Anyone from West Berkshire who gets NDT prescribed?

[Guest guest]

Hi all.

I was just wondering if anyone lives in the catchment for the West Berkshire PCT

and gets their NDT prescribed from GP? I have been told it is not prescribable

in my area. I am wanting to try NDT after limited success with Levo. I am not

sure if my GP is just telling me no the PCT won't allow it for the sake of it or

if its actually true.

If I decide to self treat which brand is best and is International Pharmacy

reliable? How long does it take to arrive? I have been on only 50mcg of Levo,

just stepping up to 75mcg after much effort to get the Endo to agree. He's now

discharged me and says there is nothing more he can do (wouldn't entertain the

idea of T3) even though I still feel pretty awful most of the time and can't

work. I'm only 29. My latest TSH was 1.05 (0.2 - 4.2) and fT4 17.5 (12-22). I do

definitely feel better on Levo than nothing at all but still a long way off

being better, and I refuse to accept ME is a suitable diagnosis for me. I'm

taking good doses of all the vits and minerals (including Iron as my ferritin

was only 25, which went up to 33 after 3 months of supplementation when last

measured 2 months ago). I will get a re test with my next thyroid bloods in a

months time. Thanks.

[Guest guest]

Hi

as far as I am aware, there is no ban on prescribing NDT, either in the NHS as a

whole or for any PCT, though I could be wrong. I think mostly doctors just think

they are not allowed to prescribe it. They are, as Dr Skinner's case just

proved. There is some legal issue in that it isn't licensed, therefore is not

covered under their standard GP insurance, therefore they must prescribe it 'on

their own recognisance' or some such phrase. I have heard of doctors who would

like to prescribe it but cannot, because the other members of their practice

have vetoed it (perhaps fearing the insurance issue).

If you DO find a prescriber in this region, please do let me know, as I'm in

Reading! I'll keep a note of your name and do the same if I should find such a

doctor.

cheers,

x Helen

>

> Hi all.

>

> I was just wondering if anyone lives in the catchment for the West Berkshire

PCT and gets their NDT prescribed from GP?

[Guest guest]

In the UK there is no ban on any doctor prescribing four

particular brands of natural thyroid extract i.e. Armour Thyroid, Erfa

'Thyroid' Nature Throid or Westhroid. This has come from the Medicines and Healthcare

products Regulatory Agency (MHRA)-see attached). However, because it remains unlicensed

(has never required a licence) doctors must take full responsibility for this

because their medical insurance does not cover them.

Hi

as far as I am aware, there is no ban on prescribing NDT, either in the NHS as

a whole or for any PCT, though I could be wrong.

1 of 1 File(s)

MHRA confirmation re Natur1.doc

[Guest guest]

I have sent the recommended

doctors list to you privately . I have also answered the question about

whether doctors can or cannot prescribe natural thyroid extract in my response

to Helen. There are several Primary Care Trusts who fund natural thyroid

extract for doctors in their area who prescribe it for their patients, but

there are also PCT who will not. This is a case of post-code lottery and it is

up to individual patients to persuade their PCT otherwise if they do refuse by

giving them the true facts. PCT's refuse because they have been given incorrect

or misleading information about natural thyroid extract so you could copy out the

TPA rebuttal to the British Thyroid Association's statement on Armour

Thyroid-v- T4-only therapy to show them the true facts http://www.tpa-uk.org.uk/resp_bta_armour.pdf

.. You can also copy off the document " Facts About Armour Thyroid "

(see attached) which should answer all their questions about NDT.

International

Pharmacy is very reliable. It can take up to 3 weeks to arrive and all the

pharmacies in our list who sell T3 or natural thyroid extract are reliable. You

may be feeling still unwell because you are not taking a high enough dose of

levothyroxine and you should increase this every 6 weeks. If the

endocrinologist has discharged you, and you are still suffering, and your GP is

unable to help you, then you have no other option other than to take your

thyroid health into your own hands.

Keep asking

questions and we will try to help wherever we can.

Luv - Sheila

I was just wondering if anyone lives in the catchment for the West Berkshire

PCT and gets their NDT prescribed from GP? I have been told it is not

prescribable in my area. I am wanting to try NDT after limited success with

Levo. I am not sure if my GP is just telling me no the PCT won't allow it for

the sake of it or if its actually true.

1 of 1 File(s)

FACTS ABOUT NATURAL THYROID EXTRAC1.doc

[Guest guest]

Hi there, don`t no about doctors in your area, but have come across some thing about ME, CFS, ECT:i am sending a PDF of an article i have just found. don`t be put of about the name as it has good info-sending as an attachment- .a comprehensive guide to managing

autism- it may also help anyone with any of these conditions. also hypothyroidism.their is a link of hypo and autism. hence the title. regards

angel.the doc is to big to attach so here is the url for it.http://www.cancertutor.com/autism/comprehensiveguide.doc

[Guest guest]

Thanks Angel, will have a look.

Rach x

>

> Hi there, don`t no about doctors in your area, but have come across some thing

about ME, CFS, ECT:

>

>

[Guest guest]

Thank you Sheila, i'll see if I can find out for sure directly from the PCT what

their policy is re NDT.

Luv x

>

> I have sent the recommended doctors list to you privately . I have

> also answered the question about whether doctors can or cannot prescribe

> natural thyroid extract in my response to Helen.

[Guest guest]

Hi Helen

Good to find soemone else suffering in the hands of the WB PCT! I too am in

Reading and have seen an Endo at RBH. Have you seen anyone there? I'd like to

chat about my experiences there, as they have not been good at all, if you

agreed to me contacting you privately? It's always good to have someone to share

with locally! Thanks

Love x

> Hi

> as far as I am aware, there is no ban on prescribing NDT, either in the NHS as

a whole or for any PCT, though I could be wrong. I think mostly doctors just

think they are not allowed to prescribe it. They are, as Dr Skinner's case just

proved.

[Guest guest]

Apologies moderator I just accidentally clicked the wrong button before cutting

off the previous message -sorry!

----------------------------

Hi Helen

Good to find soemone else suffering in the hands of the WB PCT! I too am in

Reading and have seen an Endo at RBH. Have you seen anyone there? I'd like to

chat about my experiences there, as they have not been good at all, if you

agreed to me contacting you privately? It's always good to have someone to share

with locally! Thanks

Love x

>

> Hi

> as far as I am aware, there is no ban on prescribing NDT, either in