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Hi

It's good the practice nurse is being accomodating at the moment.

That should reasure you that investigation isn't anything but a

resonsible approach, whatever the conclusions.

For myself, if i felt comfortable with any particular vaccine then i

wouldve accepted them for my baby. You might feel more comfortable

with one than another and deciding which you want and dont want or

even at what age is again a responsible thing for health, after all,

each country has a different immunisation schedule and list, they

can't all be right.

I'd say take some time off, even a few days and come back to it,

then do so in smaller parts. Write out the immunisation schedule

then look at each one in turn from the one you feel most severe

first and work through them that way - logically.

I guess decisions come down to the individual and everyone pretty

much makes a slightly different decision, thats why noone can make

it for you. You get to a point hwen you think yes or no to a thing

and then somewhat the decisions made. You can have a vaccine later

on, but otoh you cant take it out once it's in.

Non vaxing or singles or delayed vaxing isn't a modern thing,

vaccine schedules have multiplied in recent years, ourselves and our

parents had different ones, and health/lifestyle was different in

the past contributing.

I would say as vaccination doesnt stop you getting a disease, vaxing

doesnt stop the possibility of getting something " horrific " anyway.

So thats the horrific somewhat out of the equation, they may get

something horrific either way, what can you do. So i wouldnt kick

myself if they did from being unvaxed. And anyway, the horrific

thing, vaxed or unvaxed is a small reality. Damage to a growing

child from a vaccine or vaccine reaction to my mind is a larger

risk. Everyone had mumps and such when i was young, i had whooping

cough, rubella, mumps etc and my dh measles, noone really was

bothered about it and nothing happened. My daughters unvaxed and

she's not yet caught anything to have a good or bad outcome.

Look at the official data for disease rates for Sweden, it'll be a

governmental site online? what exactly are disease and notably death

rates there? are they even a cause for concern. As you know,

europe and 99% of the world is now polio free according to the world

health org.

I think peer pressure and official pressure can shake you and make

you question things, but that doesnt necessarily mean you are doing

the wrong thing.

Just plow through the reading/experiences, and eveentually some

onclusions will hit you. Think of the points you're concerned about

and tackle them head on like a researcher to get your aswers. With

your answers then the decision is made for you.

bw

A (uk, mum to unvaxed healthy dd, 18ms)

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  • 1 month later...

hmmm...yes, I forgot the medical stuff.

Jasmine has been very lucky in that area. She has had no heart problems, no

other serious medical problems, that we have become aware of.

She has had 4 sets of ear tubes, and recently had her tonsils and adnoids

removed because of sleep apnea, an apparently long overdue operation. We were

not aware that this was the problem, thought it was allergies. But when she

was under for dental work, the anesthesiologist found there was an unusual

amount of tissue in her throat. So after specialists, and all the sleep

studies,and the c-pap study(a real joke) she had the surgery to remove all that

and

now you can stand right over her in bed and not hardly hear her sleep! Very

strange!

I guess that's all, very healthy! Thank God! She has the usual

puberty/teenage girlly problems, but hey, we all have that don't we?

By the way, I am 49 years old, and Steve is 54. It's an interesting life!

Toni-mom to Jasmine-13-ds-in TN

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hmmm...yes, I forgot the medical stuff.

Jasmine has been very lucky in that area. She has had no heart problems, no

other serious medical problems, that we have become aware of.

She has had 4 sets of ear tubes, and recently had her tonsils and adnoids

removed because of sleep apnea, an apparently long overdue operation. We were

not aware that this was the problem, thought it was allergies. But when she

was under for dental work, the anesthesiologist found there was an unusual

amount of tissue in her throat. So after specialists, and all the sleep

studies,and the c-pap study(a real joke) she had the surgery to remove all that

and

now you can stand right over her in bed and not hardly hear her sleep! Very

strange!

I guess that's all, very healthy! Thank God! She has the usual

puberty/teenage girlly problems, but hey, we all have that don't we?

By the way, I am 49 years old, and Steve is 54. It's an interesting life!

Toni-mom to Jasmine-13-ds-in TN

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In a message dated 12/30/04 1:04:38 P.M. Central Standard Time,

tcasten@... writes:

Projects take time and there

is a time for everything, last on the man's project list is cleaning

up, this is after the initial 16 hours of work,

And we can see where all your projects and initial 16 hours of work are

spent Tim...need I say more!

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In a message dated 12/30/04 1:04:38 P.M. Central Standard Time,

tcasten@... writes:

Projects take time and there

is a time for everything, last on the man's project list is cleaning

up, this is after the initial 16 hours of work,

And we can see where all your projects and initial 16 hours of work are

spent Tim...need I say more!

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Hello mamgt1,

Thursday, December 30, 2004, 11:13:31 AM, you wrote:

> I am Turchi from Tenafly, NJ.

Try saying this 5 times real fast, ha ha ha

--

Best regards,

Tim mailto:tcasten@...

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Hello mamgt1,

Thursday, December 30, 2004, 11:13:31 AM, you wrote:

> I am Turchi from Tenafly, NJ.

Try saying this 5 times real fast, ha ha ha

--

Best regards,

Tim mailto:tcasten@...

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Hello mamgt1,

Thursday, December 30, 2004, 11:13:31 AM, you wrote:

> that many of your children

> are on medication.

Along with the Mom's. aha ha ah

--

Best regards,

Tim mailto:tcasten@...

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Hello mamgt1,

Thursday, December 30, 2004, 11:13:31 AM, you wrote:

> that many of your children

> are on medication.

Along with the Mom's. aha ha ah

--

Best regards,

Tim mailto:tcasten@...

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Hello ,

Thursday, December 30, 2004, 11:49:35 AM, you wrote:

> (This is for Tim)

> I married my husband at 19 (what was I thinking?-Yes, I was one hot

> chick-could you blame my hubby?)

What was for me.....the fact you got married at 19 or the fact that

you consider yourself one hot chick.......gee and i thought i was the

one with the EGO, are you a controller by chance?

This list is much more interesting than the other DS list....they are

talking about adopting invisible mouses, or should that be mice or

maybe meece!

--

Best regards,

Tim mailto:tcasten@...

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Hello ,

Thursday, December 30, 2004, 11:49:35 AM, you wrote:

> (This is for Tim)

> I married my husband at 19 (what was I thinking?-Yes, I was one hot

> chick-could you blame my hubby?)

What was for me.....the fact you got married at 19 or the fact that

you consider yourself one hot chick.......gee and i thought i was the

one with the EGO, are you a controller by chance?

This list is much more interesting than the other DS list....they are

talking about adopting invisible mouses, or should that be mice or

maybe meece!

--

Best regards,

Tim mailto:tcasten@...

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Hello ,

Thursday, December 30, 2004, 11:49:35 AM, you wrote:

> Then the next day I spent 16 hours cleaning up the 4 inches of sawdust

> there was on everything including all the walls. The brilliant men didn’t

> block off the doorway into the kitchen which meant the stuff we moved into

> the kitchen for a safe-haven was covered w/dust. The other brilliant

> man-minded thing was to pile the saw dust right outside the door on the

> driveway. This was quite convenient for the visitors walking up the drive to

> Myah’s b-day party. lol When I asked what they were thinking I got a blank

> stare-imagine that.

Why do you women think that we are inconsiderate and can't finish a

project. I am sure the cleaning of the sawdust was on the next days

list. It isnt enough that we perform slave type labor for 16 hours in

a day and you want more? Unbelievable, Projects take time and there

is a time for everything, last on the man's project list is cleaning

up, this is after the initial 16 hours of work, then 3 to 4 hours of

beer drinking, then of course 4 to 5 hours of football and seeing that

it is bowl season this has to be scheduled somewhere, and then last

but not least before the scheduling of the cleanup process we must

relax from all the above and talk and reflect on what a great job we

have done. So what I am saying is relax a bit, chill, I am sure the

cleanup was planned just not timely enough to suit your expectations.

However I must admit it was nice of you to pitch in and help out in

the END, it leaves more time for reflection and beer drinking.

Relax and chill and go buy one of those invisible mouses that they are

purchasing on the other list!

:)

--

Best regards,

Tim mailto:tcasten@...

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Hello ,

Thursday, December 30, 2004, 11:49:35 AM, you wrote:

> Then the next day I spent 16 hours cleaning up the 4 inches of sawdust

> there was on everything including all the walls. The brilliant men didn’t

> block off the doorway into the kitchen which meant the stuff we moved into

> the kitchen for a safe-haven was covered w/dust. The other brilliant

> man-minded thing was to pile the saw dust right outside the door on the

> driveway. This was quite convenient for the visitors walking up the drive to

> Myah’s b-day party. lol When I asked what they were thinking I got a blank

> stare-imagine that.

Why do you women think that we are inconsiderate and can't finish a

project. I am sure the cleaning of the sawdust was on the next days

list. It isnt enough that we perform slave type labor for 16 hours in

a day and you want more? Unbelievable, Projects take time and there

is a time for everything, last on the man's project list is cleaning

up, this is after the initial 16 hours of work, then 3 to 4 hours of

beer drinking, then of course 4 to 5 hours of football and seeing that

it is bowl season this has to be scheduled somewhere, and then last

but not least before the scheduling of the cleanup process we must

relax from all the above and talk and reflect on what a great job we

have done. So what I am saying is relax a bit, chill, I am sure the

cleanup was planned just not timely enough to suit your expectations.

However I must admit it was nice of you to pitch in and help out in

the END, it leaves more time for reflection and beer drinking.

Relax and chill and go buy one of those invisible mouses that they are

purchasing on the other list!

:)

--

Best regards,

Tim mailto:tcasten@...

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I just thought that since this was so BORING to you, you'd enjoy a little

spice. Lol

And I quote " Just reading all these posts about how boring lives can be.

ha ha ha

Re: introduction

Hello ,

Thursday, December 30, 2004, 11:49:35 AM, you wrote:

> (This is for Tim)

> I married my husband at 19 (what was I thinking?-Yes, I was one hot

> chick-could you blame my hubby?)

What was for me.....the fact you got married at 19 or the fact that

you consider yourself one hot chick.......gee and i thought i was the

one with the EGO, are you a controller by chance?

This list is much more interesting than the other DS list....they are

talking about adopting invisible mouses, or should that be mice or

maybe meece!

--

Best regards,

Tim mailto:tcasten@...

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

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I just thought that since this was so BORING to you, you'd enjoy a little

spice. Lol

And I quote " Just reading all these posts about how boring lives can be.

ha ha ha

Re: introduction

Hello ,

Thursday, December 30, 2004, 11:49:35 AM, you wrote:

> (This is for Tim)

> I married my husband at 19 (what was I thinking?-Yes, I was one hot

> chick-could you blame my hubby?)

What was for me.....the fact you got married at 19 or the fact that

you consider yourself one hot chick.......gee and i thought i was the

one with the EGO, are you a controller by chance?

This list is much more interesting than the other DS list....they are

talking about adopting invisible mouses, or should that be mice or

maybe meece!

--

Best regards,

Tim mailto:tcasten@...

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

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Hi Heidi,

Welcome to the list. I'm curious, where is Philipsburg? Is it anywhere near

Libby? I have a friend there with a son, Luke, who is about 7 or 8. She is

the only one for miles with a child with Ds. Let me know if you're near her and

I can connect you.

Happy New Year,

Jayne

Heidi and Josh <hijo@...> wrote:

My name is Heidi and I am a little newer to the group but since I have

been here I have learned a lot, so a quick thank you to all.

I have 3 kids and a husband Josh. Oldest to youngest- ph(Joe), 7

years old ds, Jordyn, 4 years going on 16, and last but not least , 6

months.

ph had some minor complications at birth, first did not know that he

was downs let alone anything about it. So to make matters worse the

pediatrician had bad bed side manor. He was born and then they told us and

I remember my dad saying that that was ok and we would love him anyway's and

that was the thing I needed to hear. Well he had an emphalocele, and was

flown to Spokean, WA where he had surgery.

His hole that was in his heart closed on its own. He has had a TNA and

also three sets of tubes and three or four surgeries on his teeth. He was

also diagnosed with ADHD about a year and half ago. His speech is very good

There are a few things you cant understand. He is in the first grade and

is included more now than in the beginning. He is doing very good in school

for the time being. He has a one on one add. through the day. I myself

think this year has been the hardest for me and him also with the new baby

and I think he sees he is different in some ways and it bothers him, he has

a lot of anger.

He gets along with his sister from time to time, and he loves his baby

brother, but he likes to yell at him a lot. loves to imitate his

brother, He chews on his thumb when he is tired and makes a noise well

does that now..

I am very glad to have found a place that there are people going through

the same stuff. It is comforting I was starting to get frustrated. I hope

to get to know you all.

By the way We are in Philipsburg, Montana.

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In a message dated 1/2/2005 1:53:47 PM US Mountain Standard Time,

collarbone@... writes:

the PA announcer for the Dallas Mavericks,

Oh my goodness.. wouldn't you guess, one of Maverick's favorite teams..

....LOL..One year we all got Green Dallas Maverick caps and He was so excited..

" My

TEAM! MY TEAM! " LOL.

M.

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In a message dated 1/2/2005 1:53:47 PM US Mountain Standard Time,

collarbone@... writes:

the PA announcer for the Dallas Mavericks,

Oh my goodness.. wouldn't you guess, one of Maverick's favorite teams..

....LOL..One year we all got Green Dallas Maverick caps and He was so excited..

" My

TEAM! MY TEAM! " LOL.

M.

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My name is Karla, I've been on the list for nine years! Unbelievable! I am

married to a practically-perfect guy who works really hard so that I can stay at

home...and work even harder! :-) He is the morning show host on 93.3 The Bone,

a classic rock station here in Dallas, is the PA announcer for the Dallas

Mavericks, and in his spare time (!) he is the pastor at our little church

(about 25 or so members). He is pretty busy to say the least! We have two

boys, , 13 and burdened by the fact that he knows absolutely EVERYTHING!

Noah is 9 and the joy of our lives. He makes me laugh every single day. He is

included in the 3rd grade with pullouts for reading and math. A/V canal defect

repaired at 4 months, several bouts of pneumonia that put him in the hospital

for a few days and strabismus (sp?) for which he wears bi-focals. Otherwise

pretty healthy, for which we are grateful.

He is such a sweetie...just this morning at church, we have community prayer,

where we pray aloud for whatever is on your heart. Well, he decided he wants to

pray too, so everyone gave him his time to say what he wanted, it was so

precious. Although " Heavenly Father " and " Amen " is all they could really

understand...oh yeah, I forgot to mention Apraxia. He is still very difficult

to understand, unless he is reading, and then you can get it pretty clearly.

Anyhow, I understand quite a bit of what he says, and I'm pretty sure he was

asking the Lord's blessing for Hercules, Garfield, Pumba, Timon and Jafar! His

passion is movie watching, pizza, computer games, ice cream and peanut butter

and jelly...oh, and ketchup on everything! He swims like a fish and has taught

himself to swim underwater and dive to the bottom of the pool to fetch things.

This is really handy because he also loves to throw things in the pool. Toys,

garden tools, potted plants, trikes, lawn furniture all have taken a swim at one

time or another!

He is also channels Harry Houdini when he feels like escaping the confines of

the home. He is uncanny in his ability to escape, regardless of locked doors or

fenced backyards. We actually just replaced our fence over the holiday, and we

went from 6 to 8 feet just to keep him in! We have found great success with the

IonKids locator bracelet. It allows him some freedom, yet alerts me when he

gets too far away. They are awesome when traveling, at the store, (he can

disappear in a heartbeat!) and visiting other peoples homes who haven't " Noah

proofed " them. I highly recommend them and you can find them online at

http://www.bluespan.com/ or at RadioShack and Target. It is the best $200 I've

ever spent. The CEO of the company is a really great guy too. He's a former

school teacher, and has a really big heart for kids. He is active with the DS

Guild in Dallas, and donates a lot of time and products to them. He gave away

two complete units at our Buddy Walk raffle this year. I love to help spread

the word about his awesome company.

I also have two step kids, 16 and 18 who are great with Noah and live right down

the street. Noah adores them and they would do anything for him.

Blah,Blah,Blah talk about wordy! Anyway, I love this list, have learned so much

over the years, and hope to be here for a good long time!

Happy New Year, and God Bless you all....he will you know if you just ask! ;-)

Karla in Texas

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My name is Karla, I've been on the list for nine years! Unbelievable! I am

married to a practically-perfect guy who works really hard so that I can stay at

home...and work even harder! :-) He is the morning show host on 93.3 The Bone,

a classic rock station here in Dallas, is the PA announcer for the Dallas

Mavericks, and in his spare time (!) he is the pastor at our little church

(about 25 or so members). He is pretty busy to say the least! We have two

boys, , 13 and burdened by the fact that he knows absolutely EVERYTHING!

Noah is 9 and the joy of our lives. He makes me laugh every single day. He is

included in the 3rd grade with pullouts for reading and math. A/V canal defect

repaired at 4 months, several bouts of pneumonia that put him in the hospital

for a few days and strabismus (sp?) for which he wears bi-focals. Otherwise

pretty healthy, for which we are grateful.

He is such a sweetie...just this morning at church, we have community prayer,

where we pray aloud for whatever is on your heart. Well, he decided he wants to

pray too, so everyone gave him his time to say what he wanted, it was so

precious. Although " Heavenly Father " and " Amen " is all they could really

understand...oh yeah, I forgot to mention Apraxia. He is still very difficult

to understand, unless he is reading, and then you can get it pretty clearly.

Anyhow, I understand quite a bit of what he says, and I'm pretty sure he was

asking the Lord's blessing for Hercules, Garfield, Pumba, Timon and Jafar! His

passion is movie watching, pizza, computer games, ice cream and peanut butter

and jelly...oh, and ketchup on everything! He swims like a fish and has taught

himself to swim underwater and dive to the bottom of the pool to fetch things.

This is really handy because he also loves to throw things in the pool. Toys,

garden tools, potted plants, trikes, lawn furniture all have taken a swim at one

time or another!

He is also channels Harry Houdini when he feels like escaping the confines of

the home. He is uncanny in his ability to escape, regardless of locked doors or

fenced backyards. We actually just replaced our fence over the holiday, and we

went from 6 to 8 feet just to keep him in! We have found great success with the

IonKids locator bracelet. It allows him some freedom, yet alerts me when he

gets too far away. They are awesome when traveling, at the store, (he can

disappear in a heartbeat!) and visiting other peoples homes who haven't " Noah

proofed " them. I highly recommend them and you can find them online at

http://www.bluespan.com/ or at RadioShack and Target. It is the best $200 I've

ever spent. The CEO of the company is a really great guy too. He's a former

school teacher, and has a really big heart for kids. He is active with the DS

Guild in Dallas, and donates a lot of time and products to them. He gave away

two complete units at our Buddy Walk raffle this year. I love to help spread

the word about his awesome company.

I also have two step kids, 16 and 18 who are great with Noah and live right down

the street. Noah adores them and they would do anything for him.

Blah,Blah,Blah talk about wordy! Anyway, I love this list, have learned so much

over the years, and hope to be here for a good long time!

Happy New Year, and God Bless you all....he will you know if you just ask! ;-)

Karla in Texas

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H there! I'm and my husband is Joe and we have 3 children ....

10 (DS), 7 and 3. I have been on the list for

I think about 7 years although rarely post. Joe is an attorney - just made

partner - and works TOOOOO much. I am a stay-at-home mom who gets to play

lots of tennis so can't complain too much (although I do plenty!)

We switched to a Catholic school for children with disabilities

this year and are loving it. It was an excrutiating choice to make but we

are extremely happy with the school and the teachers and feel so much

happier overall that we are not having to educate the educators. Nothing

shocks these teachers - they are prepared for anything and can absolutely

handle anything. The school is small - about 100 students and they put on

the most beautiful Christmas show that lasted about 2 hours. Because the

school is consistent - and I mean 100% consistent - with the way they handle

things, we are even seeing improvement in behavior at home. It is so nice

having everyone on the same page. His class went to the mall one day in

December and shopped for siblings. (or whoever we designated) We were told

NOT to come - they had plenty of staff. What joy!!! likes

videos & DVD's - mostly having control of every TV in house: he sets up a

video and leaves and then comes back and yells at us if we've changed the

channel. He has apraxia so is tough to understand. He is funny and mostly

joyful. He loves to chase - especially if I hide and then scare them by

jumping out of hiding place. He loves Mcs fries and Blockbuster.

is my bright, SENSITIVE, sweet child. He has told me that he never

wants to grow up (because he won't be able to play Nintendo) and has asked

if there will be Nintendo in heaven. Even though he is tall, he does not

want to play basketball because he " does not like games where people try to

snatch things from you " . He is a hoot!

has the most pleasant disposition and has been (knocking wood

here) the EASIEST of all my children. She is happy and talkative and

observant and funny. I laugh at her everyday.

and are best friends and worst enemies. They are

either laughing and chasing and playing or screaming at one another. I

cannot tell you how good they are for each other.

My mom and Joe's parents both live less than a mile from us so we get lots

of good grandparent time and LOTS of good respite.

Happy New Year to you all! in Dallas

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H there! I'm and my husband is Joe and we have 3 children ....

10 (DS), 7 and 3. I have been on the list for

I think about 7 years although rarely post. Joe is an attorney - just made

partner - and works TOOOOO much. I am a stay-at-home mom who gets to play

lots of tennis so can't complain too much (although I do plenty!)

We switched to a Catholic school for children with disabilities

this year and are loving it. It was an excrutiating choice to make but we

are extremely happy with the school and the teachers and feel so much

happier overall that we are not having to educate the educators. Nothing

shocks these teachers - they are prepared for anything and can absolutely

handle anything. The school is small - about 100 students and they put on

the most beautiful Christmas show that lasted about 2 hours. Because the

school is consistent - and I mean 100% consistent - with the way they handle

things, we are even seeing improvement in behavior at home. It is so nice

having everyone on the same page. His class went to the mall one day in

December and shopped for siblings. (or whoever we designated) We were told

NOT to come - they had plenty of staff. What joy!!! likes

videos & DVD's - mostly having control of every TV in house: he sets up a

video and leaves and then comes back and yells at us if we've changed the

channel. He has apraxia so is tough to understand. He is funny and mostly

joyful. He loves to chase - especially if I hide and then scare them by

jumping out of hiding place. He loves Mcs fries and Blockbuster.

is my bright, SENSITIVE, sweet child. He has told me that he never

wants to grow up (because he won't be able to play Nintendo) and has asked

if there will be Nintendo in heaven. Even though he is tall, he does not

want to play basketball because he " does not like games where people try to

snatch things from you " . He is a hoot!

has the most pleasant disposition and has been (knocking wood

here) the EASIEST of all my children. She is happy and talkative and

observant and funny. I laugh at her everyday.

and are best friends and worst enemies. They are

either laughing and chasing and playing or screaming at one another. I

cannot tell you how good they are for each other.

My mom and Joe's parents both live less than a mile from us so we get lots

of good grandparent time and LOTS of good respite.

Happy New Year to you all! in Dallas

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Jill welcome. You know you have the tools to do it. Exercise for me is a huge issue as well. How far out in the country do you live that you cant walk? I live in an area that was once consider country area but so many houses have been built it really isnt. So much traffic it is not always safe to walk. What about at your job could you walk at lunch? Remember baby steps, portions, exercise, and water.

NHMom to Abby Liz 10/25/94 Anne 7/1/99

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In a message dated 1/5/2005 6:35:26 AM Central Standard Time, Jase4567@... writes:

How far out in the country do you live that you cant walk? I live in an area that was once consider country area but so many houses have been built it really isnt. So much traffic it is not always safe to walk. What about at your job could you walk at lunch?

thank you for the welcome ! I have always said that the area where I live is about as far out in the boonies as you can find these days! I am surrounded by woods and bean fields that are not really safe to walk in (especially alone!) and the road I live on is not very busy at all, but when a car does come by it is usually flying! As for work, I walk all day long so the last thing I want to do on a break is more walking. My feet have really been hurting me & it is no doubt because of all the weight they are carrying around.

This is our slow season at work and my hours will be greatly reduced for the next 5 weeks or so, so I am hoping to deveop some sort of exercise program by then & I will be motivated to keep it going when business picks back up. I think once I see the scale start to move I will find it easier to find the time to exercise.

I have already done an exercise video this morning. I need to develop tunnel vision and not take my eye off the goal. This is just what seems to work for me. I have also told myself that once I loose 20 pounds I will buy myself a new outfit.

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