Any advice re referral please.

[Guest guest]

Does anyone have an opinion or advice they could offer please?

It seems I have a conversion from T4 to T3 or some problem at the cellular level

as my T3 is in the red in my 24 hour urine indicating " functional

hypothyroidism " . I have all the classic signs of being hypo, plus raised

antibody levels. Memory is causing me increasing problems & I am struggling to

cope with 2 days at work, it is a responsible job and I don't want to give my

notice in. I had 2 years off as I was ill hence I now only work 2 days and

would hate to loose it but it is making me worse.

My muscles are particularly bad & my husband admits I have noticeably gone down

hill the last 6 months (you will know the rest!). I have food allergies that I

am dealing with, with quite a bit of success following the York test & help of a

dietician. My adrenal glands show a dip at the second sample into the low area.

I have managed reasonably well to cover up depression but do struggle. I am

ridiculously cold & have to keep exercising to feel reasonable throughout the

day and sometimes in the night as my muscles both me.

A GP refused to refer me to Dr S & wanted me to see a local endocrinologist. I

had no choice but to agree, but first I rang the endo's secretary and asked if

he ever treated with T3. She said that she had definately typed it up but not

often. Hence I have an appointment March 26th.

Meanwhile I have been advised here that the BEST I can hope for is a diagnosis,

which would be great, and maybe a trial of thyroxine.

Reading Dr P's book I read that thyroxine could be dangerous and cause a toxic

situation if a person cannot convert the T4 to T3 due to overload of T4 in the

circulation (I think I understood that correctly).

My question is: I would love to get this sorted and feel better, as I guess

most people here have felt, but I wondered if I could refer myself to Dr P while

I am still waiting for this appt with local endo? or would this confuse things?

I don't know the local endo - he may be ok, but if the best I can expect is a

trial of thyroxine could I not just use this appointment to have a diagnosis

that may be useful to have with my GP and meanwhile see Dr P - OR wait and see

the endo and then wait to see Dr P or Dr S afterwards (as GP said if I did not

get on with endo she would reconsider referral to Dr S after all!). I don't

know which one would be best.

Basically I would like to avoid poor treatment & side affects from thyroxine if

its not the best, but I would like to settle a diagnosis incase I need

prescriptions in the future.

Sorry this is a bit complicated but my head is going around trying to figure out

what is best. Also whether Dr S or Dr P would be most suitable (feel free to PM

me if liked).

I think Dr P has a waiting list and so thought it might get the ball rolling if

I requested an appointment now. Maybe I just need to be patient?!

Thanks,

(Thanks Sheila for the wonderful opportunity to air and receive such informed

and helpful advice & be educated re this disease, you are appreciated).