Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 In a message dated 11/6/01 3:25:03 PM Pacific Standard Time, Tubafour@... writes: > Our > reasoning was that had developmental delays. He was not at the > maturity level of a typical 7 year old and teachers should not expect him > to > be. Sometimes professionals tend to forget that. Elaine, I totally agree with you! 's teacher keeps reminding me not to let bring " inappropriate " toys/objects to school as " normal " second graders would not do that. 's on about a 2-3 yrs. old level, do they really expect him to leave his favorite pillow or stimming brushes at home??? LOL< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 In a message dated 11/6/01 3:25:03 PM Pacific Standard Time, Tubafour@... writes: > Our > reasoning was that had developmental delays. He was not at the > maturity level of a typical 7 year old and teachers should not expect him > to > be. Sometimes professionals tend to forget that. Elaine, I totally agree with you! 's teacher keeps reminding me not to let bring " inappropriate " toys/objects to school as " normal " second graders would not do that. 's on about a 2-3 yrs. old level, do they really expect him to leave his favorite pillow or stimming brushes at home??? LOL< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 In a message dated 11/6/2001 5:24:57 PM Central Standard Time, Tubafour@... writes: << Our reasoning was that had developmental delays. He was not at the maturity level of a typical 7 year old and teachers should not expect him to be. Sometimes professionals tend to forget that. >> Actually this was also the reasoning that we got when we had tested. The dr. (phycologist?) who did the testing said that her bahaviors and attention span were quite appropriate for her mental age. :-) After further looking into the drugs used for ADD/ADHD I deicided that I was glad we had drs. who took that into concideration. :-) You are right tho the decision to use drug intervention is a personal one. If a person is comforable using it then great!! Now my biggest peeve is people who talk their drs into perscribing for add/adhd and the dr never really tests the child, and in one case I know of the Mom just called the family physician (after about 4 yrs of teachers saying that he would benefit from ritalin/adderal) and asked for it and he perscribed without making her come in with the kid. at least that's the way I understood it....then the teacher who pushed for him to be put on something decided a few weeks later that well maybe he didn't have adhd....he now seemed depressed to her. ugh. (yes this stuff does go on and gee the teacher saying that would have caused big red flags to go up for me because of the research that I did on the stuff, but the mom believes he is adhd and is benefiting from the adderal he takes once a day) Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 In a message dated 11/6/2001 5:24:57 PM Central Standard Time, Tubafour@... writes: << Our reasoning was that had developmental delays. He was not at the maturity level of a typical 7 year old and teachers should not expect him to be. Sometimes professionals tend to forget that. >> Actually this was also the reasoning that we got when we had tested. The dr. (phycologist?) who did the testing said that her bahaviors and attention span were quite appropriate for her mental age. :-) After further looking into the drugs used for ADD/ADHD I deicided that I was glad we had drs. who took that into concideration. :-) You are right tho the decision to use drug intervention is a personal one. If a person is comforable using it then great!! Now my biggest peeve is people who talk their drs into perscribing for add/adhd and the dr never really tests the child, and in one case I know of the Mom just called the family physician (after about 4 yrs of teachers saying that he would benefit from ritalin/adderal) and asked for it and he perscribed without making her come in with the kid. at least that's the way I understood it....then the teacher who pushed for him to be put on something decided a few weeks later that well maybe he didn't have adhd....he now seemed depressed to her. ugh. (yes this stuff does go on and gee the teacher saying that would have caused big red flags to go up for me because of the research that I did on the stuff, but the mom believes he is adhd and is benefiting from the adderal he takes once a day) Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 In a message dated 11/6/2001 6:15:50 PM Central Standard Time, Ltb3105@... writes: << do they really expect him to leave his favorite pillow or stimming brushes at home??? LOL< >> Hi , to has her brushes that she likes to stim with (better then the big sharp knives, hehe) but at that age I would not let her take them to school. Now a pillow, well that's different, but brushes (or whatever she decides to use at the time) no. One of the big reasons is once she gets to do it it seems like it becomes a habit right away and she always thinks she should get to do it, some things are easier to stop if you never really let them begin. (at least in our case, hehe) :-) Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 In a message dated 11/6/2001 6:15:50 PM Central Standard Time, Ltb3105@... writes: << do they really expect him to leave his favorite pillow or stimming brushes at home??? LOL< >> Hi , to has her brushes that she likes to stim with (better then the big sharp knives, hehe) but at that age I would not let her take them to school. Now a pillow, well that's different, but brushes (or whatever she decides to use at the time) no. One of the big reasons is once she gets to do it it seems like it becomes a habit right away and she always thinks she should get to do it, some things are easier to stop if you never really let them begin. (at least in our case, hehe) :-) Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Every parent knows his/her child better than anyone and not to knock anyone's use of Ritalin, but we refused to do this with . Our reasoning was that had developmental delays. He was not at the maturity level of a typical 7 year old and teachers should not expect him to be. Sometimes professionals tend to forget that. is 15 now and fairly mature and his behavior has matured along with his body. He can sit for much longer periods and concentrate on his schoolwork. He has stopped much of the impulsivity. Just MHO. Elaine Re:introduction > It is I guess reassuring that I am not the only one with a 7 yr old son w/ DS > who has behavioral problems. Adam has been taking Ritalin 5mgs 2x daily for > almost 2 years. He has not been officially diagnosed with ADHD but his main > issues are his attention and inpulsivity. I would love to see any behavioral > plans that anyone. Also any ideas to control his giant stubborn streak. He > has brothers close to is age, older and younger, so it is wild around here > anyway. Look forward to any info. Thanks > > Debra > Mom to 9, Adam(DS) 7, and 4 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Every parent knows his/her child better than anyone and not to knock anyone's use of Ritalin, but we refused to do this with . Our reasoning was that had developmental delays. He was not at the maturity level of a typical 7 year old and teachers should not expect him to be. Sometimes professionals tend to forget that. is 15 now and fairly mature and his behavior has matured along with his body. He can sit for much longer periods and concentrate on his schoolwork. He has stopped much of the impulsivity. Just MHO. Elaine Re:introduction > It is I guess reassuring that I am not the only one with a 7 yr old son w/ DS > who has behavioral problems. Adam has been taking Ritalin 5mgs 2x daily for > almost 2 years. He has not been officially diagnosed with ADHD but his main > issues are his attention and inpulsivity. I would love to see any behavioral > plans that anyone. Also any ideas to control his giant stubborn streak. He > has brothers close to is age, older and younger, so it is wild around here > anyway. Look forward to any info. Thanks > > Debra > Mom to 9, Adam(DS) 7, and 4 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 > > > > , are you talking about " THE " Dr. Capone from Kennedy Krieger Institute > in land?? I am thinking of taking there, as we are exhausting > possibilities of any new med's.....we've tried them all! > > Let me know when your appt. is and how it goes. > Yes, , is one of his oldest patients...been seeing him for 8 years now (before he became so well known). We just went in for the yearly physical, but is doing very well IMHO. As soon as I walked in today, some mom asked if I was Casten...lol! She is from the PODS list. If you can get to Baltimore, then by all means go! Many parents whose children have behavioral problems and or PDD/ASD or autism go there. He's doing a study on autism and DS. We are in his cardiology and DS study and have been in a few others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 > > > > , are you talking about " THE " Dr. Capone from Kennedy Krieger Institute > in land?? I am thinking of taking there, as we are exhausting > possibilities of any new med's.....we've tried them all! > > Let me know when your appt. is and how it goes. > Yes, , is one of his oldest patients...been seeing him for 8 years now (before he became so well known). We just went in for the yearly physical, but is doing very well IMHO. As soon as I walked in today, some mom asked if I was Casten...lol! She is from the PODS list. If you can get to Baltimore, then by all means go! Many parents whose children have behavioral problems and or PDD/ASD or autism go there. He's doing a study on autism and DS. We are in his cardiology and DS study and have been in a few others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 Hi, I am fairly new to this group but I love all the vacc info. My granddaughter age 3, who until today has never received a vaccine of any kind was bitten by a dog and got 13 stitches was given a tetanus shot, a DT. Does anyone know what we should expect are there any terrible side effects? What can overcome them? We were too frightened not to give the shot. Dogs are so nasty. If I had had time I would have gotten on line to ask before hand but I did't get to do that. Thanks for any help and info. Dottie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 Dogs have cleaner mouths than humans. Kathleen In a message dated 11/19/2001 6:40:49 PM Central Standard Time, BGREEN2286@... writes: > Hi, > I am fairly new to this group but I love all the vacc info. My > granddaughter > age 3, who until today has never received a vaccine of any kind was bitten > by > a dog and got 13 stitches was given a tetanus shot, a DT. Does anyone know > what we should expect are there any terrible side effects? What can > overcome > them? > We were too frightened not to give the shot. Dogs are so nasty. If I had > had > time I would have gotten on line to ask before hand but I did't get to do > that. > Thanks for any help and info. > Dottie > " The whole aim of practical politics is to keep the populace alarmed - and hence clamorous to be led to safety - by menacing it with an endless series of hobgoblins, all of them imaginary. " - H.L. Mencken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2001 Report Share Posted November 19, 2001 Why would you think that ? Re: Introduction > Dogs have cleaner mouths than humans. > > Kathleen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2001 Report Share Posted November 20, 2001 It is simply something I have read several times over the years. Something about fewer types of bacteria in a dog's mouth. And that they may have a more efficient way of getting rid of the bacteria. Here's a few links. <A HREF= " http://www.nsnews.com/issues98/w110998/mouth.html " >mouth</A> Here's one that's interesting. It points out that bacteria in the canine mouth is only controlled when the dog is able to produce it's natural enzymes. The argument is made that dogs on the typical nasty " dog food " diet are unable to produce this enzyme. Therefore, the bacteria runs amok and hence plaque and teeth problems. <A HREF= " http://www.amorepetfoods.com/03resources/03sun010226.html " >Amore Pet Foods - Vancouver Sun article Feb. 26, 2001</A> Hey, check this out! Interesting! <A HREF= " http://www.gi.alaska.edu/ScienceForum/ASF12/1234.html " >Dog Saliva: the Next Wonder Drug?, Alaska Science Forum</A> Here, lemme just copy this. I thought it was humorous. It bothers me very much that my significant other constantly allows her dog, a male poodle, to kiss her on the mouth and lips. Is this habit unhealthy? I give my girlfriend a lot of affection and I have told her how I feel. What should I do? (For the record I also love the dog, Dusty, a lot). A: Are you a man threatened by a rival male (even though he is a beast) or a gay woman troubled by the fact that your girlfriend is flirting with a male dog? Either way, be thankful if your only significant rival is a dog. According to my local veterinarian, the bacteria content is much worse in human saliva than in dog saliva. The only disease transmitted via a dog's mouth is rabies-communicable only through a bite, and extremely rare in dogs. A human kiss (not to mention a bite) can transmit herpes and other less serious illnesses such as strep throat and cold sores. Your significant other could argue that it is safer to be licked by a dog than to be kissed by a man. On the other hand, if you cannot roll over on this one, it may be time for your friend to fetch a new amour. Ooooh gross! I have never been into french kissing. And it looks like I'll be even less into it now. <A HREF= " http://www.grossology.org/pets/kissdog.html " >Grossology the science of gross things</A> Kathleen " The whole aim of practical politics is to keep the populace alarmed - and hence clamorous to be led to safety - by menacing it with an endless series of hobgoblins, all of them imaginary. " - H.L. Mencken In a message dated 11/19/2001 10:37:18 PM Central Standard Time, whalen@... writes: > Why would you think that ? > > Re: Introduction > > > > Dogs have cleaner mouths than humans. > > > > Kathleen > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2001 Report Share Posted November 21, 2001 Welcome to our group. I hope you learn lots here. We are pretty opinionated group but loveable too. Look forward to seeing you around. > Hi, I am a 37 year old mother of 4 children. My first three children > were vaccinated without any problems. My 4th child has been very ill > and did not begin the vaccination programme until she came out of > hospital at 5 months. When she began to have them she started to get > ill with lots of respiratory problems and after she had the 2nd lot > she had a respiratory arrest due to getting the para influenza virus. > It was discovered then that she did not have a thymus and all > immunisations stopped. > > We have recently seen an immunologist who has stated that her T cells > are stable enough for her to have the rest of the vaccines but I am > not 100% happy for her to have anymore vaccines. But also I am > concerned about her getting measles and chicken pox because they can > equally be life threatening for her. > > I look forward to any information you can give me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 Tracie..welcome!! Glad you found us, too. What is your step daughters name? What problems do you have with her? My son is 8 and can be a real handful at times. Today he rode with me for 12.5 hours and did great...except when we dropped his sister off at her apartment (he wanted to stay and watch a video). He even wanted to sit down and eat vs fast food, placed his napkin appropriately on his lap and was a real gentleman. Whew!! Ok..he did squirt ketchup on the table, but that is minor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 Tracie..welcome!! Glad you found us, too. What is your step daughters name? What problems do you have with her? My son is 8 and can be a real handful at times. Today he rode with me for 12.5 hours and did great...except when we dropped his sister off at her apartment (he wanted to stay and watch a video). He even wanted to sit down and eat vs fast food, placed his napkin appropriately on his lap and was a real gentleman. Whew!! Ok..he did squirt ketchup on the table, but that is minor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Welcome , You'll find one or two other ISOS medics on here, myself, harry, and a few who will moan because I've fogotton them:-) Welcome anyway, hope you enjoy the list and find it useful, Ian Listowner Introduction Hi, Quick Note Brash work for International SOS contracted to ChevronTexaco in Angola I am the senior nurse here we have 10 expatriate nurses between 2 platforms and the beach. First did my Medics course in Great Yarmouth, and will be taking it again in Aberdeen with AON who took over the course from RGIT. Brash Senior Nurse Supervisor InternationalSOS Cabinda Gulf Oil Company e-mail: Amed2@... Telephone: Ext. 2696 Member Information: List owner: Ian Sharpe Owner@... Editor: Ross Boardman Editor@... Post message: egroups Subscribe: -subscribeegroups Unsubscribe: -unsubscribeegroups Thank you for supporting Remote Medics Online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Ahh, Didn't think there was a lot of us ISOS folks around where exactly do you work then ?, Is your Boss Miles from London, Ian Cornish from South Africa or the wonderful from Singapore. Cheers Chaps Brash \ Gavin Lines Senior Nurse Supervisor Cabinda Gulf Oil Company e-mail: Amed2@... Telephone: Ext. 2696 > Introduction > > > Hi, > > Quick Note Brash work for International SOS contracted to > ChevronTexaco > in Angola I am the senior nurse here we have 10 expatriate nurses between > 2 > platforms and the beach. > First did my Medics course in Great Yarmouth, and will be taking it again > in > Aberdeen with AON who took over the course from RGIT. > > > > Brash > Senior Nurse Supervisor InternationalSOS > Cabinda Gulf Oil Company > e-mail: Amed2@... > Telephone: Ext. 2696 > > > > > Member Information: > > List owner: Ian Sharpe Owner@... > Editor: Ross Boardman Editor@... > > Post message: egroups > Subscribe: -subscribeegroups > Unsubscribe: -unsubscribeegroups > > Thank you for supporting Remote Medics Online. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 Oh my God! I can't believe it's you! A few months back, I read about at your website. Just heartbreaking. My condolences and warmest regards to you and your family. After reading your site, I have been on a mission to learn about cancer and the politics involved in the industry. And also to make others aware of these issues. You have certainly come to the right place for information! Blessings Kathleen In a message dated 12/28/2001 11:53:08 AM Central Standard Time, cecilecogez@... writes: > Hello everybody ! > My name is Cécile, I am french and living in the french Alps. > I have had four beautiful children, but the youngest one, darling > andre, left us at age 3.5, last June, after a 16 monthes battle > against a deadly pediatric cancer : neuroblastoma. > andre was born in November 1997 and was the perfectly healthy > child from the beginning, having only " well baby " visits at the > pediatrician, eating a lot, running all the time, a happy child. > During Spring 1999, he received 7 different vaccines in two monthes > (DPTH and MMR). In autumn, we noticed he was getting thinner, but the > pediatrician (at his 2 years visit in Novemeber) told us he was OK > ... and mid February 2000, he was diagnosed with neuroblastoma stage > IV (metastasized all over his body, he was dying). The oncologist was > thinking that his cancerous cells were very aggressive and that the > cancer might have started only 6 monthes before (hence my questions > regarding vaccines). 4 monthes after stem cell transplant, he > relapsed. > I met electronically Raphaelle Horwin whose son had died from a brain > tumor, and she was the one who opened my eyes to a possible link > between vaccines and cancer. > Right now, I have no answer : I plan to have his frozen tumor samples > tested for SV-40 and may be for the rubella vaccine (but what should > we look for ?) because I found an article on Medscape linking this > vaccine and a syndrome (OMS) related to neuroblastoma. > I have been quite lazy these last monthes, trying to get our life on > track even without andre, and being pregnant with twins (due next > spring), but I want to go forward and find something, if there is > anything to find ... It might help give some sense to the horror we > have been through ... > If some of you do have ideas, I will welcome them gladly ! > Last point : I also want to be as informed as possible, because I > have to decide what to do for the baby girl and the baby boy when > they are born, and what to do for my older daughters (almost 12, 8 > and 6) > Thanks for listening > > The Four Stages Of Life 1. You believe in Santa Claus 2. You don't believe in Santa Claus 3. You are Santa Claus 4. You look like Santa Claus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 Thank you Sheri for setting me straight! Their experiences seem so alike in many respects. Actually now that I think about it, wasn't Horwin's cancer a MEDULLAblastoma? Cecile, welcome. I'm so glad you found this list. As you can see, Sheri is quite knowledgeable. Blessings Kathleen In a message dated 12/28/2001 12:33:54 PM Central Standard Time, vaccineinfo@... writes: > No, this is Cecile. The you read about is Raphaele & > Horwin's . Pretty strange they both have the smae name isn't > Cecile. > > Sheri > > At 01:06 PM 12/28/2001 EST, you wrote: > >Oh my God! I can't believe it's you! A few months back, I read about > > at your website. Just heartbreaking. My condolences and > warmest > >regards to you and your family. > > > >After reading your site, I have been on a mission to learn about cancer > and > >the politics involved in the industry. And also to make others aware of > >these issues. > > > >You have certainly come to the right place for information! > > > >Blessings > >Kathleen > > > >In a message dated 12/28/2001 11:53:08 AM Central Standard Time, > >cecilecogez@... writes: > > > > > >> Hello everybody ! > >> My name is Cécile, I am french and living in the french Alps. > >> I have had four beautiful children, but the youngest one, darling > >> andre, left us at age 3.5, last June, after a 16 monthes battle > >> against a deadly pediatric cancer : neuroblastoma. > >> andre was born in November 1997 and was the perfectly healthy > >> child from the beginning, having only " well baby " visits at the > >> pediatrician, eating a lot, running all the time, a happy child. > >> During Spring 1999, he received 7 different vaccines in two monthes > >> (DPTH and MMR). In autumn, we noticed he was getting thinner, but the > >> pediatrician (at his 2 years visit in Novemeber) told us he was OK > >> ... and mid February 2000, he was diagnosed with neuroblastoma stage > >> IV (metastasized all over his body, he was dying). The oncologist was > >> thinking that his cancerous cells were very aggressive and that the > >> cancer might have started only 6 monthes before (hence my questions > >> regarding vaccines). 4 monthes after stem cell transplant, he > >> relapsed. > >> I met electronically Raphaelle Horwin whose son had died from a brain > >> tumor, and she was the one who opened my eyes to a possible link > >> between vaccines and cancer. > >> Right now, I have no answer : I plan to have his frozen tumor samples > >> tested for SV-40 and may be for the rubella vaccine (but what should > >> we look for ?) because I found an article on Medscape linking this > >> vaccine and a syndrome (OMS) related to neuroblastoma. > >> I have been quite lazy these last monthes, trying to get our life on > >> track even without andre, and being pregnant with twins (due next > >> spring), but I want to go forward and find something, if there is > >> anything to find ... It might help give some sense to the horror we > >> have been through ... > >> If some of you do have ideas, I will welcome them gladly ! > >> Last point : I also want to be as informed as possible, because I > >> have to decide what to do for the baby girl and the baby boy when > >> they are born, and what to do for my older daughters (almost 12, 8 > >> and 6) > >> Thanks for listening > >> > The Four Stages Of Life 1. You believe in Santa Claus 2. You don't believe in Santa Claus 3. You are Santa Claus 4. You look like Santa Claus Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 No, this is Cecile. The you read about is Raphaele & Horwin's . Pretty strange they both have the smae name isn't Cecile. Sheri At 01:06 PM 12/28/2001 EST, you wrote: >Oh my God! I can't believe it's you! A few months back, I read about > at your website. Just heartbreaking. My condolences and warmest >regards to you and your family. > >After reading your site, I have been on a mission to learn about cancer and >the politics involved in the industry. And also to make others aware of >these issues. > >You have certainly come to the right place for information! > >Blessings >Kathleen > >In a message dated 12/28/2001 11:53:08 AM Central Standard Time, >cecilecogez@... writes: > > >> Hello everybody ! >> My name is Cécile, I am french and living in the french Alps. >> I have had four beautiful children, but the youngest one, darling >> andre, left us at age 3.5, last June, after a 16 monthes battle >> against a deadly pediatric cancer : neuroblastoma. >> andre was born in November 1997 and was the perfectly healthy >> child from the beginning, having only " well baby " visits at the >> pediatrician, eating a lot, running all the time, a happy child. >> During Spring 1999, he received 7 different vaccines in two monthes >> (DPTH and MMR). In autumn, we noticed he was getting thinner, but the >> pediatrician (at his 2 years visit in Novemeber) told us he was OK >> ... and mid February 2000, he was diagnosed with neuroblastoma stage >> IV (metastasized all over his body, he was dying). The oncologist was >> thinking that his cancerous cells were very aggressive and that the >> cancer might have started only 6 monthes before (hence my questions >> regarding vaccines). 4 monthes after stem cell transplant, he >> relapsed. >> I met electronically Raphaelle Horwin whose son had died from a brain >> tumor, and she was the one who opened my eyes to a possible link >> between vaccines and cancer. >> Right now, I have no answer : I plan to have his frozen tumor samples >> tested for SV-40 and may be for the rubella vaccine (but what should >> we look for ?) because I found an article on Medscape linking this >> vaccine and a syndrome (OMS) related to neuroblastoma. >> I have been quite lazy these last monthes, trying to get our life on >> track even without andre, and being pregnant with twins (due next >> spring), but I want to go forward and find something, if there is >> anything to find ... It might help give some sense to the horror we >> have been through ... >> If some of you do have ideas, I will welcome them gladly ! >> Last point : I also want to be as informed as possible, because I >> have to decide what to do for the baby girl and the baby boy when >> they are born, and what to do for my older daughters (almost 12, 8 >> and 6) >> Thanks for listening >> >> > > >The Four Stages Of Life >1. You believe in Santa Claus >2. You don't believe in Santa Claus >3. You are Santa Claus >4. You look like Santa Claus > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2001 Report Share Posted December 28, 2001 My son's name is andre (not andre) and he was french completely (both parents are !), while little had an american father. andre's story is on his website (see below); andre died of neuroblastoma which is a cancer from the central nervous system, originating more than half of the time on one adrenal gland. Little had medulloblastoma, which is a brain tumor. ===== Cécile, wife to , mother of Nathalie(11.5), Sandrine(8.5), Karine(6) and andre(forever 3.5) dx 02/00 NBIV N-MYC amplified. Left us on June 14th, 2001 andre sent us two new babies due next Spring .... e-mail : cecilecogez@... andre's story : http://www.caringbridge.com/page/alexandre __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2001 Report Share Posted December 29, 2001 cecile, you are so brave! your story made me cry. Welcome to this list. you will find out so much here. kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2002 Report Share Posted January 7, 2002 , welcome to the group. and bravo to your decision which is so clearly based on thoughtful research. if your children are not ill, why bother to take them to the doctor. you cannot work with a ped who has that attitude. he will undermine your decision and make it very difficult for you to believe in yourself. Why not wait until you have found a doctor that you can truly work WITH in every way. search carefully and i believe you will find one. i spent hours and hours doing this before my daughter was born when i first moved to chicago and i found lots of doctors and one ped. i dont go to a ped. i go to an anthroposophical doctor who works a lot with babies. she is great and im so thankful to have found someone i trust. you can find someone too, and in the meantime you dont have to go to someone that you have to PROVE anything to. its not worth it. good luck and welcome. kim In a message dated 1/7/2002 7:58:19 PM Central Standard Time, rroussel@... writes: > We > are trying to find a new doctor for them because their current doctor > is pro-vaccination. In fact, she told us that she believes > vaccinations are the greatest medical accomplishment of the century. Quote Link to comment Share on other sites More sharing options...
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