Guest guest Posted February 27, 2012 Report Share Posted February 27, 2012 Hello I wondered if anyone has had a similar experience to mine and can offer some advice. I am 43 and have been diagnosed with CFS for 15 years (despite having borderline hypothyroid problems since I was a child). Last year I got my GP to take the thyroid seriously, as my TSH was at the top end of the range and I had all the symptoms. I did not respond to medication until I reached 75 mcg when I felt more energetic and improved, still a long way off normal but a big change. But this gradually deteriorated, the energy declined, culminating in me catching a cold which knocked me out completely for 2 months. The doctor did not want to raise my medication any further (he thinks my problems are CFS) so I got referred to an endocrinologist on Sheila's list. The endocrinologist was great, said it was evident my thyroid was the problem, and put up my medication to 100 mcg. I was very ill on this and had new symptoms of aching bones and muscles as well as feeling toxic, ill and exhausted. I ended up in bed collapsed for a few days, went back to 75 mcg and it still took a few weeks for the aching to totally disappear. I then very gradually increased the medication again, spacing it apart initially. I felt much better and had days where I was brimming with energy, unable to sit still, wanting to dash off and do lots. Other days I was tired. Then the energetic days stopped happening and I was back to tired, and more tired. And then caught a cold which has flattened me again and I am once more exhausted a lot! When this happened last time, the doctor said the flattening effect of colds was due to me having Epstein-Barr in my system. I am due to go back to the endocrinologist in a couple of weeks. I am just interested to know if anyone else has had experiences like this and if it is likely I just need more T4 or whether it is likely I am likely to need T3 or NDT. I would like to be a bit informed for seeing the endocrinologist! Apols this is so long. Thanks for any help. Debbie Quote Link to comment Share on other sites More sharing options...
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