New Mum being failed by NHS

[Guest guest]

Hello all.

I have been directed to this site in the hope that I can get help for my health

issues.

I will give you a brief history of events and would be extremely grateful for

your feedback as to what action I should take regarding booking appointments and

medicating.

I risk sounding like a loon but first I will stress the urgency and desperation

to get this matter resolved, I am a new Mum with an 8 month old beautiful boy

but my life is crumbling around me due to my hormonal issues. Everyday I am

getting worse and worry that I will not be able to care for my son anymore if I

don't get help.

So here goes:

Felt ill with various symptoms for 7 years. Tiredness, anxiety, headaches, GI

issues, weight loss, palpitations.

Gave birth in May 2011. Good pregnancy and delivery.

Two months post-partum became even more ill. Diagnosed with Non autoimmune

Thyroiditis. TSH 0.08 was told to 'ride it out' My symptoms were the same as

they had been for 7 years!

November 2011, admitted to assessment unit at hospital as I was so ill. Cortisol

checked at 9 am 200 nmol/l. Stimulation test performed baseline 300 (highly

stressed at this point) raised to 560nmol/l (range >550) so just over cut off.

ACTH 11.6 (range >10) I was promptly discharged but not investigated for

secondary adrenal insufficiency .

December 2011, diagnosed Hypo TSH 17.0 was put on 25mg Thyroxine

January 2012 Stopped taking Thyroxine due to it making me bedbound (felt like I

was being poisoned) TSH was at this point 6.95. My cortisol level was 156

nmol/l.

I asked if I could be put on something else as I can not tolerate Thyroxine and

was told that there is nothing wrong with my TSH at 6.95 and that I didn't need

to be on anything anyway.

I have now been discharged by the NHS Endo and my GP said he won't prescribe

anything other than Thyroxine and I don't even need to be on that. My TSH is

still 6.95.

I have overlapping thyroid/adrenal symptoms and have now just been left to

suffer. I am really frightened due to my responsibilities as a parent and how I

will be able to manage if I carry on becoming worse.

I have ordered a full thyroid panel including antibodies, Reverse T3, adrenal

panel and Vit D tests by Genova and will hopefully receive these tomorrow.

I am aware that Dr P has no appointments left in Yorkshire (where I am) and I

simply can't go further with the way I feel and of course lugging a hefty 8

month old around.

So I would be really grateful for any advice you could give me, where should I

go from here?

Many Thanks