Re: BTA Thyroid experts???

[Guest guest]

Hi Sheila

That info is still available on the site and they were:

Professor Edzard Ernst, Dr Tim Cheetham, Dr Graham Beastall, Dr Kerbel,

Dianne (endocrine nurse), Dr Petros Perros, Mr Barney on, Professor

Lazarus, Professor Colin Dayan.

I'm sorry I don't know the answers to your other questions.

Debs

>

> Dear all - I need some help.

>

> . Can anybody remember the names of all the Thyroid Experts from BTA

> who were on the team?

[Guest guest]

Hello SheilaThe "experts" were:-Professor Colin DayanProfessor LazarusMr Barry onDr Petros PerrosDiane - NurseDr KerbelDr Graham BeastallI did not see anything at all from Barry harrison, but I saw contributions from the others, I think Kind regards

From: Sheila <sheila@...> thyroid treatment Sent: Thursday, 2 February 2012, 17:20 Subject: BTA Thyroid experts???

Dear all - I need some help. ·

Can anybody remember the names of all the

Thyroid Experts from BTA who were on the team? ·

How many questions had been asked before three

pages were removed, leaving just two pages when it closed down? At one time, (and

this was early on) there were over 1400 messages covering five pages that I

saw, but as we know, most of these had been removed or deleted, leaving just

two pages when it finally closed down on Tuesday, early. ·

How many questions did the Experts answer? ·

How many of the Experts took part? Luv - Sheila

[Guest guest]

God - Dayan must have been walking a careful line then.

Did anyone see any of his replies and were they as irritating as the others?

He's been my endo in the past and has always been really open about things!!!!

>

> Hello Sheila

[Guest guest]

Hi

He only answered about 3 questions. His response to me was:

" In a separate post on T3/T4 treatment I have described the reasons why doctors

are reluctant to prescribe T3. It is unusual that your T3 is not a lot higher

considering that you are on doses of T3 that are 2-3x the normal requirement.

This raises the possibility that you do not absorb it very well. An abnormality

in the pituitary or adrenal gland would not explain this.

and on 'T3/T3 combination treatment':

" There have been clinical trials comparing T4 treatment with T4+T3 treatment and

overall they show no benefit. T3 is much more difficult to monitor as the levels

go up and down within a few hours whereas they are much more stable on T4.

Compared to treatment with T4, where there is experience from thousands of

patients in studies and millions of people worldwide over many years, there is

no long-term information on the use of T3 in large numbers of people. We do know

that even a mild degree of over treatment with T4 increases the risk of

osteoporosis, fractures and heart disease (atrial fibrillation) with a risk of

stroke. These risks are likely to be higher with T3, as this is the active

hormone and the body cannot control the activity of the hormone in the way it

can with T4. It is for these reasons that doctors are reluctant to prescribe T3.

Patients who take it and are certain that they derive benefit need to be aware

that they may be exposing themselves to longer term health risks, especially

with regard to the heart and the bones. And they should take the lowest dose

possible to keep these risks as low as possible. Because the risks are likely to

take many years to develop, there is a tendency for patients to ignore them,

with the possibility that they may regret it later. This is particularly an

issues in patients who only had subclinical hypothyroidism to begin with and in

whom (see separate posting) there is not currently clinical trial data that

treatment reduced healthy risks in the long term. It is worth considering the

comparison with HRT for the menopause. Several years ago, this was considered a

wonder treatment for women, and only more recently has it become apparent that

it increases the risk of breast cancer and heart disease. General guidance to

doctors is " first do no harm " . "

and on 'Stopped taking T4' (person can't tolerate T4):

" If your cortisol is low, you should have a Synacthen test to check whether it

really is low (ie whether it can still rise under stimulation or not). This is

important, as if it really is low, it does need treatment. And it is important

to take the cortisol before T4 treatment as the T4 will lower your cortisol

levels. Note however, that it is important to be tested, and not just to take

cortisol " as a trial " , as long-term treatment with cortisol can have

side-effects. You should only be on it if your body is truly deficient in it. "

on 'Subclinical hypothyroidism treatment:

" There are no large scale/ long term clinical trials on treatment of subclinical

hypothyroidism. This means that it has not been proven either way whether

treatment helps. Taking thyroxine, so long as the TSH level is carefully

monitored and kept in the reference range is not likely to do any harm, so it is

safe to try. Treating subclinical hypothyroidism doesn't lower cholesterol very

much in most people, and taking a statin is more effective. "

That's all I noted.

Love

Jacquie

>

> God - Dayan must have been walking a careful line then.

>

> Did anyone see any of his replies and were they as irritating as the others?

>

> He's been my endo in the past and has always been really open about things!!!!

>

[Guest guest]

Dear ,

There are cases in law in the US that go to this situation. Basically, the

claim is that when the medical practice guidelines are enforced (GMC) or

threatened to be enforced they are no longer voluntary, they are mandatory...

That is why he is walking the line. He would like to retain his career.

Have a great day,

>

> God - Dayan must have been walking a careful line then.

> He's been my endo in the past and has always been really open about things!!!!

>