Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Hi I have similar problems - I really have to work at controlling my anxiety. I'm trying mediation exercises at the moment and I am finding it helps. Mindfulness meditation makes you more aware of the times you do become anxious and that seems to help - I can recommend a book if you're interested.Anyway you asked about HC.I take my first dose at 7am and the last dose at 10pm when I go to bed. I have no problem sleeping but I usually wake up at about 6/6.30 and I have to wait until 7am for my first dose of HC. So between 6 and 7 I get all the symptoms of low cortisol - back and jaw ache, anxiety, etc. I just lie in bed and try to breathe it away and then I wait until 7.30 for the HC to take effect. I don't take a dose before 7am because then I'd end up taking too much.I hope that makes sense. It's horrible isn't it.All best, Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Hi Alison do you find the hc does help your anxiety? have you tried movign your dosing about, or something like medrol? Medrol is too strong for me, feels horrible. even before HC, mornings used to be my absolute worst time. i used to use a dawn stimulating lamp, i think that helped a bit, maybe i should try taht but have been wearing an eye mask for years so it's either one or the other. chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 ps - do you take DHEA with your HC? i would not take HC without taking dhea... chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 what i'm wondering is is whether to set my alarm at 4am to take my morning dose. I am not that familiar with 's methods but from what i've read on STTM, http://www.stopthethyroidmadness.com/t3-circadian-protocol-for-adrenals/ " 1.Most of the day's cortisol is made in the last four hours of sleep, i.e. the four hours before you normally wake up. So, for example, if one normally wakes up around 8 am, most cortisol is made from 4 -8 am. i.e. that four hour window is when your adrenals work the hardest. " So i wonder if i take HC very early, will it help me avoid these bad feelings i get every day? (it kind of wears you down after a few years) I don't know how long HC takes to get into the system. I know it takes me hours to recover after my daily morning panic and come the evening, i'm ok. only to start it all again the next day. chris > > ps - do you take DHEA with your HC? i would not take HC without taking dhea... > > chris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 hi chris what time do you normally wake up? if it were me i think i'd start by trying a 5 to 5.30am slot and see what happens > what i'm wondering is is whether to set my alarm at 4am to take my morning dose. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Hi HC gets into the system quite quickly - it takes about 30 to 40 minutes.So it may be worth your while trying an earlier dose. I suppose it depends how much you're taking altogether and making sure it doesn't disrupt the rest of the day's dosing schedule. Maybe the answer is to change gradually. I should be really interested to hear how an early morning dose works.Why don't you check it out with the adrenal group when they are back from their break. I understand that 's method accommodates thyroid problems only and doesn't take into account adrenal problems as a separate issue - personally, I am very wary of this theory - for me anyway - though I can see that it may well work if your main problem is thyroid.Those early bad morning feelings are horrible and I really do empathise. The meditation book I use is: 'Mindfulness' by Mark . It has a great CD which guides you through. I'm not a 'natural' meditation person - I couldn't get on with other types of meditation but this one is really helping me.No, I don't take DHEA. I understood that it could lower cortisol even more. Why do you say you should take ~DHEA with HC?My problem is that my body is not using cortisol effectively - either because of worn down receptors or because of toxins. When I rest enough then my body can use the cortisol ok and yes, I definitely feel less anxious.It's a bit of a spiral, I think, the more anxious you are, the more stress that places on the adrenals and then the more anxious you become again. The key is in breaking that anxiety loop - easier said than done.I really hope you sort it out. Do say how you get on.Best wishes, Alison> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Hi again,Sun and daylight are definitely a good thing. I sat in the sun for 20 minutes the other day and felt marvellous. As far as my dosing schedule goes, I've stuck to the current one for 8 months now - it's as good as I can get it:I take HC 6 times a day and I've been trying prednisolone for 2 months but this hasn't made a huge difference so I shall come off that soon, and then I may try medrol after a bit. But as I said my main problem is absorption of the cortisol.Good luck Alison> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Hi Trish about 6, maybe 7.... not sure what time to take it. melatonin and HGH will lower Cortisol further... chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 apparently being in the light will help activate the cortisol receptors? where did you get your pred from? chris > > Hi again,Sun and daylight are definitely a good thing. I sat in the sun > for 20 minutes the other day and felt marvellous. As far as my dosing > schedule goes, I've stuck to the current one for 8 months now - it's as Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 I think i took too much HC this morning what happened is i woke feeling dreadful (my daily treat) , and tried to get going, took HC. got stuck in traffic jam, went wrong way, got really stressed, took more hc as was getting more stressed and had to take major detour. i probably do take too much in the morning as i don't have enough time for it to work after taking it before trying to get going. i thinka few years ago i tried taking hc an hour before i got going and i think it helped. > change gradually. I should be really interested to hear how an early > morning dose works.Why don't you check it out with the adrenal group > when they are back from their break. I understand that 's method > accommodates thyroid problems only and doesn't take into account Well, the adrenal group are down on what they're not keen on. they don't like pregnenolone or dhea, and both have helped me. before taking both i was in a much worse way. some people become pretty dogmatic. i'd sooner take Hertoghe's advice as per : http://www.tpa-uk.org.uk/adrenals5.php and also the fact that i improved greatly with dhea and pregnenolone. > problems as a separate issue - personally, I am very wary of this theory > - for me anyway - though I can see that it may well work if your main On STTM it says that " He states this protocol would only work if one does NOT have diabetes, insulin resistance or other blood sugar regulation issues, hypopituitary or 's disease. The latter conditions would dictate the use of HC. But some patients who have blood sugar issues have been trying it anyway and finding great success. " > problem is thyroid.Those early bad morning feelings are horrible and I > really do empathise. The meditation book I use is: 'Mindfulness' by Mark > . It has a great CD which guides you through. I'm not a Thanks for the book recommendation, but i am not feeling very open minded to it at the moment. I am mindful of how crap i feel! :-) I have one by john cabot zinn somewhere, but not read it. sometimes i am easily annoyed by such things. i was trying to listen to an hypnosis mp3 once, (dieting or sleep or stress or something like that) and it said 'remember a time you felt really relaxed' and that really annoys me, really annoys me. i can imagine feeling like that, a perfect day, but remembering last time, especially when i'm in a stressed state?? no no no. i threw it across the room. i can get into a good state but not remember one. much easier to imagine a good state than remember one. argh. > No, I don't take DHEA. I understood that it could lower cortisol even > more. Why do you say you should take ~DHEA with HC?My problem is that my because cortisol is catabolic and dhea is anabolic; dhea will offset the bad effects of the hc. http://www.tpa-uk.org.uk/adrenals5.php " There are two fundamental contraindications to cortisol supplementation: when it is not necessary or when it could cause harm. First: Cortisol treatment is not needed when lab tests are normal. In that case, cortisol treatment will generally not help and may, on the contrary, cause harm. Second, cortisol treatment – even appropriate replacement doses of cortisol, may cause harm if the patient does not have sufficient levels of anabolic hormones such as ***DHEA and sex hormones to counter cortisol catabolic effects. The catabolic effects of cortisol can cause excessive breakdown of the tissues of the body, which result in osteoporosis (loss of bone tissue), skin atrophy (thinning), ecchymosis, petechia (bruising) and immunosuppression (decrease in immune defences). ****So the recommendation is to treat only when necessary and to do it safely with the smallest effective physiologic doses and with simultaneous correction of any deficit in anabolic hormones. " i took HC without dhea as i listened to that line about lowering cortisol further; i don't buy that any more - i feel better by taking dhea now. > body is not using cortisol effectively - either because of worn down > receptors or because of toxins. When I rest enough then my body can use > the cortisol ok and yes, I definitely feel less anxious. i read that turmeric can help sensitise cortisol receptors, though i also read it can lower cortisol in different ways. chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Hi I got my pred from Value - but that won't be possible any more as they require prescriptions. The brand name was Omnacortil. Dr P hadn't heard of it so I got it without recommendation. I have to dose twice a day so for me it's really the worst of both worlds.All best, Alison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 i was thinking 5 to 5.30am on the basis that might give you another hour and a half sleep time and that would give you a full cycle for dreaming ...i think it can be very difficult to have to wake (unnaturally) within a 90 minute cycle. i do hope you can fix this because it must be more than awful to deal with on an unrelenting basis. trish > > Hi Trish > > about 6, maybe 7.... > > not sure what time to take it. melatonin and HGH will lower Cortisol further... > > chris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Hi i take my last dose of HC as my head hits the pillow usually between 10pm-1am then i take my HC as soon as i awake between 7-9am. I have always hated the mornings never been a morning person my whole life but as soon as i added in my bed time dose of T3 along with my HC im good in the mornings with little problem getting out of bed. I asked Val a question when i first started taking HC is it better to be slightly high on dosing or slightly lower and she said deffo always a bit higher if anything - If you are having to stress dose for a traffic jam id say you could need more HC. I am not sure what thyroid meds you are on if any, but if you are on T3 only then maybe try a big bed time dose of 25, maybe start with 12 then increase. Or if you are on T4/T3 you could try adding a bit in the night. Both of them should help in the mornings. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 There's only one way to go and that is " suck it and see " as they say. I think you might be pleasantly surprised. I do have a copy of 's Book 'Recovering with T3' in our TPA library if you would like to borrow it. Send me stamps to the value of £2.90 and I will send you the book. Remember to let me have your address…..then you will become familiar with 's method! Sheila Squirrel Cottage Ickornshaw Cowling Nr Keighley BD22 0DH Luv - Sheila what i'm wondering is is whether to set my alarm at 4am to take my morning dose. I am not that familiar with 's methods but from what i've read on STTM, http://www.stopthethyroidmadness.com/t3-circadian-protocol-for-adrenals/ " 1.Most of the day's cortisol is made in the last four hours of sleep, i.e. the four hours before you normally wake up. So, for example, if one normally wakes up around 8 am, most cortisol is made from 4 -8 am. i.e. that four hour window is when your adrenals work the hardest. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Thanks Sheila I will think about it - I don't think 's method would work for me as i'm on HC and have insulin problems - too contra indications i think I will set my alarm and see what happens though. I would be happy to get rid of this symptom. Had it for years i think. i guess it makes sense i would do if i have a sluggish pituitary. i remember some mornings before HC waking up really cold and driving at 5am in the morning, just to get out the house....kind of a flight or fight feeling (though i was safe to drive, just felt horrible) chris > > There's only one way to go and that is " suck it and see " as they say. > I think you might be pleasantly surprised. I do have a copy of 's Book Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Hi there, Can I just ask – is it Alison – who prescribed your HC and who advised that it should be taken 6 times a day on demand. I am on HC but I didn’t take it like this – have you been diagnosed with ’s or something ? If you are feeling under the weather – I found until I balanced out – that when I felt rough – it was because I did not have enough cortisol to support the thyroid med dosage- I had no intention of raising my HC so I took the thyroid med down and it worked. If I go up too high then I suffer symptoms of sweating etc. which is due to low cortisol. Hope this helps Mandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Hi Mandy, yes I see Dr P. Also I get advise from the adrenal group - as you've probably gathered from my previous posts.I don't take HC on demand - I have a regular dosing schedule with the same amounts each day at the same times. Dr P said I have what is effectively an early form of s but this hasn't been recognised by the NHS, needless to say. I have to dose every 3 hours. I have to say, I am very, very ill - in bed now for 20 hours a day since I crashed my adrenals in Dec - so it is more than just feeling rough. I'm actually unable to do anything. I can walk to the corner of the road on some days - but even seeing friends is difficult. So no fun at all. Thanks for your help - any ideas on how to get going much appreciated - but I suspect that I just have to keep resting. Best wishes AlisonP.S. NHS has diagnosed me with m.e. but every symptom I have is adrenal/cortisol related Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2012 Report Share Posted February 28, 2012 Hi Alison, What dose are you on, have you done Dr hertoghes questionnaire to see what else might be a problem? Not to labour the point too much but I felt bad on hc alone without dhea. Pregnenolone helped too. Chris > it is more than just feeling rough. I'm actually unable to do anything. > I can walk to the corner of the road on some days - but even seeing > friends is difficult. So no fun at all. Thanks for your help - any ideas > on how to get going much appreciated - but I suspect that I just have to > keep resting. Best wishes AlisonP.S. NHS has diagnosed me with m.e. but > every symptom I have is adrenal/cortisol related > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 Thanks Steve i'll bear your thoughts in mind hope you're doing ok chris > > Hi i take my last dose of HC as my head hits the pillow usually between 10pm-1am then i take my HC as soon as i awake between 7-9am. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 Well, I set my alarm for 4.45am, and took 20mg hc with half a peanut butter sandwich. I got up about 6am, i felt woken up by the HC. I am wary of saying this, but i think it helped - no morning anxiety attack. though, i am working from home today, so it was not a true test as i did not have to get up and get going (tho i did pop out to buy a latte) so far i do feel better. i just hope it continues, but am very wary.. chris > I really hope you sort it out. Do say how you get on.Best wishes, Alison > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 Hello. is lack of cortisol why one wakes up at 4 am /4.30am in the morning? I suffer from this odd sleep cycle now, not everyday but often enough to make me feel under-slept is this why I have put on a little more weight in spite of being onT3? I just bought a bottle of DHEA but as I don't take HC, whoch I presume is a form of cortisol, it seesm that DHEA is not making the situation better. Is that correct> Regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 Great news, Chris. Fingers crossed for you.I'll reply to your previous post tomorrow - running out of steam today already (I actually made it walking to the end of the road:)Best, Alison>> Well,> > I set my alarm for 4.45am, and took 20mg hc with half a peanut butter sandwich. I got up about 6am, i felt woken up by the HC.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 i think waking at 4/4.30 is definitely adrenal related and possibly linked to blood sugar regulation. i have found it helpful to take a good dose of vitamin c before going to bed. have you been tested re the dhea (i.e. are you low)? trish > > Hello. is lack of cortisol why one wakes up at 4 am /4.30am in the morning? > I suffer from this odd sleep cycle now, not everyday but often enough to make me feel under-slept > is�this�why I��have put on a little more weight in spite of� being onT3? > I just bought a bottle of DHEA but as I don't take HC, whoch I presume is a form of cortisol, it seesm that DHEA is not making the situation better. > Is that correct> > Regards > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 Thanks Alison, we'll see what happens tomorrow though i don't want to jinx it. whatever will i do in the morning if i don't have my usual panic attack for breakfast, and 10 cigarettes after to calm it all down? :-| i can only think all that adrenaline's been so bad for my healht, i have had this problem for years. we shall see; almost scared to try it again in case it doesn't work. that makes no sense, i know. i dare not think it could be this simple to fix. i don't remember if i posted this to you or not (sorry) but have you gone through here to see if you have any symptoms of deficiencies? http://www.hertoghe.eu/patients/pdf/All%20vitamins%20deficiency%20tests.pdf for me, prengnelone, copper, dhea, vitamin A , vit D3 and iron all helped me to tolerate thyroid hormone better and start to recover. i started dhea and pregnenolone and felt the effect the next day i think. i also had high zinc levels (and manganese) oh one more thing- i was told to take dhea with hc. if i hadn't felt better for doing so, i wouldn't take it. i felt worse for not having it. so what i'm trying to say is sometimes we need to do what works for us, not what is recommended - sometimes we need to try things out. it may not have worked for someone on the adrenal group, but for someone else, it might. best wishes chris > > Great news, Chris. Fingers crossed for you.I'll reply to your previous > post tomorrow - running out of steam today already (I actually made it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2012 Report Share Posted February 29, 2012 , it could be one of a few things, including melatonin. this might give you a few clues in which to start to investigate further: http://www.hertoghe.eu/patients/pdf/All%20hormones%20deficiencies%20tests.pdf best regards chris > > Hello. is lack of cortisol why one wakes up at 4 am /4.30am in the morning? > I suffer from this odd sleep cycle now, not everyday but often enough to make me feel under-slept Quote Link to comment Share on other sites More sharing options...
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