Re: Incase I don't get any help..

[Guest guest]

Have you tried multi dozing the nutri adrenal?

Or trying a cortex only extract such as the one sold by mandimart.co.uk?

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> I started on Nutri adrenal extra on Wednesday with the plan of starting on

Nutri Thyroid in a week or so and have had positive results but only for a few

hours, after this I crash badly.. worse than I have ever felt before. By tea

time I am in a mess, stomach pains, nausea and leg and large muscle group pains.

I know its not the supplement as it really does make me feel good for

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[Guest guest]

> I'm trying to get in with an private Endo on recommendation from here and there is a possibility I could see him tomorrow. I'm really wishing I do as I have had an awful weekend.

Hi ,

is this an endo from Sheila's list, or did somebody recommend him? Just because he is private does not mean he will automatically be good.... many are no better than the last one you saw. - What happened to your referral to Dr. Skinner?

love,

[Guest guest]

Could the nutri adrenal be revealing more of a hypothyroid condition?

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[Guest guest]

Hi all, yes its a dr on shelias list. At the moment I'm trying to get in with

anyone who will see me. Regarding upping the dose I'm going to give that a go, I

don't know whether my symptoms of hypo are becoming more evident now or not this

is why I want to get on with someone soon.

I was really hoping to see Dr Skinner and have had a referral faxed over to them

this morning but obviously this all depends on the outcome of all the rubbish

that is happening to him this week.

Fingers crossed eh!

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> Could the nutri adrenal be revealing more of a hypothyroid condition?

[Guest guest]

....At the moment I'm trying to get in with anyone who will see me.

I would not do that, .... do your homework first. Even the endo's on Sheila's list are only there because they seem sympathetic to either prescribe natural thyroid or at least a combination of T4/T3... most endo's are not willing to do either.... but it is still pot-luck as to whether they are good doctors. There is no guarantee and some of them have appalling bedside manners. Your first priority is not whether an endo will prescribe T3 or NDT, you need one who is knowledgeable in recognizing a potential adrenal insufficiency. Most endos would probably diagnose you hypothyroid and treat you with Levothyroxine, because it is pretty clear from past results that you are hypo, but few will recognize that there is something fishy going on with your adrenal function.

..... so first google each endo you are considering to approach and if their expertise were mainly in diabetes, forget it.

What you need is a knowledgeable doctor who will check you over and establish what is wrong as opposed to one only looking at a computer screen. I am sure both Dr. Skinner or Dr. Peatfield would be able to sort you out, but I gather Dr. P's immediate schedule is rather full.... – so let's hope that those ridiculous charges against Dr.S. will get dropped on Wednesday.

Best wishes,

[Guest guest]

Just a quick thought - if you're researching doctors - most won't/aren't allowed to treat adrenal problems. I think I'm right in saying Dr Skinner isn't allowed to treat adrenals any more (or at least not with hydrocortisone). The only person in the UK that can do this, as far as I know is Dr Peatfield - and then you'd need to be prepared to self medicate. The other option is Dr Hertoghe who knows about - in Belgium, I think. I don't want to make problems but it's best that you're aware of the difficulties getting adrenals sorted. Best, Alison>> > ...At the moment I'm trying to get in with anyone who will see me.> > I would not do that, .... do your homework first. Even the

[Guest guest]

I think there are possibly some others in France, but I really don't know of

anyone in the UK who will treat with HC.

Someone on TPA sent her son to someone in London, and i believe he was given

pregnenolone for his adrenals (maybe that'd be enough?)

>The other option is Dr Hertoghe who knows about - in

> Belgium, I think. I don't want to make problems but it's best that

> you're aware of the difficulties getting adrenals sorted.

There's also his sister, too, but i'm not sure if she still takes patients. Dr

Thierry Hertoghe is excellent. In a league of his own. I'm not sure what the

waiting time would be- you'd need blood tests, which the belgian lab sends over

and then you send back (it's prepaid). it'd probably be a few month waiting

list. the cost isn't that dear itself - about 220E an hour to see an associate

of TH, and 330E to see TH and an associate (he never consults alone). I paid

£150 to see a rude man in this country who just told me all my problems were

because i was too fat! (you see, i had these problems before i was fat, but he

ignored that). So 330E to see someone who will help you, is worth it compared

to paying £150 to someone to insult you! The cost mounts up from travelling

and staying there. The lab tests are surprisingly cheap, about 400pounds for

about 40 or so tests, including lots of urine testing. i'm not saying that £400

is not a lot of money, but you get an awful lot of tests done for that price.

I am pretty sure that it's recommended to always take DHEA with HC, to counter

the catabolic effects. I took HC without DHEA and i felt much better with DHEA.

I think DHEA on it's own reduces the effect of cortisol/HC? (may be wrong tho)

Sorry i can't help more.

Chris

[Guest guest]

I just remembered, there is also this place in London, they treat with bio

identical, but i have no idea what their stance is on using HC. Though of

course, it's best not to use HC unless you have to...

http://www.wimpoleskincare.com/Treatments/bio-identical-hormones.html#

I should imagine they'd want to do a few tests

The site does refer to Adrenal problems though

Adrenals dysfunction symptoms

Fatigue, burn-out syndrome

Difficulty in copping with stress, anxiety, panic attacks

Sore throat, flu-like symptoms, fever

High or low blood pressure, or drop in blood pressure when standing up

Low cholesterol

Low blood sugar (mood swings, aggression)

Dizzy spells

Stiff and painful joints

Craving for sugar or salt

Premature ageing, loss of face volume, weight loss

Gastrointestinal inflammation, Irritable Bowel

Allergies to food or medications

Asthma

Eczema

Loss of hair and skin pigmentation (Vitiligo)

Loss of libido

Benefits of Adrenals treatment

Restore energy levels, eliminate joint pains, weight gain, calm an able to cope

better with stress, improves allergies, skin eczema and asthma. Eliminate joint

pains, improves memory. Stops low blood sugars and low blood pressures. Well

being factor.

To book a consultation regarding our bio-identical hormone treatments please

call The Wimpole Medical Centre 0207-935-8277 now or e-mail us through our

enquiry form.

[Guest guest]

Hello ,

I think what you are talking about is the 'unrecognised by

mainstream medicine' adrenal fatigue, or low adrenal reserve. Some doctors are

aware that this condition exists and will treat it, but the majority of doctors

do not test for this because they have only been taught about adrenal

insufficiency, which is 's Disease (too little to no cortisol secretion),

or Cushing's Syndrome (too high a level of cortisol secretion). Doctors,

including Dr Skinner, will treat these adrenal diseases. A doctor has no

option.

So long as members get their cortisol and DHEA tested using

either the 24 hour salivary adrenal stress profile - or the 24 hour urine

adrenal stress profile, or the serum cortisol test to check their level of low adrenal

reserve, and correct this with the appropriate recommended treatment (see the

FILES section of this forum, and in there, open the 'ADRENALS' folder) - it can

be extremely easy to treat. There is little difficulty in treating this

condition as many of our members are already very aware.

Luv - Sheila

Just

a quick thought - if you're researching doctors - most won't/aren't allowed to

treat adrenal problems. I think I'm right in saying Dr Skinner isn't allowed to

treat adrenals any more (or at least not with hydrocortisone). The only person

in the UK that can do this, as far as I know is Dr Peatfield - and then you'd

need to be prepared to self medicate. The other option is Dr Hertoghe who Chris

knows about - in Belgium, I think. I don't want to make problems but it's best

that you're aware of the difficulties getting adrenals sorted. Best, Alison

[Guest guest]

What do I think, I think that you should stick with one medical

professional at a time otherwise, you are probably going probably find

you are getting conflicting information from them. Seeing Dr ***** in Yorkshire

seems to have gone well and he has said pretty much what I would have expected

him to say, even down to the comments he made about your adrenals. The fact is,

that NHS doctors DO NOT recognise low adrenal reserve (adrenal fatigue). They

recognise ONLY 's disease (too little to no cortisol secretion) or

Cushing's Syndrome (too high a level of cortisol production), but have no

recognition of any of the stages leading up to that. That is why he has

dismissed an adrenal problem.

You should NOT stop your Nutri Adrenal Extra, and if you went to

see Dr Peatfield, he would tell you exactly the same thing. He would encourage

you to increase your dose until you find the one that starts to make you feel

better. You should take high doses of vitamin C (2/3000mgs), Selenium, Vitamin

B Complex, zinc 15mcgs and any other supplements that your body is lacking.

Stay with this doctor and follow his recommendations, I would

not have recommended him to you if I didn't know he is one of the best.

You are very lucky to have got to see him so very quickly.

If, after you have tried his particular protocol of T4 only for

a while, then go along with him in trying T4/T3 combination or natural thyroid

extract. This doctor has made lots of patients well again.

Luv - Sheila

He also seemed willing if needed to prescribe T3 or dessicated if levo doesn't

make me feel any better, he said that my levels did drop with T4 so my body can

convert T4 into T3.

I do feel good about the appointment as he seemed extremely open about things

in the thyroid department, but like I said he did say my adrenals were ok. I do

think that if my 24 hr cortisol comes back low that he would be willing to give

me HC.

Think I may still go ahead and try and book an appointment with Dr S (if I can)

or Dr P just for a second opinion as I now have a terrible distrust of the

medical establishment so I'm never totally convinced when I see someone.

I think I'm going to see how I get on with the liquid levo for few weeks but

try and book in with one of the above in the meantime, what do you reckon?

[Guest guest]

Thanks Sheila,,

I was so lucky to get in with him privately so quickly and he really was a very

warm man. He rang me in the morning and said he could see me in the afternoon.

He explained to me that my case is slightly more complicated as I seem to be in

the full swing of my thyroid going up and down so dosage will be difficult at

the beginning. At the moment I feel like a have hands around my throat and a

swelling type feeling so I guess my antibodies are in attack mode at the moment.

Am I right in thinking that once the levo kicks in the antibodies might ease up

and settle down a bit or will taking the levo as well cause me to have hyper

symptoms? I am terrified of going hyper again as my abdomen pain becomes

terrible and I get awful panic attacks.

My TSH seems to be be up and down from week to week you see.

I've got another question if you don't mind? My muscles pains are bad at the

moment and Dr **** told me that it would be because by type2 muscles have been

damaged due to the hashis and that rest assured once we get the right level they

will heal. The thing is that most of my pain is on the right side of my body..

in a morning and on an evening I get bad pains in my right shoulder going up

into my neck and head. I was sat with my head back on the sofa yesterday and the

pain got pretty bad, shot up into my neck and back or my head and caused

numbness and dizziness. I'm confused as to whether this is a thyroid muscle

issue or whether I actually have a trapped nerve/muscle or inhibiting

circulation in an artery from maybe lifting my baby or something? Any thoughts?

The reason I'm wondering is because my dad was diagnosed with vertigo and it

turned out to be a muscle putting pressure on an artery in his neck. With a bit

of physio and exercises to do he was sorted.

Its so easy to put every ache and pain down to the thyroid isn't it and hard to

know the difference!

x

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> What do I think, I think that you should stick with one medical professional

> at a time otherwise, you are probably going probably find you are

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[Guest guest]

Hi ,

Fantastic - How did you manage to get such a quick appointment? Did you go private?

I would second everything Sheila has said, and there is no point in seeing different specialists at this stage. You've got to start somewhere and trust someone; I know of Sheila's endo, and he must be good, else Sheila would not use him. So that's a good start. I am glad you chose him. To be taken seriously after all the fiasco with your previous doctors must have been such a relief! ... now you just have to find yourself a better GP, and you are all set up

At least you now have a diagnosis of Hashimoto's and I trust that Dr. XXX understands enough about adrenals to have ruled out primary 's on the basis of your two SST results. This was the most important part – any other possible condition (if there were one) will come to light sooner or later, but primary AD had to be considered first and ruled out... there were so many discrepancies between your various lab results and the way you are feeling, that it needed a knowledgeable doctor to take responsibility and look at all the results AND YOU and to make a decision.

I do agree, however, with Sheila about taking the NAX and all the other supplements. Carry on doing what you were doing with those, particularly if your adrenal profile came back low. Doctors generally think that vitamins and minerals are a waste of space and that weak adrenal function does not exist – we disagree with both views. Just don't mention supplements to the doctor, but carry on. It won't influence any lab results he is likely to order. If you ever went to see Dr. Peatfield in the future, he would also tell you to keep on taking NAX and all the rest of it. – other than that, see where the treatment with liquid Levo takes you. I have no experience with that and don't know anybody who takes it, but it is worth a try. If it does not work, then at least Dr. XXX is prepared to consider a combo of T4/T3 or NDT for you (if it were my choice, I would opt for NDT) – and it is very reassuring that he would be prepared to do that. Even if you had to buy NDT yourself, it would not break the bank – the most important thing is to have a doctor who takes you and your concerns and worries seriously. If necessary, you may have to do a bit of trial and error re your thyroid medication... and that is ok when a doctor accepts that one treatment might not fit all and will work with you to find the one that is right for you. Sounds like you've found yourself an endo who will do just that .....now go and find yourself a decent GP <g>

Love,

[Guest guest]

Forgot to mention.... are you aware that now that you have been officially diagnosed 'hypothyroid', you are entitled to free prescriptions for life, ? Your GP or endo needs to give you a form to fill in and in due course you will be receiving a card, stating that you are exempt from all NHS prescription charges.... which will come in very handy, as it does not only free you from charges for thyroid meds, but ALL medication.

love,