Introduction

[Guest guest]

April-

Welcome to the group, and congratulations on the birth of Iris!

You will find lots of great encouragement, support, information, and even humor

with the great group of folks here.

Please, just jump right in and start posting questions, etc.. Sometimes it may

take a day or so, however usually someone has a good answer.

What area of the country (or world for that matter) are you in?

Sharon H.

Mom to , (15, DS) and , (11)

South Carolina

" Be kinder than necessary, for everyone you meet is fighting some kind of

battle. "

Introduction

Hello!

My name is April. I have three children: a five year old daughter,

-, a two year old son, , and our new baby Iris, who is

three weeks old today. Iris has Down Syndrome. I'm still trying to

learn what this will mean for us. So far I'm just working on the

usual adjustments that come with welcoming a new family member. My

older children are trying to adjust to sharing my attention with the

new baby. My two year old is being a typical two year old. We have

had lots of family visiting since the time of her birth. My parents

left on Monday, so we are now on our own for the first time since

Iris was born. My husband works pretty long hours, so I'm on my own

with the kids most of the day. Fortunately he is planning to take

time off from work for doctor's appointments with Iris. Our

pediatrician didn't hear anything unusual when he listened to her

heart, but we have an appointment with cardiologist to be sure all

is well. Nursing has been slightly more challenging with Iris than

it was with my first two children, but we seem to be doing pretty

well by now. If we do run into problems, there is a good lactation

consultant in our pediatrician's office.

I am glad that Iris is not our first child. I think it is easier for

me to handle this with some prior parenting experience. Down

Syndrome caught us by surprise, but by now I know that all children

are full of surprises and will bring new challenges, even when they

have the usual number of chromosomes.

-April and family

[Guest guest]

Welcome to the group, April and family! My name is Sheila and I am a

homeschooling mom to 4 boys. Zane is 11, Jake 9, Sam 4 and Ben is 14

months w/DS. DS was a surprise for us, too. This group has made the

difference for me. They are awesome! You'll see.

Be blessed,

Sheila

[Guest guest]

Hi April,

Welcome to the group, I also like the name Iris.

" I'm still trying to learn what this will mean for us. So far I'm just

working on the usual adjustments that come with welcoming a new family

member. "

In my opinion - it won't mean that much more than the usual having another

person in the house. Your baby will remain your baby that big longer and

yes you will have to fight to get the services that benefit her (though you

would do that for your other kids as well). Love her and treat her the same

as the others, and you will have a normal well balanced pain in the backside

child!

My son, is no 3 in the family, his older siblings have been a great help

with his development - by basically being role models and not allowing him

to get away with anything they couldn't! The baby of the house (no 4),

taught him all the horrible things that kids do, such as getting into

mischief and not taking your medicine. My kids are all now adults and doing

there own thing. Fortunately for him and us, they still consider Trent and

take him out/do things with him throughout the year.

Keep smiling

Jan, mother of Trent 22yo w/DS from the LandDownUnder

Introduction

Hello!

My name is April. I have three children: a five year old daughter,

-, a two year old son, , and our new baby Iris, who is three

weeks old today. Iris has Down Syndrome. I'm still trying to learn what

this will mean for us. So far I'm just working on the usual adjustments

that come with welcoming a new family member. My older children are trying

to adjust to sharing my attention with the new baby. My two year old is

being a typical two year old. We have had lots of family visiting since the

time of her birth. My parents left on Monday, so we are now on our own for

the first time since Iris was born. My husband works pretty long hours, so

I'm on my own with the kids most of the day. Fortunately he is planning to

take time off from work for doctor's appointments with Iris. Our

pediatrician didn't hear anything unusual when he listened to her heart, but

we have an appointment with cardiologist to be sure all is well. Nursing

has been slightly more challenging with Iris than it was with my first two

children, but we seem to be doing pretty well by now. If we do run into

problems, there is a good lactation consultant in our pediatrician's office.

I am glad that Iris is not our first child. I think it is easier for me to

handle this with some prior parenting experience. Down Syndrome caught us

by surprise, but by now I know that all children are full of surprises and

will bring new challenges, even when they have the usual number of

chromosomes.

-April and family

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

[Guest guest]

Many thanks to all of you for your words of welcome and wisdom. Jan,

I love what you said here:

> In my opinion - it won't mean that much more than the usual having

> another

> person in the house. Your baby will remain your baby that big

> longer and

> yes you will have to fight to get the services that benefit her

> (though you

> would do that for your other kids as well). Love her and treat her

> the same

> as the others, and you will have a normal well balanced pain in the

> backside

> child!

Our pediatrician said something similar, but it means so much more to

me coming from an experienced parent with a great sense of humor.

We had a week of uncertainty waiting for the results of the blood

tests. My midwife said she has delivered several babies that had

some features of babies with Down Syndrome, but so far none of them

had actually had Down Syndrome when the test results came back. So I

guess now we're her first. Fortunately Iris was able to come home

with us right away, and that gave us a week to rest and recuperate

and fall in love with her while waiting for the news.

This fall my oldest daughter starts kindergarten and my son will be

starting half-days at a Montessori preschool. That will give me

mornings to focus all my attention on Iris, whether that means

everyday life at home or taking her to doctors appointments or

whatever else she may need. At the moment I don't have any extended

family here, but that will be changing soon. We moved from

California to Florida about two years ago. My mother-in-law has

realized that our children are growing quickly and she would rather

not miss out, so she will be moving here at the end of May. We will

be especially glad to have her here now.

I think one thing that has helped us to cope is knowing that my

husband's stepsister has a son with Down Syndrome, so this isn't

completely uncharted territory for us.

Iris is sort of indirectly named for my grandmother. My grandmother

was a gardener and an avid reader. I always loved the irises in her

garden. As an adult, I also discovered the books of Iris Murdoch on

Grandmother and Grandfather's bookshelves, so the name is connected

to my grandparents and especially Grandmother in several ways. Iris'

middle name is Ruth, which was my husband's grandma's middle name.

I have a questions for those of you with older children. How and

when do you discuss Down Syndrome with your other children? At this

point, my five year old is pretty confused about normal infant

development anyway. She keeps wondering why the baby can't sit up by

herself yet and eat food like the rest of us. So far Iris doesn't

really seem much different than any other baby, other than having a

few more spots in her calendar filled with doctor visits.

-April

[Guest guest]

and April,

Welcome to the group. congrats to both of you. April- I love the name Iris.

Iris' are my favorite flowers and I got my iris plants from my Grandmother.

- I really like your announcements and it sure seems like you have a

great supportive group already developed in your lives.

As far as your question about talking to your kids about down syndrome I

just wanted to add my experience. Our oldest is 18. He is and has autism

and down syndrome. He now lives in a group home with some other people that he

has known since he was about 7 years old. Our next oldest is . He is six

and is in kindergarten. We have always talked about having down

syndrome and special needs. realizes that even though is a lot older

than

him he can't do some of the things that does. But, I don't think

actually sees as that different. He is just . Often will ask

why does certain things, usually things that bug . Usually the

answers come out to be because takes longer to learn some things or

because

that is the way likes to do it.

So, I guess the thing I'm trying to say is that while the words " down

syndrome " mean a lot to us adults they mean very little to children. What

matters

to them is the whys to daily things that immediately affect them.

Welcome to our group

Karyn

Mom to , 18 ds and a bunch of other stuff, 6, r almost 3, and

6 months.

************************************** See what's free at http://www.aol.com.

[Guest guest]

Hi Shirley,

I joined this group a few months ago; and don't think I ever did an introduction! It's nice to "meet" another Josiah :-)

I'm hoping to participate in the group a little more this summer now that homeschooling is winding down.

Thanks for the welcome,

from WI

Welcome, . That makes 2 Josiah's in this group--somewhat unusual. My Josiah is 18 yo now and we live down in OK.Shirley

[Guest guest]

Hi Sue,

It's nice to "meet" you. We live in Delafield, west of Milwaukee, so we're probably about an hour from where you are. I hope someday we can meet.

How is Sam doing?

mom to Josiah (5) and his five older sibs

Hi Kris and ,

I also homeschool Sam who is 6 and have homeschooled Sam's older brother Ben. I live in Grafton. It is wonderful to hear of other local homeschooling families with special needs children, hopefully someday we can all meet.

Sue

Mom to Ben (12), le (10) & Sam (6)

[Guest guest]

Hi ,

Sam is doing very well, his biggest delay by far is speech and auditory processing. Sam is on program with NACD which has helped a great deal in knowing what to work on with him. I hope we can meet some day.

Sue

Re: introduction

Hi Sue,

It's nice to "meet" you. We live in Delafield, west of Milwaukee, so we're probably about an hour from where you are. I hope someday we can meet.

How is Sam doing?

mom to Josiah (5) and his five older sibs

Hi Kris and ,

I also homeschool Sam who is 6 and have homeschooled Sam's older brother Ben. I live in Grafton. It is wonderful to hear of other local homeschooling families with special needs children, hopefully someday we can all meet.

Sue

Mom to Ben (12), le (10) & Sam (6)

[Guest guest]

Along with the NACD have you tried earobics? Carol in IL AIM doihavtasay1Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me. Join our Down Syndrome information group - Down Syndrome Treatment/ Listen to oldest dd's music http://www.myspace.com/vennamusic----- Original Message ----From: Sue Mayer <suelmayer@...>Down Syndrome Treatment Sent: Thursday, May 17, 2007 11:04:00 PMSubject: Re: introduction

Hi ,

Sam is doing very well, his biggest delay by far is speech and auditory processing. Sam is on program with NACD which has helped a great deal in knowing what to work on with him. I hope we can meet some day.

Sue

Re: [DownSyndromeInfoEx change]introduct ion

Hi Sue,

It's nice to "meet" you. We live in Delafield, west of Milwaukee, so we're probably about an hour from where you are. I hope someday we can meet.

How is Sam doing?

mom to Josiah (5) and his five older sibs

Hi Kris and ,

I also homeschool Sam who is 6 and have homeschooled Sam's older brother Ben. I live in Grafton. It is wonderful to hear of other local homeschooling families with special needs children, hopefully someday we can all meet.

Sue

Mom to Ben (12), le (10) & Sam (6)

Luggage? GPS? Comic books?

Check out fitting gifts for grads at Search.

[Guest guest]

Hi Joan in St , I'm in Minneapolis. My husband was the ICD patient also, but I participate in this forum just cuz he was never into computers much.

Welcome to the group.

Introduction

I have been reading the posts for a while, so I thought I'd introducemyself. My husband had a Defib. put in 2/2006. I read these posts nothim because his english is not so good. Last year he ended up losing his job because of the defibrillator. Heis (was) a driver and the doctors knew this and told him (in writingyet) that he could still drive a bus. But that in fact is not true! Byfederal law you cannot drive a commercial vehicle with a defibrillator. Then last January the device started zapping him. A total of 36 timesbefore they finally turned the thing off! It was lucky that we wereboth at home and close to a hospital. It turned out to be a faultywire. That was such an awful experience and we were never given anywarning that such a thing could happen, so I really don't trustdoctors at all anymore and joined this list so I could learn a biteven though I don't have any interest in medicine and wish I couldjust leave it all up to the doctors.Joan in St.

[Guest guest]

Hi April,

welcome to the group. I guess I should introduce myself as well! My

name is Jeanette and I am mom to Tait who is 5 years old now. He was a

full time baby. We learned after birth about his Down syndrome and

heart condition (atrium ventricular septal defect). He had heart

surgery at 5 1/2 months but now has mitro valve leakage. He sees the

cardiologist every year and is on enalapril and digoxin. He is a good

kid, funny (thinks he is a comedian) loving but he also has a temper and

can be moody like any other kid. He is the love of my life. I attached

a picture of us. We live in Denver, CO and I work for the local Down

syndrome association here. Tait's dad and I are divorced but he is

still in Tait's life and sees him every weekend.

I can't tell you how much I have learned from groups like these. Thanks!

--

Jeanette

[Guest guest]

Hi April. My daughter and SIL are in NC, too - my SIL went to Iraq in

August and is suppose to be home the end of this September. When my

granddaughter was born, it was I who cut the cord while my SIL sat on a

rooftop near the Syrian border watching tracer fire while listening to his

daughter enter the world with a big cry. Of course I was very happy to have

been there, but I could never replace my SIL who should have been there. My

son with DS was allowed to stay through the labor - but only one person

could be in the OR. Luckily my sister flew in and we almost fought each

other over who would get to go in and who would be stuck with ..lol!

I won My granddaugher will be 8 months in a week. She will be coming

back to nana's and pop pops for a few days. YIPPEE! I think most people

who do not have a close relative in the military have no idea of the

sacrifices families back home back. I'm very proud of my daughter (and

SIL).

My oldest son is suppose to leave in November for Iraq. I'm trying not to

think of it right now. His wife plans on moving here with us - along with

her two puppies I'll be driving down to Georgia and helping her bring

stuff home when he leaves.

About the staring -- it could be a person who has a family member with DS

who is doing the staring. I think most of us are guilty of that. Also - my

son is a wanderer and I'm ok with people staring at him and matching him up

to me. I've said " He's cute, isn't he? Thank God he looks like me and not

his father " ...then laugh and it kinda breaks the ice. People will ask

stupid questions or make stupid comments. In time you will toughen up with

that and will even have some pretty good comebacks ready to through back.

You'll get alot of of this group here and I'm glad you found us.

introduction

> hi everyone,

> my name is april. my husband ken and i have been married for 5 years

> and we have 3 children. kenneth is 4 1/2 yrs, kaden is 2 yrs and our

> newest is our baby girl kiley who is 3 months. kaden is our angel

> sent from above. we live in north carolina, however netiher one of

> us are from here. ken is currently deployed to iraq and has been

> since last sept. he has missed kaden walking for the first time, and

> the birth of kiley. he got to come home in late may for 2 weeks and

> it is very hard to have him gone. kenneth is taking it the hardest.

> i wanted to join this group for support since i have no family here,

> and no friends in the same situation as me. kaden was born on march

> 10. 2005 he weighted 5 lbs 6 oz and was 17 inches long. he was

> allowed to stay with me the first night, but because he couldnt eat

> and stay warm he was taken to the nicu for the next week. he was on

> a feeding tube for 3 months. i decided myself that he needed to be

> off of the tube and so i took it out on a friday night and i fed him

> around the clock for 2 days. every hour he was drinking a little.

> well come monday he was feeding alot better on his own and we saw his

> heart doctor, told her and she said that it was a great idea to do

> that and keep feeding him on demand. we have had issues the whole

> time with his weight gain and he is on a special diet. he has 2

> heart problems, however we have been very lucky not to have had

> surgery yet. we find out in aug. if he has to have surgery. he is

> also crossed eyed so surgery is in the near furture to correcvt this

> and has to get tubes in his eyes. other than all of the medical

> issues he is a very bright hyper 2 yr old. he is very loving and

> loves to mimic everyone. especially kenneth. he helps me clean and

> pick up his toys. he is starting to be potty trained. but he cant

> speak and still cant feed himself. i love being his mom. i just

> hate the stares and nasty questions from other parents when we are at

> the doctors. well that is all for now. i am putting some pics in

> the photo section soon. thank you all for letting us join this

> group. i look foward to making new friends and of course some one to

> lean on. thank you for reading out little story. april and family

>

>

>

> Click reply to all for messages to go to the list. Just hit reply for

> messages to go to the sender of the message.

>

[Guest guest]

OOPS!! typo on my last post - meant to say full " term " baby. LOL

--

Jeanette

[Guest guest]

Welcome. You may want to do some reading about vaccines. The link below will

provide a list of possibilities.

http://search.barnesandnoble.com/booksearch/results.asp?WRD=vaccine & z=y & cds2Pid=\

9481

Joe

" : ) " <canyon13@...> wrote: Hi

my name is and I am new to the list. I am a 29 year old stay at home

mom of an almost 1 year old beautiful girl named Reiah. I studied holistic

health in college and also show and breed dogs and decided not to vaccinate my

dogs many years ago and have watched them thrive and their health problems

vanish due to good diet and no vaccines. When I became pregnant with my child I

made the desicion not to vaccinate her. I am coming up against a lot of

resistance from family and friends for my choice, and I am hoping to learn more

information on vaccinations, and also what I need to do for exemptions so that

my child will be able to attend school. I live in land.

I'm looking forward to learning a lot from this group.

Thanks!

: )

[Guest guest]

I would recommend Philip O. Katz, Chairman of the Division of

Gastroenterology at Albert Einstein Medical Center. He is truly

an expert, has published many papers on achalasia, and his

manometry technician is wonderful. You're going to have to have

manometry and it might as well be quick, painless and accurate.

http://www.einstein.edu/yourhealth/digestive/article9571.html

in Lancaster, PA

Introduction

> Hello Listmates,

>

> My name is Leila and I am new to the list. I have just recently

> been

> diagnosed with Achalasia after having an upper GI barium

> swallow.

> Although uncomfortable my symptoms are not yet at the severe

> point.

> Presently I am trying to educate myself as much as I can about

> the

> disease. I live in New Jersey, near Philadelphia, PA. I would

> like to

> find a doctor in the area who specializes in Achalasia. If any

> one

> here knows of a specialist in this area I would greatly

> appreciate

> knowing their name.

>

> I guess the one question we all ask ourselves is " how did I get

> this? " If there is truth to it being a genetic disease, my

> Father was

> stricken with severe esophagus problems a good part of his life

> but

> was never really given a diagnosis of this disease.

>

> My compassion goes out to all of you who are suffering and I

> hope

> that each one of you is finding helpful treatment. I am open to

> any

> and all advice from you of information that would be helpful to

> me

> with a recent diagnosis.

>

> I am happy to have found this group and look forward to reading

> your

> posts.

>

> Best,

>

> Leila

>

>

>

>

>

[Guest guest]

I have also been to see Dr. Katz at Albert Einstein in Philly.

He was very good, and has no issue referring you out to others.

I agree with 's post about his manometry tech (Mr. Gideon).

Also, the docs at Temple, right down the road from Albert Einstein,

are very good as well (Dr. Richter).

This is a good place to start, for sure.

If you don't mind traveling, of course, The Cleveland Clinic (Dr.

Rice) is one of the top in the country.

in NY

Introduction

>

>

> > Hello Listmates,

> >

> > My name is Leila and I am new to the list. I have just recently

> > been

> > diagnosed with Achalasia after having an upper GI barium

> > swallow.

> > Although uncomfortable my symptoms are not yet at the severe

> > point.

> > Presently I am trying to educate myself as much as I can about

> > the

> > disease. I live in New Jersey, near Philadelphia, PA. I would

> > like to

> > find a doctor in the area who specializes in Achalasia. If any

> > one

> > here knows of a specialist in this area I would greatly

> > appreciate

> > knowing their name.

> >

> > I guess the one question we all ask ourselves is " how did I get

> > this? " If there is truth to it being a genetic disease, my

> > Father was

> > stricken with severe esophagus problems a good part of his life

> > but

> > was never really given a diagnosis of this disease.

> >

> > My compassion goes out to all of you who are suffering and I

> > hope

> > that each one of you is finding helpful treatment. I am open to

> > any

> > and all advice from you of information that would be helpful to

> > me

> > with a recent diagnosis.

> >

> > I am happy to have found this group and look forward to reading

> > your

> > posts.

> >

> > Best,

> >

> > Leila

> >

> >

> >

> >

> >

[Guest guest]

Leila, welcome to the board. I'm sorry you have achalasia, but

I'm glad you found this group. You will find more knowledge

here than from most doctors. Feel free to ask any question.

You'll find someone here who will likely be able to answer it

for you.

There is a lot of information in the files, database, and links

on the website. Reading old messages is also a good way

to familiarize yourself with this disease.

I notice someone has already given you names of some

good doctors in your area.

Good luck and we look forward to getting to know you better.

Maggie

AlabamaGet a sneak peek of the all-new AOL.com.

[Guest guest]

>

Hi ,

I am 58 and was diagnosed with achalasia last December. It is very scary

because doctors

don't know much about it. Through this group I found Dr. Rice at the Cleveland

Clinic in

Ohio. I called his nurse and she set up an appointment for me and had me send

my

records. I told her that since Ohio was so far from New Mexico I would like to

get

everything done in one trip. Dr Rice called me closer to my appointment and

said that he

had gone over my tests and thought that it was achalasia but would like to redo

the tests

because he felt one had not been done correctly. He feels the myotomy gives the

best

results. He set up the tests and operation in one weeks time so I was able to

get

everything taken care of in one trip. My achalasia was not too bad and my

espophagus

was not very dilated but Dr. Rice felt the myotomy was the way to go. I had my

surgery in

March and have had no problems at all. Recovery was quick. On my return to

Ohio for the

post op everything was fine. Like everyone with achalasia I have to drink water

when I eat

but that is no problem. Dr. Rice is and expert with achalasia, also all of the

nurses there

are very familiar with it. If I can be of any help please give me a call

505-326-2065.

JoAnn

> Hi All,

>

> My Name is and I have just been diagnosed with Achalasia at 54

> years of age. The information on the internet is pretty scary and I

> was wondering what advice you can give me? Do you recommend surgery

> early on or wait until later for surgery? What clinic do you recommend

> as the best in the country for Achalasia? I truly would like to get

> your advice on these issues so please let me know as soon as possible.

> Thank you so much in advance for any help or suggestions you can give

> me.

>

[Guest guest]

, where are you located? There are quite a few excellent

surgeons for achalasia around the U.S.

Has your gastroenterologist recommended trying a pneumatic

dilation? That treatment does work better in people over the age

of 40 or 50 than in younger people. However, the surgery is more

definitive treatment. (Many people end up having the surgery

after one or more dilations. The surgery is a little more

difficult then because of scarring, but that does not seem to

have any adverse effect on the success of surgery.)

Do you know what kind of shape your esophagus is in?

The esophagus tends to dilate slowly, and you've probably had

achalasia for some time without knowing it, so you can probably

take your time to decide. It doesn't sound as if your symptoms

are an emergency.

in PA

Introduction

> Hi All,

>

> My Name is and I have just been diagnosed with Achalasia

> at 54

> years of age. The information on the internet is pretty scary

> and I

> was wondering what advice you can give me? Do you recommend

> surgery

> early on or wait until later for surgery? What clinic do you

> recommend

> as the best in the country for Achalasia? I truly would like to

> get

> your advice on these issues so please let me know as soon as

> possible.

> Thank you so much in advance for any help or suggestions you

> can give

> me.

>

>

>

>

>

[Guest guest]

Dear Joann,Thanks for the encouragement and I will be calling you. Sincerely, Hoodjomascarenas <jomascarenas@...> wrote: > Hi , I am 58 and was diagnosed with achalasia last December. It is very scary because doctors don't know much about it. Through this group I found Dr. Rice at the Cleveland Clinic in Ohio. I called his nurse and she set up

an appointment for me and had me send my records. I told her that since Ohio was so far from New Mexico I would like to get everything done in one trip. Dr Rice called me closer to my appointment and said that he had gone over my tests and thought that it was achalasia but would like to redo the tests because he felt one had not been done correctly. He feels the myotomy gives the best results. He set up the tests and operation in one weeks time so I was able to get everything taken care of in one trip. My achalasia was not too bad and my espophagus was not very dilated but Dr. Rice felt the myotomy was the way to go. I had my surgery in March and have had no problems at all. Recovery was quick. On my return to Ohio for the post op everything was fine. Like everyone with achalasia I have to drink water when I eat but that is no problem. Dr. Rice is and expert with achalasia, also all of the nurses there are

very familiar with it. If I can be of any help please give me a call 505-326-2065. JoAnn > Hi All, > > My Name is and I have just been diagnosed with Achalasia at 54 > years of age. The information on the internet is pretty scary and I > was wondering what advice you can give me? Do you recommend surgery > early on or wait until later for surgery? What clinic do you recommend > as the best in the country for Achalasia? I truly would like to get > your advice on these issues so please let me know as soon as possible. > Thank you so much in advance for any help or suggestions you can give > me. >

Don't let your dream ride pass you by. Make it a reality with Autos.

[Guest guest]

> >

>

> Hi ,

> I am 58 and was diagnosed with achalasia last December. It is

very scary because doctors

> don't know much about it. Through this group I found Dr. Rice at

the Cleveland Clinic in

> Ohio. I called his nurse and she set up an appointment for me

and had me send my

> records. I told her that since Ohio was so far from New Mexico I

would like to get

> everything done in one trip. Dr Rice called me closer to my

appointment and said that he

> had gone over my tests and thought that it was achalasia but would

like to redo the tests

> because he felt one had not been done correctly. He feels the

myotomy gives the best

> results. He set up the tests and operation in one weeks time so I

was able to get

> everything taken care of in one trip. My achalasia was not too

bad and my espophagus

> was not very dilated but Dr. Rice felt the myotomy was the way to

go. I had my surgery in

> March and have had no problems at all. Recovery was quick. On my

return to Ohio for the

> post op everything was fine. Like everyone with achalasia I have

to drink water when I eat

> but that is no problem. Dr. Rice is and expert with achalasia,

also all of the nurses there

> are very familiar with it. If I can be of any help please give me

a call 505-326-2065.

> JoAnn

>

> > Hi All,

> >

> > My Name is and I have just been diagnosed with Achalasia

at 54

> > years of age. The information on the internet is pretty scary

and I

> > was wondering what advice you can give me? Do you recommend

surgery

> > early on or wait until later for surgery? What clinic do you

recommend

> > as the best in the country for Achalasia? I truly would like to

get

> > your advice on these issues so please let me know as soon as

possible.

> > Thank you so much in advance for any help or suggestions you can

give

> > me.

> >

>

>

>

>

>

>

> ---------------------------------

> Don't let your dream ride pass you by. Make it a reality with

Autos.

>

[Guest guest]

Hi , with regard to your regret over vaccinating your older children, I

just wanted to share a quote with you:

" You did the best you could with what you knew, and when you knew better, you

did better. "

Hope that helps,

Becca

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[Guest guest]

Hi , welcome to the group. You will find plenty of support here.

Fieldman

Introduction

Hello, I'm , 37 year old wife and mother of 4. I have 3

daughters, ages 21, 9, and 9 1/2 months old. I also have a 7 year

old son. I have a 2 year old granddaughter, and expecting my 2nd

grandchild July 2008. I live in New Berlinville, PA. I vaccinated my

first 3 children fully, because I put so much trust in my doctors,

and beleived they knew best. Im not sure if it's because I became

older and wiser with my newest little one, but I just did not feel

good about doing it this time. I started researching on the subject

before her 2 month check up, and realized I had rights as a parent to

not vaccinate her. I went into the well check so proud to say I was

not vaccinating, but the response was that I will have to find

another doctor. What really bothered me and upset me most was the

nurses outside the exam room were talking negative about me, saying

they don't know how a mother would not protect her baby by

vaccinating. They announced this loud enough so my husband and I

could hear. I am not planning on vaccinating her anymore. She had

the hepatitis B vaccine in the hospital, in which I should of

researched during pregnancy, I would of never gotton that vaccine,

And I agreed to the Hib vaccine at 5 months and 7 months. But I'm

finished, I will not agree to anymore vaccines. My doctor is losing

patience with me, I hear it at every one of her well check ups that

she needs that dtap and prevnar vaccine. He feels they are the most

important to have right now. I am waiting for my husbands insurance

to change in December, so I can change doctors, and find a good

natual doctor for my children. I also wanted everyone to know I have

a 9 year old daughter that has asthma. There is no family history of

asthma, and she does not live in a household with cigerette smoke,

nor did I smoke during pregnancy. I never connected her vaccinations

with her asthma, until these past couple of months with reading up on

vaccinations. Now I realize she had her kindergarden shots 2 months

prior to her first asthma attack, which ended her up in the hospital

for 3 days. I regret not knowing about vaccinations before, I would

of not vaccinate my other 3 children as well, I do regret that now.

That is pretty much my experience with vaccinations, and I'm glad

there is groups like this, that I can come to, and read as much as I

can. Thank you

[Guest guest]

In a message dated 10/24/2007 11:25:33 A.M. Eastern Daylight Time,

joannalswan@... writes:

him roteq an oral vaccine for rotovirus, I believe the oral vaccine is the

cause of his even now continuing bowel problems

My peds office wont give this one.My ped told me this one can cause problems

to the lining of stomach she explained it all to me and i said some places

still give it she said yes but we dont cause the problem it can cause etc why

give it when theres a chance it could do that.

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[Guest guest]

aww that would be a tuff call cause my little one hasnt has any shots but

goes every other day or 2 and hes on bm. Doc said as long as he goes 1 a week

its ok. She didn't give it a name she used her hands and told me ho the mining

overlaps something or something to that nature but didn't say a name just

said it causes problems so they choose not to use it.We havent vaxed yet when i

took him in hes was sick they would of done them but i said no and anted to

research doing them delaying etc. Hes due for 2mon but is not gonna get them

hopefully this time i will just tell her no we wont be so it wont be asked

anymore

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