re: Re: here we go again! Hi Sue, Have you tried other pharmacies? I haven't heard of any shortages but maybe some of us that are taking it could tell you if there are. How long of a back order did the pharmacist say? I know that pharmacies can switch Rx's so I'd try another drug store. xxoo Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 Hi Sue, I'd like to read what Enbrel has to say about Stills also. I hope you get an okay soon. xxoo Ca. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 Sue, if your doctor will let you have a copy of the info that the enbrel company is sending him on those with stills and enbrel I would love to see it. GO DAWGS !!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2003 Report Share Posted June 10, 2003 Congratulations on getting back on track and back into the program. That's an accomplisment in itself. Good luck and stay strong. >From: " Myream " <myreamb@...> >Reply- > >Subject: Here we go again! >Date: Tue, 10 Jun 2003 16:12:55 -0000 > >Hello everyone, > >I just began my challange yesturday, for the third time! I'm really >determined to make it all the way through this time. I get so >frustrated with myself sometimes...but anyway, I just wanted to greet >everyone and wish all of you the best. > >Regards > _________________________________________________________________ Add photos to your e-mail with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2003 Report Share Posted June 10, 2003 The thrid time is a charm... You will make it w/ this message board! It has really helped me a great deal. Danna > Hello everyone, > > I just began my challange yesturday, for the third time! I'm really > determined to make it all the way through this time. I get so > frustrated with myself sometimes...but anyway, I just wanted to greet > everyone and wish all of you the best. > > Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2003 Report Share Posted November 2, 2003 Damn right we would all move in a second if it would make us better,but I dont think it would every lives in different climates and doesn't really seem to matter.Sorry ur daughter is in flare,im so worried mines gonna come back to but what can u do if it does well i guess the protocol is to jump the pred suxx but gotta get it under control.Take care. do.Canada Here we go again! Hello group. It's been months since I posted last. Keahley had a great Spring and Summer. Her summer-camp counceling went great and she returned to school in August as a Junior and got a part-time job as a cahier at a local supermarket. She did continue to have the rash periodically during this time, but no fever and very little pain. During this time she continued to be on MTX, Prednisone 20 mg, Celebrex, Folic Acid, Calcium and Prilosec. Her rhummy had tried to get her on Enbrel several months ago to help taper her pred., but the insurance co. had refused because she had not been on MTX for 6 months yet. Well, Sept. was the 6 mo. point and at her last visit, he wrote another prescription and it finally went through. The plan was to leave her on the MTX with the Enbrel for several months and try to decrease the pred. Well, she had her 6th Enbrel injection on Thurs.(a week ago now) and on Sunday a MAJOR flare with 103 fever, horrible rash, and pain all over. I gave her Lortab and her fever would break as she sweated it off. Her temp would be around 97, she'd get a hard chill, her fingernails would turn bluish looking and next thing you know, 103. Her rhummy was out of town (you would know) and her pcp increased her pred to 20 in am and 10 pm and called her in some more lortab. We finally seen her rhummy on Thurs. and he increased her pred to 30 in a.m. and 30 p.m. Also put her on Clindamycin for sinus drainage. Plans to decrease pred tomorrow to 20 am/20 pm for 3 d and then 15/15 x 3 d and then back to 20 once a day. She missed the whole week of school and is having flash-backs of last year (was only able to attend 2 1/2 months). She cried so hard, "Why can't this go away...why can't I have a normal life?" Her g-father has rheumatoid arth. and had a horrible week the same week she started. I asked her rhummy if it would help if we moved somewhere (ANYWHERE!) where the climate never changes. He said not necessarily....that they really don't understand JRA/Still's. Do any of you have or know of a rhummy who specializes in Still's? It is so odd that all this started around the same time last year. I love my home (born and raised here), but I'd leave in a split second if there was somewhere we could be where she wouldn't have flares. Thanks in advance for all replies!!! DeneineKeahley's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 In a message dated 6/22/2004 5:09:07 PM Eastern Daylight Time, wrblack@... writes: > What's Liam's case manager like? I think you need to tell case manager, > principal, vice-principal, and maybe others, exactly how you feel about this > situation. No case manager here. There's a principal who's in charge of 5 sites, a unit coordinator at each site and 3 vice principals who float around and annoy parents. The principal and two unit coordinators all know how I feel about the situation. Pretty soon the regional superintendent and Klein, the chancellor will know how I feel too. Most of the other parents aren't happy either. Some are exploring private schools and homeschooling. They'll let me know if they find anything worthwhile. To your point, there is no one person in the system to advocate for Liam, but me. What it boils down to is a business decision to provide more ABA classrooms so parents can't sue the Dept of Ed to pay for private schools, because they had no spots to offer. Although I realize they need these classes, they certainly didn't take into account the 17 boys and girls who are impacted. All they had to do is wait a year and these kids would age out of the K-1 program naturally. My plan was to find him a more inclusive environment and probably repeat the first grade. Now I don't have time to find another program in time. It's a gamble. This may not be a bad program. There are worse ones out there. If I reject this option now, I could lose the spot, that would limit my options. His little friends would be kept together if everyone agrees to stay. I hear the teacher is good, but she's 12. Liam has been known to make younger teachers/therapists contemplate other careers. He responds best to more experienced teachers who have no fear. He might eat this one alive. It's so frustrating when you find something that works and the bureaucrats break it. Kathy, Liam's mom( 6) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 In a message dated 6/22/2004 9:48:45 PM Eastern Daylight Time, modoyo@... writes: > ? Since he is in a district 75 school. you can look at the > schools during the summer. Nah. they're not all open in the summer. Congratulations on finding a school. That's great news. Kathy, Liam's mom( 6) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 Kathy, i thought All district 75 school were opened. The one above my son's school is open but it is not a good place for Liam. Most if not all the kids have major behavior problems. Also violent. Have you look at the city school web site they list all schools. The time restrains is the only problem Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 Maureen, Only district 75 schools at some sites are open. like 2 or 3 schools will combine programs. its usually sites (buildings) that have the most air conditioning. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 So that's why the school by me is open. They had all new ac put in this year. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Vent away, sorry it's made such a drastic reappearance. Would a bit of a higher dose of her medication help right now maybe? I used to give a little extra Celexa at what I thought might be times OCD could increase, like first day of school, big test coming up, Christmas.... > > More than anything, I think I just need to vent. Our daughter > is back at it again. We're seeing signs that when OCD > rears it's ugly head, it comes back with a vengance. Her sister is > sick ('s biggest fear), and of course treats her > like she has the plague and she's gonna die if she even thinks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 I'm so sorry to hear about your daughter! I hope things get better!!! We just had the nightmare ERP week where I had to listen to an hour a day of my son screaming and telling me he hated me, wanted to die and lots of crazy things. (On a positive note he had two positive exposures where he was able to calm his OCD and was in a good mood). So, adding it up, I had to listen to about 7 hours of " I hate you " and " I wish I were dead " this week. Fun!!!! :-( Anyhow, I hope everything settles down for you. Sometimes this whole thing feels like a crazy roller coaster ride. Gook luck! Tess __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Wow, Tess, I guess I'm glad I'm at least not going through that (yet). So far it's still OCD she hates and resents, she does try blaming me everytime we have an argument, but usually realizes it was all OCD-driven. It is a crazy ride - funny how I used to love rollercoasters as a kid, now they give me headaches and make me want to puke; HEY, just like I feel when dealing with OCD! nna. > > I'm so sorry to hear about your daughter! I hope > things get better!!! > > We just had the nightmare ERP week where I had to > listen to an hour a day of my son screaming and > telling me he hated me, wanted to die and lots of > crazy things. (On a positive note he had two positive > exposures where he was able to calm his OCD and was in > a good mood). > > So, adding it up, I had to listen to about 7 hours of > " I hate you " and " I wish I were dead " this week. > Fun!!!! :-( > > Anyhow, I hope everything settles down for you. > Sometimes this whole thing feels like a crazy roller > coaster ride. Gook luck! > > Tess > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2007 Report Share Posted August 9, 2007 On occassion when the mites are in my shoes I put Bounce sheets in my socks. Being a guy, that isn't a problem. A woman wearing a skirt may not have this option. Maybe try spraying the Arrid around your ankles? I have found mites become tolerant to DEET and OFF products. Most mite bites are indiscriminate and tend to be all over, so it is a bit surprising that they bite just around your ankles, like fleas tend to do. Good luck here, Tim Quote Link to comment Share on other sites More sharing options...
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