Hello everyone

[Guest guest]

WOW!

Thanks for all the tips. This all helps a lot. Yes, we are still

reeling with sticker shock, but are committed to eating and living

right. I got a kick over the exploding eggs... we'll have to try

that sometime... maybe even blow some up on purpose (commercial of

course!)

It's very encouraging to connect with others that know how to be

like " grandma " because I thought much of this was just lost. I

remember my grandma always made her own bread and canned and made

everything from scratch. She probably did know a lot of this stuff

and most has been lost in only 2 generations! I guess it's never

too late to learn, right?

Luke

Cost seems to always be a factor...

Kimi

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> www.Jremedies.com

>

> Therefore, my beloved brethren, be ye steadfast,

> unmovable, always abounding in the work of the Lord, forasmuch as

ye

> know that your labor is not in vain in the Lord. 1 Corinthians

15:58/KJV

>

>

[Guest guest]

Luke, thanks for your great introduction to the group! I'm hoping all our new

friends will

take your example and share what brought them here, what their concerns are and

then,

of course, all their secrets of good health and nutrition! WELCOME to our new

folks!

RE. GETTING MILK: the answers to all your questions can be found in our

DATABASE under

" LOCAL DAIRY FARMS WE LIKE " . You can be drinking Real Milk (as we call it here)

tomorrow if you want!

RE. THE COST OF FOOD: I've got GREAT NEWS for you there. Rebekah and I made the

committment to 100% natural, local, organic, sustainable food about 7 years ago.

Yes,

even for pot-lucks, parties and for guest dinners! Whenver possible at

restaurants too!

This decision came for us at the worst possible time, me unemployed. But then,

a

MIRACLE happened, and continues to happen today. Once you let go of the " old

way " of

thinking about food and cost, some weird and inexplicable change occurs in the

universe

and the cost of living DOES NOT CHANGE! Repeat: your cost of living will not

change.

I came a bit closer to understanding all this two weeks ago at the Mercola

conference

when Carol Tuttle (and Joe Mercola) were talking about the " POVERTY MENTALITY "

vs. the

" ABUNDANCE MENTALITY " (see my earlier posts from the conference). I grew up

with

" Depression " parents like most people I know and I got this mindset that has

kept me on

the wrong side of the money line most of my life. The more you have the poverty

mentality

the more what you want will be out of your reach. Forever.

When you go to 100% good food for yourself, your family and everyone you love,

when you

ignore the price tag and just get the very best quality food there is, you are

coming over

the ABUNDANCE side. I still can't explain it even though organic food is more

nutritious,

therefore you eat far less to be satisfied, and even though it's getting closer

to commodity

prices all the time, and even though cheapskate food eaters WILL pay through the

nose

when they get cancer and other degenerative diseases, and even though natural

food gives

you better brain power and energy to make more money, IT'S MORE THAN THAT!

What it all boils down to is that IT'S LIKE RELIGION. At some point, spiritual

people who

want to be healthy quit trying to be smarter than God, they quit trying to make

everything

fit someone else's idea of what they should be spending, they quit trying to cut

corners

and live on inferior fuel, and, most importantly, they decide they are WORTH

feeling good,

really good, eating good and living good.

But, in the beginning, it all begins with FAITH. Faith that God loves us and

wants us to be

happy and eat the very best food, do the very best work we are capable of, and

to serve

the world at our highest level! I can't explain it any better than that! BUT, I

am living proof

that IT WORKS! My only enemy is my own occasional lapses into the old way of

thinking!

The new way is always there, and it always works.

Will, with extreme gratitude for all this wonderful blessing of heavenly food!

[Guest guest]

Will,

Thanks for the encouraging words and the motivation to start

drinking " real milk tomorrow " . I looked over the " LOCAL DAIRY FARMS

WE LIKE " earlier and hesitated about Riesgraf's in Jordan because

the note said " Don't know if it's organic or if it's 100% grass-

fed " . I decided to call him anyway (a little bold at 10:30pm).

Jeff answered the phone and he's a real nice guy and the farm is, in

fact, certified organic (but not 100% grass-fed - the cows are grain

supplemented). We are heading out to his farm to get Real Milk

tomorrow night! You were right!

Luke

> RE. GETTING MILK: the answers to all your questions can be found

in our DATABASE under

> " LOCAL DAIRY FARMS WE LIKE " . You can be drinking Real Milk (as we

call it here)

> tomorrow if you want!

>

[Guest guest]

Will and all,

This is so true. Although eating all organic is somewhat more expensive, I

have found also that it has not affected our cost of living. Some things

are actually less expensive comparatively. Raw milk (at the farm) is less

expensive than organic in the store; a bag of oranges is less expensive than

snack chips (at least the equivalent of what you'd eat for a snack). And in

choosing a healthy lifestyle it affects other areas of your life besides

food. Money that you may have spent frivolously before on things that

didn't matter is now spent on good food to nourish the body.

Another idea for Luke... join a CSA this summer (community supported

agriculture). Go to www.landstewardshipproject.com or .org (I can't

remember and actually someone correct me if that is not the right URL). The

initial cash outlay for a CSA can seem steep, but you get bushelsful of

wonderful organic produce all harvest long.

On another note... I'm reading a good book called " Crazy Makers: How the

food industry is harming our children and destroying our brains. " I'm not

quite on page 100 yet, but its packed with good information.

Ann Marie

>

> When you go to 100% good food for yourself, your family and everyone you love,

> when you

> ignore the price tag and just get the very best quality food there is, you are

> coming over

> the ABUNDANCE side. I still can't explain it even though organic food is more

> nutritious,

> therefore you eat far less to be satisfied, and even though it's getting

> closer to commodity

> prices all the time, and even though cheapskate food eaters WILL pay through

> the nose

> when they get cancer and other degenerative diseases, and even though natural

> food gives

> you better brain power and energy to make more money, IT'S MORE THAN THAT!

[Guest guest]

Jo,

Just noted that you are located in Michigan.

There appears to be a group in England who live close enough to one

another to actually meet and share thoughts.

I live in a suburb north of Detroit. Any chance of your being in that

vicinity?

Bev

> I would love to trade places with you! Always did want to see

Australia, and you could enjoy this Michigan weather that can't

decide if it wants to snow, rain, sunshine, or something in between!

> Jo (2 months post-op today)

>

> ykosworks <ykosworks@...> wrote:

>

> Hello to everyone - old and new members. I have been away and

unable

> to read any messages all month. I will have to read and catch up.

> I am now 3 months post heller myotomy and still eating. It was

> definitely a great decision to do so and I am enjoying the food. I

> have put on 3kg and feeling healthier. I am still really tired and

> don't cope with too much stress or anything involving too much

> energy. I don't know if that is a A thing or not.Still am loosing

> hair and get migraines when I get too tired. As long as I take my

> time eating, chew food up really well and have water handy to wash

it

> down most things are going down. Some meals can be pretty

> uncomfortable to get down, stress and tiredness can add to that too.

> We had a break away and had some work to get done while away.

> I was fortunate to find a beautiful great dane pup to bring home

too.

> We called her and she is getting along fine with the family

> and our other dog. It must have meant to be when I found her after

> not long loosing our other dog. We were able to take our dogs to

the

> beach while we were away and had a great time there with them. Our

> older dog had never been to the beach before, living in the desert.

I

> think she slept the whole day after, she was so worn out.

> By now Deborah would have had her surgery. I will read on to catch

> up. I hope you are doing well Deb.

> Congratulations Crystal on your 3 months post op too. How have you

> been going?

> Hello Anne, Notan, Peggy, Sandi, , Kathy and I am really

vague

> at this time of night when I am tired so I am sorry if I have

missed

> your names. Hope everyone is coping well and 2006 is proving to be

a

> much better year for all. I am being positive it will.

>

> Bye for now.

> in Australia ( stinking hot I must say too)

> It is so hot out airconditioner can not cope too. We have had our

> longest number of days over 40degrees celcius in Jan in over 60

years

> this month. When we were driving to South Australia, we fueled up

at

> one place and it was 51deg celcius. That is pretty bad. Even the

dogs

> refused to get out of the bus for a pee.

> How's the snow?

> We could heat it up for you.

>

>

>

>

>

>

[Guest guest]

In a message dated 5/16/2006 1:39:59 PM Central Standard Time,

katrinainky@... writes:

Why don't you post the information that you have with you on the email, so

that all may benefit, rather than asking others to call you on the phone ?

Saurabh

It is wonderful that is willing to talk with people on the phone. She

is extremely helpful and caring, and puts herself out more than most people

would want to it seems. I have spoken to her and she was a great comfort to me

during a very difficult time.

Anyone who has cancer I am sure would be very happy to have someone like

to call. Given my family situation, I know I was. Everyone's situation is

different, and a personal conversation with someone who knows something is very

important when considering treatments--not too mention her offering support in

a world where most attitudes are very doom and gloom . . .

Thanks !

[Guest guest]

In a message dated 5/17/2006 8:04:58 AM Central Standard Time,

katrinainky@... writes:

I did call her and she was very nice. she needs some info that i am going to

send her and she is goiing to try to help me. It is a nonprofit

organization. I was relieved as all I ahve is a Kentucky medical card to pay

for my care

so I am limited.

Glad to hear it!

[Guest guest]

I did call her and she was very nice. she needs some info that i am going to

send her and she is goiing to try to help me. It is a nonprofit organization.

I was relieved as all I ahve is a Kentucky medical card to pay for my care so I

am limited.

primamore@... wrote: In a message dated 5/16/2006 1:39:59 PM Central

Standard Time,

katrinainky@... writes:

Why don't you post the information that you have with you on the email, so

that all may benefit, rather than asking others to call you on the phone ?

Saurabh

It is wonderful that is willing to talk with people on the phone. She

is extremely helpful and caring, and puts herself out more than most people

would want to it seems. I have spoken to her and she was a great comfort to me

during a very difficult time.

Anyone who has cancer I am sure would be very happy to have someone like

to call. Given my family situation, I know I was. Everyone's situation is

different, and a personal conversation with someone who knows something is very

important when considering treatments--not too mention her offering support in

a world where most attitudes are very doom and gloom . . .

Thanks !

[Guest guest]

Hi Katrina and ,

I am glad to know that she is helpful. All cancer people need

help from people like who is doing a wonderful job if the organisation is

a non profit organization.

Having lost my mom 4 years back to Cancer, I have lost faith in conventional

medicine.

Wishing you all the best Katrina. My prayers are with you.

Regards

Saurabh

Re: hello Everyone

I did call her and she was very nice. she needs some info that i am going to

send her and she is goiing to try to help me. It is a nonprofit organization.

I was relieved as all I ahve is a Kentucky medical card to pay for my care so I

am limited.

primamore@... wrote: In a message dated 5/16/2006 1:39:59 PM Central

Standard Time,

katrinainky@... writes:

Why don't you post the information that you have with you on the email, so

that all may benefit, rather than asking others to call you on the phone ?

Saurabh

It is wonderful that is willing to talk with people on the phone. She

is extremely helpful and caring, and puts herself out more than most people

would want to it seems. I have spoken to her and she was a great comfort to me

during a very difficult time.

Anyone who has cancer I am sure would be very happy to have someone like

to call. Given my family situation, I know I was. Everyone's situation

is

different, and a personal conversation with someone who knows something is

very

important when considering treatments--not too mention her offering support in

a world where most attitudes are very doom and gloom . . .

Thanks !

[Guest guest]

Ty:-)

Saurabh Nigam <saurabh@...> wrote: Hi Katrina and ,

I am glad to know that she is helpful. All cancer people need

help from people like who is doing a wonderful job if the organisation is

a non profit organization.

Having lost my mom 4 years back to Cancer, I have lost faith in conventional

medicine.

Wishing you all the best Katrina. My prayers are with you.

Regards

Saurabh

Re: hello Everyone

I did call her and she was very nice. she needs some info that i am going to

send her and she is goiing to try to help me. It is a nonprofit organization.

I was relieved as all I ahve is a Kentucky medical card to pay for my care so I

am limited.

primamore@... wrote: In a message dated 5/16/2006 1:39:59 PM Central

Standard Time,

katrinainky@... writes:

Why don't you post the information that you have with you on the email, so

that all may benefit, rather than asking others to call you on the phone ?

Saurabh

It is wonderful that is willing to talk with people on the phone. She

is extremely helpful and caring, and puts herself out more than most people

would want to it seems. I have spoken to her and she was a great comfort to me

during a very difficult time.

Anyone who has cancer I am sure would be very happy to have someone like

to call. Given my family situation, I know I was. Everyone's situation

is

different, and a personal conversation with someone who knows something is

very

important when considering treatments--not too mention her offering support in

a world where most attitudes are very doom and gloom . . .

Thanks !

[Guest guest]

Thanks.

Katrina Layne <katrinainky@...> wrote:

I did call her and she was very nice. she needs some info that i am going to

send her and she is goiing to try to help me. It is a nonprofit organization.

I was relieved as all I ahve is a Kentucky medical card to pay for my care so I

am limited.

primamore@... wrote: In a message dated 5/16/2006 1:39:59 PM Central

Standard Time,

katrinainky@... writes:

Why don't you post the information that you have with you on the email, so

that all may benefit, rather than asking others to call you on the phone ?

Saurabh

It is wonderful that is willing to talk with people on the phone. She

is extremely helpful and caring, and puts herself out more than most people

would want to it seems. I have spoken to her and she was a great comfort to me

during a very difficult time.

Anyone who has cancer I am sure would be very happy to have someone like

to call. Given my family situation, I know I was. Everyone's situation is

different, and a personal conversation with someone who knows something is very

important when considering treatments--not too mention her offering support in

a world where most attitudes are very doom and gloom . . .

Thanks !

[Guest guest]

NP and I appreciatte any hope that can be given. i am optamistic that i will

beat this, i have been chatting with survivors and that give me hope and

inspiration

Hauf <jennyhauf@...> wrote: Thanks.

Katrina Layne <katrinainky@...> wrote:

I did call her and she was very nice. she needs some info that i am going to

send her and she is goiing to try to help me. It is a nonprofit organization.

I was relieved as all I ahve is a Kentucky medical card to pay for my care so I

am limited.

primamore@... wrote: In a message dated 5/16/2006 1:39:59 PM Central

Standard Time,

katrinainky@... writes:

Why don't you post the information that you have with you on the email, so

that all may benefit, rather than asking others to call you on the phone ?

Saurabh

It is wonderful that is willing to talk with people on the phone. She

is extremely helpful and caring, and puts herself out more than most people

would want to it seems. I have spoken to her and she was a great comfort to me

during a very difficult time.

Anyone who has cancer I am sure would be very happy to have someone like

to call. Given my family situation, I know I was. Everyone's situation is

different, and a personal conversation with someone who knows something is very

important when considering treatments--not too mention her offering support in

a world where most attitudes are very doom and gloom . . .

Thanks !

[Guest guest]

Hi everyone,

I am from St. Lucia which is in the Caribbean and have been in this group

for about two years or more now and I spoke to she was very helpful to

the point of recommending some capsules for my cancer which I found here.

She is very kind and helpful and we all should appreciate that. Since we

all are different I don't think she should post everything because it would

not be beneficial to everyone.

>From: primamore@...

>Reply-cures for cancer

>cures for cancer

>Subject: Re: hello Everyone

>Date: Wed, 17 May 2006 09:05:53 EDT

>

>In a message dated 5/17/2006 8:04:58 AM Central Standard Time,

>katrinainky@... writes:

>I did call her and she was very nice. she needs some info that i am going

>to

>send her and she is goiing to try to help me. It is a nonprofit

>organization. I was relieved as all I ahve is a Kentucky medical card to

>pay for my care

>so I am limited.

>Glad to hear it!

>

>

>

[Guest guest]

that is true all cancers efect us all differently

cheryl lewis <clewis36@...> wrote: Hi everyone,

I am from St. Lucia which is in the Caribbean and have been in this group

for about two years or more now and I spoke to she was very helpful to

the point of recommending some capsules for my cancer which I found here.

She is very kind and helpful and we all should appreciate that. Since we

all are different I don't think she should post everything because it would

not be beneficial to everyone.

>From: primamore@...

>Reply-cures for cancer

>cures for cancer

>Subject: Re: hello Everyone

>Date: Wed, 17 May 2006 09:05:53 EDT

>

>In a message dated 5/17/2006 8:04:58 AM Central Standard Time,

>katrinainky@... writes:

>I did call her and she was very nice. she needs some info that i am going

>to

>send her and she is goiing to try to help me. It is a nonprofit

>organization. I was relieved as all I ahve is a Kentucky medical card to

>pay for my care

>so I am limited.

>Glad to hear it!

>

>

>

[Guest guest]

He,

Give me a call at 269-876-8475 I have some info to share with you, things i

can mail to you.

cheryl lewis <clewis36@...> wrote:

Hi everyone,

I am from St. Lucia which is in the Caribbean and have been in this group

for about two years or more now and I spoke to she was very helpful to

the point of recommending some capsules for my cancer which I found here.

She is very kind and helpful and we all should appreciate that. Since we

all are different I don't think she should post everything because it would

not be beneficial to everyone.

>From: primamore@...

>Reply-cures for cancer

>cures for cancer

>Subject: Re: hello Everyone

>Date: Wed, 17 May 2006 09:05:53 EDT

>

>In a message dated 5/17/2006 8:04:58 AM Central Standard Time,

>katrinainky@... writes:

>I did call her and she was very nice. she needs some info that i am going

>to

>send her and she is goiing to try to help me. It is a nonprofit

>organization. I was relieved as all I ahve is a Kentucky medical card to

>pay for my care

>so I am limited.

>Glad to hear it!

>

>

>

[Guest guest]

Welcome - I have only just joined this group but have found the support awesome.

I have 10 year old twins and Steph - has ADHD/OCD/Aspergers.

Cheers Jaxx (New Zealand)

Hello Everyone

Hello,

My name is April and I am the mommy of two little ones who are both

" special " . age 7 is ADHD/OCD and Rusty age 3 is Autistic.

We have multiple challenges on a daily basis and I NEVER SLEEP. I really

need support just to keep from losing my mind. I am used to the challenges and

alway struggling to find a solution the the situations at hand. But just being

able to relate to someone wearing similar shoes makes me feel better.

I am always looking for new strategies to put into action for hope of an

easier hour.

Thanks for letting me rattle on.

April W

West Virginia

---------------------------------

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using

Messenger with Voice.

[Guest guest]

In a message dated 5/18/2006 12:00:46 P.M. Eastern Standard Time,

rustybrooke@... writes:

The struggle of meds was horrible for me. But my doctor put it in a way

that helped me accept it. " If your child was a diabetic and needed insulin,

would you not give it to her? "

April -

I think we've all struggled with the decision of meds. No one WANTS their

child to be medicated. However, as you came to understand, there is a time &

place for everything. Our first psychologist helped us over that hump. She

explained it like this - OCD takes over the mind & fills it with anxiety.

Asking anyone (especially a child) to concentrate & learn anything in that

frame of mind is nearly impossible. They are not capable of seeing things

logically or rationally when " under the influence " of OCD. The meds merely

allow

them to calm down, which as a result, enables them to concentrate & learn the

therapy and methods they need to control it on their own.

After taking a good look at that logic, and watch my daughter go from " 0

-60 " in an OCD death-spiral over the course of a couple weeks, we jumped on

meds...... and are so very glad we did!!

LT

[Guest guest]

has been in therapy now for approx 6mo. Which is helping. And at

the ripe old age of 4 was introduced to all of the meds. Currently she is taking

(Adderall XR 15mg, Periactin 4mg 2x's daily, and 5mg of Prozac) The struggle of

meds was horrible for me. But my doctor put it in a way that helped me accept

it. " If your child was a diabetic and needed insulin, would you not give it to

her? " This really made me understand that she needs help from all sides. And I

have to say that it has been up and down ever since but for right now we are at

a level point.

April -- WV

jtlt@... wrote:

April -

Welcome to the group. My dd is 15 & was diagnosed with OCD in January 2005.

We're making good progress on meds (50mg Prozac/day) and she has just

barely started CBT -- I say " just barely " because it took forever to find a

doctor

in our area that handles teens with OCD so she just had her 2nd appt last

week & it was really still in the " getting to know you & make you comfortable "

stage - no real therapy happening yet. The meds have changed her life though

& I'll never regret putting her on them. I have high hopes that one, after

learning her therapy, she will be able to slowly discontinue the meds & just

use the therapy as a way to control the OCD.

As for your son, I have a cousin with an autistic boy (around 11yrs old

now), she's a pediatric nurse as well, so she is in a great environment to stay

up on all the latest thought processes & developments in that area. I've

written to her to see what information she could offer on the non-sleeping

issues

you're having. I'll let you know when I hear back from. She has crazy

hours & doesn't get on email much, so it could be a while.

You mentioned the arrangements you have with school for your daughter, but I

don't recall you mentioning anything about her therapy -- what is her doctor

doing with her? Is she on meds? Do you have a doctor who is qualified in

dealing with OCD?

LT

[Guest guest]

Hi April!

Well I'm glad your kids are getting those supports, they help a

lot!! What do you think it is with 's assignments? I mean,

are they boring to her maybe, she knows it/why do it?...? I partly

ask that as sometimes OCD can make people avoid things too. Does

she do better if the teacher prompts her to get to her work?

Wow, those sleepless nights remind me of right after I had the

twins. I'm sure you've tried ALL for your son to use during those

nights too for trying to get him to sleep.

I'm like you, when all is quiet then I do things around the house r

just get some time for myself (read a book), etc., when I really

could use sleep. I get less than 6 hours a night myself and it

really takes a toll. I used to try to sleep in a morning or so on

weekends but now I have a diabetic cat that needs a shot at 7 a.m.

daily; and once I'm up, then I'm " up " so no going back to bed.

With - are you/she working on any of her OC behaviors right

now? You can get LOTS of ideas here for any of them and shared

experiences of dealing with the same or similar!

Does it get easier as they get older?? Yes and no. Guess you

figured that out ahead of time, LOL! With each of my sons and their

own unique personalities, there were challenges and some

similarities. I think once you get 's OCD down to a level

where it's not so interfering with things, then things will be

easier at school AND home! But that can be a long process depending

on where on that path you are, finding a good therapist, trying

medication if needed.... And autism - well, each person is unique

to traits there too in the way that some traits are more severe,

some very mild, etc., etc. But with the right supports - and

beginning at a young age is sooo much better - things can be very

good there too. I always just think of that " Welcome to Holland "

poem!

I found my typical sons being much more challenging than 's

OCD too a lot of times. At least with OCD I felt I knew *what* I

was dealing with, even the emotional side of it. I could be in

another room listening to one of my other sons saying all this stuff

to me (the " why not's " or just being emotional or not taking my

answer as final, etc., etc.) and find myself wishing to be down the

hall dealing with OCD, LOL! And on the Aspergers side of it - yes,

when was growing up it could be very frustrating as on one

level he is sooooo smart, book-smart, intellectual type; and on the

common sense side, daily living skills side, etc., he was so

immature, things just didn't come natural to him.... BUT - in a lot

of ways for things got much better over time. The social

skills part of it is still the problem though. Wish we had worked

more on this at a younger age!

Gotta go, but keep us updated on how things are going with you and

your family! Ask any questions, vent here on tough days!

>

>

> Hi

>

> Both of my children are in " special needs " programs with their

schools. has an active IEP and Rusty is in Pre-school

Special Needs Program. Plus I receive SSD for both children and

they each receive a medical card.

> was just recently diagnosed with OCD. We knew something

else was up other that ADHD which now I am questioning all

together. But she was too young to diagnose till just this year.

[Guest guest]

Dear Tina,

You definitely have me beat (I need to shut up and stop complaining!). I am sorry about everything. This is the place to come, you can vent about anything, other people don't understand what it is like being sick but we do. Maybe someone with your problem will write, I will be praying for you sweetie.

much love,

[Guest guest]

Thanks ,

I am glad I found this group it does get very frustrating and it is

nice to know that there is a place where you can vent and others

understand.

Tina

>

> Dear Tina,

> You definitely have me beat (I need to shut up and stop

complaining!). I am sorry about everything. This is the place to

come, you can vent about anything, other people don't understand what

it is like being sick but we do. Maybe someone with your problem will

write, I will be praying for you sweetie.

>

> much love,

>

>

[Guest guest]

Welcome on board! This is a very nonjudgemental

group. Most people that I have met do not know how

they got Hep C...including my husband. It could be

from a blood transfusion, a fist fight...any

reason...and it doesn't matter how you got it. People

who love you will know that. You can beat yourself up

trying to figure it out, but the fact is that it is

not important...

I would suggest you get with another doctor who would

consider all options for you.

You are not alone in this group!!!

Kathy

--- norah2386 <norah2386@...> wrote:

> I would like to thank the Owner for allowing me to

> join this group.

> For so long I have been alone with this illness...

> I'm not on any

> meds. My MD said that since I had it was a baby my

> body is probably

> immune to it and I don't drink.

>

> I sometimes block it out and go about my daily life

> except when it

> comes to the opposite sex... Because I know there's

> a stigma out

> there on HCV and some who don't know relates it to

> HIV or Aids. So

> tell a boyfriend is hard because chances are they

> just up and leave.

> When that happens I am totally totally said because

> I feel like I am

> being blamed for something I have no control over.

>

> I never did drugs nor did I have tatoos or ect. I

> got it through a

> blood transfusion when I was only 3 days old. Now at

> 28 it still

> gets to me.

>

> Sometime I wish I never knew I had it.

>

> Sex is a big topic...

>

> When I found out I had it was around the time it was

> all over the

> News...

>

> How I found out- I was on campus and I wanted to

> give blood. So I

> went to the Blood drive at school. A few weeks later

> I got a letter

> say my blood was tinted with Hep C. I didn't know

> what that was so I

> was like " Oh I have bad blood. " No big deal. I

> ignored the letter.

> That even when I came back to my room something told

> me to re-read

> the letter.. so I sat down and read it again... I

> was

> floored!!!!!!!!!!!

>

> I had a liver disease. The next morning I surfed the

> web to find out

> about it. I was in TEARS!!!!!!!!!!!

> Not so much that I got it but more so on HOW? was it

> an STD? Can i

> have a family and kids?

>

> That weekend I went home and told my parents and

> they were very

> sweet. I didn't get it from a guy Condoms are my

> best friends. The

> TV was one and then " Out break of Hep C in the USA "

>

> I couldn't watch it anymore I went took a shower and

> cried cried

> cired. I was amongst the ill and sick.

>

> So I pulled myself together and made an appt. with

> my MD.

> She's GREAT. She knew from my facial expression that

> I wasn't happy.

>

> I told her about the blood drive and she said order

> blood work to be

> done again.

>

> inside I prayed it was a mistake and all will be

> good again. But No-

> I was positve for HCV. Then in a cracked voice I

> was like " I read

> that if I have kids I could transmit it to my spouse

> and 1 out of 4

> will get it "

>

> She smiled and said " No that's not quite true since

> HCV is a rare

> rare disease its not like Hep A or B. You can only

> get it through

> Blood to blood contact. There has been a small case

> where a spouse

> contracted the disease from there partner.

>

> Then I was like they mark it as an STD is it? She

> was like NO again

> it's only blood to bloods...Unless two people have

> S & M or any out of

> the loop type of sexual activity. Or the partner as

> a low immune

> system. More then likely your spouse wouldn't

> contract the disease

> from you. If you have chidlren they'll make up their

> own blood.

>

>

> Then I asked about treatments and she said you're

> young and so you

> wouldn't need any treatment now but we'll monitor

> your liver. Since

> you don't drink and you might have contracted it as

> a child. Your

> liver should be ok.

>

> I was 19 when I found out at the time.

>

> She made me feel a little better. It wasn't the end

> of the world.

> LOL

>

> Now 9 years later I still haven't come to terms

> with it. Everytime

> I go to my other MD He.s always bashing me about it

> and saying that

> it is an STD and you can spread it... He and I go at

> it all the

> time... Note he's not a blood doctor so I listen but

> I don't take it

> all in.

>

> People started to treat me different like I brought

> it upon myself.

> Even family members until I told them how I got it.

> then itwas

> like " OHHHHHHHHHHHHHHHHHHH poor sis "

>

> Anywho that's my story on how Hep C entered my life.

> I have been

> abstaining for sex about the sametime I found out I

> got it... Not

> becuase I don't want to but becuase I would like to

> keep to myself

> until I am married to a person who accepts me and

> understand my

> illness in all... Hard to find out this world of

> ignorance but maybe

> one day I'll meet my Prince.

>

> How cool would it be to wed someone that has the

> same illness as

> I... (Sounds crazy but I know some of you thought

> about it too)

>

> anywho

>

> Bye

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Dear Norah, Can totally relate to your story. But dear one it does get better. First of all, you have to become a teacher, a advocate, a researcher for the disease we all have become so over our crazy journey with this disease. Let me tell you a bit about myself. I created this group because at the time, I couldn't find a group on that worked for me. I wanted education on the disease, I wanted it in language that I could understand, not a bunch of letters or whatever. So I set out to make sure that every member of this group could get information straight and to the point. I made sure that the information I provided was truthful, up to date and provided the clearest messages I possibly could provide. I wanted this group to be supportive in the fact that no question was a dumb one, the only dumb question was the one that wasn't asked. Over the years, Yes years because this group is a couple of years old. I added moderators that have really become the working part of this group. They are the engines that keep this group running smoothly. I personally think this is the best group on the web, but then I am kind of proud of my baby(this group) which has grown to a full grown child. I am the mother of 5 children in real life, 2 natural born children (Tenna and ) two step children (and Carol, they are twins), and last but not least the flower of my heart (Breianna or the Brei monster as we call her, she is 11 and we adopted her as a baby). I found out that I had Hepatitis C right after my father died, I was run down from taking care of my father during the last year of his life. I am a nurse and he needed constant care. Although he had a nurses aide that was there in the day time, I

attended to the needs that she couldn't. I would go to work and then to my parents house take care of his needs, and then go home and take care of my family. I thought honestly that I was burned out from nursing, and all the heart ache of losing my father. I went to the doctor for anti-depressants. Instead of getting the anti-depressants my doctor decided to test for other things, because I had a great weight gain. On a simple blood test we came back with high liver enzymes. And although we were concerned about it we thought it might have been because I was taking Estra-test at the time, a hormone. Also my RBC were very high. He sent me to a Hemotologist, they thought I might have leukemia. Well that turned out negative. So we were at our wits end, the doctor was like I don't know Janet but we will keep trying. Then as we sat there talking, it came to me. I asked him, doctor did we test for Hepatitis? He looked at me, and said is that a concern of yours? I told him,

doctor I have been a nurse for many years and we have to take all things in consideration. I have had needle sticks, been covered in blood. Yeah lets test for Hepatitis and HIV. I came back positive for Hepatitis C, and every thing else was negative. Thank God!!! But Hepatitis C, well that through me for a loop. Yes,honey I went through the same thing with family and friends and I had to educate them. Now I wear T-shirts that give information about Hep C. I want people to ask me about Hep C. I want them to be informed. Because you never know who you are going to meet with Hep C. Love Janetnorah2386 <norah2386@...> wrote: I would like to thank the Owner for allowing me to join this group. For so long I have been alone with this illness... I'm not on any meds. My MD said that since I had it was a baby my body is probably immune to it and I don't drink. I sometimes block it out and go about my daily life except when it comes to the opposite sex... Because I know there's a stigma out there on HCV and some who don't know relates it to HIV or Aids. So tell a boyfriend is hard because chances are they just up and leave. When that happens I am totally totally said because I feel like I am being blamed for something I have no control over. I never did drugs nor did I have tatoos or ect. I got it through a

blood transfusion when I was only 3 days old. Now at 28 it still gets to me. Sometime I wish I never knew I had it. Sex is a big topic... When I found out I had it was around the time it was all over the News... How I found out- I was on campus and I wanted to give blood. So I went to the Blood drive at school. A few weeks later I got a letter say my blood was tinted with Hep C. I didn't know what that was so I was like "Oh I have bad blood." No big deal. I ignored the letter. That even when I came back to my room something told me to re-read the letter.. so I sat down and read it again... I was floored!!!!!!!!!!! I had a liver disease. The next morning I surfed the web to find out about it. I was in TEARS!!!!!!!!!!! Not so much that I got it but more so on HOW? was it an STD? Can i have a family and kids? That weekend I went home and told my parents and they were very

sweet. I didn't get it from a guy Condoms are my best friends. The TV was one and then "Out break of Hep C in the USA" I couldn't watch it anymore I went took a shower and cried cried cired. I was amongst the ill and sick. So I pulled myself together and made an appt. with my MD. She's GREAT. She knew from my facial expression that I wasn't happy. I told her about the blood drive and she said order blood work to be done again. inside I prayed it was a mistake and all will be good again. But No- I was positve for HCV. Then in a cracked voice I was like "I read that if I have kids I could transmit it to my spouse and 1 out of 4 will get it" She smiled and said "No that's not quite true since HCV is a rare rare disease its not like Hep A or B. You can only get it through Blood to blood contact. There has been a small case where a spouse contracted the disease from there partner. Then I

was like they mark it as an STD is it? She was like NO again it's only blood to bloods...Unless two people have S & M or any out of the loop type of sexual activity. Or the partner as a low immune system. More then likely your spouse wouldn't contract the disease from you. If you have chidlren they'll make up their own blood. Then I asked about treatments and she said you're young and so you wouldn't need any treatment now but we'll monitor your liver. Since you don't drink and you might have contracted it as a child. Your liver should be ok. I was 19 when I found out at the time. She made me feel a little better. It wasn't the end of the world. LOL Now 9 years later I still haven't come to terms with it. Everytime I go to my other MD He.s always bashing me about it and saying that it is an STD and you can spread it... He and I go at it all the time... Note he's not a blood doctor so I listen but

I don't take it all in.People started to treat me different like I brought it upon myself. Even family members until I told them how I got it. then itwas like "OHHHHHHHHHHHHHHHHHHH poor sis" Anywho that's my story on how Hep C entered my life. I have been abstaining for sex about the sametime I found out I got it... Not becuase I don't want to but becuase I would like to keep to myself until I am married to a person who accepts me and understand my illness in all... Hard to find out this world of ignorance but maybe one day I'll meet my Prince. How cool would it be to wed someone that has the same illness as I... (Sounds crazy but I know some of you thought about it too) anywho Bye Take the ordinary things

of life, and make them your own. Do the impossible with a smile

[Guest guest]

Great advice Kathy!!!!!!!!! And you are the spouse of someone with Hep C. One of our cheerleaders in this group. It doesn't matter. We are just people with a liver disease. Love Janetkathy przybyla <kathypfmp@...> wrote: Welcome on board! This is a very nonjudgementalgroup. Most people that I have met do not know howthey got Hep C...including my husband. It could befrom a blood

transfusion, a fist fight...anyreason...and it doesn't matter how you got it. Peoplewho love you will know that. You can beat yourself uptrying to figure it out, but the fact is that it isnot important...I would suggest you get with another doctor who wouldconsider all options for you.You are not alone in this group!!!Kathy--- norah2386 <norah2386 > wrote:> I would like to thank the Owner for allowing me to> join this group. > For so long I have been alone with this illness...> I'm not on any > meds. My MD said that since I had it was a baby my> body is probably > immune to it and I don't drink. > > I sometimes block it out and go about my daily life> except when it > comes to the opposite sex... Because I know there's> a stigma out > there on HCV and some who don't know

relates it to> HIV or Aids. So > tell a boyfriend is hard because chances are they> just up and leave. > When that happens I am totally totally said because> I feel like I am > being blamed for something I have no control over. > > I never did drugs nor did I have tatoos or ect. I> got it through a > blood transfusion when I was only 3 days old. Now at> 28 it still > gets to me. > > Sometime I wish I never knew I had it. > > Sex is a big topic... > > When I found out I had it was around the time it was> all over the > News... > > How I found out- I was on campus and I wanted to> give blood. So I > went to the Blood drive at school. A few weeks later> I got a letter > say my blood was tinted with Hep C. I didn't know> what that was so I > was like "Oh I have bad blood." No big

deal. I> ignored the letter. > That even when I came back to my room something told> me to re-read > the letter.. so I sat down and read it again... I> was > floored!!!!!!!!!!! > > I had a liver disease. The next morning I surfed the> web to find out > about it. I was in TEARS!!!!!!!!!!! > Not so much that I got it but more so on HOW? was it> an STD? Can i > have a family and kids? > > That weekend I went home and told my parents and> they were very > sweet. I didn't get it from a guy Condoms are my> best friends. The > TV was one and then "Out break of Hep C in the USA" > > I couldn't watch it anymore I went took a shower and> cried cried > cired. I was amongst the ill and sick. > > So I pulled myself together and made an appt. with> my MD. > She's GREAT. She knew from my

facial expression that> I wasn't happy. > > I told her about the blood drive and she said order> blood work to be > done again. > > inside I prayed it was a mistake and all will be> good again. But No- > I was positve for HCV. Then in a cracked voice I> was like "I read > that if I have kids I could transmit it to my spouse> and 1 out of 4 > will get it" > > She smiled and said "No that's not quite true since> HCV is a rare > rare disease its not like Hep A or B. You can only> get it through > Blood to blood contact. There has been a small case> where a spouse > contracted the disease from there partner. > > Then I was like they mark it as an STD is it? She> was like NO again > it's only blood to bloods...Unless two people have> S & M or any out of > the loop type of sexual activity.

Or the partner as> a low immune > system. More then likely your spouse wouldn't> contract the disease > from you. If you have chidlren they'll make up their> own blood. > > > Then I asked about treatments and she said you're> young and so you > wouldn't need any treatment now but we'll monitor> your liver. Since > you don't drink and you might have contracted it as> a child. Your > liver should be ok. > > I was 19 when I found out at the time. > > She made me feel a little better. It wasn't the end> of the world. > LOL > > Now 9 years later I still haven't come to terms> with it. Everytime > I go to my other MD He.s always bashing me about it> and saying that > it is an STD and you can spread it... He and I go at> it all the > time... Note he's not a blood doctor so I listen

but> I don't take it > all in.> > People started to treat me different like I brought> it upon myself. > Even family members until I told them how I got it.> then itwas > like "OHHHHHHHHHHHHHHHHHHH poor sis" > > Anywho that's my story on how Hep C entered my life.> I have been > abstaining for sex about the sametime I found out I> got it... Not > becuase I don't want to but becuase I would like to> keep to myself > until I am married to a person who accepts me and> understand my > illness in all... Hard to find out this world of> ignorance but maybe > one day I'll meet my Prince. > > How cool would it be to wed someone that has the> same illness as > I... (Sounds crazy but I know some of you thought> about it too) > > anywho > > Bye > > > >

> > > __________________________________________________

[Guest guest]

Everyone have a great day! And thanks Janet!

--- Janet <doc_jade@...> wrote:

> Great advice Kathy!!!!!!!!!

> And you are the spouse of someone with Hep C. One

> of our cheerleaders in this group. It doesn't

> matter. We are just people with a liver disease.

> Love

> Janet

>

> kathy przybyla <kathypfmp@...> wrote:

> Welcome on board! This is a very

> nonjudgemental

> group. Most people that I have met do not know how

> they got Hep C...including my husband. It could be

> from a blood transfusion, a fist fight...any

> reason...and it doesn't matter how you got it.

> People

> who love you will know that. You can beat yourself

> up

> trying to figure it out, but the fact is that it is

> not important...

>

> I would suggest you get with another doctor who

> would

> consider all options for you.

>

> You are not alone in this group!!!

> Kathy

>

> --- norah2386 <norah2386@...> wrote:

>

> > I would like to thank the Owner for allowing me to

> > join this group.

> > For so long I have been alone with this illness...

> > I'm not on any

> > meds. My MD said that since I had it was a baby my

> > body is probably

> > immune to it and I don't drink.

> >

> > I sometimes block it out and go about my daily

> life

> > except when it

> > comes to the opposite sex... Because I know

> there's

> > a stigma out

> > there on HCV and some who don't know relates it to

> > HIV or Aids. So

> > tell a boyfriend is hard because chances are they

> > just up and leave.

> > When that happens I am totally totally said

> because

> > I feel like I am

> > being blamed for something I have no control over.

>

> >

> > I never did drugs nor did I have tatoos or ect. I

> > got it through a

> > blood transfusion when I was only 3 days old. Now

> at

> > 28 it still

> > gets to me.

> >

> > Sometime I wish I never knew I had it.

> >

> > Sex is a big topic...

> >

> > When I found out I had it was around the time it

> was

> > all over the

> > News...

> >

> > How I found out- I was on campus and I wanted to

> > give blood. So I

> > went to the Blood drive at school. A few weeks

> later

> > I got a letter

> > say my blood was tinted with Hep C. I didn't know

> > what that was so I

> > was like " Oh I have bad blood. " No big deal. I

> > ignored the letter.

> > That even when I came back to my room something

> told

> > me to re-read

> > the letter.. so I sat down and read it again... I

> > was

> > floored!!!!!!!!!!!

> >

> > I had a liver disease. The next morning I surfed

> the

> > web to find out

> > about it. I was in TEARS!!!!!!!!!!!

> > Not so much that I got it but more so on HOW? was

> it

> > an STD? Can i

> > have a family and kids?

> >

> > That weekend I went home and told my parents and

> > they were very

> > sweet. I didn't get it from a guy Condoms are my

> > best friends. The

> > TV was one and then " Out break of Hep C in the

> USA "

> >

> > I couldn't watch it anymore I went took a shower

> and

> > cried cried

> > cired. I was amongst the ill and sick.

> >

> > So I pulled myself together and made an appt. with

> > my MD.

> > She's GREAT. She knew from my facial expression

> that

> > I wasn't happy.

> >

> > I told her about the blood drive and she said

> order

> > blood work to be

> > done again.

> >

> > inside I prayed it was a mistake and all will be

> > good again. But No-

> > I was positve for HCV. Then in a cracked voice I

> > was like " I read

> > that if I have kids I could transmit it to my

> spouse

> > and 1 out of 4

> > will get it "

> >

> > She smiled and said " No that's not quite true

> since

> > HCV is a rare

> > rare disease its not like Hep A or B. You can only

> > get it through

> > Blood to blood contact. There has been a small

> case

> > where a spouse

> > contracted the disease from there partner.

> >

> > Then I was like they mark it as an STD is it? She

> > was like NO again

> > it's only blood to bloods...Unless two people have

> > S & M or any out of

> > the loop type of sexual activity. Or the partner

> as

> > a low immune

> > system. More then likely your spouse wouldn't

> > contract the disease

> > from you. If you have chidlren they'll make up

> their

> > own blood.

> >

> >

> > Then I asked about treatments and she said you're

> > young and so you

> > wouldn't need any treatment now but we'll monitor

> > your liver. Since

> > you don't drink and you might have contracted it

> as

> > a child. Your

> > liver should be ok.

> >

> > I was 19 when I found out at the time.

> >

> > She made me feel a little better. It wasn't the

> end

> > of the world.

> > LOL

> >

> > Now 9 years later I still haven't come to terms

> > with it. Everytime

> > I go to my other MD He.s always bashing me about

> it

> > and saying that

> > it is an STD and you can spread it... He and I go

> at

> > it all the

> > time... Note he's not a blood doctor so I listen

> but

> > I don't take it

> > all in.

> >

> > People started to treat me different like I

> brought

> > it upon myself.

> > Even family members until I told them how I got

> it.

> > then itwas

> > like " OHHHHHHHHHHHHHHHHHHH poor sis "

> >

> > Anywho that's my story on how Hep C entered my

> life.

> > I have been

> > abstaining for sex about the sametime I found out

> I

> > got it... Not

> > becuase I don't want to but becuase I would like

> to

> > keep to myself

> > until I am married to a person who accepts me and

> > understand my

> > illness in all... Hard to find out this world of

> > ignorance but maybe

> > one day I'll meet my Prince.

>

=== message truncated ===

__________________________________________________