Re: P Ch at the big hospital in Cambs

[Guest guest]

> Hi Caz

>

> I saw P C last Nov 2010 and he was rude and dismissive - my TSH highest was

2.8 (0.38-5.2) - I had already had a gynae endo say that all my symptoms were

highly suggestive of thyroid illness and was NOT menopause! I had already been

put on T4 by the orignal GP and was a that point on 75mcg a day - some minor

improvement but not much.

>

> He did not listen to me and arrogantly said that he would probably feel well

if he was taking T4!!?? When he asked me why I was taking it.

> I am an articulate professional woman and was prepared to reason - but he poo

pooed everything.

> He arranged for me to have thyroid bloods - (but refused RT3 and T3) and a

DEXA bone scan(strangely did not offer a heart check though) and a short

synacthen test. The following month I went to Dr P who gave me his undivided

attention and said that I probably had a autoimmune thyroid condition.

>

> In the January not having heard back from the hopsital - I rang the Endo

clinic to be told that I had been discharged and that everything was 'normal'!!!

I contacted the GP and they had a letter saying that all my results were normal

and that 'as you know, this lady continues to take thyroxine of her own

volition' - suggested that it was reduced to 25mcg every other day. SO, no

diagnosis and a bemused GP saying that I should really be stopping the T4 -= by

now I had started self treating with T3 and I finally had the energy to lose

weight and most of my symptoms went - I felt my old self - I now treat with T3

only having stopped T4 about 2 months ago - I feel even better.

> No diagnosis - I continued to be expected to pay for the thyroxine much to the

bewilderment of the receptionist each time - as she said - no one else was

paying for it.

>

> So, unless he has gone onto have a personality transplant and no longer has

affiliations to the 'devil organisations' which prevent us in the UK form

getting the help we need. I suggest you avoid the stress of the appt and try

and see Dr P or Dr S.

>

> If you do go though, then let me know how you get on.

>

> Sorry to be so negative.

>

> Stacey

[Guest guest]

Hiya Stacey,Thankyou for your reply, i also emailed you.

Dont you dare apologise, it doesnt suprise me, i guess i was just hoping that with him being a "Prof" and him doing research into thyroid hormone resistance, and all that "Jazz" that he may have been a bit more open minded, but he sounds just as arrogant as the rest of them!I personally dont think i will even here from him, or my GP will tell me he wont see me. I would like to see Dr S, but to be honest i`d have to borrow the money, and by the time i pay for tests as well as consultation its going to cost alot, so i am trying to go down the NHS route, but it looks increasingly like i will be self medicating with NDT soon. I cant and will not go on feeling like this, i have no life, and its affecting my family also.I`m just worried about going it alone, i dont like the idea of not being monitored.Thankyou againCaz x

[Guest guest]

Morning Caz,

Yes, it is a scary prospect - self treating, but I have been doing it for a year

and in the last couple months I dropped the T4 and just use the T3 which I buy

myself. I do feel tons better than I did.

I know Sheila had heard of this person when I mentioned my bad visit at the time

- I think he is a member of BTA - or the, no I cannot put what I would like to

say that I think it stands for - but the 't' bit rhymes with cats!

I was so desperate that I ended up selling an antique wind up gramophone for

probably less than I could replace it now - to see Dr P and I was lucky in that

I could - but I do regret it sometimes.

Yes I worry about the future - how long can I go on self treating - also what if

I ended up in hospital and they refused to give me the T3 because it had not

been officially prescribed!?

But this year I intend to save up and go and see Dr S - my GP said she would

give me a letter and hopefully once he has goven me a diagnosis it will be

accepted and on my records.

Good luck whichever way you go - but remember that this forum has loads os

support and some people with a lot of medical know how too - so use it.

Stacey

[Guest guest]

I have been self treating for must be seven years now possibly more.

However I started off by getting a private blood test done for the things doctor would not do - free T3 and B12.

When I took the test results to GP he then did a blood test, and I was given (and still have) B12 injections. He took no notice that the T3 was under range.

I went to a private doctor who prescribed T3 for me. After a year and being much better on it, I decided that it was too expensive to keep seeing the private doctor and I was having to pay for the T3 as well because it was a private prescription, so I decided to just buy Armour myself.

I used the Armour until it changed formula and went to Erfa. Now that Erfa is not on prescription I will try Armour again.

My body tells me exactly how much I need. I know if I am taking too much (not a nice feeling) and I certainly know if I am not taking enough.

However you must be aware that you need to start slowly at a low dose and very gradually increase to higher doses. Starting too high or increasing too quickly will be the difference between pushing someone gradually, or taking a run up and giving them a shove.

Lilian

[Guest guest]

There is all the information in our Files section that you need.

Click on the FOLDER ' all natural thyroid extract' and you will see in there a

document entitled 'How to Treat Using Natural Thyroid Extra\ct' plus lots of

other very useful information. The Files section is chocker block full of

information for those who have little option but to go down the self treatment

route.

Luv - Sheila

My body tells me exactly how much I need. I

know if I am taking too much (not a nice feeling) and I certainly know if I am

not taking enough.

However you must be aware that you need to start slowly at a low

dose and very gradually increase to higher doses. Starting

too high or increasing too quickly will be the difference between

pushing someone gradually, or taking a run up and giving them a shove.

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