Introduction

[Guest guest]

debbie, you are so awesome -- you are my hero! :)

it is really motivating to know someone who has made their goal and

maintains it so well.

*~*~*~*~*

Carolyn

RE:

How in the world did I forget to mention WW??? OMG!!! Thank you Carolyn!!

I have been on WW for I think a little more then two years and have been at

my goal weight for over a year. I still follow the plan, but I leave myself

one day to eat what I want.

---

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.672 / Virus Database: 434 - Release Date: 4/28/2004

[Guest guest]

Welcome ATM,

Yes, you belong here ) I'm Helen 53,from NW Ohio... So sorry to hear of your illness ( I sent a link, maybe that will have some info of it for you...

On here, No one is Worse off than the other ) We all, including you have some major battles to deal with... We talk to each other and support each other... No post is too long or too short ) Being depressed over what you are going through is very normal... Talk all you want here, someone will answer, there are a lot of nice folks on here...

((( Welcoming Hugs )))

Helen

Not quite sure if this is the list I need to be on or post to, justfound it in the directory. I'll give you some of thestory so that you know who I am.My life was fine up to the age of about 28. From there its just gonedownhill rapidly and when I feel like I'm clawing my way back, someoneor something decides that I need to stay at the bottom of the Hill ofHappiness. Why is this you all say? Well, let me begin...When I was 27, I suffered from a serious bout of pneumonia. A seriousenough one that put me into intensive care of the local hospital. Idecided at that point I'd live my life one day at a time from there onin as you don't know what's around the corner. After about 3 1/2 weeksin hospital I came out to a rather large debt problem due to moneythat had to be spent when I was in hospital. While I was recovering Ihad this problem of this money worry on my mind all the time, and thisI suppose is when I first got depressed. I managed to get this sortedout with a re-mortgage of the house and everything was OK again..until...I got a Superficial Vein Thrombosis, a painful swelling of the legveins in my right leg. This wasn't too bad and I could continue towork (albeit in pain). This cleared up then I got hit with another,the Doctors were at a loss as to explain it in someone as young as me.Then the worst thing hit, a leg ulcer on the front of the right shin.For those that don't know what a leg ulcer is, its a very painful(initially) wound that is very slow to heal. I spent 3 days a weektravelling to the local surgery to have it treated and after about 8months, it had healed. All fine and dandy... until...Last year, my leg swelled to twice the size that it should have been.I also had breathing trouble and they thought I had a DVT so I wasrushed into hospital and checked over, only to find that they said itwasn't a DVT and sent me on my way with painkillers and told to restat home. I did this however it got no better and the worst thing ofall, the old ulcers broke out so I have a leg the size of a tree trunkand the ulcers had returned. To top this, because of my illness I feltI had to leave work so the spending on the cards started again. To jump forward to the present day, I had a scan the other day on myleg and they have said that I have no blood supply in the deep veinsof my leg, I felt devastated, the feelings you get when everything youtouch turn to crap. I feel that everything that has gone on is myfault, I know its irrational but I pushed my partner away more (andstill am even know if she left me now I'd feel even worse).Now everyone said "no, its fine, they will be able to operate onyourleg and you'll be fine", Well I just had my surgeons appointment and to be honest, itdidn't go well. I was hoping that surgery was going to be thecure formy leg and allow it to heal and not be a problem anymore. However,I've been told that the problem is not curable by surgery.Actually,its not curable at all. Basically it turns out that my problem is onethat I am going to have to put with for evermore basically. The vein is so damaged that there is no chance of restoring thecirculation. This means that I will be wearing a compression stockingfor the rest of my natural and also always have the possibility of theleg breaking down into ulcers again at any time or the possibility ofgetting another DVT. Why has all this damage occurred? Well, itappears that I have had not just an SVT (Superficial Vein Thrombosis)in the past but actually one (or more) was a DVT (Deep VeinThrombosis). Now I suppose the one saving grace is that I haven'tdropped dead from a PE (Pulmonary Embolism which are usually fatal) ora stroke before now. My exact words to the surgeon were "I'm buggered reallyaren't I?" to which he shrugged and said nothing. After theconsultation he just said "Sorry.", shook my hand and leftthe room. Oh well, as he said, I'll have to make some changes to my life toaccommodate what is going on, though quite what that is I don'tknow.I've just swapped my old Solvadol painkillers for someDihydrocodeine but even they don't seem to be doing the trick. Thethought of pain/ulcers/DVTs etc don't fill me with much happinessatm.To cap it all, I'm 31 years old, I know there are people worse offthan me, just that I feel a bit down atm

[Guest guest]

HI!

Welcome to the group! How long has Hugo's curve been at 36 degrees?

Is the stapeling whats holding it there, or is because the stapeling

not working that it progressed?

I have two little boys with scoliosis, Cameron is 4 1/2 and Dylan

just turned one. Cams curve was 85 before his de-tethering, went

down to 55, and now is back to 69. Dyl's is at 40. They both have

MRI's in a couple of weeks. Casting may be an option for Dyl. Take

Care!

S.-

-- In infantile scoliosis treatment , " mrsz1ppy " <mrsz1ppy@y...>

wrote:

> I recently joined this group, and have not have time to read the

> archives yet, but from my brief lurking, I thought I'd better say

> hello. I don't even know you, but we have alot in common--I can't

> believe that I found a group that has heard of Miss Mehta! My son

was

> diagnosed with progressive infantile idiopathic scoliosis when he

was

> 2, in 1994. Our doctor at ish Rite Hospital in Dallas told us

> that his left thorocolumbar curve was 28 degrees, come back in 4

> months for a follow up x-ray, and we would start planning his

surgery

> when his curve got to 50 degrees. To make a long story short, 2

> months later Hugo got his first plaster jacket from Miss Mehta, the

> first of 9 trips we made to England. Thank goodness my husband

worked

> for American Airlines! His curve had progressed to 48 degrees.

Miss

> Mehta told me Hugo was the only American she casted. One other

child

> of an American MD came to her, but the child's scoliosis was

resolving

> and didn't need treatment.

>

> Hugo was in a plaster jacket for 18 months, which reduced his curve

to

> 25 degrees. He has one vertebrae that twists forward(lordosis),

which

> made his curve difficult to correct. He then went into a brace,

which

> he wore until age 10. His curve was still 26 degrees, but he was

> really tired of wearing the brace. So Hugo and I went to Shriner's

in

> Philadelphia and had an experimental procedure done, vertebral body

> stapling, which is a type of internal brace, without fusion.

> Unfortunately, at his last x-ray, his curve had progressed to 36

> degrees, but he looks good, feels great, and even if he has to have

> that dreaded fusion at some point, he's a lot taller than he was

when

> he was 3.

>

> Camille

> mother of Hugo, 12

[Guest guest]

Camille,

I am so glad that you found this group!!! I have been looking for someone with

experience with the vertebral body stapling surgery for over 6 months now.

My daughter, age 5, was diagnosed with infantile idiopathic scoliosis at age 18

months. Her curve was 20º. We were going to watch it. In the meantime, she

had

surgery for hip dysplasia, wore a body cast for 8 weeks, and her curve

progressed

during this time to 35º. So, two days prior to her 2nd birthday, she was fitted

for a

TLSO and has been wearing it ever since (3 years). Her curve last measured (out

of the brace for 6 hours) 25º. We see Dr. Lubicky at Shriners Chicago, and he

has

mentioned the vertebral body stapling surgery to us. Did Dr. Betz perform your

son's surgery? What was the surgery like? Was there a lot of recovery time?

Have there been any complications?

I'm sure I'll have more questions but I'd better stop for now. ;-)

Welcome!

Nola, Bronwen's mom

On 4 Jun 2004 at 18:46, mrsz1ppy wrote:

> I recently joined this group, and have not have time to read the

> archives yet, but from my brief lurking, I thought I'd better say

> hello. I don't even know you, but we have alot in common--I can't

> believe that I found a group that has heard of Miss Mehta! My son was

> diagnosed with progressive infantile idiopathic scoliosis when he was

> 2, in 1994. Our doctor at ish Rite Hospital in Dallas told us

> that his left thorocolumbar curve was 28 degrees, come back in 4

> months for a follow up x-ray, and we would start planning his surgery

> when his curve got to 50 degrees. To make a long story short, 2

> months later Hugo got his first plaster jacket from Miss Mehta, the

> first of 9 trips we made to England. Thank goodness my husband worked

> for American Airlines! His curve had progressed to 48 degrees. Miss

> Mehta told me Hugo was the only American she casted. One other child

> of an American MD came to her, but the child's scoliosis was resolving

> and didn't need treatment.

>

> Hugo was in a plaster jacket for 18 months, which reduced his curve to

> 25 degrees. He has one vertebrae that twists forward(lordosis), which

> made his curve difficult to correct. He then went into a brace, which

> he wore until age 10. His curve was still 26 degrees, but he was

> really tired of wearing the brace. So Hugo and I went to Shriner's in

> Philadelphia and had an experimental procedure done, vertebral body

> stapling, which is a type of internal brace, without fusion.

> Unfortunately, at his last x-ray, his curve had progressed to 36

> degrees, but he looks good, feels great, and even if he has to have

> that dreaded fusion at some point, he's a lot taller than he was when

> he was 3.

>

> Camille

> mother of Hugo, 12

>

>

>

>

>

>

>

>

[Guest guest]

Camille,

Thanks for joining the group!

Its great to hear that you found Miss Mehta before Hugo underwent premature surgical intervention. Good job Mom!

Hugo sounds like he is doing very well.

Are you happy with your decision to "fight the good fight," with plaster casts/braces up until the time you/Hugo and the doc decided that the timing was right for surgery?

How did you come across Miss Mehta 10 yrs ago? Did someone refer you to her, or did you have to find her on your own?

What has been the american docs (that Hugo has seen) perception/opinion on the course of treatment you decided on (plaster casts instead of surgery at 50 degrees)?

Have you ever come across any other doc in the U.S. that will apply serial corrective plaster casts early?

How is Hugo's trunk/torso size? Smaller than usual/normal/average?

Sorry for all the questions..

Thanks for joining the group!

Sincerely,

H. (HRH)

[Guest guest]

Hi, Bob. Thank you for emailing me. I am looking for moral support mainly. My

son is in Ohio and I am in Virginia. I had lived in Ohio for 2 years but lost my

job and couldn't find another one so I cam back to Virginia to find a job. My

decision to come back was made about a week before his cancer diagnosis. He was

admitted to the hospital yesterday for 5 days to do chemo. It's really scary. I

wish I could be there with him but there is nothing I can do. Of course if he

gets any worse I will go back. Thanks for replying back.

Bob Beiswenger <rbeiswenger@...> wrote:,

What kind of support are you looking for? Are you looking for alternative

approaches or a better understanding of conventional methods? Or moral

support? Perhaps you are looking for several things...

Please let us know as much as possible about your son's condition and

current treatment along with some ideas of your questions and needs.

Best wishes,

Bob B.

Introduction

> Hi, my name is . I am new to this. My 23 year old son has

cancer and is starting chemotherapy today. I am looking for support from

people who understand and know more about cancer than my relatives do. I

would like to be a productive member of the group. My email address is

gram612002@....

>

>

> ---------------------------------

> Do you ?

> Friends. Fun. Try the all-new Messenger

>

>

[Guest guest]

Hi ,

My wife has been dealing with ovarian cancer since it was diagnosed in Dec.

2001. We went to a hospital in Mexico twice that year, but the cancer was

still spreading. She therefore opted for conventional treatment

(chemotherapy) in August 2002 and has been receiving treatments since then,

going through different chemotherapy protocols. Unfortunately, the cancer is

still there and slowly spreading in spite of the treatments. That is my/our

story in a nutshell.

The chemo treatments, we have learned, vary in their side effects. Some are

quite grueling, but others are not so bad (but still not a " cake walk " .).

Personally, I am not " for " these treatments, but it's my wife's decision and

I have to support her.

It seems that some people are able to handle the treatments quite well - it

all depends on the individual and the protocol (the drugs given). You will

just have to wait and see with your son, hoping and praying for the best.

There are some good methods for dealing with some of the side effects,

though conventional doctors may not support them. For example, ginger (raw,

tea, capsules...) is good for fighting nausea. Also, the Sharper Image

sells an electric device - looks like a wrist watch - that emits an electric

impulse into the wrist. This has helped my wife tremendously with the nausea

symptoms. The drugs/pills that were prescribed for her worked, but they

would have their own side effect - headaches! These are just a couple of

examples - more are out there, and I encourage you and your son to do some

research to learn more. There are books in bookstores and lots of

information on the internet. This list will help, too. ( I don't claim to

have all of the answers by any means; a few at best....).

Best wishes to you and your son,

Bob

Introduction

>

>

> > Hi, my name is . I am new to this. My 23 year old son has

> cancer and is starting chemotherapy today. I am looking for support from

> people who understand and know more about cancer than my relatives do. I

> would like to be a productive member of the group. My email address is

> gram612002@....

> >

> >

> > ---------------------------------

> > Do you ?

> > Friends. Fun. Try the all-new Messenger

> >

> >

[Guest guest]

Dear Bill,

If you want some non-traditional employment settings for Paramedics

information then you have come to the right place!

Kaz

Introduction

Hello Everyone,

I just wanted to take a minute to introduce myself. My name is Bill

Cowan and I am currently working as a Paramedic in Iraq for KBR

Services.

I have been working as a Paramedic for over ten years now with more than

half of that time spent in remote settings. I have worked in various

care settings including critical care, law enforcement, in hospital

(emergency room), and the offshore industry. My last job before

deploying to Iraq was on an oil rig in the Bay of Bengal, Offshore

India. I am currently working on a presentation about non-traditional

employment settings for Paramedics. I am looking forward to talking

with everyone.

Regards,

Bill

PS - Sorry about the long e-mail signature but I am using a corporate

account.

Bill Cowan, EMT-P

KBR KELLOGG BROWN & ROOT SERVICES

APO, AE 09378

C5 - Camp Cooke

Al Taji, Iraq

Office Ph: 1-281-669-1547 Ext 147

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any attachments).

[Guest guest]

Hi Woody,

Welcome to the list

I live just up the road from you in sunny Bude ! So you're not on your own !

Enjoy the banter on the list and don't be afraid to put your six eggs in

'dreckly'

Best wishes

Ninian Northern Platform

North Sea

introduction

hi everyone

my name ia Ian " WOODY " Woodland. ex forces merdic (kosovo, sierra leone

etc etc) and i am now a stae registered paramedic in sunny cornwall, england.

BUT with poor wages and little fulfilment i am very much interested in working

both off shore and in hostile areas (iraq, etc). if anyone who has done this or

is currently doing this please could you send some information, or at least

point me in the right direction.

many thanks

woody

[Guest guest]

Hi Gillian,

Welcome to the group!!! Sorry to hear you are having problems again. Unfortunately there is no cure at present, but we have hope that some one will come up with something. The most interesting so far has been work with electrical stimulation of the nerves - sort of pacemaker ! It is very early days.

I hope that by joining us you will be able to find some tips on how to cope with your specific problems. If you read the posts for some weeks back there may be something that is useful, otherwise ask questions and any one with an answer or good idea will chip in and let you know how they cope.

Has your oesophagus stretched out a lot? Mine has and I now choose to have mostly liquid food so the food won't sit in the distended portion for ages.

Good wishes,

Joan Johannesburg

South Africa

Introduction

Hello, My name is Gillian, I'm 32 and live in Inverness, Scotland.I have suffered from Achalasia for the last 8 years.So far I have had the hellers myotomy and fundoplication, also 2 balloon dilations. I have just returned from hospital after getting another manometry test and barium both of which I have had in the past. I am having real problems swallowind solid food and suffer a lot of pain at times. There has to be a cure out there somewhere!!!!Gillian

[Guest guest]

Welcome Deanna! I'm in the Adirondacks... also not Central NY, but they let me

in... and welcomed me with open arms! This is a great bunch of bubbly people.

You're gonna love it here!

Good luck with your " new " business!

Introduction

Hello All,

I have been here for a while, but don't think I ever introduced myself.

I live in Orange County (I know that is not in central NY, but can I

stay? ). I recently moved here from AZ where I had lived for 10

years. I have been making soap for over 4 years now. I started a part

time soap business while I was working full time as a Network

Administrator for a technology company and it was going well, selling to

friends and co-workers.

I stopped making soap last year when my son passed away, and am just now

getting back to it. I quit working full time when I moved here and am

going to devote all of my time to soaping. I registered my business

name at the county clerk's office today and am getting the website done

as well as getting my inventory back up.

I look forward to being a part of the group and learning new things and

hopefully sharing some of my soaping experience.

Deanna

OCSoapCo.

www.ocsoapco.com

[Guest guest]

Hi Deanna,

Greetings from Buffalo, wny and they let me stay. Looking forward to getting

to know you.

------------------------------------------------------------------------------

[Guest guest]

Hi Deanna & Welcome!!!

You are more than welcome here! This group was started way back when

as a co-op group, but soon grew into a wonderful group of sharing &

caring soapers. We've got members from all over, so we don't restrict

our membership to CNY. Heck, they let me stay even when I deserted

all the NY'ers for the sunny south of SC! LOL!

You live in Orange County huh? Dh & I are avid American Chopper fans.

I just love Sr. & Jr.

Okay, back to soap. What kind do you make? Do you make anything else?

Feel free to jump in anytime!

Colleen

Country Meadow Creations

http://www.countrymeadowcreations.com

[Guest guest]

Welcome Aboard Deanna!!! Heck, neither Colleen and I are in CNY either and

we are listmoms! LOL. I think we should change the C in CNY to mean Cool

instead of Central LOL.

Im in WNY near Rochester. I've been soaping for about 7 years and I do CP,

MP and variety of other Bath and Body things.

Good luck with your business!

Join in anytime you want to.

Shaye

Introduction

Hello All,

I have been here for a while, but don't think I ever introduced myself.

I live in Orange County (I know that is not in central NY, but can I

stay? ). I recently moved here from AZ where I had lived for 10

years. I have been making soap for over 4 years now. I started a part

time soap business while I was working full time as a Network

Administrator for a technology company and it was going well, selling to

friends and co-workers.

I stopped making soap last year when my son passed away, and am just now

getting back to it. I quit working full time when I moved here and am

going to devote all of my time to soaping. I registered my business

name at the county clerk's office today and am getting the website done

as well as getting my inventory back up.

I look forward to being a part of the group and learning new things and

hopefully sharing some of my soaping experience.

Deanna

OCSoapCo.

www.ocsoapco.com

[Guest guest]

Hi Tammy, yep a lot has changed in two years. Welcome back. What does

SAHM an acronym for?

>

> Hello Ladies! My name is Tammy. I'm a 31 year old SAHM to two

> little girls. They are six and four. This is my second time

trying

> BFL. I lost 30 + pounds the first time and fell off the

bandwagon.

> Why, I don't know. My husband, me, a friend of mine and her

husband

> all started yesterday. I felt hungry all day long. I don't

> remember being like that last time but I stuck with it and I'm

doing

> okay today. I didn't eat my first meal until 10:50am. It was a

> Myoplex bar and a bottle of water. I would like some great ideas

> for snacks. I also noticed Walmart doesn't have the bars anymore.

> Have things changed in the two years since I done BFL?

>

> Tammy

[Guest guest]

Hi Tammy and Welcome! You did great your first time on BFL. This

time, just take it one day at a time. I think I am in week 7 now, man

how time flies. Anyway, you need to evaluate your eating schedule.

YOu should be eating right upon getting up in the morning (unless you

prefer to do morning workouts on empty stomach). I do remember my

first day of BFL, back 1.5yrs ago, and I was hungry all day too.

Takes a little bit of time for your body to adjust to less food/more

meals. Here is what my day looks like in case it might help you:

7am - myoplex lite shake

9:30 - 1c cottage cheese + 1/3c Kashi Go lean cereal

Noon - big salad w/FF dressing (usually)

3:00 - morningstar farms veggie pizza burger & a fruit or complex carb

5:30 - 6:30 workout

7:00 - DINNER - something EASY - like chicken breast & cantalope or

ham steak & yams or turkey burger & 1pc WW bread

9:00 - 1/2c cottage cheese & 1/2 c fruit (i keep to small cuz I am

going to bed)

I also have myoplex lite shakes and bars on hand for those JUST IN

CASE moments! And be sure to eat a salad of spinach greens once a

day, it helps you to feel more full!

>

> Hello Ladies! My name is Tammy. I'm a 31 year old SAHM to two

> little girls. They are six and four. This is my second time

trying

> BFL. I lost 30 + pounds the first time and fell off the

bandwagon.

> Why, I don't know. My husband, me, a friend of mine and her

husband

> all started yesterday. I felt hungry all day long. I don't

> remember being like that last time but I stuck with it and I'm

doing

> okay today. I didn't eat my first meal until 10:50am. It was a

> Myoplex bar and a bottle of water. I would like some great ideas

> for snacks. I also noticed Walmart doesn't have the bars anymore.

> Have things changed in the two years since I done BFL?

>

> Tammy

[Guest guest]

hi Helen

My daughter 17 months virtually and unvaxed. I was lucky in that i

havent had too much problem although have had some issues with this

line.

As a child i was part vaxed myself.

Is your son in nursery yet? just wondering how things are there with

all this " epidemic " talk panicking the sox off everyone already here.

I think you'll find vaxers tend to do that, they aren't very open

minded, very fixed in their opinions, yet often cannot debate the

issue very much because they actually don't know much beyond the

official line fed to them. in nurse training yknow they get fed a

lot of official lines, its not easy to change that thought process.

As you say these things are often just new to them but really i

think people though well intentioned butt in a bit too much

sometimes.

I am thinking of home edding my dd, I'm delaying nursery for her as

she just isn't ready yet for it and we'll see what i think about the

local schools at the time.

If you look at the governmental agency, the hpa they have all kinds

of official figures. for example,

http://www.hpa.org.uk/hpa/news/articles/press_releases/2004/041001_me

asles.htm

http://www.hpa.org.uk/infections/topics_az/measles/data.htm

You need to remember not only is there obviously no news but mmr

sells newspapers, parents want info and think they're getting it,

it's productive to write all these stories. it also encourages you

through fear to run and get your mmr.

There are still many questions about the mmr, there's also the

ommission of data on singles in these forcasts.

You can take official info but it's all statistics for a purpose,

they can all be manipulated. Some say reported not confirmed, some

say deaths but no ages some say case numbers and not deaths, non

usually say if already in vaxed children or there general health or

treatment given, all influencing factors.

W.H.O also has data on the vaccine schedules in other countries

which vary in constituents, vaccine and age at times greatly to the

UKS. So who is right there? we have no authority.

Theres a few books, it depends what you're looking for. tbh I'd

look first online at VAN, Whale, The Informed Parent, web boards and

even nhs direct. if you have a good relationship with your mother

or gp or hv then put your questions to them and consider their

responce. Some gps will vary slightly, some don't even really know

themselves, they're kept in the dark.

MY dh had measles he tells me, i didn't have a vax for it and

didn't. has your son caught anything yet? my daughter hasn't.

Concern yourself also with diet and lifestyle which will help you in

any epidemic more than a needle.

bw

A (uk)

[Guest guest]

Hi Almasyk,

Thanks for your reply.I will check out the web sites.

When I was a child(I'm 37) the only vaccinations given where smallpox,polio, and

Dip,Whooping cough and tetanus.I had Measles once,German measles twice,Mumps and

chicken pox(when I was older) but had no complications.

Both my children had chickenpox in May when most of Home education group caught

it.They had been in contact with Chicken pox previously but never caught

it.Actually it did worry me when they got chicken pox as I thought up to that

they had good immune systems and I started thinking what if they get Measles

etc.I try to feed them well and try to use Homeopathic remedies and herbal

remedies.

No my son isn't in Nursery ( he is involved in all the Home education meetings

with my 10yr old and other activities so we haven't felt the need to send him).

I don't know how they know there is going to be an epidemic anyway! :0)

All the people I have spoke to in the past like nurses, Hv and Doctors always

always say vaccinations are the best.I had to take my son to Accident and

emergency when he banged his head a couple of months back and the doctor seemed

more concerned that he hadn't had is vaccinations! To be honest I didn't

question vaccination till I started Home educating my daughter at 3.5.I think

its been drummed in me from birth that its irresponsible to not vaccinate and it

is hard to go against that sometimes.

Helen

[Guest guest]

Hi again

Thought i should add on

That's interesting to hear the old schedule, I'm not sure what it

was 30 years ago exactly, other than it being smaller than today and

no doubt smaller than in years to come the way it is going.

Gm twice, unlucky! thats pretty rare. I've had gm and mumps (at the

same time!), chicken pox, whooping cough-as diseases. Not what I'd

call fun but really no long term issue, wc when i was still quite

young at 3. Amazingly our gp was refusing to give the vaxes

himself, during " the scare " time.

Although anythings a worry, the americans are really really freaked

out about CP you know, get told they're all going to die. You have

to wonder if some of the same logic is operating here with our own.

I got it when i was 11 or so and apart from terrible itching that

was it. A lot of complications are in the immune compromised-where

initial treatments aren't given/good care and time for recovery, in

countries without good general living standards or access to

healthcare information or treatment. I like to look at actual

numbers of deaths and logically you'd expect some even here, but the

numbers aren't tha high, compared with the numbers of vaccinations

being given. What do we do for Hep A, chicken pox, colds, etc-we

get on with it. I tend to think if you've a strong body it will get

a knock or two and then bounce back, with little issue. Weakened

bodies can't do that to the same degree.

We've started to look at homeopathy and use it now and again. i'm

trying to learn more about it, and nutritional therapy etc.

Well they've been saying since 1999 or so an epidemic is comming, it

hasn't yet so by chance odds it's possible that one may turn up now

they've been saying it long enough lol. I read earlier on a

search it's a computer model, now we can be sure that's not exactly

proof is it. Also it said in one place, finally, that it would

first be London where theres the low low uptake rate and potentially

other parts of the country " in the future " so it's really a load of

hullaballoo. It's gotton many a parent of pre 12 mth old worried

though and i think it's somewhat a peer pressure tactic which i find

very underhand.

My gp wasnt too bothered at first, he just wanted us to have the

polio for the baby and also my dh to avoid the catching for him from

the baby! how rediculous a scenario to get into. Live polio was not

a route i was going to go down. later on i had a few chats and the

hv tried to schedule a 12 mth chat surprise surprise. As i don't

have much to do with them, not being sick, it's not too much of a

problem. I stopped the call up cards, i bought some medicines for a

1st aid kit, I'm doing immune boosting, we're moving next week yipee

and tbh I'm not reregistering with a gp for a good while so things

should be peaceful. i only went to the gp to register when i was 5

mths pg anyway, he was worried I'd missed the eat folic acid advice

lol. I told him I'd been doing it anyway since preconception. They

do think you're idiots i think.

My brother had a bit of a vaccine reaction, being part vaxed and not

suffering i think also helped me make up my mind. We're not keen on

the take an antibiotic incase line of thought so it was just a

natural extention. I wanted a natural birth and pg so started there

i guess, refused the vit k, no pethidine, etc. Then we started off

thinking of part vaxing, singles and delayed vax but in the end

after trying to set some framework in that decided for non.

You have to watch them at a & e, a few people have been told say for a

tet jab they only have the DT available etc etc.

I'm kind of used to it but i guess the idea straight off sounds a

bit nutty because it's the opposite to a kind of inbuilt logic,

which is itself a culturally imposed rule and no fact at all.

I think if you look a lot at the details of diseases, where they're

found, what the problem criteria is etc it can be a revelation as

it's quite different in reality to what you might think. thats even

without going into the problems with the vaxes themselves.

bw

A

>

[Guest guest]

Hi Terrabrie.

I am also relativley new to this group. This is the first time I have

actually responded. Ive been " Supposedly " positive since 1991. Ive never been on

any

meds, and so far am very healthy. My husband also wants us to have a child

together. I am a 37 year old woman and want this more than anything. Ive been

doing a lot of research as well and am still trying to find out what the real

truth is about this virus. I guess if you have an undedectable viral load it

may

be safe in having a baby. The thought is still scary, I would be devasted if

I brought a sick child into this world. My doctor seems to imply that I need

to take meds for the baby's sake while I am pregnant. And that breast feeding

is definatley out of the question. This saddens me because a mothers bond to

her child has to do a lot with breastfeeding. (I have a 17 year old daughter).

All I can do is to surrender all this confusion to God and ask for his

guidance.

SHould you, (Or anyone else in the group) have any important information or

resources please feel free to email me.

I wish you all the best.

Liz

[Guest guest]

Liz,

It is good you are thinking about all the issues surrounding having children

and the real truth about the virus. I applaud you for facing all this

headon!

I would like to correspond with you privately, so please email me if you are

interested.

S.

In a message dated 11/2/2004 2:46:48 AM Pacific Standard Time,

mrrqndstny@... writes:

Hi Terrabrie.

I am also relativley new to this group. This is the first time I have

actually responded. Ive been " Supposedly " positive since 1991. Ive never

been on any

meds, and so far am very healthy. My husband also wants us to have a child

together. I am a 37 year old woman and want this more than anything. Ive

been

doing a lot of research as well and am still trying to find out what the

real

truth is about this virus. I guess if you have an undedectable viral load

it may

be safe in having a baby. The thought is still scary, I would be devasted if

I brought a sick child into this world. My doctor seems to imply that I

need

to take meds for the baby's sake while I am pregnant. And that breast

feeding

is definatley out of the question. This saddens me because a mothers bond to

her child has to do a lot with breastfeeding. (I have a 17 year old

daughter).

All I can do is to surrender all this confusion to God and ask for his

guidance.

SHould you, (Or anyone else in the group) have any important information or

resources please feel free to email me.

I wish you all the best.

Liz

[Guest guest]

I appreciate your response. Some of what you said was very comforting,

although the breast feeding part raises some concern. I hear all this controvery

and

dilema about mothers possibley able to transmit the disease to the child

while breastfeeding. Are there any supporting documents that state that this is

safe? Do you kow of anyone personally that has had a child and the child is

healthy? I would really like to interact with anyone that has had a good

experience with this.

Thank you again for responding.

Best Wishes

Liz

[Guest guest]

I agree, that even though HIV is a myth, it is incredibly difficult to

decide to have a child, when you have a positive diagnosis. Not only, do

you have to worry about some brainless doctor telling you to take AZT and

not breastfeed, you're in danger of losing your child to social service,

if someone gets their freak on and decides you're dangerous.

Most mothers need to have midwives instead. If you can find a dissident

doctor, some of them set up their clinics, so you can have your baby

there.

If you do decide to have a child, you should absolutely not take AZT, or

any other medication while you're pregnant and you absolutely should

breast feed. Just like any other mother.

Viral load is a load of horseshit, so don't even think about it. Even

getting it checked is a collosal waste of time.

If you're fearful, do this for me. Go out and find one baby. Find one

baby who was born to a dissident HIV+ mother and has died because she

didn't buy into the AIDS INC lies.

Really, if you can find one healthy dissident mother who lost her baby

supposedly to " HIV " , you let us know, and we'll understand why you may

have doubts.

Otherwise, it's merely a social risk. Fuck the doctors.

Caer

[Guest guest]

Exactly.....that is my point!

(...sorry, kind of tired today, I did not word that first reply very

well....:-)

In a message dated 11/2/2004 9:16:40 PM Pacific Standard Time,

selbrai@... writes:

What virus???

--- lenfesteys@... wrote:

>

>

> Liz,

>

> It is good you are thinking about all the issues

> surrounding having children

> and the real truth about the virus. I applaud you

> for facing all this

> headon!

>

> I would like to correspond with you privately, so

> please email me if you are

> interested.

>

> S.

>

> In a message dated 11/2/2004 2:46:48 AM Pacific

> Standard Time,

> mrrqndstny@... writes:

>

>

> Hi Terrabrie.

>

> I am also relativley new to this group. This is the

> first time I have

> actually responded. Ive been " Supposedly " positive

> since 1991. Ive never

> been on any

> meds, and so far am very healthy. My husband also

> wants us to have a child

> together. I am a 37 year old woman and want this

> more than anything. Ive

> been

> doing a lot of research as well and am still trying

> to find out what the

> real

> truth is about this virus. I guess if you have an

> undedectable viral load

> it may

> be safe in having a baby. The thought is still

> scary, I would be devasted if

> I brought a sick child into this world. My doctor

> seems to imply that I

> need

> to take meds for the baby's sake while I am

> pregnant. And that breast

> feeding

> is definatley out of the question. This saddens me

> because a mothers bond to

>

> her child has to do a lot with breastfeeding. (I

> have a 17 year old

> daughter).

> All I can do is to surrender all this confusion to

> God and ask for his

> guidance.

>

> SHould you, (Or anyone else in the group) have any

> important information or

> resources please feel free to email me.

>

> I wish you all the best.

>

> Liz

>

>

[Guest guest]

What virus???

--- lenfesteys@... wrote:

>

>

> Liz,

>

> It is good you are thinking about all the issues

> surrounding having children

> and the real truth about the virus. I applaud you

> for facing all this

> headon!

>

> I would like to correspond with you privately, so

> please email me if you are

> interested.

>

> S.

>

> In a message dated 11/2/2004 2:46:48 AM Pacific

> Standard Time,

> mrrqndstny@... writes:

>

>

> Hi Terrabrie.

>

> I am also relativley new to this group. This is the

> first time I have

> actually responded. Ive been " Supposedly " positive

> since 1991. Ive never

> been on any

> meds, and so far am very healthy. My husband also

> wants us to have a child

> together. I am a 37 year old woman and want this

> more than anything. Ive

> been

> doing a lot of research as well and am still trying

> to find out what the

> real

> truth is about this virus. I guess if you have an

> undedectable viral load

> it may

> be safe in having a baby. The thought is still

> scary, I would be devasted if

> I brought a sick child into this world. My doctor

> seems to imply that I

> need

> to take meds for the baby's sake while I am

> pregnant. And that breast

> feeding

> is definatley out of the question. This saddens me

> because a mothers bond to

>

> her child has to do a lot with breastfeeding. (I

> have a 17 year old

> daughter).

> All I can do is to surrender all this confusion to

> God and ask for his

> guidance.

>

> SHould you, (Or anyone else in the group) have any

> important information or

> resources please feel free to email me.

>

> I wish you all the best.

>

> Liz

>

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>