Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Hey , Welcome to the group I have only been on the prednisone for about a month now so I can't help you there, but I have had major sleep problems for 2 years and I have always slept like a bear my entire life. They put me on Trazodone first and that worked for about a year, tried amitriptyline and flexoril and they made me feel severely depressed and groggy. Ambien works great but my doc won't give me much. When my pain is under better control I seem to sleep better. They have told me to just use tylenol pm now and that does work pretty well. As far as activities go, right now I am limited to 10 minutes. I try to walk for 10 minutes a day. Have you been to physical therapy? They can get you set up on a program. They have me work with 2 lb weights and therabands now. I also do pool therapy twice a week when I can and can be in the pool for 30-40 minutes doing exercise. This is hard as several years ago I was pretty into weight lifting and could leg press over 200 lbs. Now I can barely get the top off a bottle. Will you play basketball agian, anything is possible!!! Since my pain has continually spread and gotten worse over the past 2 years I am not the most hopeful but I was never a big athlete either. I miss downhill skiiing the most. Don't think my knees could handle that right now. Anyway there are many in the group that are physical miracles, Superman runs 20 miles a day and is in the military, you will have to talk to him when he gets back. Glad you are here! Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- Re: Hello everyone Hello, Fairly new and have not spoken up, Had a few quick questions though, I have had still's for 6 years now and have never been off of prednisone, Has anyone else been on it that long without some sort of break from it? Does anyone have trouble with activities such as sports like basketball, or weight lifting? should i give up the idea that i will play basketball again? Do most have trouble sleeping? I wake up about every 15-30 min. every night. Oh by the way my name is , I am 23 will be 24 next month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Hi My name is ,I am in Wichita, KS. I also had most of the symptoms you described at the onset of stills disease. Sorry to here about the un-necessary operation. When I was given prednizone my fevers immediately went down also. I have had Stills for 4 yrs now and been a member here for aprox. 2 of those yrs. My rhuemy here in Wichita is DR. Shaver, Who do you see? I know of 1 other person here in Wichita that has Stills. As far as the medicines go, for me, some seem to work for a while. Recently got off MTX and prednizone, doc was concerned about long term effects. Am now trying Plaquenil, this stuff is hard on my tummy, lol. I am 47, got stills at 43. I have not posted much the last few months, but I have been reading all posts. Take care rjones202@... Wichita, Kansas Hello everyone Hello everyone. My name is . I am 16 years old. I was diagnosed with Stills Disease in April. For the past year I had been really sick. It seemed that every other month I would get sick with flu like symptoms. I would have extremely high temperatures, vomiting, sore throats, my whole body would just hurt and ache. One night towards the end of March I was at work ( I HAD a waitressing job ) and my right side started hurting. It hurt so bad I couldn't even stand up, or drive home. I had to call my Mom and make her come get me. Whenever we got home, I went straight to bed. I can remember laying in bed with five quilts on top of me, crying, thinking to myself, what was going on. My Mom came in my room at one in the morning, and said come on, I'm taking you out to the emergency room. She said I had that gray look to my face and my temperature was now up to 106. Whenever we got out to the emergency room, they ran some test and took some blood. My white blood count was extremely high, and since my right side was hurting, they said it was my appendix and it needed to be removed ASAP. So I had emergency surgery and my appendix was removed at 8 o'clock that morning. After the surgery was over, the doctor came in my room and said that the appendix was fine. But I no longer had the pain in my right side. I still had a high temperature, and then that next day a faint rash appeared on my face and arms. My doctor continued to run test, but couldn't figure out anything. After being in the hospital for 2 days, having an unnecessary surgery, and still not knowing what was wrong with me, my parents we're a little bit frusterated. My doctor then decided it was time for me to go to a bigger hospital 2 1/2 hours away. I was rushed by ambulance to a hospital in Wichita, Kansas to see an infectious disease specialist. When I got there he did more test. Another 5 days passed, and we still knew nothing. I still had 104-106 temperatures, chills, vomiting, and the rash. The infectious disease specialist came in and said he had done everything he could, and what I had was not in his field. He said he was going to send a rheumatologist in. My family and I were like a rheuma.... what?! We had never even heard of a rheumatologist before. This was all very new to us. She came in and did more testing. She finally gave me 800mg of prednizone through my IV. It was like a miracle drug! My temperature was gone, and I was ready to get the heck out of the hospital. I did a little bit of whinning around to my rheumatologist and told her that my temperature was gone, I was 2 1/2 hours away from my friends, I was still in school, and I just wanted to go home. She said that I could go home, but she explained to me I was still sick, and the prednizone was just like a band-aid. She also said she was waiting on a test to come back, and she was pretty sure she knew what I had. She said that she thought I had something called " Stills disease " She sent me home on 80mg of prednizone and I had to come back in one week. Whenever my family and I got home, we did some research on Stills... and I was shocked. Everything that had been going on the past year, all pointed back to Stills. It was so crazy! I knew once I did the research, Stills was what I had. When I went back to see my rheumatologist one week later, sure enough, she had got the tests back and Still's was what I had. I am now on 40mg of prednizone, 400mg of plaquinel, 100mg of trazodone(to help sleep), and tylenol3 for the pain. I am really glad I found this, reading everyone elses post, It's nice to know there's other people out there going through some of the same stuff and are willling to help you with any questions. Myers _________________________________________________________________ Add photos to your e-mail with MSN 8. Get 2 months FREE*. http://join.msn.com/?page=features/featuredemail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 And a big welcome to you Bill! My nickname is Melt and I've had Stills since the seventies. As you have probably read, we are a great group of family here. Join right in and let us know how we can help in any way. I never say never with this disease because it can change on a dime or be nice for a very long time, lol. Always keep your dreams and if you can't do the ones you want for a while then find new ones while you wait. Happy you have joined us. Till soon, Melt Re: Hello everyone > Hello, > Fairly new and have not spoken up, > Had a few quick questions though, I have had still's for 6 years now and have > never been off of prednisone, Has anyone else been on it that long without > some sort of break from it? > Does anyone have trouble with activities such as sports like basketball, or > weight lifting? > should i give up the idea that i will play basketball again? > Do most have trouble sleeping? I wake up about every 15-30 min. every night. > Oh by the way my name is , I am 23 will be 24 next month. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Dear Bill, it is very nice to meet you and I am glad that you wrote to the group. I have been on the same amount of prednisone for over three years. I haven't been below 30mg. I started off at 80. This is a lot of time for me. I want of it very badly. I have noticed big changes in my body as far as strength go and exercise. I was a faithful runner and worked out on weights a lot. Yes, I do notice changes...How long have you been on it Bill? I do have trouble sleeping. I was taking Amptytripylene (spelling)....but I recently stopped because of all the weight gain with the prednisone. I have gained 53 pounds with that and prednisone, so I tried Ambien again this week. That's not working either and he gave me 10mg tabs. Yes, prednisone makes it hard for me to sleep and makes me moody as well. I am sorry that you are having a rough time at it too friend. I have kind of been in a slump the last few months. I know where you are coming from. Be well. Sincerely, Sue #2 -- Re: Hello everyone Hello, Fairly new and have not spoken up, Had a few quick questions though, I have had still's for 6 years now and have never been off of prednisone, Has anyone else been on it that long without some sort of break from it? Does anyone have trouble with activities such as sports like basketball, or weight lifting? should i give up the idea that i will play basketball again? Do most have trouble sleeping? I wake up about every 15-30 min. every night. Oh by the way my name is , I am 23 will be 24 next month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Welcome back RJ! Good to hear from you again. I have wondered how you have been doing. So sorry about your dad and then your step dad yet too. Oh , I got a tear in my eye and a chill down my spine, when I read that you have found your daughter after *23* years! How wonderful! That is very strange about being able to walk for several months! Thank God, it was only temporary, and let's hope it doesn't come back. You must have been a bit scared. Thanks for checking in, before we had to send the cavalry out! ~~tricia~~ Wisconsin ***************************************************************************** ** -- Re: Hello everyone Hi Caroline Soooooooo, lol. Yes RJ. I think Pattymelt give me that name because there were getting to be a lot of then and I see there are more now. A ton of things have been going on, my dad passed on thanksgiving day, my step dad in law has passed and on and on. Good news is I found my daughter after 23 yrs. on Christmas day, her birthday. Her mom and I never married. She lives in Colorado Springs, Co. same place as In Colorado. I grew up there my self. Spent the last 5 or 6 months unable to walk till 3 weeks ago. The docs don't have a clue what was wrong, after trying PT, Acupuncture, traction, epidural shot, MRI pictures nothing helped. Then one morning I awoke and just stood up like I should, not realizing what I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 RJ...I meant NOT being able to walk for several months! What a difference in the meaning of a sentence when one word is added or deleted. ~~tricia~~ ******************************** -- Re: Hello everyone Hi Caroline Soooooooo, lol. Yes RJ. I think Pattymelt give me that name because there were getting to be a lot of then and I see there are more now. A ton of things have been going on, my dad passed on thanksgiving day, my step dad in law has passed and on and on. Good news is I found my daughter after 23 yrs. on Christmas day, her birthday. Her mom and I never married. She lives in Colorado Springs, Co. same place as In Colorado. I grew up there my self. Spent the last 5 or 6 months unable to walk till 3 weeks ago. The docs don't have a clue what was wrong, after trying PT, Acupuncture, traction, epidural shot, MRI pictures nothing helped. Then one morning I awoke and just stood up like I should, not realizing what I Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Hi .. I am soo sorry to hear about your loses...That is hard, I to have lost alot of loved ones in the past year.. I am so glad that you found your daughter, that is a long time.. What part of the Springs are from? It has grown here alot.. I was born and raised..lol. I am glad that you are able to walk again.. Take care.. Kelley in Colorado Kelleyak31@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 --Hi , my name is Pat and Im from Ma. Im glad you found us although I wish you didnt have too. You are the same age as my daughter so it brings tears to my eyes when I read your story..I just want to hold you tight and tell you things will get better. You sound very mature for your age and have a grasp on what is happening to you body and thats good. Feel free to ask us anything and tell Mom she can join also if she has questions..we are here for all of you,I have had Stills for 15 years, and have been in a long remission until last August take care love Pat from MA - In Stillsdisease , " Myers " <adm_chick@h...> wrote: > Hello everyone. My name is . I am 16 years old. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 --Hi , welcome to our group. My name is Pat and I have had Stills for 15 years...I think many people have been on the prednisone for long periods of time ..are you on a high dose? Never give up on anything, with this illness there are periods of remission that many of us have had. Im not into a lot of the physical activites but I know a lot of the younger members of the group are, so hopefully you will hear from them..not that Im old..lol take care and again glad you found us love Pat from Ma - In Stillsdisease , billbo6001@a... wrote: > Hello, > Fairly new and have not spoken up, > Had a few quick questions though, I have had still's for 6 years now and have > never been off of prednisone, Has anyone else been on it that long without > some sort of break from it? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2003 Report Share Posted June 17, 2003 Hi , Just wanted to drop you a quick reply to your mail, sorry but not much time right now but if I don't write something now I'll forget! There are a lot of people on here who've had stills from an early age even if it wasn't diagnosed. I've had it since I was three and it was diagnosed at 7. It came and went throughout my childhood and left me at age 17, but returned again at age 30. I'm now 34 and beginning to get things under control again! I'll try and tell you more when I have time if you're interested and of course we are all here to help answer your questions and support you when you need it. best wishes, Graham (34) West Sussex UK At 16:11 16/06/2003, you wrote: > Myers <adm_chick@...> wrote: >Hello everyone. My name is . I am 16 years old. I was diagnosed >with Stills Disease in April. For the past year I had been really sick. >It seemed that every other month I would get sick with flu like symptoms. I >would have extremely high temperatures, vomiting, sore throats, my whole >body would just hurt and ache. One night towards the end of March I was at >work ( I HAD a waitressing job ) and my right side started hurting. It hurt >so bad I couldn't even stand up, or drive home. I had to call my Mom and >make her come get me. Whenever we got home, I went straight to bed. I can >remember laying in bed with five quilts on top of me, crying, thinking to >myself, what was going on. My Mom came in my room at one in the morning, >and said come on, I'm taking you out to the emergency room. She said I had >that gray look to my face and my temperature was now up to 106. Whenever we >got out to the emergency room, they ran some test and took some blood. My >white blood count was extremely high, and since my right side was hurting, >they said it was my appendix and it needed to be removed ASAP. So I had >emergency surgery and my appendix was removed at 8 o'clock that morning. >After the surgery was over, the doctor came in my room and said that the >appendix was fine. But I no longer had the pain in my right side. I still >had a high temperature, and then that next day a faint rash appeared on my >face and arms. My doctor continued to run test, but couldn't figure out >anything. After being in the hospital for 2 days, having an unnecessary >surgery, and still not knowing what was wrong with me, my parents we're a >little bit frusterated. My doctor then decided it was time for me to go to >a bigger hospital 2 1/2 hours away. I was rushed by ambulance to a hospital >in Wichita, Kansas to see an infectious disease specialist. When I got >there he did more test. Another 5 days passed, and we still knew nothing. >I still had 104-106 temperatures, chills, vomiting, and the rash. The >infectious disease specialist came in and said he had done everything he >could, and what I had was not in his field. He said he was going to send a >rheumatologist in. My family and I were like a rheuma.... what?! We had >never even heard of a rheumatologist before. This was all very new to us. >She came in and did more testing. She finally gave me 800mg of prednizone >through my IV. It was like a miracle drug! My temperature was gone, and I >was ready to get the heck out of the hospital. I did a little bit of >whinning around to my rheumatologist and told her that my temperature was >gone, I was 2 1/2 hours away from my friends, I was still in school, and I >just wanted to go home. She said that I could go home, but she explained to >me I was still sick, and the prednizone was just like a band-aid. She also >said she was waiting on a test to come back, and she was pretty sure she >knew what I had. She said that she thought I had something called " Stills >disease " She sent me home on 80mg of prednizone and I had to come back in >one week. Whenever my family and I got home, we did some research on >Stills... and I was shocked. Everything that had been going on the past >year, all pointed back to Stills. It was so crazy! I knew once I did the >research, Stills was what I had. When I went back to see my rheumatologist >one week later, sure enough, she had got the tests back and Still's was what >I had. I am now on 40mg of prednizone, 400mg of plaquinel, 100mg of >trazodone(to help sleep), and tylenol3 for the pain. I am really glad I >found this, reading everyone elses post, It's nice to know there's other >people out there going through some of the same stuff and are willling to >help you with any questions. > > Myers Graham (34) West Sussex UK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Hi and welcome. You have found a great new home. I was battling the dragon for 2 1/2 yrs before I was diagnosed in October of 2002. In retro spect I think I have had it since I was 16 though. I am now 32. I found the group in April/May of this year. I am so glad that I did. They are a great bunch of people. They will become a new family for you. I am currently taking 10mgs of prednisone, 25mgs of Methotrexate, by shot, 75mgs twice a day of Voltaran and 1mg daily Folic Acid. (I think that is it, lol) You learn a lot of information from here, you no longer feel alone and as there are others out there who share this with you.. If you ever need anything all you have to do is ask. Where are you from ? We have members from all over. Hope you have a great weekend and everyone is pain free, or somewhat... Kelley in Colorado Kelleyak31@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2003 Report Share Posted July 13, 2003 Hi ita, I am sorry to say that ..no, since the onset, I have not been well enough to hold down a job. Not even part time. The years have been very difficult for me (and my husband) but still, I feel blessed. During my second remission I gave birth to a beautiful healthy baby boy (who is now almost 28) I did " babysit " between 1976 right up to 1979 when I was sent spinning back into " dragon land " with the nasty disease again. So, I also had to give up that. As I was a so called " workaholic " before the onset, it has been especially difficult for me to accept. (type A personality) At one point I told my doctor that I thought I was going insane. He told me " get out of the house, even if it's to get to a store to look around, go to a park & sit on a bench, or just go for a ride in the car...just get out. " I took his advice, and it helped me to cope. It's just been the past couple of months that I have felt like I think a human should feel like. Otherwise it would only be a rare day here and there that I felt well at all. I still have a nasty (usually night) here and there...but, mostly much better. The dragon finally got tired of me I guess. I see a doctor at the Mayo Clinic now, and he has told me that the Stills should have been treated more aggressively from the beginning. But, of course they didn't have some of the meds they do now. Anyone diagnosed with AOSD now *should* be treated aggressively as soon as possible to prevent joint damage, and hopefully years of unnecessary suffering. Take care, and hopefully get into a remission soon. ~~tricia~~ Wisconsin " there are angels among us " ***************************************************************************** -- Re: hello everyone Tricia, are you able to hold down a job? does it get that good? I really need to get out of the house! ita (Florida) --- TLC <2r1@...> wrote: > Welcome ! > > I will say that I am sorry that you have been > diagnosed with Stills Disease. > Thank goodness though you were diagnosed fairly > quick. My name is Tricia, > and I have had AOSD beginning in 1971.A remission. > Then again 1973, > another remission, then from 1979 on..no remission. > I was not diagnosed > until 1987. I'm one of the " older " members, but am > finally learning how to > live with the " dragon. " (as many of us refer to this > disease as being) I > guess > one could say I am in a " medication remission, " as I > haven't run the high > fevers in years, and have had most of the severe > pain under control for > a couple of months now. I'm still on 8 mg. of Medrol > (a little different > than > the Prednisone, but still a Steroid) 200 mg. of > Celebrex and 400 mg. of > Neurontin, plus Darvocet when needed. Xanax to help > sleep. > > Please feel free to ask questions, give opinions, > cry, laugh, and share > any family life you wish. There's almost always > someone here...even > in the wee hours of the mornings. > > Where do you live? It's just sort of interesting to > know where our members > are writing from. > > ~~tricia~~ > Wisconsin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Welcome , my name is Patty also but I use Melt here at the group. Glad you found us and hope to get to know you. I'm sure your reeling from all the posts but we always want you to know we are here and care. Look forward to knowing you more soon. Have a good day with a smile if you can. Melt ----- Original Message ----- From: " Barton " <heavenly97024@...> > Just wanted to drop anote and say hi to everyone. my name is and i have been recently diagnosed with aosd. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 Welcome , my name is Patty also but I use Melt here at the group. Glad you found us and hope to get to know you. I'm sure your reeling from all the posts but we always want you to know we are here and care. Look forward to knowing you more soon. Have a good day with a smile if you can. Melt ----- Original Message ----- From: " Barton " <heavenly97024@...> > Just wanted to drop anote and say hi to everyone. my name is and i have been recently diagnosed with aosd. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 Hi , Welcome to our group and I'm glad you found us. I often wonder how our new members find us. Where do you live? We've had a number of new members these last few months so evidently, this disease is making a name for itself. It took many years and many doctors before I was diagnosed. You are taking a lot of medications and I hope they are helping you feel better and to get around better. I am only taking Enbrel and MtX and that combination is working great for me. It took a lot of tries to get to that combination so keep trying until one works for you. That darn, sore throat is so misleading. I've had numerous cultures done with no diagnosis. I refuse them now as I know they don't show anything. Besides.......I have a very, high gag reflex and any stick with cotton on it makes me gag....... ( Take care and I hope you SSI is approved. xxoo Mi. Carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 Hi .. Welcome home.. You have found the best support group and new family.. I was diagnosed in October of 2002 after being sick for 2 1/2 yrs.. In retrospect I have had this since I was 17 I am 32 now.. Feel free to ask any questions or vent in here.. lol.. We are all here for you.. Some of us work and some do not. I am trying to work lol.. We look forward to hearing more about you.. You will learn a lot of information here. We have a lot of fun also.. lol.... There are three different chats a week, that we all get into and talk more, they are a lot of fun.. Take care.. Love Kel Kelley in Colorado Kelleyak31@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Your son can go to school. There are exemptions in most states. Where are you located? Your son is about the same age as my son and probably got quite a bit of mercury in his shots in the form of thimerosal (as did my son). Look around at 4 - 9 year old children especially males. You will be amazed at the number of children who do have some sort of disability. What an outrage!! hello everyone > good morning, > I'm new to the list.. My name is Dina and I'm a 31 yr old SAHM to a > 4 1/2 yr old son named Ben. > > Alison told me about this list and I thought it would be a great > idea for me to join. > > Here's alittle on my story(I'll try not to make it too long lol) > I had my son vaccinated really not having much of the thoughts or > information that I do now..My first red flag went up when my son had > the rotovirus vaccine at only a few months old and within a month > after him receiving it the vaccine was banned. That was my first > indication something wasnt right however,being a first time parent > my frame of mind is if I want my child in school he needs to be > vaccinated(I no longer feel this way)..the one vaccinated that I did > refuse over a year ago is the chicken pox one.. It was one before I > even did reading I was aaginst just because the disease itself isnt > dangerous except in rare situations and i feel the vaccine causes > more risks in itself > > I " ve noticed with my son for sometime now that something just isnt > right with him but have never been able to put my finger directly on > it..I did childcare for 10yrs so I have what I feel is enough > knowledge on how a child of 4 should be to some extent. > > My son I don't feel fits the normal for his age...He is VERY > hyperactive.. you cannot get him to sit still for anything, not even > to watch a tv program that he likes(which i'm sure is normal at this > age to some degree) He seems to have problems understanding > questions and directions that a child his age should when you put it > into words they can comprehend..I know kids at his as also do alot > of talking However, his talking is literally from the time he gets > up til he goes to sleep and he talks to fast like theres so much in > his head and you cant understand most of it..Its like his brain and > mouth cannot shut down for even a minute.like 10 or 20 things will > come out all at one time and this is normally how he is ..sometimes > its hard to know what is within the normal. > > IN short we took my son 2 weeks ago to a child psycologist.. she > told us that there is something wrong with Ben and that he's showing > autistic characteristics but to watch to see if he gets worse cause > nothing can be done til he goes to school.. My thought had been that > he had ADHD I didnt expect to hear this news.. The not being able to > follow commands or answer questions and the way he was talking and > talking and how was the same things I have seen > > well, Ive done reading and seen the links between ADHD and autism to > vaccines and even though my hub doesnt agree with me I " m refusing to > have Ben vaccinated anymore even if that means he cannot get into > school > > I guess you can say what I'd like to get out of this group is the > knowledge of how to get my son into school non vaccinated at this > point and any and all links between vaccines and autism and adhd > > I do not have a printer so if anyone is able to help me get all the > info I can to take the right steps on making this happen Id > appreciate it.. Alison has already offered to help me in this area > but just incase someone may have more to add with it that would be > great...I want to have as much info on paper that i can so that i > can force my hub to read it all so I wont be standing alone on this. > > Ok, Ive made this first email long enough lol > I " m looking forward to meeting you all.. I might have to go on no > mail seeing how theres alot of people but I will read the emails > daily > take care for now > Dina > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2003 Report Share Posted August 14, 2003 Sandy, I'm in Southern Cali....I know about the religious exemption but not beyong that....Yes i'm more and more convinced it was from a vaccine and i'm leaning more towards the MMR or the rotovirus one which was banned.. I have also been trying to find out more about morphine given to pg women as well.. I had morphine a few days before i had my son then they stopped it and induced me . hello everyone > good morning, > I'm new to the list.. My name is Dina and I'm a 31 yr old SAHM to a > 4 1/2 yr old son named Ben. > > Alison told me about this list and I thought it would be a great > idea for me to join. > > Here's alittle on my story(I'll try not to make it too long lol) > I had my son vaccinated really not having much of the thoughts or > information that I do now..My first red flag went up when my son had > the rotovirus vaccine at only a few months old and within a month > after him receiving it the vaccine was banned. That was my first > indication something wasnt right however,being a first time parent > my frame of mind is if I want my child in school he needs to be > vaccinated(I no longer feel this way)..the one vaccinated that I did > refuse over a year ago is the chicken pox one.. It was one before I > even did reading I was aaginst just because the disease itself isnt > dangerous except in rare situations and i feel the vaccine causes > more risks in itself > > I " ve noticed with my son for sometime now that something just isnt > right with him but have never been able to put my finger directly on > it..I did childcare for 10yrs so I have what I feel is enough > knowledge on how a child of 4 should be to some extent. > > My son I don't feel fits the normal for his age...He is VERY > hyperactive.. you cannot get him to sit still for anything, not even > to watch a tv program that he likes(which i'm sure is normal at this > age to some degree) He seems to have problems understanding > questions and directions that a child his age should when you put it > into words they can comprehend..I know kids at his as also do alot > of talking However, his talking is literally from the time he gets > up til he goes to sleep and he talks to fast like theres so much in > his head and you cant understand most of it..Its like his brain and > mouth cannot shut down for even a minute.like 10 or 20 things will > come out all at one time and this is normally how he is ..sometimes > its hard to know what is within the normal. > > IN short we took my son 2 weeks ago to a child psycologist.. she > told us that there is something wrong with Ben and that he's showing > autistic characteristics but to watch to see if he gets worse cause > nothing can be done til he goes to school.. My thought had been that > he had ADHD I didnt expect to hear this news.. The not being able to > follow commands or answer questions and the way he was talking and > talking and how was the same things I have seen > > well, Ive done reading and seen the links between ADHD and autism to > vaccines and even though my hub doesnt agree with me I " m refusing to > have Ben vaccinated anymore even if that means he cannot get into > school > > I guess you can say what I'd like to get out of this group is the > knowledge of how to get my son into school non vaccinated at this > point and any and all links between vaccines and autism and adhd > > I do not have a printer so if anyone is able to help me get all the > info I can to take the right steps on making this happen Id > appreciate it.. Alison has already offered to help me in this area > but just incase someone may have more to add with it that would be > great...I want to have as much info on paper that i can so that i > can force my hub to read it all so I wont be standing alone on this. > > Ok, Ive made this first email long enough lol > I " m looking forward to meeting you all.. I might have to go on no > mail seeing how theres alot of people but I will read the emails > daily > take care for now > Dina > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2003 Report Share Posted August 21, 2003 Thanks R Hello Everyone Hello Everyone, I noticed that we have a lot of brand new members in the past few days. Welcome to all of you. I spoke with someone earlier on the phone and she really inspired me with a lot of new ideas and also made me remember some things that I feel are important in helping all of you to reach every goal you set for yourself. First of all I hope you are taking a few moments a day to really think about what it is you want. Be sure to see details in your creation. Remember you would not build a house and leave out half the walls, so see all the details. See yourself doing all the things you would like to do and see yourself with a big smile on your face. Imagine in your mind that you are somewhere that makes you feel nurtured and joy filled. See the image as clearly as you possibly can. Focus on the joy you feel. Focus on the way it makes you feel overall Now here is what I would like you to try today. After you have taken one complete,healing Life Lift breath while you are in the " lift " portion of your breath close your eyes and grab on to the vision of your goal in your mind. Use the time you are lifting to do your visualization of your dreams and goals. Do this each and every time for 10 Life Lift breaths daily. Happy Breathing! Happy Dreaming! The result will be a happier, healthier, thinner and stronger YOU! Take good care, Rashelle What can changing the way you breathe do for you? Everything! Remember that it is oxygen that burns fat, tones muscle, reduces stress and increases strength and endurance. Want to find the fountain of youth? Then learn to breathe in the most efficient way possible with Life Lift! Click here to see why tens of thousands agree, Life Lift is the best! http://www.lifelift.com Life Lift is the Original Aerobic Breathing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2003 Report Share Posted November 5, 2003 Lee, Its Gaz Rothwell how are you mate im at 5 at the moment ext 2478, give us a bell and we can mull over a few thoughts, im in the same boat looking at the transition to a different and more interesting career, see you soon. Gaz Rothwell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2003 Report Share Posted November 5, 2003 If you want to contact me off board LEE and other MILITARY MEDICS please do so, cannot post the offer publicly. Regards W Clyde, Medic CLYMED@... Hello Everyone Hello guys n Girls thanx to everyone allowing me to be your new rookie on the site. My full name is Lee O'Shea am currently serving with the Army, have been serving now for over 12 years now looking for new challenges. Would love to start in the offshore ind and start my course 8th dec 19 dec . Any member out there who is currently a Medic in the offshire world would love to have you aboard as a contact. Well hope some one emails me to say hello am alittle bit of a rookie to this so bear with me thanx again and big thanx Ian for putting me in the right direction cheers Lee O'Shea _________________________________________________________________ Hotmail messages direct to your mobile phone http://www.msn.co.uk/msnmobile Member Information: List owner: Ian Sharpe Owner@... Editor: Ross Boardman Editor@... ALL list admin messages (subscriptions & unsubscriptions) should be sent to the list owner. Post message: egroups Please visit our website http://www.remotemedics.co.uk Regards The Remote Medics Team Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2003 Report Share Posted November 6, 2003 Cheers mate will do have lots of Medic friends you may know will chat when you are onshore laters lee >From: " Clyde, Medic " <CLYMED@...> >Reply- > " ' ' " >< > >Subject: RE: Hello Everyone >Date: Wed, 5 Nov 2003 20:11:49 -0000 > >If you want to contact me off board LEE and other MILITARY MEDICS please do >so, cannot post the offer publicly. > > >Regards > > W >Clyde, Medic >CLYMED@... > > > Hello Everyone > > >Hello guys n Girls thanx to everyone allowing me to be your new rookie on >the site. My full name is Lee O'Shea am currently serving with the Army, >have been serving now for over 12 years now looking for new challenges. >Would love to start in the offshore ind and start my course 8th dec 19 dec >. > >Any member out there who is currently a Medic in the offshire world would >love to have you aboard as a contact. Well hope some one emails me to say >hello am alittle bit of a rookie to this so bear with me thanx again and >big thanx Ian for putting me in the right direction cheers Lee O'Shea > >_________________________________________________________________ >Hotmail messages direct to your mobile phone http://www.msn.co.uk/msnmobile > > > > >Member Information: > >List owner: Ian Sharpe Owner@... >Editor: Ross Boardman Editor@... > >ALL list admin messages (subscriptions & unsubscriptions) should be sent to >the list owner. > >Post message: egroups > >Please visit our website http://www.remotemedics.co.uk > >Regards > >The Remote Medics Team > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Blessings to you also Sweet Rashelle With lots of love r Hello Everyone Hello Everyone, I am getting ready to walk out the door to go to the airport but I wanted to say hello to all of you before I leave. I hope to have my computer available when I arrive at my destination, but I have learned that things do not always go as planned so I will say Happy Holidays, to all of you. I hope you all have the most wonderful holidays imaginable. This is my favorite time of year. People seem to find the best in themselves at this time of year. We are moving our location of our new Health Center so I expect to have my hands full for the next week or so. We had some serious leaking in our other location so we are hoping the new place will be better. I am off but I will be thinking of you and wishing everything good for each of you. Blessings to all of you and to all those you hold dear. Rashelle The Body You Have Always Wanted is Coming Soon! What can changing the way you breathe do for you? More than you can imagine! Remember that it is oxygen that burns fat, tones muscle, reduces stress and increases strength and endurance. Learn to breathe in the most efficient way possible with Life Lift! Click here to see why tens of thousands agree, Life Lift is the best! http://www.oxygenlift.net Life Lift is the Original Aerobic Breathing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Hi Tawney, Is your computer fixed? I will call you this weekend before we go! I called last week because Mark was going to walk you through your computer stuff. We'll talk soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Hi Crista, Yes, My computer seems to be doing fine so far. It was not sending or recieving emails and said my email was bouncing but that is no longer happening. Tell your husband thanks for trying to help. I would love to talk before you go to Utah. I will be home all day today and tomorrow until late afternoon. This weekend I work but if we haven't talked by then I will try to give you a call. I am having a lot of trouble with Tyler and the darn brace right now. I made an appointment with our local doctor for next Wed. I am going to beg him to put Tyler in another cast. He is not even wearing his brace right now since it is so tight. He cant even breathe in the thing. If nothing else I hope he will fit him for a new brace since we cannot go to Utah at this time. Our appointment with them is sometime in March. I am so scared what his curve is doing without any support but it hurts him and he is so miserable. It just goes to show it is a constant battle with these doctors. They feel his curve is low enough to maintain with a brace but we dont want to just maintain the curve we want to keep correcting. He did so well in the cast and was so happy. His back does look great but it is still a 25 degree curve and they say usually anything over 20 is progressive. Well Lets talk. Take Care Tawney Quote Link to comment Share on other sites More sharing options...
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