taking high dose of levothyroxine and has lots of questions please

[Guest guest]

Hi my name is Emma and I am 33. I have been diagnosed with hypothyroidism since

2003 and I am married and have 3 children. Our 3rd child was born with

disabilities (developmental delay, hypotonia, numbness in bladder and bowel,

ehler danlos syndrome) which the main cause was my still being hypo in pregnancy

in 2007.

I have only been offered levothyroxine despite there being no change apart from

getting worse symptoms and results and a huge weight gain.

I am currently on 550mcg of T4 daily.

I have seen a endocrinologist a few times and they just increase the dose each

time.

I now also have had a crushed spinal disc, breathlessness and now daytime apnea

and sleep apnea because of the weight I can not lose also.

I am totally stuck and desperate. The hospital and my GP will not do anything

else or offer me anything else.

I have been stuck on a very low calorie diet and exercise plan for now years, I

am actually frightened of food as if I go over 1000 calories one day it leads to

a massive weight gain.

I am totally lost and upset and i do not know what else to do.

Any help really appreciated. I will not get any help from the GP and have

changed surgeries also and GPs twice looking for help.

Thanks Emma.