Hello everyone

[Guest guest]

Great job Molly!!!!

Liz

>

> I don't remember if i posted yesterday or not , But i did do my LL

> breats yesterday and today as well along with the tummy rub exercise

> Laurie has taught us.

> Molly : O )

>

[Guest guest]

Dear , It really touched me to read what you said about the comments you expect about your weight. I hope you can summon the confidence to smile and say that things are soon going to be a whole lot better. Good luck with the wedding. I hope you have a very happy day and I look forward to seeing the photo of the ugly dress. LOL With love from Ann in England Xcthymunroe <cthymunroe@...> wrote: I went to the doctors yesterday and I am still waiting for a final day for my surgery. He still wants me to go to U of M for another opinion. I was not happy to find out that I have lost another 4.5 pounds in three weeks. My sister's wedding is this Saturday I am not looking foward to my relatives telling me how much weight I have lost. My surgery supposedly is May 2nd. I am counting the days. I will be looking foward to the time off from work!!! But, I am looking foward to a healthier life. Thank you all for being there. I will keep you updated. from MIP.S. I will post pictures of my ugly bridesmaid dress next week.

Answers - Got a question? Someone out there knows the answer. Try

it now.

[Guest guest]

cthymunroe wrote:

> ... My sister's wedding is this Saturday I am not looking

> foward to my relatives telling me how much weight I have lost. ...

Put that out of your mind. Achalasia can put a choke on our food but we

don't have to let it choke our good times. Don't be a sick person in a

sick body. You can't do much right now about the body but you can be a

vibrant healthy person in it. Much of what people see will be the person

you present. In today's world where too many people go to events dressed

like they are wearing sackcloth with an attitude that hangs on them like

ashes it should be easy to appear full of life and beauty. As a

bridesmaid you have things made easy. You are like royalty in the

queen's court. Act worthy, stand tall, stand close to people, look

straight into their faces, smile, no turning to the side no looking

down, no rolling shoulders forward, no woe is me. Let the spirit of

wedding wash over you. You have been given the job of being beautiful.

You just have to be that person and that is what people will see. Forget

achalasia. Forget your body. If your body protests with a choke or a

regurgitation handle it then put it out of your mind and continue as if

nothing has happened regardless of who may have seen it. Achalasia is

not worthy to be acknowledged in that place. Your beauty is worthy.

notan

..

[Guest guest]

cthymunroe wrote:

>> ... My sister's wedding is this Saturday I am not looking

>> foward to my relatives telling me how much weight I have lost. ...

I forgot to add if someone does comment just tell them they are looking

good and move on. No acknowledgment of achalasia on that day.

notan

[Guest guest]

Hi, , Losing weight when you don't want to, and, in a manner in which you suffer is awful. I sympathize completely. But, because I always think of saving snacks for later, you just might want to take a little plastic baggie along to that wedding, and when no one is looking, put a great big piece of wedding cake in it and then freeze it when you get home. Wedding cake freezes very well. When you feel up to it, you might have a lovely little moment with a great piece of cake, tea?, coffee?, a small glass of champagne?, and be able to swallow it all! Something to look forward to usually helps me a lot. Best wishes for comfortable swallowing soon! Deborah

[Guest guest]

Happy Birthday Molly

Glad your day was fun!

Blessings

R

Hello Everyone

Well i didn't get in my breaths yet today but hope to before bed. Had a

long day today , covered dish at church and then this evening my

friends took me out to dinner for my birthday. We had a lot of fun and

i really have to do my LL i ate way to much lol.

Molly : O )

[Guest guest]

R.

Thank you it was a fun day .

Molly : O )

>

> Happy Birthday Molly

> Glad your day was fun!

>

>

> Blessings

> R

> Hello Everyone

>

>

> Well i didn't get in my breaths yet today but hope to before

bed. Had a

> long day today , covered dish at church and then this evening my

> friends took me out to dinner for my birthday. We had a lot of

fun and

> i really have to do my LL i ate way to much lol.

> Molly : O )

>

>

>

>

>

>

[Guest guest]

I'm wishing you a late Happy Birthday, too, Molly!

Love,

Melinda )

Hello Everyone

Well i didn't get in my breaths yet today but hope to before bed. Had a

long day today , covered dish at church and then this evening my

friends took me out to dinner for my birthday. We had a lot of fun and

i really have to do my LL i ate way to much lol.

Molly : O )

[Guest guest]

My daughter had OCD symptoms as young as age 2. I wish she had been

diagnosed and treated then. (She wasn't until she was 13 and in a

real crisis). There is good CBT (cognitive behavioral therapy) for

this disease, so it isn't necessary to put a very young child on

meds, at least until the therapy is tried. Finding a dr who will do

CBT with such a young child may be the issue. There are some good

books, too, which might help you to help her. One that was helpful

and reassuring to me is " Freeing Your Child from OCD " by Tamar

Chansky. This is a great forum...you'll get a lot of support here.

>

> Hi my name is Paige and I have an almost 3 year old, Kara, who I

> think has OCD, but I cant get our Dr to seriously consider this. I

> really think she was born with this and has always had it. Again,

he

> says I am way off base.

>

> Since she started talking a year ago, she tells me, Momma I HAVE to

> do.... it can be anything from I have to shut all the doors in the

> house, I have to put the shoes right here, I have to eat only this,

> or I have to clean the counter off before I brush my teeth. She

> means it, until whatever it is is done, she can not move forward.

> Most of it is so little to me, it is not worth the fight. I really

> could care less if the doors are open or closed, if the tv in the

van

> is pushed closed or not or where she puts her shoes. When I say

OK,

> she is fine, but if I try to convince her otherwise, she melts into

a

> puddle of screaming two year old temper tantrum.

>

> Am I reading too much into this behavior? What I have read is that

> preschoolers can have this, but it is very rare. We are a family

of

> rareness, this is not uncommon to our thinking. How can I get my

> doctor to take me seriously? Should I give up and go somewhere

> else? We really like our doctor, but I have disagreed with him in

> the past and seen other doctors for our rare disorders without his

> help or referral. I am seeing a lot of posts about meds and I am

> pretty sure I dont want to put her on meds unless I have to. She

is

> very young and I hate to label her with OCD when it could just be

> sturboness. My six year old is the complete opposite of her, very

> carefree and easy going. My perception could be skewed because of

> her as well.

>

> Any help and suggestions would be great!

>

> Thanks in advance

> Paige

>

[Guest guest]

My daughter had OCD symptoms as young as age 2. I wish she had been

diagnosed and treated then. (She wasn't until she was 13 and in a

real crisis). There is good CBT (cognitive behavioral therapy) for

this disease, so it isn't necessary to put a very young child on

meds, at least until the therapy is tried. Finding a dr who will do

CBT with such a young child may be the issue. There are some good

books, too, which might help you to help her. One that was helpful

and reassuring to me is " Freeing Your Child from OCD " by Tamar

Chansky. This is a great forum...you'll get a lot of support here.

>

> Hi my name is Paige and I have an almost 3 year old, Kara, who I

> think has OCD, but I cant get our Dr to seriously consider this. I

> really think she was born with this and has always had it. Again,

he

> says I am way off base.

>

> Since she started talking a year ago, she tells me, Momma I HAVE to

> do.... it can be anything from I have to shut all the doors in the

> house, I have to put the shoes right here, I have to eat only this,

> or I have to clean the counter off before I brush my teeth. She

> means it, until whatever it is is done, she can not move forward.

> Most of it is so little to me, it is not worth the fight. I really

> could care less if the doors are open or closed, if the tv in the

van

> is pushed closed or not or where she puts her shoes. When I say

OK,

> she is fine, but if I try to convince her otherwise, she melts into

a

> puddle of screaming two year old temper tantrum.

>

> Am I reading too much into this behavior? What I have read is that

> preschoolers can have this, but it is very rare. We are a family

of

> rareness, this is not uncommon to our thinking. How can I get my

> doctor to take me seriously? Should I give up and go somewhere

> else? We really like our doctor, but I have disagreed with him in

> the past and seen other doctors for our rare disorders without his

> help or referral. I am seeing a lot of posts about meds and I am

> pretty sure I dont want to put her on meds unless I have to. She

is

> very young and I hate to label her with OCD when it could just be

> sturboness. My six year old is the complete opposite of her, very

> carefree and easy going. My perception could be skewed because of

> her as well.

>

> Any help and suggestions would be great!

>

> Thanks in advance

> Paige

>

[Guest guest]

Our now-12yo dd was diagnosed with OCD at 9 (relatively sudden and weird onset,

but a story for another time). However, we had long suspected there might be

something like OCD going on. Things like when she was about 3 or 4, it was her

job to put silverware on the dinner table but she was too little to count so

would just grab a handful of forks, for example. If it happened that she did not

have the right number, she could not simply adjust by putting away the extras or

getting more. They ALL had to be picked up, put away and the process started

again. If we tried to stop her, she just (as we would now call it) melted down.

As you say, most of it was " who cares " type stuff, but there were enough of

them that we went so far as to take her to a neurologist (our son was seeing him

at the time). The neuro basically said maybe, but he wasn't qualified to

diagnose. So we just waited. I have no regrets about waiting -- my only sorrow

is that it eventually hit hard.

So I guess my thoughts would be to take a " wait and see " attitude. At 2 or 3

years old, it could just be stubbornness. After all, toddlers are notorious for

that! But if it reaches a point where she (or your family) can't live with her

" demands " , then pursue it. I think you will hear from a lot of parents on this

list that they suspected OCD from a young age because of " quirkiness " , but

" real " onset came later. At least, that was definitely our experience.

Welcome to the group, and I hope this helps.

P.

Paige Shoven <pshoven@...> wrote:

Hi my name is Paige and I have an almost 3 year old, Kara, who I

think has OCD, but I cant get our Dr to seriously consider this. I

really think she was born with this and has always had it. Again, he

says I am way off base.

Since she started talking a year ago, she tells me, Momma I HAVE to

do.... it can be anything from I have to shut all the doors in the

house, I have to put the shoes right here, I have to eat only this,

or I have to clean the counter off before I brush my teeth. She

means it, until whatever it is is done, she can not move forward.

Most of it is so little to me, it is not worth the fight. I really

could care less if the doors are open or closed, if the tv in the van

is pushed closed or not or where she puts her shoes. When I say OK,

she is fine, but if I try to convince her otherwise, she melts into a

puddle of screaming two year old temper tantrum.

Am I reading too much into this behavior? What I have read is that

preschoolers can have this, but it is very rare. We are a family of

rareness, this is not uncommon to our thinking. How can I get my

doctor to take me seriously? Should I give up and go somewhere

else? We really like our doctor, but I have disagreed with him in

the past and seen other doctors for our rare disorders without his

help or referral. I am seeing a lot of posts about meds and I am

pretty sure I dont want to put her on meds unless I have to. She is

very young and I hate to label her with OCD when it could just be

sturboness. My six year old is the complete opposite of her, very

carefree and easy going. My perception could be skewed because of

her as well.

Any help and suggestions would be great!

Thanks in advance

Paige

---------------------------------

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and

lay it on us.

[Guest guest]

Our now-12yo dd was diagnosed with OCD at 9 (relatively sudden and weird onset,

but a story for another time). However, we had long suspected there might be

something like OCD going on. Things like when she was about 3 or 4, it was her

job to put silverware on the dinner table but she was too little to count so

would just grab a handful of forks, for example. If it happened that she did not

have the right number, she could not simply adjust by putting away the extras or

getting more. They ALL had to be picked up, put away and the process started

again. If we tried to stop her, she just (as we would now call it) melted down.

As you say, most of it was " who cares " type stuff, but there were enough of

them that we went so far as to take her to a neurologist (our son was seeing him

at the time). The neuro basically said maybe, but he wasn't qualified to

diagnose. So we just waited. I have no regrets about waiting -- my only sorrow

is that it eventually hit hard.

So I guess my thoughts would be to take a " wait and see " attitude. At 2 or 3

years old, it could just be stubbornness. After all, toddlers are notorious for

that! But if it reaches a point where she (or your family) can't live with her

" demands " , then pursue it. I think you will hear from a lot of parents on this

list that they suspected OCD from a young age because of " quirkiness " , but

" real " onset came later. At least, that was definitely our experience.

Welcome to the group, and I hope this helps.

P.

Paige Shoven <pshoven@...> wrote:

Hi my name is Paige and I have an almost 3 year old, Kara, who I

think has OCD, but I cant get our Dr to seriously consider this. I

really think she was born with this and has always had it. Again, he

says I am way off base.

Since she started talking a year ago, she tells me, Momma I HAVE to

do.... it can be anything from I have to shut all the doors in the

house, I have to put the shoes right here, I have to eat only this,

or I have to clean the counter off before I brush my teeth. She

means it, until whatever it is is done, she can not move forward.

Most of it is so little to me, it is not worth the fight. I really

could care less if the doors are open or closed, if the tv in the van

is pushed closed or not or where she puts her shoes. When I say OK,

she is fine, but if I try to convince her otherwise, she melts into a

puddle of screaming two year old temper tantrum.

Am I reading too much into this behavior? What I have read is that

preschoolers can have this, but it is very rare. We are a family of

rareness, this is not uncommon to our thinking. How can I get my

doctor to take me seriously? Should I give up and go somewhere

else? We really like our doctor, but I have disagreed with him in

the past and seen other doctors for our rare disorders without his

help or referral. I am seeing a lot of posts about meds and I am

pretty sure I dont want to put her on meds unless I have to. She is

very young and I hate to label her with OCD when it could just be

sturboness. My six year old is the complete opposite of her, very

carefree and easy going. My perception could be skewed because of

her as well.

Any help and suggestions would be great!

Thanks in advance

Paige

---------------------------------

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and

lay it on us.

[Guest guest]

Welcome, Paige.

Our son showed signs of OCD very young, 1 maybe 2 years of age. He

used to wake up in the middle of the night to straighten up and

arrange all of his stuffed animals he slept with. He could not lie

down to go back to sleep until he did. He did a lot of things like

that, that we chalked up to being just a little quirky. It wasn't

until he was older and it started causing real problems in his life

that we found out it was OCD.

It's hard to say what is going on at such a young age, but a lot in

here mention that when they look back they know their child dealt with

it at a young age. It's great that you are aware so you can be on the

look out as she gets older. You've got a step up on our family. If

we had only known sooner, it would have saved us a lot of grief.

You may just have to take a wait-and-see stance. It wouldn't hurt to

learn what to watch for by doing some reading on the subject. I hope

it is stubborness you are dealing with. . .They can outgrow that.

Glad you are here.

BJ

>

> Hi my name is Paige and I have an almost 3 year old, Kara, who I

> think has OCD, but I cant get our Dr to seriously consider this. I

> really think she was born with this and has always had it. Again, he

> says I am way off base.

>

> Since she started talking a year ago, she tells me, Momma I HAVE to

> do.... it can be anything from I have to shut all the doors in the

> house, I have to put the shoes right here, I have to eat only this,

> or I have to clean the counter off before I brush my teeth. She

> means it, until whatever it is is done, she can not move forward.

> Most of it is so little to me, it is not worth the fight. I really

> could care less if the doors are open or closed, if the tv in the van

> is pushed closed or not or where she puts her shoes. When I say OK,

> she is fine, but if I try to convince her otherwise, she melts into a

> puddle of screaming two year old temper tantrum.

>

> Am I reading too much into this behavior? What I have read is that

> preschoolers can have this, but it is very rare. We are a family of

> rareness, this is not uncommon to our thinking. How can I get my

> doctor to take me seriously? Should I give up and go somewhere

> else? We really like our doctor, but I have disagreed with him in

> the past and seen other doctors for our rare disorders without his

> help or referral. I am seeing a lot of posts about meds and I am

> pretty sure I dont want to put her on meds unless I have to. She is

> very young and I hate to label her with OCD when it could just be

> sturboness. My six year old is the complete opposite of her, very

> carefree and easy going. My perception could be skewed because of

> her as well.

>

> Any help and suggestions would be great!

>

> Thanks in advance

> Paige

>

[Guest guest]

Hi Paige,

It does sound to me like these could be ocd related issues. Looking back at

both of my children, there were signs of ocd when they were quite small.

They could also just be personality differences but imo, just in case, I

would begin to do some damage control now so that things don't escalate and

end up as full blown OCD. What you do now, may save her a world of worry

when she is older.

Things that may work would be exposing her to things that upset her and

letting her work through the anxiety it causes her, while supporting her

emotionally. For instance, if having all the doors shut seems to be VERY

important to her, after she shuts them all, you might open one and then

support her while she works through the anxiety that causes her. (then work

up to 2 doors, etc) Distraction can help too but also from what I

understand, allowing the emotion to wash over her and having her realize

that the anxiety will eventually go away on it's own without shutting the

door is even more helpful. Two books that helped me help my daughter

immensely were " Freeing your child from obsessive compulsive disorder " by

Tamar Chansky and " Brain Lock " by Jeffery Schwartz.

If you want more specifics, please feel free to email and ask me. I hope

this helps.

Shaw

game-enthusiast@...

[Guest guest]

Paige, my daughter is 4 ½ and was officially diagnosed with OCD three months

ago. Everyone’s experience is different, from what I’ve read here and

elsewhere. For us, there were no real strong signs before last fall; DD has

always been very sensitive and what is generally termed “high needs” but

nothing, even in hindsight, seemed to indicate OCD. It was a series of

traumatic events that seemed to trigger things for our daughter, and then

her behavior was blatant OCD at just shy of four years old. We’ve since

learned that there is a family history of OCD (we knew there was a very

strong history of mental health issues, but didn’t know about the OCD).

Toddlers are really, really tough – we had so many people tell us that we

were overreacting, being nervous first-time parents and so on. We were very

lucky to have a pedi whose mantra is “you know your child best, I’m just

here to give medical advice.” My personal belief is that if your gut – not

just your worried parent brain, but your deep down gut – is telling you

something isn’t right, then something isn’t right.

Can you get your daughter in to see a therapist? Before we put the pieces

together and realized it was OCD, we already had DD in seeing a therapist

who specialized in working with young children. She patiently worked with

our daughter until we were able to put the pieces together; it wasn’t until

we noticed DD counting that we realized what was happening – we only knew

that she would fall apart in a way unlike a normal temper tantrum if she

didn’t get her way on certain things.

Feel free to email me off list if you like. It is my belief that pediatric

OCD is being diagnosed more now because we’re getting better at recognizing

it. I had a very wonderful conversation with a woman at the library who told

me her brother – now in his late forties – has OCD, and that he was not

diagnosed until he was almost thirty, because no one knew what OCD was. She

said he had been like that since he was a child, and that it affected their

whole family, and that she was so glad they were catching it early now, to

save everyone that kind of pain.

~ Ali

--------------------------------------------

Ali Crehan Feeney, CLC

Quincy, MA

Our lives begin to end the day we become silent about things that matter.

- Luther King Jr.

_____

From:

[mailto: ] On Behalf Of Paige Shoven

Sent: Wednesday, June 20, 2007 12:15 AM

Subject: Hello everyone

Hi my name is Paige and I have an almost 3 year old, Kara, who I

think has OCD, but I cant get our Dr to seriously consider this. I

really think she was born with this and has always had it. Again, he

says I am way off base.

Since she started talking a year ago, she tells me, Momma I HAVE to

do.... it can be anything from I have to shut all the doors in the

house, I have to put the shoes right here, I have to eat only this,

or I have to clean the counter off before I brush my teeth. She

means it, until whatever it is is done, she can not move forward.

Most of it is so little to me, it is not worth the fight. I really

could care less if the doors are open or closed, if the tv in the van

is pushed closed or not or where she puts her shoes. When I say OK,

she is fine, but if I try to convince her otherwise, she melts into a

puddle of screaming two year old temper tantrum.

Am I reading too much into this behavior? What I have read is that

preschoolers can have this, but it is very rare. We are a family of

rareness, this is not uncommon to our thinking. How can I get my

doctor to take me seriously? Should I give up and go somewhere

else? We really like our doctor, but I have disagreed with him in

the past and seen other doctors for our rare disorders without his

help or referral. I am seeing a lot of posts about meds and I am

pretty sure I dont want to put her on meds unless I have to. She is

very young and I hate to label her with OCD when it could just be

sturboness. My six year old is the complete opposite of her, very

carefree and easy going. My perception could be skewed because of

her as well.

Any help and suggestions would be great!

Thanks in advance

Paige

[Guest guest]

Paige, my daughter is 4 ½ and was officially diagnosed with OCD three months

ago. Everyone’s experience is different, from what I’ve read here and

elsewhere. For us, there were no real strong signs before last fall; DD has

always been very sensitive and what is generally termed “high needs” but

nothing, even in hindsight, seemed to indicate OCD. It was a series of

traumatic events that seemed to trigger things for our daughter, and then

her behavior was blatant OCD at just shy of four years old. We’ve since

learned that there is a family history of OCD (we knew there was a very

strong history of mental health issues, but didn’t know about the OCD).

Toddlers are really, really tough – we had so many people tell us that we

were overreacting, being nervous first-time parents and so on. We were very

lucky to have a pedi whose mantra is “you know your child best, I’m just

here to give medical advice.” My personal belief is that if your gut – not

just your worried parent brain, but your deep down gut – is telling you

something isn’t right, then something isn’t right.

Can you get your daughter in to see a therapist? Before we put the pieces

together and realized it was OCD, we already had DD in seeing a therapist

who specialized in working with young children. She patiently worked with

our daughter until we were able to put the pieces together; it wasn’t until

we noticed DD counting that we realized what was happening – we only knew

that she would fall apart in a way unlike a normal temper tantrum if she

didn’t get her way on certain things.

Feel free to email me off list if you like. It is my belief that pediatric

OCD is being diagnosed more now because we’re getting better at recognizing

it. I had a very wonderful conversation with a woman at the library who told

me her brother – now in his late forties – has OCD, and that he was not

diagnosed until he was almost thirty, because no one knew what OCD was. She

said he had been like that since he was a child, and that it affected their

whole family, and that she was so glad they were catching it early now, to

save everyone that kind of pain.

~ Ali

--------------------------------------------

Ali Crehan Feeney, CLC

Quincy, MA

Our lives begin to end the day we become silent about things that matter.

- Luther King Jr.

_____

From:

[mailto: ] On Behalf Of Paige Shoven

Sent: Wednesday, June 20, 2007 12:15 AM

Subject: Hello everyone

Hi my name is Paige and I have an almost 3 year old, Kara, who I

think has OCD, but I cant get our Dr to seriously consider this. I

really think she was born with this and has always had it. Again, he

says I am way off base.

Since she started talking a year ago, she tells me, Momma I HAVE to

do.... it can be anything from I have to shut all the doors in the

house, I have to put the shoes right here, I have to eat only this,

or I have to clean the counter off before I brush my teeth. She

means it, until whatever it is is done, she can not move forward.

Most of it is so little to me, it is not worth the fight. I really

could care less if the doors are open or closed, if the tv in the van

is pushed closed or not or where she puts her shoes. When I say OK,

she is fine, but if I try to convince her otherwise, she melts into a

puddle of screaming two year old temper tantrum.

Am I reading too much into this behavior? What I have read is that

preschoolers can have this, but it is very rare. We are a family of

rareness, this is not uncommon to our thinking. How can I get my

doctor to take me seriously? Should I give up and go somewhere

else? We really like our doctor, but I have disagreed with him in

the past and seen other doctors for our rare disorders without his

help or referral. I am seeing a lot of posts about meds and I am

pretty sure I dont want to put her on meds unless I have to. She is

very young and I hate to label her with OCD when it could just be

sturboness. My six year old is the complete opposite of her, very

carefree and easy going. My perception could be skewed because of

her as well.

Any help and suggestions would be great!

Thanks in advance

Paige

[Guest guest]

Welcome!

My 12yo daughter started showing signs of OCD at age 3. In fact, I even took

her to the same pdoc she goes to now, and the doc said she was too young to

diagnose. Like you, I didn't care so much about the little things, and at age

3, they were pretty much all little. She wasn't a discipline problem. When I

returned with her at age 7, she was diagnosed with ADHD and OCD tendencies.

What we didn't know was that she actually had full blown OCD of just the

thoughts...she was avoiding things that scared her. I just never knew why. So

at age 12, she finally got her real diagnosis.

I'm all for second opinions. Fortunately, I've been pretty satisfied with our

doctors.

Laurie

Paige Shoven <pshoven@...> wrote:

Hi my name is Paige and I have an almost 3 year old, Kara, who I

think has OCD, but I cant get our Dr to seriously consider this. I

really think she was born with this and has always had it. Again, he

says I am way off base.

Since she started talking a year ago, she tells me, Momma I HAVE to

do.... it can be anything from I have to shut all the doors in the

house, I have to put the shoes right here, I have to eat only this,

or I have to clean the counter off before I brush my teeth. She

means it, until whatever it is is done, she can not move forward.

Most of it is so little to me, it is not worth the fight. I really

could care less if the doors are open or closed, if the tv in the van

is pushed closed or not or where she puts her shoes. When I say OK,

she is fine, but if I try to convince her otherwise, she melts into a

puddle of screaming two year old temper tantrum.

Am I reading too much into this behavior? What I have read is that

preschoolers can have this, but it is very rare. We are a family of

rareness, this is not uncommon to our thinking. How can I get my

doctor to take me seriously? Should I give up and go somewhere

else? We really like our doctor, but I have disagreed with him in

the past and seen other doctors for our rare disorders without his

help or referral. I am seeing a lot of posts about meds and I am

pretty sure I dont want to put her on meds unless I have to. She is

very young and I hate to label her with OCD when it could just be

sturboness. My six year old is the complete opposite of her, very

carefree and easy going. My perception could be skewed because of

her as well.

Any help and suggestions would be great!

Thanks in advance

Paige

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[Guest guest]

Oh wow! Your son and the stuffed animal thing is exactly what I did when my OCD

hit as a child! I could stay up for hours trying to get those darned things

just right!

Laurie

svdbyhislove <BJClosner@...> wrote:

Welcome, Paige.

Our son showed signs of OCD very young, 1 maybe 2 years of age. He

used to wake up in the middle of the night to straighten up and

arrange all of his stuffed animals he slept with. He could not lie

down to go back to sleep until he did. He did a lot of things like

that, that we chalked up to being just a little quirky. It wasn't

until he was older and it started causing real problems in his life

that we found out it was OCD.

It's hard to say what is going on at such a young age, but a lot in

here mention that when they look back they know their child dealt with

it at a young age. It's great that you are aware so you can be on the

look out as she gets older. You've got a step up on our family. If

we had only known sooner, it would have saved us a lot of grief.

You may just have to take a wait-and-see stance. It wouldn't hurt to

learn what to watch for by doing some reading on the subject. I hope

it is stubborness you are dealing with. . .They can outgrow that.

Glad you are here.

BJ

---------------------------------

Be a better Heartthrob. Get better relationship answers from someone who knows.

Answers - Check it out.

[Guest guest]

I did that with my stuffed animals too, all lined up on my bed

against the wall near my pillow, I rotated them (who was nearest the

pillow) to be " fair " . I don't recall having alot of anxiety about it

ass a child, but then no ne ever interfered with (or noticed) my

arrangement. At one point, as I got older and stuffed animals were

moved to my closet, I could not get rid of them, but kind of wanted

to because it bothered me in an irrational way I guess (as if they

had feelings that were making me feel guilty). One day I just

decided " this is ridiculous " and threw them out. I wonder, if it is

very common, would that make it just a developmental stage of

childhood, or is it an actual ocd thing?

nancy grace

> Welcome, Paige.

>

> Our son showed signs of OCD very young, 1 maybe 2 years of age. He

> used to wake up in the middle of the night to straighten up and

> arrange all of his stuffed animals he slept with. He could not lie

> down to go back to sleep until he did. He did a lot of things like

> that, that we chalked up to being just a little quirky. It wasn't

> until he was older and it started causing real problems in his life

> that we found out it was OCD.

>

> It's hard to say what is going on at such a young age, but a lot in

> here mention that when they look back they know their child dealt

with

> it at a young age. It's great that you are aware so you can be on

the

> look out as she gets older. You've got a step up on our family. If

> we had only known sooner, it would have saved us a lot of grief.

>

> You may just have to take a wait-and-see stance. It wouldn't hurt to

> learn what to watch for by doing some reading on the subject. I hope

> it is stubborness you are dealing with. . .They can outgrow that.

>

> Glad you are here.

>

> BJ

>

>

>

>

> ---------------------------------

> Be a better Heartthrob. Get better relationship answers from

someone who knows.

> Answers - Check it out.

>

>

[Guest guest]

I remember doing that too. Probably not in an orderly way, I'm not orderly about

anything, I like things crooked and random. But, I did line them up when I got

scared as my army, my fluffy pink army. I lined them up on the outside of

course., to protect me from whatever. Ben,7 doesn't have any of the evenness or

neat, symmetrical thing. Very messy, no order to anything. He mostly has bad

thoughts with a little of the germ issues.

J

Re: Hello everyone

I did that with my stuffed animals too, all lined up on my bed

against the wall near my pillow, I rotated them (who was nearest the

pillow) to be " fair " . I don't recall having alot of anxiety about it

ass a child, but then no ne ever interfered with (or noticed) my

arrangement. At one point, as I got older and stuffed animals were

moved to my closet, I could not get rid of them, but kind of wanted

to because it bothered me in an irrational way I guess (as if they

had feelings that were making me feel guilty). One day I just

decided " this is ridiculous " and threw them out. I wonder, if it is

very common, would that make it just a developmental stage of

childhood, or is it an actual ocd thing?

nancy grace

> Welcome, Paige.

>

> Our son showed signs of OCD very young, 1 maybe 2 years of age. He

> used to wake up in the middle of the night to straighten up and

> arrange all of his stuffed animals he slept with. He could not lie

> down to go back to sleep until he did. He did a lot of things like

> that, that we chalked up to being just a little quirky. It wasn't

> until he was older and it started causing real problems in his life

> that we found out it was OCD.

>

> It's hard to say what is going on at such a young age, but a lot in

> here mention that when they look back they know their child dealt

with

> it at a young age. It's great that you are aware so you can be on

the

> look out as she gets older. You've got a step up on our family. If

> we had only known sooner, it would have saved us a lot of grief.

>

> You may just have to take a wait-and-see stance. It wouldn't hurt to

> learn what to watch for by doing some reading on the subject. I hope

> it is stubborness you are dealing with. . .They can outgrow that.

>

> Glad you are here.

>

> BJ

>

>

>

>

> ---------------------------------

> Be a better Heartthrob. Get better relationship answers from

someone who knows.

> Answers - Check it out.

>

>

[Guest guest]

I think for me it was an OCD thing, because I felt like the order of the animals

was protecting me from something. Later, it expanded to arranging things on the

furniture in my room, checking and rechecking (and rechecking again...for up to

two hours!) the order of things and looking in my closet, under my bed, etc. I

even had to hold my breath for a certain number of seconds!

I did get rid of most of the stuffed animals. I have a few of the smaller

ones in a box somewhere in my storage room.

Laurie

nancy grace <nmlinnen@...> wrote:

I did that with my stuffed animals too, all lined up on my bed

against the wall near my pillow, I rotated them (who was nearest the

pillow) to be " fair " . I don't recall having alot of anxiety about it

ass a child, but then no ne ever interfered with (or noticed) my

arrangement. At one point, as I got older and stuffed animals were

moved to my closet, I could not get rid of them, but kind of wanted

to because it bothered me in an irrational way I guess (as if they

had feelings that were making me feel guilty). One day I just

decided " this is ridiculous " and threw them out. I wonder, if it is

very common, would that make it just a developmental stage of

childhood, or is it an actual ocd thing?

nancy grace

> Welcome, Paige.

>

> Our son showed signs of OCD very young, 1 maybe 2 years of age. He

> used to wake up in the middle of the night to straighten up and

> arrange all of his stuffed animals he slept with. He could not lie

> down to go back to sleep until he did. He did a lot of things like

> that, that we chalked up to being just a little quirky. It wasn't

> until he was older and it started causing real problems in his life

> that we found out it was OCD.

>

> It's hard to say what is going on at such a young age, but a lot in

> here mention that when they look back they know their child dealt

with

> it at a young age. It's great that you are aware so you can be on

the

> look out as she gets older. You've got a step up on our family. If

> we had only known sooner, it would have saved us a lot of grief.

>

> You may just have to take a wait-and-see stance. It wouldn't hurt to

> learn what to watch for by doing some reading on the subject. I hope

> it is stubborness you are dealing with. . .They can outgrow that.

>

> Glad you are here.

>

> BJ

>

>

>

>

> ---------------------------------

> Be a better Heartthrob. Get better relationship answers from

someone who knows.

> Answers - Check it out.

>

>

[Guest guest]

When I read about how some of you in here have OCD yourselves, and

that your functioning well in spite of it. . . Having gone through all

that our kids are going through now . . . .It gives me hope our son

might be able to too, with time and maturity. It's been hard to be

hopeful with this current flare up of his because it's been so

devastating, and everything we've tried and helped a bit, but not

enough.

Didn't mean to pull a Mark Twain on the very long, run on sentences.

<grin>

BJ

> > Welcome, Paige.

> >

> > Our son showed signs of OCD very young, 1 maybe 2 years of age. He

> > used to wake up in the middle of the night to straighten up and

> > arrange all of his stuffed animals he slept with. He could not lie

> > down to go back to sleep until he did. He did a lot of things like

> > that, that we chalked up to being just a little quirky. It wasn't

> > until he was older and it started causing real problems in his life

> > that we found out it was OCD.

> >

> > It's hard to say what is going on at such a young age, but a lot in

> > here mention that when they look back they know their child dealt

> with

> > it at a young age. It's great that you are aware so you can be on

> the

> > look out as she gets older. You've got a step up on our family. If

> > we had only known sooner, it would have saved us a lot of grief.

> >

> > You may just have to take a wait-and-see stance. It wouldn't hurt to

> > learn what to watch for by doing some reading on the subject. I hope

> > it is stubborness you are dealing with. . .They can outgrow that.

> >

> > Glad you are here.

> >

> > BJ

> >

> >

> >

> >

> > ---------------------------------

> > Be a better Heartthrob. Get better relationship answers from

> someone who knows.

> > Answers - Check it out.

> >

> >

[Guest guest]

Hi!

I've been reading messages since mid-august, but haven't gotten up

the courage to say anything until now. I joined, shortly after being

given my diagnosis of AOSD at the beginning of August, just to learn

anything I could about my amazing lottery win as I have refering to

Still's as.

I actually only had about 3 and a half months of guessing games

before someone could diagnosis me, which seems to be really lucky

compared to what I have seen in everyone else's stories. Mine began

with a rash, which was first brushed off as poison ivy, then an

allergic reaction until my regular doctor sent me to a dermatologist

who looked at the rash and said " It's hives " and sent me on my way.

Now during this time I had all sorts of blood work, because they

though it was lymes, lupus, an allergy and everything else. I

finally was sent to a rheumatologist, because I was unable to bend

my knees. The rheumatologist looked at my rash asked several

questions about things that I wouldn't have even though of (rash,

fever, chills, weight loss, loss of focus), walked into his office,

grabbed a book, came in and showed me a picture of the rash and

asked if it looked familiar. I was so happy at that point that I did

not hear what he was telling me that this diseas would become

something to deal with all the time.

What is odd is that this doctor works in a small community hospital

and was able to pick up on something that it seems as though so many

of you had to fight with doctors associated with bigger cities to

diagnosis. I thank heavens that he was able to pick up on it and

name it as quickly as he did. He started me off on 60mg of

prednisone and told me we were going to be best friends for awhile.

He thinks I already have some major damage, but wants to see how I

do after the third month of prednisone before he puts me onto

anything for the joint deterioration, which he is unsure of how bad

it is yet.

So for now, I take it one day at a time and try to stay positive,

even after reading up on what the meds can do (and I really don't

want to think about hair loss, infertility and all the other things

at 25). I also have to remember to pace myself more then I did in

the past. I used to work any hours thrown at me and still have

energy, now not so much. In addition I have to start looking at

other work alternatives, because I am unable to restrain or chase

down a child if I would have to (I do TSS, which is behavioral

therapy for kids with autism, odd, adhd and other mental health

diagnosis).

But, I really wanted to thank all of you for supporting each other

and sharing your information, it has helped me a lot already.

Jennie

[Guest guest]

Hi!

I've been reading messages since mid-august, but haven't gotten up

the courage to say anything until now. I joined, shortly after being

given my diagnosis of AOSD at the beginning of August, just to learn

anything I could about my amazing lottery win as I have refering to

Still's as.

I actually only had about 3 and a half months of guessing games

before someone could diagnosis me, which seems to be really lucky

compared to what I have seen in everyone else's stories. Mine began

with a rash, which was first brushed off as poison ivy, then an

allergic reaction until my regular doctor sent me to a dermatologist

who looked at the rash and said " It's hives " and sent me on my way.

Now during this time I had all sorts of blood work, because they

though it was lymes, lupus, an allergy and everything else. I

finally was sent to a rheumatologist, because I was unable to bend

my knees. The rheumatologist looked at my rash asked several

questions about things that I wouldn't have even though of (rash,

fever, chills, weight loss, loss of focus), walked into his office,

grabbed a book, came in and showed me a picture of the rash and

asked if it looked familiar. I was so happy at that point that I did

not hear what he was telling me that this diseas would become

something to deal with all the time.

What is odd is that this doctor works in a small community hospital

and was able to pick up on something that it seems as though so many

of you had to fight with doctors associated with bigger cities to

diagnosis. I thank heavens that he was able to pick up on it and

name it as quickly as he did. He started me off on 60mg of

prednisone and told me we were going to be best friends for awhile.

He thinks I already have some major damage, but wants to see how I

do after the third month of prednisone before he puts me onto

anything for the joint deterioration, which he is unsure of how bad

it is yet.

So for now, I take it one day at a time and try to stay positive,

even after reading up on what the meds can do (and I really don't

want to think about hair loss, infertility and all the other things

at 25). I also have to remember to pace myself more then I did in

the past. I used to work any hours thrown at me and still have

energy, now not so much. In addition I have to start looking at

other work alternatives, because I am unable to restrain or chase

down a child if I would have to (I do TSS, which is behavioral

therapy for kids with autism, odd, adhd and other mental health

diagnosis).

But, I really wanted to thank all of you for supporting each other

and sharing your information, it has helped me a lot already.

Jennie

[Guest guest]

,,

Get a grip and hang on for a hell of a ride...My wife saved my life three times

during the course of the frist three months aft my DX day and the knuckle heads

at the ER..Your story is simular to all of ours.. both husband , wife ,also

close friend and lovers... we can not do it alone very well,,, the support and

concern goes a long away with the recovery process. some recovery,,I should say

learning to deal with the problem.. in short it gets better, but never goes away

completly.Mine was a year. The meds really help to forget for a while.. feeling

good blow a horn,,, feeling bad slow down........The sooner he learns this the

faster his re-adaptation will occur.. Help him when he needs it,, but he also

needs to know he has to fight it the best he can and keep moving.. get ready

everyday even if it means three hours to get it together.. one time it took me

all day to shower and dress ,, shave and make myself feel Human. I sat the rest

of the day but I was looking presentable to anyone who knocked at the door.....

Hope this helps........

Alan..........

Hello Everyone

Hello everyone, I am new to this group and I have been reading the

messages and I simply love this group. I am very happy and grateful to

have found you all. My name is , I am 30 yrs old. I am married and

I have 2 daughters (one is by marriage and a grandson). I do not have

AOSD but my husband does and I am needing a little support with this as

well because seeing him suffer through it all is hurting me. My husband

was diagnosed with Adult Still's Disease this June 2007. I really

believe he has had it since December 2005. He had been going to a

hospital that really did not try to figure out what was wrong with him.

They kept telling him that he was just banged up, they would give him

vicoden for pain and just send him home. They tried to blame it all on

Carpal tunnel(they did do surgery on one wrist). We knew that it was

something extremely wrong but no one would take the time to figure it

out, until my husband got very ill and started having chest pain. I took

him to St. Luke's hospital because I had a procedure done on my heart

there and I felt that they were wonderful and they were. So anyway, when

we got there they said that he had a small heart attack and they wanted

to keep him. So he stayed about a week in the heart institute but while

in there they also discovered that he had all types of blood work to

come back with concerns to them. They then began to question us on

everything that had been going on with him. We explained everything to

them and they were upset that the other hospital did not do anything

when they saw the abnormal lab work. He stayed in the hospital for 3

weeks, but no longer in the heart institute. They did every test

possible on him. Then they finally said that it was AOSD. They also

said he had an infection in his throat and Histoplasmosis. They gave him

a medication(Sporonax) for the Histoplasmosis that began to cause him

more problems and was then hospitalized again for yellow jaundice,high

blood pressure, kidney and liver problems and steroid induced diabetes.

They took him off of the Sporonax and most of that is better now. But my

husband is still suffering from the AOSD, he is on a lot of medication

including prednisone, methotrexate injections and soon to be on

kineret. I am worried about the effects this can have on him. This

is hurting me to see my husband in so much pain on a daily basis. He is

so miserable and he is starting to get depressed because he can't do

anything and feels as if his whole life has been taken away from him. I

have tried to help him through all of the night sweats, fevers, pain and

swelling. Some days he can't even walk. I have literally carried him on

my back to put him to bed. He is a lot better than he used to be but

still suffering with so much constant pain and he doesn't get much

sleep. I hope you can help me with some suggestions and if kineret

can be helpful or not. I am willing to listen and learn. Thanks for

hearing my story. Motv8dlady()