Re: Genova test results - update

[Guest guest]

Hello everyone.

I haven't written this past 3 months, been waiting for sinacthin test.

Could someone possibly have a look at these results. I am still a bit concerned

about the Prolactin count.

Since I started to take a low dose of T3 early last December along with all my

vits and minerals, I have very slowly started to feel much better with all the

aches and pains now gone, my swollen feet and legs are back to normal and my

Prolactin has reduced 300 points and headaches have all but gone.

I have been waiting for 3 months to see the endo and to have a scan of my

pituitary.

My GP knows I take 25 mcg T3 per day and I won't hide it from the endo when I

see him.

December 2011 results

B12 815ng/l Range 211 - 900.

Ferritin 108.9 ugl/L 12 - 300

Serum folate 4.92 ugl/L 2.4 - 20.0

Free T4 18.5 pmol/L 9.0 - 24.

Free T3 8.6 pmol/L 3.5 - 6.5

TSH 18.0 mU/L 03. 6.0

Tpoab 348. IU/mL

Prolactin 1824. mu/L 1 - 650

Cortisol 91 nmolL

-----------------------

31/1/2012

Short synacthen test nmol/L 0 min 352. 30min 704.

Prolactin 1554 mu/L Range 1 - 650

TSH 10.8 mU/L 0.3 - 6

Free T4 15.3 pmol/L 9 - 24.

FSH .6 U/L

My question is, has anyone had any experience of high prolactin and should I

continue to take T3, or, as the TSH and T4 get lower should i move on to natural

desiccated thyroid.

With grateful thanks and my heart goes out to everyone still struggling.

Irene.

X

[Guest guest]

Hi Irene -Unless you are feeling dreadful if these were my own results I would stay on your present medication until your TSH comes down to at the most 2. If this doesn't bring your prolactin down then you will need more investigations. Very often hyperprolactinaemia (high prolactin) is associated with hypthyroidism which, if adequately treated, will bring this down. Hope you get sorted!

[Guest guest]

Hello Irene, I am pleased that at last, you are starting to feel

so much better, but you still are not quite there, probably because you are in

dire need of an increase in your T3 dosage.

Prolactin 1554 mu/L Range 1 - 650 - Consistently high levels

of Prolactin can be caused Prolactinoma which is a small tumour on your pituitary gland.

This tumour secretes excess prolactin into your body. They are usually very

small and are called microadenomas. Large tumours are called macroadenomas, and

can cause headaches and visual difficulties. They can be diagnosed on MRI

scanning. They can be safely treated with medical therapy with bromocriptine or

cabergoline, which causes them to shrink very quickly. Prescription drugs can

cause excess secretion of prolactin. Some anti-depressants, painkillers, and

opiates block dopamine, preventing prolactin secretion from being inhibited.

This can cause your prolactin levels to rise. Other causes include:

Hypothyroidism and PCOS - polycystic ovarian disease. In many cases we cannot

find a cause.

TSH 10.8 mU/L 0.3 - 6 - Ooops! This is better

but still far too high. When anybody is taking T3, the TSH is usually

suppressed. This high TSH shows you are not taking enough thyroid replacement

and you need to increase your dose by 12.5mcgs, and urgently. I would do this

now and tell the endocrinologist why you have done so. He will understand, and

doctors do realise that patients cannot always wait for them to sanction an

increase when they so obviously need it.

Why didn't they test your free T3 level?

Did they test your

FOLATE this time Irene. In December, it was very low. You can buy Folic Acid at

your chemist. You can take 400/800mgs daily and see how you feel.

See what your endocrinologist has to say about whether you need

to change to natural thyroid extract, but if you are doing OK on the T3 alone,

I would stick with that. You do need to increase your dose though.

Luv - Sheila

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[Guest guest]

> Did they test your FOLATE this time Irene. In December, it was very low. You

can buy Folic Acid at your chemist. You can take 400/800mgs daily and see how

you feel.

just a typo alert ..should read 400/800 mcg (micrograms)

[Guest guest]

Dear Sheila, I thank you so very much for your very informative reply. I've

only just seen your letter and will increase my T3 as of tomorrow as you

suggest.

It was my lovely lady GP who did the prolactin, T3 and antibody tests last

December, T3 did not get repeated at the hospital, two years ago when I asked

the endo for a T3 test he told me that it wasn't necessary.

I am not on any prescription drugs and don't take painkillers.

Hopefully my increase in T3 will gently lower the prolactin and TSH count.

I am sooo grateful for your reply.

A thousand times I thank you.

Irene

X

>

> Hello Irene, I am pleased that at last, you are starting to feel so much

> better, but you still are not quite there, probably because you are in dire

> need of an increase in your T3 dosage.

> Prolactin 1554 mu/L Range 1 - 650 - Consistently high levels of Prolactin

> can be caused Prolactinoma which is a small tumour on your pituitary gland.

> This tumour secretes excess prolactin into your body. They are

[Guest guest]

Hi Trish

Many thanks for your question. The last time my folate was tested was in Dec.

Serum folate 4.9ug/L range 2.4 - 20.0. Gp seemed to think that was normal.

I take 2 Spatone each evening with Vitamin C. but I'll get some folat from the

chemist.

Many Thanks

Irene.

>

>

>

> > Did they test your FOLATE this time Irene. In December, it was very low. You

can buy Folic Acid at your chemist. You can take 400/800mgs

[Guest guest]

Hi Trish

yup, thanks for that

Irene

X

>

> just a typo alert ..should read 400/800 mcg (micrograms)

>

>>

[Guest guest]

Hello Barbara

Many thanks for your reply. It was kind of you.

Love

Irene.

>

>

> Hi Irene -Unless you are feeling dreadful if these were my own treated, will

bring

> this down. Hope you get sorted!

>

[Guest guest]

hi irene

it was sheila who asked the question and suggested you take folic acid (i was

just pointing out it should have been in micrograms rather than milligrams!)

trish

>

> Hi Trish

> Many thanks for your question. The last time my folate was tested was in Dec.

Serum folate 4.9ug/L range 2.4 - 20.0. Gp seemed to think that was normal.

>

> I take 2 Spatone each evening with Vitamin C. but I'll get some folat from the

chemist.

> Many Thanks

> Irene.