advice please

March 6, 2003

In a message dated 3/6/2003 12:59:28 PM Eastern Standard Time,

_Schulte@... writes:

> How did you go about selecting a school for your daughter.

That's not allowed here. And as you mentioned, teachers come and teachers go

.... there is no guarantee your child will keep the teacher you selected if

you were allowed to. Classes are moved building to building, depending on the

enrollment numbers. So kids in self contained classes here can go to school

in a different building every year, even though their placement has not

changed.

Cheryl in VA

March 6, 2003

In a message dated 3/6/03 5:00:25 PM Central Standard Time, wildwards@...

writes:

> > How did you go about selecting a school for your daughter.

>

> That's not allowed here. And as you mentioned, teachers come and teachers

> go

Well I think, as has been the case with us, that if your school is not set up

to provide the services the child needs and you decide that some other school

is a better option, we got to decide. Of course it was a 'team' decision,

lol.

From our experience when we decided that EMHS would not be able to provide

what needs we basically needed to come up with and stress exactly what

we felt she needed (in her case, stressing communicatio nskills and immersing

her in ASL) and show them that the best place for that is at MSAD. (the

stinker stays two nights a week in the dorms now, she'd stay the whole week I

think if we'd let her, and we're concidering it)

And yes, we decided not to persue continuing edcuation in our home district,

mostly be cause we were sick and tired of all the crap. Much better to move

on to where your child is excepted and challenged. :-)

Small schools do have some advatages. hehehe

Joy

March 6, 2003

No one said anything about " restricting " a child to his/her neighborhood school.

That is the place to begin thinking of placement. Another school is an

extremely restrictive placement according to federal regulations. They have a

hierarchy of placement options that anyone can read on an IEP form from least

restrictive, i.e. regular classroom with supports and services, to the most

restrictive which is an institutional setting.

Elaine

Re: advice please

Elaine writes: >>>>>>>>>>>

The law states that the child should be served in the school he/she

would attend if he/she

were not handicapped. It also states that a FAPE (free and appropriate

public education) be

in the LRE (least restrictive environment). That is lawyer and eduspeak

for their

neighborhood school in the regular classroom with appropriate aids and

services unless it has

been proven that the child cannot benefit from that placment.

<<<<<<<<<<<,

I believe that law and reality have to separate here. Our children are

individuals (maybe we are as well?). The assumption that your child

must be restricted to the school she/he would have attended if she/he

were not handicapped can be very wrong. I believe that we need to seek

out the best environment to educate our children, whether it is in the

local district or somewhere else. Back in what some consider the dark

ages, we chose the class environments for our daughter (she, not he) by

choosing the teachers and programs that we thought would teach her to

her limits.

No, she never went to school in her home district. She usually had an

hour bus ride each way to school. My only angst tonight is: " Where is

my email. " She hasn't written me today, but maybe she's mad because I

didn't directly address the email she sent me on Sunday. I regard her

education as a success and have great respect for the teachers who had

the patience to teach this wonderful and awful chld all that she could

learn.

Your child will be different. You and your co-parent (if there is one)

may be different. Your school district may be different. Given the

child we had and the school options we had, I have no regrets about

Jan's education .. even when we backed down a couple of times when it

was clear that the environment we wanted her in was not shared by the

teacher who would have her.

Rick ... proud dad of Jan .. 30 years old

March 6, 2003

Jan's entry placement in public school was negotiated between her parents and

the head of special education for our half of the county. That was at the first

grade level. After some advice from a state advocate, we went to the top and he

presented every program that was available and we (with him) made a choice of

teacher, school, and program.

Once Jan got into the school system and was known, we used networking and the

knowledge of the current teachers about where to go next. Jan was in sped

classrooms for home room but included in other activities. She would stay three

to four years with the same teacher as a few faces changed every year.

A few other parents were doing the same as we were and we exchanged notes.

Also, the good teachers who in the profession were known and we'd pick the ones

that we (and the IEP team) thought would be best whenever there was a

transition.

It didn't work perfectly, but we only had to change one program. That was Jan's

first middle school experience. She handled it well, but the class was totally

inappropriate and the teacher handled the issues very poorly. Jan was out of

there and into another class by Thanksgiving.

Sure, we lost once in a while, but generally Jan was taught forward from

wherever she was and kept challenged. They put up with her stop/drop/flop

behaviours and her testing authority without too much need for parent

intervention. In the end, they were captivated by her willingness to work and

her perky personality. In short, the person who made this all work was Janet.

Now this is a while ago, but the principles must apply today. There are

multiple opportunities out there, even within the scope called inclusion. You

should be able to find a placement for your child in a class where the child is

wanted and the teacher motivated by the challenge of teaching to other than the

IQ norm.

Rick

Rick .... dad to

Schulte wrote:

> Rick-

>

> How did you go about selecting a school for your daughter. Each year, there

> are new teachers and new situations. The child almost has to settle in with

> a teacher before it becomes apparent how the child will get along with a

> specific teacher/class. Did you ask the teachers specific questions before

> the school year started to test the waters?

>

> Schulte

March 7, 2003

In a message dated 3/6/2003 9:55:29 PM Eastern Standard Time, JTesmer799 writes:

> And yes, we decided not to persue continuing edcuation in our home district,

> mostly be cause we were sick and tired of all the crap.

> Much better to move

> on to where your child is excepted and challenged. :-)

>

> Small schools do have some advatages. hehehe

I know that many small systems do combine efforts and create " programs " that are

shared by the systems. That's great if that is what the parent wishes. Nothing

wrong with combining financial resources and efforts. But what we see most of

the time is what a parent on this list just recently posted .... we have a " ds

program " where we will send your child. Another city, another name, but it is

still the same thing ... " we won't consider any placement other than a more

restrictive one where we warehouse children with particular disabilities. Your

kid has DS ... then your kid goes here. "

It all relates to choice. You are lucky in that you are supported in your

choice. Most of the time more restricted placements are not challenged by

school system personnel. Rarely do parents have to fight to place their child

in a self contained environment.

Elaine explained the way a team should consider placement. The law dictates

that the team work down the continium in their consideration. The law dictates

that the team throughly consider each placement in the process of determining

what is appropriate for a student. The reason the law dictates this process is

because in the past it was not done this way. In the past students were bused

and housed in schools far away, no matter what their skills, abilities, or

needs. No matter how complex or how simplistic those needs were. No matter what

their parents wanted. In the past they were not given access to a meaningful

curriculum. In the past their individual needs were not considered or met. That

shouldn't happen now. If you don't want your child spending hours every day

riding buses, if you don't want your child going to school in other school

districts, if you don't want your child being isolated from their neighbors and

siblings, if you don't want child learning a teacher dictated curriculum ...

just say no. The law supports your right to do so.

Cheryl in VA

March 7, 2003

In a message dated 3/7/03 7:18:22 AM Central Standard Time, Wildwards writes:

> It all relates to choice. You are lucky in that you are supported in your

> choice. Most of the time more restricted placements are not challenged by

> school system personnel. Rarely do parents have to fight to place their

> child in a self contained environment.

>

Actually Cheryl, the usual choice would be the local schools. We did not opt

for that choice, it's bacially the choice that our school offers. Since our

school does NOT provide (or at least have set up) a way to educate our child,

our options were to have them set up a program, btdt, or send her someplace

else, they do NOT combine with another district for sped classrooms, we would

have had a choice after looking at all local schools and deciding which we

felt would be able to provide her with what she needed. Since the schools

that they concidered options didn't provide what we were looking for, we

rejected them. BTW, we were looking for a program that would provide

immersion in communication skills, espeically ASL. Rochester could provide a

program which uses ASL but it wasn't what we wanted.

we would have insisted on this placement we got even without the situation

that occured that made the school give us what we were looking for without

even batting an eye. You'd have to know this principle to know that

'normally' he'd be working against the type of placement because of cost of

transprotation. (hey i've delt with him for years, lol, I'm sure you've met

a few of his fellow administators in your time, lol) What we got this time

after my statment stressing improving communication abilties based on the

recent 'situation' was absolutely, absolutely. (and yes the 'situation' was

not one I'd want anyone to have to worry about)

Oh and yes it was a MORE restrictive program then 'they' were thinking of,

since it's a deaf school. LRE is of course where you feel your child can

learn the best, as we all continually stress. For some it's with normal

peers, for some it's trying that and deciding that smaller classes are

better, and for some they feel a self contained room is best from the start

and so on and so on. But no matter which type of setting a parent chooses or

agrees to, it can always be changed for a differnt setting as time passes.

And the plus is is thriving in her more restrictive setting, rather then

putting her in a classroom in a large district like Rochester where she'd

probably end up with kids with problems that I don't want her to immitate,

she's in a classroom where that isn't a hugh problem. (now if only there

were a coupld girls in it) it's a sped room, she does get interaction with

peers on nights she stays in the dorms.

They also participate in field trips that the other middle school classes go

on, in fact they're going skiiing next week. YIKES. I really can't see her

skiing because to me she's unsure of her balance. LOL but we'll see what

happens.

Joy

March 9, 2003

Thank you very much to everyone who has taken the time to respond to my post

regarding my son Chase and his placement for kindergarten next year. I have

received a lot of valuable information from you and it is greatly

appreciated. I will be sure to let you know how everything progresses once

the meetings begin.

Carolyn

July 1, 2003

I'd say ditch the ketchup if you can. (Some will say it's minimal,

but I don't like to use it.) It has a lot of sugar in it, which will

wreak havoc on your blood sugar.

The meals where you are having " real " food (not myoplex), you aren't

eating a carb portion. Try adding a piece of fruit, some brown rice,

oatmeal, etc.

-JB

> I am 34 years old, 5ft 4 in, 224 lbs.

> 117 lbs of fat & 107 lbs of lean.

> Chest 46, waist 46, hip 48

> fitness goals-

> loose the stomach!!!!!

> fit into a size 12 or smaller (I'm an 18 now)

>

> I do BFL work out.

>

> Here is what I ate yesterday.

>

> Myoplex Lite RTD Chocolate - 190 cal, 2.5 fat, 20 carb, 25 prot.

>

> 4 egg whites (scrambled in Pam) - 324 cal, 0 fat, 8 carb, 68 prot.

> 1 egg yolk (Scrambled in Pam) - 160 cal, 10 fat, 1 carb, 6 prot.

> 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

> 2 cups broc (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

>

> Myoplex Lite Bar Peanut Caramel- 180 cals, 4.5 fat, 26 carbs, 15

prot.

>

> 1 package Tuna - 105 cal, 1.5 fat, 0 carbs, 23 prot.

> 2 cups Green beans - 60 cal, 0 fat, 12 carbs, 3 prot.

> 1 boullion cube (to season the beans) - 5 cal, 0 fat, 1 carb, 0

prot.

>

> 1 portion Shrimp (boiled) - 240 cal, 0 fat, 0 carbs, 20 prot

> 2 cups brocolli (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

> 1/4 tsp horseradish - 1 cal, 0 fat, .25 carbs, 0 prot.

> 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

>

> Myoplex lite poweder - 190 cal, 1.5 fat, 20 carbs, 25 prot

> 2 TBS Peanut Butter - 200 cal, 16 fat, 7 carb, 7 prot.

>

> daily total - 1900 cal, 36 fat, 133 carb, 197 prot

> average per meal - 320 cal, 6 fat, 22 carb, 32 prot

>

> I also had 1 bottle of Results Thermoginic

> & 132 oz of cold water

>

> Thanks Dani

July 1, 2003

I don't do calorie counting but since you did I suspect that 1900 is

way too many calories to lose weight on since some of the weight you

speak of is fat and this shouldn't be included as part of your lean

mass that needs feeding. The 200 calories in the peanut butter can

be easily omitted in favor of a tablespoon of flax oil instead.

There are protein bars out there that have a better mix of protein

and carbs than the Myoplex Lite. Try the EAS Carb Sense or low carb

bars and a fruit instead. Hope this helps.

Stasia

July 1, 2003

You might want to double check the calories you have for eggs and egg

whites. I believe egg whites only have about 20 calories a piece and one

whole egg has about 80. 324 calories for 4 egg whites would be way off

Beth

advice please

> I am 34 years old, 5ft 4 in, 224 lbs.

> 117 lbs of fat & 107 lbs of lean.

> Chest 46, waist 46, hip 48

> fitness goals-

> loose the stomach!!!!!

> fit into a size 12 or smaller (I'm an 18 now)

>

> I do BFL work out.

>

> Here is what I ate yesterday.

>

> Myoplex Lite RTD Chocolate - 190 cal, 2.5 fat, 20 carb, 25 prot.

>

> 4 egg whites (scrambled in Pam) - 324 cal, 0 fat, 8 carb, 68 prot.

> 1 egg yolk (Scrambled in Pam) - 160 cal, 10 fat, 1 carb, 6 prot.

> 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

> 2 cups broc (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

>

> Myoplex Lite Bar Peanut Caramel- 180 cals, 4.5 fat, 26 carbs, 15 prot.

>

> 1 package Tuna - 105 cal, 1.5 fat, 0 carbs, 23 prot.

> 2 cups Green beans - 60 cal, 0 fat, 12 carbs, 3 prot.

> 1 boullion cube (to season the beans) - 5 cal, 0 fat, 1 carb, 0 prot.

>

> 1 portion Shrimp (boiled) - 240 cal, 0 fat, 0 carbs, 20 prot

> 2 cups brocolli (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

> 1/4 tsp horseradish - 1 cal, 0 fat, .25 carbs, 0 prot.

> 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

>

> Myoplex lite poweder - 190 cal, 1.5 fat, 20 carbs, 25 prot

> 2 TBS Peanut Butter - 200 cal, 16 fat, 7 carb, 7 prot.

>

> daily total - 1900 cal, 36 fat, 133 carb, 197 prot

> average per meal - 320 cal, 6 fat, 22 carb, 32 prot

>

> I also had 1 bottle of Results Thermoginic

> & 132 oz of cold water

>

> Thanks Dani

>

July 1, 2003

---HI there..most of my meals are like 320 to 350

calories..although..i do not count calories..I just know this. and i

have lost weight on this plan. so like I probably eat 2000 calories a

day. but I just know this off the top of my head..I don't count

it..but I do the palm fist method. I also use 2 tbs peanut butter a

day. usually in my shakes in the morning.

but one thing..where is your carb portion? all I see is veggies. that

might make you crazy after a while. can you really eat like that the

rest of your life? what carbs do you like? you do not need to cut

carbs to loose the fat..you need them. I am the same as you..five

foot 4..started at 230 lbs..cept I don't know how much I weigh now

cause I don't weight myself. I just take pics to see the difference.

are you just havin hecka amounts of veggies to be your carbs? you

really don't have to do that. I did that and I hated it..it drove me

crazy and I gained weight back tryin to cut out carbs. I am just

worried you will get very bored with that.

And myoplex lite bars are not soo balanced actually. you might feel

better eating a protein bar with less sugar in it..and adding a fruit

with it. most of the carbs in myoplex lite bars are from sugar..which

you don't want..and that makes me soo mad the EAS makes bars like

that! shame on them..lol

at walmart you can get bars called EAS advantage carb sense bars..I

think they are called..they are pretty cheap..low in sugar..and you

can just add a fruit to them. make sure on bars the carbs are not

sugar carbs..and then you have a good choice there.

But..hon...you don't have to count calories..don't feel like you

do..if it stresses you out..just try the palm fist method..if that

works for you. not everyone can keep their portions down that way.

have you tried to do palm fist? how has the worked for you?

I recognize your name from here before..have you been here before?

I hope I made sense! lol

Kathi

WHELLOOOO from the world below!

In , catnip3333

<no_reply@y...> wrote:

> I am 34 years old, 5ft 4 in, 224 lbs.

> 117 lbs of fat & 107 lbs of lean.

> Chest 46, waist 46, hip 48

> fitness goals-

> loose the stomach!!!!!

> fit into a size 12 or smaller (I'm an 18 now)

>

> I do BFL work out.

>

> Here is what I ate yesterday.

>

> Myoplex Lite RTD Chocolate - 190 cal, 2.5 fat, 20 carb, 25 prot.

>

> 4 egg whites (scrambled in Pam) - 324 cal, 0 fat, 8 carb, 68 prot.

> 1 egg yolk (Scrambled in Pam) - 160 cal, 10 fat, 1 carb, 6 prot.

> 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

> 2 cups broc (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

>

> Myoplex Lite Bar Peanut Caramel- 180 cals, 4.5 fat, 26 carbs, 15

prot.

>

> 1 package Tuna - 105 cal, 1.5 fat, 0 carbs, 23 prot.

> 2 cups Green beans - 60 cal, 0 fat, 12 carbs, 3 prot.

> 1 boullion cube (to season the beans) - 5 cal, 0 fat, 1 carb, 0

prot.

>

> 1 portion Shrimp (boiled) - 240 cal, 0 fat, 0 carbs, 20 prot

> 2 cups brocolli (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

> 1/4 tsp horseradish - 1 cal, 0 fat, .25 carbs, 0 prot.

> 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

>

> Myoplex lite poweder - 190 cal, 1.5 fat, 20 carbs, 25 prot

> 2 TBS Peanut Butter - 200 cal, 16 fat, 7 carb, 7 prot.

>

> daily total - 1900 cal, 36 fat, 133 carb, 197 prot

> average per meal - 320 cal, 6 fat, 22 carb, 32 prot

>

> I also had 1 bottle of Results Thermoginic

> & 132 oz of cold water

>

> Thanks Dani

July 1, 2003

You are missing carbs with some of your meals. Veggies (unless

starchy like corn) do not count as carbs, they are 'free' so to

speak. I'd also ditch the ketchup or cut it in half for now, as well

as the peanut butter. I do occasionally add pb to my shakes, but only

about 1-2 tsp.

Colleen

> I am 34 years old, 5ft 4 in, 224 lbs.

> 117 lbs of fat & 107 lbs of lean.

> Chest 46, waist 46, hip 48

> fitness goals-

> loose the stomach!!!!!

> fit into a size 12 or smaller (I'm an 18 now)

>

> I do BFL work out.

>

> Here is what I ate yesterday.

>

> Myoplex Lite RTD Chocolate - 190 cal, 2.5 fat, 20 carb, 25 prot.

>

> 4 egg whites (scrambled in Pam) - 324 cal, 0 fat, 8 carb, 68 prot.

> 1 egg yolk (Scrambled in Pam) - 160 cal, 10 fat, 1 carb, 6 prot.

> 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

> 2 cups broc (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

>

> Myoplex Lite Bar Peanut Caramel- 180 cals, 4.5 fat, 26 carbs, 15

prot.

>

> 1 package Tuna - 105 cal, 1.5 fat, 0 carbs, 23 prot.

> 2 cups Green beans - 60 cal, 0 fat, 12 carbs, 3 prot.

> 1 boullion cube (to season the beans) - 5 cal, 0 fat, 1 carb, 0

prot.

>

> 1 portion Shrimp (boiled) - 240 cal, 0 fat, 0 carbs, 20 prot

> 2 cups brocolli (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

> 1/4 tsp horseradish - 1 cal, 0 fat, .25 carbs, 0 prot.

> 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

>

> Myoplex lite poweder - 190 cal, 1.5 fat, 20 carbs, 25 prot

> 2 TBS Peanut Butter - 200 cal, 16 fat, 7 carb, 7 prot.

>

> daily total - 1900 cal, 36 fat, 133 carb, 197 prot

> average per meal - 320 cal, 6 fat, 22 carb, 32 prot

>

> I also had 1 bottle of Results Thermoginic

> & 132 oz of cold water

>

> Thanks Dani

July 1, 2003

Lots of good advice from gals, but one thing I haven't seen anyone

mention is your protein count on your egg whites....68grams in four

seems pretty steep! I know it can be dificult, especially if one has

dieted often, but I think counting all of the carb/protein grams in

everything, like veggies, will eventually get old. Why not just eat

your portions?? I think many of the carbs from veggies are fiber

anyway, so you may want to add some carbs, unless your doing Atkins.

As far as ketchup, you know, we all have to make our food to our

taste...if you must have it, you might want to try

http://www.synergydiet.com they have really good condiments and

sauces that are carb and calorie free...I did like the ketchup. I

personally wouldn't worry about the calories....for your weight, if

you're working out, it should be fine.....if it doesn't give you

results, then maybe think about changing something, but just getting

calorie free ketchup seems like it will help. I really like peanut

butter,but I've been using nut extracts in my shakes instead

(hazelnut, almond)

Good luck...

> >

> > 4 egg whites (scrambled in Pam) - 324 cal, 0 fat, 8 carb, 68

prot.

> > 1 egg yolk (Scrambled in Pam) - 160 cal, 10 fat, 1 carb, 6 prot.

> > 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

> > 2 cups broc (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

> >

> > Myoplex Lite Bar Peanut Caramel- 180 cals, 4.5 fat, 26 carbs, 15

> > prot.

> >

> > daily total - 1900 cal, 36 fat, 133 carb, 197 prot

> > average per meal - 320 cal, 6 fat, 22 carb, 32 prot

> >

> > I also had 1 bottle of Results Thermoginic

> > & 132 oz of cold water

> >

> > Thanks Dani

> >

July 1, 2003

--- In , catnip3333

Hi Dani,

I'm a little confused, are you doing BFL diet? If you

are, veggies are free, they don't count as carbs. And

you might want to cut down on the ketchup, and add some

better carb choices. Like potatoes, sweet potatoes, brown

rice, wheat tortillas, wheat bread, fruit, yogurt. I would

just fall over died without my carbs!

Good luck to you

Jonda

July 1, 2003

You also have an egg yolk listed as 10 g of fat, but they are

actually 5 g of fat, (45 less calories).

Suzanne

> You might want to double check the calories you have for eggs and

egg

> whites. I believe egg whites only have about 20 calories a piece

and one

> whole egg has about 80. 324 calories for 4 egg whites would be way

off

>

> Beth

>

> advice please

>

> > I am 34 years old, 5ft 4 in, 224 lbs.

> > 117 lbs of fat & 107 lbs of lean.

> > Chest 46, waist 46, hip 48

> > fitness goals-

> > loose the stomach!!!!!

> > fit into a size 12 or smaller (I'm an 18 now)

> >

> > I do BFL work out.

> >

> > Here is what I ate yesterday.

> >

> > Myoplex Lite RTD Chocolate - 190 cal, 2.5 fat, 20 carb, 25 prot.

> >

> > 4 egg whites (scrambled in Pam) - 324 cal, 0 fat, 8 carb, 68

prot.

> > 1 egg yolk (Scrambled in Pam) - 160 cal, 10 fat, 1 carb, 6 prot.

> > 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

> > 2 cups broc (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

> >

> > Myoplex Lite Bar Peanut Caramel- 180 cals, 4.5 fat, 26 carbs, 15

prot.

> >

> > 1 package Tuna - 105 cal, 1.5 fat, 0 carbs, 23 prot.

> > 2 cups Green beans - 60 cal, 0 fat, 12 carbs, 3 prot.

> > 1 boullion cube (to season the beans) - 5 cal, 0 fat, 1 carb, 0

prot.

> >

> > 1 portion Shrimp (boiled) - 240 cal, 0 fat, 0 carbs, 20 prot

> > 2 cups brocolli (raw) - 40 cal, 0 fat, 6.4 carb, 4.8 prot.

> > 1/4 tsp horseradish - 1 cal, 0 fat, .25 carbs, 0 prot.

> > 4 TBS ketchup - 40 cal, 0 fat, 8 carbs, 0 prot.

> >

> > Myoplex lite poweder - 190 cal, 1.5 fat, 20 carbs, 25 prot

> > 2 TBS Peanut Butter - 200 cal, 16 fat, 7 carb, 7 prot.

> >

> > daily total - 1900 cal, 36 fat, 133 carb, 197 prot

> > average per meal - 320 cal, 6 fat, 22 carb, 32 prot

> >

> > I also had 1 bottle of Results Thermoginic

> > & 132 oz of cold water

> >

> > Thanks Dani

> >

November 3, 2003

Hi C 2,

The second time the "dragon" took me down the path of feeling so

sick I could die...the Pred did *nothing* for me. Finally a little different

steroid was tried..Methlyprenisolone or Medrol. It worked! Maybe

ask your doctor to try this steroid. I am feeling bad for you hon.

from Wisconsin,

Tricia

& & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & &

-- Advice please

Hello allI'm not sure you can help, but I'll ask anyway...I'm going to talk to the hospital ward doc tomorrow - they 'lost' my bloods so I have to have more taken - so I'll take the opportunity to ask her where I go from here. Last week she said it would take two months for all the bloods results to come back. I have been very unwell over the past 4 days, with the usual joint pain, fevery, wanting to lie down and die, you know the sort of thing. Anyway, having tried prednisolone and it having little effect, (although having been completely off it for a week, maybe it WAS helping a little.) the docs were reluctant to try anything else until they had tested me for every infectious disease known to man. All very well, as I appreciate that they are still actively pursuing alternatives, but meanwhile, I cannot continue like this, as I am having to rely too heavily on Tramadol as that is all I have to take the pain away. Surely there are other drugs they can suggest as I can't be the only one who didn't react favourably to the pred. Are there other steroids that might work? I have read the medication sight on the Stills page, but I think most of the drugs are for people who's illness has progressed far further than mine. What were people put on when they were fairly newly diagnosed, that worked for them?I would appreciate any help. Many thanks.LoveC 2

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

November 3, 2003

You are so sweet to reply at this difficult time, Tricia. I appreciate

it.

I shall ask the doc about the Medrol and any other steroid she may

think could help.

Love

C 2

On 3 Nov 2003, at 20:43, TLC wrote:

>

> Hi C 2,

>

> The second time the " dragon " took me down the path of feeling so

> sick I could die...the Pred did *nothing* for me. Finally a little

> different

> steroid was tried..Methlyprenisolone or Medrol. It worked! Maybe

> ask your doctor to try this steroid. I am feeling bad for you hon.

>

> from Wisconsin,

> Tricia

> & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & &

>

> -- Advice please

>

> Hello all

>

> I'm not sure you can help, but I'll ask anyway...

>

> I'm going to talk to the hospital ward doc tomorrow - they 'lost' my

> bloods so I have to have more taken - so I'll take the opportunity to

> ask her where I go from here. Last week she said it would take two

> months for all the bloods results to come back. I have been very unwell

> over the past 4 days, with the usual joint pain, fevery, wanting to lie

> down and die, you know the sort of thing. Anyway, having tried

> prednisolone and it having little effect, (although having been

> completely off it for a week, maybe it WAS helping a little.) the docs

> were reluctant to try anything else until they had tested me for every

> infectious disease known to man. All very well, as I appreciate that

> they are still actively pursuing alternatives, but meanwhile, I cannot

> continue like this, as I am having to rely too heavily on Tramadol as

> that is all I have to take the pain away. Surely there are other drugs

> they can suggest as I can't be the only one who didn't react favourably

> to the pred. Are there other steroids that might work? I have read the

> medication sight on the Stills page, but I think most of the drugs are

> for people who's illness has progressed far further than mine. What

> were people put on when they were fairly newly diagnosed, that worked

> for them?

>

> I would appreciate any help. Many thanks.

>

> Love

>

> C 2

>

> ____________________________________________________

> <image.tiff> IncrediMail- Email has finally evolved -Click Here

>

November 3, 2003

Hi C 2 -

I was originally put on prednisone, which has worked well for me but not

well enough to initally push me toward anything like remission. After I was

diagnosed, I also tried several NSAIDS, high-dose aspirin, methotrexate, and

eventually plaquenil. The plaquenil worked great for me, though it can take

up to six weeks (I think?) for its full effect to be felt.

Hope you find something to help!

Trish in PA

Advice please