advice please

[Guest guest]

I asked your work & background, thinking you might be a behavioralist or psychologist or something. I have a book about the 67 differences in the autism brain, almost done. Based on scanning research. But I haven't read exactly about " stress hormone " triggered. . .and it makes sense. I'm hiring a team for the book, to finish and have in medical school bookstores and then classes, if funded by investors being pitched to on Wall Street, for the book. And I'd look for a capacity for you if you're interested. I have a whole chapter on traits, coded with what areas of the brain create the behaviors. Then also accomodations.

Nina

On Tue, 29 Jun 2010 01:12 +0000, " Bill Nason " <nasonbill@...> wrote:

Yes, trying to hold off meltdowns is better then dealing with them once they occur. For most children with Asperger's, changes in routine, unexpected turn of events, or any uncertainty can lead to overload. They strive for predictability and control. They are fearful in the face of uncertainty. I often have great success with a procedure I call " clarify, verify, preview and review " to help prepare for all upcoming activity.

1. Clarify: Do not assume that the child " knows " . Clarify what is coming up and what is expected of the child in concrete, literal terms.

2. Verify: Don't assume they understood you. Ask them to verify they understand. You be surprised how often they misinterpret what you explain.

3. Preview: Preview all new situations ahead of time. Talk about what is going to happen, how long it will last, what is expected of him, and what will occur next. Prepare the child by giving them as much information as possible.

4. Review: Review the information just before entering the situation so it is fresh in the child's mind. In addition, you might want to add what the child should do if he starts to feel overwhelmed. Discuss proactive strategies to keep the child calm, and how to escape the situation if it becomes overwhelming.

This seems like a lot to remember, but the more you use it the more natural it becomes to prepare the child for events in his day. As the child gets older he can also learn to use these techniques on his own as self empowerment skills.

Wives! These techniques often work well with husbands as well...lol. We often have difficulty with unexpected changes and unprepared expectations.

Bill

> >

> > My 8 year old son has Aspergers and is prone to severe melt downs when things don't happen the way he planned or expected. Trying to explain things or reason with him are totally useless.

> >

> > My question is for both parents of children with Aspergers and also for people who have it. How do you get your child, or yourself, to calm down during a meltdown? Is there anything I can do or say, or anything that I should NOT do or say?

> >

> > I would love any advice you can share.

> >

> > Thank You - Lesa, a very frustrated mom

> >

>

--

Nina Forest

autismlearning@...

[Guest guest]

Love this Bill, thanks so much for sharing. RhodaFrom: Bill Nason <nasonbill@...>Autism and Aspergers Treatment Sent: Mon, June 28, 2010 9:12:25 PMSubject: Re: advice please

Yes, trying to hold off meltdowns is better then dealing with them once they occur. For most children with Asperger's, changes in routine, unexpected turn of events, or any uncertainty can lead to overload. They strive for predictability and control. They are fearful in the face of uncertainty. I often have great success with a procedure I call "clarify, verify, preview and review" to help prepare for all upcoming activity.

1. Clarify: Do not assume that the child "knows". Clarify what is coming up and what is expected of the child in concrete, literal terms.

2. Verify: Don't assume they understood you. Ask them to verify they understand. You be surprised how often they misinterpret what you explain.

3. Preview: Preview all new situations ahead of time. Talk about what is going to happen, how long it will last, what is expected of him, and what will occur next. Prepare the child by giving them as much information as possible.

4. Review: Review the information just before entering the situation so it is fresh in the child's mind. In addition, you might want to add what the child should do if he starts to feel overwhelmed. Discuss proactive strategies to keep the child calm, and how to escape the situation if it becomes overwhelming.

This seems like a lot to remember, but the more you use it the more natural it becomes to prepare the child for events in his day. As the child gets older he can also learn to use these techniques on his own as self empowerment skills.

Wives! These techniques often work well with husbands as well...lol. We often have difficulty with unexpected changes and unprepared expectations.

Bill

> >

> > My 8 year old son has Aspergers and is prone to severe melt downs when things don't happen the way he planned or expected. Trying to explain things or reason with him are totally useless.

> >

> > My question is for both parents of children with Aspergers and also for people who have it. How do you get your child, or yourself, to calm down during a meltdown? Is there anything I can do or say, or anything that I should NOT do or say?

> >

> > I would love any advice you can share.

> >

> > Thank You - Lesa, a very frustrated mom

> >

>

[Guest guest]

Yes, good advice Nina.

> > >

> > > My 8 year old son has Aspergers and is prone to severe melt

> downs when things don't happen the way he planned or expected.

> Trying to explain things or reason with him are totally useless.

> > >

> > > My question is for both parents of children with Aspergers

> and also for people who have it. How do you get your child, or

> yourself, to calm down during a meltdown? Is there anything I can

> do or say, or anything that I should NOT do or say?

> > >

> > > I would love any advice you can share.

> > >

> > > Thank You - Lesa, a very frustrated mom

> > >

> >

>

>

> References

>

> 1. mailto:Autism and Aspergers Treatment%40

> 2. mailto:Autism and Aspergers Treatment%40

> 3. mailto:nasonbill@...?subject=Re:%20advice%20please

> 4. mailto:Autism and Aspergers Treatment ?subject=Re:%20advice%20please

> 5.

Autism and Aspergers Treatment/post;_ylc=X3oDMTJxamcwdDhzBF9TAzk\

3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BG1zZ0lkAzM2Mzc0BHNlYwNmdHI\

Ec2xrA3JwbHkEc3RpbWUDMTI3Nzc3NDA2Ng--?act=reply & messageNum=36374

> 6.

Autism and Aspergers Treatment/post;_ylc=X3oDMTJldHVzNnE0BF9TAzk\

3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwNmdHIEc2xrA250cGMEc3R\

pbWUDMTI3Nzc3NDA2Ng--

> 7.

Autism and Aspergers Treatment/message/36344;_ylc=X3oDMTM2cTRwcm\

MwBF9TAzk3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BG1zZ0lkAzM2Mzc0BH\

NlYwNmdHIEc2xrA3Z0cGMEc3RpbWUDMTI3Nzc3NDA2NgR0cGNJZAMzNjM0NA--

> 8.

Autism and Aspergers Treatment/members;_ylc=X3oDMTJmOXA0cWV2BF9T\

Azk3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwN2dGwEc2xrA3ZtYnJz\

BHN0aW1lAzEyNzc3NzQwNjY-?o=6

> 9.

Autism and Aspergers Treatment;_ylc=X3oDMTJlN21iZ3ZuBF9TAzk3MzU5\

NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUD\

MTI3Nzc3NDA2Ng--

> 10.

http://us.ard./SIG=15rbjhbrb/M=493064.13983314.14041046.13298430/D=grph\

ealth/S=1705061616:MKP1/Y=/EXP=1277781266/L=a8bacb38-831b-11df-b97b-2ff9c87\

b876d/B=EXXnEGKJiTM-/J=1277774066244017/K=51hUrMtZnF6KAcjb3VZrrw/A=6060255/R=0/S\

IG=1194m4keh/*http://us.toolbar./?.cpdl=grpj

> 11.

http://us.ard./SIG=15r49njni/M=493064.13814537.14041040.10835568/D=grph\

ealth/S=1705061616:MKP1/Y=/EXP=1277781266/L=a8bacb38-831b-11df-b97b-2ff9c87\

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IG=114ae4ln1/*http://dogandcatanswers./

> 12.

http://us.ard./SIG=15rh3hi38/M=493064.14012770.13963757.13298430/D=grph\

ealth/S=1705061616:MKP1/Y=/EXP=1277781266/L=a8bacb38-831b-11df-b97b-2ff9c87\

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> 13.

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IEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwNmdHIEc2xrA2dmcARzdGltZQMxMjc3Nzc0MDY2

> 14.

mailto:Autism and Aspergers Treatment-traditional ?subject=Change%20Delivery%20\

Format:%20Traditional

> 15.

mailto:Autism and Aspergers Treatment-digest ?subject=Email%20Delivery:%20Diges\

t

> 16. mailto:Autism and Aspergers Treatment-unsubscribe ?subject=Unsubscribe

> 17.

> --

> Nina Forest

> autismlearning@...

>

[Guest guest]

Hi Nina, I am a masters level behavior psychologist. I specialized in autism

spectrum disorders and children with severe behavioral challenges.

Bill

> > >

> > > My 8 year old son has Aspergers and is prone to severe melt

> downs when things don't happen the way he planned or expected.

> Trying to explain things or reason with him are totally useless.

> > >

> > > My question is for both parents of children with Aspergers

> and also for people who have it. How do you get your child, or

> yourself, to calm down during a meltdown? Is there anything I can

> do or say, or anything that I should NOT do or say?

> > >

> > > I would love any advice you can share.

> > >

> > > Thank You - Lesa, a very frustrated mom

> > >

> >

>

>

> References

>

> 1. mailto:Autism and Aspergers Treatment%40

> 2. mailto:Autism and Aspergers Treatment%40

> 3. mailto:nasonbill@...?subject=Re:%20advice%20please

> 4. mailto:Autism and Aspergers Treatment ?subject=Re:%20advice%20please

> 5.

Autism and Aspergers Treatment/post;_ylc=X3oDMTJxamcwdDhzBF9TAzk\

3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BG1zZ0lkAzM2Mzc0BHNlYwNmdHI\

Ec2xrA3JwbHkEc3RpbWUDMTI3Nzc3NDA2Ng--?act=reply & messageNum=36374

> 6.

Autism and Aspergers Treatment/post;_ylc=X3oDMTJldHVzNnE0BF9TAzk\

3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwNmdHIEc2xrA250cGMEc3R\

pbWUDMTI3Nzc3NDA2Ng--

> 7.

Autism and Aspergers Treatment/message/36344;_ylc=X3oDMTM2cTRwcm\

MwBF9TAzk3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BG1zZ0lkAzM2Mzc0BH\

NlYwNmdHIEc2xrA3Z0cGMEc3RpbWUDMTI3Nzc3NDA2NgR0cGNJZAMzNjM0NA--

> 8.

Autism and Aspergers Treatment/members;_ylc=X3oDMTJmOXA0cWV2BF9T\

Azk3MzU5NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwN2dGwEc2xrA3ZtYnJz\

BHN0aW1lAzEyNzc3NzQwNjY-?o=6

> 9.

Autism and Aspergers Treatment;_ylc=X3oDMTJlN21iZ3ZuBF9TAzk3MzU5\

NzE0BGdycElkAzE4MDAzMzIEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUD\

MTI3Nzc3NDA2Ng--

> 10.

http://us.ard./SIG=15rbjhbrb/M=493064.13983314.14041046.13298430/D=grph\

ealth/S=1705061616:MKP1/Y=/EXP=1277781266/L=a8bacb38-831b-11df-b97b-2ff9c87\

b876d/B=EXXnEGKJiTM-/J=1277774066244017/K=51hUrMtZnF6KAcjb3VZrrw/A=6060255/R=0/S\

IG=1194m4keh/*http://us.toolbar./?.cpdl=grpj

> 11.

http://us.ard./SIG=15r49njni/M=493064.13814537.14041040.10835568/D=grph\

ealth/S=1705061616:MKP1/Y=/EXP=1277781266/L=a8bacb38-831b-11df-b97b-2ff9c87\

b876d/B=EnXnEGKJiTM-/J=1277774066244017/K=51hUrMtZnF6KAcjb3VZrrw/A=6078812/R=0/S\

IG=114ae4ln1/*http://dogandcatanswers./

> 12.

http://us.ard./SIG=15rh3hi38/M=493064.14012770.13963757.13298430/D=grph\

ealth/S=1705061616:MKP1/Y=/EXP=1277781266/L=a8bacb38-831b-11df-b97b-2ff9c87\

b876d/B=E3XnEGKJiTM-/J=1277774066244017/K=51hUrMtZnF6KAcjb3VZrrw/A=6015306/R=0/S\

IG=11vlkvigg/*http://advision.webevents./hobbiesandactivitieszone/

> 13.

;_ylc=X3oDMTJkajhoc2xsBF9TAzk3MzU5NzE0BGdycElkAzE4MDAzMz\

IEZ3Jwc3BJZAMxNzA1MDYxNjE2BHNlYwNmdHIEc2xrA2dmcARzdGltZQMxMjc3Nzc0MDY2

> 14.

mailto:Autism and Aspergers Treatment-traditional ?subject=Change%20Delivery%20\

Format:%20Traditional

> 15.

mailto:Autism and Aspergers Treatment-digest ?subject=Email%20Delivery:%20Diges\

t

> 16. mailto:Autism and Aspergers Treatment-unsubscribe ?subject=Unsubscribe

> 17.

> --

> Nina Forest

> autismlearning@...

>

[Guest guest]

I love that plan Bill. Thanks !!!

Lesa

> > >

> > > My 8 year old son has Aspergers and is prone to severe melt downs when

things don't happen the way he planned or expected. Trying to explain things or

reason with him are totally useless.

> > >

> > > My question is for both parents of children with Aspergers and also for

people who have it. How do you get your child, or yourself, to calm down during

a meltdown? Is there anything I can do or say, or anything that I should NOT do

or say?

> > >

> > > I would love any advice you can share.

> > >

> > > Thank You - Lesa, a very frustrated mom

> > >

> >

>

[Guest guest]

And never, never ask something that requires a " yes or no " answer, like " Do you

understand? " or " Did you hear me? " , etc. Ask for repeat or paraphrase of

whatever you said. This is modeling concrete behavior and communication, which

works. It kills me when people ask " Do you have any questions? " of

autistic/asperger person. Of course, the answer is " no " , often because the

person cannot come up with the language to even ask a question. Assume nothing,

or assume that whatever you said, you guys agreed to last week, yesterday, 10

minutes ago is no longer in the short term memory bank. These people often have

auditory processing difficulty and/or receptive/expressive disorders, so talking

is NOT the best option for memory. Again, here is where simple visuals come on

handy.

Priscilla in kansas

> > >

> > > My 8 year old son has Aspergers and is prone to severe melt downs when

things don't happen the way he planned or expected. Trying to explain things or

reason with him are totally useless.

> > >

> > > My question is for both parents of children with Aspergers and also for

people who have it. How do you get your child, or yourself, to calm down during

a meltdown? Is there anything I can do or say, or anything that I should NOT do

or say?

> > >

> > > I would love any advice you can share.

> > >

> > > Thank You - Lesa, a very frustrated mom

> > >

> >

>

[Guest guest]

Thanks Rhoda. " Clarify, verify, preview, and review " is one of the best tools

we can use to help the kids process, understand, and make the world more

predictable. It is really fun watching older teens, and adults learn to use

this strategies on their own. Once instilled, it increase self empowerment.

Bill

> > >

> > > My 8 year old son has Aspergers and is prone to severe melt downs when

things don't happen the way he planned or expected. Trying to explain things or

reason with him are totally useless.

> > >

> > > My question is for both parents of children with Aspergers and also for

people who have it. How do you get your child, or yourself, to calm down during

a meltdown? Is there anything I can do or say, or anything that I should NOT do

or say?

> > >

> > > I would love any advice you can share.

> > >

> > > Thank You - Lesa, a very frustrated mom

> > >

> >

>

[Guest guest]

Great advice!

> > > >

> > > > My 8 year old son has Aspergers and is prone to severe melt downs when

things don't happen the way he planned or expected. Trying to explain things or

reason with him are totally useless.

> > > >

> > > > My question is for both parents of children with Aspergers and also for

people who have it. How do you get your child, or yourself, to calm down during

a meltdown? Is there anything I can do or say, or anything that I should NOT do

or say?

> > > >

> > > > I would love any advice you can share.

> > > >

> > > > Thank You - Lesa, a very frustrated mom

> > > >

> > >

> >

>

[Guest guest]

You've already had excellent advice, but adding my 2 cents in.

1) During meltdown: Use one modality only. My child is overloaded by sensory

things, so he needs a dark, quiet room without anyone else but me. If we're in

a noisy place with people, I have to bail out and get him in a safer place, like

our car. Remove all the sensory modes but one. So maybe deep pressure, but

nothing else. Or a song, but no movement. Or rocking and a song. Don't use

the meltdown as a teaching time ( " you shouldn't do x). The child can't hear or

process the words, but the emotion adds more to it. Saying something soothing

like " It's okay " or " I know " helps.

2) Pre-meltdown: Calming activities like sucking a drink through a straw or

sucking on candy or lollipops or eating chewy or crunchy things.

3) After meltdown: Play it out. We work on increasing tolerance with

frustration by playing out times that we have had breakdowns. Do this at a time

he is regulated, calm, ready to play (not hungry or tired or stressed). Use a

real-life situation, but choose yourself or a character (if he is into favorite

characters, use that one), to play him - the one getting into a situation and

melting down. Recreate what the situation was. You supply the words that you

think he was feeling: I'm so frustrated, Uurrghhh! I'm feeling really mad! Or

Wah-haaaa! I'm so sad! I didn't get ... etc.

We don't use this as a teaching tool. As in, don't use rational teaching like

" so from now on when you get in that situation, just say x " . Or " remember, you

should just do this instead. " It doesn't work like that. In fact, that usually

backfires.

What it does do is allow him to express emotions, get used to feeling and

identifying emotions, expressing them in whatever way he wants. The longer he

can stay with uncomfortable feelings in play, the better he'll get in real life.

Provide cushions to throw, a crash cushion to hit, objects to squish, bite and

mutilate as much as he wants - a safe place to express strong emotions.

My son is 6. What he usually does is make things even worse for the character

having the meltdown. If it's a babydoll or dog that's mad or crying, he'll

throw that doll or dog. A lot. Which is fine because he's dealing with a very

scary emotion by trying to throw it far away and throw it hard.

So the first step is replay a challenging situation. After he expresses all his

scary feelings, then present " problems " that you know upset him. Then you'll be

able to get him to stay with a frustrating feeling longer and longer. As he

gets used to doing this in play, it will (eventually) get easier to do in real

life.

We've used this very successfully. With my son, we always go back and replay

sad, scary, mad feelings - always the strong emotions that are overwhelming.

But I always have to remember that he's in charge of the situation. My son gets

mad if someone else gets mad. And that's okay in the play situation. He's

allowed to throw, hit, whatever, as long as he's NOT doing it to me.

Good luck!

> > > > >

> > > > > My 8 year old son has Aspergers and is prone to severe melt downs when

things don't happen the way he planned or expected. Trying to explain things or

reason with him are totally useless.

> > > > >

> > > > > My question is for both parents of children with Aspergers and also

for people who have it. How do you get your child, or yourself, to calm down

during a meltdown? Is there anything I can do or say, or anything that I should

NOT do or say?

> > > > >

> > > > > I would love any advice you can share.

> > > > >

> > > > > Thank You - Lesa, a very frustrated mom

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi

Andy's recommendations are to start at 1/8mg per pound of child per dose given every 3 hours during the day (can stretch to 4 hourly at night) for a minimum of 64 hours, preferably 72 hours which is 3 full days, 2 nights if your child is at home all the time, or Friday after school until Monday morning before school if they are out of the house in the week.

Your child works out to be approximately 3.75mgs per dose based on weight, The smallest capsules you can buy are 25mg. so if you divided a capsule into 6 or 7 piles you'd be about right. The frequency of dosing is more important than the amount, some very toxic kids will need to do 1/16mg but given you already have some rounds under your belt (well done!) 1/8 seems a reasonable place to start.

Some folks are making their own TD ALA, mixing with a tolerated skin lotion or cream, I never tried that but if I was going to then I would look for additive free DMSO cream and test it out first. DMSO cream helps transport into the skin

I'd also be inclined to do the TD DMPS with every other dose of ALA day and night to make the schedule easier to manage

HTH

Mandi x

In a message dated 30/09/2010 10:58:04 GMT Daylight Time, sindhukan@... writes:

I have been reading all the posts And now got a feeling that ALA is one of the key for a better detoxification of the body and brain. Our doctor did put my daughter who is now 3 1/2 years old, on TD-DMPS and supplements, but not prescribed ALA. I strongly feel that this is very important and want to start asap. Please advise the right amount of ALA for my daughter as she weighs 13kg(28.66lbs).

[Guest guest]

Dear All.

Could someone cast an eye over my results please and maybe offer some advice.

Since I started to take a low dose of T3 last December along with all my vits

and minerals, I have very slowly started to feel much better with all the aches

and pains now gone, and my Prolactin has reduced 300 points and headaches have

all but gone.

I have been waiting for 3 months to see the endo and have a scan of my

pituitary.

My GP knows I take 25 mcg T3 per day and I don't intend to hide it from the

endo.

Nov / Dec. 2011 results

B12 815ng/l Range 211 - 900.

Ferritin 108.9 ugl/L 12 - 300

Serum folate 4.92 ugl/L 2.4 - 20.0

Free T4 18.5 pmol/L 9.0 - 24.

Free T3 8.6 pmol/L 3.5 - 6.5

TSH 18.0 mU/L 03. 6.0

Tpoab 348. IU/mL

Prolactin 1824. mu/L 1 - 650

Cortisol 91 nmolL

Just before the above results I started to take the12.5 mcg cytomel twice per

day.

31/1/2012

Short synacthen test nmol/L 0 min 352. 30min 704.

Prolactin 1554 mu/L Range 1 - 650

TSH 10.8 mU/L 0.3 - 6

Free T4 15.3 pmol/L 9 - 24.

FSH .6 U/L

My question is, has anyone had any experience of high prolactin and should I

continue to take T3, or, as the TSH and T4 get lower should I move on to natural

desiccated thyroid.

With grateful thanks

Irene.